Search

Clinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt‐out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision‐making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment. [ABSTRACT FROM AUTHOR]

Aim To outline the experiences and needs of lesbian, gay, bisexual and trans ( LGBT) Australians living with dementia - and their partners. Methods In-depth interviews were conducted with LGBT people, their partners and service providers. Results LGBT people living with dementia experience unique challenges including the failure of some families of origin and service providers to understand and value their sexual orientation or gender identity. The fear of discrimination by service providers results in greater reliance on intimate partners for care and compounds social isolation. Conclusions The unique experiences of LGBT people with dementia are not well understood. There is a need to recognise historical experiences, including familial relationships, and provide advocacy to ensure sexual and gender rights are not violated. There is also a need to ensure that the experiences and perspectives of LGBT people living with dementia inform the development of services. [ABSTRACT FROM AUTHOR]