1. When a baby is diagnosed at high risk of cerebral palsy: understanding and meeting parent need.
- Author
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Dickinson, Corrine, Sheffield, Jeanie, Mak, Catherine, Boyd, Roslyn N., and Whittingham, Koa
- Subjects
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PARENT attitudes , *SERVICES for caregivers , *GRIEF , *WELL-being , *PSYCHOLOGY of parents , *PROFESSIONS , *ATTITUDES of medical personnel , *INTERNET , *HONESTY , *MEDICAL care , *MEDICAL personnel , *INTERVIEWING , *RISK assessment , *QUALITATIVE research , *PATIENTS' families , *PSYCHOLOGICAL tests , *PARENTING , *HOPE , *ACCEPTANCE & commitment therapy , *RESEARCH funding , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *CEREBRAL palsy , *NEEDS assessment , *EMOTIONS , *PSYCHOLOGICAL adaptation , *PSYCHOLOGICAL distress , *EARLY diagnosis , *OPTIMISM , *DISEASE risk factors , *CHILDREN - Abstract
Purpose: To explore the experiences and needs of parents with an infant diagnosed at risk of cerebral palsy (CP) and to receive feedback on a new online support program (Parenting Acceptance and Commitment Therapy; PACT). Materials and methods: Eleven parents from eight family dyads (8 mothers, 3 fathers) with infants under 24 months of age (age range 10-24 months) recently diagnosed as at risk of CP as well as fourteen clinicians participated in this qualitative study through interviews. Results: Parents reported conflicting emotions and grief. Further, they reported that they wanted honesty, support and normalisation of their experiences from clinicians. Parents pointed to a gap in service delivery in terms of non-pathologising psychological support specific to their needs. Clinicians reported a lack of skills in supporting distressed parents. Parent feedback on PACT was positive, with parents receptive to the online delivery. Conclusions: Parents want acceptance without pathologisation, honesty, and flexible support. Clinicians working with children at risk of CP need training in grief awareness and support for their own coping. Health services should consider building better parental support into their systems of care. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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