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2. Bibliometric analysis of the 100 most-cited papers about the role of gut microbiota in irritable bowel syndrome from 2000 to 2021.
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Wan, Changshan, Kong, Xiangxu, Liao, Yusheng, Chen, Qiuyu, Chen, Mengshi, Ding, Qian, Liu, Xiaotong, Zhong, Weilong, Xu, Chen, Liu, Wentian, and Wang, Bangmao
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BIBLIOMETRICS , *IRRITABLE colon , *GUT microbiome , *CITATION analysis , *WEB databases - Abstract
Aim: Over the last few decades, gut microbiota research has been the focus of intense research and this field has become particularly important. This research aimed to provide a quantitative evaluation of the 100 most-cited articles on gut microbiota and IBS and highlight the most important advances in this field. Methods: The database Web of Science Core Collection was used to download the bibliometric information the top 100 most-cited papers. Microsoft Excel 2021, CiteSpace, VOSviewer, R software, and an online analytical platform (https://bibliometric.com/) were was applied to perform bibliometric analysis of these papers. Results: The total citation frequency in the top 100 article ranged from 274 to 2324, with an average citation of 556.57. A total of 24 countries/regions made contributions to the top 100 cited papers, and USA, Ireland, and China were the most top three productive countries. Cryan JF was the most frequently nominated author, and of the top 100 articles, 20 listed his name. Top-cited papers mainly came from the Gastroenterology (n = 13, citations = 6373) and Gut (n = 9, citations = 3903). There was a significant citation path, indicating publications in molecular/biology/immunology primarily cited journals in molecular/biology/genetics fields. Keywords analysis suggested that the main topics on gut microbiota and IBS were mechanisms of microbiome in brain-gut axis." Behavior" was the keyword with the strongest burst strength (2.36), followed by "anxiety like behavior" (2.24), "intestinal microbiota" (2.19), and "chain fatty acid" (1.99), and "maternal separation" (1.95). Conclusion: This study identified and provided the bibliometric information of the top 100 cited publications related to gut microbiota and IBS. The results provided a general overview of this topic and might help researchers to better understand the evolution, Influential findings and hotspots in researching gut microbiota and IBS, thus providing new perspectives and novel research ideas in this specific area. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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3. Ireland's White Paper to End Direct Provision and Establish a New International Support Service (2021) and the 'sticky' discourse of control.
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Coakley, Liam
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GOVERNMENT report writing , *DIGNITY , *PRIVATE security services , *DISCOURSE , *INFRASTRUCTURE (Economics) - Abstract
The Government of Ireland has published its plan to reorder the infrastructure it uses to accommodate and support migrants seeking International Protection (IP) in Ireland. This policy document - entitled The White Paper to End Direct Provision and Establish a New International Support Service - was published on 26th February, 2021. The White Paper proposes to replace Ireland's current but discredited system with a new IP accommodation and support process – to be entitled Ireland's International Protection Support Service. This new system is intended to "treat all applicants to the process with dignity and respect" (Government of Ireland, 2021: 7). Dissonances exist, however. The discursive framing of the IPSS and the spatialities inherent in the proposals suggest a potential rearticulation of state control rather that a diminution of same. I turn to the work of scholars inspired by Giorgio Agamben to help situate the spatialities of this shift, and suggest that the current 'white paper' should simply be seen as a mechanism deployed the Government of Ireland to ensure that its bio-political command and control processes can migrate from the spatially-defined set of control environments currently in effect to a diffuse construction of a spatially networked series of deterritorialised indistinctions. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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4. The evolution of the medical record from paper to digital: an ENT perspective.
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Murphy, C and Keogh, I J
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AUDITING , *HEALTH information systems , *DIGITAL health , *RETROSPECTIVE studies , *PATIENTS , *HOSPITAL admission & discharge , *PUBLIC hospitals , *ELECTRONIC health records , *DATA analysis software , *MEDICAL informatics - Abstract
Objectives: A national electronic health record is being procured for Health Service Executive hospitals in Ireland. A number of hospitals have implemented an electronic document management system. This study aimed to investigate the efficiency and safety of the electronic document management system in our centre. Methods: A retrospective audit was performed of patients operated on at Galway University Hospital. The availability and location of patients' admission data on the electronic document management system were recorded. These data were analysed using Microsoft Excel software, version 16.45. Results: The records of 100 patients were analysed. The main findings were: 5 per cent of operation notes were missing, 80 per cent were in the incorrect section, while 15 per cent were in the correct 'procedure' section on the electronic document management system. Conclusion: This study shows there is potential for error with 'paper-light' solutions, whereby delayed scanning, misfiling of scanned records and missing records may lead to significant delays in treatment and potential patient safety issues. [ABSTRACT FROM AUTHOR]
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- 2023
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5. Ideas, power and agency: policy actors and the formulation of language-in-education policy for multilingualism.
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Erdocia, Iker, Nocchi, Susanna, and Ruane, Mary
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MULTILINGUALISM , *LANGUAGE policy , *EDUCATION policy , *BILINGUALISM - Abstract
The processes of formulation of language policies have not been researched thoroughly. This paper aims to explore the relationship between ideas, power and agency in language policy-making and specifically with reference to the formulation of language-in-education policy for multilingualism in Ireland. Through an argumentative approach to language policy and using a discursive institutionalist framework, the paper examines data from policy documents and interviews with policy actors in the Department of Education and Skills. The paper reports on the ways in which agentive discourses are constrained and enabled by institutional structures. The analysis shows how power resulting from asymmetric internal forces and the hierarchical architecture of institutions prevailed over the capacity of some actors to promote their ideas through discourse. Moreover, it shows how static ideational elements are powerful structural constraints on agency. The paper argues for a conceptualisation of actors in policy-making as agentive individuals who engage in a dynamic struggle over ideas to realise complex and changing policy goals. It concludes by claiming that a focus on discursive forms of power in the policy analysis at the so-called macro level would be beneficial for language policy scholarship. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Intersections of age and agency as trans and gender diverse children navigate primary school: listening to children in (re)considering the potential of sexuality education.
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Neary, Aoife
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GENDER-nonconforming people , *ELEMENTARY schools , *RESEARCH funding , *QUALITATIVE research , *GENDER identity , *TRANSGENDER people , *PSYCHOLOGY of school children , *SEX education , *INTERVIEWING , *AGE distribution , *DECISION making , *LONGITUDINAL method , *TEACHERS , *THEMATIC analysis , *RESEARCH methodology , *PRACTICAL politics , *PSYCHOLOGY of parents , *PSYCHOSOCIAL factors , *ADOLESCENCE , *CHILDREN - Abstract
The adult-centric concept of 'age-appropriateness' is an arbitrary signifier and yet it commands a powerful common-sense appeal in governing the shape of sexuality education. The visibility of LGBTQ+ lives in primary schools is deeply impacted by the cis-heteronormative ways in which age-appropriateness is commonly understood and mobilised; very often resulting in silence and delay. The concept of age-appropriateness also becomes entangled with moral panics about 'promoting' LGBTQ+ lives, or children being somehow 'recruited' to identify as LGBTQ+. This paper draws on findings from a study with the parents of eleven trans and gender diverse children (then aged between 5 and 13) conducted in 2017, as well as a follow-up study conducted with seven participants from the same group of parents and children in 2022. The paper explores how the politics of age and agency intersect and become intensified as trans and gender diverse children and their parents navigate and make decisions about their bodies, lives and everyday worlds in primary schools. These stories of trans and gender diverse children provide an arresting invitation to adults to attend closely to the rich stories of children themselves in (re)considering the potential of sexuality education across contexts. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Coping with National Language Policy Shift: Voices of Chinese Immigrant Parents in an Irish County Town.
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Liu, Yuying, Guo, Shujian, and Gao, Xuesong
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CHINESE language education , *EDUCATION policy , *MINORITY parents , *IMMIGRANTS - Abstract
This paper focuses on the diaspora Chinese community in Limerick – an Irish county town in the southwest of the Republic of Ireland – and examines how Chinese parents have responded to the education policy shift resulting from the 2017 Irish foreign language strategy, which added Chinese to the official educational curriculum. A semi-structured group interview was conducted with four Chinese-speaking parents. Analysis of the data revealed that identity preservation and maintaining bonds with extended family are the predominant expressed reasons for parents to cultivate their children's Chinese proficiency. English and Irish are prioritized over Chinese. Though the parents hold positive attitudes towards the inclusion of Chinese as a school subject in Ireland, they are disempowered from taking advantage of participating in the implementation of this national language shift due to a lack of access to social, cultural, and economic capital. Analysed through a Bourdieuian lens, the findings further expose the limitations or constraints placed on family language policy and the discrepancy between macro- and micro-level language policies. The paper is intended to shed light on education, social justice, and equality, bridging the gap between micro-level family language practices and macro-level language policy. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Entrepreneurship at the edge? The characteristics and role of creative entrepreneurs in peripheral regions.
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Collins, Patrick and Murtagh, Aisling
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BUSINESSPEOPLE , *ENTREPRENEURSHIP , *SEMI-structured interviews , *REGIONAL development , *CULTURAL industries - Abstract
To advance the understanding of the nature and dynamics of creative entrepreneurship in specific contexts, this paper explores how creative entrepreneurship both shapes and is shaped by its peripheral context. This paper adds to the growing work that is helping us understand that when looking at the periphery through the lens of cultural and creative practice we find a much more nuanced set of relations between place and practice. We focus on geographically separate regions facing the same obstacles of geographic peripherality. Underpinning the findings are semi-structured interviews reflecting the experience of creative entrepreneurs in North East Iceland, Västernorrland in Mid Sweden and the western region of Ireland. While we recognise that problems still exist in the creative industries policy domain, we argue that policy supports would be best designed in line with the characteristics of the sector in particular places. This work also helps to develop knowledge of the multifaceted role of the creative entrepreneur in peripheral societies and economies. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Conceptualising inclusive curricula for learners with complex special educational needs: narrowing the design gap between commonality and difference.
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Morrissey, Barry, King, Fiona, and Keating, Seline
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CURRICULUM frameworks , *SPECIAL education teachers , *EDUCATIONAL standards , *LEARNING disabilities , *CURRICULUM planning , *INCLUSIVE education - Abstract
The growing emphasis on inclusive education over the last decade has placed renewed focus on curriculum and the extent to which standard or different curricula should be enacted for learners with special educational needs. This paper explores the enactment process for a state-mandated, standard curriculum in Irish special schools. A two-phase, explanatory sequential mixed-methods approach to data-gathering was adopted. Phase 1 incorporated a questionnaire distributed to the principal of every special school in the Republic of Ireland (
n = 133). Phase 2 consisted of a multi-site embedded case study with three special schools for children with varying levels of general learning disability. The findings illustrate how special education teachers modify the curriculum to make it more accessible for all learners and showcase the pertinence of curriculum design frameworks for framing those illustrations. The paper concludes by demonstrating the potential of a modified curriculum design framework for ensuring that learners with the most complex needs have better opportunities to access a curriculum with degrees of commonality to their peers. [ABSTRACT FROM AUTHOR]- Published
- 2024
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10. ‘We all have to do our bit': literacy practice, perceptions and policy in Irish primary and post-primary schools.
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Burke, Patrick
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YOUNG adults , *DIGITAL literacy , *PRIMARY schools , *LITERACY , *HEALTH literacy , *GRAND strategy (Political science) - Abstract
Over a decade has passed since the publication and enactment of the first National Literacy and Numeracy Strategy (NLNS; Department of Education and Skills. 2011.
Literacy and Numeracy for Learning and Life: The National Strategy to Improve Literacy and Numeracy among Children and Young People 2011–2020 . Dublin: Department of Education and Skills). This paper provides insights into the reality of its enactment across a range of primary and post-primary settings. Drawing on qualitative data from interviews (n = 30) and quantitative data from a survey (n = 455) of primary and post-primary teachers, the paper charts commonalities and differences across these two sectors. Qualitative data indicated that the NLNS was successful in putting literacy on the agenda, with a range of consequent policy and practices reported by teachers. The teaching of literacy tended to be grounded in largely traditional conceptualisations of print-based reading and writing, with limited reference to digital or multimodal practices. Quantitative data highlighted the divergence of opinions between teachers from both sectors, particularly in relation to students’ literacy skills on entry to post-primary school and in DEIS settings. As policymakers prepare for the enactment of a successor strategy (Government of Ireland. 2024a.Ireland’s Literacy, Numeracy and Digital Literacy Strategy 2024–2033: Every Learner from Birth to Young Adulthood . Dublin: Government of Ireland), the paper concludes by addressing implications for the next decade of literacy-focussed policy in Irish schools. [ABSTRACT FROM AUTHOR]- Published
- 2024
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11. What kind of GEES specialists does the labour market really need? Content analysis of job adverts in selected countries.
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Piróg, Danuta and Hibszer, Adam
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LABOR market , *JOB vacancies , *DATA mining , *JOB offers - Abstract
The literature review has clearly indicated that the scale and characteristics of demand for Geography Earth and Environmental Sciences experts across different countries is unknown. Therefore, there is an urgent need to investigate this issue. This paper presents the results of research on the real demand for GEES specialists. In the paper, real demand is expressed by job vacancies (N = 17 378) published in six European countries over a period of 18 months. To analyse such an extensive body of text data, we used data mining techniques such as: SVD, inter-factor correlation analysis, word frequency analysis and word significance indicators, which allowed us to recognise similarities and differences in the size and structure of demand for these specialists in specific groups of countries. Employers from the UK and Ireland offered the most comprehensive range of positions whereas the expectations of Polish employers were the least diverse. Word frequency analyses for each occupation group demonstrated which components of GEES experts' knowledge and skills are considered universal on the labour market and which are subject to substantial regional variations. Moreover, word significance analyses allowed us to identify the occupations where a wider range of general skill areas was required and the positions for which primarily geographic skills were in demand. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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12. Inequalities in undergraduate participation and performance in Irish higher education.
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Borooah, Vani and Knox, Colin
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UNDERGRADUATES , *HIGHER education , *SCHOOL enrollment , *COLLEGE students - Abstract
This paper focuses on two aspects of gender inequality in Irish higher education: inequality in participation by gender and inequality of performance by gender, institution and subject. We use a rich set of data from the Higher Education Authority of Ireland which detail inter alia enrolment in institutions of higher education—Universities and Institutes of Technology—and record the class of degree received by graduating students, by subject and gender. The first aspect was the participation of women. Although more women enrolled as full‐time undergraduates in universities than did men, the reverse was the case in the Institutes of Technology. This had much to do with the subject structure of universities vis‐à‐vis the Institutes of Technology in tandem with the subject preferences of women and men. The second issue was inequality in performance. A major conclusion of this paper is that after enrolment there was little difference between the success rates of women and men in receiving first‐class degrees in the different subjects but there was considerable difference between the institutions. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Exploring concepts of friendship formation in children with language disorder using a qualitative framework analysis.
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Janik Blaskova, Lenka and Gibson, Jenny L.
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PSYCHOLOGY of children with disabilities , *LANGUAGE disorders in children , *QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *JUDGMENT sampling , *CHILDHOOD friendships , *RESEARCH , *CONCEPTUAL structures , *SOCIAL skills , *RESEARCH methodology , *INTERPERSONAL relations , *WELL-being , *PHYSICAL activity - Abstract
Purpose: Sociometric studies and adult reports have established that children with Language Disorder (LD) are at risk of peer relationship difficulties. However, we have limited knowledge of how children with LD understand friendship, whom they deem as a good or bad friend, and what role their friendship concepts play in their relationships with peers. This exploratory study aimed to conduct a qualitative investigation into the friendship concepts that children with LD hold and to explore their strategies for making friends. Methods: We conducted multiple, art‐informed interviews on the topic of friendship with 14 children with LD at the age of 6–8 years. Participating children were based in the United Kingdom and Republic of Ireland. They attended enhanced provision, specific speech and language classes and mainstream classrooms. We used framework analysis to map children's responses to Selman's (1979) developmental model of interpersonal understanding, which espouses a theory of children's social development within the context of peer relationships. Results: The understanding of friendship formation in children with LD varied from physical presence to mutual support and sharing. Children's ideas about a good/bad friend represented the lowest developmental stage. Participants from the mainstream classroom demonstrated the highest stages of interpersonal understanding. Children with LD did not mention their language abilities as a barrier to making friends. Conclusion: There are limited studies exploring friendship directly from children with LD, and this study provides insights into this gap, by utilising art‐informed interviews. Children's immature understanding of a good/bad friend points towards a potential susceptibility to false friends, which we suggest needs further empirical validation. We also found that children with LD did not pay attention to their language difficulties when making friends, which raises questions about the ways diagnoses are shared with children. WHAT THIS PAPER ADDS: What is already known on the subject: Children with Language Disorder (LD) are at risk of peer relationship difficulties. Studies to date are based on sociometrics and adult reports. Only a few studies employ participatory approaches to research with children, directly engaging children with LD when exploring their friendships What this paper adds: This paper directly asks children with LD about their understanding of friendship and strategies for making friends.Physical proximity and play are important to children.s understanding of friendship especially in recognising good and bad friends. This indicates potential reasons for children with LD being susceptible to false friendsAdditionally, children with LD do not perceive language and communication as a barrier to making friends. What are the potential or actual clinical implications of this work?: Concepts around friendship and good/bad friends should be routinely assessed and targeted (if appropriate) in interventions. The study highlights the need to continue discussing practices around sharing diagnoses with children with LD. [ABSTRACT FROM AUTHOR]
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- 2024
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14. 283 Does a Pen and Paper Assessment of Executive Skills Correlate with Functional Decline Identified Through Specialised Occupational Therapy Assessment?
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Tobin, Fiona, McGuinn, Caitriona, Pearson, Corinne, Dooky, Joshi, McHale, Cathy, Coughlan, Tara, O'Neill, Desmond, Ryan, Daniel, Collins, Ronan, and Kennelly, Sean
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CONFERENCES & conventions , *DEMENTIA , *LIFE skills , *EXECUTIVE function - Abstract
Background Executive skills refer to a set of cognitive skills that allow individuals to engage in goal directed behavior. They encompass planning, initiation, inhibition, monitoring and flexibility in approach to tasks, and are necessary for functional competence. Executive skills are vulnerable to disruption with damage to the brain, as occurs with dementia. Methods Participants were recruited from a tertiary memory assessment and support Service. The Assessment of Motor & Process Skills (AMPS), a standardised observational assessment of occupational performance (1Fischer, 2003) was administered by trained Occupational Therapists. In addition, the EXIT-25, a pen & paper based assessment of executive skills (2Royall et al, 1992) was administered. Process scores from the AMPS, and overall score from the EXIT 25 were utilised for correlation analysis. Results 22 participants, 12 male and 10 females, age range 60-91 (mean 75.5 years), was analysed using Spearman's Rho correlation (-.2). Results did not identify a strong correlation Conclusion Dementia is commonly regarded as a disorder of memory. However, diagnosis is dependent on functional decline related to cognitive decline. The AMPS provides a formal assessment of functional skills, in terms of motor & process skills with cut off scores regarding safe independent living. The results of this study indicate that the AMPS is not associated with executive scores on formal cognitive assessments, highlighting the value of an extensive multi-component MDT approach (also incorporating history taking, imaging, bio marker testing etc.) in assessing and diagnosing a dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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15. Characteristics associated with paper-based and online reading in Ireland: Findings from PIRLS and ePIRLS 2016.
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Gilleece, Lorraine and Eivers, Eemer
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ONLINE reading programs , *EDUCATION , *COMPUTERS in education , *INTERNET , *SMARTPHONES - Abstract
Highlights • ePIRLS 2016 is a new assessment of online reading skills of primary school pupils. • Spending time on the internet is positively associated with ePIRLS achievement. • Higher achievers in reading use computers less frequently for schoolwork at home. • Better online readers also use computers less frequently for schoolwork at school. • Owning a smart-phone is negatively associated with paper-based reading. Abstract Online reading necessitates the use of both similar and different skills to traditional paper-based reading. Therefore, some overlap is likely in the background and attitudinal factors associated with reading in the two modes. This study uses a multilevel framework and data from the Progress in International Reading Literacy Study (PIRLS, 2016) to explore the characteristics associated with online and paper-based reading in Ireland. Of independent variables examined, pupil reading confidence has the largest effect size for both PIRLS and ePIRLS. Home background variables have similar effect sizes for the two outcomes. Differences between the models emerge regarding time spent browsing the internet, the frequency of using a computer at school, pupil enjoyment of reading, and pupil ownership of a smartphone. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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16. Building a supportive framework for brain research in Ireland: Inaugural position paper of the Irish Brain Council.
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Rogers, Mags, Boland, Barry, Clarke, Sarah, Craven, Audrey, Fassbender, Catherine, Gill, Michael, Hardiman, Orla, Henshall, David C., Lynch, Tim, Mitchell, Kevin, Pender, Niall, Rogan, Carol, and Roche, Richard A. P.
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APHASIA , *BRAIN , *AMYOTROPHIC lateral sclerosis , *SPINAL muscular atrophy - Published
- 2019
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17. Papers from the husITa stream at SWSD2018.
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Lavan, Ann and Kirwan, Gloria
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CONFERENCES & conventions , *HEALTH promotion , *INFORMATION technology , *NONPROFIT organizations , *SERIAL publications , *SOCIAL services , *SPECIAL days , *ORGANIZATIONAL goals - Abstract
An introduction is presented in which the editor discusses articles in the issue on topics including human services; virtual community; and information technology.
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- 2019
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18. Asexual geographies: the allosexualisation of space in Ireland.
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Bayer, Rachel
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ASEXUALITY (Human sexuality) , *GEOGRAPHY , *ASEXUAL reproduction , *PRESUPPOSITION (Logic) , *SOCIAL norms - Abstract
AbstractThis paper contributes towards the beginnings of
asexual geographies , an area that has been largely overlooked within sexualities and queer geographies. Indeed, despite gradually increasing awareness of asexuality as a concept and identity, asexuality remains an underdeveloped area of academic research and is still widely misunderstood and invisible across society. Scholarship in the burgeoning field of asexuality studies has sought to redress this invisibility by exploring asexual people’s lives, identities, and experiences. Through these explorations, asexuality scholars have developed the concept of ‘compulsory sexuality’ to describe the ways in which social norms and practices assume that all people are sexual. However, within this growing field, thespatialities of asexuality and compulsory sexuality have yet to be fully developed. In this paper, I therefore aim to bring together work in geography and asexuality studies to introduce the concept of theallosexualisation of space . Drawing from qualitative interview data collected from seven asexual people living across Ireland, I examine the ways in which participants described feeling excluded, invisible, and/or out of place in a variety of spatial contexts – illustrating how spaces can come to reflect and co-produce the logic and assumptions of compulsory sexuality. In doing so, I argue that space matters to our understandings of asexuality and asexual people’s lived experiences, as well to the ways in which compulsory sexuality is manifest throughout our everyday lives. This paper thus contributes to beginning geographical discussions of asexualities, and extends emerging research on asexuality by introducing a geographical lens. [ABSTRACT FROM AUTHOR]- Published
- 2024
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19. Intersections of social class and special educational needs in a DEIS post-primary school: school choice and identity.
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Cahill, Kevin
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SOCIAL classes , *SCHOOL choice , *YOUNG adults , *IDENTITY (Psychology) , *SOCIAL stratification , *STUDENT counselors , *MAINSTREAMING in special education - Abstract
This paper explores how special educational needs (SEN) and social class can become intertwined in post-primary school choice in Ireland. The paper draws on data generated during a three-year ethnographic study of a DEIS school. Data are analysed using Holland et al.'s (1998. Identity and Agency in Cultural Worlds. Boston, MA: Harvard University Press) positional identities, authored selves and figured worlds in order to examine how learner identities and school choice processes can become informed by emergent school cultures being formed and re-formed by neoliberal marketisation of education and how these actions are taken up in the identity work of young people and their families. Soft barriers and their contribution to aspects of school stratification by social class and SEN in this setting are explored. Finally, the paper calls for recognition of the responsibilities of every school to own diversity in their own settings. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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20. Cultivating Positive Classroom Environments: Exploring the Efficacy of Immersive Technologies in Removing Barriers to Learning Among Primary School Students.
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Molloy, Ciara and Farrell, Rachel
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CLASSROOM environment , *DISRUPTIVE innovations , *SCHOOL children , *SCHOOL size , *UNIVERSAL design , *AUTISTIC children , *LEARNING , *IMMERSIVE design - Abstract
This is a small-scale qualitative participatory research study conducted in two large primary schools in Ireland with classes for autistic students. The paper reports how a menu of immersive technology learning experiences was thoughtfully designed and employed with autistic children who were communicating through their behavior an aversion to the learning environment and many aspects of conventional learning activities. Through this study, students were enabled to explore and respond to learning through immersive learning environments. The Universal Design for Learning (UDL) infused design of these immersive learning experiences was tailored to remove barriers to learning, thus counteracting the observable disruptive behaviors of the students. The study explores a purposive sample of six participating teachers' perspectives on the affective gains (engagement, motivation, and self-efficacy) achieved through the use of these immersive experiences and their impact on students' use of disruptive behaviors as a means of communication. Semi-structured interviews with teacher participants were analyzed using the theory and a general inductive approach for qualitative data analysis. This paper contributes to the literature on the use of immersive technologies in education and highlights the potential benefits of incorporating these technologies into the classroom. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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21. ICSH review of internal quality control policy for blood cell counters.
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McCafferty, Richard, Cembrowski, George, de la Salle, Barbara, Peng, Mingting, and Urrechaga, Eloisa
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MEDICAL protocols , *AUTOANALYZERS , *HEALTH policy , *HEALTH , *INFORMATION resources , *HEMATOLOGY , *PATHOLOGICAL laboratories , *QUALITY assurance - Abstract
Introduction: This paper is a report of an ICSH review of policies and practices for internal quality control (IQC) policy for haematology cell counters among regulatory bodies, cell counter manufacturers and diagnostic laboratories. It includes a discussion of the study findings and links to separate ICSH guidance for such policies and practices. The application of internal quality control (IQC) methods is an essential pre‐requisite for all clinical laboratory testing including the blood count (Full Blood Count, FBC, or Complete Blood Count, CBC). Methods: The ICSH has gathered information regarding the current state of practice through review of published guidance from regulatory bodies, a questionnaire to six major cell counter manufacturers (Abbott Diagnostics, Beckman Coulter, Horiba Medical Diagnostic Instruments & Systems, Mindray Medical International, Siemens Healthcare Diagnostics and Sysmex Corporation) and a survey issued to 191 diagnostic laboratories in four countries (China, Republic of Ireland, Spain and the United Kingdom) on their IQC practice and approach to use of commercial IQC materials. Results: This has revealed diversity both in guidance and in practice around the world. There is diversity in guidance from regulatory organizations in regard to IQC methods each recommends, clinical levels to use and frequency to run commercial controls, and finally recommended sources of commercial controls. The diversity in practice among clinical laboratories spans the areas of IQC methods used, derivation of target values and action limits used with control materials, and frequency of running commercial controls materials. Conclusions: These findings and their implications for IQC Practice are discussed in this paper. They are used to inform a separate guidance document, which proposes a harmonized approach to address the issues faced by diagnostic laboratories. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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22. Embedding Research and Extension in Postgraduate Studies: A Novel Approach to Filling the Knowledge Exchange Competency Gap in Ireland.
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Gorman, M. and Kinsella, J.
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INFORMATION sharing , *CAREER development , *AGRICULTURAL extension work , *INNOVATION adoption , *GRADUATE education , *EXCHANGE of persons programs - Abstract
Set against the backdrop of an absence of agricultural extension in the curriculum of agriculture degree programs in Ireland between 1990 and 2010, this paper examines the knowledge exchange skills needed by the next generation of farm advisors and presents the case of a practicebased postgraduate program in Ireland that seeks to address the competency gap created. It reviews an Irish post graduate program that has been designed to equip graduates with the competencies to work effectively in advisory roles. It combines student, graduate, and manager survey results on their experience and assessment of professional development with this program. The evolving role of front-line farm advisors to facilitators of knowledge exchange and innovation is recognised while a range of essential competencies are highlighted. The value of this postgraduate education for early career farm advisors is evidenced through building competencies in a range of areas and gaining a deeper understanding through applied research of the complexities of innovation adoption and the barriers to change for farmers and their families. The paper concludes that greater attention is needed to developing core competencies of farm advisors to build strong relationships of trust and influence with farmer clients. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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23. Counting Farm Injuries and Fatalities: An Assessment of Irish Occupational Health and Safety Surveillance Data Systems.
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Mohammadrezaei, Mohammad, Meredith, David, and McNamara, John
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WORK-related injuries risk factors , *RISK assessment , *DATABASE management , *RESEARCH funding , *RESEARCH methodology evaluation , *WORK-related injuries , *SYSTEM analysis , *EXPERIMENTAL design , *CONCEPTUAL structures , *RESEARCH methodology , *AGRICULTURAL laborers , *INDUSTRIAL hygiene , *INDUSTRIAL safety ,MORTALITY risk factors - Abstract
Generation of reliable data underpins the effectiveness of Occupational Health and Safety (OHS) surveillance systems. Despite the importance of understanding OHS data systems, there are few papers that provide overviews of their structure and/or content. This paper introduces a basic framework for assessing OHS data systems that will be of use to researchers internationally. We applied this approach to assess the Irish OHS data system by undertaking a data mapping exercise. We developed a checklist based on recommendations of monitoring and measurement of OHS proposed by the National Academies of Sciences, Engineering, and Medicine (USA). An assessment of published reports that present systematic OHS surveillance data was undertaken to identify the institutions or organisations responsible for collecting and curating the data, their remit, and, associated with this, their respective case definitions. We then provide an overview of the variables collected and these are then mapped against the checklist. The assessment highlights that whilst the farm fatalities dataset provides complete coverage of all fatalities, regardless of age or employment status, the same is not true of the three non-fatal injuries datasets reviewed. There are important differences in the data collection methods and, associated with this, which populations are covered. The assessment approach provides valuable insights into the strengths and weaknesses of a critical element of OHS surveillance systems, namely the production of datasets. This knowledge is important for researchers as understanding the data that informs their research is fundamental to good science. It is critical for policy-makers and other stakeholders to understand the strengths and weaknesses on which OHS policy, strategies, or education and training interventions are developed. [ABSTRACT FROM AUTHOR]
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- 2024
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24. Institutional Business Power: The Case of Ireland's Private Home Care Providers.
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MERCILLE, JULIEN and O'NEILL, NICHOLAS
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- *
HOME care services , *LOBBYING , *INTERVIEWING , *CONTRACTING out , *BUSINESS , *RESEARCH methodology , *MEDICAL practice , *COVID-19 pandemic - Abstract
The marketisation of European home care has given rise to significant private for-profit providers growth. However, little research has focused directly on commercial companies to examine the mechanisms through which they emerge, grow and shape long-term care policy – this is this paper's task. Drawing on the literature on business power, the recent concept of "institutional business power" is introduced, defined as the power flowing from the entrenched position of business actors in the provision of public social services. The paper identifies the mechanisms through which private providers have grown and assesses the extent of their institutional power by examining their influence on policy and the support they obtain from relevant home care stakeholders. The limits of providers' institutional power are also discussed. The paper relies on semi-structured interviews with representatives of public, private and non-profit home care providers. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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25. Review of the Leaving Certificate biology examination papers (1999–2008) using Bloom’s taxonomy – an investigation of the cognitive demands of the examination.
- Author
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Cullinane, Alison and Liston, Maeve
- Subjects
- *
BLOOM'S taxonomy , *EDUCATIONAL tests & measurements , *DIPLOMAS (Education) , *HIGH-stakes tests , *BIOLOGY , *PRIMARY education , *HIGHER education - Abstract
It is widely recognised that high-stakes assessment can significantly influence what is taught in the classroom. Many argue that high-stakes assessment results in a narrowed curriculum where students learn by rote rather than developing higher cognitive skills. This paper describes a study investigating the various cognitive objectives present from Bloom’s Taxonomy Educational Objectives on the Leaving Certificate biology examination. The study analysed examination papers from the past and current biology syllabuses. Analysis was also carried out to determine the marks being awarded to the different cognitive objectives. The findings show that the examination predominately includes questions that do not promote higher levels of thinking. The majority of the marks on the paper were allocated to the lower objectives of the taxonomy, suggesting students can rely on rote learning to succeed when undertaking the biology examination. This study strongly highlights how high-stake examinations have a narrow scope in terms of student achievement and shows how current biology examination procedures promote low-level learning. This low level of thinking promotes rote learning and regurgitation of facts, requiring little to no understanding of the topics. To prepare students for the working world, there needs to be a shift from only terminal exams to a mixed approach. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
- Full Text
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26. Insider versus outsider workplace mistreatment and their impact on affective ill‐being in healthcare professionals: Can personal resources act as buffers?
- Author
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Yaranon, Paolo, O'Shea, Deirdre, Bosak, Janine, and Sommovigo, Valentina
- Subjects
- *
PSYCHOLOGICAL resilience , *SUPERVISION of employees , *MEDICAL personnel , *SELF-efficacy , *T-test (Statistics) , *WORK environment , *INVECTIVE , *VIOLENCE against medical personnel , *VISITING the sick , *VIOLENCE in the workplace , *DESCRIPTIVE statistics , *IRISH people , *JOB stress , *FACTOR analysis , *DATA analysis software , *WELL-being , *PSYCHOSOCIAL factors , *OFFENSIVE behavior , *REGRESSION analysis - Abstract
Aims: Workplace stress can negatively impact healthcare providers' professionalism and quality of care. One source of workplace stress is the experience of workplace mistreatment. Drawing on the Job Demands‐Resources theory, this study aimed to (a) investigate the impact of mistreatment frequency experienced by healthcare workers from insider sources (i.e. co‐workers, supervisors) and outsider sources (i.e. patients, visitors) on affective ill‐being and (b) the potential moderating role of trait resilience and trait self‐efficacy, as personal resources, in the mistreatment–ill‐being relationship. Design: Lagged design. Methods: We collected data from 153 Irish healthcare workers between January 2018 and June 2019 via three surveys, separated by 1‐week intervals. Personal resources were measured at Time 1, frequency of mistreatment from the two sources was assessed at Time 2 and affective ill‐being was assessed at Time 3. We used moderated regression analyses to evaluate the association of mistreatment frequency from the two sources and affective ill‐being and the moderating effect of personal resources. Results: Only insider mistreatment frequency was positively related to affective ill‐being. Furthermore, the positive impact of insider mistreatment on affective ill‐being was moderated by self‐efficacy (but not by trait resilience). In contrast to our expectations, the relationship was stronger at high levels compared to low levels of self‐efficacy. Conclusion: Mistreatment from co‐workers and supervisors is linked to higher levels of affective ill‐being. Additionally, healthcare workers with high self‐efficacy were more vulnerable to the negative consequences of co‐worker and supervisor mistreatment as it impacted their affective ill‐being. Impact: These findings extend the literature on workplace mistreatment by integrating insider and outsider perpetrators of mistreatment and examining their differential impact on the employees' affective ill‐being. It also highlights mistreatment from organizational insiders as a significant factor in the relationship between mistreatment and affective ill‐being. Patient or Public Contribution: No patient or public contribution. What Does this Paper Contribute to the Wider Global Community?: The findings underscore the detrimental impact of workplace mistreatment on the well‐being of healthcare professionals.The study findings of higher frequency of insider mistreatment being associated with increased affective ill‐being call for action, with line managers and supervisors being critical to achieving respective changes in healthcare workers' environment.The findings have implications for policymakers interested in developing a framework to support healthcare professionals in addressing workplace mistreatment, enabling them to effectively fulfil their role as care providers. [ABSTRACT FROM AUTHOR]
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- 2024
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27. 'We live here and play here, we should have a say': An exploration of children's perceptions of place‐making in the Market community, Belfast.
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McAteer, Benedict, Loudon, Emma, and Higgins, Kathryn
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- *
PLAY , *INTERVIEWING , *COMMUNITIES , *RESEARCH methodology , *METROPOLITAN areas , *SOCIAL networks , *PUBLIC health , *PRACTICAL politics , *NEIGHBORHOOD characteristics , *BUILT environment , *CHILD behavior , *CHILDREN - Abstract
Children learn through interaction with their surroundings, meaning that their experiences of place directly contribute to their personal development. Despite this, the needs of the youth are rarely factored into development plans. This is a major obstacle to the sustainable and inclusive development of places. Examining potential pathways to correct this issue, this paper presents the findings of research conducted with young people from the Market area of Belfast. The research engaged with two groups (n = 11) in a participatory investigation of how young people engage with the built environment. Using several participatory methods, including narrative walkabouts, mapping exercises and semi‐structured group interviews, the children engaged as co‐researchers. We link to idea of 'third places' to frame our analysis, demonstrating how children in the Market community have strong opinions of how space is, and should be, designed and managed. We reveal interesting dynamics regarding the children's perceived exclusion from the city centre and concerns about how poor planning is harming their community's public health. We conclude by reflecting upon some of the children's proposed solutions, as well as by presenting two outcomes of our study that hint at the potential future role of young people in co‐designing the built environment. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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28. Consuming the redundant renewable energy by injecting hydrogen into the gas network: A case study of electricity-gas-hydrogen coupled system of Ireland.
- Author
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Zhou, Suyang, Zheng, Siyu, Zhang, Zeyu, Gu, Wei, Wu, Zhi, Lv, Hongkun, Zhang, Kang, and Zuo, Juan
- Subjects
- *
RENEWABLE energy sources , *COMPRESSED natural gas , *WATER pipelines , *HYDROGEN as fuel , *SOLAR energy , *NATURAL gas , *WIND power - Abstract
Converting surplus electricity into hydrogen is considered a promising way for accommodating large-scale wind or solar power. However, it is expensive to establish a new-built hydrogen network or storage facilities at the current stage. Hydrogen-enriched compressed natural gas (HCNG), a mixture of natural gas and hydrogen, can be an alternative approach to consuming surplus renewable energy in the short-medium term. This paper investigates the feasibility of establishing an electricity-gas-hydrogen coupled energy system by modeling the HCNG network, power grid, and hydrogen electrolyzer in Ireland with consideration of pipeline characteristics. The economic analysis based on the planning results of the coupled system is presented in detail. When the hydrogen injection ratio reaches 20% at the HCNG stations, the system operating cost and carbon emission can be reduced by 24.2% and 6.4%, and 100% wind can be consumed. • A detailed modeling method for HCNG pipeline pressure drop and line pack is proposed. • An EGH-IES planning model encompassing entire HCNG supply chain is established. • A case study is conducted based on the real energy system in Ireland. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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29. Towards a Reconciliation Between Simulational, Ludic, and Historiographical Practices in Research.
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Marino Carvalho, Vinicius
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- *
BOARD games , *PHASE space , *SIMULATION games , *FOURTEENTH century , *DESIGN services - Abstract
Background: Simulations, ludic or otherwise, have so far struggled to gain a foothold in mainstream historiography. Some authors suggest there may be fundamental incompatibilities between history and the language of simulations and scholarly games. Others believe that designing, employing, and validating historical simulations may be simply too costly and/or labor-intensive to justify their widespread adoption. Intervention: This paper intends to identify points of friction between historiography and simulation-based research and suggest practical solutions to these issues. Methods: My discussion is based on the description and analysis of a case study, the ThomondSim/ The Triumphs of Turlough research project. The initiative consisted of the development and application of an agent-based computational model (ABM) and a scholarly board game to investigate the possible associations between economic, environmental, and military hazards in 13th and 14th centuries Ireland. Results and Discussion: Ensuring the simulations matched historical evidence to a standard deemed acceptable by the historiographical community limited their phase space, compromising their capacity to explore emergent phenomena. The intricacy of the underlying conceptual model suited the ABM better than the board game, which struggled to reconcile complexity with good game design practices. The board game, however, proved to be an effective validating tool for the ABM. Limitations and Suggestions for Further Research: The project espoused an overt simulation- and game-centric approach, paying little attention to unguided play. Recent literature suggests that fostering, rather than hindering, playful exploration could address some of the pitfalls identified by this project. Conclusion: Play could be a means of reconciliation between simulational, ludic, and historiographical practices. However, to ensure that projects adhere to epistemic standards, it is recommended that a methodology is developed to integrate it into research in ways that can be tested and evaluated. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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30. Foodism in Ireland: feeding foodie philosophy or showing a shift in contemporary food culture?
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Reil, Sinéad and Farrell, Kathleen
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- *
CULTURE , *SUBCULTURES , *FOOD festivals , *FOOD industry , *CULTURAL studies , *THEMATIC analysis , *FOOD tourism , *HABIT - Abstract
This paper examines contemporary food culture in Ireland through the phenomenon of foodism and the habits and traits expressed through the subculture of foodies. Elements and actors of the Irish food scene are also considered. Qualitative research was applied to investigate the five research objectives posed. This featured six in-depth interviews with "key informants" from Ireland's tourism sector, educational sector, food sector, and a state food agency, conducted during 2020. The study draws insights from the fields of cultural studies and sociology. Thematic analysis was applied as part of the methodology process, from which five themes developed from the data findings. These are: (1) An evolving Irish food culture, (2) Two perceptions of Irish food, (3) A breakdown of hierarchies, (4) Influencing factors, (5) State body remits. The primary research reveals that industry experts and academics concur that Irish food and culture have "evolved" from a more traditional cuisine and culture and that these are dynamic entities. In addition, it establishes that there is a "hunger for food" amongst a small but growing cohort of Ireland's population, who wish to gain information via food media and to access food experiences such as culinary courses, gastro tours and food festival events. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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31. "When cheifest Rebell feede": food, fosterage and fear in early modern Ireland.
- Author
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Shanahan, Madeline
- Subjects
- *
FOREIGN bodies , *FOOD habits - Abstract
As English forces struggled to bring Ireland under Crown control during the early modern period, all aspects of Irish culture and identity were seen as potentially subversive. Irish culture posed a threat to both the regime, and to the very identity and sanctity of English bodies in a foreign and hostile land. This paper will examine the role that food played in the political discourse of sixteenth and seventeenth-century Ireland. It will investigate how aspects of food, from infant feeding, to diet, dairying and cookery became a cause of concern for English colonial commentators. It will show how descriptions of foodways were used to cast the Irish as "savages," but importantly, how they were also used to illustrate the "degeneration" of the Old English. Through the discussion of food commentators warned newcomers not to follow the fate of their predecessors; their bodies were not impenetrable, and through culinary contact, they too could be "undone." [ABSTRACT FROM AUTHOR]
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- 2024
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32. Umbrella review of hospital passports: Their use and improvements.
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Jackson, Jennifer, Sinyor, Jessica, and Trower, Hayley
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- *
HOSPITAL utilization , *CONSCIOUSNESS raising , *PEOPLE with intellectual disabilities , *AUTISTIC people , *INTELLECTUAL disabilities , *DISABILITY retirement - Abstract
Background Methods Findings Conclusions The hospital or health passport is widely acknowledged as a central element in making reasonable adjustments for patients with intellectual disabilities. Historically, the health passport has been used exclusively for patients with intellectual disabilities; however, it has wider applications for any patient requiring additional support. Commonly, it documents past medical history, communication needs and a person's means of expressing pain. There are, however, significant barriers to their use, meaning patients are unable to access adjustments to improve their experiences in a healthcare system that already marginalises and discriminates against people with intellectual disabilities. This umbrella review aims to establish whether the passport is an effective reasonable adjustment, identify barriers to its use and make recommendations to alleviate these barriers.Database and citation searches informed a synthesis of international evidence to address these aims. Following the removal of duplicates and screening, nine review papers originating from the United Kingdom, Australia and Ireland were identified for inclusion. Seven focus on the use of passports for patients with intellectual disabilities, one on the use of passports for autistic people, and one exploring the use of passports for patients with dementia.The results demonstrated that the passports are effective in improving care for patients with intellectual disabilities. However, there are barriers to its routine use. We identified three main issues with the current use of the hospital passport. First, there is a need for greater managerial support to implement reasonable adjustments. Second, standardisation of the passports at a national level will make them more accessible to healthcare professionals and will ensure that information is not ‘buried’; the development of a standardised passport must involve consultation of patients, carers and staff to meet the needs of all stakeholders. Finally, education for all healthcare staff to raise awareness of the passport and ensure it is utilised appropriately will ultimately pave the way for positive, long‐lasting change.Passports can be an effective means of communicating reasonable adjustments. Addressing a lack of awareness of its utility, ensuring managerial commitment to implementing reasonable adjustments and making the passport accessible through a standardised format will empower patients to engage with their own care. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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33. Charting a course for peatland restoration in Ireland: a case study to support restoration frameworks in other regions.
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Farrell, Catherine A., Connolly, John, and Morley, Terry R.
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- *
PEATLAND restoration , *ECOSYSTEMS , *SUSTAINABILITY , *ECOSYSTEM services , *LAND use , *PEATLANDS , *VALUE (Economics) , *GOVERNMENT policy - Abstract
Peatlands are complex landscape ecosystems. Since the beginning of the last century, they have been viewed as wastelands, with little or no economic value of note in their natural state. This led to their hidden values, particularly their contributions to human well‐being, and global and local support systems, being completely overlooked in policy and decision‐making, both at national and global levels. In this paper, we highlight some of the complexities relating to Irish peatlands: from their traditional use, to changes in land use relating to national and European policy changes in the last century. We then outline essential supporting components of a framework for their restoration and future sustainable use. Policy relating to agriculture, forestry, and energy has driven most of the land use change in Ireland, particularly since the mid‐1900s, and this has led to dramatic changes in peatland extent and condition, with negative impacts on the flows of ecosystem services and benefits for people. Restoration of peatlands has significant potential to reverse those negative flows and deliver benefits (local and global) for carbon, water, biodiversity, and people. Local communities can, and are keen to, support the delivery of peatland restoration, but they need to be supported by national agencies and policy frameworks that address social, economic, and environmental targets. The act of restoration creates opportunities to re‐connect with peatlands in a positive way, re‐enforcing the intrinsic and reciprocal values of peatlands, and ultimately supporting their sustainable use. [ABSTRACT FROM AUTHOR]
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- 2024
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34. Bilingual, Bitextual Bellewe: A Case Study of Paleographical Code-Switching in Late Medieval English-Controlled Ireland.
- Author
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O'Byrne, Theresa
- Subjects
- *
CODE switching (Linguistics) , *MANUSCRIPTS , *SCRIBES - Abstract
This paper examines the case of Nicholas Bellewe (fl. 1423–74), an Anglo-Irish scribe who penned three manuscripts (Wiltshire, Longleat House, MS 29, Oxford, Bodleian Library MS e Musaeo 232, and a portion of Dublin, City Archives, Chain Book of Dublin) as well as over seventy extant legal documents. Bellewe signed the e Musaeo manuscript and nine of his extant legal documents, providing proof of his involvement in both legal and literary endeavors. The legal deeds also reveal details of Bellewe's varied career, which included work for private individuals and families, the offices of the City of Dublin, and the Guild of Saint Anne. Bellewe's career is analogous to the contemporary London Guildhall scribes of Geoffrey Chaucer that Linne Mooney and others have discussed. Close examination of Bellewe's documentary and manuscript hands reveals that the scribe made changes, both small and large, to some letterforms and to the level of decoration he used when writing legal deeds and manuscripts. Moreover, between his literary and legal documents, small yet significant differences exist in Bellewe's system of punctuation and use of Latin abbreviations. While Bellewe's Dublin represents a different environment from scribe B/Adam Pinkhurst's London, investigation of Bellewe's career and behavior can help us better understand what sort of career and scribal behavior we might expect from Bellewe's London contemporaries, including Pinkhurst. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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35. ‘I cannot give the name of the source to the court’.
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Rafter, Kevin
- Subjects
- *
COURTS , *FREEDOM of the press , *JOURNALISTS , *PRESS , *IMPRISONMENT , *ORGANIZATION - Abstract
This article examines the case of the first Irish journalist to be imprisoned for refusing to reveal his sources. In his capacity as political correspondent with the
Irish Press , Joseph Dennigan (1910–1950) was called as a witness in a case in December 1933 against a member of the ‘Blueshirts’, a quasi-fascist organisation. Dennigan declined to identify the official sources who he consulted in writing an article about the prohibition of the organisation. The decision to impose a one-month sentence on the journalist generated considerable political reaction and extensive coverage in the Irish and international press. Drawing on Dennigan papers, this article examines the contempt case and also issues that arise from this particular episode, specifically government transition and politician-source relations. [ABSTRACT FROM AUTHOR]- Published
- 2024
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36. Exploring the experiences of a person with dementia and their spouse who attended a telehealth music therapy programme: Two case examples from Ireland.
- Author
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Kelly, Lisa, Kenny, Niamh, McGlynn, Cathy, Richardson, Ita, and Moss, Hilary
- Subjects
- *
FAMILIES & psychology , *SPOUSES , *MUSIC therapy , *INTERVIEWING , *QUESTIONNAIRES , *JUDGMENT sampling , *TELEMEDICINE , *FAMILY attitudes , *EXPERIENCE , *THEMATIC analysis , *RESEARCH , *RESEARCH methodology , *RURAL conditions , *DEMENTIA , *PHENOMENOLOGY , *PSYCHOLOGY of caregivers , *PATIENTS' attitudes , *DEMENTIA patients - Abstract
There is an increased need for accessible psychosocial interventions that support both people with dementia and their spouses. Recent research demonstrates the benefits of music therapy and caregiver-delivered music therapy for this population. This paper contributes to the emerging evidence base on telehealth music therapy for people with dementia outside of a COVID-19 era when in-person services were available. This exploratory phenomenological study explores the experiences of two couples who attended a six-week telehealth music therapy programme via two detailed case examples. Online semi-structured interviews with each couple were conducted pre and post intervention and analysed using Interpretative Phenomenological Analysis. Three shared themes emerged from the data analysis including (1) social isolation and lack of confidence linked to dementia diagnosis is worsened in rural locations, (2) song singing and song writing enables us to revisit happy memories, and (3) telehealth delivery increases access due to geographical location. The findings are presented in a narrative case study format to provide rich detailed descriptions of the music therapy programme and to illuminate the experiences of the participants. In both examples, telehealth delivery expanded access to music therapy (which was otherwise unavailable) and stimulated reminiscence which in turn encouraged meaningful engagement between the couple. The delivery of music therapy via telehealth, alongside in-person delivery, has the potential to expand access to music therapy to those who may not have access to or are no longer able to attend community support services due to geographical location, increased cognitive decline or reduced mobility. The successful delivery of telehealth music therapy is dependent on several factors including digital literacy, access to appropriate technological devices, caregiver support and level of cognitive decline. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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37. Performing masculinity and the micropolitics of youth cafés in Ireland: an ethnography.
- Author
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Bolton, Robert
- Subjects
- *
MASCULINITY , *SUBURBS , *YOUNG adults , *ETHNOLOGY , *RESTAURANTS , *YOUTH societies & clubs , *BOMBINGS - Abstract
This paper contributes to the literature on geographies of masculinities by examining how young men's (aged 12–18) performances of masculinity through humour was mutually constitutive of and constituted by the spaces of the Fusion and Retro youth cafés in the city and suburbs of Cork in the south of Ireland. Research on open access youth provision such as youth clubs, centres and youth cafés have found that they can afford young people the opportunity to 'be themselves', reflecting the ideals of safety and inclusivity that are meant to be sustained in these spaces. Using ethnographic observations, this paper shows that such ideals are never a given as the inequality embedded in gendered performances mean the spaces must be continually (re)produced as inclusive. It contributes to an understanding of youth cafés as micropolitical spaces of becoming that shape and are shaped by negotiations over meanings of gender and masculinity in particular. Furthermore, it advances two new concepts - 'humorous improprieties' and 'humour bombing' - to the performative geographies literature, highlighting two nuanced ways in which young men construct themselves as men in relation to space. [ABSTRACT FROM AUTHOR]
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- 2024
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38. Labour geography and the state: Exploring labour's role in working against, with and through the state to improve labour standards.
- Author
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Hastings, Thomas and Herod, Andrew
- Subjects
- *
GEOGRAPHY , *SPATIAL ability , *ECONOMIC geography , *NATION-state - Abstract
State labour inspection has been relatively underresearched in economic and labour geography, despite its prospective role in tackling worker exploitation as part of national state regulatory strategies. This paper seeks to address this gap by critically examining state labour inspection as a government function capable of upholding labour standards within and across economic space. A key contribution of the paper is to make stronger connections between workers' spatial strategies and their ability to shape how labour inspection and standards enforcement is carried out. Focusing upon the UK and Ireland, we examine different ways in which some labour-friendly groups have sought to contest but also to support state labour inspection efforts with a view to protecting workers. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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39. Unveiling the Context of practice: Teacher Allocation Models to support inclusion in primary schools in Ireland.
- Author
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Curtin, Louise and Egan, Margaret
- Subjects
- *
MAINSTREAMING in special education , *SPECIAL education teachers , *CAREER development , *EDUCATION policy , *PRIMARY schools , *INCLUSIVE education - Abstract
Inclusive education in Ireland has made major advances in the past two decades, with an increasing number of students with special educational needs (SEN) attending mainstream schools. This paper is part of a bigger study which examines the Special Education Teacher Allocation Model (SETAM) (Circular 0013/2017 Department of Education and Skills 2017) as the current model to support inclusion in practice in Irish primary schools. Guided by a constructivist paradigm, a mixed-methods approach was adopted to reveal the workings of the SETAM, in the Context of Practice. This paper presents the findings from the first phase of data collection; a national, online survey. Findings show that greater teacher autonomy to identify students' needs and allocate support, under this model, was welcomed by participants. However, limited continuous professional development sees some teachers feeling underprepared to identify such needs. More collaborative and inclusive practice is evident since the introduction of the SETAM, with increased use of in-class support for students with SEN. These findings may inform key stakeholders in inclusive education policy and practice, at a national and international level, by unveiling areas of success and potential for improvement, as recognised by Irish teachers. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
40. Organizational attributes and client engagement in community opiate substitute prescribing services.
- Author
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Kelly, Peter, Hegarty, Josephine, Dyer, Kyle R, and O Donovan, Aine
- Subjects
- *
DRUG addiction , *PATIENT participation , *CLIENT relations , *CROSS-sectional method , *COMMUNITY health services , *PATIENT satisfaction , *SURVEYS , *DRUG prescribing , *QUESTIONNAIRES , *PHYSICIAN practice patterns , *POLICY sciences - Abstract
Little is known about the relationship between treatment organization characteristics and client outcomes or drug-related harms in community opiate substitution therapy. In the absence of sufficient scientific evidence, the organizational configuration of addiction treatment services is often decided on an ad hoc and sometimes politically motivated basis as the evaluation of the impact of policies or practices on clients at the organizational level is limited. The objective of this multi-site cross-sectional study was to identify and understand how client characteristics and staff perceptions of organizational functioning related to client engagement in community-based opiate substitution therapy services in Ireland. This paper reports on a cross-sectional survey of clients (n = 262) and staff (n = 132) questionnaires across 12 discrete community-based prescribing service providers (organizations) in Ireland. Measures of client engagement in treatment were shown to be higher in organizations with more positive staff ratings of organizational functioning. In particular, in organizations where staff reported having greater job autonomy, clients reported better overall engagement. Specifically, greater staff autonomy in organizations related to greater levels of treatment participation (p = 0.034), treatment satisfaction (p < 0.001), and better rapport with staff (p < 0.001). Clients who were the longest in treatment expressed significantly poorer rapport with staff (p = 0.44) and were less likely to seek out support from peers (p = 0.023), while those in stable accommodation reported greater participation in treatment (p = 0.009). Levels of peer support were not related to organizational characteristics, but clients with lower levels of education (p = 0.002) and those in early treatment (p = 0.017) were more likely to seek support from peers. The findings establish the importance of assessing organizational and client attributes as part of an overall strategy for enhancing the quality of treatment. This paper provides valuable information for policymakers and provides an ample basis for further exploration of how treatment organizations work, and not just that they work. Policymakers and planners need to consider introducing specific interventions for clients or staff in the context of a 'whole systems' approach. From an organizational and planning perspective, this should involve further consideration of measures that relate to increasing staff's sense of autonomy. This paper provides further evidence that the success of policy-making or planning relating to treatment organizations can be successfully measured at the client and organizational levels. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
41. Navigating Through Disruption: How are School Principals Leading Digital Learning in Secondary Schools in Ireland.
- Author
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Kilcoyne, Anthony
- Subjects
- *
DIGITAL learning , *SCHOOL principals , *PROFESSIONAL employee training , *DISRUPTIVE innovations , *EDUCATIONAL standards , *SECONDARY schools , *DIGITAL technology - Abstract
AbstractThe COVID-19 pandemic forced school leaders to rapidly adopt digital technologies, sparking new awareness and discussions about digital education and its transformation. Despite significant advances, these changes may be minor compared to the potential impact of artificial intelligence and immersive technologies in education. This paper explores digital learning leadership in Ireland’s secondary school sector using the ISTE Standards for Educational Leaders as a guiding conceptual framework. Qualitative interviews with school principals from various secondary school types provide insights into their existing leadership practices and anticipate their future needs. Key findings revealed digital learning visions integrally woven into the school’s broader learning and educational vision and fresh assessments of student digital competence. They highlighted the salience of the school context in decision-making and the drive for more strategic deployment of formal leadership positions and relationships within and between schools. The implication of these findings underscores the imperative of professional learning models for school leaders that are sensitive to the unique context of each school, their bespoke opportunities and challenges, and the rapid advancements in digital technologies. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
42. An exploration of Northern Ireland general practice pharmacists' views on their role in general practice: a cross-sectional survey.
- Author
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Hassan, Abrar H. F., Barry, Heather E., and Hughes, Carmel M.
- Subjects
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CROSS-sectional method , *FAMILY medicine , *OCCUPATIONAL roles , *INTERPROFESSIONAL relations , *RESEARCH funding , *PRIMARY health care , *QUESTIONNAIRES , *CONTENT analysis , *FISHER exact test , *DESCRIPTIVE statistics , *MEDICATION reconciliation , *PHARMACISTS , *PHARMACISTS' attitudes , *PSYCHOSOCIAL factors , *LABOR supply - Abstract
Background: There is limited research examining the views of general practice pharmacists (GPPs) on their role and their impact in general practice. The aim of this study was to explore GPPs' views regarding this role and its potential impact within general practice in Northern Ireland (NI). Methods: A paper-based self-administered questionnaire was mailed to 319 general practices in NI in 2022, directed to the GPP who spent most time at the practice. A variety of closed and open questions were included in six sections. Responses to closed questions were analysed descriptively whilst open question responses were analysed using content analysis. To ascertain associations between variables (e.g. GPP prescribing status, working arrangements and aspects of collaboration with GPPs), Fisher's exact test was employed with an a priori significance level of p < 0.05. Results: 155 responses were received equating to a response rate of 48.5%. Most participants (72.3%) were female, independent prescribers (71%), and 64.5% were currently using their independent prescriber qualification. Services that were provided by most GPPs were medication reconciliation (99.4%) and medication reviews (97.4%). The most common method of communication between GPPs and general practitioners (GPs) was face-to-face (89.0%). Telephone was the most common method of communication between GPPs, community pharmacists (97.4%) and patients (98.7%). Most GPPs (> 80%) showed positive attitudes towards collaboration with GPs and those who worked in multiple practices were more likely to agree with the Attitudes Towards Collaboration Instrument for pharmacists (ATCI-P) statements compared to those who worked in a single practice (p < 0.05). Less than 40% (36.8%) of GPPs agreed that patients were aware of the role they provided. The majority of GPPs (80.6%) expressed positive views on their impact on primary care. Analysis of the free-text comments revealed the need for more GPP patient-facing activities, GPP-specific training, and promotion of the GPP role. Conclusion: The findings indicated that GPPs had largely positive views about their role and their impact on primary care. The results may be helpful for practices and service commissioners. Further research is necessary to explore the perspectives of patients regarding the role of the GPP and to enhance patients' awareness of the GPP. [ABSTRACT FROM AUTHOR]
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- 2024
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43. Human resource management practices on Irish dairy farms: an exploratory study.
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Lawton, Thomas, Gorman, Monica, and Beecher, Marion
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PERSONNEL management , *DAIRY farms , *DAIRY farming , *DAIRY farm management , *FARM size , *DAIRY farmers , *ANIMAL herds , *INDUSTRIAL hygiene - Abstract
Context: Managing people outside the farm family unit is a new issue for many Irish dairy farmers. In the context of rapid growth, the demand for employees has increased, creating the need for Irish dairy farmers to have human resource management (HRM) skills. Aims: This paper explores the extent and type of HRM practices adopted by Irish dairy farmers and the factors that influence their adoption. Methods: A questionnaire was developed, piloted, and issued to farmers on the basis of herd size and location. Data from 203 dairy farmers who employ people were analysed to examine the adoption of different HRM practices and the influence of farm characteristics, farmer demographics and farmer attitudes on their adoption. HRM practices included compliance with employment legislation, health and safety, different approaches to recruitment, workforce management and retention. The questionnaire included one or more variables for each of these HRM practices. Where more than one variable was included, an aggregate variable was developed for that practice. Key results: Whereas, overall, there was a low level of adoption of best HRM practices, farm characteristics such as herd size and number of employees had a significant influence on farmers' adoption of compliance with employment legislation, health and safety, recruitment, workforce management and retention practices. Demographic factors such as age, level of education, and average hours worked influenced farmers compliance with employment law legislation, workforce management practices and retention practices. Conclusions: The study highlighted an overall low compliance with employment legislation and low adoption of best practices in managing staff among dairy farmers in Ireland. Implications: This study highlighted that improvement is needed in all areas of HRM on Irish dairy farms. The findings of this study would be useful to farm advisors who support dairy farmers in improving their management of their businesses. Overall, this study has contributed to a greater understanding of the challenges in managing people in agriculture and how certain factors influences the adoption of HRM practices on dairy farms. The dairy industry's recent growth in Ireland has resulted in a high demand for additional workers, increasing the requirement for farmers to be skilled in Human Resource Management (HRM). This study identified that the adoption of HRM practices is influenced by farm characteristics, in particular herd size, the number of employees on the farm. This study has contributed insights into the prevalence of specific HRM practices on Irish dairy farms, and indicated that there is a significant scope for improvement. A novel aspect of this study was the focus on the potential factors that influence the adoption of HRM practices on Irish dairy farms. The findings of this study could be used by agricultural advisors and those working in HRM to provide tailored advice to support dairy farmers and other small business owners in managing their employees. [ABSTRACT FROM AUTHOR]
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- 2024
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44. A systematic literature review of home-school partnership for learners with English as an Additional Language (EAL): a way forward for the UK and Ireland.
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Stewart, Maria, Skinner, Barbara, Hou, Heng, and Kelly, Ronan
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ENGLISH language ability testing , *PARTNERSHIPS in education , *EDUCATIONAL intervention , *EDUCATIONAL attainment - Abstract
Home-school partnership has often been lauded as a key contributor in raising educational attainment. However, the level of partnership experienced by parents who use English as an Additional Language (EAL) can be limited by poor English-language proficiency and other unique challenges. This paper is concerned with a systematic review and analysis of the evidence of home-school partnership for learners with EAL in primary schools. It identifies international research trends, and gaps in research in the United Kingdom and Ireland. The analysis demonstrates that there is a dearth of literature pertaining to home-school partnership interventions in the United Kingdom and Ireland. It also identifies a global necessity for interventions aimed at instigating attitudinal change among teachers and systemic institutional change. [ABSTRACT FROM AUTHOR]
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- 2024
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45. Whistleblowing Litigation and Legislation in Ireland: Are There Lessons to be Learned?
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Kierans, Lauren
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WHISTLEBLOWING , *LEGISLATION , *WHISTLEBLOWING laws , *LEGISLATIVE amendments - Abstract
The Protected Disclosures Act 2014 is Ireland's main workplace whistleblowing legislation. It will be amended by the Protected Disclosures (Amendment) Act 2022 on 1 January 2023 on foot of Ireland's obligation to transpose into national law Directive 2019/1937/EU of the European Parliament and the Council of 23 October 2019 on the protection of persons who report breaches of Union law. This paper addresses the question of whether, in amending the 2014 Act, there were lessons that could have been learnt from the experience in the UK in the operation of its whistleblowing legislation. In answering this question, the findings of an analysis of the case law under the 2014 Act between 15 July 2014 and 15 July 2020 are presented and discussed. In conducting the case law analysis, specific issues were assessed, including, procedural issues concerning the forum for the taking of a claim, costs, fees, processing times, and time limits for presenting penalisation claims and substantive issues regarding the type of claim and the success rate. The research established that there are deficiencies in the 2014 Act, and in some of its amendments under the 2022 Act. It also established that there is an inequity in the treatment under the legislation of 'employees' and workers other than employees. The author concludes that to address these procedural and substantive deficiencies and inequities, Ireland should have gone beyond the minimum standards of the Directive and looked to the UK for guidance. [ABSTRACT FROM AUTHOR]
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- 2024
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46. From acting as a crutch to activating as a catalyst: a spectrum of responses from Irish adults regarding religious education and faith development in COVID times.
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Sweetman, Bernadette and O'Farrell, Cora
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RELIGIOUS education , *COVID-19 pandemic , *FAITH , *ALTRUISM - Abstract
The Adult Religious Education and Faith Development project (AREFD) was launched in 2018 at the Mater Dei Centre for Catholic Education, DCU. As part of the study, the research team consulted variety of people involved in AREFD across a range of contexts. The purpose of these consultations was to harness their 'lived wisdom', showcasing the wide variety of opportunities for engagement in and identifying possible new approaches to AREFD. When COVID-19 struck, the research team availed of the opportunity to discuss the impact of the pandemic on the religious education and faith development of this particular cohort of Irish adults. Thematically analysed, the data showed a spectrum of responses. The pandemic prompted deep reflection and a re-evaluation of the importance of religion and faith in their lives. Ranging from gaining comfort and solace from their faith to being moved to acts of compassion and altruism based on their religious beliefs, the impact of the pandemic on the faith lives of these Irish adults was diverse. This paper provides an account of how the COVID-19 pandemic impacted the faith lives of some Irish adults, prompting reflection on how this impact might shape the future of AREFD in Ireland. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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47. Breaking new ground? An analysis of the use of embedded occupational therapy in a postsecondary education programme for students with intellectual disabilities.
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Ringwood, Barbara, Banks, Jennifer, and Shevlin, Michael
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STUDENT assistance programs , *INTERPROFESSIONAL relations , *UNIVERSITIES & colleges , *STUDENTS with disabilities , *SCHOOL administrators , *MAINSTREAMING in special education , *INTELLECTUAL disabilities , *OCCUPATIONAL therapy , *ORGANIZATIONAL structure , *PSYCHOLOGY of college students , *SPECIAL education , *PSYCHOSOCIAL factors - Abstract
Background: Despite the growing diversity among students in higher education, nonprogression to postsecondary education persists for many students with intellectual disabilities with low completion rates for those who do progress. Research suggests that occupational therapy (OT) support can be extremely beneficial in assisting students. Less is known however about the impact of OT in higher education. This study aims to examine the use of OT embedded in a postsecondary programme for students with intellectual disabilities. Methods: This study uses a scoping review of relevant literature and a qualitative analysis of OT working in a higher education programme specifically designed for students with intellectual disabilities in Ireland. Findings: This paper highlights how the OT support within this programme uses a four‐fold collaborative approach supporting students, staff, business partners and wider organisational structures in the university. Conclusion: The analysis highlights the opportunities for collaboration between OT and curriculum developers, teaching and ancillary staff and students in higher education along with the significant OT input into work placements and internships with business partner mentors. Challenges in educating stakeholders to understand OT in the higher education environment would suggest a substantial need for further research. Accessible summaries: Many students with intellectual disabilities go to university now. Some students find university hard. They need help with university.We did research on one programme for students with an intellectual disability. This programme has occupational therapists. The occupational therapists help students.Occupational therapy helps people with problems/challenges in university.Our research showed how occupational therapists can work with students with an intellectual disability in university.The study also documented how the occupational therapists work with other people to help the students such as lecturers, people who design the programme and business people. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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48. Patient perspective on observation methods used in seclusion room in an Irish forensic mental health setting: A qualitative study.
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Shetty, Shobha Rani, Burke, Shauna, Timmons, David, Kennedy, Harry G., Tuohy, Mary, and Terkildsen, Morten Deleuran
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QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *SCIENTIFIC observation , *SECLUSION of psychiatric hospital patients , *FORENSIC psychology , *RETROSPECTIVE studies , *JUDGMENT sampling , *SOUND recordings , *THEMATIC analysis , *MEDICAL records , *ACQUISITION of data , *RESEARCH methodology , *PHENOMENOLOGY , *PATIENTS' attitudes - Abstract
Accessible Summary: What is known on the subject?: Nurses' observation of patients in seclusion is essential to ensure patient safety.Patient observation in seclusion assists nurses in adhering to the requirements of mental health legislation and hospital policy.Direct observation and video monitoring are widely used in observing patients in seclusion.Coercive practices may cause distress to patient‐staff relations. What the paper adds to existing knowledge?: We add detailed information on specific observation methods in seclusion and compare them from the perspective of patients.Nurses communicating with patients ensures relational contact and that quality care is provided to patients even in the most distressed phase of their illness.Providing prior information to patients on observation methods in seclusion and the need for engaging patients in meaningful activities, while in seclusion are emphasized.Observation via camera and nurses' presence near the seclusion room made patients feel safe and gave a sense of being cared for in seclusion.Pixellating the video camera would give a sense of privacy and dignity. What are the implications for practice?: The overarching goal is to prevent seclusion. However, when seclusion is used as a last resort to manage risk to others, it should be done in ways that recognize the human rights of the patient, in ways that are least harmful, and in ways that recognize and cater to patients' unique needs.A consistent approach to relational contact and communication is essential. A care plan must include patient's preferred approach for interacting while in seclusion to support individualized care provision.Viewing panels (small window on the seclusion door) are important in establishing two‐way communication with the patient. Educating nurses to utilize them correctly helps stimulate relational contact and communication during seclusion to benefit patients.Engaging patients in meaningful activities when in seclusion is essential to keep them connected to the outside world. Depending on the patient's presentation in the seclusion room and their preferences for interactions, reading newspapers, poems, stories, or a book chapter aloud to patients, via the viewing panel could help ensure such connectedness.More focus should be placed on providing communication training to nurses to strengthen their communication skills in caring for individuals in challenging care situations.Patient education is paramount. Providing prior information to patients using a co‐produced information leaflet might reduce their anxiety and make them feel safe in the room.When using cameras in the seclusion room, these should be pixelated to maintain patients' privacy. Introduction: A lack of research investigating the specific role that various observational techniques may have in shaping the therapeutic relations in mental health care during seclusion warranted this study. Aim: The aim of the study was to explore patients' experience of different methods of observation used while the patient was in seclusion. Method: A retrospective phenomenological approach, using semi‐structured interviews, ten patients' experiences of being observed in the seclusion room was investigated. Colaizzi's descriptive phenomenological method was followed to analyse the data. Results: Communicating and engaging patients in meaningful activities can be achieved via the viewing panel. The camera was considered essential in monitoring behaviour and promoting a sense of safety. Pixelating the camera may transform patient view on privacy in seclusion. Discussion: The mental health services must strive to prevent seclusion and every effort should be made to recognise the human rights of the patient. The study reveals numerous advantages when nurses actively engage in patient communication during the process of observation. Implications for Practice: Different observation methods yield different benefits; therefore, staff education in using these methods is paramount. Empowering the patient with prior information on seclusion, engaging them in meaningful activities and proper documentation on patient engagement, supports the provision of individualised care in seclusion. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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49. The psychosocial impact of a chronic disease in Ireland: Burdens and helpful practices for a life with epidermolysis bullosa.
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Salamon, Gudrun, Field‐Werners, Ursula, Strobl, Sophie, Hübl, Vinzenz, and Diem, Anja
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CHRONIC diseases & psychology , *COMMUNITY health services , *MEDICAL care use , *SOMATOFORM disorders , *HEALTH services accessibility , *PSYCHOTHERAPY , *RESEARCH funding , *HEALTH status indicators , *ENDOWMENTS , *SATISFACTION , *EPIDERMOLYSIS bullosa , *RARE diseases , *DISEASE management , *QUESTIONNAIRES , *KRUSKAL-Wallis Test , *BANDAGES & bandaging , *MANN Whitney U Test , *DESCRIPTIVE statistics , *SEVERITY of illness index , *THEMATIC analysis , *FAMILY attitudes , *PHYSICIAN practice patterns , *RESEARCH methodology , *QUALITY of life , *PATIENT-professional relations , *EXTENDED families , *FACTOR analysis , *QUALITY assurance , *COMPARATIVE studies , *DATA analysis software , *SOCIAL support , *INTERPERSONAL relations , *SURGICAL dressings , *DRUGS , *PSYCHOSOCIAL factors , *PHYSICAL mobility , *MEDICAL care costs , *NONPARAMETRIC statistics , *PATIENTS' attitudes - Abstract
Objective: Although Ireland has one of the highest levels of well‐being in Europe, having a health condition has been found to have a direct negative impact. The aim of this study is to evaluate the current situation and the experiences of patients with epidermolysis bullosa (EB), a rare genetic skin disease, and their relatives living in Ireland, with a focus on burdens and helpful practices. Methods and Measures: In a mixed‐methods design, a series of standardised questionnaires were combined with open‐ended questions. Via an online survey, data from n = 59 EB patients and relatives of EB patients living in Ireland were collected. Results: EB affects both the patients and their relatives. Burdens were found in relation to the visibility of EB, the degree of severity, the current health status, reduced mobility, the financial impact of EB, the psychosocial impact and personal and social resources. The paper also analyses existing resources and highlights opportunities for support and needs of improvement. Conclusion: Quality of life with EB is influenced by somatic symptoms and the psychosocial burden. Individual helpful practices in dealing with this rare disease can be considered as mediators, but they need to be supported by structural and healthcare improvements. Patient or Public Contribution: The perspective of EB patients, their relatives and EB experts were taken into account in the development of the study design via two feedback loops with the EB patient organisations DEBRA Ireland and DEBRA Austria. The design was adapted accordingly. Additionally, by including open‐ended questions, patients and relatives could contribute their individual perspectives and add insights into their lives with EB that might not have been captured with the structured online survey alone. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
50. Diagnosing inconsistent phonological disorder: quantitative and qualitative measures.
- Author
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Dodd, Barbara, McIntosh, Beth, Crosbie, Sharon, and Holm, Alison
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PEARSON correlation (Statistics) , *RESEARCH funding , *QUALITATIVE research , *T-test (Statistics) , *QUANTITATIVE research , *MANN Whitney U Test , *CHI-squared test , *DESCRIPTIVE statistics , *APRAXIA ,SPEECH disorder diagnosis - Abstract
Studies of children's consistency of word production allow identification of speech sound disorder. Inconsistent errors are reported for two groups of children: childhood apraxia of speech (CAS) due to difficulty with the motoric precision and consistency of speech movements; and inconsistent phonological disorder (IPD) attributed to impaired phonological planning. This paper describes the inconsistent productions of children with IPD in comparison to typically developing children. In two studies of suspected SSD (N = 135), 22 children pronounced ≥40% of 25 words inconsistently on three repeated trials. No participant had symptoms of CAS. They were monolingual and spoke Australian- or Irish-English. Assessment determined the proportions of words said consistently (i.e. the same across productions: all correct or with the same error) or inconsistently (i.e. differently across productions: at least one correct and one error or different errors in productions). Qualitative analyses examined error types and explored the effect of target words' characteristics on inconsistency. Children with IPD produced 52% of words with different errors. While 56% of all phoneme errors were developmental (age appropriate or delayed), atypical errors typified inconsistency: default sounds and word structure errors. Words with more phonemes, syllables and consonant clusters were vulnerable to inconsistency, but their frequency of occurrence had no effect. TD children and those with IPD had different quantitative and qualitative error profiles, confirming IPD as a diagnostic category of SSD. Qualitative analyses supported the hypothesised deficit in phonological planning of words' production for children with IPD. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
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