1. 我国罕见病患者药品保障政策现状及改进思考.
- Author
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于华燕 and 周良荣#
- Subjects
- *
DRUG accessibility , *RARE diseases , *DRUG laws , *DRUG development ,DEVELOPED countries - Abstract
Through literature retrieval summary, this paper has analyzed the progress of medicine supply policy for rare disease drug in China in the past 5 years and the patterns of medicine supply policy for rare disease drugs implemented by various local governments. The United States and other developed countries have an early start in the definition, regulations and drug development incentives of rare diseases, and also have established a relatively robust system of medicine supply for rare disease. China is gradually establishing medicine supply policy for rare disease drug to promote access to medicines for patients with rare diseases. In order to establish a systematic policy system for rare diseases, this paper proposes that China can further promote the improvement from the aspects of system guarantee, resource guarantee and implementation guarantee to ensure drug accessibility for patients with rare diseases. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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