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Cyndya Shibao, MD, Associate Professor

The Royal Norwegian Ministry of Health

Institute of Hematology and Transfusion Medicine, Warsaw and Krzysztof Jaworski, Principal Investigator

Robert Desnick, Dean for Genetics and Genomic Medicine Emeritus, Professor and Chair Emeritus

Manisha C Balwani, Professor

University of Oslo, Nord University, UiT The Arctic University of Norway, Norwegian University of Science and Technology, and The University of Texas Medical Branch, Galveston

Gilead Sciences, National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), and National Institutes of Health (NIH)

Recordati Rare Diseases and José Antonio Rojas Suarez, Principal Investigator

University of Texas, University of Alabama at Birmingham, Icahn School of Medicine at Mount Sinai, University of Utah, Carolinas Medical Center, National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), and Rare Diseases Clinical Research Network

Porphyria Rare Disease Clinical Research Consortium and Brendan McGuire, Principal Investigator

University of Texas, Wake Forest University Health Sciences, University of Miami, University of Washington, Icahn School of Medicine at Mount Sinai, University of Alabama at Birmingham, University of California, San Francisco, University of Utah, and National Institutes of Health (NIH)

Peter Tishler, physician

Porphyria Centre Sweden, University of Navarra, UniQure N.V., and Nationales Centrum für Tumorerkrankungen

Porphyria Centre Sweden, University of Navarra, and UniQure N.V.

Novartis Pharmaceuticals and Amit Pandya, Professor of Dermatology

Association pour l'Etude des Fonctions Digestives (AEFD) and COFFIN

University of Texas

University of Texas

University of Texas

Icahn School of Medicine at Mount Sinai

University of Texas

University of Texas

University of Texas

University of Texas

University of Texas