830 results
Search Results
2. The psychosocial experience of cancer: a meta-analysis of Australian rural versus urban populations.
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Barnes, Marisa, Thorsteinsson, Einar Baldvin, and Rice, Kylie
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META-analysis , *POPULATION geography , *SYSTEMATIC reviews , *ODDS ratio , *RURAL conditions , *METROPOLITAN areas , *CANCER patient psychology , *CONFIDENCE intervals , *WELL-being - Abstract
Understanding the psychological wellbeing of people with cancer is a key component of assessment and intervention in quality cancer care. However, the unique experiences of rural cancer populations are less often explored than those from urban centres. The aim of this study was to perform a meta-analysis of Australian studies that compared the psychological wellbeing experiences of people with cancer from rural and urban locations. Five databases were searched, and 19 studies, involving 16,947 participants, assessing and comparing the psychological wellbeing of rural and urban populations with cancer were included. The analysis indicated that Australian rural cancer populations have greater odds of worse psychological wellbeing than those from urban areas (OR = 1.54, 95% CI [1.01, 2.35], p = 0.044). This disparity remains when cancer types are analysed separately, with a slightly smaller odds ratio for rural people with breast cancer (OR = 1.29, 95%CI [1.01, 1.64], p = 0.046) and a slightly larger odds ratio when cancers excluding breast cancer were reviewed (OR = 1.78, 95% CI [1.59, 2.01], p = <.001). Significant heterogeneity was found. Despite increasing emphasis in Australia on psychological wellbeing throughout the cancer journey, there remain significant disparities whereby rural people experience greater impacts upon their psychological wellbeing. The wellbeing of Australian rural populations with cancer remains an area in which clinical and political focus is imperative. Whilst screening is a necessary first step, additional clinical implications for improving rural access to appropriately skilled health professionals who provide oncology-specific assessment and intervention are suggested. What is already known: Cancer is a major public health issue, and its psychosocial impacts are substantial, not just on patients but on their families and the broader community. The prevalence of clinically significant psychological distress is higher amongst people with cancer than the general population. However, identification, treatment, and provision of psychological support is inconsistent across services and geographical areas, and notably lacking in rural areas. Disparities in screening, assessment and intervention for psychological wellbeing in people with cancer remain, despite the fact that systematic application of screening, appropriate referral, and intervention can improve quality of life and reduce healthcare costs associated with inpatient and outpatient cancer care. What this paper adds: This article extends outcomes from previous systematic reviews and analyses from Australia and internationally with the addition of meta-analytic methods. It was specifically designed to solely focus on Australian cancer populations. The results suggest that Australian rural populations with cancer may have anywhere from 30% to 70% greater odds of experiencing poorer psychological wellbeing than those from urban areas. This paper highlights ongoing disparities in rural psycho-oncology that may be impacting wellbeing outcomes from rural people in Australia, and urges psychologists, other health professionals, and policy-makers to proactively address these inequities with improved screening, assessment and intervention for their rural populations. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Blended learning in rural K‐12 education: Stakeholder dynamics and recommendations.
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Henríquez, Valeria and Hilliger, Isabel
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HIGH schools , *SUCCESS , *CURRICULUM , *SCHOOL environment , *DOCUMENTATION , *ELEMENTARY schools , *QUALITATIVE research , *MATHEMATICS , *HUMAN services programs , *CONTENT analysis , *INTERVIEWING , *STATISTICAL sampling , *SCIENCE , *LEADERSHIP , *GOVERNMENT agencies , *EVALUATION of human services programs , *SCHOOL administrators , *FAMILIES , *FAMILY roles , *TEACHERS , *THEMATIC analysis , *STUDENTS , *MOTIVATION (Psychology) , *RURAL conditions , *RESEARCH methodology , *TRUST , *STATISTICS , *MEDICAL coding , *LEARNING strategies , *MIDDLE schools , *STAKEHOLDER analysis , *STUDENT attitudes , *COMMITMENT (Psychology) , *INTER-observer reliability ,RESEARCH evaluation - Abstract
Background: With the growing integration of technology in education, the adoption of blended learning (b‐learning) has gained attention. B‐learning combines traditional classroom teaching with online components, holding potential to enhance student outcomes and educational efficiency. Yet, current research predominantly concentrates on higher education institutions in urban areas, creating a void in understanding its impact on K‐12 education, particularly in rural settings. Objectives: This qualitative study aims to propose recommendations for successful implementation of blended learning in rural K‐12 areas by addressing the key stakeholders influencing its adoption and identifying the main factors affecting its success. Methods: We performed a content analysis of grey literature documents detailing the implementation of b‐learning in K‐12 education. Additionally, interviews with crucial stakeholders such as teachers, principals, and experts in rural schools in South America provide insights into the challenges and prospects of b‐learning adoption in these contexts. Results and Conclusions: The study identifies pivotal stakeholders for effective b‐learning implementation, outlining their roles and addressing challenges inherent in rural settings. Recommendations for enhancing b‐learning's implementation in developing countries are also proposed. The research underscores the significance of involving diverse stakeholders such as governmental bodies, school leaders, educators, students, and families to ensure a holistic and efficient approach to blended learning. Lay Description: What is currently known about this topic: Blended Learning Definition and Benefits: Blended learning combines face‐to‐face and online instruction, enhancing student engagement and personalization by providing diverse learning pathways.Growth in K‐12 Implementation: Blended learning gained traction in K‐12 education, boosting academic outcomes, driven by recognition of learner diversity and potential in meeting students' needs.Contextual Challenges: Implementation challenges arise in low‐income households and rural areas, including limited access to technology and internet connectivity, impacting student engagement and success. What does this paper add: Focusing on Rural Dynamics: This study helps to fill a gap by investigating blended learning in rural K‐12 settings, spotlighting key players and success drivers in these unique contexts.Recommendations from Various Sources: By combining interviews and grey literature, this research generates comprehensive, practical recommendations grounded in both empirical insights and real‐world perspectives.Insights into Rural Hurdles: This paper extends the discussion on blended learning by addressing specific rural barriers, proposing family involvement, private sector partnerships for training, and tailored pedagogical strategies. Implications for practice or policy: Leadership and Collaboration: Effective school leadership and collaboration with local governments are pivotal for fruitful blended learning implementation, ensuring defined roles, responsibility, and accountability.Adaptable Curriculum Design: An adaptable, centralized curriculum aligns with recommendations, fostering efficient tracking of student progress and enabling customized learning.Engagement‐Centric Pedagogies: Recommendations spotlight interactive, student‐centered teaching methods, tailored to diverse student needs, nurturing active participation and elevated learning outcomes. [ABSTRACT FROM AUTHOR]
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- 2024
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4. A community engaged primary healthcare strategy to address rural school student inequities: a descriptive paper.
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Jones, Debra, Ballard, Jacqueline, Dyson, Robert, Macbeth, Peter, Lyle, David, Sunny, Palatty, Thomas, Anu, and Sharma, Indira
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COMMUNITY health nursing , *HEALTH services accessibility , *HEALTH status indicators , *HIGH school students , *INTERPROFESSIONAL relations , *LABOR supply , *NURSING services , *PRIMARY health care , *RESEARCH funding , *RURAL conditions , *STRATEGIC planning , *SOCIOECONOMIC factors , *EDUCATIONAL attainment - Abstract
Aim: This descriptive paper aims to describe the design and implementation of a community engaged primary healthcare strategy in rural Australia, the Primary Healthcare Registered Nurse: Schools-Based strategy. This strategy seeks to address the health, education and social inequities confronting children and adolescents through community engaged service provision and nursing practice. Background: There have been increasing calls for primary healthcare approaches to address rural health inequities, including contextualised healthcare, enhanced healthcare access, community engagement in needs and solutions identification and local-level collaborations. However, rural healthcare can be poorly aligned to community contexts and needs and be firmly entrenched in health systems, marginalising community participation. Methods: This strategy has been designed to enhance nursing service and practice responsiveness to the rural context, primary healthcare principles, and community experiences and expectations of healthcare. The strategy is underpinned by a cross-sector collaboration between a local health district, school education and a university department of rural health. A research framework is being developed to explore strategy impacts for service recipients, cross-sector systems, and the establishment and maintenance of a primary healthcare nursing workforce. Findings: Although in the early stages of implementation, key learnings have been acquired and strategic, relationship, resource and workforce gains achieved. [ABSTRACT FROM AUTHOR]
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- 2019
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5. Achieving a successful Sakkiya education program in the 'north:' An opinion paper.
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Kanmodi, Kehinde K.
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PUBLIC health laws , *PUBLIC health , *COMMUNITY health services , *EMPLOYEE recruitment , *GOAL (Psychology) , *HEALTH behavior , *HEALTH education , *MATHEMATICAL models , *MEDICAL personnel , *RURAL conditions , *THEORY , *COMMUNITY-based social services , *SOCIAL media , *AFRICAN traditional medicine , *EVALUATION of human services programs - Abstract
Health education goes a long way in changing people's behavior towards health matters. One of the major roles of health education is the creation of awareness on the "dos" and "don'ts" that pertains to health matters. In northern Nigeria ("north"), many people, particularly in the rural areas, engage in the use of Sakkiya in the treatment of their body swellings. Sakkiya care has been reported repeatedly in the literature to have associated lethal risks on the health of those treated with it. Sakkiya is an act of using a hot pointed metallic tip to puncture a body swelling, with the purpose of achieving a cure. Furthermore, studies had recommended the need for the introduction of community Sakkiya education programs in northern Nigeria to enlightened people on the risks associated with Sakkiya and also inform them about better treatment options. This paper proposes a systematic approach to adopt in organizing an effective community Sakkiya education in the "north". The approach devised in this study was adapted from the Community Action Model (CAM) developed by the Brazilian educationist named Paulo Freire. [ABSTRACT FROM AUTHOR]
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- 2018
6. The Importance of Justice and Health Care Partnerships in MOUD Feasibility Trials.
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Staton, Michele, Pike, Erika, Levi, Mary, and Lofwall, Michelle
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SUBSTANCE abuse , *INTERPROFESSIONAL relations , *SOCIAL justice , *SOCIAL workers , *RESEARCH funding , *PILOT projects , *QUESTIONNAIRES , *COMMUNITIES , *DESCRIPTIVE statistics , *CONTINUUM of care , *OPIOID analgesics , *RURAL conditions , *COMPARATIVE studies , *MEDICAL screening , *CASE studies , *DRUG abusers - Abstract
This paper overviews the importance of justice and health-care partnerships in a MOUD feasibility trial in a rural Appalachian community. Research partners included a local jail, a local community supervision office, and a local community federally qualified health center. This paper describes the pilot feasibility study participants and methodology, as well as lessons learned including the challenges encountered and needed changes to address feasibility as the environment changes over time. Implications for social work research, practice, and policy advocacy focused on delivery of extended-release naltrexone and other MOUDs are discussed. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Integrating educational robot and low-cost self-made toys to enhance STEM learning performance for primary school students.
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Hu, Chih-Chien, Yang, Yu-Fen, Cheng, Ya-Wen, and Chen, Nian-Shing
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INTERDISCIPLINARY education , *PLAY , *LECTURE method in teaching , *DIGITAL technology , *MATHEMATICS , *COST effectiveness , *HUMAN services programs , *STRUCTURAL models , *ELEMENTARY schools , *RESEARCH funding , *SCIENCE , *ENGINEERING , *EDUCATIONAL outcomes , *CLINICAL trials , *PROBLEM solving , *DESCRIPTIVE statistics , *CAMPS , *PRE-tests & post-tests , *SURVEYS , *ROBOTICS , *ACADEMIC achievement , *SCHOOL children , *TECHNOLOGY , *RURAL conditions , *STORYTELLING , *ABILITY , *LEARNING strategies , *STUDENT attitudes , *DATA analysis software , *INTERNET of things , *TRAINING , *CLOUD computing - Abstract
The application of STEM (Science, Technology, Engineering, and Math) education in solving real-world problems is challenging. To tackle this challenge, a project-based learning approach that integrates robots with cost-effective self-made toys to problem-solving was adopted to assist rural primary school students to apply STEM skills. The purpose of this study was to evaluate the effects of the project-based learning approach which includes lecturing and hands-on activities on primary school students' STEM learning outcomes and attitudes. An experiment was conducted with 25 primary school students who voluntarily participated in a STEM summer-camp programme. Students were asked to assemble a paper house equipped with an IoT control module and LED light switches, and write and edit robot scripts to produce a robot-based storytelling narrative using the paper house they made as a context. The results show that the project-based learning approach was an effective approach for cultivating primary school students' STEM knowledge and skills as evidenced from the post-written test. The relationships between the students' STEM learning outcomes and attitudes were also confirmed by a clustering analysis. Students who had higher learning attitudes also achieved higher STEM learning outcomes; the findings are also supported by the feedback from the open-ended questionnaire items. This study suggests that integrating low-cost self-made toys and robots in project-based learning activities is an effective and practical approach to enhance primary school students' learning outcomes and learning attitudes in STEM education. [ABSTRACT FROM AUTHOR]
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- 2024
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8. The shame of sexual violence towards women in rural areas.
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Jones, Rikki, Usher, Kim, Rice, Kylie, Morley, Louise, and Durkin, Joanne
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WOUNDS & injuries , *POST-traumatic stress disorder , *SEX crimes , *MENTAL health , *MEDICAL personnel , *RURAL health , *EMOTIONS , *FAMILIES , *COMMUNITIES , *RURAL conditions , *GUILT (Psychology) , *EMBARRASSMENT , *SHAME , *WOMEN'S health , *SOCIAL support , *SOCIAL control , *SOCIAL stigma - Abstract
This perspective paper presents a discussion around the issues of sexual violence (SV) in rural and remote areas and the associated discourses of shame. The authors propose that shame of SV adds additional trauma to survivors, further impacting survivors' mental health which may be exacerbated in rural areas. Shame is a complex emotion that can result in increased feelings of guilt, humiliation, and embarrassment. Shame has been identified as an underlying risk factor and a mechanism for post‐assault mental health problems. We propose it can be particularly pronounced for women subjected to sexual assault in rural or remote areas. This paper will explore the link between SV and shame, explain how shame attached to SV may be used as an informal social control mechanism for women, particularly in rural and remote areas, and discuss the role of health practitioners, particularly mental health nurses, who play a key role in supporting people impacted by SV. SV is an insidious social phenomenon that can have profound consequences for individuals, families, and communities. Addressing shame and stigma is a crucial component of supporting survivors of SV in rural and remote areas. There is a need for targeted community‐led interventions and responsive support services to address the complex and multifaceted issues contributing to SV in rural and remote communities. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Discussion of federal policies affecting broadband expansion and telehealth in Appalachia.
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Kirkland, Deborah A. and Lindley, Lisa C.
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INTERNET access , *HEALTH services accessibility , *MEDICAL quality control , *HEALTH policy , *NURSING , *TELEMEDICINE , *RURAL health services , *ADVANCED practice registered nurses , *RURAL conditions , *PUBLIC health , *TELENURSING , *QUALITY assurance , *HEALTH equity , *COVID-19 pandemic ,FEDERAL government of the United States - Abstract
There have been 188 rural hospital closures in the United States since 2010 with approximately 20% of these in Appalachia. Telehealth has become a way that nurses can reach rural patients who might not otherwise receive health care. The purpose of this paper is to (1) outline the federal policies enacted during COVID-19 for broadband expansion; and (2) suggest how advanced practice nursing care might be affected by broadband expansion and telehealth in the region. A search of PubMed was conducted in January 2023, using the search words, "policy", "telehealth", "broadband", and "Appalachia". New laws appropriated funds to expand broadband infrastructure that made it possible for telehealth to be used by nurses to deliver health care to rural patients. This discussion paper found that broadband legislation was instrumental in expanding telecommunications and telehealth by NPs. There is a great need for broadband to continue to expand and for trained nurses to provide care via telehealth. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Functional Transitions Among Older Adults in Rural China: Examining the Differential Roles of Care From Daughters' and Sons' Families.
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Zhao, Pianpian, Zhang, Yanan, Harper, Sarah, Zeng, Weihong, and Li, Shuzhuo
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ELDER care , *ROLE theory , *RESEARCH funding , *MULTIPLE regression analysis , *FUNCTIONAL status , *DESCRIPTIVE statistics , *FAMILY relations , *LONGITUDINAL method , *RURAL conditions , *GERIATRIC assessment , *PSYCHOLOGY of caregivers , *PSYCHOLOGY of adult children , *ACTIVITIES of daily living , *OLD age - Abstract
Objectives Informal care provided by adult children is of great importance for older adults' well-being in China. This paper investigates and compares the functional transitions among older adults living in rural areas who receive care from daughters' and from sons' families. Methods This study utilizes the "Well-being of Elderly Survey in Anhui Province" (WESAP) from 2001 to 2021. Our sample included 2,797 individuals aged 60 years or older. Functional status was based on the activities of daily living and the instrumental activities of daily living. We employed a random-effects ordered logit model to examine the functional transitions among the older adults. Results Receiving care from daughters' families is significantly associated with a lower likelihood of functional decline compared to receiving care from sons' families in rural China. The advantage associated with daughter care becomes more pronounced among older individuals with a severe functional difficulty compared to those with a mild or moderate functional difficulty. The difference is prevalent among older adults aged 75 and older, with less wealth or multiple chronic diseases, or who live alone. Furthermore, among those with severe functional difficulties, the daughter advantage is more significant for fathers as compared to mothers. Discussion Nowadays, daughters' families can provide high-quality informal care, often surpassing that offered by sons' families. This daughter advantage becomes even more significant among older adults who have a higher need for family care, such as those with severe disabilities and limited financial resources. [ABSTRACT FROM AUTHOR]
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- 2024
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11. A preference-based value framework to assess healthcare provision in an oil and gas industry.
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Pak, Anton, Pols, Thomas, Kondalsamy-Chennakesavan, Srinivas, McGrail, Matthew, Gurney, Tiana, Fox, Jordan L., and Tuffaha, Haitham
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HEALTH services accessibility , *MEDICAL care research , *RESEARCH funding , *MEDICAL care , *VALUE-based healthcare , *LEADERSHIP , *BLUE collar workers , *DESCRIPTIVE statistics , *SOCIAL responsibility , *RURAL conditions , *MINERAL industries , *SOCIAL support , *PSYCHOSOCIAL factors , *INDUSTRIAL hygiene , *WELL-being - Abstract
Objectives: The aim of this study was to develop the Remote Health Value Framework to evaluate the models of healthcare provision for workers in the oil and gas sector, predominantly situated in rural and remote areas. Methods: The framework was co-designed with the leadership team in one global oil and gas company using a multi-criteria decision analysis approach with a conjoint analysis component. This was used to elicit and understand preferences and trade-offs among different value domains that were important to the stakeholders with respect to the provision of healthcare for its workers. Preference elicitation and interviews were conducted with a mix of health, safety, and environment (HSE) team and non-HSE managers and leaders. Results: Out of five presented value domains, participants considered the attribute 'Improving health outcomes of employees' the most important aspect for the model of healthcare which accounted for 37.3% of the total utility score. Alternatively, the 'Program cost' attribute was least important to the participants, accounting for only 11.0% of the total utility score. The marginal willingness-to-pay analysis found that participants would be willing to pay A$9090 per utile for an improvement in a particular value attribute. Conclusions: This is the first value framework for healthcare delivery in the oil and gas industry, contextualised by its delivery within rural and remote locations. It provides a systematic and transparent method for creating value-based healthcare models. This approach facilitates the evaluation of healthcare investments, ensuring they align with value domains prioritised by the HSE and leadership teams. What is known about the topic? It has been challenging for oil and gas companies to deliver and evaluate value-based healthcare services to improve workers' wellbeing, supplementing essential emergency services and occupational health. What does this paper add? The Remote Health Value Framework (RHVF), developed and tested in this work, offers a blueprint for designing and evaluating models of care considering the companies' and workers' priorities. What are the implications for practitioners? The RHVF's application has the potential to improve industry standards, enabling a data-driven approach to healthcare investments that closely align with both corporate objectives and employee wellbeing. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Aboriginal families living with MJD in remote Australia: questions of access and equity.
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Massey, Libby, Gilroy, John, Kowal, Emma, Doolan, Denise, and Clough, Alan
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HEALTH services accessibility , *GENOMICS , *MEDICAL technology , *CEREBELLUM diseases , *HEALTH , *INFORMATION resources , *RURAL conditions , *X-linked genetic disorders , *HEALTH equity , *HEALTH care rationing - Abstract
Managing genetic disease using medically assisted reproductive technology is increasingly promoted as a feasible option, given revolutionary advances in genomics. Far less attention has been directed to the issue of whether there is equitable access to this option. Context and circumstance determine equitable access; however, reporting has drawn overwhelmingly from affluent Anglo-western populations in developed countries. The experiences of poorer, less educated subpopulations within affluent countries and populations in less developed countries are underreported. The ability of consumers to understand the opportunities and risks of medically assisted reproductive technology is likewise not well described in the literature despite significant technological complexity and evidence that genetic disease may be overrepresented within some disadvantaged population groups. Equity is achieved by identifying barriers and allocating appropriate resources to enable understanding and access. In the case of utilising medically assisted technology, social and power relationships, regulations, and the presumptions of authority figures and policymakers reduce equitable access. Physical or cultural marginalisation from mainstream health services may result in reduced access to genetic and prenatal testing, in-vitro fertilisation and genetic screening of embryos necessary for medically assisted reproduction. Cost and regulatory frameworks can likewise limit opportunities to engage with services. Moreover, the quality of the information provided to prospective users of the technology and how it is received governs understanding of prevention and inhibits adequately informed choice. Best practice care and adequately informed choice can only be achieved by conscientiously attending to these accessibility issues. Deep engagement with at-risk people and critical reflection on mainstream accepted standpoints is required. This paper outlines issues associated with engaging with medically assisted reproduction encountered by Aboriginal families living with Machado-Joseph Disease in some of the most remote areas of Australia. It is the right of these families to access such technologies regardless of where they live. Current barriers to access raise important questions for service providers with implications for practice as new technologies increasingly become part of standard medical care. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Influence of Rurality on Oral Cancer Trends among Organisation for Economic Co-Operation and Development (OECD) Member Countries—A Scoping Review.
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Ramamurthy, Poornima, Sharma, Dileep, Clough, Alan, and Thomson, Peter
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HEALTH services accessibility , *PAPILLOMAVIRUS diseases , *MOUTH tumors , *RESEARCH funding , *SOCIOECONOMIC factors , *CINAHL database , *SMOKING , *SYSTEMATIC reviews , *MEDLINE , *RURAL conditions , *LITERATURE reviews , *HEALTH equity , *ONLINE information services - Abstract
Simple Summary: Oral cancer affects the mouth and throat areas. It is a major cause of death for older people in developed countries. This review looked at how living in rural areas influences oral cancer trends in these countries. The studies from these countries showed increasing rates of oral cancer in rural areas of the US, Australia, Canada, and Europe. Older people are more affected by these cancers than younger groups. The main risk factors are tobacco use, alcohol consumption, and HPV infections. People in rural areas often do not know much about HPV-related cancers. They also tend to use more tobacco and alcohol than city dwellers. Even in developed countries, living in rural areas can lead to shorter lifespans for oral cancer patients. This is mainly because it is harder for them to access specialized cancer treatment centres and advanced medical care. In summary, where people live can significantly impact their chances of surviving oral cancer, even in wealthy nations. Oral cancer is the general term used to describe cancers of the oral cavity and oropharyngeal region. These cancers are one of the leading causes of death in elderly residents within the Organisation for Economic Co-operation and Development (OECD) member countries in the 21st century. This scoping review was carried out to assess the influence of rurality on oral cancer trends and patterns among OECD member countries. Four online databases (Medline, PubMed, Scopus, and CINAHL) were searched for studies that reported on oral cancer trends in rural and remote areas in OECD member countries. A total of 1143 articles were obtained initially; among them, 995 papers were screened to include 18 articles for this scoping review. Studies have reported increasing incidence and prevalence in the United States, Australia, Canada, and European countries wherein risk factors such as tobacco, alcohol, and human papilloma virus (HPV) infections were associated with oral and oropharyngeal cancers. Awareness among people living in rural areas about HPV-related cancers was very low, while rates of tobacco and alcohol abuse were noted to be rising more rapidly than among their urban counterparts. Furthermore, the ageing population was most affected compared to the younger age groups of people with oral and oropharyngeal cancer that are prevalent in these regions. Overall, despite living in developed countries, rurality was noted to be a significant factor in the lower life expectancy of oral cancer patients, mainly due to the limited accessibility to tertiary cancer care centres and advanced medical care. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Optimization of the vertical transmission prevention program in Guinea: impact of the improvement plan on performance indicators at large-cohort sites.
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Camara, Soriba, Millimouno, Tamba Mina, Hounmenou, Castro Gbêmêmali, Kolié, Delphin, Kadio, Kadio Jean-Jacques Olivier, Sow, Abdoulaye, Sidibé, Sidikiba, and Delamou, Alexandre
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HIV prevention , *POLYMERASE chain reaction , *RETROSPECTIVE studies , *MANN Whitney U Test , *PREGNANT women , *LONGITUDINAL method , *HIGHLY active antiretroviral therapy , *PRE-exposure prophylaxis , *VERTICAL transmission (Communicable diseases) , *RURAL conditions , *MEDICAL records , *ACQUISITION of data , *RESOURCE-limited settings , *EARLY diagnosis , *HEALTH equity - Abstract
Introduction: Vertical transmission of HIV remains a major challenge in Guinea, especially, in low-resource rural areas. This paper presents the results of a pilot project designed to enhance the prevention of vertical transmission through a comprehensive improvement plan implemented across 66 large-cohort sites. Methods: Data from 66 large-cohort of mother to child transmission prevention (PMTCT) sites from 2019 to 2022 were analysed to compare PMTCT metrics before (2019–2020) and after (2021–2022) the improvement initiative. Key indicators were reviewed, and trends were statistically analysed using Mann‒Whitney tests, with a p value less than 0.05 indicating statistical significance. Results: The implementation of this strategy significantly increased the antiretroviral therapy rate among HIV-positive pregnant women from 66 to 94%, and full antiretroviral prophylaxis coverage was achieved in infants. However, early infant diagnosis via polymerase chain reaction testing falls short of the national target, highlighting deficiencies in laboratory and specimen transport capacities. The study also revealed regional disparities in the use of PMTCT services. Conclusion: The improvement plan effectively enhanced antiretroviral therapy and prophylaxis use, demonstrating the benefits of structured interventions and capacity development. Despite improvements, challenges such as insufficient polymerase chain reaction (PCR) testing and uneven access to services remain. Future initiatives should aim to equip PMTCT sites with essential resources and promote community-driven health-seeking behaviours in underserved areas. [ABSTRACT FROM AUTHOR]
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- 2024
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15. A Comparative Study of Two Networked (neoendogenous) Development Approaches: The EU LEADER and China's Resident Work Team in Poor Villages (RWTIPV).
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Li, Yifan and Liang, Qiaozhuan
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TEAMS in the workplace , *RURAL development , *GOVERNMENT regulation , *HOME computer networks , *RURAL conditions , *COLLECTIVE action - Abstract
Networked (neoendogenous) development is a prescriptive of rural development that merges the positive aspects of exogenous and endogenous approaches by integrating bottom-up demands and top-down planning, internal and external resources and networks, and vertical political-administrative and interterritorial contexts. The current paper opted for a multicase analysis approach and used a tailored networked rural development institutional analysis and development (NRD-IAD) framework to analyse four organizational aspect changes, namely, institutional characteristics, configuration and structure, actions and activities, and outcomes and evaluation, among four case studies; two studies came from the EU LEADER (links between actions for the development of the rural economy), and the other two came from China's resident work team in poor villages (RWTIPV). The research questions are as follows: What is the difference and common principle between these two approaches, and to what extent can they engage in exchange and be mutually learned from? Primary data were collected through involvement, observation, and open-ended interviews with actors in rural regions of China. Secondary data consisted of the resident cadre's job log, resident work team ledger, minutes of the meeting, village's work reports, government regulations, guidelines for poverty-alleviation planning in China's RWTIPV cases, and published journals and internet sources in EU LEADER cases. In terms of difference, we identified the LEADER system mainly as a regulation-based network with relationships as supplementary information, while the RWTIPV system was mainly found to be a relationship-based network with regulations as supplementary information. Although the two systems seem different, the underlying logic is the same, that is, to engage with a collective reflexivity and action agency (CRAA), embedded in the locality and representing much of the local resource base, and to obtain a sufficient level of relational capacity to create the necessary conditions for integrated rural development. These common principles enable exchange and mutual learning to occur between the LEADER and RWTIPV systems through the unified idea (theory) of CRAA. The current findings contribute to the emergence of a new rural development paradigm mechanism and the role of institutional work. [ABSTRACT FROM AUTHOR]
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- 2024
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16. An Exploration of Rural Housing Insecurity as a Public Health Problem in California's Rural Northern Counties.
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Antin, Tamar MJ, Sanders, Emile, Lipperman-Kreda, Sharon, Hunt, Geoffrey, and Annechino, Rachelle
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RESEARCH funding , *QUALITATIVE research , *INTERVIEWING , *DESCRIPTIVE statistics , *RURAL population , *RURAL conditions , *RESEARCH , *HOUSING stability , *PUBLIC health , *HOUSING - Abstract
Although widely acknowledged as an important social determinant of health, until recently researchers and policymakers have primarily approached housing insecurity as an urban issue, obscuring the visibility of its impacts in rural contexts, including the ways in which housing insecurity intersects with other health and structural inequities facing rural populations. Working to address this gap in the existing literature, this paper explores the experiences of housing insecurity in a rural context by reporting on an analysis of 210 in-depth interviews with 153 adults between the ages of 18–35, living in California's rural North State, a relatively overlooked far northern region of the state comprised of 12 north central and north eastern counties. Using in-depth qualitative interview data, we conducted an exploratory pattern-level analysis of participants' narratives structured by four dimensions of housing insecurity defined in the literature (housing affordability, housing stability, housing conditions, and neighborhood context). Drawing attention to the pervasiveness of rural housing insecurity within our sample, this analysis highlights the unique ways in which rurality creates distinct experiences not currently captured in the existing literature. Further research is needed across different types of rural communities to better understand the various ways that housing insecurity affects the everyday lives and health of rural residents. By grounding research within the experiences of rural residents, we are better able to respond to the crisis of rural housing insecurity and develop solutions that are tailored to rural residents' unique needs. [ABSTRACT FROM AUTHOR]
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- 2024
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17. The effects of adult child migration and migration duration on the emotional health of rural elders in China.
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Li, Aihong
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EMIGRATION & immigration , *MENTAL health , *ENDOWMENTS , *NOMADS , *ADULT children , *RURAL conditions , *COMPARATIVE studies , *MENTAL depression , *WELL-being , *OLD age - Abstract
A large body of literature shows that the emotional health of rural elders in China is negatively affected by the migration of their adult children. However, the precise mechanism that underpins this relationship has yet to be fully uncovered. This paper introduces two new dimensions of analysis to expand the understanding of this 'left behind' phenomenon, and offers statistical insights, theoretical explanations and policy recommendations, as well as suggestions for further study. Firstly, in this paper, rural elders have been distinguished based on whether all , or any , of their adult children have migrated. This distinction leads to the finding that rural elders suffer more adverse mental health impacts when all adult children from a household move away. Secondly, the temporal dimension of migration is investigated, finding that there is a 'turning point' after which the mental health of rural elders appears to recover after the migration of their adult children. Comparison of the two groups shows that rural elders who see any of their adult children migrate recover from depression twice as quickly as those who see all of their children migrate. Receiving financial support or providing child care can only partly mediate the negative influence of migration. Also, the level of depression and wellbeing of rural elders can be significantly moderated by the emotional closeness between them and their adult children. Providing (grand)child-care assistance and receiving economic support is shown to have smaller mitigating effects. This paper concludes with a discussion of how the notion of 'filial piety' could, directly and indirectly, play a role in the emotional health of rural elders, with policy implications provided. [ABSTRACT FROM AUTHOR]
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- 2024
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18. GP perspectives on a psychiatry phone line in Western Australia's Great Southern region: implications for addressing rural GP workload.
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Cuesta-Briand, Beatriz, Rock, Daniel, Tayba, Layale, Hoimes, James, Ngo, Hanh, Taran, Michael, and Coleman, Mathew
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CONFIDENCE , *TELEPSYCHOLOGY , *RURAL conditions , *RESEARCH methodology , *PHYSICIANS' attitudes , *INTERVIEWING , *QUALITATIVE research , *EMPLOYEES' workload , *DESCRIPTIVE statistics , *THEMATIC analysis - Abstract
Background: Mental illness is a public health challenge disproportionately affecting rural Australians. GPs provide most of the mental health care, and they report increasing levels of burnout and unsustainable workload in the context of increased patient complexity. This may be more salient in rural settings characterised by resource constraints. In this paper, we use evaluation data from a GP psychiatry phone line established in Western Australia's Great Southern region in 2021 to describe GPs' perspectives on the service and reflect on how it may help alleviate rural GP workload. Methods: The sample was recruited among GPs practicing in the region. Data were collected through an online survey and semistructured interviews. Descriptive statistics were used to analyse the survey data. Interview data were subjected to thematic analysis; qualitative survey data were used for triangulation. Results: A total of 45 GPs completed the survey and 14 were interviewed. Interview data yielded three themes: the criticality of timeliness; the building blocks of confidence; and trust. GPs were highly satisfied with the service, and timeliness and trust were the characteristics underpinning its effectiveness. The service built GPs' confidence in managing mental health and alcohol and other drug use issues through strengthening knowledge and providing reassurance. Conclusions: Our results suggest that a telephone line operated by trusted, local psychiatrists with knowledge of the local mental health ecosystem of support can reduce rural GP workload through building confidence and strengthening personal agency, helping GPs navigate the ethical and clinical labyrinth of managing patient complexity in rural settings. GPs provide most of the mental health care and deal with an increasing number of patients with complex problems; this is more acute in rural areas where there are fewer services. This paper shows how a rural GP psychiatry phone line operated by local psychiatrists helps GPs manage their patients' mental health problems and may, in turn, reduce the workload rural GPs experience. The results add to the limited evidence and have implications for other rural locations characterised by limited resources. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Relationship between climate change and skin cancer and implications for prevention and management: a scoping review.
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Watson, T.P.G., Tong, M., Bailie, J., Ekanayake, K., and Bailie, R.S.
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CINAHL database , *AIR pollution , *MEDICAL information storage & retrieval systems , *TEMPERATURE , *HEALTH services accessibility , *SYSTEMATIC reviews , *PARTICIPATION , *RURAL conditions , *UNCERTAINTY , *SKIN tumors , *HEALTH behavior , *QUALITY of life , *LITERATURE reviews , *MEDLINE , *CLIMATE change , *MEDICAL research , *ULTRAVIOLET radiation - Abstract
This study aimed to explore the published research on the relationship between climate change and skin cancer and the implications for prevention, management and further research. Scoping review. This scoping review following JBI methodology reviewed English articles identified in searches of MEDLINE, Embase, CINAHL, Web of Science and Scopus on 14 April 2023. The screening of articles was completed by two independent reviewers. Data were extracted by a single reviewer and checked by another. A causal pathway diagram was iteratively developed throughout the review and was used to categorise the findings. The search identified 1376 papers, of which 45 were included in the final review. Nine papers reported primary research, and 36 papers were reviews, perspectives, commentaries, editorials, or essays. The papers examined climate change influencing behaviours related to ultraviolet exposure (30 papers), ambient temperature (21 papers) and air pollution (five papers) as possible risk factors; occupational, rural, and contextual factors affecting skin cancer (11 papers); and prevention and access to health care in the context of climate change (seven papers). Most papers were published in journals in subject areas other than health. This review identified ultraviolet radiation, occupation, rising temperature, individual behaviour and air pollution as possible influences on skin cancer rates. Furthermore, it highlights the complexity and uncertainties in the relationship between climate change and skin cancer and the need for further research on this relationship, including primary epidemiological research and reviews that follow recognised review guidelines and include assessment of health services and social determinants in the causal pathways of this relationship. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Patient and public involvement and engagement with underserved communities in dementia research: Reporting on a partnership to co‐design a website for postdiagnostic dementia support.
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Di Lorito, Claudio, Griffiths, Sarah, Poole, Marie, Kaviraj, Chandrika, Robertson, Martin, Cutler, Neil, and Wilcock, Jane
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TREATMENT of dementia , *PSYCHIATRY , *EXPERIMENTAL design , *RESEARCH , *SOCIAL support , *PATIENT participation , *CAREGIVERS , *HUMAN research subjects , *MINORITIES , *PATIENT selection , *BLACK people , *RURAL conditions , *COMMUNITIES , *DEMENTIA patients , *INTERPROFESSIONAL relations , *RESEARCH funding , *LGBTQ+ people , *WEB development , *THEMATIC analysis - Abstract
Introduction: Despite the advancements in Patient and Public Involvement and Engagement (PPIE), the voices of traditionally underserved groups are still poorly reflected in dementia research. This study aimed to report on a PPIE partnership between academics and members of the public from underserved communities to co‐design Forward with Dementia—Social Care, a resource and information website supporting people receiving a dementia diagnosis. Methods: The PPIE partnership was set up in four stages: 1–identifying communities that have been under‐represented from PPIE in dementia research; 2—recruiting PPIE partners from these communities; 3—supporting PPIE partners to become confident to undertake their research roles and 4—undertaking research co‐design activities in an equitable fashion. Results: To address under‐representation from PPIE in dementia research we recruited seven PPIE partners from Black, Asian and other minority ethnic groups; lesbian, gay, bisexual, transgender, queer+ communities; remote/rural area; religious minorities and partners living with rare forms of dementia. The partners met regularly throughout the project to oversee new sections for the study website, refine existing content and promote the website within their communities. Conclusion: Strategies can be used to successfully recruit and involve PPIE partners from underserved communities in co‐design activities. These include networking with community leaders, developing terms of reference, setting out 'rules of engagement', and investing adequate resources and time for accessible and equitable involvement. These efforts facilitate the co‐design of research outputs that reflect the diversity and complexity of UK contemporary society. Patient or Public Contribution: This study received support from seven members of the public with lived experience of dementia from communities that have been traditionally underserved in dementia research. These seven members of the public undertook the role of partners in the study. They all equally contributed to the study design, recruitment of participants, development and revision of topic guides for the interviews and development of the website. Three of these partners were also co‐authors of this paper. On top of the activities shared with the other partners, they contributed to write independently of the academic team the section in this paper titled 'Partners' experiences, benefits and challenges of the partnership'. Further, they provided input in other sections of the paper on a par with the other (academic) co‐authors. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Moving towards social inclusion: Engaging rural voices in priority setting for health.
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Tugendhaft, Aviva, Christofides, Nicola, Stacey, Nicholas, Kahn, Kathleen, Erzse, Agnes, Danis, Marion, Gold, Marthe, and Hofman, Karen
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HEALTH policy , *MEDICAL information storage & retrieval systems , *RURAL conditions , *PSYCHOLOGICAL vulnerability , *MEDICAL care , *UNIVERSAL healthcare , *MANN Whitney U Test , *DECISION making , *DESCRIPTIVE statistics , *RURAL health , *DATA analysis software , *SOCIODEMOGRAPHIC factors , *SOCIAL integration , *HEALTH planning - Abstract
Background: Achieving universal health coverage (UHC) in the context of limited resources will require prioritising the most vulnerable and ensuring health policies and services are responsive to their needs. One way of addressing this is through the engagement of marginalised voices in the priority setting process. Public engagement approaches that enable group level deliberation as well as individual level preference capturing might be valuable in this regard, but there are limited examples of their practical application, and gaps in understanding their outcomes, especially with rural populations. Objective: To address this gap, we implemented a modified priority setting tool (Choosing All Together—CHAT) that enables individuals and groups to make trade‐offs to demonstrate the type of health services packages that may be acceptable to a rural population. The paper presents the findings from the individual choices as compared to the group choices, as well as the differences among the individual choices using this tool. Methods: Participants worked in groups and as individuals to allocate stickers representing the available budget to different health topics and interventions using the CHAT tool. The allocations were recorded at each stage of the study. We calculated the median and interquartile range across study participants for the topic totals. To examine differences in individual choices, we performed Wilcoxon rank sum tests. Results: The results show that individual interests were mostly aligned with societal ones, and there were no statistically significant differences between the individual and group choices. However, there were some statistically significant differences between individual priorities based on demographic characteristics like age. Discussion: The study demonstrates that giving individuals greater control and agency in designing health services packages can increase their participation in the priority setting process, align individual and community priorities, and potentially enhance the legitimacy and acceptability of priority setting. Methods that enable group level deliberation and individual level priority setting may be necessary to reconcile plurality. The paper also highlights the importance of capturing the details of public engagement processes and transparently reporting on these details to ensure valuable outcomes. Public Contribution: The facilitator of the CHAT groups was a member from the community and underwent training from the research team. The fieldworkers were also from the community and were trained and paid to capture the data. The participants were all members of the rural community‐ the study represents their priorities. [ABSTRACT FROM AUTHOR]
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- 2024
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22. 'Reforms Looked Really Good on Paper': Rural Food Service Responses to the Healthy, Hunger-Free Kids Act of 2010.
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Cornish, Disa, Askelson, Natoshia, and Golembiewski, Elizabeth
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PREVENTION of childhood obesity , *SCHOOLS , *ATTITUDE (Psychology) , *NUTRITION policy , *CHANGE , *EMPLOYEE attitudes , *FOOD service , *INTERVIEWING , *MANAGEMENT , *MEDICAL cooperation , *NATURAL foods , *RESEARCH , *RESEARCH funding , *RURAL conditions , *STUDENT health , *QUALITATIVE research , *THEMATIC analysis , *HUMAN services programs , *DATA analysis software , *MEDICAL coding , *DESCRIPTIVE statistics , *LAW - Abstract
ABSTRACT BACKGROUND The Healthy, Hunger-Free Kids Act of 2010 ( HHKA) required schools to make changes to meals provided to children. Rural school districts have limited resources, with increased obesity rates and local food insecurity. In this study we sought to understand the perceptions of rural food service directors and the barriers to implementing the changes. METHODS Food service directors from rural school districts were invited to complete a semistructured telephone interview and online survey. A total of 51 respondents completed both, 6 completed only the online survey, and 16 completed only the telephone interview. Qualitative interview data were analyzed through open thematic coding; descriptive statistics were calculated for the quantitative data. RESULTS Food service directors mostly perceived the changes as negative, challenging, and burdensome. They believed that the changes resulted from concern about childhood obesity, which they did not view as a problem for their students. Diverse challenges were reported related to cost, preparation, and student preference. CONCLUSIONS Food service directors in isolated, rural areas need support to enhance understanding of HHKA requirements, build professional networks to learn from one another, and communicate with students, families, and other stakeholders. Future efforts should focus on changing perceptions and supporting directors in order to make implementation a success. [ABSTRACT FROM AUTHOR]
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- 2016
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23. From the periphery to inclusion within the health system: promoting community health worker empowerment as a way forward.
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Stansert Katzen, Linnea, Reid, Steve, Laurenzi, Christina, and Tomlinson, Mark
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SELF-efficacy , *FOCUS groups , *SECONDARY analysis , *QUALITATIVE research , *MEDICAL care , *INTERVIEWING , *DESCRIPTIVE statistics , *JUDGMENT sampling , *THEMATIC analysis , *RURAL conditions , *CLUSTER sampling , *COMMUNITY health workers , *SOCIAL support , *PSYCHOSOCIAL factors - Abstract
Background: Community health worker programmes have the potential to contribute critically towards universal health coverage. However, CHWs globally have often continued to operate on the periphery of the health care system, viewed as a non-essential cadre. This results in a workforce that often remains disempowered and under-supported. This paper presents evidence from a study conducted in a rural part of South Africa, to better understand issues of CHW prioritisation, integration, and empowerment. Methods: We applied an analytical lens based on empowerment theory and conducted a secondary analysis of qualitative data emerging from a sub-study of a cRCT evaluating the effectiveness of supportive supervision for CHWs within a large-scale national CHW programme. The cRCT was conducted between 2017 and 2022, and 39 CHWs were included in the study. Results: We organised our findings across the four domains of structural empowerment; information, resources, support, and opportunity, and mapped these domains against the domains of psychological empowerment. Our findings show how CHWs are still working in the periphery of the healthcare system. Without sufficient prioritisation, high level-support from national and district governments, and sufficient investments in programmatic domains—such as training, equipment, and supportive supervision—it is likely that the CHW cadre will continue to be seen as informal health care workers. Conclusions: CHW empowerment could be a lever to potentially transform the current health system towards universal coverage; however, this process can only happen with sufficient high-level prioritization and investment. [ABSTRACT FROM AUTHOR]
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- 2024
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24. Rural Population and Prostate Cancer Screening Exercise in Southeast Nigeria: Implication to Public Health Policy and Sustainable Development.
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IZUEKE, Edwin, OKAFOR, Samuel, OBARA, Okezi, IKECHUKWU, Emeh, OKOLO, Modesta, ABDULROUF, Isah, OBETA, Rose, and OGUNLEYE, Akindele
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HEALTH literacy , *INCOME , *RURAL health , *EARLY detection of cancer , *HEALTH policy , *PROSTATE tumors , *DISEASE prevalence , *AGE distribution , *DESCRIPTIVE statistics , *SURVEYS , *RURAL population , *MEN'S health , *RURAL conditions , *MARITAL status , *INFERENTIAL statistics , *PUBLIC health , *HEALTH Belief Model , *EMPLOYMENT , *EDUCATIONAL attainment - Abstract
OBJECTIVE Awareness and screening exercise on prostate cancer health related issues among the rural population is still interfered with by the socio-cultural and economic challenges affecting the developing nations. This is yet to be empirically explored in some regions such as southeast Nigeria. The paper explored prostate cancer awareness and screening exercise among some 1080 men (30+) in rural southeast Nigeria. METHODS The study was guided by Health Belief Model, while survey design and quantitative data gathering techniques were deployed in collecting data from the respondents. Descriptive and inferential statistics were utilized in probing the prevalence of awareness about prostate cancer/screening practices, and the relationship of these and other variables. RESULTS According to the findings, there is a poor awareness about prostate cancer and related symptoms (31.2%) and poor regular prostate cancer screening practices among the respondents (11%). Prostate cancer awareness is significantly correlated with age (p<0.000, b=-0.618, Exp(B)=0.539), marital status (p<0.000, b=1.239, Exp(B)=3.452), occupation (p<0.000, b=-2.474, Exp(B)=0.084), education (p<0.000, b=1.239, Exp(B)=3.452), income (p<0.002, b=-0.476, Exp(B)=0.621) and having seen someone living with prostate cancer (p<0.000, b=3.927, Exp(B)=50.742). Regular screening exercise is predicted by age (p<0.000, b=0.054, t=4.706), marital status (p<0.000, b=-0.110, t=-5.309), education (p<0.02, b=0.047, t=2.557), occupation (p<0.000, b=0.090, t=4.484) and source of prostate cancer awareness (p<0.02, b=0.052, t=2.366). CONCLUSION The study concludes that prostate cancer screening practices are heavily dependent on the socioeconomic realities among the population. [ABSTRACT FROM AUTHOR]
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- 2024
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25. Exploring the experiences of a person with dementia and their spouse who attended a telehealth music therapy programme: Two case examples from Ireland.
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Kelly, Lisa, Kenny, Niamh, McGlynn, Cathy, Richardson, Ita, and Moss, Hilary
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FAMILIES & psychology , *SPOUSES , *MUSIC therapy , *INTERVIEWING , *QUESTIONNAIRES , *JUDGMENT sampling , *TELEMEDICINE , *FAMILY attitudes , *EXPERIENCE , *THEMATIC analysis , *RESEARCH , *RESEARCH methodology , *RURAL conditions , *DEMENTIA , *PHENOMENOLOGY , *PSYCHOLOGY of caregivers , *PATIENTS' attitudes , *DEMENTIA patients - Abstract
There is an increased need for accessible psychosocial interventions that support both people with dementia and their spouses. Recent research demonstrates the benefits of music therapy and caregiver-delivered music therapy for this population. This paper contributes to the emerging evidence base on telehealth music therapy for people with dementia outside of a COVID-19 era when in-person services were available. This exploratory phenomenological study explores the experiences of two couples who attended a six-week telehealth music therapy programme via two detailed case examples. Online semi-structured interviews with each couple were conducted pre and post intervention and analysed using Interpretative Phenomenological Analysis. Three shared themes emerged from the data analysis including (1) social isolation and lack of confidence linked to dementia diagnosis is worsened in rural locations, (2) song singing and song writing enables us to revisit happy memories, and (3) telehealth delivery increases access due to geographical location. The findings are presented in a narrative case study format to provide rich detailed descriptions of the music therapy programme and to illuminate the experiences of the participants. In both examples, telehealth delivery expanded access to music therapy (which was otherwise unavailable) and stimulated reminiscence which in turn encouraged meaningful engagement between the couple. The delivery of music therapy via telehealth, alongside in-person delivery, has the potential to expand access to music therapy to those who may not have access to or are no longer able to attend community support services due to geographical location, increased cognitive decline or reduced mobility. The successful delivery of telehealth music therapy is dependent on several factors including digital literacy, access to appropriate technological devices, caregiver support and level of cognitive decline. [ABSTRACT FROM AUTHOR]
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- 2024
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26. Exploring the 'citizen organization': an evaluation of a regional Australian community-based palliative care service model.
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Rosenberg, John, Flynn, Trudi, Merollini, Katharina, Linn, Josie, Nabukalu, Doreen, and Davis, Cindy
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WORK , *VOLUNTEER service , *HOLISTIC medicine , *PALLIATIVE treatment , *RESEARCH funding , *JUDGMENT sampling , *SOUND recordings , *THEMATIC analysis , *PATIENT-centered care , *RURAL conditions , *RESEARCH methodology , *FAMILY-centered care , *DATA analysis software , *EXPERIENTIAL learning - Abstract
Background: Little Haven is a rural, community-based specialist palliative care service in Gympie, Australia. Its goals are to provide highest quality of care, support and education for those experiencing or anticipating serious illness and loss. Families and communities work alongside clinical services, with community engagement influencing compassionate care and support of dying people, their families and communities. Public Health Palliative Care promotes community engagement by community-based palliative care services and is grounded in equal partnerships between civic life, community members, patients and carers, and service providers. This takes many forms, including what we have termed the 'citizen organization'. Objectives: This paper reports on an evaluation of Little Haven's model of care and explores the organization's place as a 'citizen' of the community it services. Design: A co-designed evaluation approach utilizing mixed-method design is used. Methods: Multiple data sources obtained a broad perspective of the model of care including primary qualitative data from current patients, current carers, staff, volunteers and organizational stakeholders (interviews and focus groups); and secondary quantitative survey data from bereaved carers. Thematic analysis and descriptive statistics were generated. Results: This model of care demonstrates common service elements including early access to holistic, patient/family-centred, specialized palliative care at little or no cost to users, with strong community engagement. These elements enable high-quality care for patients and carers who describe the support as 'over and above', enabling good quality of life and care at home. Staff and volunteers perceive the built-in flexibility of the model as critical to its outcomes; the interface between the service and the community is similarly stressed as a key service element. Organizational stakeholders observed the model as a product of local activism and accountability to the community. Conclusion: All participant groups agree the service model enables the delivery of excellent care. The construction of a community palliative care service as a citizen organization emerged as a new concept. Plain language summary: 'Citizen organization': an Australian community-based palliative care service model Little Haven is a rural, community-based specialist palliative care service in Gympie, Australia. It aims to provide highest quality of care, support and education for those experiencing or anticipating serious illness and loss. Families and communities work alongside clinical services, with community engagement influencing compassionate care and support of dying people, their families and communities. Public Health Palliative Care promotes community engagement by community-based palliative care services in equal partnerships between civic organizations, community members, patients and carers, and service providers. We undertook an evaluation of Little Haven's model of care by speaking with current patients, current and past carers, staff, volunteers and stakeholders about their experiences of Little Haven. We found that Little Haven's model contains the essential elements of a palliative care service and provides early access to holistic, patient/family-centred, specialized palliative care at little or no cost to users. They have strong community engagement with a strong background in community activism. We identified that Little Haven's 'being in the community' goes beyond service provision or even sentiment. We observed a symbiotic relationship between the organization and the community it supports in what we have termed the 'citizen organization'. The distinctive characteristic of the citizen organization is its inseparability from the community in which it dwells. [ABSTRACT FROM AUTHOR]
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- 2024
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27. Health systems model for chronic disease secondary prevention in rural and remote areas – Chronic disease: Road to health.
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Field, Pat, Franklin, Richard C., Barker, Ruth, Ring, Ian, and Leggat, Peter
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PREVENTION of chronic diseases , *HEALTH services accessibility , *COMMUNITY health services , *PATIENT education , *QUALITATIVE research , *SOCIAL determinants of health , *RESEARCH funding , *MEDICAL care , *STATISTICAL sampling , *INTERVIEWING , *HOSPITALS , *JUDGMENT sampling , *TELEMEDICINE , *THEMATIC analysis , *RURAL conditions , *MATHEMATICAL models , *RESEARCH methodology , *THEORY , *CASE studies , *SOCIAL support , *QUALITY assurance , *HEALTH promotion , *CARDIAC rehabilitation , *INDIGENOUS Australians - Abstract
Objectives: Cardiac rehabilitation (CR) provides evidence-based secondary prevention for people with heart disease (HD) (clients). Despite HD being the leading cause of mortality and morbidity, CR is under-utilised in Australia. This research investigated healthcare systems required to improve access to CR in rural and remote areas of North Queensland (NQ). Methods: A qualitatively dominant case study series to review management systems for CR in rural and remote areas of NQ was undertaken. Data collection was via semi-structured interviews in four tertiary hospitals and four rural or remote communities. An audit of discharge planning and CR referral, plus a review of community-based health services, was completed. An iterative and co-design process including consultation with healthcare staff and community members culminated in a systems-based model for improving access to CR in rural and remote areas. Results: Poorly organised CR systems, poor client/staff understanding of discharge planning and low referral rates for secondary prevention, resulted in the majority of clients not accessing secondary prevention, despite resources being available. Revised health systems and management processes were recommended for the proposed Heart: Road to health model, and given common chronic diseases risk factors it was recommended to be broadened into Chronic disease: Road to health. Conclusion: A Chronic disease: Road to health model could provide effective and efficient secondary prevention for people with chronic diseases in rural and remote areas. It is proposed that this approach could reduce gaps and duplication in current healthcare services and provide flexible, client-centred, holistic, culturally responsive services, and improve client outcomes. What is known about the topic? Cardiac rehabilitation is known to improve health outcomes and reduce hospitalisations, but referrals and attendance are low (30%). What does this paper add? A revised systems-based model for improved access to secondary prevention for people with heart and related chronic diseases in rural and remote areas of North Queensland is proposed: Chronic disease: Road to health. What are the implications for practitioners? A functional system from hospitalisation to local healthcare services has been designed to improve access to secondary prevention. Staff require support and education to improve skills, better manage care and improve job satisfaction. [ABSTRACT FROM AUTHOR]
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- 2024
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28. The impact of self-assessment and surveyor assessment on site visit performance under the National General Practice Accreditation scheme.
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McNaughton, David T., Mara, Paul, and Jones, Michael P.
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SELF-evaluation , *ACCREDITATION , *NURSES , *HEALTH services administration , *CLINICAL medicine , *REPEATED measures design , *FAMILY medicine , *EXECUTIVES , *KEY performance indicators (Management) , *LOGISTIC regression analysis , *STATISTICAL sampling , *MANN Whitney U Test , *ODDS ratio , *METROPOLITAN areas , *RURAL conditions , *MEDICAL appointments , *REGULATORY approval , *REPORT writing , *CONFIDENCE intervals , *DATA analysis software - Abstract
Objective: There is a need to undertake more proactive and in-depth analyses of general practice accreditation processes. Two areas that have been highlighted as areas of potential inconsistency are the self-assessment and surveyor assessment of indicators. Methods: The data encompass 757 accreditation visits made between December 2020 and July 2022. A mixed-effect multilevel logistic regression model determined the association between attempt of the self-assessment and indicator conformity from the surveyor assessment. Furthermore, we present a contrast of the rate of indicator conformity between surveyors as an approximation of the inter-assessor consistency from the site visit. Results: Two hundred and seventy-seven (37%) practices did not attempt or accurately report conformity to any indicators at the self-assessment. Association between attempting the self-assessment and the rate of indicator non-conformity at the site visit failed to reach statistical significance (OR = 0.90 [95% CI = 1.14–0.72], P = 0.28). A small number of surveyors (N = 9/34) demonstrated statistically significant differences in the rate of indicator conformity compared to the mean of all surveyors. Conclusions: Attempt of the self-assessment did not predict indicator conformity at the site visit overall. Appropriate levels of consistency of indicator assessment between surveyors at the site visit were identified. What is known about the topic? There is a need to undertake more proactive and in-depth analyses of the general practice accreditation process and outcomes to improve the quality and safety within this healthcare sector. What does this paper add? Attempt of the self-assessment does not predict indicator conformity at the site visit overall, and appropriate levels of consistency of indicator assessment between surveyors at the site visit were identified. What are the implications for practitioners? We present empirical evidence as to the consistency of assessment with general practice accreditation to inform future standards and (re)accreditation assessments. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Communication for Development: Conceptualising Changes in Communication and Inclusive Rural Transformation in the Context of Environmental Change.
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Cardey, Sarah, Eleazar, Pamela Joyce Moraleda, Ainomugisha, Juliet, Kalowekamo, Macneil, and Vlasenko, Yurii
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RURAL conditions , *EXTREME weather , *CORPORATE public relations , *RURAL development , *FOLLOWERSHIP , *AGRICULTURAL development - Abstract
Globally, rural conditions are in states of change. They are often highly vulnerable to climate and environmental change, extreme weather events, conflict, socio-economic changes, inequalities, and demographic changes. These changes are putting stress on rural areas, which rely upon agriculture and natural resources for their livelihoods and are often the foundation of national economies. Communication for development (C4D) has played an important role in addressing these challenges. Its thinking is broadly consistent with rural development goals—indeed, the roots of C4D come in part from rural development and agricultural extension. Communication for development (C4D) was defined by the World Congress on Communication for Development as "...a social process based on dialogue using a broad range of tools and methods. It also seeks change at different levels, including listening, building trust, sharing knowledge and skills, building policies, debating, and learning for sustained and meaningful change. It is not public relations or corporate communications". However, after decades of action to address these interrelated rural development challenges, much remains to be done. This paper critically considers the following: What does inclusive rural development mean now, in light of environmental change, and how does this affect the conceptualisation and practice of C4D? This was done by using three countries as case studies: Malawi, Ukraine, and the Philippines. Each of these countries represented contrasting challenges and opportunities for rural development and environmental change, with lessons from their experiences shedding insight into the communication for development thinking. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Investigating Cannabis-Use Among Students Attending High Schools Within the Cherokee Nation Reservation 2017 and 2019.
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Campbell, Janis E., Chen, Sixia, Bailey, Anna, Blair, Andrea, and Comiford, Ashley L.
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SUBSTANCE abuse risk factors , *MEDICAL marijuana , *RISK assessment , *ALASKA Natives , *ALCOHOLIC beverages , *RESEARCH funding , *PSYCHOLOGY of high school students , *ELECTRONIC cigarettes , *SEX distribution , *DESCRIPTIVE statistics , *AGE distribution , *SURVEYS , *ODDS ratio , *RACE , *RURAL conditions , *MEDICAL records , *ACQUISITION of data , *SOCIODEMOGRAPHIC factors , *COMPARATIVE studies , *CONFIDENCE intervals , *TOBACCO products , *HEALTH equity , *PSYCHOLOGY of Native Americans , *DRUG utilization , *DRUGS of abuse , *THERAPEUTICS , *ADOLESCENCE - Abstract
Oklahoma's medical cannabis is some of the least restrictive in the US. Previous research suggests that American Indian/Alaska Native (AIAN) have higher rates of cannabis use than other racial or ethnic groups. The goals of this paper are, first, to look at cannabis use among high school students living on the Cherokee Nation Reservation before (2017) and after (2019) medical cannabis because legal in Oklahoma (2018) utilizing the Cherokee Nation Youth Risk Behavior Survey (CNYRBS). Second, to describe the socio-demographic characteristics of youth using cannabis in the Cherokee Nation Reservation. Data were retrieved from the 2017 and 2019 CNYRBS. The data for this study included 1,216 high school students who completed the 2017 and 1,476 who completed the 2019 CNYRBS. After removal of incomplete records, there were 2,602 students whose data was analyzed in this study. Data were weighted to be representative of public-school students attending grades 9–12 within Cherokee Nation Reservation. Despite the legalization of medical cannabis in Oklahoma in 2018, there was no change in cannabis use among youth between 2017 and 2019. There were variations in cannabis use based on demographic factors and other substance uses. AIAN individuals had higher odds of current cannabis use compared to non-Hispanic White students, but there were no differences based on ethnicity. Additionally, the use of cigarettes, e-cigarettes, alcohol, and illegal drugs were associated with increased odds of cannabis use among both current and former users compared to those who had never used it. There was no spike in use among youth at least immediately after the legalization of cannabis in the Cherokee Nation Reservation. There were socio-demographic as well as substance use disparities in the use of cannabis. [ABSTRACT FROM AUTHOR]
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- 2024
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31. A systematic review of effective local, community or peer‐delivered interventions to improve well‐being and employment in regional, rural and remote areas of Australia.
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Luke, Jennifer, Bartlett, Cristy, March, Sonja, and McIlveen, Peter
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COMMUNITY health services , *GREY literature , *AUTONOMY (Psychology) , *RESEARCH funding , *AFFINITY groups , *TREATMENT effectiveness , *SYSTEMATIC reviews , *RURAL conditions , *MEDICAL records , *ACQUISITION of data , *QUALITY assurance , *INTERPERSONAL relations , *WELL-being , *EMPLOYMENT , *INDIGENOUS Australians , *EVALUATION - Abstract
Objective: To systematically review evaluated local, community or peer‐delivered well‐being and employment interventions delivered within regional, rural and remote Australia. Design: Searches within nine databases retrieved peer‐reviewed and grey literature from an initial pool of 3186 papers published between 2012 and 2022. PRISMA guidelines were adhered to, and the Mixed Methods Appraisal Tool (MMAT) was used to assess the quality of the well‐being or employment (or both) articles. Findings: A total of 19 items met the inclusion criteria, which included two quantitative, 12 qualitative and five mixed‐methods evaluations. Intervention cohorts included Indigenous Australians, youth, older people, workers and the general community. The average methodological rating was 83%. The overall level of evidence for the interventions was low due to mostly descriptive studies. Discussion: Interventions that appeared effective in improving well‐being tended to focus on addressing social connectedness and self‐determination. Unexpected employment outcomes were evident across many of the studies, which highlighted the reciprocity between well‐being and employment. Conclusion: This review highlights promising interventions for improving well‐being by focusing on social connectedness and self‐determination. Further empirical evidence is encouraged to explore the reciprocal relationship between well‐being and employment, emphasising the significance of social connectedness and self‐determination in this context. [ABSTRACT FROM AUTHOR]
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- 2024
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32. Built and natural environment correlates of physical activity of adults living in rural areas: a systematic review.
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Müller, Christina, Paulsen, Lisa, Bucksch, Jens, and Wallmann-Sperlich, Birgit
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SELF-evaluation , *SAFETY , *LIGHTING , *NATURE , *EXERCISE , *RECREATION , *AESTHETICS , *ACCESSIBLE design , *ACCESSIBLE design of public spaces , *EXERCISE intensity , *SYSTEMATIC reviews , *LEISURE , *CYCLING , *WALKING , *SECURITY systems , *MEDLINE , *HEALTH behavior , *RURAL conditions , *ONLINE information services , *BUILT environment , *PHYSICAL activity , *PEDESTRIANS , *PSYCHOLOGY information storage & retrieval systems , *EVALUATION , *ADULTS - Abstract
Background: According to social-ecological models, the built and natural environment has the potential to facilitate or hinder physical activity (PA). While this potential is well researched in urban areas, a current systematic review of how the built and natural environment is related to PA in rural areas is lacking. Methods: We searched five databases and included studies for adults (18–65 years) living in rural areas. We included quantitative studies investigating the association between any self-reported or objectively measured characteristic of the built or natural environment and any type of self-reported or objectively measured PA, and qualitative studies that reported on features of the built or natural environment perceived as barriers to or facilitators of PA by the participants. Screening for eligibility and quality assessment (using the Standard Quality Assessment Criteria for Evaluating Primary Research Papers from a Variety of Fields) were done in duplicate. We used a narrative approach to synthesize the results. Results: Of 2432 non-duplicate records, 51 quantitative and 19 qualitative studies were included. Convincing positive relationships were found between the availability and accessibility of places for exercise and recreation and leisure-time PA as well as between the overall environment and leisure-time PA. Possible positive associations were found between the overall environment and total and transport-related PA, between greenness/natural environment and total PA, between cycling infrastructure and aesthetics and MVPA, and between pedestrian infrastructure and total walking. A possible negative relationship was found between safety and security and total walking. Qualitative studies complemented several environmental facilitators (facilities for exercise and recreation, sidewalks or streets with low traffic, attractive natural environment) and barriers (lack of facilities and destinations, lack of sidewalks, speeding traffic and high traffic volumes, lack of street lighting). Conclusions: Research investigating the relationship between the built and natural environment and PA behaviors of adults living in rural areas is still limited and there is a need for more high-quality and longitudinal studies. However, our most positive findings indicate that investing in places for exercise and recreation, a safe infrastructure for active transport, and nature-based activities are possible strategies that should be considered to address low levels of PA in rural adults. Trial registration: PROSPERO: CRD42021283508. [ABSTRACT FROM AUTHOR]
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- 2024
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33. 'We manage, but yeah, it's challenging': A mixed‐methods study of enablers and barriers to hearing assessments for parents of children in metropolitan and regional Australia.
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Zussino, Jenna, Zupan, Barbra, and Preston, Robyn
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HEALTH services accessibility , *RURAL conditions , *RESEARCH methodology , *INTERVIEWING , *MANN Whitney U Test , *COMPARATIVE studies , *HEALTH literacy , *LANGUAGE acquisition , *SURVEYS , *HEARING disorders , *CHI-squared test , *DESCRIPTIVE statistics , *RESEARCH funding , *METROPOLITAN areas , *THEMATIC analysis , *DATA analysis software , *PARENTS , *VIDEO recording , *CHILDREN - Abstract
Background: Early identification and intervention for hearing loss is important for supporting language development. Despite this, parents are required to overcome barriers to access hearing assessments for their children. Aims: To identify the enablers and barriers to accessing hearing assessments for Australian children identified by their parents, and to compare between metropolitan, regional and rural areas. Methods & Procedures: This sequential, explanatory mixed‐methods study was undertaken online and included participants in metropolitan, regional and rural area of Queensland, New South Wales, Victoria, South Australia, Western Australia and the Northern Territory. A total of 56 participants participated in the surveys, and 10 participated in semi‐structured interviews. Outcomes & Results: Participants in metropolitan areas were more likely to have services in their area; however, access to hearing assessment was related more to individual circumstances (including health literacy skills) rather than geographical location. Many participants experienced long wait times, reduced flexibility, and a lack of audiologists experienced in working with children. Conclusions & Implications: Barriers to hearing assessments (which assist with early identification and intervention for hearing loss) should be addressed so that children have access to clear auditory information to assist with their speech and language development. WHAT THIS PAPER ADDS: What is already known on the subject: Poor audiological input can lead to poor speech, language and literacy outcomes for children. What this paper adds to the existing knowledge: Although previous research indicates that people in regional and remote locations experience difficulty accessing health services within a reasonable timeframe, in this study barriers were experienced regardless of geographical location, and were dependent on individual circumstances. Many parents are unaware of the impact of hearing on speech and language. What are the potential or actual clinical implications of this work?: Further research might examine how health literacy affects access to hearing assessment. Parents shared several potential solutions to these access barriers which should be considered by service providers. [ABSTRACT FROM AUTHOR]
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- 2024
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34. Receptivity towards Remote Service Delivery among Social Work Clients and Practitioners during COVID Times: A Systematic Review.
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Chuah, Xing Jun, Aw, Chin Bee, Ong, Pei Ni, Samsuri, Khalisah Binte, and Dhaliwal, Satvinder Singh
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PROFESSIONAL practice , *WELL-being , *COVID-19 , *HEALTH services accessibility , *RURAL conditions , *SYSTEMATIC reviews , *HUMAN comfort , *CONSUMER attitudes , *MEDICAL care , *SELF-efficacy , *SOCIAL worker attitudes , *SOCIAL services , *THEMATIC analysis , *TELEMEDICINE - Abstract
This systematic review aims to identify and synthesize the available evidence on the receptivity toward, perceived advantages and challenges of remote service delivery among social work clients and practitioners during the context of COVID-19. Two electronic databases were searched from 2020 to 2022. Identified papers were screened against the established eligibility criteria, yielding 15 papers. Two additional papers were further identified through hand-search. As heterogeneity of studies was high, a narrative synthesis was performed to summarize the overall evidence. Our review provides evidence that remote service delivery holds the potential to increase access to services among selected client populations as well as promote a sense of empowerment for clients and opportunities for practice enhancement for practitioners. The findings from our study highlighted the need for innovative solutions and practical considerations for ongoing remote service, including the careful considerations of social work clients' and practitioners' suitability, the need for provision of training and ongoing support to optimize practitioners' well-being. As the delivery of services transition to face-to-face or remain remote, further research is needed to assess the promise of remote practice in optimizing overall service delivery, while maintaining client-reported satisfaction. [ABSTRACT FROM AUTHOR]
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- 2023
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35. Measuring Library Broadband Networks to Address Knowledge Gaps and Data Caps.
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Ritzo, Chris, Rhinesmith, Colin, and Jie Jiang
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DIGITAL libraries , *FOCUS groups , *DIGITAL divide , *RURAL conditions , *DIGITAL technology , *LIBRARY technical services , *QUANTITATIVE research , *INTERVIEWING , *RACE , *QUALITATIVE research , *CONCEPTUAL structures , *SURVEYS , *INTERNET access , *QUALITY assurance , *RESEARCH funding , *ACCESS to information , *METROPOLITAN areas , *ETHNIC groups , *PUBLIC libraries , *INTERNET service providers , *LONGITUDINAL method , *INFORMATION technology - Abstract
In this paper, we present findings from a three-year research project funded by the US Institute of Museum and Library Services that examined how advanced broadband measurement capabilities can support the infrastructure and services needed to respond to the digital demands of public library users across the US. Previous studies have identified the ongoing broadband challenges of public libraries while also highlighting the increasing digital expectations of their patrons. However, few large-scale research efforts have collected automated, longitudinal measurement data on library broadband speeds and quality of service at a local, granular level inside public libraries over time, including when buildings are closed. This research seeks to address this gap in the literature through the following research question: How can public libraries utilize broadband measurement tools to develop a better understanding of the broadband speeds and quality of service that public libraries receive? In response, quantitative measurement data were gathered from an open-source broadband measurement system that was both developed for the research and deployed at 30 public libraries across the US. Findings from our analysis of the data revealed that Ookla measurements over time can confirm when the library's internet connection matches expected service levels and when they do not. When measurements are not consistent with expected service levels, libraries can observe the differences and correlate this with additional local information about the causes. Ongoing measurements conducted by the library enable local control and monitoring of this vital service and support critique and interrogation of the differences between internet measurement platforms. In addition, we learned that speed tests are useful for examining these trends but are only a small part of assessing an internet connection and how well it can be used for specific purposes. These findings have implications for state library agencies and federal policymakers interested in having access to data on observed versus advertised speeds and quality of service of public library broadband connections nationwide. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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36. Disability workforce and the NDIS planning process in regional, rural and remote regions of Australia: Scoping review.
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Gilroy, John, Veli‐Gold, Sarah, Wright, Wayne, Dew, Angela, Jensen, Heather, Bulkeley, Kim, and Lincoln, Michelle
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CINAHL database , *HEALTH policy , *RURAL conditions , *HEALTH of indigenous peoples , *SYSTEMATIC reviews , *DISABILITY insurance , *LABOR supply , *MEDICAL care research , *RESEARCH funding , *PEOPLE with disabilities , *METROPOLITAN areas , *LITERATURE reviews , *MEDLINE , *SOCIODEMOGRAPHIC factors , *MEDICAL needs assessment , *MEDICAL care of indigenous peoples ,MEDICAL care for people with disabilities - Abstract
Background: The Australian geographically rural and remote disability workforce has historically demonstrated difficulties to keep up with the demand for quality services and supports for people with disability. In 2013, the National Disability Insurance Scheme (NDIS) was launched to provide individualised disability support packages to meet people's needs. To receive funding, people with disability are required to develop a NDIS plan. That plan is then funded by the National Disability Insurance Agency (NDIA), the government agency responsible for managing the NDIS. Although the NDIS has been operating for almost 10 years, there is limited research into the planning experiences of the workforce in regional, rural and remote regions of Australia. This review aims to ascertain the level of scholarly investigation into workers' experiences of NDIS planning. Methodology: Research publication databases were searched using a specific search string to identify publications that included reference to the workforce's experiences of the NDIS planning process in regional, rural and remote regions of Australia. The Mixed Methods Appraisal Tool (MMAT) was adopted to appraise the quality of the research publications. Research publications that focused on those working with Aboriginal and Torres Strait Islander people were also appraised using the Aboriginal and Torres Strait Islander Quality Appraisal Tool developed by the Centre for Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange. A thematic synthesis of the publications was undertaken to ascertain disability and health workforce experiences of the NDIS planning process. Results: Seven papers met the selection criteria. Two papers were policy reviews and reported the improvements of the NDIS planning process since its inception. These studies reported four reoccurring themes: (1) cultural/socioeconomic and geographical factors; (2) administrative burden and bureaucracy; (3) values, culture and geography; and (4) burden on allied health workers. Conclusion: The NDIS planning process has developed and progressed since its rollout in 2013. There are limited research papers available that describe the workforce's experience of the planning process in regional, rural and remote regions. More research in this area is needed to identify the experiences of the disability workforce in relation to the NDIS planning process. [ABSTRACT FROM AUTHOR]
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- 2023
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37. The experiences of people with disability and their families/carers navigating the NDIS planning process in regional, rural and remote regions of Australia: Scoping review.
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Veli‐Gold, Sarah, Gilroy, John, Wright, Wayne, Bulkeley, Kim, Jensen, Heather, Dew, Angela, and Lincoln, Michelle
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- *
CAREGIVER attitudes , *HEALTH policy , *CINAHL database , *PATIENT aftercare , *RURAL conditions , *SYSTEMATIC reviews , *DISABILITY insurance , *PATIENTS' attitudes , *HUMAN services programs , *PSYCHOLOGY of caregivers , *DESCRIPTIVE statistics , *RESEARCH funding , *PEOPLE with disabilities , *METROPOLITAN areas , *LITERATURE reviews , *THEMATIC analysis , *MEDLINE , *WORLD Wide Web - Abstract
Background: Australia's National Disability Insurance Scheme (NDIS) was launched in 2013 to provide financial support packages for people with disability to purchase supports and services to enhance independence. People with disability are required to develop a plan with the National Disability Insurance Agency (NDIA), the government department responsible for managing the NDIS. This scoping review aims to ascertain the level of research into people's experience of the NDIS planning process in these geographic areas. Methodology: Research publication databases were searched using a specific search string to identify research about people with disability and their families/carer's experiences of the NDIS planning process in regional, rural and remote regions of Australia. The Mixed Methods Appraisal Tool (MMAT) was adopted to appraise the quality of the research publications. Research publications focused on Aboriginal and Torres Strait Islander people were additionally appraised using the Aboriginal and Torres Strait Islander Quality Appraisal Tool developed by the Centre for Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange. A thematic synthesis of the publications' contents was undertaken to ascertain people with disabilities and carers experience of the NDIS planning process. Results: Ten (N = 10) research papers were found that met the inclusion criteria. Two papers were policy reviews and reported on the improvements of the NDIS planning process since its conception. The analysis found the research archive focused on five themes: (1) healthcare workforce and NDIA staff; (2) NDIS package holders and carers lack of awareness of the NDIS; (3) cultural/socio‐economic barriers; (4) travel funding; and (5) emotional burden of the NDIS planning process. Conclusion: There are limited papers available that explore people's experiences of the NDIS planning process in regional, rural and remote regions of Australia. This systematic review illuminates the difficulties, barriers and concerns of people with disability and their carers about the planning process. [ABSTRACT FROM AUTHOR]
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- 2023
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38. Rural–urban inequalities in health care utilization in Bhutan: a decomposition analysis.
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Sharma, Jayendra, Pavlova, Milena, and Groot, Wim
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MEDICAL care use , *RURAL health , *HEALTH policy , *SOCIOECONOMIC disparities in health , *PRIMARY health care , *RURAL population , *UNIVERSAL healthcare , *RURAL conditions , *METROPOLITAN areas , *HEALTH equity , *URBAN health , *EMPLOYMENT - Abstract
Background and objective: On the trajectory towards universal health coverage in Bhutan, health equity requires policy attention as significant disparities exist between urban and rural health outcomes. This paper examines health services utilization patterns, inequalities and their socio-economic determinants in rural and urban areas and decomposes the factors behind these differences. Methods: We used the Bhutan Living Standard Survey 2017 to profile health services utilization patterns and equalities. We employed two different decomposition analyses: decomposition of mean differences in utilization using the Oaxaca–Blinder decomposition framework and differences in the income-related distribution in utilization using recentered influence function regressions between rural and urban areas. Results: Significant differences exist in the type of outpatient services used by the rural and urban population groups, with those living in rural areas having 3.4 times higher odds of using primary health centers compared to outpatient hospital care. We find that the use of primary health care is pro-poor and that outpatient hospital resources is concentrated among the more affluent section of the population, with this observed inequality consistent across settings but more severe in rural areas. The rural–urban gap in utilization is primarily driven by income and residence in the eastern region, while income-related inequality in utilization is influenced, aside from income, by residence in the central region, household size, and marriage and employment status of the household head. We do not find evidence of significant mean differences in overall utilization or inequality in utilization of inpatient health care services. Conclusions: While the differences in average contacts with health services are insignificant, there are prominent differences in the level of services availed and the associated inequality among rural and urban settings in Bhutan. Besides, while there are obvious overlaps, factors influencing income-related inequality are not necessarily the same as those driving the utilization gaps. Cognizance of these differences may lead to better informed, targeted, and potentially more effective future research and policies for universal health coverage. [ABSTRACT FROM AUTHOR]
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- 2024
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39. 'E koekoe te Tūī, e ketekete te Kākā, e kuku te Kererū, The Tūī chatters, the Kākā cackles, and the Kererū coos': Insights into explanatory factors, treatment experiences and recovery for Māori with eating disorders – A qualitative study
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Clark, Mau Te Rangimarie, Manuel, Jenni, Lacey, Cameron, Pitama, Suzanne, Cunningham, Ruth, and Jordan, Jennifer
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TREATMENT of eating disorders , *QUALITATIVE research , *MENTAL health services , *SELF-efficacy , *RESEARCH funding , *INTERVIEWING , *HEALTH , *CULTURAL values , *INFORMATION resources , *EXPERIENCE , *MAORI (New Zealand people) , *THEMATIC analysis , *RURAL health services , *CONVALESCENCE , *RESEARCH methodology , *MEDICAL coding , *RURAL conditions , *SOCIAL support , *PATIENTS' attitudes , *PSYCHOSOCIAL factors , *INFORMATION-seeking behavior , *SELF-perception - Abstract
Background: Eating disorders are as common in Māori, the Indigenous people of Aotearoa-New Zealand, as they are in non-Māori; however, research has focused on the experiences of non-Māori. This paper will describe explanatory factors, treatment experiences and what helps with recovery for Māori. Methods: Kaupapa Māori research methodology informed the methods and analysis. Fifteen semi-structured interviews comprised thirteen Māori participants with eating disorders (anorexia nervosa, bulimia nervosa and binge eating disorder) and two whānau (support network) members. A thematic analysis was undertaken by a first cycle of coding that used deductive structural coding to identify data describing participants' perceived causes of eating disorders, their experience of treatment and recovery. A second cycle of coding used inductive analysis with descriptive and pattern coding. Results: Three overarching themes were antecedents (cumulative exposure), treatment (a system of complexities) and recovery (resource empowerment). Antecedents comprised cumulative exposure to body and sporting ideals and adversity as causal factors of eating disorders. In the treatment theme, a system of complexities critiqued rural settings for generalised mental health services, allocation of Māori cultural support, the economic burden of treatment, culturally incongruent treatment (methods, values) and a weight-focused discharge criterion. Recovery (resource empowerment) found appropriate health information, self-determination and connection to Māori culture and whānau aspirations helped with recovery. Conclusion: The diversity of birdcalls reminds us of the individuality of eating disorders. Health practitioners are reminded that just as the Tūī, Kākā and Kererū possess their own unique birdcalls, so do Māori with eating disorders and their whānau have their own experiences, needs and required treatment responses. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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40. Clinicians' Experiences and Perspectives about a New Lung Cancer Referral Pathway in a Regional Health Service.
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Otty, Zulfiquer, Larkins, Sarah, Evans, Rebecca, Brown, Amy, and Sabesan, Sabe
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QUALITATIVE research , *GENERAL practitioners , *INTERVIEWING , *WORK experience (Employment) , *PHYSICIANS' attitudes , *TERTIARY care , *PSYCHOLOGICAL adaptation , *THEMATIC analysis , *SOUND recordings , *LUNG tumors , *RURAL conditions , *RESEARCH methodology , *COMMUNICATION , *ONCOLOGISTS , *PSYCHOSOCIAL factors , *MEDICAL referrals - Abstract
Introduction: Development and implementation of the Townsville Lung Cancer Referral Pathway [TLCRP] aims to reduce delays and improve referral patterns of people with suspected lung cancer in north Queensland, Australia. Reported in this paper is the experiences and perspectives of general practitioners [GPs] and specialists of the TLCRP. Methods: This was a descriptive qualitative study nested within a larger project evaluating TLCRP, utilising a broader implementation science framework. In-depth, semi-structured interviews with GPs and specialists were conducted. An iterative, inductive thematic analysis of interview transcripts was used to derive key codes, then grouped into themes regarding participant experiences and perceptions. Results: Data analysis identified two major themes and several sub-themes. The major themes were variation in the uptake of TLCRP and enhancing coordinated care and communication. Discussion: Several enablers and barriers to implementing TLCRP were identified. Barriers to adaptation of TLCRP included lack of clinical time, resistance to changing referral patterns, lack of familiarity or experience with HealthPathways and technology issues. Conclusion: Emerging themes from this study may be used to reduce the barriers and improve uptake of TLCRP and other health care pathways in the local health service and may have wider relevance in other settings. [ABSTRACT FROM AUTHOR]
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- 2024
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41. How the training pathways and capacity of rural physicians inform their scope of practice: A qualitative study examining the experiences of Australian and international medical graduates in South‐East New South Wales, Australia.
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Burgis‐Kasthala, Sarath, Bain‐Donohue, Suzanne, Tailby, Ellen, Stonestreet, Kathryn, and Moore, Malcolm
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QUALITATIVE research , *FAMILY medicine , *INTERVIEWING , *FOREIGN physicians , *THEMATIC analysis , *LONGITUDINAL method , *RURAL conditions , *RESEARCH methodology , *RESEARCH , *CONCEPTUAL structures , *PHYSICIANS , *MEDICAL practice , *LABOR supply - Abstract
Introduction: Current strategies to address shortages of rural doctors focus on developing a pipeline for rural generalist practice. Limited research has explored how doctors' professional journey engenders the skills required to practice rurally. Objective: This paper analyses how rural general practitioners' clinical pathway informs their scope of practice and future retention. Design: Qualitative thematic analysis using semi‐structured telephone interviews. Twenty‐one general practitioners appointed in their local health district of Murrumbidgee and Southern New South Wales, Australia, within the past 10 years. Participants comprised 10 Australian medical graduates (AMG) and 11 international medical graduates (IMG). Findings: AMGs and IMGs contrasted how their pathway into rural practice, and capacity to work rurally, informed their scope of practice. Australian medical graduates' familiarity with rural areas was consolidated through congruous experiences, including at rural clinical schools. Paradoxically, the fluency of their training limited the amount of unsupervised experience and confidence AMGs gained. Together with a focus on work‐life balance, this limited many to providing mainstream general practice, precluding extending their scope of practice. International medical graduates described disseminated experiences, often unsupervised in high‐volume contexts. However, a lack of professional opportunities prevented them from extending their scope of practice. Discussion: IMG and AMG motivation and pathway for working rurally differ. Respective cohorts have concerns regarding requisite skills and knowledge for rural practice, which incorporates opportunity and recognition. Entry points for training should be variable to allow consideration of life stage, prior skill development and extension of scope of practice. Conclusion: Doctors' scope of practice is informed by their pathways into rural practice. Australian medical graduates may not gain adequate competence during expedited training programs to confidently undertake extended clinical activities. International medical graduates, however lacked the opportunities and support, to utilise their expertise in rural practice. Complementarily utilising the expertise and commitment of both AMGs and IMGs may synergistically address workforce shortages. [ABSTRACT FROM AUTHOR]
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- 2024
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42. "Tie your camel first, then rely on God": reconceptualizing Javanese Islamic values to support palliative care at home.
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Wicaksono, Raditya Bagas, Muhaimin, Amalia, Willems, Dick L., and Pols, Jeannette
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ISLAM , *SOCIAL support , *ETHICS , *HOME care services , *RURAL conditions , *INTERVIEWING , *FAMILIES , *ETHNOLOGY research , *QUALITATIVE research , *QUALITY of life , *MUSLIMS , *RESEARCH funding , *THEMATIC analysis , *PATIENT care , *CONCEPTS , *CULTURAL values , *PALLIATIVE treatment - Abstract
Background: In the last decade, there has been a growing concern to make palliative care more culturally sensitive and contextually appropriate. This concern is also relevant in Indonesia, where the progress of palliative care, particularly in home-based care, has been slow. Like elsewhere in the world, there has been a growing awareness of the importance of shifting from a curative orientation towards a palliative one, especially in cases where further medical treatment is futile. In this paper we argue that the development of palliative care practices would benefit greatly from learning about the values that are important for patients, families, and health professionals. It is important to understand these values to support forms of care that aim to enhance quality of life. To demonstrate this, we analyse the care values people in rural Java evoke in their home palliative care practices. Methods: We conducted an eight-month ethnographic study involving forty-nine patients, families, and health professionals. Results: We identified three specific Javanese Islamic values: making an effort (ikhtiar), being sincere (ikhlas), and being in a state of surrender (pasrah). These values influenced the participants' activities in a palliative care setting. Based on our findings, we suggest three strategies to incorporate these values into palliative care practices and to better facilitate palliative care's integration into Javanese Muslim communities. The first strategy is to include efforts to reduce suffering and improve the quality of life using the concept of ikhtiar. The second strategy is to foster sincerity (ikhlas) to help patients and families accept the realities of their condition and provide care for patients at home. The last strategy is to clarify that palliative care is not synonymous with 'giving up' but can be seen as an act of pious surrender. Conclusions: Our study identified three Islamic-Javanese values that can be incorporated to strategies aiming at enhancing palliative care practices, resulting in care focused on improving quality of life rather than futile attempts at a cure. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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43. Neoliberalism, Control of Trans and Gender Diverse Bodies and Social Work.
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Doll, Kaitrin, Brown, Catrina, Johnstone, Marjorie, and Ross, Nancy
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PROFESSIONAL ethics , *PROFESSIONAL practice , *DRUG addiction , *SOCIAL support , *GENDER affirming care , *HEALTH services accessibility , *WORK , *PRACTICAL politics , *RESEARCH methodology , *DISCRIMINATION (Sociology) , *RURAL conditions , *GENDER-nonconforming people , *INTERVIEWING , *SOCIAL justice , *QUALITATIVE research , *SOCIAL worker attitudes , *EXPERIENTIAL learning , *PSYCHOSOCIAL factors , *DESCRIPTIVE statistics , *CASE studies , *RESEARCH funding , *SOCIAL services , *THEMATIC analysis , *COMMITMENT (Psychology) , *METROPOLITAN areas , *STATISTICAL sampling , *DATA analysis software , *TRANSGENDER people , *MENTAL health services - Abstract
This paper explores how neoliberal ideologies inform both social and political agendas that influence how social workers can provide support to trans and gender diverse people attempting to access gender-affirming healthcare, using an analysis of social workers' experiences working in mental health in Nova Scotia, Canada. Qualitative semi-structured interviews provide a perspective of the experiences of social workers in Nova Scotia and how their ability to provide mental health services to trans and gender diverse people is impacted by neoliberalism. Most social workers attributed the structural context of working within a bio-medical system as contributing to social workers being disempowered, undermined, and not able to practice according to the values of their profession thus limiting their ability to provide affirming mental health supports to trans and gender diverse people in ways that align with their social work professional ethics and values. Through examining how neoliberal ideologies create notions of ideal social citizens by controlling the body, the paper explores how lived experience of neoliberal practices in mental health social work reinforce transnormativity. This paper highlights the necessity for social workers to resist dominant neoliberal and medicalized discourses which serve as mechanisms of power and control. The paper concludes with recommendations for social work practice with trans and gender diverse populations. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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44. The Growth Process of a Taobao Village Case Study of Village D In Shandong Province, China.
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Shuai Wang, Shinji Takada, and Masaya Nakatsuka
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BUSINESSPEOPLE , *RURAL development , *RURAL conditions , *VILLAGES , *PROVINCES , *CULTURAL pluralism - Abstract
Developing rural e-commerce is seen as an effective measure to revitalize the economies of rural communities and is beginning to spread in several countries. However, conditions in rural communities are limited and lack the necessary elements for its promotion. Alibaba Group's Taobao Villages, a remarkable achievement of China's rural e-commerce development, has demonstrated strong vitality and is receiving increasing attention. Therefore, this research study into a Taobao Village, which has been developing in Shandong Province for more than a decade, conducts an in-depth analysis of its development history to provide a reference for rural e-commerce promotion. This paper proposes an 'internal innovation & external support' analytical framework for presenting the growth process of the rural community, which can explain how to sustain longterm operations and enhance e-commerce competitiveness. In addition, the paper confirms that the development of a Taobao Village is led by local-villager entrepreneurs, and this rural development strategy can encourage a diversity of entrepreneurs to participate in entrepreneurship and competition, all of which are worthy of further research and replication. [ABSTRACT FROM AUTHOR]
- Published
- 2023
45. Education of Children with Disabilities in Rural Indian Government Schools: A Long Road to Inclusion.
- Author
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Taneja-Johansson, Shruti, Singal, Nidhi, and Samson, Meera
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SCHOOL environment , *RURAL conditions , *RESEARCH methodology , *PROFESSIONAL employee training , *CHILDREN with disabilities , *PSYCHOLOGY of teachers , *INTERVIEWING , *MAINSTREAMING in special education , *SCHOOLS , *PUBLIC sector , *GOVERNMENT policy , *NEEDS assessment - Abstract
Global commitments to the education of children with disabilities, have led to progressive policy developments in India, and a surge in the enrolment of children who were traditionally excluded from the formal education system. This paper examines the perceptions and practices of mainstream teachers in rural government schools, within the context of increased learner diversity, focusing on how teachers understand, and respond to, the needs of children with disabilities. Data were collected through semi-structured interviews with teachers and classroom observations, in six primary schools, in three districts of Haryana. Our findings suggest that deficit-oriented views dominated teacher thinking, but they showed a readiness to engage with disability issues, recognising the value of education for all. However, they struggled in their classroom practices in relation to meeting diverse learner needs and exclusionary practices were further amplified for children with disabilities. Teachers were unwilling to take responsibility for the learning of children with disabilities, expressing significant concerns about their own preparedness, while highlighting the lack of effective and appropriate support structures. The paper concludes by drawing attention to the pressing need for effective teacher professional development opportunities and other support structures, to provide quality education. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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46. Health Disparities for Canada's Remote and Northern Residents: Can COVID-19 Help Level the Field?
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Gillespie, Judy
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ONLINE education , *HEALTH services accessibility , *RURAL conditions , *POPULATION geography , *HEALTH equity , *COVID-19 pandemic , *TELEMEDICINE , *HEALTH care rationing - Abstract
This paper reviews major structural drivers of place-based health disparities in the context of Canada, an industrialized nation with a strong public health system. Likelihood that the COVID-19 pandemic will facilitate rejuvenation of Canada's northern and remote areas through remote working, advances in online teaching and learning, and the increased use of telemedicine are also examined. The paper concludes by identifying some common themes to address healthcare disparities for northern and remote Canadian residents. [ABSTRACT FROM AUTHOR]
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- 2023
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47. Growing Our Own Rural, Remote and Aboriginal Health Workforce: Contributions made, approaches taken and lessons learnt by three rural Australian academic health departments.
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Naden, Kathryn, Hampton, Denise, Walke, Emma, Pavlovic, Susan Parker, Graham, Siobahn, and Jones, Debra
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ACADEMIC medical centers , *VOCATIONAL guidance , *RURAL conditions , *MEDICAL personnel , *LABOR demand , *LABOR supply , *HUMAN services programs , *HIGH school students - Abstract
Aims: This paper describes the investments made, approaches taken and lessons learnt by three rural Australian academic health departments engaged in the delivery of the Health Career Academy Program (HCAP). The program seeks to address the under‐representation of rural, remote and Aboriginal populations within Australia's health workforce. Context: Significant resources are directed towards rural practice exposure for metropolitan health students to address workforce shortages. Fewer resources are directed towards health career strategies that focus on the earlier engagement of rural, remote and Aboriginal secondary school students, those in Years 7–10. Best practice career development principles highlight the importance of earlier engagement in the promotion of health career aspirations and in influencing secondary school student career intentions and uptake of health professions. Approach: This paper describes: delivery contexts; the theory and evidence that has informed the HCAP; program design, adaptability and scalability; program focus on priming the rural health career pipeline; program alignment to best practice career development principles; enablers and barriers confronted in program delivery, and lessons learnt to inform rural health workforce policy and resourcing. Conclusion: There is a need to invest in programs that seek to attract rural, remote and Aboriginal secondary school students to health professions if Australia is to develop a sustainable rural health workforce. A failure to invest earlier undermines opportunities to engage diverse and aspiring youth in Australia's health workforce. Program contributions, approaches and lessons learnt can inform the work of other agencies seeking to include these populations in health career initiatives. [ABSTRACT FROM AUTHOR]
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- 2023
- Full Text
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48. ‘I have to pretend that I don’t care’: Stigma management among unmarried young mothers in South-Western Nigeria.
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Oluseye, Ayomide, Waterhouse, Philippa, and Hoggart, Lesley
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PSYCHOLOGICAL resilience , *MENTAL health , *RESEARCH funding , *TEENAGE mothers , *INTERVIEWING , *STATISTICAL sampling , *PSYCHOLOGICAL adaptation , *EXPERIENCE , *ILLEGITIMACY , *RURAL conditions , *RESEARCH methodology , *DISCRIMINATION (Sociology) , *SOCIAL stigma , *PSYCHOSOCIAL factors , *SELF-perception - Abstract
Young mothers often encounter stigma and discrimination, affecting their lives and that of their children. This paper explores stigma management strategies and their effectiveness for young mothers in rural Nigeria. Ten key informants and 24 young mothers were recruited from Ife-East in South-Western Nigeria. Data from semi-structured interviews showed that societal disapproval of pregnant teenagers and young mothers were common experiences. Women used a range of strategies to actively cope with stigma including: belief in predestination, avoidance, concealment, and cohabitation. These strategies could be seen as tools to mitigate negative stereotypes and discrimination. However, they also had the unintended consequences of compounding many young women’s difficult circumstances and exposing them to adverse outcomes, including gender-based violence, repeat pregnancies, poor mental health, and low uptake of services. The results show the need for policy frameworks to actively combat stigma by addressing the negative framing of early pregnancy and motherhood and promoting supportive environments for young mothers. Health professionals need to be trained to offer de-stigmatising services to encourage young mothers to seek help and reduce pre-existing inequities in access to services, and policies need to include measures that address the rights of young mothers and protect them from violence and abuse. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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49. Towards an African Spatial Humanity: Humanising Space and Place in the Digital Age.
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Otu, Monica N., Naidu, Maheshvari, Luckan, Yashaen, Johnson, Belinda, and Shoko, Evans
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DIGITAL technology , *RURAL development , *STANDARD of living , *RURAL conditions , *LAND reform - Abstract
The post-apartheid South African government prioritises rural development as a tool for reversing the apartheid government legacies of injustice, poverty, and black people's marginalisation, particularly in the former homelands of Ciskei, Transkei, and Venda land. This is evidenced by the implementation of diverse rural development policies and strategies such as the Land Reform Programme the Rural Development Strategy, and the National Development Plan vision 2030. Despite these efforts, evidence shows that most of the policies, such as the Land Reform Programme, have largely failed to promote rural development owing to specific implementation gaps. Bearing in mind these past failures, this paper seeks to assess the socio-economic conditions in the rural municipalities of the Eastern Cape that fall under the former homelands. This assessment will help to understand the gains and failures made through the rural development currently being implemented, such as the National Development Plan vision 2030. A quantitative cross-sectional survey was conducted among 413 participants who were selected using the multi-stage random sampling technique. Data were gathered through closed-ended questionnaires. The results were obtained using SPSS version 27 and analytical tools such as frequencies, cross-tabulation, and the Chi-square test. Results indicated that despite 28 years of implementing rural development policies and strategies, socio-economic conditions are still unsatisfactory in the study area. This is evidenced by low income levels, high unemployment, and limited livelihood activities. To salvage the situation, policies and rural development strategies that are informed by the voices, aspirations, and needs of local communities are urgently required. More so, livelihood diversification should be at the centre of rural development to increase income levels and standards of living. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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50. Evidence-Based Practices Via Remote Service Delivery for Early Intervention in Rural Communities.
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Howe, Elizabeth, Riggleman, Samantha, and Passmore, Amanda
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AUTISM risk factors , *PROFESSIONAL practice , *EXPERIMENTAL design , *EVALUATION of medical care , *RURAL health services , *HEALTH services accessibility , *PARENTING education , *RURAL conditions , *EVIDENCE-based medicine , *FAMILIES , *VIDEOCONFERENCING , *CONCEPTUAL structures , *MEDICAL care research , *HUMAN services programs , *EARLY intervention (Education) , *COMMUNICATION , *TELEMEDICINE ,UNITED States. Individuals with Disabilities Education Act - Abstract
The COVID-19 pandemic increased the use of remote service delivery in early childhood intervention (EI), and this increased use is promising for young children with disabilities living in rural communities. However, the increase in remote service delivery requires a greater understanding of using evidence-based practices (EBP) delivered by EI providers via this mode. Remote service delivery adds a new context to EI services requiring study to identify (a) what works for whom and under what conditions, (b) how an evidence-based practice delivered remotely results in positive outcomes for young children and caregivers, and (c) the independent variables that influence those outcomes. This position paper explains the importance of remote service delivery for improving access to EBP for young children with disabilities and their families in rural communities using a conceptual framework. The conceptual framework includes three essential factors described in depth in this article. First, the conceptual framework can support researchers in designing rigorous studies to deliver evidence-based practices remotely. Second, the conceptual framework can support EI programs and providers in identifying EBP for service delivery for young children and families in rural communities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
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