1. Utilization of early therapeutic supports by autistic preschoolers in Australia: A cross‐sectional study following implementation of the National Disability Insurance Scheme.
- Author
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Pye, Katherine, Le, Ha N. D., Iacono, Teresa, and Gold, Lisa
- Abstract
There are many types of support for young autistic children and their families, but service use in this population is not well understood. In this study, primary caregivers of autistic preschoolers were surveyed (n = 95) and a selection were then interviewed (n = 19) to understand how early, therapeutic supports were accessed by families in Australia following the establishment of a National Disability Insurance Scheme (NDIS). This article presents the quantitative data from surveys and interviews. Families usually accessed at least two types of support. The most accessed supports were occupational therapy, speech pathology and psychology, with 43% of the sample accessing some other form of support. Multiple linear regression indicated that children's higher level of support need, living in less remote or less socio‐economically disadvantaged areas, and high household income were associated with higher numbers of supports accessed. Services tended to follow an individual, clinic‐based model and little use of alternative service delivery was reported. The findings indicate that Australian families are accessing a wider range of support types than before the NDIS and children with more substantial autism‐related support needs are likely to access a greater number of types of supports. Socio‐economic inequities continue to exist and should be addressed. Lay Summary: In Australia, there are various types of support available for young autistic children and their families, but we know surprisingly little about how they are used. The public health and education sectors offer support, and recently the National Disability Insurance Scheme (NDIS) was introduced to give people with disabilities, including eligible autistic people, more choice and control over their supports. In this study, we surveyed 95 primary caregivers of autistic preschoolers, and 19 of them were also interviewed, to understand how they use early, therapeutic supports in Australia. Most families used at least two types of support, like occupational therapy, speech pathology or psychology. Some families used other services like play therapy, diet therapy, or early intensive behavioral interventions. Overall, children with lower levels of autistic traits, families with lower incomes, and/or families in more remote or disadvantaged areas received fewer supports. Most services were provided individually in clinics, with little use of telehealth, therapy groups or flexible service delivery. This study's findings indicate that Australian families are accessing a wider range of support types since the introduction of the NDIS. Children with higher support needs tend to access more different supports, but socio‐economic disparities still exist. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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