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Scholars have recently emphasized the importance of siblings in the lives of lesbian, gay, bisexual, transgender, and queer (LGBTQ) people. However, most of this literature assumed that these siblings are heterosexual and cisgender. This study considers how LGBTQ siblings may impact the experiences of LGBTQ youth, particularly as the youth navigates cisnormativity and heteronormativity within the family. We analyzed interviews with 26 LGBTQ youth who have LGBTQ siblings from the Family, Housing, and Me (FHAM) project. We find that LGBTQ siblings offer positive social support to LGBTQ youth, particularly for transgender and nonbinary youth who have transgender or nonbinary siblings. For most of the youth, having mutual disclosure of their gender/sexual identity with the siblings strengthened their relationship and built sibling solidarity. LGBTQ siblings were a consistent source of LGBTQ identity support and often shared the burden of confronting cisnormativity in family life. This work has implications for understanding the social support available for LGBTQ youth. [ABSTRACT FROM AUTHOR]

Objective: There were two objectives of this current study. (1) To understand the impacts of hearing loss for late-deafened adults and the experiences of support received both from hearing healthcare providers and peers. (2) To understand the types of support needed during and after a cochlear implant. Design: The study used mixed methods. A survey was posted to three cochlear implant social media groups and participants could self-select to participate in a semi-structured interview by leaving their email address. Study sample: Forty-four late-deafened adults who had also received at least one cochlear implant answered the survey and 16 people were interviewed. Results: A key finding was that most late-deafened adults did not have access to support through the progression of deafness. They often felt alone, making it difficult to maintain their sense of self while reconciling with the hearing changes forced on them. When participants had positive role models who had experienced hearing loss, or mentors who had undergone cochlear implantation, it assisted them in navigating their changing hearing status. Thus, improved connection to peers sustained self-esteem and improved coping strategies. Conclusions: The findings suggest hearing healthcare providers need to introduce a mentoring and support structure for connected care. [ABSTRACT FROM AUTHOR]

The present study aimed to explore the situation of people with intellectual disabilities and their families during the first three months of the Russian invasion in Ukraine. Utilising a snowball sampling procedure, five participants were recruited to participate in this descriptive qualitative study. Thematic analysis was used to analyse the interviews. Five overarching themes emerged from the data: 1) The physical and mental well-being of people with intellectual disabilities was threatened due to a lack of fulfilment of basic needs; 2) People with intellectual disabilities experienced difficulties in finding safety within air-raid shelters; 3) People with intellectual disabilities and their families could only flee the country with help and support; 4) Creative solutions were developed to help keep in touch with and support people with intellectual disabilities and their families; and 5) Fear regarding the quality of life of and support for people with intellectual disabilities in the near future. Point of interest: This research is important as it raises attention for the vulnerable position of people with intellectual disabilities and their families in Ukraine during the war. People with intellectual disabilities experience difficulties when trying to access the safety of air-raid shelters. This study showed how people with intellectual disabilities and their families depend on help and support to be able to flee the country. During the war, people find creative ways to support people with intellectual disabilities and their families. People fear for the future quality of life and support for people with intellectual disabilities in Ukraine after the war. [ABSTRACT FROM AUTHOR]

High levels of stress have a detrimental impact on veterinary staff, negatively influencing their mental health and contributing to high rates of suicide. Veterinary social workers are tasked with providing interventions to reverse these consequences and support the professional's health and well-being. Twenty-one veterinary staff participated in a study to evaluate the impact of animal-assisted support. Over three months, participants attended one or two therapy dog visits per month, interacting with therapy dogs for a minimum of 10 minutes each session. Pre- and postmeasures of blood pressure, heart rate, and self-reported stress were taken at each session. A measure to assess compassion fatigue and satisfaction was administered at the end of each session, and at the conclusion of the study participants' thoughts about the visits from the therapy dogs were assessed. Significant reductions in systolic and diastolic blood pressure were found as well as significantly lower ratings of self-reported stress. Additionally, participants looked forward to these visits stating they made them happy, helped them feel better, and took their mind off their troubles. Considering the growing utilization of therapy dogs, this timely study adds to the body of evidence, highlighting the benefits of animal-assisted interventions with veterinarian staff. [ABSTRACT FROM AUTHOR]

Objectives: To evaluate a co-designed intervention using digital resources "Vietnam Cancer Caring Coping" (V-CCC) on the health literacy, depression, and quality of life of caregivers supporting a cancer patient in oncology hospitals in Vietnam. Methods: A pre-post quantitative evaluation with adult cancer caregivers across regional Oncology hospitals in Vietnam (Ho Chi Minh City, Da Nang, Can Tho, and Hue). Participants completed baseline and follow-up measures of health literacy (HLS-SF12) depression (PHQ-9) and Health-related Quality of Life (5Q-5D-5L). Participants accessed and reviewed V-CCC for a 2-week period. Results: Two hundred and thirty-four caregivers completed pre and post-tests. Most participants were female (n = 143, 61%), married (n = 165, 70%), aged 18–44 (n = 155, 66%), lived rurally (n = 157, 67%). All health literacy scores of participants in post-intervention were significantly higher than that in pre-intervention across all domain's healthcare, disease prevention, and health promotion as well as the total score (p < 0.001). A significant reduction in the proportion of caregivers reporting PHQ-9 moderately severe/severe depression post-intervention was demonstrated (10.2 vs. 6.1%, respectively (p ≤ 0.001). No significant differences were observed pre and post-intervention across four 5Q-5D-5L health dimensions: mobility, self-care, usual activities, and pain/discomfort. Regarding anxiety/depression as measured by 5Q-5D-5L the proportion of participants who reported having moderate, severe, and extreme problems in pre- and post-intervention was statistically significant (32 vs. 24%), respectively (p = 0.0028). Conclusion: Co-designed digital resources can reduce health literacy inequities and improve psychological outcomes for cancer caregivers. [ABSTRACT FROM AUTHOR]

Children are worried about climate change. Educational settings provide an opportunity to help children cope with their worries, but teachers do not always feel comfortable doing so. One reason for hesitancy may be their own negative emotions. This paper describes findings from a survey of climate-aware teachers, looking at their perceptions and emotions about climate change, as well as their experiences in teaching climate-related topics. Teachers had both positive and negative responses to climate change; motivation and compassion along with frustration and sadness were the four most common emotional responses. They also generally felt supported in their teaching. Both positive and negative emotions inspired teachers to talk with their students about climate change, but feeling climate anxiety was associated with hesitancy. There was evidence that increased understanding of climate change was associated with lower climate anxiety. Teachers reported that they would value more support for teaching climate change. [ABSTRACT FROM AUTHOR]

The innovation of high‐performance, stable electrocatalysts for clean energy systems faces significant challenges. Metal‐organic frameworks (MOFs), with their porous nature, flexible structures, and homogeneous active site dispersion, have gained interest as unique precursors for carbon‐based catalysts. MOFs' properties significantly enhance catalytic performance in fuel cells. This review highlights recent advancements in MOF design for oxygen electrocatalysis in fuel cells, while also discussing perspectives for future material innovations to improve catalytic activity in this emerging field. [ABSTRACT FROM AUTHOR]

A profound developmental experience is the emergence of adolescent romantic relationships and first feelings of love. However, the daily nature of feeling loved in adolescents' everyday lives is poorly understood. We investigated how daily stress severity was associated with adolescents' levels of feeling loved and whether romantic partner support moderated these associations. Furthermore, we investigated this for non‐interpersonal and interpersonal stressors. N = 97 mixed‐gender adolescent romantic couples (age M = 16.38, SD = 1.02) from an ethnically diverse sample (42.2% Hispanic/Latino/a/x, 44.7% White) participated in dyadic diary assessments twice a week for 12 consecutive weeks. Both partners independently completed open‐ended questions about a daily stressor, indicating stress severity, perceived partner support, and feeling loved. Daily stressors were coded for non‐interpersonal and various types of interpersonal stressors. Results from the dyadic multilevel model showed that days with lower than average support from a romantic partner amplify the adverse effects of stress severity on feeling loved, especially when the partner is involved in the stressor. We discuss the spillover of stress in romantic relationships and the stress‐buffering functions of adolescent romantic partner support. Adolescent romantic partners are potentially essential regulators of stress, increasing adolescents' feelings of love. Research Highlights: Romantic love is central in adolescents' lives; we showed that adolescents generally feel loved by romantic partners.Feeling loved fluctuates daily as adolescents feel less loved on stressful days.However, when adolescents perceive their partner as supportive, there is no association between stress and feeling loved. Partner support is protective for feeling loved.The current study provides essential insights into when adolescents and why adolescents feel loved. [ABSTRACT FROM AUTHOR]

Background: Pain is one of the most frequently reported symptoms and often one of the first subjective symptoms in patients with systemic lupus erythematosus (SLE). A previous study indicated that most patients with SLE reported low levels of SLE-related pain. However, a subgroup of patients reported high levels of pain ≥40 mm (0-100 mm) and had a substantial symptom burden in terms of fatigue, anxiety, depression, and reduced health-related quality of life. Thus, there is a need to elucidate the implications of high levels of pain in everyday life. Aim: This study explored the patient's experiences and implications of SLE-related pain in daily life and the support requested from healthcare providers. Method: A total of 20 patients, previously reported high levels of SLE-related pain intensity measuring ≥40 mm (0–100 mm) in a research context at one or two occasions participated in individual semi-structured interviews, which were transcribed and analysed with content analysis. Results: The interviews revealed four main categories and 13 generic categories. SLE-associated pain was described by its multifaceted nature, exhibiting longstanding, unpredictable, migrating, and various physical sensations. The pain entailed multidimensional consequences, restricting everyday life by interfering with roles and relationships and causing various emotions, including existential thoughts. The informants used comprehensive strategies to deal with the pain, including their inner resources, support from family and significant others, and pharmaceuticals and relieving treatments. They expressed the need for security and acknowledgement, which involved individualized support and accessibility of healthcare. Conclusion: This study provides comprehensive insights into the nature and multifaceted impact of SLE-related pain in different dimensions of the informants' daily lives. Except for medications the informants used several strategies, including their inner resources and support from family and others, to manage the pain. Support requested from healthcare providers by the informants included understanding, compassion, individualized care and accessibility. [ABSTRACT FROM AUTHOR]

Social media (SoMe) is now a core part of modern-day life with increased use among both patients and urologists. The interplay of SoMe between these two parties is complex. From a patient perspective, SoMe platforms can serve as educational tools as well as communication portals to support networks and patient communities. However, studies report the educational value of content online is often poor and may contain misinformation. For urologists, SoMe can lead to research collaborations, networking and educational content but areas of concern include the potential negative impact SoMe can have on mental health and sharing of patient images without appropriate consent. This review serves to provide an overview of the interaction between SoMe and urology practice and provide practical guidance to navigating it. [ABSTRACT FROM AUTHOR]

Aim: To determine patients', nurses' and researchers' opinions on the appropriateness and completeness of the proposed conceptualization of nurses' support of hospitalised patients' self‐management. Design: A modified Delphi study. Methods: We conducted a two‐round Delphi survey. The panel group consisted of patients, nurses and researchers. The conceptualization of nurses' support of hospitalised patients' self‐management presented in the first Delphi round was based on previous research, including a scoping review of the literature. Data was analysed between both rounds and after the second round. Results are reported in accordance with the guidance on Conducting and Reporting Delphi Studies (CREDES). Results: In the first round all activities of the proposed conceptualization were considered appropriate to support the patients' self‐management. Panel members' comments led to the textual adjustment of 19 activities, the development of 15 new activities, and three general questions related to self‐management support during hospitalisation. In the second round the modified and the newly added activities were also deemed appropriate. The clarification statements raised in the first Delphi round were accepted, although questions remained about the wording of the activities and about what is and what is not self‐management support. Conclusion: After textual adjustments and the addition of some activities, the proposed conceptualization of nurses' support in patients' self‐management while hospitalised have been considered appropriate and complete. Nevertheless, questions about the scope of this concept still remains. The results provide a starting point for further discussion and the development of self‐management programs aimed at the hospitalised patient. Implication for the profession and/or patient care: The results can be considered as a starting point for practice to discuss the concept of nurses' support for hospitalised patients' self‐management and develop, implement and research self‐management programs specific for their patient population. Reporting Method: Results are reported in accordance with the guidance on Conducting and Reporting Delphi Studies (CREDES). Patient or Public Contribution: Patients were involved as expert panellist in this Delphi study. Impact statementWhat problem did the study address?Self‐management support during hospitalisation is understudied, which undermines the development of evidence‐based interventions.What were the main findings?A panel, consisting of patients, nurses and researchers, agreed on the appropriateness of a conceptualization of nurses' support of inpatients' self‐management, and identified some points for discussion, mainly related to the boundaries of the concept self‐management.Where and on whom will the research have an impact?This study is crucial for generating conceptual understanding of how nurses support patients' self‐management during hospitalisation. This is necessary for policy, clinical practice, education, and research on this topic. [ABSTRACT FROM AUTHOR]

[Display omitted] The electrocatalytic oxygen reduction reaction (ORR) is crucial for energy conversion systems such as fuel cells and metal-air batteries. Boron carbon nitrogen (BCN) is a novel functional material with a high specific surface area, excellent corrosion resistance, and outstanding electrochemical stability. These properties make BCN an effective ORR catalyst and a promising support for metal catalysts. This study leveraged the strong interaction between BCN and metals to anchor platinum nanoparticles (Pt NPs) onto the BCN surface (Pt/BCN), significantly enhancing the durability of traditional Pt/C catalysts in ORR. The half-wave potential of Pt/BCN is 0.927 V, higher than Pt/XC-72R (0.857 V) and commercial Pt/C (0.879 V). Notably, after 10,000 durability test cycles, the mass activity (MA) of Pt/XC-72R and commercial Pt/C decreased by 67 % and 75 %, respectively. Even after 50,000 cycles, Pt/BCN exhibited only a 54 % decrease in MA. Experimental data and density functional theory calculations confirmed increased electron transfer from Pt to the BCN support, indicating a strong electronic metal-support interaction (EMSI) between Pt and BCN. This strong EMSI effectively anchored the Pt NPs, preventing migration and aggregation during the ORR process. Consequently, our research introduces a novel electrocatalyst support material with significant potential for ORR and broader applications. [ABSTRACT FROM AUTHOR]

When E is an R-module over a commutative unital ring R, the Zariski closure of its support is of the form V (O (E)) where O (E) is a unique radical ideal. We give an explicit form of O (E) and study its behavior under various operations of algebra. Applications are given, in particular for ring extensions of commutative unital rings whose supports are closed. We provide some applications to crucial and critical ideals of ring extensions. [ABSTRACT FROM AUTHOR]

The purpose of this study was to explore how the socio-cultural context impacts athletes living with persistent post-concussion syndrome (PPCS). Following interviews with 19 retired athletes with PPCS, a reflexive, thematic analysis was used to identify two main themes (Feeling Abandoned by Society, Support Encouraging Resilience), with each main theme having three sub-themes. Specifically, when feeling abandoned by society, the athlete with PPCS feels hopeless as socio-cultural stakeholders lack awareness, which can result in limited support and isolation. In contrast, when they feel supported, this leads to building resilience, with athletes with PPCS engaging in self-improvement and overcoming challenges. Awareness and advocacy further empower the athlete with PPCS and can result in more effective social, medical, and professional support. Therefore, our findings suggest that more support, including an early diagnosis, should be extended to athletes with PPCS, which could enable them to integrate their new identity into society more effectively. Moreover, our findings provide a call to action to promote awareness of PPCS and increased support like that currently extended to more visible conditions. [ABSTRACT FROM AUTHOR]

Background: Community-based eating disorder (ED) treatment frequently includes manualized group-based psychoeducation facilitated by a mental health clinician. Body Brave, a non-profit ED organization, developed a novel, participant-guided, community-based virtual healthcare provider (HCP)-facilitated support program called On the Journey (OtJ). The program was designed for people with longstanding EDs who had previously participated in group or individual ED programs but require continued support in their recovery. The purpose of the study was to describe the development and components of OtJ and to understand participant perceptions of the program and its effect on their recovery. Methods: Using a formative and community-engaged research design, we conducted semi-structured interviews with three OtJ facilitators and focus groups with twelve OtJ clients. Transcripts were analyzed using Braun and Clarke's six-stage approach to reflexive thematic analysis. Results: Four main themes were generated from the data (1) "Designing and Evolving OtJ" (2) "Is OtJ a Treatment or Support Group?" (3) "Fostering a Safe Environment throughout Program Delivery" and (4) "The Power of Lived Experience." Clients noted several strengths of the OtJ program: fostering a sense of community, valuing client autonomy, and providing accessible ED support. Conclusions: Key considerations for other organizations looking to offer programming similar to OtJ include having skilled and clinically trained facilitators and prescreening discussion topics to ensure that conversations are productive towards recovery. OtJ supports people with longstanding EDs, and other organizations could consider adopting a similar model of care. This study contributes to the growing body of including lived ED experience in research. Plain language summary: On the Journey (OtJ) is a community-based eating disorder (ED) support program that is facilitated by healthcare providers. It was created by Body Brave, a non-profit organization from Hamilton, Ontario, Canada. This program is for people who have had an ED for at least two years and want low barrier support from a qualified clinician and others facing similar struggles as they continue to recover. This study describes the creation and implementation of OtJ and describes themes from interviews of clinicians and focus groups with clients of the program. Four main themes were identified (1) "Designing and Evolving OtJ" (2) "Is OtJ a Treatment or Support Group?" (3) "Fostering a Safe Environment throughout Program Delivery" and (4) "The Power of Lived Experience." Other ED organizations could consider implementing a similar program for their clients with longstanding EDs looking who are seeking accessible support. [ABSTRACT FROM AUTHOR]

This qualitative study explores the experiences of LGBTI+ youth in Spain during the COVID‐19 pandemic, focusing on family, social, educational and healthcare support mechanisms. The findings, based on five focus groups, highlight the pivotal role of family support during the pandemic, increased isolation and a reliance on online connections, the challenge of transitioning to online school platforms and insufficient understanding amongst healthcare professionals. The study examines adult and institutional support structures in relation to the complexities of LGBTI+ youth experiences beyond heteronormative and cisgender paradigms. It advocates applying a child‐centric approach to policies and services tailored to LGBTI+ youth needs. [ABSTRACT FROM AUTHOR]

This study contributes to understanding the long-term development of burnout dimensions across students in general upper secondary education and of support, engagement, and gender as factors that contribute to this development. The study followed Finnish academic track students (N = 210) over three years to examine the development of three burnout dimensions (exhaustion, cynicism, inadequacy) and the predictors of these dimensions using latent growth modeling. The findings revealed that cynicism and inadequacy increased, while exhaustion remained stable; moreover, the three dimensions were strongly interrelated. Perceived support negatively predicted initial burnout levels, affective engagement negatively affected exhaustion and inadequacy, and cognitive engagement negatively affected cynicism. Further, girls reported higher exhaustion and inadequacy than boys. The findings yielded new insight on the importance of perceived support as an antecedent of burnout – sufficient and continuous support can help to reduce and prevent burnout among these students. [ABSTRACT FROM AUTHOR]

In January 2022, several vaccination policies were debated to address the Omicron outbreak in Belgium. Considering variability in risk perception and vaccine uptake, this study aimed to understand differences in support and expectations for four scenarios, ranging from relaxed to restrictive vaccination policies, to inform policymakers. Using an online survey, 12,670 participants (46% female; Mage = 45.9, SD = 13.38) reported their risk perception, number of vaccination doses (0/1, 2, 3 doses) as well as their support and several anticipated psychological outcomes for each scenario. Mixed model ANCOVA showed a pattern of preferential support for the relaxed scenario and more positive anticipated outcomes (general well‐being and government appraisals) compared to the restrictive policies, that were treated equivalently. An exception to this pattern was found when people were vaccinated with three doses and perceived high risk. Taken separately, risk perception and vaccination status were not sufficient to drive positive attitudes toward restrictive policies; only their interaction had an effect. Limitations include the self‐selected sample and the vignette methodology. The conjunct role of risk perception and vaccination status should be considered when discussing the introduction of restrictive vaccination policies. These findings inform vaccination strategies management during pandemics. [ABSTRACT FROM AUTHOR]

Background: Breast, cervical, and ovarian cancers are among the top ten global cancers, affecting women, with age-standardized rates per 100,000 being 47.8 for breast, 13.3 for cervical, and 6.6 for ovarian cancer. The journey from cancer symptoms, through diagnosis and treatment, to survivorship, presents numerous challenges. These challenges encompass physical, psychological, and social aspects, significantly impacting patients' quality of life. It is crucial for research to explore not only the challenges faced by patients but also the strategies they employ to cope with these obstacles. Methods: This study employed a cross-sectional qualitative approach. Twenty respondents, aged between 15 and 45 years and had been diagnosed with a reproductive cancer (breast, ovarian, or cervical), and were either undergoing treatment or had completed treatment within one year of the study period were purposively selected. Respondents were interviewed using a semi-structured interview guide. A thematic analysis was conducted on twenty in-depth interviews (IDIs) to understand the challenges and support systems for cancer patients. Results: The study identified two principal themes: the challenges faced by patients and the available support systems. The findings are based on patient narratives regarding the obstacles encountered during diagnosis, treatment, and follow-up, along with the mitigation strategies employed. Patients reported a range of challenges, categorized into financial and non-financial. Prominent among the non-financial challenges were psychological distress, body image issues, reduced sexual drive, and overall health deterioration. Support was primarily found through personal relationships and religious or spiritual beliefs. Conclusion: The research highlights the extensive psychological and social effects of cancer and it's treatment. The study revealed the intertwined nature of financial difficulties and non-financial challenges, emphasizing the importance of social support, including religious, family, healthcare, and peer support. The findings suggest that a comprehensive, multidisciplinary management plan which encompasses both medical and supportive care is required to enhance patient well-being. [ABSTRACT FROM AUTHOR]

Many people living with a rare disease (RD) face challenges accessing timely diagnosis and disease-specific specialist care. Early health-care challenges for people living with Epidermolysis Bullosa (EB), a rare genetic disease affecting 1:20,000 individuals, can begin in the antenatal period. People living with EB in Australia have access to a government funded disease specific antenatal education and support program through the National Epidermolysis Bullosa Dressing scheme (NEBDS). This article discusses two births involving families living with EB Simplex (EBS) in regional Australia. The education and support structures implemented by the NEBDS and clinical teams are discussed in line with the Australian National Strategic Action Plan for rare diseases, and includes access to genetic diagnosis, EB education, and complex care coordination. [ABSTRACT FROM AUTHOR]

ABSTRACT Aim Design Method Results Conclusion Implications for the Profession and Patient Care Impact Patient or Public Contribution Describe the stressors that long‐term care facility (LTCF) residents and their family members were exposed to during the COVID‐19 pandemic, the resources they mobilised to cope with them, and the strategies used by professionals to support them.A descriptive qualitative design study.Between March 2021 and February 2022, we carried out semi‐structured interviews with 8 LTCF residents, 11 family members, and 6 focus groups made up of healthcare and support staff from 8 LTCFs.Three themes emerged: (1) residents and family members: separated and suffering, (2) residents and family members: reinventing themselves, and (3) staff: attempts to maintain residents' well‐being.LTCF Residents' and their family members' exposure to the various stressors linked to the COVID‐19 pandemic generated suffering. Healthcare and support staff implemented strategies to support them, notably to maintain links between them. Some deep reflection must occur on the concepts of LTCF residents' autonomy and self‐determination when implementing protective measures in future pandemic situations.This study has provided new insights into the nature of the stressors faced by LTCF residents and their families, and the measures implemented by professionals to support them. The role of the families of LTCF residents needs to be better recognised. Our results indicate the importance of involving nurses in discussions on patient autonomy and self‐determination when implementing protective measures (in a pandemic situation).Exploring the nature of the stressors experienced by LTCF residents and their families enables professionals to tailor strategies to support them. Maintaining residents' self‐determination is essential when implementing protective measures. Families involved with residents must be recognised and included in the assessment of stressors and the personalisation and implementation of strategies to support LTCF residents.No Patient or Public Contribution. [ABSTRACT FROM AUTHOR]

Abstract\nPoints of interestPrevious research demonstrates that living in residential aged care (RAC) has negative effects on the wellbeing of younger people (<65 years). This research reports on the barriers and enablers to avoiding or leaving RAC for younger people in Australia who do not have access to individualised disability funding packages. Interviews and focus groups were conducted with 18 staff who worked in an Australia-wide Program supporting younger people, and 24 stakeholders. Participants reported barriers to avoiding or leaving RAC that included a lack of funding, lack of appropriate housing, lack of transitional and rehabilitation services, and the preferences of family members. Enablers included having help to navigate alternative options, and effective collaboration across services. Participants reported that some younger people wanted to remain in RAC because they had no other option, were hesitant of change, or felt safe there. Funding and housing are required, as well as long-term, complex case management.Barriers for younger people who do not have access to individualised funding packages leaving or avoiding residential aged care include lack of funding for services (including palliative care), as well as lack of housing and assistance to help with the move to community living. The preferences of family members can also present a barrier.Enablers to leaving or avoiding residential aged care include having help to navigate alternative options, and effective collaboration across services.Without change to policy and practice in Australia, younger people who do not have access to individualised funding packages will continue to face a poorly funded and complicated service system, leaving them with little hope of living outside of residential aged care.Funding and housing are required, as well as long-term, complex case management to support younger people to avoid or move out of residential aged care.Barriers for younger people who do not have access to individualised funding packages leaving or avoiding residential aged care include lack of funding for services (including palliative care), as well as lack of housing and assistance to help with the move to community living. The preferences of family members can also present a barrier.Enablers to leaving or avoiding residential aged care include having help to navigate alternative options, and effective collaboration across services.Without change to policy and practice in Australia, younger people who do not have access to individualised funding packages will continue to face a poorly funded and complicated service system, leaving them with little hope of living outside of residential aged care.Funding and housing are required, as well as long-term, complex case management to support younger people to avoid or move out of residential aged care. [ABSTRACT FROM AUTHOR]

Objectives Design Methods Results Conclusions To explore adult stakeholders' perspectives on what supports or undermines the mental health of sexual and gender minoritised adolescents (SGMA) in everyday life in order to better understand how to foster supportive psychosocial environments for SGMA.Descriptive qualitative study design, using framework analysis.Semi‐structured interviews were conducted remotely with 16 UK‐based adult stakeholders which included parents of SGMA, health and social care professionals, community‐based professionals, and professionals who commission services related to adolescent health and well‐being.Nine themes were identified that represented barriers and enablers of fostering psychosocial environments that are supportive of SGMA mental health. Example barrier themes include SGMA ‘facing chronic and acute safety threats and stress’, ‘psychological responses to social connection losses and navigating alienation’, ‘digital exposure and online risk and vulnerability’ and ‘conflicting messages, resulting divisions and adult distancing’. Example enablers include ‘exploring, owning, and changing (personal) identities’, ‘advocating alongside adolescents whilst containing oneself as the adult in the situation’ and ‘personally fostering adolescents’ psychological safety and inclusion’.Adult stakeholders report that SGMA are often exposed to environments hostile to key aspects of their identity which then by extension undermines their mental health. These experiences can threaten their sense of safety and evolving identity. Practitioners in particular should be aware of the stressors relating to SGMA identity and minoritisation experiences in order to develop the psychological safety and sense of inclusion needed for SGMA to trust in the relationship and the support offered. [ABSTRACT FROM AUTHOR]

Qualitative social scientists working in medical faculties have to meet multiple expectations. On the one hand, they are expected to comply with the philosophical and theoretical expectations of the social sciences. On the other hand, they may also be expected to produce publications which align with biomedical definitions and framings of quality. As interdisciplinary scholars, they must handle (at least) two sets of journal editors, peer reviewers, grant-awarding panels, and conference audiences. In this paper, we extend the current knowledge base on the 'dual expectations' challenge by drawing on Orlikowski and Yates' theoretical concept of communicative genres. A 'genre' in this context is a format of communication (e.g. letter, email, academic paper, and conference presentation) aimed at a particular audience, having a particular material form and socio-linguistic style, and governed by both formal requirements and unwritten social rules. Becoming a member of any community of practice involves becoming familiar with its accepted communicative genres and adept in using them. Academic writing, for example, is a craft that is learned through participation in the social process of communicating one's ideas to one's peers in journal articles and other formats. In this reflective paper, we show how the concept of a communicative genre can sensitise us to the conflicting and often dissonant expectations and rule systems governing different academic fields. We use this key concept to suggest ways in which the faculty can support early-career researchers to progress in careers which straddle qualitative social science and medical science. [ABSTRACT FROM AUTHOR]

This study aims to develop a new theoretical framework from the perspective of the Technology Acceptance Model (TAM), incorporating flow theory, to explore the factors influencing behavioral intentions to participate in metaverse tourism. Using data from 518 respondents with metaverse experience and participation in metaverse tourism, the study employed R Studio and Structural Equation Modeling (SEM) to test the relationships between variables in the model. The results indicate that metaverse flow has a significant positive impact on users' perceived usefulness and perceived ease of use, with flow demonstrating strong explanatory power as a precursor factor. Perceived usefulness and perceived ease of use are predictors of users' attitudes to using metaverse technology. A positive attitude towards the metaverse can enhance users' support for metaverse tourism and their behavioral intention to participate in it, while support also positively influences behavioral intention. Support for metaverse tourism acts as a clear mediator between attitudes and behavioral intention. The newly developed theoretical framework in this study provides a fresh perspective for metaverse tourism research and helps enrich empirical analysis in this field. By deeply analyzing tourists' behavioral intentions, the study provides valuable insights for stakeholders to develop targeted marketing strategies and services, thus promoting the future development of metaverse tourism. [ABSTRACT FROM AUTHOR]

Over the past decade, there has been an increase in government initiatives to widen Higher Education (HE) participation in the UK. Consequently, various Further Education Colleges (FECs) provide HE in order to meet that drive. In 2021, 162 FECs provided HE undergraduate degrees , yet little research has been focused on HE lecturers and their experiences of working within these settings. As the literature reveals, staffing is a consistently problematic aspect of FE and impinges on the experiences and therefore satisfaction of lecturers in those settings. Based on preliminary questionnaires, semi-structured interviews were initiated with 10 College Based Higher Education (CBHE) lecturers in one General FEC to explore their professional perspectives and to shed light on the experiences of those in CBHE environments. The most significant finding revealed that, despite the passion lecturers feel for their job and the FE sector in which they work, there is significant dissatisfaction among CBHE lecturers which predominantly stems from the demands of juggling both HE and FE professional responsibilities. Similarly, there is a feeling that there is insufficient support provided by leaders and managers in these settings and, consequently, it is commonplace for lecturers to feel undervalued and overworked. [ABSTRACT FROM AUTHOR]

The electron donors (ED) in Ziegler–Natta (Z-N) catalysis are classified as internal electron donors (IED) and external electron donors (EED), and both IED and EED are indispensable components for enhancing the catalytic reactivity and regulating the stereoregularity of polyolefinic materials in a typical industrial Z-N catalytic process. With the intensive research on ED, the Z-N catalyst performances have experienced successive progress in the last few decades. Polypropylenes (PP) as a commodity polyolefin material, especially the isotactic PP (iPP), are produced in multi-billion pounds per annum by utilization of the various IED- and EED-assisted Z-N catalysts systems. In the course of developing Z-N catalysts, the ED constitutes a key component of the content and represents a significant area of future research. In this review, we introduced a concise overview of the functions of IEDs in the generations of Z-N catalyst systems and the widely used IED types (A total of 11 different types of IEDs are encompassed within this study) that have been developed so far. In addition, we focused on the coordination modes of different IEDs in the MgCl2-supported Z-N catalyst system and analyzed the effects of different types of IEDs on the PP isotacticity, regioselectivity, hydrogen sensitivity, and briefly introduced the application of environmentally friendly rosinate and salicylate IEDs. [ABSTRACT FROM AUTHOR]

L'emprise est la réduction de l'autre au statut d'objet, l'anéantissement de sa subjectivité par le déni de ses besoins et désirs, au profit des siens propres. Elle passe par l'appropriation de l'autre, sa dépossession et sa domination. Exercée au sein du couple, elle se traduit par d'importantes violences psychologiques, parfois supplées de violences physiques et sexuelles qui participent à rendre la victime dépendante et dépourvue d'estime d'elle-même. L'emprise représente donc un enjeu majeur dans la lutte contre les violences conjugales dont les professionnels de soin, de la justice et du social doivent se saisir. Notion complexe, elle s'explique par divers mécanismes criminologiques et victimologiques. Certaines caractéristiques du fonctionnement psychologique, certains troubles psychiques et traits de la personnalité constituent des facteurs de risque à exercer l'emprise ou à en être victime. La qualité de la relation aux figures d'attachement, l'image de soi, l'accès à la mentalisation, le rapport aux émotions sont autant de facteurs représentant à la fois l'étiologie et les axes de prise en soin des victimes et auteurs d'emprise. Ici, nous proposons des pistes claires et concrètes pour comprendre le profil des victimes et auteurs d'emprise afin d'adapter au plus juste notre positionnement et la prise en charge, l'objectif étant d'offrir à nos patients la perspective d'un mode de relation à l'autre sain, et la possibilité pour les victimes de sortir de ce cycle destructeur. Nous pouvons tous, soignants, travailleurs sociaux et professionnels de la justice, contribuer, en synergie et en collaboration, au processus de reconstruction des victimes et à la prévention de la récidive des auteurs. Psychological domination is the reduction of the other person to the status of an object, the annihilation of their subjectivity by denying their needs and desires in favor of the dominator's own. It involves appropriating, dispossessing and dominating the other person. When it occurs within a couple, it takes the form of significant psychological violence, sometimes supplemented by physical and sexual violence which creates a strong dependency and affects the victim's self-esteem. Psychological control is therefore a major issue in the fight against domestic violence which healthcare, legal and social professionals must address. This complex concept can be explained by various criminological and victimological mechanisms. Certain characteristics of psychological functioning, psychological disorders and personality traits constitute risk factors that enable exercising such control or becoming a victim. The quality of the relationship with attachment figures, self-image, access to mentalization, and the relationship with emotions are all factors representing both the etiology and avenues of psychological care for victims and perpetrators of control. In this article, we propose clear and concrete guidelines for understanding the profile of both victims and perpetrators of psychological domination so that we can adapt our perspectives and treatment as accurately as possible. Our goal is to offer our patients the prospect of a healthy relationship with others, and the possibility for victims to break free from this destructive cycle. All of us – caregivers, social workers, and legal professionals – can work in synergy and collaboration to help victims rebuild their lives and prevent perpetrators from repeating their offenses. [ABSTRACT FROM AUTHOR]

Background: Food allergy (FA) is associated with poor health‐related quality of life and high levels of psychological distress. Psychological support is extremely important but not always available. As part of the Global Access to Psychological Services for Food Allergy (GAPS) study, we aimed to assess psychological distress and service use among adults, caregivers and children with FA in a global survey. Methods: Participants (n = 1329 adults with FA; n = 1907 caregivers of children with FA) from >20 countries were recruited through patient organisations, social media advertisements and online survey panels to complete an online survey. Surveys were available in six languages. Results: A total of 67.7% of adults and 77.2% of caregivers reported direct experience, and 51.6% of caregivers said their child had experienced FA‐related psychological distress. The most commonly reported issue was anxiety about having an allergic reaction. Less than 20% had been assessed for FA‐related psychological distress. There were significant differences across countries for levels of distress, screening for distress, seeing a mental health professional and being diagnosed with a FA‐related mental health disorder (all p <.001). The United Kingdom, Australia and Brazil had the highest number of participants reporting distress. The most commonly reported barrier to seeing a mental health professional was cost. Conclusions: FA‐related distress is common across countries, but with substantial country‐to‐country variability. Allergy providers are encouraged to routinely assess families for psychological distress and provide access to appropriate mental health resources. Development and implementation of evidence‐based, patient‐informed accessible, affordable FA interventions in multiple languages is urgently needed. [ABSTRACT FROM AUTHOR]

The relationship between race, disability and criminality is complex and poorly understood. Scant information, and lack of action, exists on how to best keep Indigenous people with disability out of the justice system, and support this cohort while in the system. This systematic scoping review collates grey and peer-reviewed literature in Australia, Aotearoa (New Zealand), the United States and Canada, to gain insight into the current practices in place for justice-involved Indigenous people with disability, and list promising principles which may inform future practice. We identified 1,301 sources, and 19 of these met the inclusion criteria. Across these sources, nine key principles emerged: need for Indigenous designed, led and owned approaches; appropriately identify and respond to disability/needs; appropriate court models; appropriate diversionary options; therapeutic, trauma-informed, strengths-based and agency-building responses; facilitate connection to family, community and support networks; break down communication barriers; protect human rights; and provide post-release support. Points of interest: Internationally, Indigenous people with disability are over-repre.sented in criminal justice systems. The reasons for this are complex and not well understood. Existing evidence suggests that long-lasting effects of colonisation; discrimination on the basis of race and disability; problems identifying and reporting disability; and lack of proper services contribute to this issue. Often, criminal justice systems do not recognise or support a person's disability until they reach crisis point. There is a critical need for culturally-appropriate and disability-appropriate interventions, such as diagnostic tools; training programs for police, correctional officers and other service providers; community court models; and more accessible communication. There is some evidence that Indigenous-led programs – involving country, culture, art, social connection and holistic healing – help prevent Indigenous people with disability from entering and re-entering justice systems. More research and evaluation is needed to determine how to better support Indigenous people with disability in contact with the justice system. [ABSTRACT FROM AUTHOR]

Introduction: Gender and sexual minority/minoritized groups are at a higher risk of substance misuse and related harm compared to the rest of the population. However, limited research has focused on understanding the extent of these issues and the support needs of all minoritized groups within the LGBTQ + population. Methods: This qualitative cross-sectional survey sought to explore LGBTQ + individuals' perspectives on substance use and treatment experiences. Researchers used a manual thematic analysis approach to thoroughly study the data, examining each part closely to uncover themes and patterns. Co-produced with stakeholders and developed with input from LGBTQ + individuals with lived experience, the survey included 38 participants across the UK. Results: Cannabis (83% n = 20), ecstasy (68% n = 15), and cocaine (67% n = 16) were commonly used substances, while some participants (19% n = 6) reported consuming high levels of alcohol. Many respondents highlighted the role of "stigma" and peer pressure within the LGBTQ + communities as a motivator for substance use. Participants expressed a preference for informal support due to fears of "discrimination" from formal treatment services. Conclusions: The study underscores the need for research inclusive of all LGBTQ + groups and highlights the importance of tailored interventions that address the diverse needs of LGBTQ + individuals. Further exploration of peer-led interventions is necessary to assess their effectiveness. The findings emphasize the necessity of person-centered treatment approaches that recognize the heterogeneity of service users. [ABSTRACT FROM AUTHOR]

Since the beginning of higher education, universities have remained largely closed off spaces for disabled students. This paper examines how, and why, it has largely been in the last fifty years that these students have slowly been able to enter universities as the sector has made incremental improvements to enable the entry of students from different disability backgrounds. The paper aims to assess the positive steps universities have taken towards more inclusive practices for disabled students, while also using data sourced from a survey of disabled students studying in the Global North to consider what actions might increase equitable practices in university classrooms. Disabled students highlight that for all of the advances and support they receive, so often it is the fundamental elements of classroom inclusion that are still being overlooked, and subsequently, are creating barriers in even the earliest steps into their university careers. [ABSTRACT FROM AUTHOR]

Adverse events have a profound impact on surgeons. This impact extends to physical and mental health, psychological wellbeing, and professional performance. Surgeons are ill prepared for these consequences of adverse events and are under-supported when they inevitably occur. Here we review the data on how adverse events affect surgeons. We explore the efforts made to date to both prepare surgeons before and support them after such events and we make recommendations regarding how this should and could be done better. [ABSTRACT FROM AUTHOR]

Introduction Methods Results Conclusions Professional Supervision (PS) is a common approach used to reduce the fallout from stress and burnout. It involves monthly face‐to‐face meetings between a supervisor and supervisee to address well‐being and professional goals. This pilot study examines 12 radiation therapists (RTs) perceptions of participating in PS.Conducted in the Christchurch Radiation Oncology Centre, this mixed‐methods pilot study introduced PS in March 2022. In August 2023, 12 RTs completed a QUALTRICS online questionnaire consisting of 33 questions, including the Supervisor Working Alliance Inventory (SWAI). The SWAI assessed the alliance of supervision from a supervisee's perspective and comprised of 19 questions on a 7‐point Likert scale and nine yes/no statements with optional comments. Five demographic questions were also included.All 12 RTs completed the questionnaire, with quantitative results indicating a positive alliance between supervisors and supervisees. RTs found PS to be a safe and comfortable space for reflective practice and support. Thematic analysis of qualitative data from additional comments revealed PS enabled RTs to reflect on career achievements, appreciate highlights of being an RT and consider future career paths within the profession.Radiation therapists responded positively to PS, suggesting its potential in managing workplace stressors, promoting career advancement and providing dedicated time for reflection, support and guidance. RTs endorsed the efficacy of PS in enhancing their practice and advocated for its widespread adoption among RTs. [ABSTRACT FROM AUTHOR]

AbstractPurposeMaterials and MethodsResultsConclusions\nIMPLICATIONS FOR REHABILITATIONThis study aimed to explore healthcare providers’ perceptions of support provision for people who have experienced stroke.A qualitative descriptive study was conducted. Snowball sampling was used to recruit Australian healthcare workers providing care to people with stroke. Semi-structured one-on-one interviews were audiotaped and transcribed. An inductive thematic analysis of all transcripts was undertaken by two authors.Fourteen participants who worked across the care continuum in three Australian states were interviewed. Responses fit into three overarching themes: (1) attitudes to supports; (2) availability and accessibility of supports; and (3) awareness of supports. These themes encompassed perceptions of the support options available for people with stroke and the factors affecting support provision decision making among healthcare providers.The healthcare providers in this study thought people with stroke would benefit from a greater range of available supports. Supports should take into account the diverse experiences and acute and long-term needs of people with stroke, as well as be accessible to people from all cultural, linguistic, and socioeconomic backgrounds. Healthcare providers and people who have experienced stroke may benefit from a roadmap for post-stroke support that clearly outlines where responsibility lies for support provision.Healthcare providers across the care continuum feel that current post-stroke supports and services do not adequately serve the diversity of experiences and needs of stroke survivors.Stroke survivors who do not attend rehabilitation, including those with “mild” stroke or who do not fit within limb-focused rehabilitation services, may be missing out on key post-stroke information and support.The development of a roadmap for post stroke support that identifies minimum support provisions and where responsibility lies for provision could benefit healthcare providers, stroke survivors and their carers.Healthcare providers across the care continuum feel that current post-stroke supports and services do not adequately serve the diversity of experiences and needs of stroke survivors.Stroke survivors who do not attend rehabilitation, including those with “mild” stroke or who do not fit within limb-focused rehabilitation services, may be missing out on key post-stroke information and support.The development of a roadmap for post stroke support that identifies minimum support provisions and where responsibility lies for provision could benefit healthcare providers, stroke survivors and their carers. [ABSTRACT FROM AUTHOR]

Adolescents are often reluctant to disclose experiences of sexual abuse in forensic interviews. In these situations, there is consensus that interviewers should respond supportively, yet they appear to have considerable difficulty doing so. In the current study, we sought to provide practical guidance on how interviewers can adopt a supportive approach when interviewees are reluctant. Twenty-one expert interviewers were asked how they engage and support adolescents who are reluctant to share information when sexual abuse is suspected. The findings indicate that the expert interviewers approach reluctance by leaning into and exploring the interviewee’s perspective, and tailor their response based on an awareness of the unique needs of the interviewee. Several key support strategies were identified to facilitate this approach. The findings of this study provide practical guidance for how interviewers can approach reluctant interviewees, while also generating novel directions for future research. [ABSTRACT FROM AUTHOR]

ABSTRACT Aim Design Methods Results Conclusion Implications for the Profession and/or Patient Care Impact Reporting Method Patient or Public Contribution To investigate the experiences of people with Parkinson's disease in coping with and adapting to their disease and to identify considerations for a tailored self‐management support program.A descriptive phenomenological focus group study.Five semi‐structured focus groups were conducted between April 2023 and June 2023 in the Netherlands, with 12 people with Parkinson's disease. Two researchers independently performed an inductive content analysis.Three principal categories emerged: (1) Rational realisation versus emotional experience: the coping strategy transition. This category includes three main coping strategies: denial or avoidance coping, acknowledging with less active coping and proactive and task‐oriented coping. (2) Factors that influence coping, including mindset and skills, social circles and communication and access to support and care. (3) Considerations for successful self‐management of Parkinson's disease, highlighting key areas such as psycho‐emotional guidance, nutrition and lifestyle, peer support and maintaining autonomy and sense of identity.Coping and adaptation strategies are individual and dynamic processes, with multiple key or turning points during the transition between strategies. Tailored self‐management support can enhance coping abilities during these transitions, fostering adaptation to a life with Parkinson's disease.A patient‐focused version of an existing blended self‐management support program for family caregivers will be developed, which will be delivered by healthcare professionals.This study can help healthcare professionals tailor support for people with Parkinson's disease, emphasising their role in facilitating coping and adaptation. Enhancing self‐management can improve self‐efficacy, quality of life and potentially reduce healthcare utilisation in people with Parkinson's disease.Findings are reported according to the COREQ guidelines.Patients and Parkinson's disease experts participated in the preparation and implications of the findings. All participants could contribute to the self‐management support program, either through video interviews or content feedback. [ABSTRACT FROM AUTHOR]

Although newborn intensive care (NICU) research highlights the mental health and support needs of parents, a majority of the research and interventions focus on the needs of the mother. Engaging and partnering with male caregivers (like female caregivers) in the care of their NICU infants yields positive health outcomes for the infant and better mental health outcomes for the father. Yet there are few articles about male NICU caregiving experiences, and scant articles exploring the mental health and support needs of Black NICU fathers. Utilizing two case studies of Black fathers, this paper will identify their mental health needs. This article will outline and integrate the Recommendation for Psychosocial Support of NICU Families and existing literature to these case studies. Based on their unique needs, NICU providers must do more to engage Black fathers and explore alternative models of care that are culturally aware for psychosocial support. [ABSTRACT FROM AUTHOR]

Translational research is seemingly ubiquitous, yet complex and difficult to concretely define. We contribute to this conversation by reflectively and critically evaluating a collaborative, multidisciplinary program called the Photographs of Meaning (POM) for pediatric palliative caregivers. The POM program brings together the public health issue of caregiving with community-based-art methodology and engagement. Following four stages for public health research; assessment, design, implementation, and evaluation, we focus on photovoice as a valuable methodological tool that can be integral to translational work in communication. The program evaluation illustrates the main points of translation from the first iteration of POM to the second, as we challenge the traditional 'bench to bedside' notion of translational research and offer a more relational approach where communication scholars can engage participants and community networks through photographs. We end with implications and recommendations for scholars working with pediatric palliative caregivers and public health research more generally. [ABSTRACT FROM AUTHOR]

Objectives To assess how the role of neighbors and friends in people's networks changes with age and how this is affected by cohort, marriage, employment, and socioeconomic status. The hypothesis is that for most aspects of the network, friends lose "importance" as people become older, with neighbors gradually becoming more dominant in the nonkin network. Methods Data are used for people aged 55–90 between 1999 and 2019 from the Swiss Household Panel (N  = 5,585). A total of 4 network aspects were measured: size, contact, practical support, and emotional support. Measures for neighbors and friends were compared and analyzed with fixed-effects and hybrid-effects regression models on person-year observations. Results The sizes of both network segments declined with age but more strongly for friends than neighbors. Contact with friends was stable but contact with neighbors increased. Support from friends declined whereas support from neighbors was stable. Direct comparisons revealed that the relative share of neighbors vis-à-vis friends increased as people age. Friends were more common and supportive vis-à-vis neighbors for divorced and widowed people than for married people, but this gap declined with age. The share of neighbors increased with retirement, especially for men. The share of neighbors vis-à-vis friends was also larger for people with less income and education and this gap did not change with age. Discussion In the nonkin part of older adults' networks, proximity eventually becomes dominant. This finding is interpreted in terms of rising needs, greater opportunity for local contact, and friend mortality risks, all favoring the neighbor segment of the network. [ABSTRACT FROM AUTHOR]

This article forms part of research into the role of support offered to children and youth by different community agents during the pandemic. In order to carry out the research, an online questionnaire was designed and administered between October 2021 and January 2022, to which 1,216 people in Catalonia (Spain) aged between 9 and 18 years responded. This article presents the results of the analysis of the open questions, in which participants specified the type of support and help they had received. The results show that the support offered by schools mainly focused on the continuity of the learning process; that the family was a main source of emotional support; and that communal leisure activities contributed to health and recreation. It concludes underlining the importance of the community, and the need to strengthen the complementarity of the various surroundings as support providers when situations of generalized adversity arise. [ABSTRACT FROM AUTHOR]

Although caregiving responsibilities and need for support persist and evolve across the life course in families with autistic youth or youth with other developmental disabilities (DDs), little is known about support during their child's adulthood years. Therefore, the present study used a mixed-methods approach to examine change and stability in formal and informal family support across the transition to adulthood. Caregivers of 126 individuals with autism or DDs completed a modified version of the Family Support Scale, including open-ended questions, at five time points from adolescence (age 16) into young adulthood (age 22). Caregivers reported that informal support from family members was the most frequently used, helpful, and valued source of support with relative stability across time. In contrast, the reported helpfulness, use, and value of formal support (e.g., professionals, schools) for caregivers declined over time. Qualitative content analyses revealed characteristics of highly valued support included support type (e.g., instrumental or emotional) and features of the support source (e.g., their understanding). There was a shift to valuing emotional support more than instrumental support over time, especially for caregivers of less able adults. Partnership and dependability emerged as highly valued features of the support source. These findings fit within a social convoy perspective and likely reflect the "service cliff" experienced by autistic individuals or people with DDs and their families. As social networks shrink over time and formal services are less readily available in adulthood, remaining sources of support, particularly from family members, become increasingly important. [ABSTRACT FROM AUTHOR]

Background: Navigating the logistics and emotional processing of a patient's death is an inevitable part of many physicians' roles. While research has primarily examined how inpatient clinicians cope with patient loss, little work has explored how primary care clinicians (PCCs) handle patient death in the outpatient setting, and what support resources could help PCCs process loss. Objective: To explore PCCs' experiences with the logistics and emotional processing of patient deaths and suggestions for supportive resources. Design: Qualitative study using semi-structured interviews conducted between March and May 2023. Participants: Recruitment emails were sent to 136 PCCs (physicians and nurse practitioners) at three San Francisco academic primary care clinics. Twelve clinicians participated in the study. Approach: This study used a template analysis approach. Interview transcripts were analyzed in an iterative fashion to identify themes for how PCCs navigate patient death. Results: Participants (n=12) described outpatient death notification as inconsistent, delayed, and rife with uncertainty regarding subsequent actions. They felt various emotions, notably sadness and guilt, especially with deaths of young, vulnerable patients or those from preventable illnesses. Participants identified strategies for emotional processing and recommended improvements including clear procedural guidance, peer debriefings, and formal acknowledgements of deceased patients. Conclusions: Interviewing PCCs about their experiences following a patient death revealed key themes in logistical and emotional processing, and clinic resource recommendations to better support PCCs. Given the distinct characteristics of primary care—such as enduring patient relationships, greater isolation in ambulatory settings compared to inpatient environments, and rising burnout rates—enhancing guidance and support for PCCs is crucial to mitigate administrative burdens and grief after patient loss. [ABSTRACT FROM AUTHOR]

The age of the onset of menstruation, termed menarche, has been declining for decades worldwide. Approximately 12% of Australian girls reach menarche between eight to 11 years of age. Current health and physical education subject guidelines from the Australian Curriculum Assessment and Reporting Authority state that puberty education should be introduced to students between year levels five to six (ages 10–12) when many have already begun puberty. To explore how girls experiencing early menarche are currently supported in Australian primary schools, semi-structured telephone interviews were conducted with 15 primary school staff from separate schools, including teachers, principals, a school services officer, and a school counsellor. Thematic analysis identified three main themes, (1) the prevalence of deficit models of early menarche and children's capacity to know; (2) gendered gatekeeping of menstruation knowledge; and (3) systemic barriers and inconsistencies in menstruation education. Our analysis complements but extends recent calls for improvements to menstruation education in Australian schools. Affirmative menstrual support practices and facilities are needed in primary schools to normalise and encourage conversations with students about menarche and menstruation irrespective of age, gender, class or culture. [ABSTRACT FROM AUTHOR]

Purpose: The aim of this study was to investigate the experiences of living with glioblastoma from the perspective of patients themselves as well as their closest relatives, focusing on the changes in the life situation and the need for support. Methods: Twenty-two semi-structured interviews were conducted with 12 patients (mean age 61 years, 7 male, 5 female) and 10 relatives (mean age 56 years, 3 male, 7 female). The relatives comprised of partners (n = 7), child (n = 1), sister (n = 1), or friend (n = 1). Questions focused on changes in the life situation and support needed to face these changes. Data was analyzed using inductive qualitative content analysis (QCA). Results: Living with glioblastoma dramatically changes the lives of both patients and relatives. Cognitive symptoms (e.g., speech and memory disturbances), deterioration of physical function (e.g., paresis), and psychological function (e.g., behavioral changes, anxiety) can lead to impaired family dynamics, social isolation, and fear of the future. Support from other family members, friends, and healthcare professionals is crucial. Timely, tangible, and easily available support from the healthcare system the entire disease trajectory is sought after, enabling individualized care with emotional support, clearer information, and faster feedback. Conclusion: The changes in life situations faced by patients with glioblastoma and their closest relatives are dramatic and underline the importance of providing integrated care throughout the entire healthcare continuum, encompassing specialist neuro-oncological care, municipal support, and palliative care. Individualized support for both patients and relatives can enhance the sense of safety amid the chaos in their life situation. [ABSTRACT FROM AUTHOR]

Aim: The aim of this study is to explore how immigrant women and men from India construct mental health and mental illness in the perinatal period. Design: Qualitative interpretive design. Methods: Data were collected by conducting in‐depth interviews with 19 participants. Photo elicitation, free listing and pile sorting were used during the interviews. Purposive sampling was used, and data were collected in 2018 and 2019. Data were analysed using thematic analysis. Finding/Results: One major theme and three subthemes were identified. 'We do not talk about it' was the major theme and the subthemes: (1) 'living peacefully and feeling happy' described the views on mental health; (2) 'that's the elephant in the room still' captures how participants felt when talking about mental illness; and (3) 'why don't we talk about it' offers reasons why the Indian community does not talk about mental health and illness. Conclusion: The findings of this study have highlighted the importance of understanding the impact of immigration and being culturally sensitive when assessing mental health in the perinatal period. Impact: The findings of this study identify some of the reasons for non‐disclosure of mental health issues by immigrants. Incorporating these findings during psychosocial assessment by health professionals in the perinatal period will help translate the cultural aspects into more effective communication. Patient or Public Contribution: Patient and public contribution to the study was provided by the Community Stakeholders Group; these were members of the immigrant community from India who had expertise in mental health. They contributed to the study design and the key terms and phrases for the free list used in interviews. [ABSTRACT FROM AUTHOR]

Sport specialization and intensive training programs are becoming increasingly popular, but there is an ongoing debate as to their value. This study explored how children experience arduous, specialized training and whether they find it enjoyable and meaningful. We also examined their perspective of what parental involvement they needed. One hundred three participants filled out an online questionnaire. Results demonstrated that the participants were almost without exception highly committed to their training. They acknowledged the documented downsides, such as long hours, pain, and repetition, but expressed resounding commitment, giving little indication that they looked for change. They admitted that they preferred their parents not to be involved with their coaching and disclosed that showing pride for them was their main wish. This study demonstrates that passion can engender powerful commitment and satisfaction from training that may be sometimes considered by others as too challenging for a young person to undertake. [ABSTRACT FROM AUTHOR]

Recent evidence suggests that in many European countries generally positive views about societal diversity predominate. Yet, as research has rather focussed on negative attitudes towards immigration and diversity, less is known about positive attitudes and those who hold them. The paper makes a conceptual and an empirical contribution to filling this gap. We introduce a multidimensional concept, "diversity assent", to capture both evaluations of diversity and attitudes towards reflecting diversity in societal institutions. We test the concept using the case of urban Germany, drawing from a large, purpose-built survey. We demonstrate that, while assent differs for the two dimensions, a sizeable majority of those who evaluate diversity positively also agree with representing diversity in official policy and institutions, with some differences along socio-political lines. [ABSTRACT FROM AUTHOR]

Schools can support physical education (PE) among students with mobility disabilities (SMDs). However, previous research has indicated that people and resources in the school environment have served as facilitators and barriers to engaging SMDs in PE. Thus, the purpose of this pragmatic, qualitative study was to explore physical educators' perceptions and experiences of teaching SMDs to learn how to develop a PE environment supportive of SMDs. Eleven K-8 PE teachers who taught SMDs engaged in semistructured interviews. A thematic analysis revealed three themes describing facilitators and barriers of a supportive PE environment for SMDs: (a) teacher planning, (b) students in the PE environment, and (c) resources and support. These findings provide context to PE environments for SMDs and highlight a need for increased communication and collaboration with students with or without mobility disabilities, training or professional development for PE teachers to develop skills for adapted PE, and financial and personnel support. [ABSTRACT FROM AUTHOR]

Background: The human immunodeficiency virus (HIV) and acquired immunodeficiency deficiency syndrome (AIDS) epidemic have left an overwhelming impact on communities worldwide, particularly in Sub-Saharan Africa, where its effects on family structures are particularly pronounced. Caregivers of HIV/AIDS orphans encounter challenges in fulfilling their caring duties. Consequently, they rely on the outreach team leaders (OTLs) for support to care for HIV/AIDS orphans. Aim: This study aimed to explore and describe support provided by OTLs to caregivers of HIV/AIDS orphans in the North West Province of South Africa. Methods: The exploratory, descriptive, and contextual design meaning the study was conducted was in the contexts where caregivers of HIV/AIDS orphans reside. The study was conducted in five local municipalities in the Ngaka Modiri Molema district of the North West Province of South Africa. Ward-based outreach nurses were participants in the study. Semi-structured focus group interviews were used for data collection. Thematic analysis was used to analyze data. Throughout the study, ethical principles were adhered to. The study also adhered to four trustworthiness principles: credibility, confirmability, transferability, and dependability. Results: Three main themes emerged from this study: the conduction of home visits to caregivers of HIV/AIDS orphans, the coordination of a multidisciplinary team for support, and the facilitation of support groups. Conclusions: This study revealed that that caregivers of children orphaned by HIV/AIDS benefitted from the support provided by OTLs in the North West province of South Africa. The support provided by OTLs harnessed positive relationship between caregivers and children orphaned by HIV/AIDS. [ABSTRACT FROM AUTHOR]