12,995 results
Search Results
2. Social motor synchrony in autism spectrum conditions: A systematic review.
- Author
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Glass, Devyn and Yuill, Nicola
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MOTOR ability ,PSYCHOTHERAPY patients ,AUTISM ,PSYCHOLOGY of movement ,SYSTEMATIC reviews ,SOCIAL attitudes ,SOCIAL skills ,INTERPERSONAL relations ,PSYCHOSOCIAL functioning ,SOCIAL isolation ,SOCIAL participation ,PSYCHOSOCIAL factors - Abstract
Some researchers suggest difficulties synchronising with a partner could underpin the social differences associated with Autism Spectrum Condition, potentially acting as a marker for autism. Social Motor Synchrony (SMS) is one aspect of synchrony that could augment observational diagnostic procedures. However, the full breadth of literature examining SMS in autism has not been systematically reviewed. A systematic review following the Preferred Reporting Items for Systematic Review and Meta-Analysis guidelines yielded 29 papers meeting inclusion criteria. Of 21 studies including a comparison group, all indicated weaker SMS between two autistic partners and in mixed-neurotype partnerships compared with two non-autistic partners. Papers involving mixed-neurotype pairs without a comparison group showed higher than chance SMS and demonstrated an increase in SMS over time following rhythm-based interventions. Although research so far demonstrates weaker SMS in pairs involving an autistic partner compared with non-autistic pairs, we identified several limitations which may have influenced SMS in autistic people and their partners. Further work is needed with autistic partnerships, more natural and preferred tasks within comfortable settings and partnerships, and more work to identify the basis of synchrony differences. We set out implications for design of further research. When two people interact, they often fall into sync with one another by moving their bodies at the same time. Some say autistic people are not as good as non-autistic people at moving at the same time as a partner. This has led some researchers to ask whether measuring synchrony might help diagnose autism. We reviewed the research so far to look at differences in Social Motor Synchrony (SMS) (the way we move together) between autistic people and people they interact with. The research suggests that interactions involving an autistic partner (either two autistic partners, or an autistic and non-autistic partner) show lower synchrony than a non-autistic pair. However, we recognised elements in the research so far that may have affected SMS in interactions involving an autistic person. One way SMS may have been affected in research so far might be the way interactions have been set up in the research studies. Few papers studied interactions between two autistic people or looked at synchrony in comfortable environments with autistic-preferred tasks. The studies also do not explain why synchrony might be different, or weaker, in pairs involving autistic partners. We use these limitations to suggest improvements for future research. [ABSTRACT FROM AUTHOR]
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- 2024
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3. The feasibility of occupational therapy using Zones of Regulation™ Concepts in an equine environment.
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Peters, B. Caitlin, Gabriels, Robin L., Schmid, Arlene A., Pan, Zhaoxing, Merritt, Tamara, Hoffman, Arielle, and Hepburn, Susan
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OCCUPATIONAL therapists ,OCCUPATIONAL therapy ,SOCIAL skills ,CAREGIVERS ,HORSES - Abstract
Introduction: The current paper aimed to assess the feasibility of a modified intervention protocol named "Occupational Therapy using Zones of Regulation Concepts in an Equine Environment" (OT-ZOR Equine). Methods: A single arm A-B feasibility study was conducted, involving 14 autistic youth ages 6-13 years who first received 10-weeks of occupational therapy without horses (OT-ZOR Clinic) followed by 10-weeks of OT-ZOR Equine. Results: All participants completed the study and attended 95% of OT-ZOR Equine sessions. Occupational therapists maintained 91% fidelity to the OT-ZOR Equine intervention protocol and there were no serious adverse events. All participants' caregivers and study occupational therapists rated being satisfied or very satisfied with the OT-ZOR Equine intervention. Youth demonstrated improved self-regulation following participation in the OT-ZOR Clinic and OTZOR Equine interventions. However, participants' social functioning only improved after OT-ZOR Equine. Discussion: This study demonstrated that OT-ZOR Equine is feasible to implement, acceptable to recipients and providers, and may offer additive benefits in social functioning compared to occupational therapy intervention without horses. The current study provides a foundation for future efficacy research aimed at quantifying additive benefits of integrating horses into occupational therapy for autistic youth. [ABSTRACT FROM AUTHOR]
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- 2024
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4. How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography.
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Radev, Sarah, Freeth, Megan, and Thompson, Andrew R
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HEALTH services accessibility ,MEDICAL errors ,AUTISM ,MEDICAL care ,MEDICAL care for people with disabilities ,DIAGNOSTIC errors ,SYSTEMATIC reviews ,MEDLINE ,ASPERGER'S syndrome ,ONLINE information services ,HEALTH facilities ,PEOPLE with disabilities ,PATIENTS' attitudes ,PSYCHOLOGY information storage & retrieval systems ,ADULTS - Abstract
Autistic adults are at increased risk of both mental and physical health difficulties, and yet can face barriers to accessing healthcare. A meta-ethnographic approach was used to conduct a review of the existing literature regarding autistic adults' experiences of accessing healthcare. Four databases were systematically searched for qualitative and mixed-method studies reporting on the experiences of autistic adults without a co-occurring learning disability accessing adult healthcare services within the United Kingdom. Fifteen studies met the inclusion criteria, and seven steps were used to systematically extract the data and then generate novel themes. Three superordinate themes were identified: Professionals' lack of knowledge can be damaging, Need to reduce processing demands and Adaptation to improve engagement. This review highlights the wide-reaching damaging impact misdiagnosis, inadequate or inappropriate treatment, overwhelming environments and inaccessible systems can have on the well-being and ability of autistic adults to engage with treatment. The lack of autism knowledge and understanding experienced in interactions with healthcare professionals, along with autistic adult's own communication and sensory processing differences, demonstrates the need for widely delivered training co-produced with autistic adults alongside bespoke and person-centred adaptations. Autistic adults are more likely to experience mental and physical health difficulties, and yet can find it difficult to get the support that they need. A meta-ethnographic approach was used to review the existing research on autistic adults' experiences of accessing healthcare. Four databases were searched for qualitative and mixed-method studies which looked at the experiences of autistic adults who did not also have a learning disability when using healthcare services in the United Kingdom. Fifteen papers met the criteria to be included, and seven steps were used to analyse the information and develop new themes. Three main themes were identified: Professionals' lack of knowledge can be damaging, Need to reduce processing demands and Adaptation to improve engagement. This review highlights how damaging misdiagnosis, inappropriate treatment, overwhelming environments and systems that are difficult to access can have on the well-being of autistic adults. Limited knowledge and understanding about autism knowledge among healthcare professionals along with autistic adult's own communication and sensory differences indicate that there is a need for improved training developed with autistic adults and adaptations. [ABSTRACT FROM AUTHOR]
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- 2024
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5. An Applied Pragmatic Perspective of Autism in The Medical Interactions in TV Series: ‘The Good Doctor'.
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Ali, Talib Kareem and Mahdi Al-Kaabi, Hasan Hadi
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TELEVISION series ,AUTISM ,PHYSICIANS ,PRAGMATICS - Abstract
Copyright of Adab Al-Kufa is the property of Republic of Iraq Ministry of Higher Education & Scientific Research (MOHESR) and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2024
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6. A user-based information rating scale to evaluate the design of technology-based supports for autism.
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Zervogianni, Vanessa, Fletcher-Watson, Sue, Herrera, Gerardo, Goodwin, Matthew S., Triquell, Elise, Pérez-Fuster, Patricia, Brosnan, Mark, and Grynszpan, Ouriel
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TEST validity ,AUTISTIC people ,ENGINEERING design ,SOFTWARE engineering ,AUTISM ,TECHNOLOGY assessment - Abstract
The present study aimed to merge expertise from evidence-based practice and user-centered design to develop a rating scale for considering user input and other sources of information about end-users in studies reporting on the design of technology-based support for autism. We conducted a systematic review of the relevant literature to test the reliability and validity of the scale. The scale demonstrated acceptable reliability and validity based on a randomized sample of 211 studies extracted from the output of the systematic review. The scale can help provide a more complete assessment of the quality of the design process of technology-based supports for autism and be beneficial to autistic people, their families, and related professionals in making informed decisions regarding such supports. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Autism Spectrum Disorder Pathogenesis—A Cross-Sectional Literature Review Emphasizing Molecular Aspects.
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Horecka-Lewitowicz, Agata, Lewitowicz, Wojciech, Wawszczak-Kasza, Monika, Lim, Hyebin, and Lewitowicz, Piotr
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The etiology of autism spectrum disorder (ASD) has not yet been completely elucidated. Through time, multiple attempts have been made to uncover the causes of ASD. Different theories have been proposed, such as being caused by alterations in the gut–brain axis with an emphasis on gut dysbiosis, post-vaccine complications, and genetic or even autoimmune causes. In this review, we present data covering the main streams that focus on ASD etiology. Data collection occurred in many countries covering ethnically diverse subjects. Moreover, we aimed to show how the progress in genetic techniques influences the explanation of medical White Papers in the ASD area. There is no single evidence-based pathway that results in symptoms of ASD. Patient management has constantly only been symptomatic, and there is no ASD screening apart from symptom-based diagnosis and parent-mediated interventions. Multigene sequencing or epigenetic alterations hold promise in solving the disjointed molecular puzzle. Further research is needed, especially in the field of biogenetics and metabolomic aspects, because young children constitute the patient group most affected by ASD. In summary, to date, molecular research has confirmed multigene dysfunction as the causative factor of ASD, the multigene model with metabolomic influence would explain the heterogeneity in ASD, and it is proposed that ion channel dysfunction could play a core role in ASD pathogenesis. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Digital screener of socio-motor agency balancing motor autonomy and motor control.
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Bermperidis, Theodoros, Rai, Richa, and Torres, Elizabeth B.
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GENDER differences (Sociology) ,SOCIAL interaction in children ,STOCHASTIC analysis ,BEHAVIORAL assessment ,SIGNAL detection - Abstract
Dyadic social interactions evoke complex dynamics between two agents that, while exchanging unequal levels of body autonomy and motor control, may find a fine balance to synergize, take turns, and gradually build social rapport. To study the evolution of such complex interactions, we currently rely exclusively on subjective pencil and paper means. Here, we complement this approach with objective biometrics of socio-motor behaviors conducive to socio-motor agency. Using a common clinical test as the backdrop of our study to probe social interactions between a child and a clinician, we demonstrate new ways to streamline the detection of social readiness potential in both typically developing and autistic children by uncovering a handful of tasks that enable quantification of levels of motor autonomy and levels of motor control. Using these biometrics of autonomy and control, we further highlight differences between males and females and uncover a new data type amenable to generalizing our results to any social setting. The new methods convert continuous dyadic bodily biorhythmic activity into spike trains and demonstrate that in the context of dyadic behavioral analyses, they are well characterized by a continuous Gamma process that can classify individual levels of our thus defined socio-motor agency during a dyadic exchange. Finally, we apply signal detection processing tools in a machine learning approach to show the validity of the streamlined version of the digitized ADOS test. We offer a new framework that combines stochastic analyses, nonlinear dynamics, and information theory to streamline and facilitate scaling the screening and tracking of social interactions with applications to autism. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Unraveling the spectrum: overlap, distinctions, and nuances of ADHD and ASD in children.
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Martinez, Sabrina, Stoyanov, Kalin, and Carcache, Luis
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AUTISM spectrum disorders ,AUTISTIC children ,SYMPTOMS ,AUTISM in children ,EMOTIONAL intelligence - Abstract
This review explores the clinical presentation of similarities and differences in Attention-Deficit/Hyperactivity Disorder (ADHD) and Autism Spectrum Disorder (ASD). This paper investigates the deficits in executive function, social function, and emotional intelligence that are seen in both conditions and how the presence of both conditions can exacerbate these deficiencies. Understanding the clinical presentations in these domains is critical to refine diagnostic methods and treatments and improve outcomes for those affected by these neurodevelopmental disorders. The similarities in clinical presentation between ADHD and ASD present a significant diagnostic challenge, with individuals often exhibiting similar behaviors and difficulty navigating the complexities that encompass reacting to their environment. Further research is paramount in gaining more knowledge of the disorders and challenges faced by these individuals, especially those with the presence of both conditions. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Normal but Different: Autistic Adolescents Who Score Within Normal Ranges on Standardized Language Tests Produce Frequent Linguistic Irregularities in Spontaneous Discourse.
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Zane, Emily R and Grossman, Ruth B
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DIAGNOSIS of autism ,LANGUAGE disorder diagnosis ,CHILDREN with disabilities ,RESEARCH funding ,DATA analysis ,AUTISM ,INTERVIEWING ,DESCRIPTIVE statistics ,CHI-squared test ,DISCUSSION ,SOUND recordings ,STATISTICS ,ASPERGER'S syndrome ,INTELLIGENCE tests ,SEMANTICS ,DATA analysis software ,VIDEO recording ,ADOLESCENCE ,CHILDREN - Abstract
Background and aims: A substantial minority of autistic individuals score within typical ranges on standard language tests, suggesting that autism does not necessarily affect language acquisition. This idea is reflected in current diagnostic criteria for autism, wherein language impairment is no longer included. However, some work has suggested that probing autistic speakers' language carefully may reveal subtle differences between autistic and nonautistic people's language that cannot be captured by standardized language testing. The current study aims to test this idea, by determining whether a group of autistic and nonautistic individuals who score similarly on a standardized test show differences in the number of unconventional and erroneous language features they produce in a spontaneous language sample. Methods: Thirty-eight older children and adolescents (19 autistic; 19 nonautistic), between the ages of 10 and 18, were recruited. Both participant groups scored within normal ranges on standardized language and IQ tests. Participants engaged in a "double interview" with an experimenter, during which they were first asked questions by the experimenter about themselves, and then they switched roles, so that it was the participant's turn to ask the experimenter questions. Participants' language during the interview was transcribed and analyzed for linguistic irregularities, including both semantic anomalies and morphosyntactic errors. Results: Group membership accounted for significant variance in irregularity frequency; autistic participants produced more linguistic irregularities than nonautistic participants. Scores on a standardized language test did not improve model fit. Secondary analyses involving irregularity type (semantic vs. morphosyntactic) showed that group differences were primarily driven by relatively high numbers of semantic unconventionalities produced by the autistic group. While the autistic group made more morphosyntactic errors than the nonautistic group, differences in these numbers were only marginally significant. Conclusions and implications: These findings suggest that a commonly used standardized language test does not adequately predict the number and perhaps type of language irregularities produced by some older autistic children and adolescents during spontaneous discourse. Results also suggest that differences in language use, especially semantic differences, may characterize autistic language, even the language produced by people who score within normal ranges on standardized language tests. It is debatable whether differences reflect underlying language impairments and/or a linguistic style adopted/preferred by autistic speakers. In this paper, we discuss both possibilities and offer suggestions to future research for teasing these possibilities apart. [ABSTRACT FROM AUTHOR]
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- 2024
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11. Is autism a PIN1 deficiency syndrome? A proposed etiological role for glyphosate.
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Seneff, Stephanie, Kyriakopoulos, Anthony M., and Nigh, Greg
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NEUROGLIA ,DENDRITIC spines ,CORPUS callosum ,BONE density ,PROTEIN kinases - Abstract
Autism is a neurodevelopmental disorder, the prevalence of which has increased dramatically in the United States over the past two decades. It is characterized by stereotyped behaviors and impairments in social interaction and communication. In this paper, we present evidence that autism can be viewed as a PIN1 deficiency syndrome. Peptidyl‐prolyl cis/trans isomerase, NIMA‐Interacting 1 (PIN1) is a peptidyl‐prolyl cis/trans isomerase, and it has widespread influences in biological organisms. Broadly speaking, PIN1 deficiency is linked to many neurodegenerative diseases, whereas PIN1 over‐expression is linked to cancer. Death‐associated protein kinase 1 (DAPK1) strongly inhibits PIN1, and the hormone melatonin inhibits DAPK1. Melatonin deficiency is strongly linked to autism. It has recently been shown that glyphosate exposure to rats inhibits melatonin synthesis as a result of increased glutamate release from glial cells and increased expression of metabotropic glutamate receptors. Glyphosate's inhibition of melatonin leads to a reduction in PIN1 availability in neurons. In this paper, we show that PIN1 deficiency can explain many of the unique morphological features of autism, including increased dendritic spine density, missing or thin corpus callosum, and reduced bone density. We show how PIN1 deficiency disrupts the functioning of powerful high‐level signaling molecules, such as nuclear factor erythroid 2‐related factor 2 (NRF2) and p53. Dysregulation of both of these proteins has been linked to autism. Severe depletion of glutathione in the brain resulting from chronic exposure to oxidative stressors and extracellular glutamate leads to oxidation of the cysteine residue in PIN1, inactivating the protein and further contributing to PIN1 deficiency. Impaired autophagy leads to increased sensitivity of neurons to ferroptosis. It is imperative that further research be conducted to experimentally validate whether the mechanisms described here take place in response to chronic glyphosate exposure and whether this ultimately leads to autism. [ABSTRACT FROM AUTHOR]
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- 2024
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12. French Validation of the Camouflaging Autistic Traits Questionnaire (CAT-Q).
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Bureau, Raven, Riebel, Marie, Weiner, Luisa, Coutelle, Romain, Dachez, Julie, and Clément, Céline
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MENTAL health ,RESEARCH funding ,QUESTIONNAIRES ,RESEARCH methodology evaluation ,AUTISM ,RESEARCH evaluation ,SURVEYS ,PSYCHOMETRICS ,STATISTICAL reliability ,INTRACLASS correlation ,ASPERGER'S syndrome ,NEEDS assessment ,FACTOR analysis ,CULTURAL pluralism - Abstract
Purpose: Autistic camouflaging is a collection of strategies used to hide autistic characteristics. It can have serious consequences on autistic people's mental health and needs to be addressed and measured in clinical practice. The purpose of this study is to evaluate the psychometric properties of the French adaptation of the Camouflaging Autistic Traits Questionnaire. Methods: 1227 participants (744 autistic, 483 non-autistic) answered the French version of the CAT-Q in an online survey or on paper. Confirmatory factor analysis, measurement invariance testing, internal consistency analysis (McDonald's ω), and convergent validity with the DASS-21 depression subscale were conducted. Test-rest reliability was assessed on a sample of 22 autistic volunteers using intraclass correlation coefficient. Results: A good fit was found for the original three-factor structure as well as a good internal consistency, excellent test-retest reliability and highly significant convergent validity. Measurement invariance testing indicates however that the meaning behind items is different for autistic vs. non-autistic people. Conclusion: The French version of the CAT-Q can be used in clinical settings to assess camouflaging behaviors and intent to camouflage. Further research is needed to clarify the camouflage construct and whether reported measurement noninvariance are due to cultural differences or a true difference in what camouflaging might mean for non-autistic people. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Remembering the future; prospective memory across the autistic adult's life span.
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Groenman, Annabeth P, Torenvliet, Carolien, Radhoe, Tulsi A, Agelink van Rentergem, Joost A, van der Putten, Wikke, Altgassen, Mareike, and Geurts, Hilde M
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RESEARCH funding ,AUTISM ,EPISODIC memory ,PROBABILITY theory ,COGNITION disorders ,ASPERGER'S syndrome ,MEMORY disorders ,TIME ,LONGEVITY ,ADULTS - Abstract
Prospective memory helps us to remember to perform tasks in the future. Prospective memory can be either time or event based. The goal of this study was to determine time- and event-based prospective memory in autistic adults across the life span. Autistic (n = 82) and non-autistic (n = 111) adults, aged between 30 and 86 years, performed the lab-based Amsterdam Breakfast Task, and several naturalistic prospective memory tasks. Preregistered analyses (AsPredicted #34249) were performed using classical frequentist as well as Bayesian statistics. On none of the prospective memory tasks, group differences were observed. Our results show no effect of age on naturalistic tasks, but age did affect our lab-based measure, indicative of the age paradox often described in non-autistic adults. Moreover, we found evidence for a parallel age-related effect of lab-based and naturalistic prospective memory in autistic and non-autistic individuals. What is already known : Prospective memory is an important function for daily living. It is the cognitive function that helps you remember that you are meeting your friend for coffee at 2 pm tomorrow, or that you need to take your vitamins after breakfast. This cognitive function is particularly important in autistic adults, but how prospective memory is associated with increasing age, we currently do not know. What this paper adds : Although performance on experimental tasks that measure prospective memory decreases with age, this pattern is similar in autistic and non-autistic adults. No age effects were found for tasks that were performed outside the lab. Autistic adults and non-autistic adults perform similarly on prospective memory, and this performance remains similar when autistic and non-autistic adults age. Implications for practice, research, or policy : While our results show that prospective memory decreased with increasing age, our results do point to parallel development of prospective memory in autistic and non-autistic adults. This finding serves as a reassurance for those individuals concerned that older autistic individuals might show quicker cognitive decline. [ABSTRACT FROM AUTHOR]
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- 2024
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14. My child is already whole: Inextricable entanglements between DAP and evaluative constructs of disability.
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Bentley, Dana Frantz
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EDUCATORS ,CHILDREN with disabilities ,AUTISM ,EVALUATION ,PSYCHODIAGNOSTICS - Abstract
What does it mean for all children to be seen as whole and 'appropriate'? How can early childhood educators and families understand a child as capable and whole within the evaluative systems around disability? Through the narrative inquiry of a mother/early childhood teacher, this paper explores the complex entanglements between identity-affirming practices for all children represented in the fourth edition of Developmentally Appropriate Practices, and the relationship with deficit-based evaluations for children with disabilities. This case study explores possibilities for empowered collaborations between early childhood educators and families, resistance to deficit-based identities while navigating evaluations, and the creation of culturally sustaining interventions emerging from shared knowledge of children. The paper looks closely at perspectives and practices that invite critical engagements around evaluation, making space for new possibilities, and new perceptions for supporting all children as 'whole'. [ABSTRACT FROM AUTHOR]
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- 2024
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15. How to build resiliency in autistic individuals: an implication to advance mental health.
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Ghanouni, Parisa, Raphael, Rebeccah, Seaker, Liam, and Casey, Amanda
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CANADIAN provinces ,THEMATIC analysis ,MENTAL health ,PSYCHOLOGICAL resilience ,AUTISM - Abstract
Introduction: Individuals on the autism spectrum (ASD) often experience poor mental health and coping strategies compared to their peers due to social exclusion and co-occurring conditions. Resiliency has been identified as a key factor in preventing adverse outcomes and promoting mental health. Therefore, it is important to determine what strategies can be used to build resiliency among autistic individuals. The current paper is one of the first studies that aims to collect information from autistic individuals and their caregivers on potential strategies to enhance resiliency. Methods: We interviewed 18 participants from various provinces in Canada, comprising of 13 autistic individuals and 5 parents. We used thematic analysis to identify patterns in the data. Results: Thematic analysis revealed three themes to indicate strategies that could be used to enhance resiliency, including: (a) self-reliant strategies, (b) using community-based facilities, and (c) contextual and individual characteristics. Conclusion: Although the body of literature on resiliency is evolving, this paper provides a unique perspective as it is one of the few studies that considers the experiences of individuals on the spectrum. In addition, this study focuses on identifying and describing specific strategies that can be used to enhance resiliency and mental health, which consequently can help address the existing gaps in knowledge and practice. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Observing Neurodiversity, Observing Methodology: Ethnography in Pandemic Times.
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Gibson, Margaret F., livingstone, bridget, Monroe, Hannah, Leo, Sarah, Gruson-Wood, Julia, and Crockford, Paula
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NEURODIVERSITY ,COVID-19 pandemic ,DIGITAL technology ,ETHNOLOGY ,PANDEMICS ,NEUROLINGUISTICS - Abstract
Ethnographic researchers have long relied upon observation as a powerful means to learn about social relations. This paper discusses research observation that was conducted as a part of an institutional ethnography (IE) investigating how people use the language and ideas of neurodiversity across different settings. While our research protocol initially called for ethnographic observation to take place at in-person events in Southern Ontario, our approach needed to be re-formulated with the switch to online events during the COVID-19 pandemic. After the shift to online-only spaces, a total of 52 sessions at 7 online events related to neurodiversity or autism were observed by a team of 5 researchers: these events were no longer geographically restricted but were officially "hosted" by institutions in Canada, the US, and the UK. This paper reflects upon the challenges and opportunities we encountered as we conducted observations in digital spaces, including our experiences of navigating the "chat" feature. We discuss the need to analyze the format as well as the content of online events, and present findings on how neurodiversity appeared in these social spaces. Finally, we consider the implications of this research for people who are conducting ethnographic observation in an increasingly online world. [ABSTRACT FROM AUTHOR]
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- 2024
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17. The complex emergencies arising from Cawston Park Hospital.
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Bunting, Vikki
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COMMUNITY support ,MENTAL health ,MEDICAL quality control ,PATIENT safety ,MEDICAL care ,AUTISM ,HOSPITALS ,SOCIAL worker attitudes ,PATIENT advocacy ,HUMAN rights ,INTELLECTUAL disabilities ,MEDICAL emergencies ,ASPERGER'S syndrome ,HEALTH facilities ,QUALITY assurance ,SOCIAL support ,CAREGIVER attitudes ,MEDICAL care costs ,RESIDENTIAL care ,MEDICAL referrals - Abstract
Purpose: Three deaths at Cawston Park Hospital shed a bright light on Norfolk's services for people with learning disabilities and autism, including those operated by the company that ran the hospital. The purpose of this paper is to review Norfolk County Council's current position from the unique aspect of a senior manager wihtin the system. Design/methodology/approach: This paper reviews the unique perspective of a social worker from within the system. Findings: The process of making change included engagement and action concerning such thorny challenges as the pressures on community services; the undervaluing of care-giving as a career; and the continuing admissions to specialist mental health services at a time when hospital discharges are being expedited. Originality/value: Norfolk's investment in improving its services involves the adoption of a human rights approach; a capital programme to facilitate new developments; nurturing care-giving as a career; and bringing a clearer evidence base to this work programme. [ABSTRACT FROM AUTHOR]
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- 2024
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18. Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents.
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Chen, Rachel S. Y.
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AUTISTIC children ,PARENT-child relationships ,FACE-to-face communication ,MEANS of communication for people with disabilities ,AUTOMATIC speech recognition ,ORAL communication ,SPEECH - Abstract
Non-speaking autistic individuals grapple with the profound impact of the 'double empathy problem' in their daily interactions with speaking others. This study rethinks the communication challenges faced by non-speaking autistic individuals, challenging traditional approaches that predominantly focus on speech and complex communication devices (AAC). By spotlighting the natural phenomenon of "interactive stimming," a powerful mode of communication among autistic individuals, this study advocates for a shift from a conventional emphasis on speech towards the foundational role of the body in autistic communication. Central to this exploration is the introduction of the Magical Musical Mat (MMM), an innovative interactive environment mapping interpersonal touch to musical sounds. Through a robust mixed-methods approach integrating video-based fieldwork and designbased research, this paper engages three non-speaking autistic children and their mothers in a 5-day empirical intervention. Results reveal significant transformations in parent-child interactions as both parents and children are acquainted with touch in a new environment. Children assert their autonomy, exploring at their own pace, and discovering sensory features of the environment. Notably, the introduction of sound prompts heightened awareness of the stims, leading to diversified and expressive stim movements. Foregrounding interpersonal touch eventually guides parents into their children's sensory activities where parents attune to the stims of their children by joining in and facilitating their expressiveness, co-creating extended, evolving patterns of repetitive cycles. The collaborative stim cycles can be likened to free improvisation, where dynamical coherence between individuals occurs through a blend of stability and active flexibility. By shifting the focus from speech to co-created sensory experiences, this paper sheds light on the value of transformative multisensory environments, envisioning a world where varied modes of communication are valued and embraced. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Advances in Understanding Schizophrenia, ADHD, and ASD.
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Kalin, Ned H.
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COGNITIVE remediation ,ATTENTION-deficit hyperactivity disorder ,YOUTH with attention-deficit hyperactivity disorder ,SCHIZOPHRENIA ,TEMPORAL lobe - Abstract
This document provides a summary of several research papers published in the American Journal of Psychiatry. The papers cover topics related to schizophrenia, autism spectrum disorder (ASD), and attention-deficit/hyperactivity disorder (ADHD). The research findings indicate low levels of recovery and remission in individuals with schizophrenia spectrum disorders compared to other psychoses. A meta-analysis of neuroimaging data reveals shared and distinct patterns of brain activation in individuals with ASD and ADHD. Another study uses a mega-analytic approach to identify functional connectivity alterations in youth with ADHD. These findings contribute to our understanding of the etiology and pathophysiology of these disorders and may guide the development of new treatments. [Extracted from the article]
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- 2024
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20. Assessing Restricted and Repetitive Behaviours in Online-Sampled Autistic and Non-autistic Individuals: Factor Structure of the Repetitive Behaviours Questionnaire for Adults (RBQ-2A).
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Brett, Jack D., Peden, Brooke, Preece, David A., Whitehouse, Andrew, Becerra, Rodrigo, and Maybery, Murray T.
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DIAGNOSIS of autism ,BEHAVIORAL assessment ,ECOLOGY ,RESEARCH funding ,QUESTIONNAIRES ,RESEARCH evaluation ,DESCRIPTIVE statistics ,INTELLECTUAL disabilities ,PSYCHOMETRICS ,LANGUAGE disorders ,RESEARCH methodology ,FACTOR analysis ,COLLEGE students - Abstract
The Repetitive Behaviours Questionnaire for Adults (RBQ-2A) measures two factors of restricted and repetitive behaviours (RRBs) associated with autism. However, the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) provides four criteria for RRBs: repetitive motor behaviours, insistence on sameness, restricted interests, and interest in sensory aspects of the environment (or atypical sensitivity). The current paper aimed to examine whether the RBQ-2A is a psychometrically sound measure of these four factors. Study 1 had university students (N = 368) complete the RBQ-2A and other related measures online and revealed that the RBQ-2A can assess the factors highlighted in the DSM-5 and that these four factors comprise a general RRB construct. Study 2 had individuals disclosing a diagnosis of autism (N = 283) complete the RBQ-2A and other related measures online and supported that this four-factor structure provided good psychometric properties. While the current paper provides findings for an online autistic population, further research is needed to generalize these findings to autistic individuals less likely to partake in online studies (e.g., those with intellectual or language disabilities). Overall, the results suggest that the RBQ-2A reliably and validly assesses RRBs. [ABSTRACT FROM AUTHOR]
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- 2024
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21. A Good Life: Parents of Adults with Autism Envision their Child’s Late Life.
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Wells, Munira, Kartoz, Connie, and Muñoz, Sara
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PARENT-adult child relationships ,AUTISM in children ,AUTISTIC children ,AUTISM spectrum disorders ,ADULT children ,BURDEN of care - Abstract
Background: Autism Spectrum Disorder (ASD) is a lifelong disorder, occurring globally. It often requires supported living, usually with parents as the caregivers. Researchers have described parent caregiver stress, worry about the future, and difficulty accessing resources, yet a focus on a desired future is missing from the literature. The purpose of this paper is to discuss the results of a qualitative study exploring parent’s considerations and hopes for their autistic adult child’s later life. After IRB approval, parents of an adult child with an ASD were recruited via purposive sampling. Data saturation was reached after interviews with ten mothers and four fathers from the mid-Atlantic region of the United States. All interviews were virtual. Audio transcripts were verified prior to coding. Content analysis yielded several themes. Results showed that parents wished for “a good life” for their adult child with ASD. Parents hoped their adult child would be engaged with others and have meaningful activities. Alongside the aspirational positive focus, an additional theme was “worry, love and loss,” including parental worry about who would engage with and eventually care for their child. Implications: Healthcare providers and policymakers are charged with listening to families affected by autism and should work to help plan for and ensure an engaged late life for individuals with autism, while recognizing the inherent anticipatory loss. The paper concludes that parents of adult children with autism have a vision for their child’s late life that has meaning. Research is needed to understand best practices to support such a future. [ABSTRACT FROM AUTHOR]
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- 2024
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22. Water-Based Interventions for People With Neurological Disability, Autism, and Intellectual Disability: A Scoping Review.
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Naumann, Karlee, Kernot, Jocelyn, Parfitt, Gaynor, Gower, Bethany, and Davison, Kade
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HYDROTHERAPY ,NEUROLOGICAL disorders ,MEDICAL information storage & retrieval systems ,SPINAL cord injuries ,AQUATIC exercises ,SYSTEMATIC reviews ,HEALTH outcome assessment ,SCUBA diving ,AUTISM ,PEOPLE with intellectual disabilities ,LITERATURE reviews ,MEDLINE ,SWIMMING ,CEREBRAL palsy ,DATA analysis software - Abstract
The purpose of this study was to produce a descriptive overview of the types of water-based interventions for people with neurological disability, autism, and intellectual disability and to determine how outcomes have been evaluated. Literature was searched through MEDLINE, EMBASE, Ovid Emcare, SPORTDiscus, Google Scholar, and Google. One hundred fifty-three papers met the inclusion criteria, 115 hydrotherapy, 62 swimming, 18 SCUBA (self-contained underwater breathing apparatus), and 18 other water-based interventions. Common conditions included cerebral palsy, spinal cord injury, Parkinson's disease, and intellectual disability. Fifty-four papers explored physical outcomes, 36 psychosocial outcomes, and 24 both physical and psychosocial outcomes, with 180 different outcome measures reported. Overall, there is a lack of high-quality evidence for all intervention types. This review provides a broad picture of water-based interventions and associated research. Future research, guided by this scoping review, will allow a greater understanding of the potential benefits for people with neurological disability, autism, and intellectual disability. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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23. Wales and Autism: the impact of philanthropy matched by ambition.
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Morgan, Hugh
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DOCUMENTATION ,GOVERNMENT policy ,ENDOWMENTS ,AUTISM ,HEALTH policy ,STRATEGIC planning ,FUNDRAISING ,CHARITY ,ASPERGER'S syndrome ,CHARITIES ,ORGANIZATIONAL goals - Abstract
Purpose: The purpose of this paper is to place on record the impact made on government policy and research by Autism Cymru, a small charity that existed in Wales between 2001 and 2014. The success of Autism Cymru resulted directly from philanthropic funding, applied with strategic vision and genuine ambition. Design/methodology/approach: A retrospective, chronological viewpoint highlighting the creative process, drawing upon records held by the charity. Findings: Autism Cymru initiated the concept and played a crucial role in steering the development of government policy for autism in Wales between 2001 and 2011. The charity also drove forward the initiative, which led to the establishment of the Wales Autism Research Centre at Cardiff University in 2010. This paper demonstrates that with astute philanthropic support, small learning disability/autism charities can elicit structural and sustainable change at the national level, leading to wide-ranging benefits for the communities they represent. Originality/value: The strategic approach taken over 20 years ago in Wales by Autism Cymru, which led to the Welsh Government's ASD Strategic Action Plan for Wales (Welsh Government, 2011), set in place a national policy model, which was then followed by The Scottish Strategy for Autism and the Northern Ireland Autism Strategy (Department of Health, 2013>; Scottish Government, 2011). The insightful and tenacious method used by Autism Cymru remains relevant today, demonstrating that any small charity supported by shrewd philanthropic funding can punch well above its weight by taking a planned, ambitious and strategic approach to policy, research and practice. [ABSTRACT FROM AUTHOR]
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- 2024
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24. A systematic review of the effect of nutritional status on autism spectrum disorder.
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Santiago, Felipe G., Lyra, Eduardo D. S., and da Silva Pantoja, Patrícia
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META-analysis ,NUTRITIONAL status ,AUTISM spectrum disorders - Abstract
Autism spectrum disorder (ASD) is a neurodevelopmental disorder that includes deficits in social interaction, communication and behavior, whose exact cause remains unknown. Its symptoms, such as food selectivity, food refusal and resistance to new habits affect children´s ability to consume food. The aim of this study is to answer the following questions: Do children with ASD have a different nutritional and behavioral profile from neurotypical children? Are dietician interventions capable of bringing benefits in terms of improvements in behavior, communication and socialization status? The methodology used was a systematic review. The authors produced two guiding questions; defined keywords; researched for papers in databases; applied inclusion and exclusion criteria; and analyzed the data obtained from papers that answered the guiding questions. The results revealed 27 publications in the Pubmed, Lilacs, and Capes databases that included keywords cross-referenced between ASD and gluten free, eating behavior, casein-free, nutritional status, food selectivity, vitamin deficiency, nutritional strategy. An analysis of 16 papers in Pubmed, 6 papers in Lilacs and 5 papers in Capes showed that 33.3% of the works had been published in Brazil. Randomized clinical trials (RCT) and cross-sectional studies were the most used methodologies. The analysis concluded that non-nutritional interventions have been effective in modifying unsatisfactory behaviors. Also, a combination of dietary and social/behavioral interventions is effective in circumventing food selectivity, thereby improving food acceptance. [ABSTRACT FROM AUTHOR]
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- 2024
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25. Understanding the differences in the use of graphic tool and planning during graphic execution between individuals with autism and typically developing individuals.
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Verma, Pragya, Singh, Madhu, and Lahiri, Uttama
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CHILD development ,AUTISM ,TRAIL Making Test - Abstract
Individuals with autism (ASD) often face difficulty in executing graphic tasks. This can be related to how one uses a graphic tool (e.g., pen) and plans ahead the graphic execution. Use of graphic tool can be captured using attributes, e.g., pen-tip pressure, number of pen lifts, etc. One's ability to plan a graphic execution can be quantified using the total duration of pen lifts (i.e., air time). Though pen-and-paper-based Trail Making Test-Part A (TMT-A) can estimate planning of graphic execution, yet it cannot capture other attributes, e.g., pentip pressure, pen lift, etc. This can be possible if TMT-A is administered on a pressure-sensitive tablet as seen from existing studies with typically developing (TD) individuals. However, quantification of such attributes using TMT-A administered on a pressure-sensitive tablet remains unexplored for individuals with ASD. In addition, such objective measures can help to understand variations in the use of graphic tool and ability to plan graphic execution even outside the TMT-A task, e.g., while drawing shapes which is important to the development of children's graphic skills. Here, we conducted a study with 12 pairs of TD children and those with ASD who executed TMT-A (in Phase-I) and shape drawing (in Phase-II) on a pressure-sensitive tablet. Results of our study show differences in the use of graphic tool and planning ahead the graphic execution between two participant groups in both the Phases. Such insights can offer clinical inputs that can be helpful in designing individualized intervention paradigms for children facing difficulties in graphic execution. [ABSTRACT FROM AUTHOR]
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- 2024
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26. HARNet: design and evaluation of a deep genetic algorithm for recognizing yoga postures.
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Subramanian, R. Raja and Govindaraj, Vishnuvarthanan
- Abstract
The research presents an interactive toy agent leveraging a deep learning approach for treating autistic kids by making them learn Yoga. The objective of the proposed toy is to understand the basic needs of autistic kids and make them socially adaptable to their surrounding environment. Since kids with autism face social insecurities while interacting and communicating with people, we introduce an interactive toy to accompany the kid, making him or her more likely to act as a companion. The toy is orchestrated with IoT and the Deep Learning framework (HARNet) which makes it interactively instruct Yoga Asana to the autistic kid. The motion of the toy is controlled by touch sensors, and interaction is developed through the recognition of Yogo postures performed by the kid. This paper uses snippets of data in the Yoga-82 dataset. The gestures of Yoga asanas are leveraged, and the same is used for modeling HARNet. Empirical evaluations show that HARNet exhibits an accuracy of 98.52% against the Yoga-82 dataset. The cost of the Toy framework is also compared with state-of-the-art research on Humanoid Toys and the economic range of the proposed framework is evident. [ABSTRACT FROM AUTHOR]
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- 2024
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27. Forgotten, outdated, and absent: PSNI officer's training, experiences, and confidence with Autism.
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Maxwell, Naomi and Kramer, Amanda
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AUTISM ,POLICE services ,CONFIDENCE ,POLICE ,POLICE training - Abstract
Building on the growing literature examining the multifaceted and complex issues surrounding police interactions with Autistic individuals, this paper examines police officers' training, experiences, and confidence of policing and interacting with autistic individuals. The paper specifically focuses on the Police Service of Northern Ireland (PSNI), which has been completely neglected in the literature to date. The findings are based upon a survey completed by 212 serving PSNI officers across a variety of ranks and years of experience. While there are a range of important findings in relation to training, confidence and available adaptations, the key finding of this paper is that less than one-third of the survey respondents reported receiving training on Autism delivered by the PSNI. Perhaps even more worryingly, less than half of those who had received this training stated that they were 'satisfied' with it. These findings suggest that the PSNI need to urgently reform the training provided to their officers to ensure that all officers receive Autism focused training. The study findings demonstrate that this new training programme should require periodic retraining throughout officers' careers; be designed to provide officers with both the knowledge base and skill set to effectively interact with Autistic individuals in ways that protect their human rights; and be delivered by a specialist organisation or professional, such as Autism NI. [ABSTRACT FROM AUTHOR]
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- 2024
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28. Exploring social touch in autistic and non-autistic adults via a self-report body-painting task: The role of sex, social context and body area.
- Author
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Mello, Manuel, Fusaro, Martina, Aglioti, Salvatore Maria, and Minio-Paluello, Ilaria
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SELF-evaluation ,ART ,RESEARCH funding ,TOUCH ,AUTISM ,SEX distribution ,SOCIAL factors ,SOCIAL attitudes ,SOCIAL skills ,ASPERGER'S syndrome ,HUMAN body ,INTIMACY (Psychology) ,FRIENDSHIP ,ADULTS - Abstract
In the typically developing population, social touch experiences are influenced by several factors, including the biological sex of toucher and receiver, the body area wherein the touch is delivered and the social context in which the tactile exchange occurs. However, it is currently unexplored how social touch experiences of autistic adults are modulated by these factors. We sought to address this by utilizing a self-report body-painting task. Our main results show that autistic, compared with non-autistic, adults reported lower levels of pleasantness, erogeneity and appropriateness, specifically in intimate and friendly social contexts and in body areas typically touched in these situations. Importantly, sex played a major role in group differences. For instance, although autistic females reported, across social contexts, less pleasantness than both non-autistic females and autistic males, they experienced similar levels of appropriateness in the professional social context, usually deemed as touch-appropriate. Our findings provide new support to the hypothesis that social touch is experienced and possibly conceptualized differently by autistic compared with non-autistic adults. Moreover, by identifying the factors that influence social touch processing in autistic adults, our results might aid the development of support for autistic individuals seeking help in the spheres of social and intimate touch. What is already known about the topic? At least in neurotypical individuals, social touch represents an important channel for emotional communication associated with social bonding and pain/anxiety modulation. Autistic adults report to avoid social touch more and to have different tactile sensitivity than their non-autistic comparisons. What this paper adds? Few studies specifically investigated social touch in autistic individuals, and none of them examined the role of participants' sex, social context in which social touch occurs, and specific body areas being touched. In our study, adult participants reported how pleasant, erogenous and appropriate they would consider touches delivered by another person over their entire body in intimate (date), friendly (dance class) and professional (physiotherapy-massage session) social contexts. Autistic adults reported social touch to be less pleasant, erogenous and appropriate specifically in intimate and friendly social contexts and in body areas typically touched in these situations. Importantly, autistic females seem more at risk to experience unpleasant social touch as, although they considered it more unpleasant than non-autistic females and autistic males, they did consider it similarly appropriate in professional social contexts where touch is normed to be socially appropriate. Implications for practice, research or policy Our results might improve awareness and understanding about autistic adults' different, and often more discomforting, experience of social touch and thus help consider and respect it during everyday social interactions. Our results might also benefit future research investigating, for instance, the neural underpinnings of social touch differences in autism or aiming at developing support for autistic individuals seeking help in the diverse spheres of social touch. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Applied Behavior Analysis and Autism Spectrum Disorder in the Gulf Region in the Middle East.
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Kelly, Michelle P., Alireza, Ingy, Azzaam, Shariffah, Baowaidan, Lamis M., Gabr, Ahlam A., Taqi, Roqayyah, and Yateem, Sharifa N.
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AUTISM ,CULTURAL competence ,DECISION making in clinical medicine ,EXPERIENCE ,ASPERGER'S syndrome ,BEHAVIOR therapy ,PEOPLE with disabilities - Abstract
An overview of Applied Behavior Analysis (ABA) and Autism Spectrum Disorder (ASD) in the Middle East was published by Kelly and colleagues in 2016. The focus of the review was to explore clinical services, educational opportunities, and published research in the six countries of the Gulf Cooperation Council, namely the Kingdom of Bahrain, the State of Kuwait, the Sultanate of Oman, the State of Qatar, the Kingdom of Saudi Arabia, and the United Arab Emirates. The objective of the current paper was to provide an update on the current status of ABA and ASD in the Gulf region, with a focus on successes, challenges, and recommendations for future directions. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Promoting Neurodiversity Through MBSE and Other Technical Approaches.
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Duffy, Taylor and Romero, Maria
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NEURODIVERSITY ,SYSTEMS engineering ,COMMUNICATION methodology ,PSYCHIATRY ,AUTISM - Abstract
The Systems Engineering (SE) industry employs many people from the neurotypical and neurodivergent communities. This research presents different concepts and potential methods/tools available to promote neurodiversity and the complex interactions between those who are categorized by it, as well as the various relevant institutions it challenges and responds to (psychiatry, education, industry, etc.). Neurodiversity will mean different things at different times. The challenge we face in the industry is finding ways to work on complex systems that include neurodiverse thinking into the overall solution. This paper will attempt to bridge this gap by looking into the meaning of neurodivergence, showing the different ways organizations within the SE industry assess a neurodiverse individual to perform work, and demonstrating how organizations can utilize tools and methodologies to offer more inclusion and reduce feeling invisible within the community. This paper will further explain how modelbased systems engineering (MBSE) and simulation could provide methods and visualizations necessary to provide a cross‐neurotype communication and visualization methodology to convey both abstract and concrete solutions to complex problems in SE. By adopting a neurodiverse perspective, we can alter actual relations; from how we empathize with the neurodivergent community, to how we design adaptable systems that evolve and expand into new functionalities and services. [ABSTRACT FROM AUTHOR]
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- 2024
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31. DE LA VIÑETA AL FOTOGRAMA: UN ANÁLISIS COMPARATIVO ENTRE LA NOVELA GRÁFICA MARÍA Y YO, DE MARÍA Y MIGUEL GALLARDO, Y SU TRASVASE AL CINE POR FÉLIX FERNÁNDEZ DE CASTRO.
- Author
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ROSALES GARCÍA, Cristina
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GRAPHIC medicine ,AUTISM spectrum disorders ,GRAPHIC novels ,FILM adaptations ,COMPARATIVE studies ,HEGEMONY - Abstract
Copyright of Tropelías: Revista de Teoría de la Literatura y Literatura Comparada is the property of Prensas Universitarias de Zaragoza and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2024
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32. Developmental language disorder and neurodiversity: Surfacing contradictions, tensions and unanswered questions.
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Hobson, Hannah M, Toseeb, Umar, and Gibson, Jenny L
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ATTENTION-deficit hyperactivity disorder ,NEURODIVERSITY ,AUTISM ,LANGUAGE disorders ,CHILD development deviations ,PATIENT-professional relations ,ASPERGER'S syndrome ,SOCIAL support ,SPEECH therapy - Abstract
Background: Neurodiversity is increasingly discussed in relation to autism research and practice. However, there is a lack of scholarship concerning the neurodevelopmental condition of Developmental Language Disorder (DLD) and the neurodiversity movement. While this movement may hold opportunities for the DLD community, the application of the concept of neurodiversity to DLD research and practice needs consideration, as DLD and autism have very different levels of public and professional awareness and understanding. Aims: In this article, we discuss what the concept of neurodiversity and the associated neurodiversity movement could mean for DLD research and practice. We aim to critique some assumptions that may arise from the application of neurodiversity principles (or assumed principles) to the field of DLD. Methods: This is a discussion paper, drawing on the personal experiences and reflections of the author team. Main Contributions: We make the case for why DLD should be included in discussions about neurodivergence and outline considerations for doing so, and why some issues and applications may be particular to DLD. We outline points of similarity and contrast with autism in relation to our understanding of neurodiversity. We consider the issues around diagnosis and terminology and urge practitioners to continue to diagnose DLD using currently agreed terminology, so as not to undermine recent awareness efforts. We note that a neurodiversity‐informed perspective challenges us to offer interventions that operate at the level of our environments, not just at the level of an individual. Indeed, neurodiversity offers a platform to argue for better rights and more inclusive spaces in mental health settings, education and work for children and adults with DLD. Conclusions: DLD should be considered from a neurodiversity‐informed perspective, and it is our hope that this will lead to neurodiversity‐affirming practice that will afford young people with DLD better understanding from members of the public and the professionals who work with them. Further work is needed to better support children, young people and adults with DLD to have a voice in the neurodiversity movement. WHAT THIS PAPER ADDS: What is already known on the subject: Neurodiversity approaches are increasingly being taken up in research and practice in relation to autism, meaning that our understanding of autism and how autistic people are supported is increasingly drawing on the principles of neurodiversity. However, autism is not the only neurodivergent population. Developmental Language Disorder (DLD) is another neurodevelopmental condition; however, relative to autism, DLD has lower awareness amongst professionals and the public. There has been no scholarship that has examined DLD through the lens of neurodiversity, or considered the application of neurodiversity‐affirming approaches to DLD. What this paper adds to existing knowledge: In this paper, we examine what the neurodiversity movement means for DLD research and practice. In particular, we consider what neurodiversity in the field of autism might teach us about the application of neurodiversity in the field of DLD, and highlight where we believe there are important differences between the two populations. We reflect on what neurodiversity means for intervention, diagnosis, terminology and championing the need for accessibility, especially with regard to mental health support, education and employment. What are the potential or actual clinical implications of this work?: Neurodiversity highlights the need to consider interventions at the level of an individual's environment (e.g., how can we make this space more inclusive?) as well as interventions operating at the level of the individual themselves (e.g., interventions focusing on an individual's language skills). We challenge the notion that neurodiversity‐affirming approaches mean not diagnosing DLD or changing DLD's terminology: we argue that this is not in the spirit of the original neurodiversity movement, but also that for a condition with such low public awareness, these actions could do more harm than good for families affected by DLD. We call for more in‐depth scholarship and discussion around the application of neurodiversity approaches to DLD and argue that the neurodiversity movement offers an important opportunity to raise better awareness and understanding of DLD in multiple sectors, including (but not limited to) mental health, education and employment. [ABSTRACT FROM AUTHOR]
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- 2024
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33. Two decades of assistive technologies to empower people with disability: a systematic mapping study.
- Author
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Enríquez, J. G., Soria Morillo, Luis M., García-García, J. A., and Álvarez-García, Juan A.
- Subjects
DISABILITIES ,SELF-efficacy ,COMPUTER software ,CHILD psychopathology ,VISION disorders ,RESEARCH funding ,AUTISM ,MUSCULOSKELETAL system diseases ,WEARABLE technology ,DESCRIPTIVE statistics ,MOVEMENT disorders ,CEREBRAL palsy ,ASSISTIVE technology ,SYSTEMATIC reviews ,MEDLINE ,ROBOTICS ,LANGUAGE disorders ,ONLINE information services ,SPEECH disorders ,DEMENTIA ,PEOPLE with disabilities ,USER interfaces ,PUBLICATION bias ,LEARNING disabilities ,MOTOR neuron diseases - Abstract
Information and Communication Technologies have transformed our lives in different social areas, facilitating interpersonal relationships thanks to technological tools. In the specific case of people with disabilities, Assistive Technologies (ATs) break down barriers and increase opportunities to become active members of society with equal opportunities. This paper presents a systematic mapping study that analyzes the current state-of-the-art of ATs proposed in the literature to support the empowering of people with disability. Specifically, this paper focuses on (1) describing a global vision of the scientific literature published in the last 20 years about ATs in the computer science field and (2) identifying research needs, gaps, and trends. For this purpose, an in-depth analysis of 389 primary studies is presented. The information obtained from the mapping process is also constrained. Concretely, 35 ATs versus 22 disabilities are compared, obtaining striking peaks for some disabilities described in the discussion. Finally, the findings show that several areas have been covered only lightly, revealing interesting future directions and challenges for junior researchers. • ATs have the potential to break down barriers for people with disabilities, enabling them to participate more fully in society. This implies a need for rehabilitation programs to incorporate ATs into their strategies to enhance social inclusion. • Given the transformative role of ICT, rehabilitation programs should focus on helping people with disabilities develop the necessary technological skills to utilize ATs effectively. • This work highlights the diversity of ATs and disabilities, suggesting a need for personalized rehabilitation plans that match specific ATs to individual disabilities. • Rehabilitation professionals should be trained to assess and recommend appropriate ATs for each case. Rehabilitation programs should consider incorporating cutting-edge ATs and staying involved in research to contribute to future developments to cover gaps and challenges identified. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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34. Differently different?: A commentary on the emerging social cognitive neuroscience of female autism.
- Author
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Rippon, Gina
- Subjects
AUTISM ,COGNITIVE neuroscience ,NEUROSCIENCES ,SEX (Biology) ,SOCIAL commentary ,BRAIN research ,FEMALES ,GENDER differences (Psychology) - Abstract
Autism is a neurodevelopmental condition, behaviourally identified, which is generally characterised by social communication differences, and restrictive and repetitive patterns of behaviour and interests. It has long been claimed that it is more common in males. This observed preponderance of males in autistic populations has served as a focussing framework in all spheres of autism-related issues, from recognition and diagnosis through to theoretical models and research agendas. One related issue is the near total absence of females in key research areas. For example, this paper reports a review of over 120 brain-imaging studies of social brain processes in autism that reveals that nearly 70% only included male participants or minimal numbers (just one or two) of females. Authors of such studies very rarely report that their cohorts are virtually female-free and discuss their findings as though applicable to all autistic individuals. The absence of females can be linked to exclusionary consequences of autism diagnostic procedures, which have mainly been developed on male-only cohorts. There is clear evidence that disproportionately large numbers of females do not meet diagnostic criteria and are then excluded from ongoing autism research. Another issue is a long-standing assumption that the female autism phenotype is broadly equivalent to that of the male autism phenotype. Thus, models derived from male-based studies could be applicable to females. However, it is now emerging that certain patterns of social behaviour may be very different in females. This includes a specific type of social behaviour called camouflaging or masking, linked to attempts to disguise autistic characteristics. With respect to research in the field of sex/gender cognitive neuroscience, there is emerging evidence of female differences in patterns of connectivity and/or activation in the social brain that are at odds with those reported in previous, male-only studies. Decades of research have excluded or overlooked females on the autistic spectrum, resulting in the construction of inaccurate and misleading cognitive neuroscience models, and missed opportunities to explore the brain bases of this highly complex condition. A note of warning needs to be sounded about inferences drawn from past research, but if future research addresses this problem of male bias, then a deeper understanding of autism as a whole, as well as in previously overlooked females, will start to emerge. Plain Language Summary: Autism is a neurodevelopmental condition, behaviourally identified, which is generally characterised by social communication differences, and restrictive and repetitive patterns of behaviour and interests. It has long been claimed that it is more common in males, with oft-quoted ratios of 4M: 1F. This has been reflected in the development of diagnostic criteria for autism and, consequently, of measures of eligibility for autism research programmes, with females being (as is now emerging) disproportionately excluded. As outlined in this review, this issue has been particularly problematic in brain-based studies of autism. Many studies have only tested male autistic participants, or minimal numbers of autistic females. By default, sex differences were not examined. But the impression given by such research reports has commonly been that the findings would be applicable to all autistic individuals. Recent psychological and clinical research has shown that there are a significant number of autistic females who have been missed by traditional diagnostic practices. Their inclusion has increased their eligibility for autism research studies. With respect to brain research, it has become possible to devise studies with matched numbers of autistic females and males, and to replicate studies that have previously only tested males. Newly emerging findings from such studies are demonstrating that the 'robust' autism-related differences previously observed in autistic male-only cohorts do not fully generalise to autistic females. It will be necessary to exercise caution in drawing inferences from previous male-biased studies of the autistic brain. However, the identification and inclusion of previously excluded female autistic participants hopefully offers more accurate insights into this highly complex and heterogeneous condition. Highlights: Several decades of neuroimaging research into autism has been based almost entirely on males; even big data sets show strong evidence of male bias. There is clear evidence that autistic females are being excluded from the research process by failures in diagnostic practices that have been developed on male-biased cohorts. Models of autism which inform research protocols are based on male autism phenotypes; it appears to have been assumed that the substantially fewer females that are diagnosed will present with equivalent, if milder, patterns of autistic differences. Newly emerging findings from social cognitive neuroscience research studies investigating sex/gender differences in autistic behaviour and associated biological correlates are demonstrating that the 'robust' autism-related differences previously observed in autistic male-only cohorts do not fully generalise to autistic females. Autism research programmes should prioritise the exploration of sex/gender effects. [ABSTRACT FROM AUTHOR]
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- 2024
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- View/download PDF
35. Video‐based interventions promoting social behavioural skills for autistic children and young people: An evidence and gap map.
- Author
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McConnell, Karen, Keenan, Ciara, Storey, Catherine, and Thurston, Allen
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PATIENT education ,EVIDENCE gaps ,RESEARCH funding ,AUTISM ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,SOCIAL skills ,MEDICAL databases ,DATA analysis software ,SOCIAL skills education ,VIDEO recording ,PSYCHOLOGY information storage & retrieval systems ,ERIC (Information retrieval system) - Abstract
Background: Video‐based interventions (VBIs) are an approach that can be used to promote social behavioural skills for autistic children and young people. Despite an abundance of literature in this area, previous evidence syntheses are limited by their exclusive search strategies and eligibility criteria. Therefore, there is a lack of comprehensive evidence syntheses to provide insight on whether these interventions work, for whom, and in what circumstances. Evidence and Gap Maps (EGMs) are used to collate vast literature on a broad topic area such as this, highlighting areas for synthesis, and identifying gaps for future research. Objectives: To identify, map and synthesise existing primary research on VBIs promoting social behavioural skills for autistic children and young people, creating a live, searchable and publicly available EGM. Search Methods: Searches were conducted in electronic databases (n = 8), web search engines, and other repositories including published papers and grey literature. The search strategy was developed around two concepts including (1) terms related to autism, and (2) terms related to VBIs. Searches were conducted in May 2021. Selection Criteria: All primary studies evaluating the effectiveness of VBIs in promoting social behaviours for autistic children and young people aged 3–18 were included in the EGM. Data Collection and Analysis: Search results were imported into Eppi‐Reviewer where duplicates of identical studies were removed. Titles and abstracts were then screened by two independent reviewers. Potentially eligible full texts were located and also screened by two reviewers. Data were then extracted on study design, participant characteristics, type of intervention, type of outcome, and country of study, by one of three reviewers. EPPI‐Mapper was used to create the interactive EGM. Main Results: The current EGM contains 438 studies reporting on 394 single subject research designs, 25 randomised controlled trials, 15 non‐randomised group designs, and 8 pretest–posttest designs. Included studies evaluated VBIs in all male (n = 238), mixed gender (n = 172) or all female (n = 17) samples. VBIs employed included video modelling (n = 273), video self‐modelling (n = 82), point‐of‐view modelling (n = 61), video prompting (n = 57), video feedback (n = 12) and computer‐based video instruction (n = 4). The most frequently used models were adults (n = 191) and peers (n = 135). In relation to social outcomes, almost half evaluated social engagement (n = 199) with limited studies looking at safety (n = 9) and community (n = 7) skills. Authors' Conclusions: This EGM provides a valuable resource for policy‐makers, practitioners, researchers, funders and members of the public to access evidence on VBIs promoting social behavioural skills in autistic children and young people. The map has identified areas of sufficient research where evidence can undergo synthesis. In addition, important gaps in the evidence were highlighted and suggest further research is warranted in all female samples and less frequently evaluated types of VBIs and social outcomes. Evidence included in this EGM will be further explored via systematic review and meta‐analysis on control group designs. [ABSTRACT FROM AUTHOR]
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- 2024
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- View/download PDF
36. Supplementary Therapy for DNA Methylation in Autism.
- Author
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Abugharsa, Jinan M.
- Subjects
DNA methylation ,AUTISM spectrum disorders ,AUTISM ,GENE expression ,SULFUR metabolism ,VITAMIN E - Abstract
Epigenetics plays a crucial role in various clinical diseases, such as autism, by mediating the impact of environmental variables on genomic regulation. Autism spectrum disorder (ASD) is a neurological disorder influenced by both genetic and environmental factors that affect the developing brain. DNA methylation, histone tail modifications, and noncoding RNA activity can change the function of genes without altering nucleotide sequences. Genes and environment combine to produce the etiology of ASD. One of the main areas of ASD research now being studied is the effects of epigenetic factors on gene expression, such as DNA methylation. Autistic patients exhibit evidence of oxidative stress and impaired methylation, which may reflect the effects of toxic exposure on sulfur metabolism that may lead to cellular damage in the brain and altered expression of epigenetic genes. This review paper summarizes the findings of the supplementary therapy studies of ASD, showing that supplements, including B9, B12, B6, D, E, C, glutathione, omega-3, and choline, are highly effective in modifying methylation in autism, improving many nutrient and metabolic problems, and resulting in significant improvements in symptoms. [ABSTRACT FROM AUTHOR]
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- 2024
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37. A hybrid CNN-SVM model for enhanced autism diagnosis.
- Author
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Qiu, Linjie and Zhai, Jian
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PERVASIVE child development disorders ,FUNCTIONAL magnetic resonance imaging ,AUTISM spectrum disorders ,AUTISM ,CONVOLUTIONAL neural networks - Abstract
Autism is a representative disorder of pervasive developmental disorder. It exerts influence upon an individual's behavior and performance, potentially co-occurring with other mental illnesses. Consequently, an effective diagnostic approach proves to be invaluable in both therapeutic interventions and the timely provision of medical support. Currently, most scholars' research primarily relies on neuroimaging techniques for auxiliary diagnosis and does not take into account the distinctive features of autism's social impediments. In order to address this deficiency, this paper introduces a novel convolutional neural network-support vector machine model that integrates resting state functional magnetic resonance imaging data with the social responsiveness scale metrics for the diagnostic assessment of autism. We selected 821 subjects containing the social responsiveness scale measure from the publicly available Autism Brain Imaging Data Exchange dataset, including 379 subjects with autism spectrum disorder and 442 typical controls. After preprocessing of fMRI data, we compute the static and dynamic functional connectivity for each subject. Subsequently, convolutional neural networks and attention mechanisms are utilized to extracts their respective features. The extracted features, combined with the social responsiveness scale features, are then employed as novel inputs for the support vector machine to categorize autistic patients and typical controls. The proposed model identifies salient features within the static and dynamic functional connectivity, offering a possible biological foundation for clinical diagnosis. By incorporating the behavioral assessments, the model achieves a remarkable classification accuracy of 94.30%, providing a more reliable support for auxiliary diagnosis. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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38. Motor Impairments in Children with Autism Spectrum Disorder: A Systematic Review and Meta-analysis.
- Author
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Kangarani-Farahani, Melika, Malik, Myrah Anum, and Zwicker, Jill G.
- Subjects
MEDICAL information storage & retrieval systems ,RESEARCH funding ,AUTISM ,CINAHL database ,MOVEMENT disorders ,CLASSIFICATION of mental disorders ,META-analysis ,DESCRIPTIVE statistics ,DEVELOPMENTAL disabilities ,SYSTEMATIC reviews ,MEDLINE ,DATA analysis software ,PSYCHOLOGY information storage & retrieval systems ,DISEASE complications ,CHILDREN - Abstract
This article comprehensively reviews motor impairments in children with autism spectrum disorder (ASD) to: (1) determine the prevalence of motor problems in children with ASD; (2) understand the nature of motor difficulties in ASD and whether they are consistent with developmental coordination disorder (DCD); and (3) determine if the term DCD was used as a co-occurring diagnosis in children with ASD after publication of the DSM-5 in 2013. The following databases were systematically searched: MEDLINE, EMBASE, CINAHL, and PsycINFO from 2010 to December 2021. Articles were included if they: (1) were peer-reviewed and published in a scientific journal; (2) included children with ASD who were between 5 and 12 years; (3) used motor or function measures to assess motor abilities in children with ASD. Studies that included children with intellectual disabilities were excluded. Two independent reviewers reviewed titles, abstracts, and full-text articles for inclusion. Twenty-seven studies met the inclusion criteria and were assessed for quality by two independent reviewers using the Appraisal tool for Cross-Sectional Studies. The majority of articles (92.5%) indicated that 50–88% of children with ASD had significant motor impairments on standardized motor assessments and/or functional questionnaires. The nature of motor and function problems in ASD were consistent with DCD; however, only three out of 20 papers (15%) that were published from 2014 described the motor problems as DCD. One study reported that 15.1% of children with ASD with motor impairments had a co-occurring diagnosis of DCD, suggesting that DCD is under-recognized in this clinical population. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
39. Expanding and developing the workforce to serve autistic people and people with intellectual disability.
- Author
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Robinson, Janine, Russell, Ailsa, Johnston, Kate, Acker, Louise, Crabtree, Jason, Humphrey, Ayla, Crouch, Emma, and Mandy, Will
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PEOPLE with intellectual disabilities ,AUTISTIC people ,MENTAL health services ,MENTAL health personnel ,LEARNING disabilities ,SERVICE learning - Abstract
This paper considers current workforce issues facing psychological professionals working in NHS services, examining the challenges, and identifying opportunities to better meet the needs of autistic people and people with an intellectual disability (PwID) across the lifespan. The aim of this paper is to identify and publicly articulate the need for a coherent approach to guide the practice of psychological professionals when helping autistic people and/or PwID. It should be noted that the scope of the paper is limited to autism and intellectual disability. In addressing these broad groups and their co-occurring conditions and needs, we anticipate that many principles could be applied to other neurodevelopmental conditions. We also note the significant potential challenges in linking intellectual disability and autistic populations, hence have attempted – in drawing together a working group to write this paper – to ensure representation from a range of psychological professionals including those in policy, leadership, and training roles, those working in specialist or generic mental health services and undertaking clinical research across the lifespan. Objectives: ■ To help define and support clear action so that all sectors welcome and adequately support people with neurodevelopmental differences, including autistic people and/or PwID. ■ To play a role in the development, planning and evaluation of new psychological professions roles such as the Clinical Associates in Psychology (CAPS) and Education Mental Health Practitioners (EMHPs). ■ To reflect on the obstacles to recruiting to autism and learning disability services and to propose approaches to developing a sustainable psychological workforce in these areas. ■ To recognise where good examples of education and training programmes exist to address training, confidence and competence for all psychological professionals working with those who may be autistic and/or have an ID, and consider how to establish a more consistent approach to education, training and CPD across the workforce. ■ To engage in policy discussions around the current gaps, such as the demand for diagnostic assessments and support which significantly outstrips capacity, whilst highlighting unrealised opportunities, through for example, a systematic approach to training. ■ To advocate for the need for the voice of autistic people and PwID and their families/carers which is often absent from the design and offer of help. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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- View/download PDF
40. Sibling Involvement: Highlighting the Influential Role of Siblings in Supporting Children with Autism Spectrum Disorder.
- Author
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Krueger, Gracie and Otty, Robyn
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SIBLINGS ,AUTISM ,COMMUNITIES ,EVALUATION of medical care ,OCCUPATIONAL therapy ,ABILITY ,SOCIAL skills ,FAMILY-centered care ,INTERPERSONAL relations ,PEOPLE with disabilities ,ACTIVITIES of daily living ,TRAINING ,SOCIAL participation ,CHILDREN - Abstract
Social impairments experienced by children diagnosed with autism spectrum disorder (ASD) can limit participation in meaningful occupations. Incorporating typically developing siblings of children with ASD in occupational therapy-based community settings is an emerging practice approach that aims to support children with ASD during social challenges to enhance their participation in daily activities. The inclusion of siblings in occupational therapy practice presents a unique opportunity to address social skill development while facilitating positive sibling relationships. In this Opinions in the Profession paper, the influential role siblings play as social models for their siblings with ASD will be examined. The purpose of this paper is to describe sibling-mediated interventions and the distinct role of occupational therapists in facilitating positive sibling interactions and relationships through a coaching approach to promote the achievement of positive social and emotional outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
41. Artificial intelligence in positive mental health: a narrative review.
- Author
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Thakkar, Anoushka, Gupta, Ankita, and De Sousa, Avinash
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EMOTION regulation ,MENTAL health services ,ARTIFICIAL intelligence ,CLINICAL decision support systems ,ORGANIZATIONAL ethics ,AUTISM ,NATURAL language processing ,NEURODEGENERATION ,SCHIZOPHRENIA ,AFFECTIVE disorders ,INTELLECTUAL disabilities ,SEIZURES (Medicine) ,MACHINE learning ,PSYCHOSES - Abstract
The paper reviews the entire spectrum of Artificial Intelligence (AI) in mental health and its positive role in mental health. AI has a huge number of promises to offer mental health care and this paper looks at multiple facets of the same. The paper first defines AI and its scope in the area of mental health. It then looks at various facets of AI like machine learning, supervised machine learning and unsupervised machine learning and other facets of AI. The role of AI in various psychiatric disorders like neurodegenerative disorders, intellectual disability and seizures are discussed along with the role of AI in awareness, diagnosis and intervention in mental health disorders. The role of AI in positive emotional regulation and its impact in schizophrenia, autism spectrum disorders and mood disorders is also highlighted. The article also discusses the limitations of AI based approaches and the need for AI based approaches in mental health to be culturally aware, with structured flexible algorithms and an awareness of biases that can arise in AI. The ethical issues that may arise with the use of AI in mental health are also visited. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
42. Commentary on "Wales and Autism: the impact of philanthropy matched with ambition".
- Author
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Storey, Catherine
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AUTISM ,HEALTH policy ,CHARITY ,ASPERGER'S syndrome ,CHARITIES ,ORGANIZATIONAL goals ,STAKEHOLDER analysis - Abstract
Purpose: This paper is a commentary that aims to address themes arising from the article by Morgan titled "Wales and Autism: The Impact of Philanthropy Matched with Ambition". Design/methodology/approach: This opinion piece considers the broader impact of stakeholder engagement in the field of autism, including how the dissemination of evidence-based support could be made more accessible for autistic people, their families and carers and philanthropists. Findings: This paper highlights the link between stakeholder engagement and meaningful change in policy and practice in the field of autism. It highlights the need for philanthropists to invest in evidence-based support but highlights the difficulty in identifying and accessing such support. This piece supports the use of evidence and gap maps (EGMs) to increase the accessibility of autism research and evidence. Originality/value: While stakeholder engagement is encouragingly rising in this field, most of the evidence is held in academic journals, which are behind paywalls and, therefore, inaccessible to many autistic people, their families, carers and associated professionals. Displaying evidence using EGMs provides an accessible way for autistic people and those who support them to identify possible avenues of support quickly and allows philanthropists to direct research funding to areas of high priority. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
43. The Evolution of Services for Children with Autism and Developmental Disabilities in Nigeria.
- Author
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Hill, Doris Adams, Fayemi, Adeola, and Ostrowski, Stephanie
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HEALTH services accessibility ,SCHOOL environment ,CHILDREN with disabilities ,CHILD health services ,AUTISM ,CULTURAL competence ,CULTURE ,SOCIOECONOMIC factors ,INFORMATION resources ,DEVELOPMENTAL disabilities ,ASPERGER'S syndrome ,SPECIAL education ,SOCIAL control - Abstract
Provision of services for autism spectrum disorder (ASD) and developmental disabilities (DD) in Nigeria has been influenced by US and international research and awareness efforts. Forces that impact progress include Nigerian cultural beliefs and family involvement, societal attitudes, inadequate infrastructure and resources, and inconsistent policy and enforcement of disability laws. These forces can impact families both positively and negatively. A lack of standardised teacher training and accreditation programs limit access for students with disabilities to individualised education programs (IEPs) and classroom inclusion. Effective treatments for those with ASD/DD are well-documented, however these effective interventions often do not reach more rural, low-income, or less developed nations or rural, low socioeconomic US schools. The focus of this paper is to thoroughly analyse the evolution of special education and inclusion in Nigeria and the United States and to highlight how US progression influenced Nigeria and the importance of advocating for culturally relevant, low-cost, research-based interventions and outreach African nations such as Nigeria. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
44. The double empathy problem and the problem of empathy: neurodiversifying phenomenology.
- Author
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Ekdahl, David
- Subjects
EMPATHY ,NEURODIVERSITY ,AUTISM ,PHENOMENOLOGY ,ASPERGER'S syndrome - Abstract
The notion that autistic individuals suffer from empathy deficiencies continues to be a widespread assumption, including in many areas of philosophy and cognitive science. In response to this, Damian Milton has proposed an interactional approach to empathy, namely the theory of the double empathy problem. According to this theory, empathy is fundamentally dependent on mutual reciprocity or salience rather than individual, cognitive faculties like theory of mind. However, the theory leaves open the question of what makes any salient interaction empathic in the first place. The aim of this paper is to integrate core tenets of the theory of the double empathy problem specifically with classical, phenomenological descriptions of empathy. Such an integration provides further conceptual refinement to the theory of the double empathy problem while recognizing its core tenets, but it also introduces important considerations of neurodiversity to classic, phenomenological descriptions of empathy. Points of interest: Dominant autism research continues to claim that autistic individuals lack empathy in some form or other. Critics of such claims argue that empathy is a two-way street where problems can emerge because of different people's social experiences and expectations. In philosophy, the tradition known as phenomenology has long studied empathy by examining how empathy is experienced. Insights from phenomenology further clarify when and how empathy can break down between autistic and non-autistic people. By including autistic and other diverse perspectives, phenomenological studies of empathy stand to benefit significantly in nuance and depth. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
45. The role of lived experience eye care champions in improving awareness and access to eye care services for people with learning disabilities and/or autism.
- Author
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Karas, Marek, O'Brien, Donna, Campbell, Lance, Lunness, Rebecca, Kennedy, Joanne, McGill, Grace, Kill, Stephen, and Donaldson, Lisa
- Subjects
HEALTH services accessibility ,COMMUNICATIVE competence ,COMMUNITY health services ,SUPPORT groups ,MEDICAL personnel ,AUTISM ,INTERVIEWING ,INDUSTRIAL psychology ,EVALUATION of human services programs ,VISION ,AFFINITY groups ,EYE care ,PATIENT advocacy ,DESCRIPTIVE statistics ,EXPERIENCE ,RESEARCH methodology ,BUSINESS networks ,ASPERGER'S syndrome ,HEALTH education ,CASE studies ,HEALTH promotion ,OPTOMETRY ,INTERPERSONAL relations ,LEARNING disabilities ,PEOPLE with disabilities ,EYE movements ,PSYCHOSOCIAL factors ,MEDICAL care costs - Abstract
Background: Documented inequalities in access to eye care for people with learning disabilities and/or autism are caused by poor uptake of primary eye care services, poor identification of eye problems, lack of signposting and reasonable adjustments of existing services, concerns about costs of care and the low priority historically given to these issues in eye care policy at a regional and national level. In 2019, the charity SeeAbility employed four eye care champions (ECCs) with lived experience of learning disability and/or autism to work in local communities in London and the Northwest of England. They provided peer‐to‐peer support on understanding the need for good eye health and engaged with policy makers, and learning disability, autism and eye care professionals at the local, regional and national levels to influence both the clinical practice of individual practitioners (within existing service/pathway models) and more widely to influence the commissioning of the Easy Eye Care pathway. This study explores the experiences of these ECCs. Methods: The study was conducted in April and May 2023. A case study approach was used to describe the experiences of the ECCs from March 2019 to March 2023. Data from structured interviews with the four ECCs and workload analysis were triangulated to provide a multifaceted understanding of this novel health promotion project. Findings: The ECCs found the role useful and reported that confidence in their practice and impact grew with time but they required ongoing support in the role. A good understanding of the promotional messages was reported. Developing a good network of contacts at an early stage, both people with learning disabilities and healthcare professionals, was key. Relationships with professionals were supportive and positive and a positive emotive response to their lived experience was reported in these interactions. Conclusions: From the perspective of the ECCs, the role is useful and beneficial. The work suggests some key recommendations for future development which include planning to build networks, support in presentation and communications skills and defining key messages and knowledge. Confidence of the ECCs builds with time in the role but also needs support the emotive impact of their lived experiences on audiences is highlighted. There is a need to evaluate how the programme is perceived by those who interact with it and how it changes behaviours which leads to better health outcomes. Accessible Summaries: People with learning disabilities are 10 times more likely than other people to have a problem with their eyes but less likely to get the eye care they need.This paper explains how people with a learning disability and/or autism are employed to tell other people with learning disabilities and/or autism, their supporters, health and care professionals and people who plan services about how important it is to get regular eye care. This job is an 'Eye Care Champion'.We share what the eye care champions did in their role, what worked well and what did not.We discuss how what we have learnt can help other people with learning disabilities and/or autism work as eye care champions and perhaps as champions for other areas of healthcare. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
46. The cumulative impact of attention deficit hyperactivity disorder, autism and intellectual disability for young people.
- Author
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Hollingdale, J., Woodhouse, E., Tibber, M. S., Simonoff, E., Hollocks, M. J., and Charman, T.
- Subjects
BEHAVIOR disorders ,SOCIAL disabilities ,CROSS-sectional method ,ATTENTION-deficit hyperactivity disorder ,RESEARCH funding ,AUTISM ,QUESTIONNAIRES ,SEX distribution ,DESCRIPTIVE statistics ,AGE distribution ,INTELLECTUAL disabilities ,SOCIAL skills ,ASPERGER'S syndrome ,REGRESSION analysis ,PSYCHOSOCIAL functioning ,ADOLESCENCE - Abstract
Background: Neurodevelopmental conditions frequently co‐occur. The aim of this paper was to determine whether there is a cumulative association between (1) the number of neurodevelopmental conditions, specifically hyperkinetic disorder (hereafter referred to as attention deficit hyperactivity disorder), autism spectrum disorder (hereafter referred to as autism) and intellectual disability, and (2) behavioural and socio‐emotional problems and the level of clinician‐rated functioning for young males and females. Methods: In this cross‐sectional study, diagnostic information, caregiver‐rated behavioural and socio‐emotional data (as conceptualised by the Strengths and Difficulties Questionnaire) and clinician‐rated functioning scores (as conceptualised by the Children's Global Assessment Scale) were extracted from electronic patient records for 2768 young people aged 3–17 years (mean = 11.55, SD = 3.46). All data were extracted at baseline, that is, at the time the young person was diagnosed with attention deficit hyperactivity disorder, autism and/or an intellectual disability. Ordinal regression analyses tested associations between the number of neurodevelopmental conditions met (i.e. 1, 2 or 3) and behavioural and socio‐emotional outcomes and functioning. Results: After controlling for age and biological sex, the number of neurodevelopmental conditions was associated with higher levels of inattention/hyperactivity and peer problems, lower levels of prosocial behaviour and poorer clinician‐rated functioning. Although these findings were consistent for males, a cumulative association was not identified for females, except for clinician‐rated functioning. Conclusions: For young people, the presence of multiple neurodevelopmental conditions may have a cumulative impact across domains, but this may differ between males and females. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
47. Commentary on "positive family connections: co-producing a virtual group programme for family carers of children with learning disabilities or who are autistic".
- Author
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Mejía-Buenaño, Suzy
- Subjects
HEALTH services accessibility ,AUTISM ,FAMILY relations ,TELECONFERENCING ,FAMILY support ,LEARNING disabilities - Abstract
Purpose: The purpose of this paper is to provide a commentary on Griffin et al.'s paper, "Positive family connections: Co-producing a virtual group programme for family carers of children with learning disabilities or who are autistic". Design/methodology/approach: This is a commentary on co-production, drawing on Griffin et al.'s paper and the values base of the field. Findings: Co-production is a valuable approach which seeks to empower and include key people in research. As suggested by Griffin et al., disseminating learning about co-production is an important additional principle of co-production, which demonstrates a values-based commitment to co-production. Originality/value: This commentary is aimed at professionals and researchers working in the field of learning disabilities who are keen to learn about and do co-production. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
48. IMPLEMENTATION OF AUGMENTATIVE AND ALTERNATIVE COMMUNICATION IN CHILDREN WITH AUTISM.
- Author
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IZETI, Ajshenur
- Subjects
AUTISM spectrum disorders ,SOCIAL interaction ,CHILD development ,ACQUISITION of data ,DEVELOPMENTAL disabilities - Abstract
Autism is a neurobiological disorder characterized by difficulties in communication, social interaction and repetitive behaviors and a limited range of interests. In this paper we will try to present the possible methods and techniques of communication with children with developmental disabilities, especially focusing on children with autism and on augmentative and alternative communication in relation to children with autism. The general purpose of the paper is the analysis and description of the positive and negative sides of communication and the representation of adequate methods of communication with autistic children. In this study, two samples from the "Alja" Kindergarten in Tetovo, which we have mentioned here as Sample x and Sample y, have been selected, and augmentative and alternative communication has been applied to them, following the changes and the success of the techniques. Methods such as observation, communication and document analysis were used in data collection. In the case of our study, the use of these techniques has been shown to be successful and we can conclude that they are useful for individuals with communication limitations and that their use should be increased. In our work with samples of children based on AAC techniques, they have shown that they are adequate and practical and can be applied in all environments, therefore we think that experts in the field of special education and communication technologies should work in cooperation to expand the use of assistive technologies in the education of children with limited communication. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
49. Randomised controlled trials of antipsychotics for people with autism spectrum disorder: a systematic review and a meta-analysis.
- Author
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Deb, Shoumitro, Roy, Meera, Limbu, Bharati, Akrout Brizard, Basma, Murugan, Meena, Roy, Ashok, and Santambrogio, Jacopo
- Subjects
APPETITE ,MEDICAL databases ,PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,META-analysis ,CONFIDENCE intervals ,ANESTHESIA ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,RISK assessment ,WEIGHT gain ,AUTISM ,DESCRIPTIVE statistics ,DRUG side effects ,MEDLINE ,ANTIPSYCHOTIC agents ,ERIC (Information retrieval system) - Abstract
Background: Despite unclear evidence to support the long-term use of antipsychotics to treat challenging (problem) behaviours in people with autism in the absence of a psychiatric disorder, this practice is common. Methods: We conducted a systematic review and meta-analysis of all randomised controlled trials (RCTs) involving antipsychotics for people with autism of all ages, irrespective of the outcomes assessed. We searched seven databases and hand-searched ten relevant journals. Two authors independently screened titles, abstracts and full papers and extracted data using the Cochrane Handbook template. We conducted meta-analyses of outcomes and the rate of adverse events. Results: We included 39 papers based on 21 primary RCTs that recruited 1482 people with autism. No RCT assessed any psychiatric disorder outcome, such as psychoses or bipolar disorder. A meta-analysis of ten placebo-controlled RCTs showed a significantly improved Aberrant Behaviour Checklist-Irritability score in the antipsychotic group with an effect size of −6.45 [95% confidence interval (CI) −8.13 to −4.77] (low certainty). Pooled Clinical Global Impression data on 11 placebo-controlled RCTs showed an overall effect size of 0.84 (95% CI 0.48 to 1.21) (moderate certainty). There was a significantly higher risk of overall adverse effects (p = 0.003) and also weight gain (p < 0.00001), sedation (p < 0.00001) and increased appetite (p = 0.001) in the antipsychotic group. Conclusions: There is some evidence for risperidone and preliminary evidence for aripiprazole to significantly improve scores on some outcome measures among children with autism but not adults or for any other antipsychotics. There is a definite increased risk of antipsychotic-related different adverse effects. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
50. The use of a tablet-based app for investigating the influence of autistic and ADHD traits on performance in a complex drawing task.
- Author
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Savickaite, S., Morrison, C., Lux, E., Delafield-Butt, J., and Simmons, D. R.
- Subjects
FINE motor ability ,AUTISM spectrum disorders ,INDEPENDENT variables ,ATTENTION-deficit hyperactivity disorder ,ELECTRONIC paper - Abstract
This paper describes a smart tablet-based drawing app to digitally record participants' engagement with the Rey-Osterrieth complex figure (ROCF) task, a well-characterised perceptual memory task that assesses local and global memory. Digitisation of the tasks allows for improved ecological validity, especially in children attracted to tablet devices. Further, digital translation of the tasks affords new measures, including accuracy and computation of the fine motor control kinematics employed to carry out the drawing Here, we report a feasibility study to test the relationship between two neurodevelopmental conditions: autism spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD). The smart tablet app was employed with 39 adult participants (18-35) characterised for autistic and ADHD traits, and scored using the ROCF perceptual and organisational scoring systems. Trait scores and conditions were predictor variables in linear regression models. Positive correlations were found between the attention-to-detail, attention-switching and communication subscales of the autistic trait questionnaire and organisational scores on the ROCF task. These findings suggest that autistic traits might be linked to differential performance on the ROCF task. Novelty and future applications of the app are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
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