13,620 results
Search Results
202. The bruxism screener (BruxScreen): Development, pilot testing and face validity.
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Lobbezoo, Frank, Ahlberg, Jari, Verhoeff, Merel C., Aarab, Ghizlane, Bracci, Alessandro, Koutris, Michail, Nykänen, Laura, Thymi, Magdalini, Wetselaar, Peter, and Manfredini, Daniele
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EXPERIMENTAL design ,PILOT projects ,RESEARCH methodology ,RESEARCH methodology evaluation ,TEST validity ,PSYCHOMETRICS ,BRUXISM - Abstract
Background: To assess awake and sleep bruxism, the Standardised Tool for the Assessment of Bruxism (STAB) is currently being developed. The STAB will be a comprehensive tool for the detailed assessment of bruxism behaviour itself as well as of its possible consequences, causes, and comorbid conditions. Objective: Since the STAB cannot fully meet the 'A4 principle' for a bruxism assessment tool, i.e., being Accurate (reliable and valid), Applicable (feasible), Affordable (cost‐effective), and Accessible (suitable for everyday clinical use), the Bruxism Screener (BruxScreen) has been developed to be used in large‐scale epidemiological research projects and, especially, in general, dental practices. Methods: The BruxScreen consists of two parts: a questionnaire (BruxScreen‐Q) to be completed by patients, and a clinical assessment form (BruxScreen‐C) to be completed by dentists. Results: This paper describes the development of the BruxScreen and provides the outcomes of the pilot testing phase and the face validity assessment (i.e. that the first impressions of the tool indicate that it adequately reflects the construct to be measured). Conclusion: The resulting BruxScreen is considered ready for more profound psychometric testing in the general dental setting. [ABSTRACT FROM AUTHOR]
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- 2024
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203. Practicalities of promoting practice‐based learning in end of life care for care home staff: Lessons from "online" supportive conversations and reflection sessions.
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Hockley, Jo, Watson, Julie, Johnston, Lucy, and Shenkin, Susan D.
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PATIENT aftercare ,TERMINAL care ,TEAM building ,SOCIAL support ,RESEARCH evaluation ,TEACHING ,CONVERSATION ,INTERNET ,RESEARCH methodology ,TRAVEL ,LEADERSHIP ,MEDICAL care ,EXECUTIVES ,INTERVIEWING ,QUANTITATIVE research ,LABOR demand ,LEARNING strategies ,NURSING care facilities ,NATIONAL health services ,DOCUMENTATION ,RESPONSIBILITY ,NURSES ,DESCRIPTIVE statistics ,CLINICAL competence ,DEATH ,ENDOWMENTS ,COMMITMENT (Psychology) ,TECHNOLOGY ,REFLECTION (Philosophy) ,COVID-19 pandemic - Abstract
Introduction: Deaths in care homes and "at home" are anticipated to account for a third of UK deaths by 2040. Currently, palliative and end of life care are not part of statutory training in care homes. Reflective practice is a tool that can facilitate practice‐based learning and support. Following a feasibly study to test "online" supportive conversations and reflection sessions (OSCaRS) to support care home staff in relation to death/dying during the first months of the COVID pandemic, a one‐year practice development follow‐up project was undertaken with the aim to create a team of NHS/specialist palliative care (SPC)‐based facilitators to lead and support OSCaRS provision in up to 50 care homes in one region in Scotland—the focus of this paper. Methods: Forty care home managers attended an on‐line session explaining the project, with a similar session held for 19 NHS/SPC‐based nurses external to care homes. Those interested in facilitating OSCaRS then attended three education sessions. Data collected: records of all activities; reflective notes on OSCaRS organised/delivered; a summary of each OSCaRS reflection/learning points; final interviews with NHS/SPC trainee facilitators. Results: A total of 19 NHS/SPC facilitators delivered one or more OSCaRS in 22 participating care homes. However, as of January 2022 only six trained facilitators remained active. Out of the 158 OSCaRS arranged, 96 took place with a total of 262 staff attending. There were three important aspects that emerged: the role, remit, and resources of NHS/SPC supporting OSCaRS; requirements within care homes for establishing OSCaRS; and, the practice‐based learning topics discussed at each OSCaRS. Conclusion: Attempts to establish a team of NHS/SPC facilitators to lead OSCaRS highlights that end of life care education in care homes does not clearly fall within the contractual remit of either group or risks being missed due to more pressing priorities. [ABSTRACT FROM AUTHOR]
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- 2024
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204. Collaborative working in speech and language therapy for children with DLD—What are parents' needs?
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Klatte, Inge S., Bloemen, Manon, de Groot, Annemieke, Mantel, Tina C., Ketelaar, Marjolijn, and Gerrits, Ellen
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WELL-being ,SPEECH therapy ,RESEARCH methodology ,DEVELOPMENTAL disabilities ,INTERVIEWING ,PHENOMENOLOGY ,EXPERIENCE ,DECISION making ,THEMATIC analysis ,LANGUAGE disorders ,PARENTS - Abstract
Background: Collaborative practice between therapists and parents is a key element of family‐centred care and is essential if we want to address family priorities and needs in interventions. However, collaborative practice is challenging for speech and language therapists (SLTs) and parents. To facilitate collaboration, collaborative practices need to be implemented into speech and language therapy for young children with developmental language disorders (DLD) and their families. Actual change and implementation of collaboration in practice will be successful only when it corresponds with patients' needs, in our case the needs of parents of young children with DLD. Aims: To explore parents' needs in their collaboration with SLTs during therapy for their young child with DLD. Methods & Procedures: Parents of children with (a risk of) DLD in the age of 2–6 years were eligible for participation. We recruited parents via SLTs. Twelve parents of children with DLD participated in semi‐structured interviews about their needs in collaboration with SLTs. We used a phenomenological approach focusing on parents' lived experiences. We transcribed the interviews verbatim. All interviews were read/listened to and discussed by our parent panel, multiple researchers and the interviewer. Two researchers independently analysed the data using the reflective thematic analysis of Braun and Clarke. Outcomes & Results: The analysis of the interviews resulted in six themes: (1) knowing what to expect, (2) knowing how to contribute, (3) feeling capable of supporting the child, (4) trusting the therapist, (5) alignment with parents and children's needs, preferences and priorities and (6) time and space for asking questions and sharing information. Conclusions & Implications: Parents want SLTs to invest time in collaborating with them. Parents need SLTs to empower them to become a collaborative partner and enable them to support their child in daily life. Parents need knowledge about the therapy process and diagnosis and skills in how to support their child's language development. Also, they need emotional support to feel secure enough to support their child, to ask questions to therapists and to bring up their own thoughts and opinions in therapy. Parents' needs are in line with collaborative working as described in literature, which underlines the importance of implementing collaborative working in speech and language therapy for young children with DLD. WHAT THIS PAPER ADDS: What is already known on the subject: Several reviews have explored parents' perspectives on speech and language therapy. Results reveal parents' experiences with speech and language therapy in general, and parents' perspectives on specific topics such as shared decision‐making and parents/therapists roles in therapy. What this study adds: This study adds insights into parents' needs to ensure collaboration with speech and language therapists (SLTs). Parents of young children with developmental language disorders (DLD) need SLTs to invest time to create optimal collaboration. It is important for parents to have enough knowledge about DLD and the SLT process, skills and confidence in how to support their child and opportunities to share thoughts and questions with SLTs. Our results underline the importance of parents being empowered by SLTs to become a collaborative partner. What are the clinical implications of this work?: When children are referred to speech and language therapy, parents often venture into an unknown journey. They need support from SLTs to become a collaborative partner in speech and language therapy. Parents need SLTs to invest time in sharing knowledge, skills and power and align therapy to parents' and child's needs, preferences, priorities and expectations. [ABSTRACT FROM AUTHOR]
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- 2024
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205. Evaluation of a pilot to introduce simulated learning activities to support speech and language therapy students' clinical development.
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Ormerod, Emma and Mitchell, Claire
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PILOT projects ,ACADEMIC medical centers ,HEALTH occupations students ,RESEARCH methodology ,SIMULATION methods in education ,INTERVIEWING ,QUALITATIVE research ,ABILITY ,TRAINING ,CLINICAL competence ,DESCRIPTIVE statistics ,STUDENT attitudes ,THEMATIC analysis ,DATA analysis software ,SPEECH therapists ,HUMAN beings ,LONGITUDINAL method - Abstract
Background: Speech and language therapy (SLT) education must meet the needs of the future workforce, training enough students who are competent practitioners able to meet the workforce demands. Increasing student numbers and the impact on placement providers mean students must be equipped for learning on placement. Simulation is a way of supporting students to develop their clinical skills and decision‐making in a safe, supportive environment. Aims: To explore the perspectives of SLT students who were introduced to simulation during their undergraduate degree at a UK university as part of a pilot study. The aim of the pilot was to listen to the students' voices to begin to understand their lived experiences of simulation and to gather views on how simulation can support their clinical learning. Methods & Procedures: Focus groups and semi‐structured interviews were carried out with second‐year BSc SLT students in semester 2 following the simulated learning activities and clinical placement. Qualitative data were gathered and thematic analysis was applied to the data to identify the barriers and enablers to students' clinical learning in simulation. Outcomes & Results: A total of 11 students responded out of a cohort of 38. Three key themes were identified from the analysis: individual learning needs, facilitator skill and programme‐level organization. Conclusions & Implications: Student experience of simulation was positive. One of the key elements students found to support their clinical skills was the importance of the safe space; support for learning instead of correction led them to engage in active learning. Key barriers to simulation related to having sufficient prior knowledge, the skills of the facilitator, group size and the wider learning landscape of the programme. In response to this pilot, there are plans to continue developing this model of simulation and embed simulation across the programme, led by a sound pedagogical approach with clear preparation and planning and building the necessary infrastructure. Other SLT programmes and practice educators developing simulation as part of their programmes or placement may wish to consider some of these findings to support the use of simulation in their workplace. What this paper adds: What is already known on this subject: Simulation as a teaching methodology is widely used in medicine and nursing programmes. It is now used in various allied health professions and in some SLT programmes. There is evidence to suggest simulation increases student confidence and clinical skills without increasing the capacity on those offering clinical placements in practice. What is already known on this subject: This study offers a practical example of introducing simulation in an established undergraduate programme for SLT students. It explains the background to this innovative way of teaching clinical skills and explains why this approach could be beneficial for the future speech and language therapist. What are the clinical implications of this work?: This study gives practical examples of how simulation can work to facilitate student clinical learning and knowledge. It may offer ideas to those working in clinical practice to organize placements differently or add simulation elements to improve the student experience. Other educational establishments and placement educators may find the recommendations helpful in developing their own simulation approach. [ABSTRACT FROM AUTHOR]
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- 2024
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206. Autism and bilingualism: A thematic analysis of practitioner perspectives in the United Kingdom.
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Davis, Rachael, Zaki, Farah Binti Mohd, and Sargent, Lesley
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ATTITUDES of medical personnel ,COMMUNICATION barriers ,RESEARCH methodology ,MEDICAL personnel ,INTERVIEWING ,MULTILINGUALISM in children ,PATIENTS' families ,QUALITATIVE research ,AUTISM in children ,SOUND recordings ,DESCRIPTIVE statistics ,PATIENT-professional relations ,THEMATIC analysis ,SPEECH therapists - Abstract
Background: At least 25% of autistic children worldwide have the potential to grow up in a bilingual environment. However, many autistic children are being denied opportunities to access additional languages and the cultural, familial and community connections that come with this. There is little evidence identifying the barriers to language learning and access, and no research addressing the perspectives of speech and language therapists (SLTs), who are crucial in supporting parents to make informed choices about bilingualism with their child. Aims: The aim of this research was to understand the experiences of SLTs working with autistic bilingual children, to understand the main considerations when working with families, and the opportunities and barriers for training, including the sources of information that current practice is based on. Methods and Procedures: Twelve SLTs from across the United Kingdom were recruited for this study. All participants were experienced in working with autistic bilingual children and their families (M = 7 years, range 4–23 years). Semi‐structured interviews were conducted and focused on the experiences of SLTs regarding familial bilingual experiences, the effect of sociocultural factors of practice, and the extent to which practice is based on current research. Outcomes and Results: Data were analysed using reflexive thematic analysis. Three central themes were identified from the interviews: (1) participants discussed parental uncertainties as to whether they were doing the right thing for their child, (2) while participants were in support of bilingualism, they were not always confident that they were providing the right advice and found it difficult to in keep up to date with relevant, evidence‐based research, and (3) participants highlighted a need to shift towards a more inclusive and culturally diverse practice. Conclusions and Implications: This is the first qualitative study to understand the perspectives of SLTs working with autistic bilingual children. We identify several key difficulties in supporting access to language learning, and these findings have immediate and longer‐term implications for supporting SLTs, and in turn, the children and families they support. WHAT THIS PAPER ADDS: What is already known on the subject: Research suggests that autistic children currently have fewer opportunities to maintain bilingualism compared to neurotypical peers. Despite the lack of evidence, many families remain concerned that bilingualism will have a negative impact on their child's development. To date, little is known about the perspectives of speech and language therapists (SLTs) who play a significant role in supporting the development of autistic bilingual children. This is the first study to provide an in‐depth qualitative analysis of the experiences of SLTs working with autistic bilingual children and their families in the United Kingdom. What this study adds: The results highlight a number of reoccurring barriers in providing optimal support: first, frequently cited concerns about bilingualism from parents that link to a lack of understanding about autism and the role of SLTs more generally. Second, SLTs do not have confidence in the assessments and tools available and described a lack of emphasis on cultural factors in practice. Many SLTs were concerned about the limited options for resources and interventions available in other languages, which could be challenging for parents who were less proficient or confident communicating in English. Third, SLTs reported having limited opportunities to keep up to date with relevant research to support their decision‐making processes. What are the clinical implications of this work?: These results have several important implications for practice—they highlight the need for more inclusive practices where possible, a need for more diversity within the profession and further opportunities to be provided with evidence‐based advice around good practice. The results also suggest a benefit of providing accessible, evidence‐based resources for parents about autism and bilingualism, to ensure that research key findings are reaching families. [ABSTRACT FROM AUTHOR]
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- 2024
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207. The intensification of parenting and generational fracturing of spontaneous physical activity from childhood play in the United Kingdom.
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Day, John
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INTERGENERATIONAL relations ,RESEARCH methodology ,INTERVIEWING ,PARENTING ,PHYSICAL activity ,LIFE history interviews ,PLAY ,CHILDREN'S health ,PARENT-child relationships ,HEALTH promotion ,PARENTS - Abstract
Despite an increased drive over the past two decades in Western societies to promote children's physically active play to improve their health, there are concerns that childhood has become less physically active. There are also fears that a previously naturally occurring aspect of childhood has become less authentically playful. Both trends highlight changes over time in the amount and type of play practiced by children and are often cited as consequences of generational shifts. Yet, research which analytically employs the concept of generation to connect changes to childhood with relevant social transformations is lacking. Inspired by Mannheim's conceptualisation of generations, this paper draws on life history interviews with 28 United Kingdom residents born between 1950 and 1994 to propose a fracturing of naturally occurring physical activity from childhood play. As shifts in childhood and parenting have become inextricably linked, this argument illustrates the impact of an intensification to parenting upon greater parental surveillance of increasingly organised forms of childhood physical activity at the expense of spontaneous play. Future physical activity policy should be sensitive to the social climate in which recommendations for children are made, as this places expectations upon parents due to how childhood is currently understood within neoliberal contexts. [ABSTRACT FROM AUTHOR]
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- 2024
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208. Caring through things at a distance: Intimacy and presence in teletherapy assemblages.
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Arribas‐Ayllon, Michael A. M.
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INTIMACY (Psychology) ,TELEPSYCHOLOGY ,RESEARCH methodology ,INTERVIEWING - Abstract
The COVID‐19 crisis in the UK precipitated a sharp rise in the use of remote technologies to provide therapy during the lockdown. With mental health care services migrating to devices and video‐conferencing platforms, nearly all forms of therapy had become 'teletherapy'. Drawing on interviews with UK‐based practitioners, this paper explores how existing ideas of intimacy and presence are challenged when care is practiced at a distance. Against the background of concerns that remote technologies erode intimacy and degrade physical presence, the argument is made that presence, distance, intimacy and control are reconfigured within mediated therapy. Analysis of practitioners' experiences of teletherapy examines the material and expressive components of 'assemblages' characterised by their stable and fluid properties. Two assemblages are identified and discussed: emergency care assemblages and assemblages of intimacy, both of which are aligned with specific sectors of mental health care. Evidence that therapeutic encounters are constrained by technologies are considered alongside the material conditions and inequalities of vulnerable groups, while assemblages with relatively stable properties are generative of new ways of relating to clients online. These findings highlight the material and expressive components of human and nonhuman assemblages that create new kinds of affective relations in distanced care. [ABSTRACT FROM AUTHOR]
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- 2024
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209. The mediating role of resilience between caregiver burden and hope among patients with inflammatory bowel disease.
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Zhou, Meijing, Wang, Mi, Luo, Dan, Sun, Caiyun, Bian, Qiugui, Xu, Jingjing, and Lin, Zheng
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PSYCHOLOGICAL resilience ,CROSS-sectional method ,PEARSON correlation (Statistics) ,ACADEMIC medical centers ,T-test (Statistics) ,DISEASE duration ,STATISTICAL sampling ,QUESTIONNAIRES ,SEX distribution ,RESIDENTIAL patterns ,PSYCHOLOGICAL adaptation ,TERTIARY care ,DESCRIPTIVE statistics ,AGE distribution ,INFLAMMATORY bowel diseases ,BURDEN of care ,RESEARCH methodology ,ANALYSIS of variance ,MARITAL status ,PSYCHOLOGY of caregivers ,DATA analysis software ,CONFIDENCE intervals ,HOPE ,REGRESSION analysis ,EDUCATIONAL attainment ,EMPLOYMENT - Abstract
Aim: To investigate whether resilience mediates the connection between caregiver burden and hope among caregivers of patients with inflammatory bowel disease (IBD). Design: A cross‐sectional study. Methods: Two hundred patients with IBD were conveniently sampled from two tertiary hospitals in Jiangsu Province, China. The main instruments involved the Zarit Burden Interview, the 10‐item Connor‐Davidson resilience scale, and the Herth Hope Index. We conducted descriptive analysis and Pearson correlations using SPSS 25.0. The PROCESS v3.3 macro analysed the mediating effect. We report the results in line with the STROBE checklist. Results: Caregiver burden was significantly negatively connected with hope and resilience, whereas resilience positively correlated with hope. The mediation role of resilience was significant in the relationship between caregiver burden and hope, with mediating effects accounting for 47.86% of the overall effect. Conclusions: Resilience partially mediates the association between caregiver burden and hope among patients with IBD. This finding highlights the protective role of resilience in undermining caregiver burden and strengthening hope. Implications for Practice: In clinical practice, healthcare providers should perform routine psychological assessments for caregivers of patients with IBD. Furthermore, resilience training should be incorporated into interventions to alleviate caregiver burden and enhance hope. Patient or Public Contribution: None. [ABSTRACT FROM AUTHOR]
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- 2024
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210. The Relationships among communication competence, professional autonomy and clinical reasoning competence in oncology nurses.
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Noh, Suyeon and Kang, Younhee
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NURSES ,PROFESSIONAL autonomy ,MEDICAL logic ,SELF-evaluation ,PEARSON correlation (Statistics) ,CROSS-sectional method ,CRONBACH'S alpha ,T-test (Statistics) ,DATA analysis ,MULTIPLE regression analysis ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,ONCOLOGY nursing ,JOB satisfaction ,COMMUNICATION ,CLINICAL competence ,ONE-way analysis of variance ,STATISTICS ,RESEARCH methodology ,DATA analysis software - Abstract
Aims: To investigate the relationships among communication competence, professional autonomy and clinical reasoning and to identify the factors that influence clinical reasoning competence in oncology nurses. Design: Cross‐sectional descriptive design. Methods: Participants included 147 oncology nurses with more than a year of clinical experience in cancer wards. The Global Interpersonal Communication Competence Scale, Schutzenhofer Professional Autonomy Scale and Nurses Clinical Reasoning Scale (NCRS) were used to collect data. Data were analysed using descriptive statistics, independent t‐test, one‐way ANOVA, Pearson correlation analysis and hierarchical multiple regression analysis. Results: Communication competence (r = 0.59) and professional autonomy (r = 0.46) showed significant positive relationships with clinical reasoning competence. Clinical experience, communication competence, age and professional autonomy were statistically significant predictors and explained 48.6% of clinical reasoning competence. Conclusions: The clinical reasoning competence of oncology nurses increases proportionally with their communication competence and professional autonomy. Therefore, oncology nurses must reinforce their communication competence and professional autonomy to enhance their clinical reasoning competence. Implications for the Profession and/or Patient Care: The reinforcement of communication competence and professional autonomy is necessary for oncology nurses to enhance their clinical reasoning competence. In order to improve nurses' communication competence, practical‐focused communication education programmes must be designed and deployed systematically and periodically. In addition, to increase nurses' professional autonomy, it is necessary to expand their clinical experiences through the regular rotation of working units and to make institutional efforts to retain experienced nurses. Reporting Method: We have adhered to STROBE checklist. Patient or Public Contribution: Participants in the study were recruited online. They were informed of the study's purpose, method and usability and the survey could only be conducted if they consented to participate voluntarily. [ABSTRACT FROM AUTHOR]
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- 2024
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211. Explain the professional identity of nursing during COVID‐19 pandemic.
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Hoseini Azizi, Tooba, Varasteh, Saideh, and Esmaeili, Maryam
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NURSES ,OCCUPATIONAL roles ,RESEARCH funding ,QUALITATIVE research ,CONTENT analysis ,INTERVIEWING ,PROFESSIONAL identity ,PUBLIC opinion ,SOUND recordings ,MASS media ,RESEARCH methodology ,NURSES' attitudes ,COMMITMENT (Psychology) ,COVID-19 pandemic ,SELF-perception - Abstract
Aim: To explore the professional identity of nursing during the COVID‐19 pandemic in Iran. Professional identity guides nurses' interaction with patients. In the COVID‐19 pandemic, recent developments in society's view of the nursing profession are expected to change the perception of nurses' professional identities. Design: The qualitative study used a conventional content analysis approach. Methods: Data were collected using in‐depth semi‐structured interviews from June 2020 to January 2021. Data analysis was performed using Landman and Granheim's analysis and Lincoln and Guba's criteria to ensure the data's rigour. Results: After analysing the 20 interviews with 17 participants, including 11 nurses with an average age of 32.63 ± 6.71 years and six varius community members with an average age of 38.66 ± 5.85 years, three main categories were formed: (1) The dual role of the media in the two subcategories (the positive role and the negative role of the media), (2) Changes in public view of nursing during the COVID‐19 pandemic (respect for avoidance and understanding the value of nursing practice) and (3) Change of professional identity by showing self‐sacrifice (dealing with adversity and commitment to professional obligations). Conclusion: The image in the public view of the nursing profession during the COVID‐19 pandemic media differs from before and shows self‐sacrifice, professional commitment and humanity in nursing. Nurses' experience of caring during the COVID‐19 pandemic has positively affected their professional identity; however, they are concerned about the instability of improving the nursing image in society. Impact: Nursing leaders and policymakers can utilize media platforms to portray the nursing profession in a positive light and emphasize the scientific capabilities of nurses. This approach goes beyond highlighting sacrifice and compassion, aiming to shift societal perceptions of nursing and bolster the professional identity of nurses. Reporting Method: We used the COREQ (COnsolidated criteria for REporting Qualitative research) checklist as a reporting method. Patient or Public Contribution: No patient or public contribution. [ABSTRACT FROM AUTHOR]
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- 2024
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212. A qualitative exploration to inform an oral health training for disability care workers in Burkina Faso.
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Põld, Ave, Kientega, Dan Filwendé, Garé, Jocelyne Valérie, and Lorenz, Michael
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HEALTH services accessibility ,CHILDREN with disabilities ,QUALITATIVE research ,HUMAN services programs ,RESEARCH funding ,INTERVIEWING ,RISK management in business ,AT-risk people ,EVALUATION of human services programs ,STATISTICAL sampling ,ORAL hygiene ,CAREGIVERS ,CONCEPTUAL structures ,RESEARCH methodology ,TOOTH care & hygiene ,HEALTH promotion ,DATA analysis software ,ORAL health - Abstract
Aim: To explore enablers and barriers to the creation of an oral health training for care workers at specialized centres for children with disabilities in Ouagadougou. Design: This was a formative study informed by the Theoretical Domains Framework using qualitative methods. Methods: Qualitative observations and 14 semi‐structured interviews were conducted with care workers from six specialized centres for disability. Results: Carer workers emphasized that a successful oral health training must account for available resources and competencies in each specific centre. Part of the training must be dedicated to oral hygiene targeted for people with disabilities and provide knowledge about risk factor management. Care workers must be empowered through the training with practical skills and tools to manage regular toothbrushing and identify oral health needs of their dependents. Conclusion: This study gathered valuable and unique perspectives about the roles of care workers of children with disabilities in Ouagadougou and underscores the need for improving access to oral health and care services for children with disabilities in low‐resourced settings. Implications for Patient Care: Teams planning oral health promotion activities in low resourced settings for vulnerable population groups can benefit from the methodology and results of this research for ensuring their interventions are appropriate and relevant. Impact: This is a unique field study conducted in a scarcely researched area of caregiving practices for children with disabilities in a low‐income country, Burkina Faso. Results from the disability centre observations and interviews with local caregivers are of great value to any team planning health projects in similar low‐resourced settings. Psychiatric and mental health nursing practices are highly context‐dependent, thus using proposed qualitative methods can help to ensure that planned interventions are appropriate and relevant. Patient or Public Contribution: There was no patient contribution in this study. [ABSTRACT FROM AUTHOR]
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- 2024
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213. Nursing students' perceptions of interaction in a multiplayer virtual reality simulation: A qualitative descriptive study.
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Piispanen, Niina, Haavisto, Elina, Hublin, Linda, Ikonen, Riikka, and Koivisto, Jaana‐Maija
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COMMUNICATIVE competence ,NURSE-patient relationships ,MEDICAL quality control ,QUALITATIVE research ,INTERPROFESSIONAL relations ,PATIENT safety ,CONTENT analysis ,INTERVIEWING ,NURSING ,EVALUATION of medical care ,VIRTUAL reality ,RESEARCH methodology ,NURSING practice ,STUDENT attitudes ,BACCALAUREATE nursing education ,NURSING students - Abstract
Aim: To describe nursing students' perceptions of interaction in a multiplayer virtual reality (MPVR) simulation. Design: A qualitative descriptive study. Methods: Second‐semester nursing students (n = 24) participated in pairs in MPVR simulations and semi‐structured interviews. Data were analysed deductively and inductively. Results: Four types of interaction in a MPVR simulation were identified: interaction between the students, interaction between the student and the virtual environment (VE), interaction between the student and the virtual patient (VP), and interaction between the student and the simulation facilitator. Interaction consisted of verbal and nonverbal interaction, as well as object manipulation and movement in the VE. The reasons for interaction were to coordinate the care, to assess the VP, and to implement VPs' care. Conclusions: MPVR simulation offered nursing students an opportunity to practice nurse‐to‐nurse interaction and interaction related to nurses' collaboration, which are essential skills in nursing practice. Students were also able to interact with the VP, which can promote students' nurse–patient interaction skills. Therefore, MPVR simulations can be utilized as a platform to enhance interaction skills of future healthcare professionals, which could improve patient safety. Patient or Public Contribution: None. [ABSTRACT FROM AUTHOR]
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- 2024
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214. The impact of digital learning on Saudi nursing students' engagement: A qualitative study.
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Al‐Osaimi, Dalyal Nader
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DIGITAL technology ,SCHOOL environment ,AUDIOVISUAL materials ,QUALITATIVE research ,FOCUS groups ,EMPIRICAL research ,NURSING education ,EMOTIONS ,DESCRIPTIVE statistics ,THEMATIC analysis ,ONLINE education ,RESEARCH methodology ,STUDENT attitudes ,NURSING students ,COGNITION - Abstract
Aim: This study aimed to explore the perception of nursing students regarding their engagement in digital learning environments. Design: At one of universities in Saudi Arabia, a qualitative descriptive study design was used among nursing students from various academic levels. Methods: Data were collected using focus group discussions among a sample of 23 participants. Data were analysed using thematic analysis. The COREQ Standards for Reporting Qualitative Research were used to report this study. Results: While sharing their perceptions the nursing students reflected on the behavioural and cognitive aspects of engagement, yet they did not include emotional aspects of engagement in their conceptualization. However, the results showed that, while they reflected on their experiences they tended to reflect on emotional aspects of engagement. According to the study's results, self‐paced studying, reflective exercises, and interaction with audiovisual and dynamic content all encourage the activation of past knowledge in online learning. The learning modality also was found to be a safe and convenient approach among the participating students. Digital learning presents as a promising educational approach that extends beyond the pandemic yet, efforts should be put in place to facilitate the optimal student engagement to meet learning outcomes. Further research is needed to measure its impact on engagement and other pertinent indicators objectively. [ABSTRACT FROM AUTHOR]
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- 2024
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215. Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13.
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Litchfield, Ian, Quinn, Lauren M., Boardman, Felicity, Boiko, Olga, Narendran, Parth, Choundhary, Shivam, Setti, Naga, Sheth, Veer, and Greenfield, Sheila M.
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TYPE 1 diabetes ,SUPPORT groups ,HUMAN services programs ,SECONDARY analysis ,RESEARCH funding ,AFFINITY groups ,INTERVIEWING ,PARENT attitudes ,FAMILIES ,JUDGMENT sampling ,DESCRIPTIVE statistics ,SOUND recordings ,RESEARCH methodology ,MEDICAL screening ,SOCIODEMOGRAPHIC factors ,SOCIAL support ,TIME - Abstract
Introduction: This work describes a secondary analysis of a qualitative data set originally used to understand parent participants' preferences for the design and implementation of a screening programme for paediatric Type 1 diabetes (T1D). From this, their spontaneous preferences for peer support emerged, described here in the context of existing peer support programmes for the newly diagnosed alongside suggestions for their incorporation into screening programmes for T1D and a range of other conditions. Methods: Data were collected from semi‐structured interviews conducted with parents of children aged 3–13 years to explore their expectations, perceptions and preferences of a T1D paediatric screening programme. A secondary analysis of interviews from participants who spontaneously raised preferences for peer support was used to populate a novel framework informed by NHS England's key principles for the same, namely, Shared experiences and reciprocated support, Accessibility and inclusivity and Person‐centred and integrated peer support. Results: Parents in 29 of 33 interviews spontaneously described the potential value of peer support if receiving a result indicating a positive (presymptomatic T1D result) from a screening programme. Specifically, the value of 'Shared experiences and reciprocated support' in terms of emotional support and reassurance, and access to more directly interpretable and relevant information related to the condition; 'Accessibility and inclusivity' relating to access to a community of similar individuals, whether in person or online; 'Person‐centred and integrated peer‐support' and the need for support reflecting the changing need of the child and the integration of peer support with clinical care. Conclusions: The needs of peer support described by parents involved in T1D paediatric screening appear to be shared with those of families with children diagnosed with a range of life‐altering conditions. Although the needs of peer support for paediatric screening may differ across conditions, our findings are a valuable starting point for its design both in T1D and other examples of similar population screening programmes. Patient or Public Contribution: Patients and the public have been involved throughout the design of the ELSA study and have worked with us to inform the study process. They contributed to the design and content of patient‐facing materials, the content of our topic guides and the analysis and interpretation of our findings. [ABSTRACT FROM AUTHOR]
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- 2024
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216. Patients' and Therapists' Views of Integrated Online CBT for Depression.
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Fox, Fiona, Wiles, Nicola, Kessler, David, Tallon, Debbie, Thomas, Laura, Williams, Christopher, Shafran, Roz, Lanham, Paul, and Turner, Katrina
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HEALTH services accessibility ,INSTANT messaging ,THERAPEUTICS ,RESEARCH funding ,PATIENTS ,QUALITATIVE research ,PSYCHOTHERAPIST attitudes ,INTERVIEWING ,TELEMEDICINE ,THEMATIC analysis ,COMPUTERS in medicine ,RESEARCH methodology ,COGNITIVE therapy ,MENTAL depression ,PATIENTS' attitudes ,INTEGRATED health care delivery ,PATIENT participation - Abstract
Background: CBT is an effective treatment for depression, but access varies across the United Kingdom. Online CBT increases access. The INTERACT platform was designed to support patient engagement in CBT, enabling therapists to deliver high‐intensity CBT via typed instant messaging and allowing patients and therapists access to an integrated online library of resources during and between sessions. Methods: The INTERACT trial aimed to evaluate this integrated approach to delivering CBT for primary care patients with depression. A nested qualitative study was conducted within the trial. Interviews were conducted with 20 patients who received the intervention, 9 therapists who delivered it and 3 therapist supervisors. Data were analysed using thematic analysis. Results: The combination of receiving support from a therapist and having access to integrated online CBT resources enabled patients to better manage their depression. Platform benefits included the opportunity to review transcripts to clarify how to complete homework tasks and track progress in managing their depression. The typing process allowed reflection and a focused discussion. However, less could be covered than during an in‐person session, which reduced therapists' expectations around goal setting. Patients who did not complete therapy struggled with the typing and found the CBT approach too demanding. Conclusion: Findings highlight the importance of establishing patient and therapist goals and expectations about what can be achieved in CBT mediated by typing. Some patients are comfortable communicating via typing and are motivated to utilise online resources in between sessions. Exploring the benefits and challenges of typed CBT with patients will enable them to make an informed choice about referral for this novel approach to therapy. Patient or Public Contribution: Patients, service users and members of the public were involved in the study design and management. Substantial pilot work gathered stakeholder feedback and informed the design of the intervention, before undertaking the RCT. Coauthor P.L. is a service user representative co‐applicant and member of the management group responsible for developing the intervention and the trial. Two PPI members sit on the Independent Steering Committee. PPI members provided valuable feedback on the study resources and documents. [ABSTRACT FROM AUTHOR]
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- 2024
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217. Identifying Facilitators and Inhibitors of Shared Understanding: An Ethnography of Diagnosis Communication in Acute Medical Settings.
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Cox, Caitríona, Hatfield, Thea, Willars, Janet, and Fritz, Zoë
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RESEARCH funding ,ETHNOLOGY research ,INTERVIEWING ,HOSPITAL emergency services ,DIAGNOSIS ,DECISION making ,DESCRIPTIVE statistics ,THEMATIC analysis ,PHYSICIAN-patient relations ,COMMUNICATION ,ATTITUDES of medical personnel ,RESEARCH methodology ,MEDICAL records ,COGNITION disorders ,CRITICAL care medicine ,PATIENTS' attitudes ,TIME ,HEALTH care teams ,PATIENT aftercare ,COGNITION - Abstract
Background and Aims: Communication is important in determining how patients understand the diagnostic process. Empirical studies involving direct observation of communication within diagnostic processes are relatively limited. This ethnographic study aimed to identify communicative practices facilitating or inhibiting shared understanding between patients and doctors in UK acute secondary care settings. Methods: Data were collected in acute medical sectors of three English hospitals. Researchers observed doctors as they assessed patients; semistructured interviews were undertaken with doctors and patients directly afterwards. Patients were also interviewed 2–4 weeks later. Case studies of individual encounters (consisting of these interviews and observational notes) were created, and were cross‐examined by an interdisciplinary team to identify divergence and convergence between doctors' and patients' narratives. These data were analysed thematically. Results: We conducted 228 h of observation, 24 doctor interviews, 32 patient interviews and 15 patient follow‐up interviews. Doctors varied in their communication. Patient diagnostic understanding was sometimes misaligned with that of their doctors; interviews revealed that they often made incorrect assumptions to make sense of the fragmented information received. Thematic analysis identified communicative practices that seemed to facilitate, or inhibit, shared diagnostic understanding between patient and doctor, revealing three themes: (1) communicating what has been understood from the medical record, (2) sharing the thought process and diagnostic reasoning and (3) closing the loop and discharge communication. Shared understanding was best fostered by clear communication about the diagnostic process, what had already been done and what was achievable in acute settings. Written information presents an underutilised tool in such communication. Conclusions: In UK acute secondary settings, the provision of more information about the diagnostic process often fostered shared understanding between doctor and patient, helping to minimise the confusion and dissatisfaction that can result from misaligned expectations or conclusions about the diagnosis, and the uncertainty therein. Patient/Public Contribution: A patient and public involvement group (of a range of ages and backgrounds) was consulted. They contributed to the design of the protocol, including the timing of interviews, the acceptability of a follow‐up telephone interview, the development of the interview guides and the participant information sheets. [ABSTRACT FROM AUTHOR]
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- 2024
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218. Professionals' and Intercultural Mediators' Perspectives on Communication With Ukrainian Refugees in the Czech Healthcare System.
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Těšinová, Jolana Kopsa, Dobiášová, Karolína, Jelínková, Marie, Tulupova, Elena, and Koščík, Michal
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MEDICAL interpreters ,COMMUNICATIVE competence ,RESEARCH funding ,QUALITATIVE research ,FOCUS groups ,PREJUDICES ,PATIENTS' rights ,PSYCHOLOGY of refugees ,MEDICAL care ,CULTURE ,INTERVIEWING ,CULTURAL competence ,UKRAINIANS ,THEMATIC analysis ,SOCIAL attitudes ,PROFESSIONS ,ATTITUDES of medical personnel ,RESEARCH ,RESEARCH methodology ,SOCIAL skills ,COMMUNICATION barriers - Abstract
Introduction: A growing body of research is examining how healthcare systems are responding to the increasing numbers of migrants and the resulting superdiversity of patients. The aim of this article is to identify and explain communication barriers in the provision of healthcare to Ukrainian war refugees in the Czech Republic from the perspectives of healthcare professionals and intercultural mediators. Methods: The exploratory case study is based on a qualitative analysis of semi‐structured interviews with frontline health professionals: 20 with doctors and 10 with nurses. The second source of data is two focus groups aimed at capturing communication problems from the perspective of intercultural mediators who accompany refugees to health facilities. The interview transcripts and FGs were analysed using six‐stage thematic coding. Results: The survey identified five main themes related to barriers to communication: (1) language barriers and interpreting, (2) cultural barriers, (3) differing expectations of health and the healthcare systems in the Czech Republic and Ukraine, (4) prejudices and negative attitudes and unethical behaviour towards refugees and migrants and (5) lack of awareness of patient rights. Conclusions: The arrival of large numbers of migrants has highlighted deficiencies in the system that may affect other vulnerable groups and the general population. These include the lack of general communication skills and legal awareness among many health professionals, which are barriers to the development of patient‐centred care. The involvement of intercultural mediators fundamentally improves communication between health professionals and (not only) migrant patients. Nevertheless, it is necessary to legally anchor and define the position of intercultural mediators within the healthcare system. Patient or Public Contribution: Collaboration with intercultural mediators who interpreted the extensive experiences of Ukrainian refugee patients and also have personal experience as migrant or migrant‐origin patients contributed to shaping research questions, facilitating study participation and enriching evidence interpretation. Researchers with multicultural backgrounds and experience with working with people from refugee backgrounds were involved in the study design and analysis. [ABSTRACT FROM AUTHOR]
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- 2024
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219. Culturally Sensitive Perinatal Mental Health Care: Experiences of Women From Minority Ethnic Groups.
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Gardner, Angelene, Oduola, Sheri, and Teague, Bonnie
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ETHNIC groups ,CULTURAL awareness ,NATIONAL health services ,HEALTH services accessibility ,MATERNAL health services ,MENTAL health services ,QUALITATIVE research ,RESEARCH funding ,INTERVIEWING ,STATISTICAL sampling ,PSYCHOLOGY of women ,PSYCHOLOGICAL adaptation ,DESCRIPTIVE statistics ,EXPERIENCE ,THEMATIC analysis ,RESEARCH methodology ,MINORITIES ,PHENOMENOLOGY ,COMPARATIVE studies ,SOCIAL support ,PSYCHOSOCIAL factors - Abstract
Background: Current research has identified how ethnic minority women experience poorer health outcomes during the perinatal period. In the United Kingdom, specialist perinatal mental health services provide mental health treatment for women throughout the perinatal period. Service users have previously highlighted that perinatal services are hard to access and lack cultural sensitivity, whereas healthcare professionals have described limited opportunities and resources for developing cultural competency. Objectives: We explored the experiences of ethnic minority women with National Health Service (NHS) specialist perinatal teams and identified what culturally sensitive perinatal mental health care means to this group. Design: Individual semi‐structured interviews were conducted, and an interpretative phenomenological analysis framework was used to analyse the interview transcripts. Setting and Participants: Participants were recruited from NHS specialist perinatal teams and online via social media. Results: Six women were interviewed. Four group experiential themes central to the experiences of participants emerged: (1) strengthening community networks and peer support; (2) valuing cultural curiosity; (3) making sense of how culture, ethnicity, race and racism impact mental health; and (4) tailoring interventions to ethnic minority women and their families. Discussion and Conclusions: The findings capture how ethnic minority women experience specialist perinatal teams and offer insights into practising culturally sensitive care. Perinatal mental health professionals can support ethnic minority women by strengthening their access to community resources and peer support; being curious about their culture; helping them to make sense of how culture, ethnicity, race and mental health interact; and applying cultural and practical adaptations to interventions. Patient or Public Contribution: A Lived Experience Advisory Group (LEAG) of women from ethnic minority groups contributed to the design and conduct of this study. The LEAG had lived experience of perinatal mental health conditions and accessing specialist perinatal teams. The LEAG chose to co‐produce specific aspects of the research they felt fit with their skills and available time throughout five group sessions. These aspects included developing the interview topic guide, a structure for debriefing participants and advising on the social media recruitment strategy. [ABSTRACT FROM AUTHOR]
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- 2024
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220. Patient Characteristics Associated With Disparities in Engagement With and Experience of COVID‐19 Remote Home Monitoring Services: A Mixed‐Methods Evaluation.
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Crellin, Nadia E., Herlitz, Lauren, Sidhu, Manbinder S., Ellins, Jo, Georghiou, Theo, Litchfield, Ian, Massou, Efthalia, Ng, Pei Li, Sherlaw‐Johnson, Chris, Tomini, Sonila M., Vindrola‐Padros, Cecilia, Walton, Holly, and Fulop, Naomi J.
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HOME care services ,HEALTH services accessibility ,MEDICAL interpreters ,DIVERSITY & inclusion policies ,HEALTH status indicators ,INTERPROFESSIONAL relations ,INTERVIEWING ,AT-risk people ,HEALTH ,SEX distribution ,KRUSKAL-Wallis Test ,LOGISTIC regression analysis ,OXIMETRY ,MEDICAL care ,DESCRIPTIVE statistics ,MULTIVARIATE analysis ,INFORMATION resources ,SEVERITY of illness index ,MANN Whitney U Test ,TELEMEDICINE ,MEDICAL consultation ,SURVEYS ,THEMATIC analysis ,ODDS ratio ,RESEARCH methodology ,ATTITUDES of medical personnel ,STATISTICS ,CONCEPTUAL structures ,QUALITY of life ,SOCIAL networks ,HEALTH equity ,PATIENT monitoring ,MINORITIES ,SOCIAL support ,DATA analysis software ,CONFIDENCE intervals ,COVID-19 ,PATIENTS' attitudes ,CAREGIVER attitudes ,MEDICAL referrals ,EMPLOYMENT ,ACCESS to information - Abstract
Introduction: The adoption of remote healthcare methods has been accelerated by the COVID‐19 pandemic, but evidence suggests that some patients need additional support to engage remotely, potentially increasing health disparities if needs are not met. This study of COVID‐19 remote home monitoring services across England explores experiences of and engagement with the service across different patient groups. Methods: This was a mixed‐methods study with survey and interview data collected from 28 services across England between February and June 2021. Surveys were conducted with staff and patients and carers receiving the service. Interviews with staff service leads, patients and carers were conducted in 17 sites. Quantitative data were analysed using univariate and multivariate methods, and qualitative data were analysed using thematic analysis. Findings: Survey responses were received from 292 staff and 1069 patients and carers. Twenty‐three staff service leads, 59 patients and 3 carers were interviewed. Many service leads reported that they had considered inclusivity when adapting the service for their local population; strategies included widening the eligibility criteria, prioritising vulnerable groups and creating referral pathways. However, disparities were reported across patient groups in their experiences and engagement. Older patients reported the service to be less helpful (p = 0.004), were more likely to report a problem (p < 0.001) and had more difficulty in understanding information (p = 0.005). Health status (p = 0.004), ethnicity (p < 0.001), gender (p < 0.001) and employment (p = 0.007) were associated with differential engagement with monitoring, and minority ethnic groups reported more difficulty understanding service information (p = 0.001). Qualitative data found illness severity to be an important factor in the support required, and patients' living situation and social network affected whether they found the service reassuring. Conclusion: Addressing health disparities must be a key focus in the design and delivery of remote care. Services should be tailored to match the needs of their local population, encourage access through collaboration and referral pathways with other services and monitor their inclusiveness. Involving patients and staff in service design can illuminate the diversity of patients' needs and experiences of care. Patient or Public Contribution: The study team met with service user and public members of the BRACE PPI group and patient representatives from RSET in a series of workshops. Workshops informed study design, data collection tools, data interpretation and dissemination activities. Study documents (such as consent forms, topic guides, surveys and information sheets) were reviewed by PPI members; patient surveys and interview guides were piloted, and members also commented on the manuscript. [ABSTRACT FROM AUTHOR]
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- 2024
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221. 'None of Them Know Me': A Qualitative Study of the Implications of Locum Doctor Working for Patient Experience.
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Ferguson, Jane, Stringer, Gemma, Walshe, Kieran, Donnelly, Ailsa, Grigoroglou, Christos, Allen, Thomas, Kontopantelis, Evangelos, and Ashcroft, Darren M.
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HEALTH services accessibility ,QUALITATIVE research ,MEDICAL quality control ,PATIENT safety ,FOCUS groups ,INTERVIEWING ,MEDICAL care ,PHYSICIANS' attitudes ,CONTINUUM of care ,MANUSCRIPTS ,DESCRIPTIVE statistics ,THEMATIC analysis ,PHYSICIAN-patient relations ,RESEARCH methodology ,COMMUNICATION ,TEMPORARY employment ,PATIENT satisfaction ,DATA analysis software ,PATIENTS' attitudes - Abstract
Introduction: There have been some concerns about the impact of temporary doctors, otherwise known as locums, on patient safety and the quality of care. Despite these concerns, research has paid little attention to the implications of locum working on patient experience. Methods: A qualitative semi‐structured interview study was conducted with 130 participants including locums, people working with locums and patients with experience of being seen or treated by locums. Analysis was conducted using a reflexive thematic approach and abductive analysis to position themes against wider knowledge. Results: Three main themes were constructed through analysis: (1) Awareness and disclosure; patients were not always aware if their doctor was a locum, and there was some debate about whether patients had a right to know, particularly if locum working presented quality and safety risks. (2) Continuity and accessibility of care; access was regarded as priority for acute conditions, but for long‐term or serious conditions, patients preferred to see a permanent doctor who knew their history, although it was acknowledged that locums could provide fresh perspectives. (3) Communication and practice; locums and patients described how consultations were approached differently when doctors worked as locums. Patients evaluated their interactions based on how safe they felt with practitioners. Conclusion: Patients reported that they were unlikely to have continuity of care with any doctors delivering care, regardless of their contractual status. Locums sometimes provided new perspectives on care which could be beneficial for patient outcomes, but for patients with long‐term, complex or serious conditions continuity of care was important, and these patients may avoid or delay seeking care when locums are the only available option. Patient or Public Contribution: Patients and carers were involved in our study from inception to dissemination. Our Patient and Public Involvement (PPI) forum was involved throughout project design and planning and gave us feedback and guidance on research materials and outputs (e.g., study protocol, participant information sheets, survey tools, interview schedules, emerging findings). Our PPI forum co‐produced our patient interview schedule, two members of our PPI forum led the patient focus groups and all were involved in analysis of patient interviews. Our PPI Chair was involved in the preparation of this manuscript. [ABSTRACT FROM AUTHOR]
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- 2024
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222. Patient Perspectives on a Patient‐Facing Tool for Lung Cancer Screening.
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Tiase, Victoria L., Richards, Grace, Taft, Teresa, Stevens, Leticia, Balbin, Christian, Kaphingst, Kimberly A., Fagerlin, Angela, Caverly, Tanner, Kukhareva, Polina, Flynn, Michael, Butler, Jorie M., and Kawamoto, Kensaku
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RESEARCH funding ,QUALITATIVE research ,FOCUS groups ,SELF-efficacy ,MEDICAL informatics ,EARLY detection of cancer ,INTERVIEWING ,SYSTEMS design ,DECISION making ,INTERNET ,THEMATIC analysis ,SOUND recordings ,SURVEYS ,LONGITUDINAL method ,INFORMATION needs ,LUNG tumors ,PATIENT-professional relations ,RESEARCH methodology ,USER-centered system design ,DATA analysis software ,PATIENTS' attitudes ,ACCESS to information ,USER interfaces - Abstract
Background: Individuals with high risk for lung cancer may benefit from lung cancer screening, but there are associated risks as well as benefits. Shared decision‐making (SDM) tools with personalized information may provide key support for patients. Understanding patient perspectives on educational tools to facilitate SDM for lung cancer screening may support tool development. Aim: This study aimed to explore patient perspectives related to a SDM tool for lung cancer screening using a qualitative approach. Methods: We elicited patient perspectives by showing a provider‐facing SDM tool. Focus group interviews that ranged in duration from 1.5 to 2 h were conducted with 23 individuals with high risk for lung cancer. Data were interpreted inductively using thematic analysis to identify patients' thoughts on and desires for a patient‐facing SDM tool. Results: The findings highlight that patients would like to have educational information related to lung cancer screening. We identified several key themes to be considered in the future development of patient‐facing tools: barriers to acceptance, preference against screening and seeking empowerment. One further theme illustrated effects of patient–provider relationship as a limitation to meeting lung cancer screening information needs. Participants also noted several suggestions for the design of technology decision aids. Conclusion: These findings suggest that patients desire additional information on lung cancer screening in advance of clinical visits. However, there are several issues that must be considered in the design and development of technology to meet the information needs of patients for lung cancer screening decisions. Patient or Public Contribution: Patients, service users, caregivers or members of the public were not involved in the study design, conduct, analysis or interpretation of the data. However, clinical experts in health communication provided detailed feedback on the study protocol, including the focus group approach. The study findings contribute to a better understanding of patient expectations for lung cancer screening decisions and may inform future development of tools for SDM. [ABSTRACT FROM AUTHOR]
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- 2024
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223. A Qualitative Study of National Perspectives on Advancing Social Prescribing Using Co‐Design in Canada.
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Saragosa, Marianne, Mulligan, Kate, Hsiung, Sonia, Biswas, Srija, Card, Kiffer, Hébert, Paul C., Welch, Vivian, and Nelson, Michelle L. A.
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COMMUNITY health services ,HUMAN services programs ,QUALITATIVE research ,ENDOWMENTS ,INTERPROFESSIONAL relations ,GOVERNMENT policy ,RESEARCH funding ,PARTICIPANT observation ,INTERVIEWING ,FIELD notes (Science) ,COMMUNITIES ,DESCRIPTIVE statistics ,SOUND recordings ,THEMATIC analysis ,RESEARCH methodology ,PUBLIC welfare ,DATA analysis software - Abstract
Introduction: Social prescribing offers a formal pathway of connecting patients in the health system with sources of support within the community to help improve their health and well‐being. Since its launch in March 2022, the Canadian Institute for Social Prescribing has acted as a collective impact network to identify, connect and build upon established social prescribing initiatives using a co‐design methodology. The institute received input from a participant advisory council, co‐design partners and several communities of interest groups. This study aimed to describe the perceptions of the Canadian Institute for Social Prescribing's role in advancing social prescribing using a co‐design approach and the barriers and facilitators to implementing social prescribing in Canada. Methods: We used a qualitative descriptive study design, document analysis, participant observation and semi‐structured individual interviews (n = 7) with members of the Canadian Institute for Social Prescribing co‐design group and the institute's leadership. We also analysed documents, field notes and transcripts using codebook thematic analysis. Results: Four themes were developed representing the facilitators of implementing the Canadian Institute for Social Prescribing to support social prescribing: Creating relational mechanisms (i.e., partnerships and connections), Bringing awareness to social prescribing and contributing to the evidence (i.e., values and beliefs), Addressing systemic conditions (i.e., having a common language for social prescribing and organizing the community health sector) and Enabling funding and policy to drive social prescribing initiatives (i.e., shifting evidence into policy and securing sustainable funding). Conclusion: Participants' reflections on the co‐design process demonstrated that the Canadian Institute for Social Prescribing development provided networking opportunities and shared resources relevant to social prescribing. Co‐design efforts also fostered relational and informational support, which laid the necessary groundwork in Canada to overcome the complex interplay between the macro‐ and micro‐level settings in which social prescribing is practiced. Patient or Public Contribution: The interviews and observations involved participants with lived experience of delivering, receiving or advocating for social prescribing. [ABSTRACT FROM AUTHOR]
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- 2024
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224. Professionals' Perceptions of the Colorectal Cancer Pathway: Results of a Co‐Constructed Qualitative Study.
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Delaye, Matthieu, Polomeni, Alice, Faiderbe, Sylvie, Berlioz, Nadège, Benssekoum, Chaïma, Guillemin, Aude, Pudlarz, Thomas, and de Montgolfier, Sandrine
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MEDICAL protocols ,NURSES ,CANCER treatment ,OCCUPATIONAL roles ,QUALITATIVE research ,RESEARCH funding ,PSYCHOLOGISTS ,SOCIAL workers ,ACADEMIC medical centers ,INTERVIEWING ,COLORECTAL cancer ,DECISION making in clinical medicine ,ATTITUDES of medical personnel ,RESEARCH methodology ,RESEARCH ,ACTION research ,PHYSICIANS ,PATIENTS' attitudes ,HEALTH care teams ,SPECIALTY hospitals - Abstract
Introduction: Qualitative research on the perceptions of healthcare professionals involved in cancer care about their respective roles in the patient care pathway is limited. Therefore, the aim of this qualitative study was to document these perceptions. Methods: A multidisciplinary team that included patient researchers constructed a semi‐structured interview guide on the perceptions of the colorectal cancer care pathway by professionals. Interviews were conducted with healthcare professionals from two French hospitals that manage patients with colorectal cancer. Then, the interviews were fully transcribed and analysed by the whole multidisciplinary team. Results: Thirteen healthcare professionals were interviewed (six nurses, four physicians, one psychologist, one social worker and one secretary). They described the colorectal care pathway using a great lexical diversity and listed a significant number of professionals as taking part in this pathway. Among the people mentioned were healthcare professionals working inside and outside the hospital, family members and non‐conventional medicine practitioners. However, they did not spontaneously mention the patient. Their views on the role of the referring physician, the general practitioner and the patient were further explored. The interviews highlighted the coordination difficulties among the various professionals, particularly between general practitioners and hospital teams. These data provided interesting elements for developing a tool to help coordination among professionals. Conclusions: This preliminary study, with its participatory design, brings interesting elements of reflection on the care pathway for patients with colorectal cancer. It will continue through the creation of a larger participatory project. Patient or Public Contribution: Patient partners were included in all steps of this study. This transdisciplinary project was coordinated by a group composed of three patient partners, two healthcare professionals and two humanities and social sciences researchers. Their knowledge of the patient's perspective on the care pathway enriched discussions from the study design to results analysis. [ABSTRACT FROM AUTHOR]
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- 2024
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225. Development and Evaluation of a Framework for Authentic Online Co‐Design: Partnership‐Focussed Principles‐Driven Online Co‐Design.
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Coulston, Free, Spittle, Alicia, McDonald, Cassie, Toovey, Rachel, Cameron, Kate L., Attard, Kimberley, Binstock, Loni, Fletcher, Isaac, Delaney, Adie, Murphy, Tayla, Keating, Caroline, and Sellick, Kath
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CONSENSUS (Social sciences) ,HUMAN services programs ,INTERPROFESSIONAL relations ,RESEARCH funding ,QUALITATIVE research ,INTERVIEWING ,HUMAN research subjects ,INTERNET ,QUANTITATIVE research ,DESCRIPTIVE statistics ,DECISION making ,PARTICIPANT-researcher relationships ,THEMATIC analysis ,SOUND recordings ,MEDICAL research ,CONCEPTUAL structures ,ATTITUDES of medical personnel ,RESEARCH methodology ,ADULT education workshops ,VIDEOCONFERENCING ,PATIENT participation ,PATIENTS' attitudes - Abstract
Introduction: Co‐design in health research involves patient and public involvement and engagement (PPIE) in intervention or service design. Traditionally, co‐design is undertaken in‐person; however, exploring online delivery is warranted. PPIE in co‐design must be considered carefully, and assumptions that in‐person approaches will transition automatically to an online environment should be avoided. Currently, there are a lack of evidence‐informed approaches to facilitating co‐design online. This study aimed to develop and evaluate a framework for authentically adapting health research co‐design into an online environment. Materials and Methods: The initial framework was developed through a literature review, synthesis of in‐person co‐design principles, and alignment of online strategies. The framework was then applied to a co‐design project with 10 participants across relevant PPIE groups (end‐users [n = 4], clinicians [n = 2], coaches [n = 2] and clinician−researchers [n = 2]). Participants' experiences of the online co‐design process were evaluated via a mixed‐methods design using surveys and semi‐structured interviews. Evaluation data were analysed using descriptive statistics and reflexive thematic analysis to inform a revised framework. Results: The developed framework, Partnership‐focussed Principles‐driven Online co‐Design (P‐POD) was used to design eight 90 min online co‐design workshops. Evaluation data involved 46 survey responses, and eight participants were interviewed on project completion. Survey data indicated that the process was satisfying, engaging and adhered to the P‐POD framework. Themes derived from interview data describe a respectful and collaborative online culture, valuing of diverse perspectives and space for healthy debate, how power was perceived as being shared but not equal and multiple definitions of success within and beyond the process. A final, refined P‐POD framework is presented. Conclusion: With evaluation of the initial P‐POD framework showing evidence of adherence to co‐design principles, positive participant experiences and goal achievement for both the project and the participants, the refined P‐POD framework may be used and evaluated within future intervention or service design. Patient or Public Contribution: This study involved the participants (end‐users, clinicians and service providers) in the co‐design process described, interpretation of the results through member‐checking interview responses, assisting in development of the final framework and as co‐authors for this manuscript. [ABSTRACT FROM AUTHOR]
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- 2024
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226. 'It's Just Not Working', a Qualitative Exploration of the Weight‐Related Healthcare Experiences of Individuals of Arab Heritage With Higher Weight in Australia.
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Hassan, Amira, Kerr, Deborah A., and Begley, Andrea
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CULTURAL identity ,HEALTH services accessibility ,RESEARCH funding ,QUALITATIVE research ,BODY mass index ,BODY weight ,REGULATION of body weight ,STATISTICAL sampling ,INTERVIEWING ,ISLAM ,SEX distribution ,PRIMARY health care ,DIGITAL health ,QUESTIONNAIRES ,JUDGMENT sampling ,DESCRIPTIVE statistics ,INTERSECTIONALITY ,EXPERIENCE ,ARABS ,ATTITUDES toward obesity ,PHYSICIAN-patient relations ,RESEARCH methodology ,WEIGHT gain ,TRANSCULTURAL medical care ,CULTURAL pluralism ,SOCIAL stigma - Abstract
Introduction: Culturally and linguistically diverse population groups disproportionately experience higher weight and other non–weight‐related discrimination in healthcare settings outside of their ancestral country. Little is known about the experiences of individuals with Arab heritage. This study aimed to qualitatively explore the intersectional weight‐related healthcare experiences of individuals of Arab heritage with higher weight in Australia. Methods: A general inductive enquiry approach was used. Purposive, convenience and snowball sampling was used to recruit individuals of Arab heritage residing in Australia. Individuals were invited to participate in an online semistructured interview. Interviews were recorded, transcribed and thematically analysed. Results: Fifteen participants took part in the study. Of these participants, 93% were female (n = 14), 80% were aged between 18 and 44 years (n = 12), 73% were university educated (n = 11), 53% were born outside of Australia (n = 8) and all were Muslim (n = 15). Four main themes were identified: (1) appearance‐based judgement, (2) generalised advice and assumptions, (3) cultural responsiveness and (4) healthcare system constraints. Conclusion: Individuals of Arab heritage with higher weight in Australia, namely, females, often perceive their healthcare experiences as dismissive of their cultural and religious needs and driven by causality assumptions around weight. It is crucial that care delivered encompasses cultural humility, is weight‐inclusive and acknowledges systemic constraints. Cultural safety training benchmarks, healthcare management reform and weight‐inclusive healthcare approaches are recommended to assist healthcare providers in delivering effective, holistic and culturally safe care. Patient or Public Contribution: Insights gained from conversations with Arab heritage community members with lived experiences regarding weight‐related healthcare encounters informed the study design and approach. [ABSTRACT FROM AUTHOR]
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- 2024
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227. Examining identity disclosure: Racial and ethnic identity amongst Multiracial/ethnic adults in the United States.
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Shaff, Jaimie, Cubbage, Janel, Bandara, Sachini, and Wilcox, Holly C.
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ETHNIC groups ,GROUP identity ,QUALITATIVE research ,PREJUDICES ,RESEARCH funding ,INTERVIEWING ,SOCIAL norms ,DESCRIPTIVE statistics ,ATTITUDE (Psychology) ,RACE ,THEMATIC analysis ,RESEARCH methodology ,PSYCHOLOGICAL stress ,COMPARATIVE studies ,PSYCHOSOCIAL factors ,SELF-disclosure - Abstract
Objectives: Providing personal demographic information is routine practice in the United States, and yet, little is known about the impacts of this process. This study aims to examine the experiences and perspectives of Multiracial/ethnic adults in the United States when disclosing racial/ethnic identity. Methods: Seventeen semistructured interviews were conducted with adults identifying as Multiracial/ethnic. The Multiracial/ethnic identities of participants included Black or African American and White; Black or African American, American Indian or Alaska Native (AI/AN) and Hispanic or Latino; Black or African American and Hispanic or Latino; Black or African American and AI/AN; AI/AN and White and Asian, Native Hawaiian or Pacific Islander and White. Multiple participants reported identifying with multiple ethnic groups for any single broad category. Three identified as sexual minorities. Nine were Millennials; six were Gen X; one was Gen Z; one was Baby Boomer. Qualitative data were analyzed using staged hybrid inductive–deductive thematic analysis. Results: Disclosure of racial and ethnic identities presents a unique stressor for Multiracial/ethnic populations due to methods used to obtain data, perceived mismatch of identity and phenotype and exposure to prejudice. Social norms, constructs and movements impact the categories that a Multiracial/ethnic person indicates to external parties. Conclusions: The stress and negative feelings that Multiracial/ethnic adults face when identifying their race/ethnicity underscore the broader implications of standard demographic questions on feelings of inclusivity and visibility within a population. Patient or Public Contribution: Gathering data on individuals' racial and ethnic backgrounds is a standard practice, and yet, it can pose challenges for those who identify with multiple groups or do not see their identities reflected in the options provided. Such individuals may feel excluded or experience unfair treatment when disclosing their identity, leading to significant stress. As the frequency of this data collection increases, it is essential that the questions are posed empathetically and equitably, with a strong commitment to enhancing inclusivity throughout the process. [ABSTRACT FROM AUTHOR]
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- 2024
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228. Listening to the Voices of Aboriginal and Torres Strait Islander Women in Regional and Remote Australia About Traumatic Brain Injury From Family Violence: A Qualitative Study.
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Wills, Elaine and Fitts, Michelle
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HEALTH services accessibility ,RESEARCH funding ,QUALITATIVE research ,FOCUS groups ,PATIENT-family relations ,STATISTICAL sampling ,INTERVIEWING ,PSYCHOLOGY of women ,DECISION making ,JUDGMENT sampling ,DESCRIPTIVE statistics ,ABORIGINAL Australians ,TORRES Strait Islanders ,SOUND recordings ,THEMATIC analysis ,ATTENTION ,DOMESTIC violence ,QUALITY of life ,RESEARCH ,RESEARCH methodology ,MEMORY ,BRAIN injuries ,HOUSING ,SOCIAL support ,PSYCHOSOCIAL factors ,ACTIVITIES of daily living ,COGNITION - Abstract
Introduction: Indigenous women experience high rates of family violence‐related head injuries. At present, lived experience accounts from Indigenous women are absent, which results in incomplete understandings and inadequate responses that have detrimental impacts on them and their families. The aim of this study was to gain insight into Indigenous women's personal and family perspectives regarding violence‐related traumatic brain injury (TBI), including impacts on life, as well as decision‐making processes about healthcare access and engagement. Methods: Purposeful sampling was used to complete semi‐structured interviews with 18 Indigenous women living in regional and remote Australia who had experienced TBI from family violence. The data from these interviews were augmented by data from interviews and focus groups with 28 community members, including family members or carers of Indigenous women living with TBI from family violence. Results: Three themes were conceptualised based on the data and research aims: interweaving of the past and the present—ways women experience brain injury; factors that inform decision‐making to access healthcare; and managing everyday changes that result from TBI from family violence. Indigenous women described living with a range of symptoms following repeated head injuries including problems with memory, cognition and concentration. A range of strategies to manage long‐term symptoms of TBI were used by Indigenous women and when they did seek healthcare, Indigenous women were required to navigate a range of barriers. Conclusions: The findings identify a range of gaps in healthcare and housing supports for Indigenous women with TBI from violence, highlighting the significant investment needed to develop responsive and appropriate pathways of care in regional and remote areas. A range of suggestions are discussed including development of a specialised workforce who can provide apppropriate follow‐up support, co‐designed concussion clinics and educational resources. TBI must also be a key aspect of policy and practice for services working with Indigenous women who have experienced violence to ensure appropriate responses are provided. Public or Patient Contribution: Indigenous women shared their views and experiences of TBI from family violence as well as decision‐making about accessing healthcare and managing TBI symptoms. As such, study participants provided public contributions to the research. [ABSTRACT FROM AUTHOR]
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- 2024
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229. Research on the correction method for radiotherapy verification plans based on displaced electronic portal imaging device.
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Guo, Jian, Zhou, Leyuan, and Zeng, Haibin
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MEDICAL dosimetry ,VOLUMETRIC-modulated arc therapy ,BREAST cancer ,MESOTHELIOMA ,RESEARCH methodology - Abstract
Background: It has been observed that under the single isocenter conditions, the potential shifts of the electronic portal imaging devices (EPID) may be introduced when executing portal dosimetry (PD) plans for bilateral breast cancer, pleural mesothelioma, and lymphoma. These shifts are relative to the calibration positions of EPID and result in significant discrepancies in the plan verification results. Purpose: To explore methods including correction model and specific correction matrices to revise the data obtained from displaced EPID. Methods: Two methods, the correction model and the specific correction matrices, were applied to correct the data. Five experiments were designed and conducted to build correction model and to validate the effectiveness of these two methods. Gamma passing rates were calculated and data profiles along X‐axis and Y‐axis were captured. Results: The gamma passing rates for the EPID‐displaced IMRT validation plans after applying correction model, along with the application of specific correction matrices to VMAT and IMRT validation plans, exhibit results that are comparable to the cases with non‐displaced EPID. Except for the VMAT plans applied correction model which showed larger discrepancies (0.041 ± 0.028, 0.049 ± 0.030), the other three exhibit minimal differences in discrepancy values. In all profiles, the corrected data from displaced EPID exhibit a high level of agreement with data obtained from non‐displaced EPID. Good consistency is observed in actual application of the correction model and the specific correction matrices between gamma passing rates of data corrected and those of non‐displaced data. Conclusions: The proposed methods involving correction model and specific correction matrices can correct the data collected from the displaced EPID, and the gamma passing rates of the corrected data show results that are comparable to some extent with those of non‐displaced data. Particularly, the results corrected by specific correction matrices closely resemble the data from non‐displaced EPID. [ABSTRACT FROM AUTHOR]
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- 2024
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230. Nursing postgraduates learning experience of professional curriculum in China: A qualitative study.
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Jiang, Hongmei, Zhang, Ting, Zhang, Suofei, Ma, Huijuan, and Luo, Yu
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CURRICULUM ,GRADUATE nursing education ,QUALITATIVE research ,RESEARCH funding ,GRADUATE students ,INTERVIEWING ,LEARNING ,JUDGMENT sampling ,DESCRIPTIVE statistics ,EXPERIENCE ,STUDENTS ,RESEARCH methodology ,STUDENT attitudes ,MASTERS programs (Higher education) ,DATA analysis software ,NURSING students - Abstract
Aim: This study adopted the qualitative research method, aiming to explore the learning experience of nursing graduate professional curricula in China from the perspective of students and provided a basis for the continuous improvement of nursing graduate training. Design: A qualitative study. Methods: A purposive sampling method was employed to conduct semi‐structured in‐depth interviews with 14 nursing master's students enrolled in professional curricula from September 03, 2021, to December 8, 2022. The Colaizzi seven‐step analysis method was utilized for data analysis, summarization and extraction. Results: Four themes emerged from the study findings: (i) The study of professional curricula is the cornerstone of scientific research work, but it is relatively boring; (ii) The teaching methods and assessment methods of postgraduate education need to be diversified; (iii) The postgraduate education needs to increase the study time of specialized courses and highlight the specialty characteristics; (iv) the study of professional curricula can enhance the comprehensive ability of postgraduate students. Conclusion: The study of professional curricula for post‐graduate nursing students plays an important role in the development of post‐graduate research and can statistically significant improve their comprehensive ability, but there are some problems such as boring courses, single teaching assessment methods and insufficient time. In the future teaching reform, it is necessary to highlight the specialty characteristics of nursing scientific research, optimize curriculum education and improve students' scientific research knowledge and thinking. Patient and Public Contributions: We thank all participants for their valuable input throughout the study. [ABSTRACT FROM AUTHOR]
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- 2024
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231. Exploring career choices of specialist nurse students: Their decision‐making motives. A qualitative study.
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Tiliander, Annika, Olsson, Caroline, Kalèn, Susanne, Ponzer, Sari, and Fagerdahl, Ami
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NURSES ,MEDICAL specialties & specialists ,QUALITATIVE research ,RESEARCH funding ,INTERVIEWING ,CONTENT analysis ,WORK-life balance ,WORK environment ,NURSING ,DECISION making ,MOTIVATION (Psychology) ,NURSE practitioners ,EXPERIENCE ,NURSES' attitudes ,RESEARCH methodology ,PROFESSIONAL employee training ,CLINICAL competence ,STUDENT attitudes ,INDIVIDUAL development ,DATA analysis software ,NURSING specialties ,VOCATIONAL guidance ,NURSING students - Abstract
Aims: To explore Registered Nurses' motives to undergo specialist training and to choose a particular speciality. Design: A descriptive qualitative interview study. Methods: Semi‐structured interviews were conducted during 2021 with 20 Swedish specialist nurse students from different specialisation areas. Qualitative content analysis was used. The COREQ checklist was used to report the study. Results: Specialist nurse students' motivations for further training were divided into three main categories with two sub‐categories each. The main categories were 'toward new challenges and conditions in work life', 'contributions to the development and higher competencies in health care' and 'personal work and life experiences as ground for choice'. Conclusion: Our study demonstrates the importance of motivating factors in the career choices of Specialist nurse students, such as personal challenges, desirable working conditions, career growth opportunities and personal experiences in the career choices. Creating a supportive work environment that helps to prioritise work‐life balance and offers the development of new skills might help retain nurses. No Patient or Public Contribution: No patient or public contribution was used. However, if more nurses would choose to undergo specialist training, especially in areas facing significant shortages, it would most likely lead to improved health‐related outcomes for patients or populations. [ABSTRACT FROM AUTHOR]
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- 2024
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232. Assessing numeracy and medication calculations within undergraduate nursing education: A qualitative study.
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Minty‐Walker, Christine, Wilson, Nathan J., Rylands, Leanne, Pettigrew, Jim, and Hunt, Leanne
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MEDICATION error prevention ,PHARMACEUTICAL arithmetic ,NURSES ,MATHEMATICS ,LEADERS ,QUALITATIVE research ,PATIENT safety ,NURSING assessment ,INTERVIEWING ,DESCRIPTIVE statistics ,EDUCATIONAL tests & measurements ,THEMATIC analysis ,RECORDING & registration ,REFLEXIVITY ,RESEARCH methodology ,BACCALAUREATE nursing education ,COLLEGE students ,NURSING students - Abstract
Aim: To explore how undergraduate nursing students are assessed on nursing numeracy and medication calculations from the perspective of Australian nurse education leaders. Design: A qualitative study. Methods: Semi‐structured interviews were conducted with 17 nurse education leaders between November 2022 and January 2023. Braun and Clarke's six phases of thematic analysis were used to analyse the data. Results: Five key themes were identified: (i) high expectations to keep the public safe, (ii) diverse assessment formats, (iii) different ways of managing assessment integrity, (iv) assessment conditions incongruent to the clinical setting and (v) supporting struggling students. Conclusion: Nurse education leaders set high standards requiring students to achieve 100% in numeracy and medication calculation assessments, thus maintaining the reputation of nursing and patient safety. However, students struggled to meet this expectation. Diverse assessment formats were implemented, with some examination conditions contrary to clinical practice. Currently, there is no benchmark or independent point of registration examination in Australia, hence the problem is each university had a different standard to judge students' competence. Gaining insight into how these assessments are conducted provides an opportunity to work towards an evidence‐based model or benchmark for the assessment of numeracy. Implications for the Profession: Dosage errors in clinical practice threaten patient safety and the reputation of the nursing profession. The accuracy rate of calculations by undergraduate and registered nurses is deficient worldwide. This research highlights a major educational issue, that being the wide variation in how numeracy assessments are conducted with no clear pedagogical rationale for a standardised method. Such assessments would establish a national standard, contributing to quality assurance, the development of the nursing profession and improve patient safety. [ABSTRACT FROM AUTHOR]
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- 2024
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233. Advanced nurse practitioner well‐being: A 4‐year cohort mixed methods study.
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Wood, Emily, King, Rachel, Robertson, Steve, Tod, Angela, Senek, Michaela, Taylor, Beth, and Ryan, Tony
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PSYCHOLOGICAL burnout ,RESEARCH funding ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,NURSE practitioners ,JOB satisfaction ,MOTIVATION (Psychology) ,LONGITUDINAL method ,SURVEYS ,THEMATIC analysis ,RESEARCH methodology ,DATA analysis software ,COVID-19 ,PSYCHOSOCIAL factors ,WELL-being ,EMPLOYEES' workload - Abstract
Aims: To examine changes in advanced nurse practitioner (ANP) well‐being, satisfaction and motivation over a four‐year period. Design: Longitudinal Cohort study. Methods: Surveys were carried out each year from 2019 to 2022 with the same cohort of ANPs in the United Kingdom (UK). The survey consisted of demographics, questions on contemporary issues in advanced practice, National Health Service (NHS) staff survey questions and validated questionnaires. A core set of questions were asked every year with some changes in response to the COVID‐19 pandemic. Results: Response rate ranged from 40% to 59% and appeared to be affected by COVID‐19. Staff satisfaction with pay and the well‐being score were stable throughout. Other questions on well‐being, job satisfaction and motivation saw statistically significant reductions after 4 years. Open‐ended questions about ongoing well‐being concerns show participants are concerned about exhaustion levels caused by workload, staffing issues, abuse from patients and colleagues' mental health. Conclusion: The findings highlight a decline in ANP well‐being, job satisfaction and motivation post‐COVID‐19. Reasons for this, explored in the qualitative data, show that ANPs have faced extremely difficult working conditions. Urgent action is required to prevent a workforce retention crisis as many nursing staff are close to retirement and may not be motivated to remain in post. Impact: This study has followed ANPs through the most challenging years the NHS has ever seen. Job satisfaction, motivation and enjoyment of the job all significantly reduced over time. In many areas, the ANP role has been used to fill medical workforce gaps, and this will become harder to do if ANPs are dissatisfied, disaffected and struggling with stress and burnout. Addressing these issues should be a priority for policymakers and managers. Patient or public contribution: None as this study focussed on staff. Staff stakeholders involved in the design and conduct of the study. [ABSTRACT FROM AUTHOR]
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- 2024
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234. The influence of adolescents' nutrition knowledge and school food environment on adolescents' dietary behaviors in urban Ethiopia: A qualitative study.
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Iyassu, Abreham, Laillou, Arnaud, Tilahun, Kassahun, Workneh, Fitsum, Mogues, Sinksar, Chitekwe, Stanley, and Baye, Kaleab
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HEALTH literacy ,FRUIT ,HEALTH attitudes ,QUALITATIVE research ,CARBOHYDRATES ,MALNUTRITION ,SCHOOLS ,FOOD safety ,COST analysis ,SOCIOECONOMIC factors ,INTERVIEWING ,HAND washing ,FOOD service ,SOCIAL change ,HYGIENE ,EVALUATION of medical care ,DESCRIPTIVE statistics ,TEENAGERS' conduct of life ,ADVERTISING ,HEALTH behavior ,FOOD habits ,VEGETABLES ,RESEARCH methodology ,FOOD supply ,PUBLIC administration ,COMPARATIVE studies ,DATA analysis software ,NUTRITION ,DIET ,OBESITY ,NUTRITION education ,SOCIAL isolation ,COGNITION ,ADOLESCENCE - Abstract
Adolescence is a critical period of physical, cognitive, and social development that needs to be supported with healthy diets. Dietary behaviours of adolescents can be shaped by their nutrition‐literacy and their interaction with parents and peers as well as their school food environment. Therefore, the present study aimed to assess factors that influence dietary behaviours of adolescents in urban Ethiopia. Sex‐disaggregated, focused group discussions (n = 70) were conducted in 36 private and government schools (n = 12/city) among adolescents (n = 432) 15–19 years of age in Addis Ababa, Bahir Dar, and Dire Dawa. Photovoice was applied in a subgroup of participants (n = 216) to gain further insights into adolescents' perception of their school food environment. Key informant interviews were conducted among school principals (n = 36). Adolescents had a relatively good nutrition knowledge and recognised the importance of diverse diets, but misperceptions also existed. They identified fruit and vegetables as healthy foods, but their consumption was deterred by food safety concerns. The adolescents identified foods high in salt, fat, and sugar, including processed/packaged foods as unhealthy, but still consumed them frequently due to their taste, affordability, availability and accessibility in and around schools. Both undernutrition and overweight/obesity were linked to social exclusion and bullying in school. Effective behavioural change communication is required to address common misperceptions. School nutrition programs should integrate water, sanitation and hygiene programs to ensure food safety. Regulations promoting healthy eating while discouraging unhealthy dietary behaviours are vital. Interventions to make nutrient‐dense and healthy foods available, accessible, and affordable are urgently needed to improve the nutrition and health outcome of adolescents. Key messages: Adolescents had a relatively good nutrition knowledge, but misperceptions also existedFoods high in fat, sugar, and salt, but also processed/packaged foods were considered unhealthy, but were frequently consumedUnhealthy foods were widely available/accessible in the school food environmentComprehensive food safety and nutrition interventions are needed at schoolsRegulations for availability and advertising of unhealthy foods in and around schools are needed. [ABSTRACT FROM AUTHOR]
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- 2024
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235. The acceptability of a donor human milk bank and donated human milk among mothers in Limpopo Province, South Africa.
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Mampane, Tebogo and Wolvaardt, Jacqueline E.
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BREAST milk collection & preservation ,BREASTFEEDING ,INFANT mortality ,CROSS infection ,QUALITATIVE research ,HEALTH attitudes ,BREAST milk banks ,IMMUNOGLOBULINS ,NEONATAL intensive care units ,INTERVIEWING ,CULTURE ,BREAST milk ,ATTITUDES of mothers ,NUTRITIONAL requirements ,JUDGMENT sampling ,NEONATAL intensive care ,DESCRIPTIVE statistics ,INFANT nutrition ,DISEASES ,NEONATAL necrotizing enterocolitis ,ENTERAL feeding ,THEMATIC analysis ,PRENATAL care ,PSYCHOLOGY of mothers ,RESEARCH methodology ,CONCEPTUAL structures ,PARENT-infant relationships ,FOOD waste ,PUBLIC health ,PHENOMENOLOGY ,VIRUSES - Abstract
Breastfeeding is a crucial public health approach that reduces infant morbidity and mortality by providing essential nutrients and antibodies, and breast milk is easily digested. Breastfeeding and donated milk serve as a preventative measure against necrotising enterocolitis. Additionally, they protect against viruses and nosocomial sepsis. When a birthing parent's own milk is unavailable, alternative enteral nutrition for preterm or low‐birth‐weight infants is either donor human milk (DHM) or artificial formula. This study aimed to understand mothers' acceptance of the donor human milk bank (DHMB) and DHM. A qualitative phenomenological study was conducted in Limpopo Province, South Africa. The study used purposive sampling to select 23 mothers in postnatal and neonatal wards. Data collection was via in‐depth interviews using a semistructured interview guide. Manual data analysis using an interpretative phenomenological analysis (IPA) framework was used to coding. Concepts were grouped to generate themes. Three themes and nine subthemes were generated: (1) DHMBs (2) cultural perspective of DHMB, and (3) health considerations of DHM. Participants were unaware of the DHMB. Hesitancy in accepting DHM due to fear of contracting HIV was observed. Cultural beliefs are an influencing factor for use, while donation was driven by altruistic reasons, preventing waste, helping others and having previously benefited from DHM. The study found that mothers are willing to donate human milk. Willingness to donate can be increased by raising awareness about DHMB and addressing culture and safety concerns at antenatal clinics. Key messages: The study emphasises the possible willingness to accept the concept of donating and utilising donor human milk for newborns who do not have access to their mother's own milk. However, safety concerns, bonding and cultural issues should be addressed.Promoting breastfeeding and milk donation in communities requires addressing cultural and health concerns by utilising the service of community health workers.Education about safe breast milk banking before neonatal intensive care unit admission is also an important factor. [ABSTRACT FROM AUTHOR]
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- 2024
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236. Body composition and associated factors among 5–7‐year‐old children with moderate acute malnutrition in Jimma town in southwest Ethiopia: A comparative cross‐sectional study.
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Teshome, Melese Sinaga, Bekele, Tamirat, Verbecque, Evi, Mingels, Sarah, Granitzer, Marita, Abessa, Teklu Gemechu, Lema, Tefera Belachew, and Rameckers, Eugene
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CROSS-sectional method ,MALNUTRITION ,ELEMENTARY schools ,BODY mass index ,RESEARCH funding ,T-test (Statistics) ,BODY composition ,STATISTICAL sampling ,MULTIPLE regression analysis ,SEX distribution ,INTERVIEWING ,MOTHERS ,DESCRIPTIVE statistics ,AGE distribution ,CHI-squared test ,MULTIVARIATE analysis ,CAREGIVERS ,NUTRITIONAL status ,LEAN body mass ,RESEARCH methodology ,STATISTICS ,FATHERS ,COMPARATIVE studies ,CONFIDENCE intervals ,DATA analysis software ,FACTOR analysis ,SOCIODEMOGRAPHIC factors ,REGRESSION analysis - Abstract
Acute malnutrition affects not only the growth and development but also the body composition of children. However, its specific effects have not yet been characterized. This study aims to compare the body composition of 5–7‐year‐old children with moderate acute malnutrition (MAM) to that of their well‐nourished (WN) peers and identify associated factors. A school‐based comparative cross‐sectional study was conducted from June to July 2022 in Jimma town, southwest Ethiopia. The study participants were selected from eight kindergartens and eight primary schools using a simple random sampling technique based on the proportional allocation of the sample to the size of the population in the respective school. Descriptive statistics and multivariable linear regression analyses were used to assess the mean differences and associations between variables and isolate independent predictors of body composition, respectively. The statistical significance was determined using ß‐coefficients with 95% confidence intervals and a p value of ≤ 0.05. Data were captured from 388 (194 MAM and 194 WN) children with a response rate of 97.9%. The mean fat‐free mass of WN children was significantly higher compared with those with MAM (p < 0.001). The mean (SD) of fat mass of MAM children was 4.23 ± 0.72 kg, 4.36 ± 0.88 kg and 4.08 ± 0.89 kg for 5, 6 and 7‐year‐olds, respectively. For WN children, the mean (SD) of fat mass was 4.92 ± 0.88 kg for 5 years old, 5.64 ± 1.01 kg for 6 years old and 5.75 ± 1.26 kg for 7 years old (p < 0.001). On the multivariable linear regression analysis after controlling for background variables, WN children exhibited 1.51 times higher fat‐free mass compared with MAM children (β = 1.51, p = 0.003). A unit increase in age of the study participants was associated with a 1.37 increment in fat‐free mass (β = 1.37, p < 0.001). WN children had 1.07 times higher fat mass compared with children with MAM (β = 1.07, p < 0.001). A unit increase in the age of the child resulted in 0.15 times increment in fat mass (β = 0.15, p = 0.020), and being female was associated with a 0.37 increase in fat mass (β = 0.37, p < 0.001). The results showed that the mean fat mass and fat‐free mass were significantly lower among moderately acute malnourished children than in WN children showing the loss of both body compartments due to malnutrition. The body mass index for age, age of the child and sex of the child were significantly linked to both fat‐free mass and fat mass. Key messages: This study demonstrated that children aged 5–7 years suffering from moderate acute malnutrition (MAM) have lower mean body fat mass (FM) and fat‐free mass (FFM) as compared with well‐nourished (WN) children.The substantial difference observed between MAM and WN children in body FM and FFM calls for the integration of MAM treatment into the routine health services to prevent their sliding down to SAM and associated mortality. [ABSTRACT FROM AUTHOR]
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- 2024
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237. Before and after study of a national complementary and supplementary feeding programme in Rwanda, 2017–2021.
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Hebert, Katharine A., Nsengiyumva, Emmanuel, Kayitesi, Christine, Hariharan, Karen, Opondo, Charles, Ferguson, Elaine, Allen, Elizabeth, Uwonkunda, Irene, Ufitinema, Adeline, and Baribwira, Cyprien
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PREVENTION of malnutrition ,INFANTS ,CROSS-sectional method ,BODY mass index ,FOOD consumption ,RESEARCH funding ,MOTHERS ,STATISTICAL sampling ,INTERVIEWING ,BLOOD collection ,FOOD security ,NUTRITIONAL requirements ,PREGNANT women ,DISEASE prevalence ,DESCRIPTIVE statistics ,MICRONUTRIENTS ,MULTIVARIATE analysis ,HYGIENE ,INFANT nutrition ,SURVEYS ,CAREGIVERS ,ODDS ratio ,NUTRITIONAL status ,RESEARCH methodology ,ENRICHED foods ,SOCIAL support ,ANTHROPOMETRY ,COMPARATIVE studies ,GROWTH disorders ,CONFIDENCE intervals ,DISEASE susceptibility ,DATA analysis software - Abstract
To address high rates of malnutrition among children from vulnerable households in Rwanda, the government initiated a national food supplementation programme. A before and after evaluation, using repeat cross‐sectional surveys in randomly selected villages was conducted; aimed at assessing the effectiveness of providing fortified blended food (FBF) to children 18–23 months of age, pregnant and lactating women in the lowest tier of Rwanda's social support system. Data were collected in 2017, 2018 and 2021 through interviews with caregivers; anthropometric measurements and a capillary blood sample were obtained from children. The primary statistical analysis compared the nutritional status of children before and after the introduction of FBF. We enroled 724 children during each survey. The prevalence of stunting declined from 47% to 35% between 2017 and 2021; in 2018, the prevalence of stunting was 43%. Children had a 42% reduction in the odds of being stunted (adjusted odds ratio [AOR]: 0.58, 95% confidence interval [CI]: 0.47–0.74, p < 0.001) from 2017 to 2021 even after adjusting for inherent, distal, proximal, and intermediate covariates. The reduction in stunting observed within the first year of the programme was not statistically significant (AOR: 0.83, 95% CI: 0.67–1.03, p < 0.091). We observed meaningful reductions in the prevalence of stunting among children which coincided with the introduction of Government‐led initiative to reduce malnutrition. The Rwandan Government has committed to improving the living conditions of vulnerable households and has made strong investments in reducing malnutrition. The impact of these investments can be seen in the overall trend towards improved nutritional status highlighted in this evaluation. Key messages: The national distribution of fortified blended food (FBF) to pregnant and lactating women and 6‐ to 23‐month‐old children living in the most vulnerable households was associated with a meaningful reduction in stunted linear growth, iron deficiency and anaemia among young children after 5 years.This study indicates that stunted linear growth, in early childhood, can be reduced over 5 years when the government is committed to and invests in improving the living conditions of vulnerable households, including the national food supplementation programme.It was attainable to distribute FBF to vulnerable pregnant and lactating women and 6‐ to 23‐month‐old children, in a national programme, over the 5‐year evaluation period, including during the COVID‐19 pandemic. [ABSTRACT FROM AUTHOR]
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- 2024
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238. Nurses' experiences of hospital‐acquired pressure injury prevention in acute healthcare services in Victoria, Australia: A qualitative study using the Theoretical Domains Framework.
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Team, Victoria, Bouguettaya, Ayoub, Qiu, Yunjing, Turnour, Louise, Banaszak‐Holl, Jane C., Weller, Carolina D., Sussman, Geoffrey, Jones, Angela, and Teede, Helena
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WORK ,EVIDENCE-based nursing ,NURSES ,COMMUNITY support ,AUDITING ,TEAMS in the workplace ,EMOTION regulation ,REINFORCEMENT (Psychology) ,QUALITATIVE research ,OCCUPATIONAL roles ,GROUP identity ,PERSONNEL management ,ACADEMIC medical centers ,OPTIMISM ,RESEARCH funding ,HOSPITAL nursing staff ,INTERVIEWING ,STATISTICAL sampling ,NURSING ,PROFESSIONAL identity ,JUDGMENT sampling ,EMOTIONS ,DECISION making in clinical medicine ,GOAL (Psychology) ,CONFIDENCE ,THEMATIC analysis ,ATTITUDE (Psychology) ,CONTINUING education of nurses ,SOUND recordings ,ATTENTION ,NURSES' attitudes ,CONCEPTUAL structures ,URBAN hospitals ,RESEARCH methodology ,ORGANIZATIONAL change ,INTENSIVE care units ,MEMORY ,INTENTION ,JOB stress ,HEALTH facilities ,DATA analysis software ,EXPERIENTIAL learning ,PRESSURE ulcers ,CRITICAL care medicine ,EMPLOYEES' workload ,SOCIAL stigma ,COVID-19 pandemic ,HOSPITAL wards ,COGNITION - Abstract
We investigated nurses' experiences of hospital‐acquired pressure injury (PI) prevention in acute care services to better understand how PI prevention may be optimised. We used the Theoretical Domains Framework to systematically identify barriers and enablers to evidence‐based preventive practices as required by the International Guideline. This study was one element of a complex capacity building project on PI surveillance and prevention within the acute health service partners of Monash Partners Academic Health Science Centre, an accredited academic health partnership located in Melbourne, Australia. We adopted a qualitative descriptive design. We interviewed 32 nurses that provided care in intensive care units, general wards and COVID wards of four acute care services. Nurses were recruited from four large acute care services (three public, one private) located in Melbourne. Most of them worked with patients who were at high risk of hospital‐acquired PI on a daily basis. Interview transcripts were coded and analysed using thematic analysis guided by the Theoretical Domains Framework. The domains referred to most frequently by all participants included: Knowledge, Skills, Social/Professional Role and Identity, Beliefs about Capabilities, and Environmental Context and Resources. The key barriers discussed by nurses included gaps in nurses' knowledge and skills related to identification and staging of PI, heavy nursing workload and inadequate staffing levels, stigma and self‐blame related to PI identification, and exacerbating impacts of the COVID‐19 pandemic. Main facilitators discussed were training programmes, nursing audits and feedback, and teamwork. Participants suggested improvements including accessible and tailored training, visual reminders, and addressing heavy workloads and emotional barriers nurses face. Investing in tailored training initiatives to improve nurses' knowledge and organisational changes to address low level staffing and heavy workloads are urgently needed to support nurses in delivering optimal care and preventing hospital‐acquired PI. [ABSTRACT FROM AUTHOR]
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- 2024
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239. Healthy lifestyle scales to assess general and clinical population: A systematic review with narrative synthesis.
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Dehghani, Elaheh, Karimi, Keyvan, Sokke, Hananeh Ghelichi‐Moghaddam, Khadembashiri, Mohammad Amin, Ghavidel, Fatemeh, and Memari, Amir Hossein
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LIFESTYLES ,MULTITRAIT multimethod techniques ,HEALTH status indicators ,STRESS management ,RESEARCH evaluation ,AGE distribution ,MEDLINE ,RESEARCH methodology ,PSYCHOMETRICS ,PUBLIC health ,ONLINE information services ,TOBACCO products ,ALCOHOL drinking ,PSYCHOLOGY information storage & retrieval systems ,PHYSICAL activity ,NUTRITION ,COMMUNITY-based social services - Abstract
Background: Adopting a healthy lifestyle and improvements in medical care have led to an increase in life expectancy. Thus, the development and implementation of techniques for assessing healthy lifestyles have garnered more attention recently. Finding and evaluating healthy lifestyle assessment tools across all demographics is the goal of this systematic review. Method: Using online databases PubMed, Scopus, Web of Science, and APA PsycINFO, a systematic literature review was carried out in accordance with Preferred Reporting Items for Systematic Review and Meta‐analyses. Registration DOI https://doi.org/10.17605/OSF.IO/ZD9XK for the review has been set on Open Science Framework (OSF). Using the quality standards proposed for measuring features of health status surveys, two independent reviewers evaluated the methodological quality ratings of the eligible studies. Results: From 7480 studies, 47 eligible instruments were identified and included in the review. Most of the studies followed the World Health Organization's definition of healthy lifestyle to develop the scales. The instruments are categorized into those used to assess general lifestyle or healthy lifestyle in general as well as in the clinical population. Physical activity, nutrition, tobacco use, alcohol use, and stress management were the most assessed modules of healthy lifestyle. Furthermore, validity, reliability, responsiveness, floor and ceiling effects, and interpretability were among the psychometric qualities that were frequently assessed. Conclusion: Lifestyle questionnaires can be used to identify specific risk factors in a variety of populations, as well as to plan community‐based intervention programs, by acting as a predictive diagnostic tool and preventive measure. The majority of the assessments of healthy lifestyles that are currently accessible require improvements. [ABSTRACT FROM AUTHOR]
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- 2024
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240. Use of Electronic and Paper-based Standardized Nursing Care Plans to Improve Nurses’ Documentation Quality in a Nigerian Teaching Hospital.
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Adereti, Chinma Stella and Olaogun, Adenike Ayobola
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ACADEMIC medical centers ,CHI-squared test ,CLINICAL trials ,HOSPITAL wards ,RESEARCH methodology ,MEDICAL software ,NURSING care plans ,NURSING records ,PAMPHLETS ,PUBLIC hospitals ,QUESTIONNAIRES ,STATISTICAL hypothesis testing ,T-test (Statistics) ,SAMPLE size (Statistics) ,JUDGMENT sampling ,PRE-tests & post-tests ,EDUCATIONAL outcomes ,DATA analysis software ,ELECTRONIC health records ,DESCRIPTIVE statistics ,HOSPITAL nursing staff ,TERTIARY care ,FRIEDMAN test (Statistics) - Abstract
PURPOSE: To evaluate the effect of electronic and paper-based standardized nursing care plans (SNCPs) use on quality of nurses’ documentation. METHODS: Using quasi-experimental design, two wards were grouped into electronic and paper-based wards. Nurses were trained to use electronic- and paperbased SNCPs for care-planning and documentation. Data was collected before, 3, and 6 months postintervention and analyzed with SPSS version 20. FINDINGS: There was improvement in documentation quality in the two wards after introducing SNCPs with higher quality scores in the electronic ward postintervention. CONCLUSION: Providing SNCPs in electronic and paper formats is critical to improving nursing documentation. IMPLICATION FOR NURSING PRACTICE: Adequate training and support for nurses are needed for successful implementation of SNCPs in electronic health records (EHRs) in developing nations. [ABSTRACT FROM AUTHOR]
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- 2019
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241. Evolution and development of methodologies in social and behavioural science research in relation to oral health.
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Baker, Sarah R., Heaton, Lisa J., and McGrath, Colman
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EXPERIMENTAL design ,BEHAVIORAL research ,ORAL health ,BEHAVIORAL sciences ,RESEARCH methodology ,SOCIAL sciences ,CONCEPTUAL structures ,MEDICAL research ,CAUSALITY (Physics) - Abstract
The aim of this introductory paper is to provide an overview of key methodological developments in social and behavioural research in oral health. In the first section, we provide a brief historical perspective on research in the field. In the second section, we outline key methodological issues and introduce the seven papers in the theme. Conceptual models can contextualize research findings and address the 'why' and 'how' instead of 'what' and 'how many'. Many models exist, albeit they need to be evaluated (and adapted) for use in oral health research and in specific settings. The increasing availability of big data can facilitate this with data linkage. Through data linkage, it is possible to explore and understand in a broader capacity the array of factors that influence oral health outcomes and how oral health can influences other factors. With advances in statistical approaches, it is feasible to consider casual inferences and to quantify these effects. There is a need for not only individual efforts to embrace causal inference research but also systematic and structural changes in the field to yield substantial results. The value of qualitative research in co‐producing knowledge with and from human participants in addressing 'the how' and 'the why' factors is also key. There have been calls to employ more sophisticated qualitative methods together with mixed methods approaches as ways of helping to address the complex or Wicked Problems in population oral health. In the final section, we outline possible future methodological directions in social and behavioural oral health research including participatory approaches and the development of core outcome sets. Our overriding goal in the paper is to facilitate a critical debate in relation to methodological issues which can be used to improve understanding and generate knowledge in population oral health and that this, in turn, will help inform oral health policy and practices. [ABSTRACT FROM AUTHOR]
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- 2023
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242. Discussion of specifying prior distributions in reliability applications—Applications for Bayesian estimation software design.
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Liu, Peng
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SOFTWARE architecture ,DESIGN software ,DATA analysis ,RESEARCH methodology - Abstract
It is a great pleasure to have the opportunity to write a discussion on "Specifying Prior Distributions in Reliability Applications" by Tian et al. Appl Stochast Models Bus Ind, (2023). One coauthor of the paper, Dr Meeker, has conducted Bayesian methodology research on reliability data analysis for many years, and I have followed his work on the subject for quite some time. The work by Dr Meeker helped us develop Bayesian estimation products which are both powerful and easy to use. This time, I learned something new as usual. In this discussion, I will focus on the great value of the paper for developing user friendly Bayesian estimation software. [ABSTRACT FROM AUTHOR]
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- 2024
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243. Walk‐in Together: A pilot study of a walk‐in online family therapy intervention.
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Hartley, Eliza, Moore, Lynda, Knuckey, Aaron, von Doussa, Henry, Painter, Felicity, Story, Karen, Barrington, Nick, Young, Jeff, and McIntosh, Jennifer
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FAMILIES & psychology ,FAMILY psychotherapy ,PILOT projects ,PATIENT aftercare ,HEALTH services accessibility ,SOCIAL support ,INTERNET ,RESEARCH methodology ,PSYCHOTHERAPISTS ,MEDICAL care ,INTERVIEWING ,RESEARCH funding ,PSYCHOSOCIAL factors ,DESCRIPTIVE statistics ,PSYCHOTHERAPIST attitudes ,THEMATIC analysis ,MENTAL health services ,PSYCHIATRIC treatment ,TELEMEDICINE - Abstract
Many Australians are requiring mental health care, including families, leading to long wait times in order to access support. Walk‐in therapy reduces barriers to mental health support services by providing support at the time that families seek help. This paper presents a proof‐of‐concept study investigating the acceptability and short‐term effectiveness of an online walk‐in family therapy service, Walk‐in Together (WIT). Part 1 of the paper describes the experiences of 44 family members from 22 families who presented to a public family therapy clinic for a virtual walk‐in family therapy session. The session was conducted by a team of three experienced family therapists. Family members' experiences were sought pre‐session, post‐session, and at 6 weeks follow‐up via survey and interview. Part 2 of the paper explores therapist perceptions (n = 7) of the WIT approach, through thematic analysis of semi‐structured interview data. Post‐session feedback showed 85% of family members found WIT to be helpful and 50% were optimistic about their future as a family after their WIT session. Six weeks post‐session it was revealed that WIT supported planning for families in equipping them to move forward with 88% of family members reporting that they knew what to do after the session. All therapists uniformly experienced the model as offering a timely and beneficial service, suitable for diverse presentations and constellations of families. These preliminary results suggest the significant utility of this WIT intervention as a well‐received and helpful service for families, who valued the easy access and rapid therapeutic response afforded by the online, walk‐in delivery model. This proof‐of‐concept paper suggests the potential for further development and growth of WIT, as well as other mental health support services using a walk‐in, telehealth model to meet the rising demand for therapeutic support for families in distress. [ABSTRACT FROM AUTHOR]
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- 2023
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244. Information organization and representation in digital cultural heritage in Brazil: Systematic mapping of information infrastructure in digital collections for data science applications.
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Martins, Dalton Lopes, Lemos, Daniela Lucas da Silva, de Oliveira, Luis Felipe Rosa, Siqueira, Joyce, do Carmo, Danielle, and Medeiros, Vinicius Nunes
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CULTURE ,DATA science ,RESEARCH ,MEDICAL information storage & retrieval systems ,INFORMATION resources management ,INTERNET ,METADATA ,RESEARCH methodology ,RESEARCH funding ,CONTENT analysis ,DATA transmission systems ,THEMATIC analysis ,FEDERAL government ,INFORMATION technology - Abstract
This paper focuses on data science in digital cultural heritage in Brazil, where there is a lack of systematized information and curated databases for the integrated organization of documentary knowledge. Thus, the aim was to systematically map the different forms of information organization and representation applied to objects from collections belonging to institutions affiliated with the federal government's Special Department of Culture. This diagnosis is then used to discuss the requirements of devising strategies that favor a better data science information infrastructure to reuse information on Brazil's cultural heritage. Content analysis was used to identify analytical categories and obtain a broader understanding of the documentary sources of these institutions in order to extract, analyze, and interpret the data involved. A total of 215 hyperlinks that can be considered cultural collections of the institutions studied were identified, representing 2,537,921 cultural heritage items. The results show that the online publication of Brazil's digital cultural heritage is limited in terms of technology, copyright licensing, and established information organization practices. This paper provides a conceptual and analytical view to discuss the requirements for formulating strategies aimed at building a data science information infrastructure of Brazilian digital cultural collections that serves as future projects. [ABSTRACT FROM AUTHOR]
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- 2023
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245. Acute post‐stroke aphasia management: An implementation science study protocol using a behavioural approach to support practice change.
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Clapham, Renee P., McKinley, Kathryn, Stone, Marissa, Candy, Mary‐Anne, Candy, Phil, Carragher, Marcella, and O'Halloran, Robyn
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AUDITING ,STROKE ,RESEARCH methodology ,BEHAVIOR therapy ,HEALTH outcome assessment ,APHASIA ,CRITICAL care medicine ,STROKE patients ,INTERPROFESSIONAL relations ,INTELLECT ,TRANSLATIONS ,ADULT education workshops ,DISEASE complications - Abstract
Background: Evidence should guide decisions in aphasia practice across the continuum of stroke care; however, evidence–practice gaps persist. This is particularly pertinent in the acute setting where 30% of people with stroke will have aphasia, and speech pathologists experience many challenges implementing evidence‐based practice. This has important consequences for people with aphasia and their close others, as well as speech pathologists working in acute settings. Aims: This study protocol details how we will target practice change using a behavioural approach, with the aim of promoting the uptake of synthesized evidence in aphasia management post‐stroke in the acute hospital setting. Methods & Procedures: We will conduct a mixed‐methods before‐and‐after study following the Knowledge‐to‐Action (KTA) framework. Researchers, speech pathologists and people with lived experience of aphasia will collaborate to identify and prioritize practice gaps, and develop and implement changes to clinical practice based on the Theoretical Domains Framework and Behaviour Change Wheel. Discussion: This study may provide a template for acute stroke services in how to use an implementation science approach to promote the application of synthesized evidence into routine clinical practice to ensure people with aphasia receive high‐quality services. Collaboration among researchers, healthcare providers, people with aphasia and their close others ensures that the identification and targeting of practice gaps are driven by theory, lived experience and the local context. WHAT THIS PAPER ADDS: What is already known on this subject: Synthesized evidence, such as clinical guidelines and consensus statements, provides the highest level of evidence to inform clinical practice, yet discrepancies between delivered care and evidence remain. This discrepancy is of note in the acute setting where clinicians report many challenges implementing the best available evidence, combined with a high proportion of people with stroke who will have aphasia (30%). There are many reasons why evidence is not put into practice, and efforts to change clinical practice need to consider these barriers when developing interventions. What this paper adds to existing knowledge: This study protocol details an implementation science approach to affect clinical practice change, informed by a collaboration of key stakeholders (researchers, speech pathologists, and people with aphasia and their close others). Protocol papers that focus on bridging the gap between evidence and practice are uncommon in communication disorders; moreover, explicit prioritization of practice gaps is a critical but often overlooked aspect of promoting evidence‐based practice. What are the potential or actual clinical implications of this work?: This protocol provides insights into how one study site identified and prioritized evidence–practice gaps using a participatory approach. We provide insights into how clinical practice change may occur by describing how we plan to identify priority evidence–practice gaps and develop an intervention to improve the use of aphasia evidence in routine practice. This protocol aims to share an implementation science approach to service improvement that may be replicated across other services. [ABSTRACT FROM AUTHOR]
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- 2023
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246. The impact of participation in research for speech and language therapy departments and their patients: A case example of the Big CACTUS multicentre trial of self‐managed computerized aphasia therapy.
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Jimenez Forero, Sonia J. and Palmer, Rebecca
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THERAPEUTICS ,COMPUTERS in medicine ,RESEARCH ,SPEECH therapy ,SELF-management (Psychology) ,RESEARCH methodology ,INTERVIEWING ,APHASIA ,DESCRIPTIVE statistics ,QUALITY of life ,RESEARCH funding ,QUALITY assurance ,DATA analysis software ,THEMATIC analysis ,COVID-19 pandemic - Abstract
Background: In order to conduct research that is meaningful to speech and language therapy services and their patients, it is often desirable to conduct the research within routine clinical services. This can require considerable time and commitment from speech and language therapists (SLTs). It is therefore important to understand the impact that such participation in research can have. Aims: To explore the impact of research participation in the Big CACTUS study of self‐managed computerized aphasia therapy conducted in 21 UK NHS speech and language therapy departments. Methods & Procedures: An online survey was sent to SLTs who took the lead role for the study at their NHS Trust to evaluate the impact of study participation in three domains: capacity‐building, research development and health services. The questionnaire, based on the VICTOR framework for evaluating research impact, included Likert scale statements and closed and open‐ended questions. The results from open‐ended questions were coded and analysed using framework analysis in NVivo 12 and the data from closed questions were analysed descriptively. Outcomes & Results: A total of 12 SLTs returned the survey. Nine codes were identified from open‐ended questions and 20 predefined from the literature. Analysis of the responses demonstrated the perceived impact including improvements in practices and access to therapy, investments in infrastructure, increased SLT profile, and impact on research culture among SLTs. The usefulness of the intervention during the COVID‐19 pandemic was also highlighted. Conclusions & Implications: The results suggest participation in Big CACTUS has resulted in improvements in patient care and SLT research capacity and culture in speech and language therapy departments. What This Paper Adds: What is already known on the subject: Practice‐based research is encouraged to assist with the clinical relevance of the research findings. Participation in research can be seen as an activity that is additional to the core business of patient care and it can be difficult to secure time to participate or conduct research in clinical settings. Impact evaluation initiatives of individual trials facilitate early identification of benefits beyond the trial. What this paper adds to existing knowledge: This study describes specific examples of the impact on services, staff and patients from SLT participation and leadership in the Big CACTUS speech and language therapy trial in clinical settings. What are the potential or actual clinical implications of this study?: Clinical services participating in research may benefit from improved clinical care for patients both during and after the study, an improved professional reputation, and increased research capacity and culture within the clinical settings. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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247. Com‐mens: a home‐based logopaedic intervention program for communication problems between people with dementia and their caregivers — a single‐group mixed‐methods pilot study.
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Olthof‐Nefkens, Maria W. L. J., Derksen, Els W. C., Debets, Frieda, de Swart, Bert J. M., Nijhuis‐van der Sanden, Maria W. G., and Kalf, Johanna G.
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TREATMENT of communicative disorders ,PILOT projects ,WELL-being ,STATISTICS ,SPEECH therapy ,CAREGIVERS ,FOCUS groups ,CONFIDENCE intervals ,HOME care services ,RESEARCH methodology ,TIME ,EFFECT sizes (Statistics) ,COMMUNICATIVE competence ,INTERVIEWING ,BURDEN of care ,HEALTH outcome assessment ,REGRESSION analysis ,DEMENTIA patients ,DEMENTIA ,INDEPENDENT living ,QUESTIONNAIRES ,QUALITY of life ,REPEATED measures design ,DESCRIPTIVE statistics ,RESEARCH funding ,STATISTICAL correlation ,MEDICAL needs assessment ,PSYCHOTHERAPY - Abstract
Background: Communication difficulties are common in people with dementia, and often present from an early stage. However, direct treatment options for people with dementia that positively influence their daily communication are scarce. Aims: To evaluate the potential impact and feasibility of a personalized logopaedic intervention. Methods & Procedures: A total of 40 community‐dwelling persons with dementia and their caregivers were recruited. Five experienced speech and language therapists (SLTs) delivered the six‐session Com‐mens intervention at home. Com‐mens aims to improve positive communication between people with dementia and their primary caregivers and comprises five elements: interactive history‐taking, dynamic observational assessment, education about the consequences of dementia on communication, development and use of personalized communication tools, use motivational, and person‐centred strategies by the SLT. We conducted a single‐group mixed‐methods pilot study with five measurements: baseline, directly after intervention, and at 3, 6 and 9 months follow‐up. Semi‐structured interviews and questionnaires for Experienced Communication in Dementia, quality of life, psychological well‐being and caregiver burden were conducted. Process evaluation was performed by interviewing participants, drop‐outs, SLTs and other stakeholders. Outcomes & Results: A total of 32 dyads completed the intervention. Repeated measures analyses revealed no significant changes over time. In the interviews, participants reported a positive impact on their feelings, increased communication skills and better coping with the diagnosis. Participants would recommend the intervention to others. Facilitators were timely delivery, personalized content and adequate reimbursement. Barriers were unfamiliarity with Com‐mens among referrers, an overburdened caregiver or disrupted family relationships. Conclusions & Implications: This newly developed logopaedic intervention is feasible and has a perceived positive impact on both people with dementia and their caregivers, which is confirmed by a stable pattern over a period of 1 year. Future comparative studies are needed to test the effectiveness of personalized interventions in this patient population. What this paper adds: What is already known on the subject?: SLTs are experts in the field of communication, but even though communication problems are common between people with dementia and their caregivers, there is a lack of logopaedic guidelines and materials for the direct treatment for this population. Interventions that are available either focus on (professional) caregivers only or aim to enhance cognitive functioning and do not target on joined communication. What this paper adds to the existing knowledge?: A newly developed intervention called Com‐mens can be provided by trained SLTs and takes an average of six 1‐h sessions. The intervention is perceived to be valuable and feasible for people with dementia and their caregivers, by the participants themselves, as well as by healthcare professionals and other stakeholders. What are the potential or actual clinical implications of this work?: Dissemination of this intervention will give SLTs skills, tools and materials to provide meaningful care to home‐dwelling persons with dementia and their caregivers. Also, persons with dementia and their caregivers will receive education and materials that can help them increase their understanding of communication problems, enhance their communication skills and better cope with the communication problems that result from dementia. We consider the Com‐mens intervention to be a valuable addition to the field of speech language therapy and dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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248. Cross‐cultural adaptation and validation of the Nine Item ARFID Screen (NIAS) in Mexican youths.
- Author
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Medina‐Tepal, Karla Areli, Vazquez‐Arevalo, Rosalia, Trujillo‐ChiVacuán, Eva María, Zickgraf, Hana F., and Mancilla‐Díaz, Juan Manuel
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RESEARCH methodology evaluation ,RESEARCH methodology - Abstract
Avoidant/Restrictive Food Intake Disorder (ARFID) is defined by limited volume or variety of food intake motivated by the sensory properties of food, fear of aversive consequences, or lack of interest in food or eating associated with medical, nutritional, and psychosocial impairment. Currently, two of the most widely validated measures are The Eating Disturbances in Youth‐Questionnaire (EDY‐Q) and the Nine Item ARFID Screen (NIAS). The latter has proven valid and reliable for assessing this disorder. Objective: To validate a culturally sensitive adaptation of the NIAS instrument and evaluate its psychometric properties in Mexican youths. Method: The sample consisted of 800 participants aged 12—30 (M = 18.56, SD = 3.52) from Mexico City and Hidalgo public educational institutions. Results: The S‐NIAS obtained a Cronbach's alpha of 0.84, adequate construct validity adjustment rates: CMIN = 1.88; GFI = 0.97; AGFI = 0.94; CFI = 0.98; RMR = 0.050; and RMSEA = 0.047. Measurement invariance by gender, age, and survey administration which show that construct is understood in the same way across both groups and despite the change from paper‐and‐pencil to online survey administration. Conclusion: The psychometric properties of the Spanish Nine Item ARFID Screen (S‐NIAS) indicate that it is a valid and reliable instrument for evaluating symptoms associated with ARFID in this sample of youths. Public Significance: Although there are advances in studying ARFID, their epidemiological data comes mainly from a few countries. Furthermore, these data are scarcer due to the lack of validated screening and assessment instruments available in a variety of world languages; having instruments for the evaluation of ARFID symptoms is essential because it could function as an auxiliary means for the detection and prevention of people at risk. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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249. Stories for Change: The impact of Public Narrative on the co‐production process.
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Moniz, Sophie, Karia, Amelia, Khalid, Ahmad Firas, and Vindrola‐Padros, Cecilia
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MATERNAL health services ,HEALTH services accessibility ,EVALUATION of human services programs ,HUMAN research subjects ,ATTITUDE (Psychology) ,CHANGE ,RESEARCH methodology ,EVALUATION research ,INTERVIEWING ,NATIONAL health services ,INFORMED consent (Medical law) ,EXPERIENCE ,MEDICAL care use ,INTERPROFESSIONAL relations ,QUALITY assurance ,RESEARCH funding ,JUDGMENT sampling ,THEMATIC analysis ,CHANGE theory ,PUBLIC opinion - Abstract
Introduction: Involving service users in health service design and delivery is considered important to improve the quality of healthcare because it ensures that the delivery of healthcare is adapted to the needs of the users. Co‐production is a process used to involve service users, but multiple papers have highlighted the need for the mechanisms and values guiding co‐production to be more clearly stated. The aim of this paper was to evaluate the mechanisms and values that guided the co‐production approach of the Stories for Change project, which used Public Narrative as part of the co‐design process to create change in National Health Service maternity services. Methods: This study was conducted using a rapid feedback evaluation approach. Semistructured interviews (n = 16) were the main source of data, six of which were maternity service users, with observations (5 h) and documentary analysis also carried out in parallel. RREAL sheets were used for data analysis to organize data based on key topics of interest. Results: This study identified three broad mechanisms and values underpinning the co‐production approach: creating an open and safe space to share ideas, learning how to tell stories using Public Narrative and having service providers who play a key role in strengthening the health system listen to stories compelling them to action. This study identified the main areas for improvement of the Stories for Change project related to recruitment, the inclusion of participants, the co‐design process, the Skills Session and the Learning Event. Conclusion: Our study provided a deeper understanding of the co‐production approach that addresses the need to uncover the mechanism and values underlying co‐production and co‐design approaches. This study expands on the literature pertaining to the influence of storytelling in creating meaningful change in health care. We propose a co‐design methodology that uses Public Narrative as a model for service user engagement to help inform future healthcare development processes. Patient or Public Contribution: The experiences and perceptions of maternity service users and health professionals informed this evaluation. The project organizers were involved in the manuscript preparation stage by providing feedback, and service users wrote a commentary on the project from the lived experience perspective. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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250. P‐2.2: Research on a Method for Optimizing Flicker of AMOLED Display Screen.
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Yongbin, Yang, Zheng, Wang, Lijun, He, Yong, Li, Yong, Wu, Xiaoyu, Gao, Xiujian, Zhu, and Junfeng, Li
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LINE drivers (Integrated circuits) ,LIGHT emitting diodes ,RESEARCH methodology ,STRAY currents ,PROBLEM solving - Abstract
In this paper, Display Driver Integrated Circuit (DDIC) is used as one adjustment platform. By adjusting output waveform of timing signal, we make each black inserting cycle in each frame of current through LIGHT‐emitting diode is consistent. Furthermore, this method can ensure the consistency of panel brightness, which also can reduce flicker phenomenon. Besides, through data segmentation and adaptive proportion fine‐tuning, the whole picture quality could be great improved. We think this method has helpful value to solve flicker problem, also has broad application prospect. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
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