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Die Beiträge in diesem Buch bieten einen breitgefächerten Überblick und thematischeTiefenschärfung zu ethischen, rechtlichen und strukturellen Rahmenbedingungen von Spiritual / Existential Care: Vorgestellt werden trägerübergreifende oder trägerspezifische Überlegungen zur Personal- und Organisationsentwicklung, sowie neu entwickelte Implementierungsstrategien von Spiritual / Existential Care im Gesundheitswesen. Neben empirischer Forschung und Bildungskonzeptionen werden interprofessionell erarbeitete Handlungsempfehlungen als Teil eines allgemeinen Behandlungsstandards in Medizin und Pflege dargelegt, um Mitarbeitende im Umgang mit existenziellen Fragen Schwerkranker und sterbender Menschen zu schulen.Mitwirkende aus der Deutschen Gesellschaft für Palliativmedizin (DGP), dem Deutschen Hospiz- und Palliativverband (DHPV), der Diakonie Deutschland und dem Diözesan-Caritasverband für das Erzbistum Köln haben verbandsübergreifend zur Federgegriffen, um multiperspektivisch Blickwinkel des weltanschauungs- und religionsübergreifenden Themenfelds Spiritual / Existential Care auszuleuchten. Die Autorinnen und Autoren eint dabei das Anliegen, Patienten, Bewohnerinnen, Schwerkranke und sterbende Menschen mit ihren An- und Zugehörigen nicht alleine und unbegleitet zu lassen in ihren existenziellen Fragen und spirituellem Schmerz.Das Buch Existential / Spiritual Care interprofessionell (SpECi) richtet sich an Mitarbeitende im Gesundheitswesen im Haupt- und Ehrenamt, an Träger von Einrichtungen der gesundheitlichen Versorgung, Kostenträger und Gesundheitspolitik mit dem Anliegen der Verbesserung der spirituellen Begleitung Schwerkranker und sterbender Menschen sowie deren An- und Zugehörigen. Dies ist ein Open-Access-Buch.

The purpose of this open access book is threefold. The first is to shed light on patient participation and health literacy for Good Health and Well-being, which is one of the UN's Sustainable Development Goals. Health literacy is considered a prerequisite for patients to be able to participate in shared decisions on their own treatment (WHO,1998). Health literacy has received increased international attention: the concept is linked to person-centred health services, sustainable resource utilization, health-promoting and preventive health work, treatment of chronic diseases and social inequality (WHO, 2016). The second purpose is to provide health professionals and students with educational models for building health literacy for patients and relatives. This purpose is linked to Quality Education, one of the UN's sustainability goals. The third purpose is to present critical perspectives on the demand for sustainability in healthcare services. Both ethical dilemmas and philosophical reflections on patient participation, health literacy and sustainability are presented. The Norwegian definition of health literacy is as follows: “Health competence is a person's ability to understand, assess and apply health information to be able to take knowledge-based decisions related to one's own health. This applies to both decisions related to lifestyle choices, disease prevention measures, self-management of disease and use of the health and care service” (Helsedireektoratet, 2020). The sustainability goal is clearly outlined in this definition, although the organisational perspective on health literacy is lacking. Patient participation leads to improved patient satisfaction and safety (Castro, Van Regenmortel, Vanhaecht, Sermeus, & Van Hecke, 2016; Collins, Britten, Ruusuvuori, & Thompson, 2007; Vahdat, Hamzehgardeshi, Hessam, & Hamzehgardeshi, 2014), efficient co-operation between patients and healthcare professionals, and enhanced management ofthe disease (Collins et al., 2007; Vahdat et al., 2014). Health literacy as well as patient participation are important aspects for sustainable development and good and effective healthcare services in the future.

This compact volume offers a brief overview of pediatric palliative care and emerging ways to expand and provide palliative care to children. Pediatric palliative care is a new specialty that is rapidly expanding across the United States. The specialty has impact throughout the lifespan of children with serious illness and supports patients, families, and those who care for children. Authored by clinicians with expertise and extensive experience in palliative care and hospice medicine, the topics covered in the volume's five chapters include: Introduction and Definitions Pediatric Palliative Care Involvement in Specific Disciplines Pediatric Palliative Care at End of Life Accessing Pediatric Palliative Care The Future of Pediatric Palliative Care Specialized Pediatric Palliative Care is essential reading for pediatric healthcare professionals with short, easy-to-read contents applicable to actual practice. Other providers and professionals working with children and families with serious illness also might find the book of interest.