1. Methodological innovations and stakeholder involvement in core outcome sets for skin diseases: a survey of the C3 working groups.
- Author
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Ahmed, Areeba, Koza, Eric, Shi, Victoria, Ma, Melissa, Haq, Misha, Kottner, Jan, Garg, Amit, Ingram, John R., Ezzedine, Khaled, Spuls, Phyllis I., Beeckman, Dimitri, Wolkenstein, Pierre, Fransen, Frederike, Noe, Megan H., Langbroek, Ginger Beau, Bauer, Andrea, Thorlacius, Linnea, Horbach, Sophie E. R., Layton, Alison, and Apfelbacher, Christian
- Abstract
The article discusses the development of core outcome sets (COS) for skin diseases, which are standardized sets of outcomes and measures to be collected in research studies. The lack of uniformity in outcomes for skin diseases hinders the comparison of research findings and optimal patient care. Historically, COS have had limited stakeholder involvement and lacked geographic diversity. However, recent projects have expanded stakeholder involvement and incorporated novel methodologies to ensure more representative COS. The article emphasizes the importance of training materials for patients and patient representatives. Overall, the move towards methodological innovation and broader stakeholder involvement in COS development aims to standardize outcomes and improve their uptake in clinical practice. [Extracted from the article]
- Published
- 2024
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