1. Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views.
- Author
-
Ellis, J., Warden, J., Molassiotis, A., Mackereth, P., Lloyd ‐ Williams, M., Bailey, C., Burns, K., and Yorke, J.
- Subjects
- *
RESPIRATORY distress syndrome treatment , *CANCER patients , *CAREGIVERS , *FOCUS groups , *INTERVIEWING , *LONGITUDINAL method , *LUNG tumors , *RESEARCH methodology , *PALLIATIVE treatment , *QUESTIONNAIRES , *RESEARCH funding , *RESPIRATORY distress syndrome , *STATISTICAL sampling , *TELEPHONES , *QUALITATIVE research , *PILOT projects , *JUDGMENT sampling , *THEMATIC analysis , *RANDOMIZED controlled trials , *HUMAN research subjects , *PATIENTS' attitudes , *DISEASE complications , *SYMPTOMS - Abstract
This paper reports finding from a nested qualitative study designed to elicit the views and perceptions of those who participated in a randomised controlled feasibility trial testing a non-pharmacological intervention, Respiratory Distress Symptom Intervention (RDSI), for the management of the breathlessness-cough-fatigue symptom cluster in lung cancer. Semi-structured interviews were conducted with 11 lung cancer patients, three caregivers and seven researchers involved in recruitment, consent, RDSI training and delivery and participant follow-up. Thematic analysis identified key considerations including: the importance of informed consent emphasising commitment to completion of paperwork and raising awareness of potential sensitivities relating to content of questionnaires; ensuring screening for the presence of symptoms reflects the language used by patients; appreciation of the commitment required from participants to learn intervention techniques and embed them as part of everyday life; conduct of interviews with patients who decline to participate; and conduct of serial interviews with those receiving RDSI to further inform its routine implementation into clinical practice. This study will inform the development of a fully powered follow-on trial testing the hypothesis that RDSI plus usual care is superior to usual care alone in the effective management of this symptom cluster in lung cancer. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF