8 results on '"Rubinstein, Tamar B"'
Search Results
2. Mental health care for youth with rheumatologic diseases - bridging the gap.
- Author
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Davis, Alaina M., Rubinstein, Tamar B., Rodriguez, Martha, and Knight, Andrea M.
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MENTAL health , *MEDICAL care , *RHEUMATOLOGISTS , *RHEUMATOLOGY , *TEACHING - Abstract
Youth with rheumatologic diseases have a high prevalence of comorbid mental health disorders. Individuals with comorbid mental health disorders are at increased risk for adverse outcomes related to mental health as well as their underlying rheumatologic disease. Early identification and treatment of mental health disorders has been shown to improve outcomes, but current systems of care fall short in providing adequate mental health services to those in need. Pediatric rheumatologists are uniquely positioned to provide mental health screening and intervention for youth with rheumatologic diseases due to the frequency of patient encounters and ongoing therapeutic relationship with patients and families. However, additional training is likely required for pediatric rheumatologists to provide effective mental health care, and focusing efforts on providing trainees with mental health education is key to building competency. Potential opportunities for improved mental health education include development of clinical guidelines regarding mental health screening and management within pediatric rheumatology settings and incorporation of mental health didactics, workshops, and interdisciplinary clinic experiences into pediatric rheumatology fellowship curricula. Additional steps include mental health education for patients and families and focus on system change, targeting integration of medical and mental health care. Research is needed to better define the scope of the problem, determine effective strategies for equipping pediatric rheumatologists with skills in mental health intervention, and develop and implement sustainable systems for delivery of optimal mental health care to youth with rheumatologic diseases. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
3. Disordered eating in adulthood is associated with reported weight loss attempts in childhood.
- Author
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Rubinstein, Tamar B., McGinn, Aileen P., Wildman, Rachel P., and Wylie‐Rosett, Judith
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CHI-squared test , *CHILD behavior , *COMPUTER software , *CONFIDENCE intervals , *DEMOGRAPHY , *DISEASE risk factors , *EATING disorders , *EPIDEMIOLOGY , *HEALTH status indicators , *NURSING assessment , *WEIGHT loss , *LOGISTIC regression analysis , *DATA analysis , *ADULTS - Abstract
Objective: To determine whether history of attempted weight loss in childhood (age ≤12 years) is associated with binge eating disorder (BED) and unhealthy weight loss behaviors in adults. Method: Cross-sectional analysis from baseline visit data of 588 participants of a clinical trial. Data were collected from survey answers on health status, nutritional status, weight loss history, and weight loss behaviors. Results: History of childhood weight loss attempts was associated with high odds of BED in adults (odds ratio [OR] 3.4; 95% confidence interval [CI] 2.8-6.3) and high odds of unhealthy weight loss behaviors (OR 2.3; 95% CI 1.2, 2.6). A linear trend was observed in which young age at first attempted weight loss was associated with increased odds of both BED and unhealthy weight loss behaviors. Discussion: Weight loss attempts in childhood may be a risk factor for the development of unhealthy eating behaviors and BED in adults. © 2009 by Wiley Periodicals, Inc. (Int J Eat Disord 2010;) [ABSTRACT FROM AUTHOR]
- Published
- 2010
- Full Text
- View/download PDF
4. American College of Rheumatology Guidance for the Management of Pediatric Rheumatic Disease During the COVID‐19 Pandemic: Version 2.
- Author
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Wahezi, Dawn M., Lo, Mindy S., Rubinstein, Tamar B., Ringold, Sarah, Ardoin, Stacy P., Downes, Kevin J., Jones, Karla B., Laxer, Ronald M., Pellet Madan, Rebecca, Mudano, Amy S., Turner, Amy S., Karp, David R., and Mehta, Jay J.
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RHEUMATISM treatment , *CONSENSUS (Social sciences) , *COVID-19 , *RHEUMATOLOGY , *PEDIATRICS , *VOTING , *MEDICAL protocols , *RHEUMATOLOGISTS , *RISK assessment , *PROFESSIONAL associations , *RHEUMATISM , *PHYSICIANS , *COVID-19 pandemic , *DELPHI method , *DISEASE complications - Abstract
Objective: To provide clinical guidance to rheumatology providers who treat children with pediatric rheumatic disease (PRD) in the context of the coronavirus disease 2019 (COVID‐19) pandemic. Methods: The task force, consisting of 7 pediatric rheumatologists, 2 pediatric infectious disease physicians, 1 adult rheumatologist, and 1 pediatric nurse practitioner, was convened on May 21, 2020. Clinical questions and subsequent guidance statements were drafted based on a review of the queries posed by the patients as well as the families and healthcare providers of children with PRD. An evidence report was generated and disseminated to task force members to assist with 3 rounds of asynchronous, anonymous voting by email using a modified Delphi approach. Voting was completed using a 9‐point numeric scoring system with predefined levels of agreement (categorized as disagreement, uncertainty, or agreement, with median scores of 1–3, 4–6, and 7–9, respectively) and consensus (categorized as low, moderate, or high). To be approved as a guidance statement, median vote ratings were required to fall into the highest tertile for agreement, with either moderate or high levels of consensus. Results: To date, 39 guidance statements have been approved by the task force. Those with similar recommendations were combined to form a total of 33 final guidance statements, all of which received median vote ratings within the highest tertile of agreement and were associated with either moderate consensus (n = 5) or high consensus (n = 28). Conclusion: These guidance statements have been generated based on review of the available literature, indicating that children with PRD do not appear to be at increased risk for susceptibility to SARS–CoV‐2 infection. This guidance is presented as a "living document," recognizing that the literature on COVID‐19 is rapidly evolving, with future updates anticipated. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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- View/download PDF
5. Relationship of regional ultraviolet index data with rash and systemic disease activity in youth with childhood-onset systemic lupus: results from the Childhood Arthritis and Rheumatology Research Alliance Registry.
- Author
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Tanner, Tamara I., Agalliu, Ilir, Wahezi, Dawn M., and Rubinstein, Tamar B.
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AUTUMN , *SUNSHINE , *SYSTEMIC lupus erythematosus , *RHEUMATOLOGY , *ARTHRITIS , *SUNBURN , *SKIN cancer - Abstract
Objective: To investigate the association between ultraviolet light index (UVI), as a marker for UV exposure, and seasonality with rash and systemic disease activity in youth with childhood-onset systemic lupus (cSLE) from the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry. Methods: We reviewed data on rash and disease activity from Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2 K) scores from cSLE CARRA Registry participants with visits between 2010 and 2019 and obtained zipcode level UVI data from the National Oceanic and Atmospheric Administration (NOAA). Our main exposures were UVI and season during the month of visit and one month prior to visit. We used mixed-effects logistic regression models to examine associations between regional UVI (by zipcode)/season and odds of rash and severe SLEDAI-2 K score (≥ 5 vs. 0–4), adjusting for age, sex, race and income. Results: Among 1222 participants, with a mean of 2.3 visits per participant, 437 visits (15%) had rash and 860 (30%) had SLEDAI-2 K score ≥ 5. There were no associations between UVI during the month prior to visit or the month of the visit and odds of rash or elevated systemic activity. However, fall season was associated with increased odds of rash (OR = 1.59, p = 0.04), but not increased disease activity. Conclusion: This study found no association between UVI and rash or UVI and disease activity. However, further studies directly measuring UV exposure and accounting for patient-level protective behavioral measures may help to better understand the complex relationship between sun exposure and SLE disease activity. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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6. American College of Rheumatology Guidance for the Management of Pediatric Rheumatic Disease During the COVID‐19 Pandemic: Version 1.
- Author
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Wahezi, Dawn M., Lo, Mindy S., Rubinstein, Tamar B., Ringold, Sarah, Ardoin, Stacy P., Downes, Kevin J., Jones, Karla B., Laxer, Ronald M., Pellet Madan, Rebecca, Mudano, Amy S., Turner, Amy S., Karp, David R., and Mehta, Jay J.
- Subjects
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ALLIED health personnel , *PREVENTION of communicable diseases , *CONSENSUS (Social sciences) , *DELPHI method , *MEDICAL protocols , *RHEUMATISM , *RHEUMATOLOGISTS , *VOTING , *COVID-19 pandemic , *CHILDREN - Abstract
Objective: To provide clinical guidance to rheumatology providers who treat children with pediatric rheumatic disease (PRD) in the context of the coronavirus disease 2019 (COVID‐19) pandemic. Methods: The task force, consisting of 7 pediatric rheumatologists, 2 pediatric infectious disease physicians, 1 adult rheumatologist, and 1 pediatric nurse practitioner, was convened on May 21, 2020. Clinical questions and subsequent guidance statements were drafted based on a review of the queries posed by the patients as well as the families and healthcare providers of children with PRD. An evidence report was generated and disseminated to task force members to assist with 3 rounds of asynchronous, anonymous voting by email using a modified Delphi approach. Voting was completed using a 9‐point numeric scoring system with predefined levels of agreement (categorized as disagreement, uncertainty, or agreement, with median scores of 1–3, 4–6, and 7–9, respectively) and consensus (categorized as low, moderate, or high). To be approved as a guidance statement, median vote ratings were required to fall into the highest tertile for agreement, with either moderate or high levels of consensus. Results: The task force drafted 33 guidance statements, which were voted upon during the second and third rounds of voting. Of these 33 statements, all received median vote ratings within the highest tertile of agreement and were associated with either moderate consensus (n = 6) or high consensus (n = 27). Statements with similar recommendations were combined, resulting in 27 final guidance statements. Conclusion: These guidance statements have been generated based on review of the available literature, indicating that children with PRD do not appear to be at increased risk for susceptibility to SARS–CoV‐2 infection. This guidance is presented as a "living document," recognizing that the literature on COVID‐19 is rapidly evolving, with future updates anticipated. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
7. An ecological approach to understanding and addressing health inequities of systemic lupus erythematosus.
- Author
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Reid, Mallet R., Danguecan, Ashley N., Colindres, Isabella, Witherspoon, Denasja, Rubinstein, Tamar B., Drenkard, Cristina, Knight, Andrea M., and Cunningham, Natoshia R.
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SYSTEMIC lupus erythematosus , *HEALTH equity , *HISPANIC American women , *INCOME inequality , *ALASKA Natives - Abstract
Systemic Lupus Erythematosus (SLE) is a complex chronic autoimmune disease disproportionally afflicting women and, in particular, American Indian/Alaska Native, Black, and Hispanic women. These groups of women have significantly worse SLE-related health outcomes which are partially attributable to their exposure to marginalizing and interconnecting social issues like racism, sexism, economic inequality, and more. Although these groups of women have higher rates of SLE and though it is well known that they are at risk of exposure to marginalizing social phenomena, relatively little SLE literature explicitly links and addresses the relationship between marginalizing social issues and poor SLE-health outcomes among these women. Therefore, we developed a community-engaged partnership with two childhood-SLE diagnosed women of color to identify their perspectives on which systemic issues impacted on their SLE health-related outcomes. Afterward, we used Cochrane guidelines to conduct a rapid review associated with these identified issues and original SLE research. Then, we adapted an ecological model to illustrate the connection between systems issues and SLE health outcomes. Finally, we provided recommendations for ways to research and clinically mitigate SLE health inequities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
8. Validation of the Attention, Memory, and Frontal Abilities Screening Test (AMFAST).
- Author
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Freilich, Bryan M., Feirsen, Nicole, Welton, Elise I., Mowrey, Wenzhu B., and Rubinstein, Tamar B.
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COGNITION disorders diagnosis , *AGE distribution , *ATTENTION , *COGNITIVE testing , *NEUROPSYCHOLOGICAL tests , *RESEARCH methodology , *MEMORY , *PSYCHOMETRICS , *STATISTICAL reliability , *INTER-observer reliability , *MULTITRAIT multimethod techniques , *RESEARCH methodology evaluation , *EXECUTIVE function - Abstract
The aim of this study is to validate the Attention, Memory, and Frontal Abilities Screening Test (AMFAST), a novel, 10-minute, paper-and-pencil measure developed to identify attention, processing speed, memory, and executive functioning deficits in children and adults with various conditions characterized by frontal-subcortical dysfunction. We administered the AMFAST to 186 English-speaking healthy control participants (aged 8-88 years) without reported cognitive impairment. The AMFAST was also administered to a mixed clinical sample that included 114 English-speaking individuals (aged 8-84 years) who also received comprehensive neuropsychological testing. Results indicated that total AMFAST scores in the healthy control sample were not significantly affected by education or gender. There was, however, a significant effect of age, as the 8- to 10-year-old group scored significantly lower than other age groups. Thus, only participants 11+ years were included in further analyses. The AMFAST demonstrated high test–retest and interrater reliabilities, good construct validity, and the identified optimal cutoff score of 70 had excellent sensitivity and specificity for differentiating between cognitively intact and cognitively impaired individuals. These findings demonstrate that the AMFAST is a highly effective screening test that can be used to identify attention, memory, processing speed, and executive functioning deficits in individuals from middle childhood through older adulthood. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
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