1. Development of a question prompt list for women with polycystic ovary syndrome.
- Author
-
Khan, Nadia N., Vincent, Amanda, Boyle, Jacqueline A., Burggraf, Millicent, Pillay, Monisha, Teede, Helena, and Gibson-Helm, Melanie
- Subjects
- *
POLYCYSTIC ovary syndrome , *INTERNET surveys , *REGULATION of body weight , *PATIENT participation , *MEDICAL care , *POLYCYSTIC ovary syndrome treatment , *COMPARATIVE studies , *RESEARCH methodology , *MEDICAL cooperation , *PHYSICIAN-patient relations , *RESEARCH , *PILOT projects , *EVALUATION research , *DIAGNOSIS - Abstract
Objective: To develop a question prompt list (QPL) for women with polycystic ovary syndrome (PCOS) and explore its acceptability and feasibility.Design: Nationwide online survey, interviews, and clinical pilot test.Setting: Australia.Patient(s): Two-hundred and forty-nine women online, 18 women in interviews, and 20 women in clinics.Intervention(s): A QPL for PCOS.Main Outcome Measure(s): From survey, women's likeliness to use a QPL and priority topics; from interview, QPL user-friendliness and associated feelings; from pilot, women's QPL use, perceived helpfulness, and intended future use.Result(s): Evidence-based guidelines and multidisciplinary experts informed the QPL development. Of 249 survey respondents, 66.7% to 68.7% reported difficulty communicating with health care providers about mood, weight management, and how PCOS affects daily life, and 85.8% indicated they were very likely to use a PCOS QPL. Women were interviewed to explore acceptability; the semistructured interviews (n = 18) revealed that the devised QPL was easy to understand, user-friendly, and encouraged information seeking and targeted question asking. The refined QPL was pilot-tested in a clinic setting to explore feasibility between 2016 and 2017: 60.0% of women asked 1 to 2 questions from the QPL, 20.0% asked several questions, and 10.0% reported the QPL helped them generate their own questions. Women agreed the QPL was helpful (95.0%) and that they would use the QPL again (90.0%).Conclusion(s): The PCOS QPL is acceptable and feasible, and may assist women in information seeking and targeted question asking. [ABSTRACT FROM AUTHOR]- Published
- 2018
- Full Text
- View/download PDF