48 results
Search Results
2. 'Then I Met This Lovely Police Woman' Young People's Experiences of Engagement with the Criminal Justice System.
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McElvaney, Rosaleen, Collin‐Vezina, Delphine, Alaggia, Ramona, and Simpson, Megan
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QUALITATIVE research , *VIOLENCE , *RESEARCH funding , *LEGAL liability , *INTERVIEWING , *CHILD sexual abuse , *EXPERIENCE , *THEMATIC analysis , *EMOTIONAL trauma , *RESEARCH methodology , *CRIMINAL justice system , *POLICE , *SOCIAL support , *SELF-disclosure - Abstract
Young people's voices detailing how they experienced engagement with the criminal justice system following child sexual abuse, what was helpful or unhelpful and how services can be improved to minimise secondary victimisation and maximise the potential for healing are largely absent from the research literature. This paper draws on semi‐structured interviews with a culturally diverse sample (n = 47) of young people aged 14 to 25 across Ireland and Canada about their experiences of disclosure and engagement with systems. Data were collected pertaining to experiences engaging with law enforcement personnel using thematic analysis with a trauma‐informed lens. The research identified three key themes: the importance of feeling safe through kindness, transparency and being believed; the importance of having a say; and the importance of timely court processes. The study builds on the small body of qualitative research illustrating young people's lived experiences of engaging with the criminal justice system and provides empirical support for promoting a trauma‐informed approach in how police engage with young people. Guidance is offered for police professionals on how to engage with adolescents following sexual abuse. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Tracking activity-based therapy for people living with spinal cord injury or disease: insights gained through focus group interviews with key stakeholders.
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Kaiser, Anita, Sessford, James, Chan, Katherine, Martin, Samantha, McCullum, Shane, Athanasopoulos, Peter, Rice, Chris, Leo, Jennifer, Forrester, Scott, MacRitchie, Iona, Zariffa, José, and Musselman, Kristin E.
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PHYSICAL therapy , *FOCUS groups , *RESEARCH funding , *QUALITATIVE research , *INTERVIEWING , *QUESTIONNAIRES , *CONTENT analysis , *SPINAL cord injuries , *DECISION making , *THEMATIC analysis , *RESEARCH methodology , *QUALITY of life , *RESEARCH , *STAKEHOLDER analysis , *PHYSICAL activity , *WELL-being - Abstract
The development of a tool to track participation in activity-based therapy (ABT) for people with spinal cord injury or disease (SCI/D) was identified as a priority of the Canadian ABT Community of Practice. The objective of this study was to understand multi-stakeholder perspectives on tracking ABT participation across the continuum of care. Forty-eight individuals from six stakeholder groups (persons living with SCI/D; hospital therapists; community trainers; administrators; researchers; and funders, advocates and policy experts) were recruited to participate in focus group interviews. Participants were asked open-ended questions concerning the importance of and parameters around tracking ABT. Transcripts were analyzed using conventional content analysis. Themes reflected the Who, What, Where, When, Why and How of tracking ABT. Participants described the importance of involving hospital therapists, community trainers and individuals with SCI/D in tracking ABT to capture both subjective and objective parameters across the continuum of care and injury trajectory. Digital tracking tools were favoured, although paper-based versions were regarded as a necessity in some circumstances. Findings highlighted the importance of tracking ABT participation for individuals with SCI/D. The information may guide the development of ABT practice guidelines and support the implementation of ABT in Canada. Tracking the details of activity-based therapy (ABT) sessions and programs across the continuum of care and injury trajectory may provide important information to support the development of ABT practice guidelines and implementation strategies. Tracking objective and subjective parameters are needed to provide a comprehensive description of an ABT session and program. Clinicians and individuals with spinal cord injury or disease (SCI/D) should both be able to track ABT to accommodate all settings and types of data. Digital tracking tools, such as an app, may provide an accessible, versatile and efficient way of tracking ABT. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Disabled healthcare professionals' experiences of altruism: identity, professionalism, competence, and disclosure.
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Sibbald, Kaitlin R. and Beagan, Brenda L.
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DISCLOSURE , *MEDICINE , *ALTRUISM , *INTERVIEWING , *IMPAIRED medical personnel , *OCCUPATIONAL therapy , *INCOME , *PSYCHOSOCIAL factors , *PROFESSIONAL competence , *PROFESSIONAL identity , *RESEARCH funding , *PROFESSIONALISM , *THEMATIC analysis , *SOCIAL case work - Abstract
In the health professions, altruism is a foundational value upon which professional privilege is built. This imperative towards self-sacrifice for the benefit of others is a key component of what it means to be professional. This paper explores how altruism operates as a coded mechanism of exclusion and oppression for disabled health professionals. Analysis is based on interviews with fifteen Canadian disabled healthcare professionals in medicine, nursing, occupational therapy, and social work about their experiences of inclusion and exclusion. Themes including the disproportionate sacrifice of time, resources, and income emerged, as did the need to manage political disclosure, often embodying the role of the 'super-crip' with patients/clients and colleagues so as to maintain others' faith in their professional competence and their professional privilege. Further discussion includes questions of how to 'crip' altruism as a professional value and the role of altruism as an ableist force within the health professions. Altruism, the idea of helping others even at cost to oneself, is an important value for health professionals. Disabled health professionals sacrifice more than non-disabled healthcare professionals to meet this obligation. Disabled healthcare professionals may work without accommodations, putting in extra time and effort to prove their altruism. Disabled healthcare professionals experience that disclosing disability may mean their colleagues will treat them as patients. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Implications of time and space factors related with youth substance use prevention: a conceptual review and case study of the Icelandic Prevention Model being implemented in the context of the COVID-19 pandemic.
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Halsall, Tanya, Mahmoud, Kianna, Iyer, Srividya N., Orpana, Heather, Zeni, Megan, and Matheson, Kimberly
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SUBSTANCE abuse prevention , *RISK-taking behavior , *LEISURE , *COVID-19 , *HEALTH services accessibility , *TIME , *RESEARCH methodology , *MEDICAL care , *COMMUNITIES , *INTERVIEWING , *FAMILIES , *TRANSPORTATION of patients , *ACTIVITIES of daily living , *SOCIAL cohesion , *QUALITATIVE research , *RESEARCH funding , *HEALTH , *CASE studies , *THEMATIC analysis , *DATA analysis software , *SUPERVISION of employees , *SPACE perception , *COVID-19 pandemic - Abstract
Purpose: This research examines the implementation of the Icelandic Prevention Model (IPM) in Canada to identify opportunities revealed by the COVID-19 pandemic to re-design our social eco-system to promote wellbeing. This paper has two objectives: 1) to provide a conceptual review of research that applies the bioecological model to youth substance use prevention with a focus on the concepts of time and physical space use and 2) to describe a case study that examines the implementation of the IPM in Canada within the context of the COVID-19 pandemic. Method: Study data were collected through semistructured qualitative interviews with key stakeholders involved in implementing the IPM. Results: Findings are organized within three over-arching themes derived from a thematic analysis: 1) Issues that influence time and space use patterns and youth substance use, 2) Family and community cohesion and influences on developmental context and time use and 3) Opportunities presented by the pandemic that can promote youth wellbeing. Conclusion: We apply the findings to research on the IPM as well as the pandemic to examine opportunities that may support primary prevention and overall youth wellbeing. We use the concepts of time and space as a foundation to discuss implications for policy and practice going forward. [ABSTRACT FROM AUTHOR]
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- 2023
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6. "Digging in": stigma and surveillance in the lives of pregnant and breastfeeding mothers who consume cannabis.
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Greene, Saara, Vaccaro, Mary, Bernier, Alexe, Griffith, Gabrielle, Ion, Allyson, Maurice, Rochelle, Gabel, Chelsea, and Blake, Marisa
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PUBLIC health surveillance , *MATERNAL health services , *MOTHERS , *PREGNANCY , *PREGNANT women , *SOCIAL stigma , *PUBLIC health , *EXPERIENCE , *HEALTH literacy , *MEDICAL marijuana , *BREASTFEEDING , *INTERSECTIONALITY , *PHOTOGRAPHY , *ACCESS to information , *RESEARCH funding , *THEMATIC analysis , *HEALTH promotion , *THERAPEUTICS - Abstract
Since the shift to legalizing recreational cannabis use in Canada in 2018, there has been increased attention on the consequences of cannabis use on women's reproductive and maternal health, with particular attention to the impact of cannabis in utero and through breastfeeding. This has resulted in an intense focus on the behaviors of individuals who consume cannabis during the perinatal period, which raises questions about the impact this has on women and mothers who have historically been under the surveillance of the Canadian public health, health and social care, and legal systems. Grounded in an intersectional feminist framework that acknowledges how race, ability, class, and other social positions impact and differentiate women's experience, this paper presents findings emerging from a participatory arts-based research approach called Photovoice with 23 mothers living throughout Canada. All participants consumed cannabis during pregnancy and breastfeeding and illustrated through photographs and individual and group discussion how their experiences of intersectional stigma and surveillance by health and social care providers resulted in barriers to accessing cannabis-related information and support. Implications arising from our inquiry suggest there is a dire need for public health, perinatal care, and social care responses that run counter to the current context where stigma and fear prevent parents from accessing cannabis information and support. [ABSTRACT FROM AUTHOR]
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- 2023
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7. Impact of the COVID-19 pandemic on the sexual and reproductive health of adolescents in Alberta, Canada.
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Meherali, Salima, Rehmani, Amyna Ismail, Ahmad, Mariam, Adewale, Bisi, Kauser, Samar, Lebeuf, Simone, Benoit, James, and Scott, Shannon D.
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PUBLIC health , *QUALITATIVE research , *INTERPROFESSIONAL relations , *RESEARCH funding , *JUDGMENT sampling , *THEMATIC analysis , *COVID-19 pandemic , *SEXUAL health , *REPRODUCTIVE health - Abstract
Purpose: The COVID-19 pandemic led to major service disruptions in the healthcare sector, especially regarding sexual and reproductive health services. However, the impact of the pandemic on Canadian adolescents is relatively unknown. This study aimed to investigate the impacts of the COVID-19 pandemic and associated public health measures on the sexual and reproductive health (SRH) of adolescents in Alberta, Canada. Methods: A qualitative study using an interpretive description (ID) approach and community-based participatory research principles was conducted to capture the subjective experience and perceptions of adolescents and service providers. With the collaboration of the Adolescent Advisory Group and community partners, 18 adolescents and 15 service providers were recruited for the study through purposive sampling. Findings from the qualitative interviews were analyzed using thematic analysis. Results: Three major themes emerged from the analysis: (1) COVID-19 SRH experience, (2) barriers to SRH, and (3) adolescent SRH strategies. Our findings highlight numerous barriers and challenges that prevented adolescents from accessing SRH education, products, and services. Conclusion: The COVID-19 pandemic had a profound impact on the SRH and the well-being of adolescents. Our study reflects the need for diverse SRH strategies to maintain continued access to SRH resources during disruptive events, such as the pandemic. Plain language summary: Access to sexual and reproductive health (SRH) services is a basic human right. All individuals require access to appropriate SRH services to maintain their optimal sexual and reproductive health. Adolescents require special guidance, support, and youth-friendly services in matters of SRH as they enter puberty and explore their sexual identity. However, during the COVID-19 pandemic, many health and SRH services were suspended. Access to SRH products and services became difficult due to public health restrictions, which has possible negative consequences for adolescents' SRH. The experiences of adolescents during the COVID-19 pandemic regarding their SRH are not reported in Alberta, Canada. Therefore, we explored the impacts of these public health restrictions on adolescents' SRH. We performed qualitative interviews with adolescents and SRH service providers to know their perspectives on how the pandemic influenced the SRH of adolescents. This paper provides insights into the barriers faced by adolescents while accessing SRH services during the pandemic, as well as their perceptions of digital strategies, such as mobile applications, and other recommendations for supporting SRH education and services. Based on the study findings, an adolescent-friendly mobile application will be developed to provide a virtual platform connecting adolescents to SRH educational resources, services, and support. [ABSTRACT FROM AUTHOR]
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- 2023
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8. Nature-based interventions in social work practice and education: Insights from six nations.
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Slattery, Maddy, Ramsay, Sylvia, Pryor, Anita, Gallagher, Hilary, Norton, Christine Lynn, Nikkel, Lynette, Smith, Amanda, Knowles, Ben, and McAuliffe, Donna
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PROFESSIONAL practice , *WELL-being , *FOCUS groups , *NATUROPATHY , *POPULATION geography , *COLLEGE teacher attitudes , *CULTURAL pluralism , *MENTAL health , *SOCIAL justice , *VIDEOCONFERENCING , *EXPERIENCE , *MENTAL healing , *PHILOSOPHY of education , *RESEARCH funding , *SOCIAL work education , *SOCIAL services , *NATURE , *INTERDISCIPLINARY education , *THEMATIC analysis - Abstract
This paper presents findings from an investigation of nature-based practices, from the perspectives of 10 academics/educators from six nations. Participants engaged in a focus group exploring the prevalence and inclusion of nature in social work practice and education. While the study focused on individual members' experiences and perspectives, the findings highlight important context-specific factors for including nature within social work to reconnect humans with nature for health, well-being, healing, and justice. An Integrative Environmental Model for social work is proposed to assist future practice and education. [ABSTRACT FROM AUTHOR]
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- 2023
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9. Exploring the links between slang and sexual and gender-based violence among university students in a Canadian city.
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Orchard, Treena and Sangaraganesan, Doreen Mathura
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CULTURE , *MASCULINITY , *SCHOOL environment , *RACISM , *PSYCHOLOGY of college students , *RESEARCH methodology , *VIOLENCE , *LANGUAGE & languages , *INTERVIEWING , *GENDER , *ATTITUDES toward sex , *SEX crimes , *TERMS & phrases , *LGBTQ+ people , *RESEARCH funding , *JUDGMENT sampling , *THEMATIC analysis , *STUDENT attitudes , *SECONDARY analysis - Abstract
Despite decades of research and education, sexual and gender-based violence remain distressingly prevalent on university and college campuses globally. The taboos associated with sex, gender inequity, and living in a patriarchal world where misogyny is glorified and criminalised are key socio-cultural determinants driving these forms of violence. Less is known about the ways in which sexual slang or terminology impact how students experience and talk about these events. This paper reports on findings from a participatory action study that explored sexual slang use among female and male undergraduate students (n = 23) with the aim of creating more responsive sexual and gender-based violence policies and practices. The terms identified (n = 59) provide a window into the daily lives of these young people, who display remarkable socio-linguistic adaptation and creativity. They also demonstrate how cultural appropriation, the exclusion of queer students, toxic masculinitycontribute to ongoing incidents of sexual and gender-based violence on campus. These findings contribute new insights into sexual terminology among post-secondary students, particularly in the Canadian context where few studies of this nature exist. They also acknowledge the critical role universities can play in making meaningful structural change to prevent traumatic events from occurring. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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10. Qualitative metasummary: Parents seeking support related to their TGNC children.
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Tyler, Tee R., Huddleston, Boglarka S., Barton, Taylor N., Thornton, Morgan H., Calloway, Emily T., Martin, Kimberly G., Morgan, Amber L., and Munoz, Valeria
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PSYCHOLOGY information storage & retrieval systems , *SOCIAL support , *SYSTEMATIC reviews , *GENDER-nonconforming people , *RESEARCH funding , *THEMATIC analysis , *MEDLINE , *PARENTS , *CHILDREN - Abstract
Background: Parents seek support on behalf of their transgender and gender nonconforming (TGNC) children. Previous qualitative studies explore the types of support parents seek inside and outside of healthcare settings. Healthcare providers often remain unprepared to effectively provide gender-affirming services to TGNC children and their accompanying parents and may benefit from learning about the support seeking experiences of parents with TGNC children. Aims: This paper summarized qualitative research studies that address the topic of parents seeking support on behalf of their TGNC children. We produced this report for healthcare providers to review to enhance gender-affirming services for parents and TGNC children. Methods: This paper outlines a qualitative metasummary of studies from the United States or Canada with data collected from parents of TGNC children. Data collection included the steps of journal runs, database searches, reference checks, and area scans. Data analysis involved the steps of extracting, editing, grouping, abstracting, and calculating the intensity and frequency effect sizes for finding statements from qualitative research study articles. Results: The results of this metasummary yielded two primary themes, six subthemes, and 24 total findings. The first primary theme of seeking guidance had three subthemes: educational resources, community networks, and advocacy efforts. The second primary theme of seeking healthcare had three subthemes: healthcare providers, mental healthcare, and general healthcare. Discussion: These findings provide information healthcare providers can use to inform their practice. These findings also highlight the importance of providers working collaboratively with parents when serving TGNC children. This article concludes with practical tips for providers. [ABSTRACT FROM AUTHOR]
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- 2023
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11. Health equity related challenges and experiences during the rapid implementation of virtual care during COVID-19: a multiple case study.
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Shahid, Simone, Hogeveen, Sophie, Sky, Philina, Chandra, Shivani, Budhwani, Suman, de Silva, Ryan, Bhatia, R. Sacha, Seto, Emily, and Shaw, James
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HEALTH services accessibility , *HEALTH literacy , *HUMAN services programs , *QUALITATIVE research , *RESEARCH funding , *PRIMARY health care , *MEDICAL care , *DIGITAL health , *INTERVIEWING , *TELEMEDICINE , *THEMATIC analysis , *RESEARCH , *RESEARCH methodology , *CONCEPTUAL structures , *HEALTH equity , *CASE studies , *COVID-19 pandemic , *COMMUNITY-based social services , *PATIENT participation - Abstract
Background: Virtual care quickly became of crucial importance to health systems around the world during the COVID-19 pandemic. Despite the potential of virtual care to enhance access for some communities, the scale and pace at which services were virtualized did not leave many organizations with sufficient time and resources to ensure optimal and equitable delivery of care for everyone. The objective of this paper is to outline the experiences of health care organizations rapidly implementing virtual care during the first wave of the COVID-19 pandemic and examine whether and how health equity was considered. Methods: We used an exploratory, multiple case study approach involving four health and social service organizations providing virtual care services to structurally marginalized communities in the province of Ontario, Canada. We conducted semi-structured qualitative interviews with providers, managers, and patients to understand the challenges experienced by organizations and the strategies put in place to support health equity during the rapid virtualization of care. Thirty-eight interviews were thematically analyzed using rapid analytic techniques. Results: Organizations experienced challenges related to infrastructure availability, digital health literacy, culturally appropriate approaches, capacity for health equity, and virtual care suitability. Strategies to support health equity included the provision of blended models of care, creation of volunteer and staff support teams, participation in community engagement and outreach, and securement of infrastructure for clients. We put our findings into the context of an existing framework conceptualizing access to health care and expand on what this means for equitable access to virtual care for structurally marginalized communities. Conclusion: This paper highlights the need to pay greater attention to the role of health equity in virtual care delivery and situate that conversation around existing inequitable structures in the health care system that are perpetuated when delivering care virtually. An equitable and sustainable approach to virtual care delivery will require applying an intersectionality lens on the strategies and solutions needed to address existing inequities in the system. [ABSTRACT FROM AUTHOR]
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- 2023
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12. 'To me, it's ones and zeros, but in reality that one is death': A qualitative study exploring researchers' experience of involving and engaging seldom‐heard communities in big data research.
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Teodorowski, Piotr, Rodgers, Sarah E., Fleming, Kate, Tahir, Naheed, Ahmed, Saiqa, and Frith, Lucy
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EXPERIMENTAL design , *PATIENT participation , *RESEARCH methodology , *SOCIAL media , *SOCIAL constructionism , *COMMUNITIES , *INTERVIEWING , *QUALITATIVE research , *SOUND recordings , *RESEARCH funding , *INTERPROFESSIONAL relations , *DESCRIPTIVE statistics , *SOFTWARE analytics , *THEMATIC analysis , *DATA analysis software , *PUBLIC opinion - Abstract
Background: Big data research requires public support. It has been argued that this can be achieved by public involvement and engagement to ensure that public views are at the centre of research projects. Researchers should aim to include diverse communities, including seldom‐heard voices, to ensure that a range of voices are heard and that research is meaningful to them. Objective: We explored how researchers involve and engage seldom‐heard communities around big data research. Methods: This is a qualitative study. Researchers who had experience of involving or engaging seldom‐heard communities in big data research were recruited. They were based in England (n = 5), Scotland (n = 4), Belgium (n = 2) and Canada (n = 1). Twelve semistructured interviews were conducted on Zoom. All interviews were audio‐recorded and transcribed, and we used reflexive thematic analysis to analyse participants' experiences. Results: The analysis highlighted the complexity of involving and engaging seldom‐heard communities around big data research. Four themes were developed to represent participants' experiences: (1) abstraction and complexity of big data, (2) one size does not fit all, (3) working in partnership and (4) empowering the public contribution. Conclusion: The study offers researchers a better understanding of how to involve and engage seldom‐heard communities in a meaningful way around big data research. There is no one right approach, with involvement and engagement activities required to be project‐specific and dependent on the public contributors, researchers' needs, resources and time available. Patient and Public Involvement: Two public contributors are authors of the paper and they were involved in the study design, analysis and writing. [ABSTRACT FROM AUTHOR]
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- 2023
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13. Who's Going to Keep Us Safe? Surviving Domestic Violence and Shared Parenting During Covid-19.
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Archer-Kuhn, Beth, Hughes, Judith, Saini, Michael, Still, Marni, Beltrano, Natalie, and Tam, Dora
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SAFETY , *ATTITUDES of mothers , *CO-parents , *RESEARCH methodology , *DOMESTIC violence , *INTERVIEWING , *SOCIAL isolation , *RESEARCH funding , *THEMATIC analysis , *COVID-19 pandemic , *PSYCHOLOGICAL stress , *DIVORCE , *CONTROL (Psychology) - Abstract
This paper discusses the experiences during COVID-19 of mothers who have young children, are survivors of domestic violence and who share parenting to highlight the further unsafe situations survivors of violence and their children were placed in during the pandemic. Part of a larger mixed methods study, these participants (n = 19) from three Canadian provinces, Alberta, Manitoba and Ontario, engaged in virtual individual one-on-one interviews via zoom. Using thematic analysis, four themes emerged from the data: 1) increased use of coercive controlling behaviors; 2) fear of the unknown; 3) lack of supports; and, 4) finding balance. Direct quotes are used to highlight the meaning of each theme. We outline the challenges these women have that are in addition to those experienced by many during COVID-19 times (increased stress, isolation, disconnect from supports, financial challenges). These include managing the shared parenting arrangements with a former abusive partner who used the pandemic as a further opportunity for coercive controlling behaviors under the guise of the public health order. The mothers were left to manage the difficult exchanges with a former abusive partner and unknown circumstances of the pandemic without guidance and support from legal actors. There will need to be a prioritization of the safety of mothers and their children in post-divorce parenting arrangements both during times of a community lockdown such as during the pandemic and also during non-pandemic times. [ABSTRACT FROM AUTHOR]
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- 2023
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14. "Food engages people, as we know": health care and service providers' experiences of using food as an incentive in HIV care and support in British Columbia, Canada.
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Gagnon, Marilou, Payne, Alayna, Guta, Adrian, and Bungay, Vicky
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HIV-positive persons , *HEALTH services accessibility , *SOCIAL support , *FOOD security , *ATTITUDES of medical personnel , *MOTIVATION (Psychology) , *RESEARCH methodology , *FOOD consumption , *INTERVIEWING , *MEDICAL screening , *QUALITATIVE research , *CASE studies , *DESCRIPTIVE statistics , *RESEARCH funding , *THEMATIC analysis - Abstract
Food insecurity is widely documented among people living with HIV (PLWH) worldwide, and it presents significant challenges across the spectrum of HIV care and support. In North America, the prevalence of food insecurity among PLWH exceeds 50%. In the province of British Columbia (BC), it exceeds 65%. It comes as no surprise that food has become an essential tool in supporting and engaging with PLWH. Over the past decade, however, a shift has taken place, and food has become an incentive to boost uptake and outcomes of prevention, testing, treatment, and support. To explore this practice, we drew on a qualitative case study of incentives in the care and support of PLWH. This paper presents the findings of a targeted analysis of interviews (N = 25) that discuss food incentives and explores two main themes that shed light on this practice: (1) Using food to engage versus to incentivize and (2) Food is more beneficial and more ethical. Providers perceived food more positively than other incentives, despite the goal remaining somewhat the same. Incentives, such as cash or gift cards, were considered ethically problematic and less helpful (and potentially harmful), whereas food addressed a basic need and felt more ethical. [ABSTRACT FROM AUTHOR]
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- 2023
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15. Modes of Informed Caring: Perspectives of Health Professionals Who Are Mothers of Adult Children with Schizophrenia.
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Klages, Debra, East, Leah, Usher, Kim, and Jackson, Debra
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ADULT children , *ATTITUDE (Psychology) , *COMMUNICATION , *INTERPROFESSIONAL relations , *INTERVIEWING , *SERVICES for caregivers , *MEDICAL personnel , *MOTHERHOOD , *PROFESSIONS , *RESEARCH funding , *SCHIZOPHRENIA , *QUALITATIVE research , *JUDGMENT sampling , *OCCUPATIONAL roles , *THEMATIC analysis , *PSYCHIATRIC treatment , *ATTITUDES of mothers , *HEALTH literacy , *PATIENTS' families - Abstract
Schizophrenia is a global concern, and, this paper, describes the caring roles of health professionals who are mothers of adult children with schizophrenia. A thematic analysis of data from a doctoral study identified a blending of expertise into an informed care model. Caring roles included: constant carer; coordinator carer; watchful bystander carer; and life coach carer. Previous research has not explored these dual roles. This paper elucidates their responsive approaches and contributions to mothering and caregiving roles. Informed by a fusion of professional and mothering knowledges, their insights into mental health care have been forged by their experiences and is an untapped resource. [ABSTRACT FROM AUTHOR]
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- 2020
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16. More than a public health crisis: A feminist political economic analysis of COVID-19.
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Smith, Julia, Davies, Sara E., Feng, Huiyun, Gan, Connie C. R., Grépin, Karen A., Harman, Sophie, Herten-Crabb, Asha, Morgan, Rosemary, Vandan, Nimisha, and Wenham, Clare
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RACISM , *SEXISM , *HEALTH services accessibility , *FEMINISM , *DISCRIMINATION (Sociology) , *PSYCHOLOGICAL vulnerability , *PRACTICAL politics , *WOMEN'S rights , *PUBLIC health , *VIOLENCE , *HEALTH status indicators , *GENDER , *ECONOMICS , *RESEARCH funding , *THEMATIC analysis , *COVID-19 pandemic - Abstract
Gender norms, roles and relations differentially affect women, men, and non-binary individuals' vulnerability to disease. Outbreak response measures also have immediate and long-term gendered effects. However, gender-based analysis of outbreaks and responses is limited by lack of data and little integration of feminist analysis within global health scholarship. Recognising these barriers, this paper applies a gender matrix methodology, grounded in feminist political economy approaches, to evaluate the gendered effects of the COVID-19 pandemic and response in four case studies: China, Hong Kong, Canada, and the UK. Through a rapid scoping of documentation of the gendered effects of the outbreak, it applies the matrix framework to analyse findings, identifying common themes across the case studies: financial discrimination, crisis in care, and unequal risks and secondary effects. Results point to transnational structural conditions which put women on the front lines of the pandemic at work and at home while denying them health, economic and personal security – effects that are exacerbated where racism and other forms of discrimination intersect with gender inequities. Given that women and people living at the intersections of multiple inequities are made additionally vulnerable by pandemic responses, intersectional feminist responses should be prioritised at the beginning of any crises. [ABSTRACT FROM AUTHOR]
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- 2021
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17. From controlling to connecting: M'Wikwedong as a place of urban Indigenous health promotion in Canada.
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Sanchez-Pimienta, Carlos E, Masuda, Jeff, and Centre, M'Wikwedong Indigenous Friendship
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CULTURE , *HEALTH of indigenous peoples , *DIGITAL technology , *ACTION research , *RESEARCH funding , *METROPOLITAN areas , *DATA analysis software , *THEMATIC analysis , *HEALTH promotion , *STORYTELLING , *MEDICAL coding - Abstract
In recent years, health promotion has come under critique for being framed according to the contexts and priorities of Western communities, with the notion of 'control' underpinning much of its theoretical and practical development. Ceding space to Indigenous voices and knowledge is one way forward to overcoming this limitation and decolonizing the field. This paper reports on insights gained from a participatory digital storytelling project focused on Indigenous health promotion that took place at M'Wikwedong Indigenous Friendship Centre in the city of Owen Sound, Canada. The research team was formed by M'Wikwedong's Executive Director, five Indigenous youth and two university researchers. We co-created data through an 8-month digital storytelling process that involved 13 weekly research meetings, the creation of 4 digital stories and video screenings. We analysed data from seven group interview transcriptions, field notes and video transcripts through qualitative coding and theme building. The four themes we identified speak to the ways M'Wikwedong reinforced connections to youth, their sense of self, place in the city and Indigenous cultures. From our findings, we theorize that egalitarianism of knowledge, restoring balance in relationships and Indigenous leadership are core components of an 'ethos of connection' that underlies Indigenous health promotion. The 'ethos of connection' challenges Western notions of 'control' and brings attention to the unique expertise and practices of urban Indigenous communities and organizations as a primary basis for health promotion. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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18. The experience of hospital staff in applying the Gentle Persuasive Approaches to dementia care.
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Hung, Lillian, Son, Cathy, and Hung, Rebecca
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HEALTH facility employees , *DEMENTIA , *EMPLOYEE assistance programs , *FOCUS groups , *RESEARCH methodology , *RESEARCH funding , *SURVEYS , *JUDGMENT sampling , *THEMATIC analysis , *PSYCHIATRIC treatment , *PATIENT-centered care , *DESCRIPTIVE statistics , *EDUCATION , *PSYCHOLOGY - Abstract
Accessible Summary: What is known on the subject?: Although the seminal work of McCormack et al. (International Practice Development Journal, 2015, 5, 1) and Nolan, Davies, Brown, Keady, and Nolan () provides useful conceptual frameworks in person‐centred care, research is needed to understand how theoretical concepts can be applied into practice to support dementia care. Also, evidence is needed to demonstrate the impacts of implementing person‐centred care and staff experiences. What does this paper add to existing knowledge?: This paper adds to the emerging work that is providing a greater understanding of how team education in practice can make a difference in building capacity to improve dementia care.We offer timely evidence and useful insights into how an education programme, Gentle Persuasive Approaches (GPA), was implemented ("what worked" and "how") in a large Canadian hospital to improve knowledge and skills among staff in dementia care.The GPA education helped hospital staff enact person‐centred care by cultivating shared values and a learning environment to change attitudes, practices and conditions for continuous practice development. What are the implications for practice?: Mental health nurses in advance practice are well positioned to lead dementia education and advocate for person‐centred care in hospitals.Hospital leaders are responsible for providing resources to cultivate a supportive environment for continuous learning to ensure the workforce gains the capacity to meet the changing demands and needs of the ageing population. System support is essential for creating conditions to enable person‐centred care. Introduction: Hospital staff lacks knowledge and skills in dementia care. There is a need to understand how person‐centred care theory can be operationalized in staff's practices to improve dementia care. Aims: To describe the staff's experiences of learning and applying the Gentle Persuasive Approaches (GPA) to enact person‐centred care in a hospital. Methods: Mixed methods, including posteducation survey and focus groups, were used. Thematic analysis was conducted to identify themes that describe participants' experiences. Results: Three hundred and ten staff and leaders in a hospital participated in the GPA education and completed a posteducation survey (n = 297). After 1 year, two follow‐up focus groups were conducted with interdisciplinary staff (n = 24) across medicine and mental health programmes. Our analysis identified three themes to enable person‐centred care: (a) changing attitudes, (b) changing practices and (c) changing conditions. Discussion: This study contributes to the literature by providing evidence of how an education programme was implemented in a large Canadian hospital to build capacity for dementia care. Joint education for interprofessional staff offers value in enabling person‐centred care. Implication: Mental health nurses are in position to lead dementia education and advocate for person‐centred care in hospitals. Staff need structural support to engage in team learning for practice improvement. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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19. What is 'care quality' and can it be improved by information and communication technology? A typology of family caregivers' perspectives.
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Leslie, Myles, Gray, Robin Patricia, and Khayatzadeh‐Mahani, Akram
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COMMUNICATION , *CONTENT analysis , *FOCUS groups , *GROUNDED theory , *INFORMATION technology , *INFORMED consent (Medical law) , *RESEARCH methodology , *MEDICAL quality control , *RESEARCH funding , *STATISTICAL sampling , *TIME , *THEMATIC analysis , *CAREGIVER attitudes , *HUMAN research subjects , *DATA analysis software - Abstract
Introduction: With governments worldwide reducing their involvement in the provision of institutional long‐term elder care, community‐based family caregivers (FCs) have become a key element in policies aimed at improving the quality of healthcare systems and maintaining their financial sustainability. This paper uses data from focus groups with FCs providing care to older adults to describe their approaches to and priorities for achieving care quality and sustainability as they work with formal health and social care systems. It describes FCs' views on information and communications technology (ICT) as potential supports for achieving these care quality and sustainability goals. Methods: We held 10 focus groups from May 2017 to August 2018 and recruited 25 FCs through a mix of convenience and snowball sampling strategies. We employed an inductive approach and used qualitative thematic content analysis methods to examine and interpret the resulting data. We used NVIVO 12 software for data analysis. Results: Quality of care – as delivered by both FCs themselves, and formal health and social care systems – was a major preoccupation for our participants. They saw communications quality as a key aspect of the broader concept of care quality. Our data analysis produced a typology of communications quality from the FC perspective. Analysis of our data also revealed ICT development opportunities and available products in key areas. Conclusions: Our findings suggest that the formal care system providers could be more caregiver‐oriented in their communications by engaging FCs in the decision‐making process and allowing them to express their own concerns and goals. The implication of our findings for those seeking to develop policies and ICT products in support of FCs is that these should focus on human relationships and seek to expand facilitative communications. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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20. A Meaningful Focus: Investigating the Impact of Involvement in a Participatory Video Program on the Recovery of Participants With Severe Mental Illness.
- Author
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Whitley, Rob, Sitter, Kathleen C., Adamson, Gavin, and Carmichael, Victoria
- Subjects
- *
PATIENT participation , *EVALUATION of human services programs , *INDIVIDUAL development , *CONVALESCENCE , *SELF-evaluation , *RESEARCH methodology , *AUDIOVISUAL materials , *INTERVIEWING , *SOCIAL stigma , *EXPERIENCE , *PATIENTS' attitudes , *QUALITATIVE research , *ABILITY , *TRAINING , *REHABILITATION of people with mental illness , *LIFE , *DISABILITIES , *RESEARCH funding , *PEOPLE with disabilities , *PATIENT education , *THEMATIC analysis , *METROPOLITAN areas , *MENTAL illness , *GROUP process - Abstract
Objective: The overall aim of the present paper is to elicit the subjective perceptions and experiences of people with Severe Mental Illness (SMI) involved in a Participatory Video project, with a focus on self-reported impact on recovery. There are 2 subobjectives, namely (a) to document which specific aspects (if any) of Participatory Video project participation are reported to positively influence recovery; and (b) to assess the impact of project involvement on specific dimensions of recovery. Method: In this project, 3 workgroups of people with Severe Mental Illness met approximately twice per week over a 2-year period to make and disseminate educational videos about mental illness. Workgroup participants (n = 20) took part in an in-depth semistructured qualitative interview at project end to understand their experience in the project, especially impact on recovery. Data was analyzed using thematic analysis techniques. Results: At completion, participants had made 26 videos and organized 49 community screenings reaching over 1,500 people. Participants reported that regular involvement in this project fostered their recovery in a variety of ways, imparting multiple psychosocial benefits, which are summarized in 5 themes: (a) skill-acquisition, (b) platform and voice, (c) connectedness, (d) a meaningful focus, and (e) personal development. Conclusions and Implications for Practice: Participatory Video is a powerful group intervention which positively benefits workgroup participants. Importantly, results overlap with other research indicating that grassroots-produced mental health themed videos can educate viewers and reduce public stigma. As such, psychiatric rehabilitation organizations should consider initiating similar projects in their own locales. Impact and Implications: Participatory Video is an innovative group program where marginalized people get together to produce documentary-type videos about their lives, which are then screened at community venues. This study found that regular involvement in a successful Participatory Video program helped foster the recovery of participants with severe mental illness. This suggests that Participatory Video is a recovery-oriented intervention, which could be initiated by mental health services and peer support organizations elsewhere. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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21. Educating the Educators: Determining the Uniqueness of Psychiatric Nursing Practice to Inform Psychiatric Nurse Education.
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Graham, Jan Marie, Waddell, Candice, Pachkowski, Katherine, and Friesen, Heather
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CONVALESCENCE , *CURRICULUM planning , *FOCUS groups , *HOLISTIC medicine , *HUMAN rights , *INTERNET , *MENTAL health , *MENTAL illness , *NURSES , *NURSES' attitudes , *NURSING , *NURSING practice , *NURSING education , *NURSING students , *PSYCHIATRIC nursing , *RESEARCH funding , *HEALTH self-care , *SOCIAL stigma , *SUBSTANCE abuse , *THERAPEUTIC alliance , *COMPASSION , *OCCUPATIONAL roles , *THEMATIC analysis , *DATA analysis software , *ATTITUDES toward mental illness , *DESCRIPTIVE statistics - Abstract
A study regarding the role and uniqueness of psychiatric nursing was conducted with 94 participants from Manitoba, Canada. The primary theme of comprehensive knowledge of mental health, mental illness, and addictions was foundational for the application of the sub-themes of therapeutic relationship, holistic approach, recovery orientation, stigma reduction, and advocacy for change. Values, beliefs, and attitudes towards people with mental illness and addictions need to be instilled in psychiatric nursing students throughout their educational program to provide high quality, compassionate, and safe care. Implications for incorporation of the theme and sub-themes into psychiatric nursing curriculum are described in the paper. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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22. Beyond porn literacy: drawing on young people's pornography narratives to expand sex education pedagogies.
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Goldstein, Alanna
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EXPERIENCE , *FOCUS groups , *LITERACY , *PORNOGRAPHY , *RESEARCH funding , *SEX education , *STUDENT attitudes , *UNIVERSITIES & colleges , *THEMATIC analysis , *UNDERGRADUATES - Abstract
As online pornography has become more readily available and accessible, educators have begun to grapple with how to address young people's engagement with it. Much of this discussion centres the view that pornography is an inherently problematic genre that young people should be inoculated against through comprehensive media literacy education – an approach that often ignores the nuance of young people's engagements with porn and which often isolates pornography as outside of and infringing upon young people's everyday lives. Using thematic narrative analysis, this paper examines excerpts from focus groups with undergraduate students at a Canadian university examining their experiences with and thinking on pornography and sex education. Findings suggest that participants' pornography-related narratives are connected both to their own personal, lived experiences with pornography and to the broader structural and relational aspects of their sexual and social worlds in ways that complicate traditional media literacy interventions. Small-group discussions on pornography therefore emerge through this study as potentially productive pedagogical sites for educators seeking to develop a more expansive and ethically oriented approach to sex and sexuality education. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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23. Advice to mothers about managing children's behaviours in Canada's premier woman's magazine: a comparison of 1945-1956 with 1990-2010.
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Clarke, Juanne N.
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MOTHERS , *CHILD behavior , *COMPARATIVE studies , *CONTENT analysis , *RESEARCH methodology , *MENTAL health , *MOTHERHOOD , *PARENTING , *RESEARCH , *RESEARCH funding , *RESPONSIBILITY , *SERIAL publications , *TIME , *QUALITATIVE research , *THEMATIC analysis , *DESCRIPTIVE statistics - Abstract
Recent research and theorizing has characterized contemporary mothering as medicalized, intensive and risky. The rate of diagnosis of children's mental health issues has grown rapidly, particularly since the 90s. This paper examines the construction of mothering in regard to children's behaviours and mental health through an exploratory and qualitative content analysis of the portrayal of advice to mothers in Chatelaine Magazine, the premier women's magazine published in Canada. The time periods chosen for comparison were 1945-1956 and 1990-2010. The first period was selected because it was a time of dramatic changes that occurred in family, occupational and domestic life for women immediately after World War II. The second represents the modern period. The findings of the paper suggest that mothering was intensive, medicalized and risky in both periods although the conceptualizations of problems differed. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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24. Are we in this Together? Post-Separation Co-Parenting of Fathers with and without a History of Domestic Violence.
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Thompson‐Walsh, Catherine A., Scott, Katreena L., Dyson, Amanda, and Lishak, Victoria
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DOMESTIC violence , *FATHERS , *INTERVIEWING , *MOTHERS , *PARENTING , *PSYCHOLOGICAL tests , *RESEARCH funding , *THEMATIC analysis - Abstract
This paper explores features of post-separation co-parenting from fathers' perspectives in men with and without a history of domestic violence (DV). Co-parenting interview data from 20 fathers were randomly selected from a larger, longitudinal study (Fathers and Kids) conducted in Toronto, Canada, examining how domestically violent fathers impact children's development. Using thematic analysis, three themes were created for separated fathers without a history of DV: I value my ex-partner's involvement with our child; we're good as co-parents; and how we co-parent impacts our child. Two themes were created for DV fathers: my ex-partner is a bad mother; and my ex-partner is responsible for our difficulties co-parenting. These themes indicate markedly different perspectives between the two groups, specifically in valuing versus disparaging their ex-partner, cooperation versus blame, and recognition versus no recognition of the potential impact of ongoing co-parenting conflict on children. The nature of the differences between groups highlights the need to assess and support fathers with a history of DV as co-parents, and indicates possible targets of intervention for fathering programmes. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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25. Exploring end user adoption and maintenance of a telephone-based physical activity counseling service for individuals with physical disabilities using the Theoretical Domains Framework.
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Tomasone, Jennifer R., Arbour-Nicitopoulos, Kelly P., Pila, Eva, Lamontagne, Marie-Eve, Cummings, Isabelle, Latimer-Cheung, Amy E., and Routhier, François
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- *
COUNSELING , *HEALTH promotion , *HEALTH services accessibility , *INTERVIEWING , *RESEARCH methodology , *MEDICAL care use , *MOTIVATION (Psychology) , *QUESTIONNAIRES , *RESEARCH funding , *SPINAL cord injuries , *TELEMEDICINE , *THEMATIC analysis , *PHYSICAL activity , *PATIENTS' attitudes ,PSYCHOLOGY of People with disabilities - Abstract
Purpose:In Canada, two counseling services are offered to facilitate physical activity participation among persons with physical disabilities, yet both have encountered concerns related to the recruitment and retainment of clients. The purpose of this paper is to explore factors related to service adoption among nonusers, and the barriers and facilitators to maintaining service participation among adopters. Methods:Individuals who had never enrolled in the services (nonusers,n = 13) as well as current/previous service clients (adopters,n = 26) participated in interviews based on the Theoretical Domains Framework. Transcripts were subjected to deductive thematic analysis according to participant group. Results:Fifteen themes relating to service adoption within 10 of the 12 theoretical domains were identified for nonusers, while 23 themes relating to maintenence of service participation were identified across all 12 theoretical domains for adopters. Conclusions:The findings provide strategies to improve recruitment, adoption, and retention of clients in counseling services and to enhance the experiences of targeted service users. Implications for RehabiliationPeer support and education for equipment use should be built into physical activity programs to encourage participation among persons with physical disabilities.Programs that encourage physical activity among individuals with disabilities should be designed by practitioners to be responsive to a variety of needs, which are addressed in the program’s advertisements and offerings.The Theoretical Domains Framework is a useful framework for providing valuable insight about clients’ experiences of adoption and maintenance of a behavior change service, suggesting merit in other rehabilitation settings. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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26. Young bisexual women’s perspectives on the relationship between bisexual stigma, mental health, and sexual health: a qualitative study.
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Flanders, Corey E., Dobinson, Cheryl, and Logie, Carmen
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LGBTQ+ people , *BISEXUALITY , *FOCUS groups , *GENDER identity , *GROUNDED theory , *SEXUAL health , *INTERPERSONAL relations , *INTERVIEWING , *RESEARCH methodology , *MENTAL health , *QUESTIONNAIRES , *RESEARCH funding , *STATISTICAL sampling , *STEREOTYPES , *SOCIAL stigma , *WOMEN'S health , *REPRODUCTIVE health , *QUALITATIVE research , *JUDGMENT sampling , *DATA analysis , *SIGNIFICANT others , *THEMATIC analysis , *HEALTH equity , *DATA analysis software , *MEDICAL coding , *ATTITUDES toward sex , *DESCRIPTIVE statistics , *SOCIETIES - Abstract
Young bisexual women experience worse mental and sexual health outcomes in comparison to their heterosexual and lesbian peers. These disparities are associated with stigma and devaluation of bisexual identities. The current paper addresses a community-based focus group project in which participants discussed bisexual stigma in regard to bisexual erasure and other stereotypes. Specifically, participants detailed experiences of feeling pressured to provide evidence of their bisexual identity, modifying their relationship or sexual behavior to conform to these expectations, as well as feeling excluded from queer community. Further, participants discussed how these experiences were related to decreased mental and sexual health. Future research should further investigate the relationship between bisexual stigma, pressure to provide evidence of bisexual identity, and negative mental and sexual health outcomes. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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27. Resistance, mobilization and militancy: nurses on strike.
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Briskin, Linda
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HISTORY of strikes & lockouts , *STRIKES & lockouts , *CARING , *DISMISSAL of employees , *HEALTH care reform , *NEWSPAPERS , *NURSES , *PUBLIC opinion , *RESEARCH funding , *SEXISM , *LABOR unions , *QUALITATIVE research , *PROFESSIONALISM , *THEMATIC analysis - Abstract
BRISKIN L. Nursing Inquiry 2012; 19: 285-296 Resistance, mobilization and militancy: nurses on strike Drawing on nurses' strikes in many countries, this paper explores nurse militancy with reference to professionalism and the commitment to service; patriarchal practices and gendered subordination; and proletarianization and the confrontation with healthcare restructuring. These deeply entangled trajectories have had a significant impact on the work, consciousness and militancy of nurses and have shaped occupation-specific forms of resistance. They have produced a pattern of overlapping solidarities - occupational solidarity, gendered alliances and coalitions around healthcare restructuring - which have supported, indeed promoted, militancy among nurses, despite the multiple forces arrayed against them. The professional commitments of nurses to the provision of care have confronted healthcare restructuring, nursing shortages, intensification of work, precarious employment and gendered hierarchies with a militant discourse around the public interest, and a reconstitution and reclamation of 'caring', what I call the politicisation of caring. In fact, nurses' dedication to caring work in the late twentieth and early twenty-first centuries may encourage rather than dissuade them from going on strike. This paper uses a trans-disciplinary methodology, qualitative material in the form of strike narratives constructed from newspaper archives, and references to the popular and scholarly literature on nursing militancy. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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28. Prevention-enhancing interactions: a Critical Interpretive Synthesis of the evidence about children who sexually abuse other children.
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McKibbin, Gemma, Humphreys, Cathy, and Hamilton, Bridget
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PREVENTION of child sexual abuse , *CHILD sexual abuse , *CHILD welfare , *COMMUNICATION , *CONCEPTUAL structures , *HEALTH , *PSYCHOLOGY information storage & retrieval systems , *MATHEMATICAL models , *PARENT-child relationships , *PORNOGRAPHY , *POST-traumatic stress disorder , *PUBLIC health , *RESEARCH funding , *SEX offenders , *VICTIMS , *SYSTEMATIC reviews , *SEARCH engines , *THEORY , *BIBLIOGRAPHIC databases , *THEMATIC analysis , *SUICIDAL ideation , *DISEASE prevalence , *META-synthesis , *CHILDREN - Abstract
There is a growing interest in English-speaking jurisdictions, including Australia, North America, Canada, the United Kingdom and New Zealand, about the prevention of sexual abuse perpetrated by children against other children. The aim of this review was to identify opportunities for research, policy and practice which could enhance the prevention agenda relating to the perpetration of sexual abuse by children through conducting a Critical Interpretive Synthesis. Eleven electronic databases were searched in the period from 22 April to 23 May 2013 and included: SocINDEX, Social Services Abstracts, Applied Social Sciences Index and Abstracts, Family and Society Studies Worldwide, Project Muse, PsychINFO, Family and Society Plus, Jstor, Expanded Academic ASAP, Web of Science and Google Scholar. Key individual journals were also searched, including Child Abuse and Neglect and the Journal of Interpersonal Violence, as well as the grey literature. The search was guided by the research question: How could the prevention agenda relating to sexual abuse perpetrated by children be enhanced? The systematic literature search yielded 3323 titles, and 34 of these papers were included in the final synthesis. The authors identified five domains operating in the evidence base: characteristics, causes, communications, interventions and treatments. A synthesising construct emerged from the review: prevention-enhancing interactions. This construct referred to the potential for enhancing the prevention agenda which exists as the evidence domains interact with one another, and with the public health model of prevention. The authors consider this review to be a timely contribution to the current agenda pertaining to sexual abuse perpetrated by children. It provides researchers, policy makers and practitioners in the field with an evidence-informed conceptualisation of opportunities for enhancing prevention work. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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29. Email interviewing: generating data with a vulnerable population.
- Author
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Cook, Catherine
- Subjects
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HERPES genitalis , *PAPILLOMAVIRUS diseases , *ATTITUDE (Psychology) , *COMMUNICATION , *COMPUTER literacy , *DISCOURSE analysis , *DISEASES , *FEMINIST criticism , *INTERNET , *INTERPERSONAL relations , *INTERVIEWING , *PATIENT-professional relations , *RESEARCH funding , *SELF-disclosure , *EMAIL , *THEMATIC analysis , *HUMAN research subjects , *PATIENT selection , *PARTICIPANT-researcher relationships , *SEXUAL partners , *DESCRIPTIVE statistics , *PSYCHOLOGY - Abstract
cook c. (2012) Email interviewing: generating data with a vulnerable population. Journal of Advanced Nursing 68(6), 1330-1339. Abstract Aims. This paper describes online recruitment and the email interviewing data collection method with women diagnosed with a viral sexually transmitted infection. The paper highlights the advantages of the method to researchers and participants when conducting research where face-to-face participation may difficult. Background. Online recruitment and in-depth email interviewing have been used by only a small number of nurses internationally. The method enables inclusion of people who might otherwise be excluded from research, for reasons such as geographical distance, incompatible time frames, clinicians''gate-keeping' and participants' desire for anonymity for physical or emotional reasons. Methods. In-depth email interviews were conducted with 26 women in New Zealand, United States of America, Canada and England who had a diagnosis of either human papilloma virus or genital herpes simplex virus. Data were collected during 2007-2008 and analysed using a poststructuralist, feminist thematic analysis. Results. Participant retention was high. Women emphasized satisfaction with the process. Asynchronous interviews allowed for additional reflexivity in the researcher's responses and rich data generation. Conclusion. This method has the potential to enable nurses to include vulnerable and relatively inaccessible participants in 'sensitive' research. In-depth email interviews may generate rich data through a process participants deem to be of personal value. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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30. Using short vignettes to disentangle perceived capability from motivation: a test using walking and resistance training behaviors.
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Rhodes, Ryan E., Williams, David M., and Mistry, Chetan D.
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HYPOTHESIS , *CHI-squared test , *COLLEGE students , *COMPARATIVE studies , *STATISTICAL correlation , *HEALTH behavior , *INTENTION , *CASE studies , *MOTIVATION (Psychology) , *PROBABILITY theory , *QUESTIONNAIRES , *RESEARCH funding , *STATISTICAL sampling , *SELF-efficacy , *SELF-evaluation , *T-test (Statistics) , *WALKING , *EFFECT sizes (Statistics) , *THEMATIC analysis , *PRE-tests & post-tests , *INTER-observer reliability , *PHYSICAL activity , *MEDICAL coding , *DESCRIPTIVE statistics , *RESISTANCE training - Abstract
Self-efficacy is arguably the strongest correlate of physical activity, yet some researchers suggest this is because the construct confounds ability with motivation. We examine a more circumscribed construct, called perceived capability (PC), meant to measure ability but not motivation and propose that the construct will not be related to unskilled physical activities but may be linked to skilled behaviors. The purpose of this paper was to examine whether a PC construct can be stripped of motivation using a vignette approach in both walking and resistance training behaviors. Participants were a random sample of 248 university students, who were then randomly assigned to either answer resistance training or walking behavior questions. Both groups completed a PC measure and reasons for their answer before and after reading a vignette that clarified the phrasing of capability to a literal use of the term. PC was significantly (p < .01) higher post- compared to pre-vignette and the differences were greater (p < .01) for walking than for resistance training. PC had significantly (p < .01) smaller correlations with intention and self-reported behavior post-disambiguation, which resulted in a null relationship with walking but a small correlation with resistance training behavior. When PC was combined with intention to predict behavior, however, there was no significant (p > .05) difference in the amount of variance explained pre- to post-vignette. Thought listing showed that participants did not report capability barriers to walking and over half of the sample construed capability as motivation/other priorities pre-vignette. The findings support use of a vignette approach for researchers who wish to disentangle the assessment of PC from motivation while creating no overall loss in explained variance of physical activity. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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31. Siblings of children with complex care needs: their perspectives and experiences of participating in everyday life.
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Woodgate, R. L., Edwards, M., Ripat, J. D., Rempel, G., and Johnson, S. F.
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ATTITUDE (Psychology) , *SIBLINGS , *CHRONIC diseases in children , *EXPERIENCE , *INTERVIEWING , *RESEARCH methodology , *RESEARCH funding , *ETHNOLOGY research , *QUALITATIVE research , *THEMATIC analysis - Abstract
Background Participating in everyday life is essential to the healthy development and emotional well-being of children. However, little is known about siblings of children with complex care needs (CCN), and their perspectives and experiences of participating in everyday life. The aim of this paper is to present research findings that add to our understanding of how siblings of children with CCN view and experience participation in everyday life. Methods To arrive at a detailed and accurate understanding of the siblings' perspectives and experiences, we used the qualitative research design of ethnography. Sixteen siblings (seven brothers, nine sisters) of children with CCN were recruited. The siblings ranged in age between 7 and 25 years, with a mean age of 14 years. All siblings took part in opened-ended interviews and completed ecomaps to describe how they participate. Five siblings also took part in the photovoice method. Analysis involved several iterative steps, congruent with ethnography. Results Four main themes emerged as follows: (1) participation is about being part of a group; (2) it feels good; (3) I love my sibling but...; and (4) promoting participation. Siblings of children with CCN identified challenges to participation and also described ways that they participate that relate to the care of their sibling. Conclusions Siblings prioritized the relationship with their sisters and brothers with CCN in their life, and a great deal of their participation was chosen with their sibling in mind. Sibling-to-sibling relationships were distinct and meaningful and, as a result, participation was always done mindfully and with the family needs at the forefront. Nonetheless, clinicians caring for children with CCN must keep in mind the challenges that siblings of children with CCN experience and provide strategies to siblings that will help to promote their participation in everyday life. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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32. “Drugs don’t have age limits”: The challenge of setting age restrictions for supervised injection facilities.
- Author
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Watson, Tara Marie, Strike, Carol, Kolla, Gillian, Penn, Rebecca, and Bayoumi, Ahmed M.
- Subjects
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MEDICAL care laws , *MEDICAL care , *RESEARCH , *INTRAVENOUS drug abuse , *AGE , *CELEBRITIES , *DRUGS of abuse , *FOCUS groups , *INTERVIEWING , *MEDICAL cooperation , *RESEARCH funding , *SUBSTANCE abuse treatment , *QUALITATIVE research , *TREATMENT programs , *HARM reduction , *THEMATIC analysis , *DATA analysis software , *DESCRIPTIVE statistics - Abstract
Aims: People under age 18 who inject drugs represent a population at risk of health and social harms. Age restrictions at harm reduction programmes often formally exclude this population, but the reason behind such restrictions is lacking in the literature. To help fill this gap, we examine the perspectives of people who use drugs and various other stakeholders regarding whether supervised injection facilities (SIFs) should have age restrictions.Methods: Interviews and focus groups were conducted with a total of 95 people who use drugs and 141 other stakeholders (including police, fire and emergency services personnel, other city employees and officials, healthcare providers, residents and business representatives) in two Canadian cities without SIFs.Findings: We highlight the following thematic areas: mixed opinions regarding specific age restrictions; safety as a priority; different experiences and understandings of youth, agency and drug use; and ideas regarding maturity, “help” and other approaches. We note throughout that a familiar vulnerability–agency dichotomy often surfaced in the discussions.Conclusions: This paper contributes new empirical insights regarding youth access to SIFs. We offer considerations that may inform discussions occurring in other jurisdictions debating SIF implementation and may help remove or clarify age-related policies for harm reduction programmes. [ABSTRACT FROM PUBLISHER]
- Published
- 2015
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33. Interprofessional collaboration and family member involvement in intensive care units: emerging themes from a multi-sited ethnography.
- Author
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Reeves, Scott, McMillan, Sarah E., Kachan, Natasha, Paradis, Elise, Leslie, Myles, and Kitto, Simon
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ACADEMIC medical centers , *ATTITUDE (Psychology) , *COMMUNICATION , *COMPARATIVE studies , *CONCEPTUAL structures , *CONTENT analysis , *CORPORATE culture , *CRITICAL care medicine , *CRITICALLY ill , *DECISION making , *FAMILIES , *HEALTH care teams , *HEALTH facilities , *HEALTH facility administration , *INTENSIVE care nursing , *INTENSIVE care units , *INTERPROFESSIONAL relations , *INTERVIEWING , *RESEARCH methodology , *MEDICAL cooperation , *MEDICAL emergencies , *MEDICAL personnel , *MEDICAL protocols , *PATIENT advocacy , *PATIENTS , *PHARMACISTS , *PHYSICIANS , *RESEARCH , *RESEARCH funding , *SOCIAL workers , *WORK environment , *TEAMS in the workplace , *ETHNOLOGY research , *PROFESSIONAL practice , *THEMATIC analysis , *FAMILY roles , *PATIENTS' families , *HOSPITAL rounds , *ELECTRONIC health records , *FAMILY attitudes - Abstract
This article presents emerging findings from the first year of a two-year study, which employed ethnographic methods to explore the culture of interprofessional collaboration (IPC) and family member involvement in eight North American intensive care units (ICUs). The study utilized a comparative ethnographic approach - gathering observation, interview and documentary data relating to the behaviors and attitudes of healthcare providers and family members across several sites. In total, 504 hours of ICU-based observational data were gathered over a 12-month period in four ICUs based in two US cities. In addition, 56 semi-structured interviews were undertaken with a range of ICU staff (e.g. nurses, doctors and pharmacists) and family members. Documentary data (e.g. clinical guidelines and unit policies) were also collected to help develop an insight into how the different sites engaged organizationally with IPC and family member involvement. Directed content analysis enabled the identification and categorization of major themes within the data. An interprofessional conceptual framework was utilized to help frame the coding for the analysis. The preliminary findings presented in this paper illuminate a number of issues related to the nature of IPC and family member involvement within an ICU context. These findings are discussed in relation to the wider interprofessional and health services literature. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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34. Can ethnicity data collected at an organizational level be useful in addressing health and healthcare inequities?
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Browne, Annette J., Varcoe, Colleen M., Wong, Sabrina T., Smye, Victoria L., and Khan, Koushambhi B.
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FOCUS groups , *HEALTH status indicators , *INTERVIEWING , *MEDICAL quality control , *RACE , *RESEARCH funding , *QUALITATIVE research , *JUDGMENT sampling , *THEMATIC analysis - Abstract
ObjectiveFollowing arguments made in the USA, the UK and New Zealand regarding the importance of population-level ethnicity data in understanding health and healthcare inequities, health authorities in several Canadian provinces are considering plans to collect ethnicity data from patients at the point of care within selected healthcare organizations. The purpose of this paper is to examine the potential quality, utility and relevance of ethnicity data collected at an organizational level as a means of addressing health and healthcare inequities. DesignWe draw on findings from a recent Canadian study that examined the implications of collecting ethnicity data in healthcare contexts. Using a qualitative design, data were collected in a large city, and included interviews with 104 patients, community and healthcare leaders, and healthcare workers within diverse clinical contexts. Data were analyzed using interpretive thematic analysis. ResultsOur results are discussed in relation to discourses reflected in the current literature that require consideration in relation to the potential utility and relevancy of ethnicity data collected at the point of care within healthcare organizations. These discourses frame excerpts from the ethnographic data that are used as illustrative examples. Three key challenges to the potential relevance and utility of ethnicity data collected at the level of local healthcare organizations are identified: (a) issues pertaining to quality of the data, (b) the fact that data quality is most problematic for those with the greatest vulnerability to the negative effects of health inequities, and (c) the lack of data reflecting structural disadvantages or discrimination. ConclusionThe quality of ethnicity data collected within healthcare organizations is often unreliable, particularly for people from racialized or visible minority groups, who are most at risk, seriously limiting the usefulness of the data. Quality measures for collecting data reflecting ethnocultural identity in specific healthcare organizations may be warranted – but only if mechanisms exist or are developed for linking ethnicity with measures of perceived discrimination, stigmatization, income level, and other known contributors to inequities. Methods for linking these kinds of data, however, remain underdeveloped or non-existent in most healthcare organizations. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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35. Voices of care for adults with disabilities and/or mental health issues in Western Canada: what do families and agencies need from each other?
- Author
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Mooney, Laura R. and Lashewicz, Bonnie
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PEOPLE with disabilities , *CAREGIVERS , *FOCUS groups , *HOME care services , *INTERPROFESSIONAL relations , *INTERVIEWING , *MEDICAL personnel , *MENTAL illness , *NEEDS assessment , *RESEARCH funding , *SOCIAL support , *THEMATIC analysis , *PATIENTS' families - Abstract
Our purpose in this paper is to report on the frustrations and unmet needs of paid, formal caregivers and unpaid, family caregivers who together provide care to adults with disabilities and/or mental health issues. We conducted eight focus group interviews between November 2010 and June 2011 in two large, urban centres and one smaller centre in Western Canada. Four of our focus groups were with family members including adults with disabilities and/or mental health issues, their parents and their siblings, and four were with representatives from agencies providing support and services to adults with disabilities and/or mental health issues and their families. Data were collected from 23 family members and 24 agency representatives who responded to questions about successes and struggles in meeting, and collaborating to meet, care needs of adults with disabilities and/or mental health issues. Each focus group session was digitally recorded and transcribed; field notes were also taken and we thematically analysed data according to family versus agency perspectives of their successes and barriers in care provision and care collaboration. We found that family members desire greater and more effective support in enriching the lives of adults with disabilities and/or mental health issues and in preparing for age-related changes. Agency representatives are keenly aware of the needs and challenges faced by families, yet grapple with being effective collaborators with families of widely varying priorities and styles of care and collaboration. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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36. “Rebuilding our community”: Hearing silenced voices on Aboriginal youth suicide.
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Walls, Melissa L., Hautala, Dane, and Hurley, Jenna
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HISTORY of indigenous peoples of the Americas , *ABORIGINAL Canadians , *ETHNOPSYCHOLOGY , *FOCUS groups , *PSYCHOLOGY of the Indigenous peoples of the Americas , *RESEARCH funding , *SUICIDE , *SURVEYS , *WOUNDS & injuries , *ETHNOLOGY research , *QUALITATIVE research , *THEMATIC analysis , *ADOLESCENCE - Abstract
This paper brings forth the voices of adult Aboriginal First Nations community members who gathered in focus groups to discuss the problem of youth suicide on their reserves. Our approach emphasizes multilevel (e.g., individual, family, and broader ecological systems) factors viewed by participants as relevant to youth suicide. Wheaton’s conceptualization of stressors and Evans-Campbell’s multilevel classification of the impacts of historical trauma are used as theoretical and analytic guides. Thematic analysis of qualitative data transcripts revealed a highly complex intersection of stressors, traumas, and social problems seen by community members as underlying mechanisms influencing heightened levels of Aboriginal youth suicidality. Our multilevel coding approach revealed that suicidal behaviors were described by community members largely as a problem with deep historical and contemporary structural roots, as opposed to being viewed as individualized pathology. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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37. Uncertainty, culture and pathways to care in paediatric functional gastrointestinal disorders.
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Fortin, Sylvie, Gauthier, Annie, Gomez, Liliana, Faure, Christophe, Bibeau, Gilles, and Rasquin, Andrée
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GASTROINTESTINAL diseases , *INTERVIEWING , *RESEARCH methodology , *MEDICAL care , *PARENTS , *CULTURAL pluralism , *RESEARCH , *RESEARCH funding , *UNCERTAINTY , *NARRATIVES , *THEMATIC analysis , *HEALTH literacy , *CHILDREN , *PSYCHOLOGY - Abstract
This paper examines how children and families of diverse ethnic backgrounds perceive, understand and treat symptoms related to functional gastrointestinal disorders (FGIDs). It is questioned how different ways of dealing with medical uncertainty (symptoms, diagnosis) may influence treatment pathways. Semi-structured interviews were conducted with 43 children of 38 family groups of immigrant and non-immigrant backgrounds. The analysis takes into account (a) the perceived symptoms; (b) the meaning attributed to them; and (c) the actions taken to relieve them. The social and cultural contexts that permeate these symptoms, meanings and actions were also examined. It is found that, in light of diagnostic and therapeutic uncertainty, non-immigrant families are more likely to consult health professionals. Immigrant families more readily rely upon home remedies, family support and, for some, religious beliefs to temper the uncertainty linked to abdominal pain. Furthermore, non-immigrant children lead a greater quest for legitimacy of their pain at home while most immigrant families place stomach aches in the range of normality. Intracultural variations nuance these findings, as well as family dynamics. It is concluded that different courses of action and family dynamics reveal that uncertainty is dealt with in multiple ways. Family support, the network, and trust in a child's expression of distress are key elements in order to tolerate uncertainty. Lastly, the medical encounter is described as a space permeated with relational uncertainty given the different registers of expression inherent within a cosmopolitan milieu. Narrative practices being an essential dynamic of this encounter, it is questioned whether families’ voices are equally heard in these clinical spaces. [ABSTRACT FROM PUBLISHER]
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- 2013
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38. Lean on me: an exploratory study of the spousal support received by physicians.
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Jovanovic, Alyssa and Wallace, Jean E.
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INTERVIEWING , *JOB stress , *RESEARCH methodology , *SENSORY perception , *PSYCHOLOGY of physicians , *RESEARCH , *RESEARCH funding , *STATISTICAL sampling , *PSYCHOLOGY of Spouses , *WOMEN physicians , *QUALITATIVE research , *OCCUPATIONAL roles , *SOCIAL support , *THEMATIC analysis , *DESCRIPTIVE statistics , *PSYCHOLOGY - Abstract
This paper uses interview data from physicians and their spouses to describe the types of spousal support physicians receive when coping with work-related stress and to explore whether they vary by occupational similarity, gender, and parental status. The physicians described receiving different types of spousal support: emotional, informational, and instrumental. Male physicians in this study often reported receiving emotional support from their spouse, consistent with the support gap hypothesis in the literature. An unexpected finding is that from the responses of the physicians’ spouses, the husbands often reportedofferingemotional support to their physician spouse. Physicians who shared similar occupational and work experiences with their spouse (i.e. married to another physician) reported receiving informational support from their spouse, consistent with the theory of homophily. Finally, the findings also suggested that once physicians have children, their wives often reported providing instrumental support by being primarily responsible for childcare and housework. An interesting finding of this study is the discrepancy between the physicians and their spouses in their perceptions of support. [ABSTRACT FROM AUTHOR]
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- 2013
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39. Integration and timing of basic and clinical sciences education.
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Bandiera, Glen, Boucher, Andree, Neville, Alan, Kuper, Ayelet, and Hodges, Brian
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CONTENT analysis , *EXPERTISE , *INTERDISCIPLINARY education , *INTERVIEWING , *RESEARCH methodology , *MEDICAL personnel , *POLICY sciences , *RESEARCH funding , *STRATEGIC planning , *TIME , *CLINICAL competence , *QUALITATIVE research , *JUDGMENT sampling , *TEACHING methods , *THEMATIC analysis , *EDUCATION ,STUDY & teaching of medicine - Abstract
Background: Medical education has traditionally been compartmentalized into basic and clinical sciences, with the latter being viewed as the skillful application of the former. Over time, the relevance of basic sciences has become defined by their role in supporting clinical problem solving rather than being, of themselves, a defining knowledge base of physicians. Methods: As part of the national Future of Medical Education in Canada (FMEC MD) project, a comprehensive empirical environmental scan identified the timing and integration of basic sciences as a key pressing issue for medical education. Using the literature review, key informant interviews, stakeholder meetings, and subsequent consultation forums from the FMEC project, this paper details the empirical basis for focusing on the role of basic science, the evidentiary foundations for current practices, and the implications for medical education. Findings: Despite a dearth of definitive relevant studies, opinions about how best to integrate the sciences remain strong. Resource allocation, political power, educational philosophy, and the shift from a knowledge-based to a problem-solving profession all influence the debate. There was little disagreement that both sciences are important, that many traditional models emphasized deep understanding of limited basic science disciplines at the expense of other relevant content such as social sciences, or that teaching the sciences contemporaneously rather than sequentially has theoretical and practical merit. Innovations in integrated curriculum design have occurred internationally. Less clear are the appropriate balance of the sciences, the best integration model, and solutions to the political and practical challenges of integrated curricula. Discussion: New curricula tend to emphasize integration, development of more diverse physician competencies, and preparation of physicians to adapt to evolving technology and patients' expectations. Refocusing the basic/clinical dichotomy to a foundational/applied model may yield benefits in training widely competent future physicians. [ABSTRACT FROM AUTHOR]
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- 2013
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40. Nurses' engagement in AIDS policy development.
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Richter, M.S., Mill, J., Muller, C.E., Kahwa, E., Etowa, J., Dawkins, P., and Hepburn, C.
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ACTION research , *AIDS , *INTERNATIONAL relations , *INTERPROFESSIONAL relations , *INTERVIEWING , *HEALTH policy , *NURSES , *NURSES' attitudes , *POLICY sciences , *RESEARCH funding , *SOUND recordings , *JUDGMENT sampling , *OCCUPATIONAL roles , *THEMATIC analysis - Abstract
Richter M.S., Mill J., Muller C.E., Kahwa E., Etowa J., Dawkins P. & Hepburn C. (2013) Nurses' engagement in AIDS policy development. International Nursing Review 60, 52-58 Background: A multidisciplinary team of 20 researchers and research users from six countries - Canada, Jamaica, Barbados, Kenya, Uganda and South Africa - are collaborating on a 5-year (2007-12) program of research and capacity building project. This program of research situates nurses as leaders in building capacity and promotes collaborative action with other health professionals and decision-makers to improve health systems for human immunodeficiency virus (HIV) and acquired immunodeficiency syndrome (AIDS) nursing care . One of the projects within this program of research focused on the influence of workplace policies on nursing care for individuals and families living with HIV. Nurses are at the forefront of HIV prevention and AIDS care in these countries but have limited involvement in related policy decisions and development. In this paper, we present findings related to the barriers and facilitators for nurses' engagement in policymaking. Methods: A participatory action research design guided the program of research. Purposive sampling was used to recruit 51 nurses (unit managers, clinic and healthcare managers, and senior nurse officers) for interviews. Findings: Participants expressed the urgent need to develop policies related to AIDS care. The need to raise awareness and to 'protect' not only the workers but also the patients were critical reason to develop policies. Nurses in all of the participating countries commented on their lack of involvement in policy development. Lack of communication from the top down and lack of information sharing were mentioned as barriers to participation in policy development. Resources were often not available to implement the policy requirement. Strong support from the management team is necessary to facilitate nurses involvement in policy development. Conclusions: The findings of this study clearly express the need for nurses and all other stakeholders to mobilize nurses' involvement in policy development. Long-term and sustained actions are needed to address gaps on the education, research and practice level. [ABSTRACT FROM AUTHOR]
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- 2013
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41. A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers.
- Author
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Kuluski, Kerry, Gill, Ashlinder, Naganathan, Gayathri, Upshur, Ross, Jaakkimainen, R. Liisa, and Wodchis, Walter P.
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CAREGIVERS , *CHRONIC diseases , *GOAL (Psychology) , *INTERVIEWING , *RESEARCH methodology , *GENERAL practitioners , *RESEARCH funding , *COMORBIDITY , *THEMATIC analysis , *DATA analysis software , *PATIENTS' attitudes , *PHYSICIANS' attitudes , *DESCRIPTIVE statistics - Abstract
Background: Goal setting is a recommended approach in clinical care that can help individuals with multi-morbidities and their caregivers manage chronic conditions. In this paper, the types of goals that were important for older persons with multi-morbidities were explored from the perspectives of patients, their caregivers and physicians. Comparisons of goals were made across each patient, caregiver and physician triad to determine alignment. Methods: The study was a qualitative descriptive study facilitated through semi-structured one-on-one interviews. The study took place between May and October 2012 at a Family Health Team located in Ontario, Canada. The sample included 28 family medicine patients, their informal caregivers and family physicians. Socio-demographic data were analyzed via descriptive statistics in SPSS Version 17. Open ended questions pertaining to patient goals of care were analyzed thematically using NVivo9. Themes were derived on patient care goals for each of the participant groups (patients, caregivers and family physicians). Following this, alignment of goals across each of the triads was examined. Goal alignment was defined as concurrence on at least one goal by all three parties in a particular triad (i.e., patient, caregiver and family physician). Results: Just over half of the patients were male (56%); they had an average age of 82.3 years and 4.61 health conditions. Most of the caregivers were female (82%); and 61% were a spouse of the care recipient. At the aggregate level, common goals expressed among patients, caregivers and family physicians were the maintenance of functional independence of patients and the management of their symptoms or functional challenges. Despite these common goals at the aggregate level, little alignment of goals was found when looking across patient-caregiver and physician triads. Lack of alignment tended to occur when patients had unstable or declining functional or cognitive health; when safety threats were noted; and when enhanced care services were required. Conclusions: The data suggest that goal divergence tends to occur when patients are less medically stable. While goal divergence may be expected due to the different roles and responsibilities of each of the players involved, these perspectives should be illuminated when building care plans. Further research is required to observe the extent to which goal setting occurs in family practice as well as how it can be embedded as a standard of practice. [ABSTRACT FROM AUTHOR]
- Published
- 2013
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42. A critical analysis of undergraduate students' cultural immersion experiences.
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Harrowing, J.N., Gregory, D.M., O'Sullivan, P.S., Lee, B., and Doolittle, L.
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ALLIED health personnel , *CULTURE , *EDUCATION research , *FIELDWORK (Educational method) , *HEALTH occupations students , *HEALTH promotion , *LABOR mobility , *LONGITUDINAL method , *NURSING students , *PARADIGMS (Social sciences) , *RESEARCH funding , *STUDENTS , *WORLD health , *THEMATIC analysis , *CULTURAL competence , *NARRATIVES , *BACCALAUREATE nursing education ,WRITING - Abstract
HARROWING J.N., GREGORY D.M., O'SULLIVAN P.S., LEE B. & DOOLITTLE L. (2012) A critical analysis of undergraduate students' cultural immersion experiences. International Nursing Review Purpose: This paper is concerned with the impact of an international health promotion experience on the understanding of culture among university students. Such immersion experiences are often cited as a strategy to prepare nurses for culturally appropriate practice. We describe students' epistemic movements over time with respect to cultural perspectives prior to, during and after a field study in Malawi. Design: Data were collected at three time points from students in undergraduate nursing ( n = 14) and non-nursing ( n = 8) programs at a Canadian university. Two essays narrating participants' understanding of culture were submitted by consenting class members. A subgroup of nine participants (four nursing students, five from other disciplines) completed a third narrative following a subsequent field study course in Malawi. Method: Using narrative analysis, themes and structures in the participants' writing were identified and located within a constructivist or essentialist paradigm of cultural understanding. Findings: Overwhelmingly, students' narratives were initially portrayed and informed by an essentialist understanding of culture. Later narratives demonstrated varying degrees of epistemic movement towards more constructivist viewpoints. Narratives that initially exhibited constructivist characteristics tended to display strengthened convictions in that paradigm. Conclusion: We challenge the claim that an international immersion experience immediately transforms participants into cultural experts; our evidence suggests that students experienced existential growth, but their understanding of culture did not change as a result of their brief stay in a different cultural context. Cultural immersion is a phenomenon that requires more critical analysis and systematic investigation to determine how such experiences contribute to learning about culture among nursing students. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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43. Representing complexity well: a story about teamwork, with implications for how we teach collaboration.
- Author
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Lingard, Lorelei, McDougall, Allan, Levstik, Mark, Chandok, Natasha, Spafford, Marlee M, and Schryer, Catherine
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ACADEMIC medical centers , *ANESTHESIOLOGY , *CARDIOLOGY , *HEALTH care teams , *INTERPROFESSIONAL relations , *INTERVIEWING , *MEDICAL care , *MEDICAL personnel , *PATIENTS , *RESEARCH funding , *TEAMS in the workplace , *ETHNOLOGY research , *THEMATIC analysis , *DATA analysis software - Abstract
Medical Education 2012: 46: 869-877 Objectives In order to be relevant and impactful, our research into health care teamwork needs to better reflect the complexity inherent to this area. This study explored the complexity of collaborative practice on a distributed transplant team. We employed the theoretical lenses of activity theory to better understand the nature of collaborative complexity and its implications for current approaches to interprofessional collaboration (IPC) and interprofessional education (IPE). Methods Over 4 months, two trained observers conducted 162 hours of observation, 30 field interviews and 17 formal interviews with 39 members of a solid organ transplant team in a Canadian teaching hospital. Participants included consultant medical and surgical staff and postgraduate trainees, the team nurse practitioner, social worker, dietician, pharmacist, physical therapist, bedside nurses, organ donor coordinators and organ recipient coordinators. Data collection and inductive analysis for emergent themes proceeded iteratively. Results Daily collaborative practice involves improvisation in the face of recurring challenges on a distributed team. This paper focuses on the theme of 'interservice' challenges, which represent instances in which the 'core' transplant team (those providing daily care for transplant patients) work to engage the expertise and resources of other services in the hospital, such as those of radiology and pathology departments. We examine a single story of the core team's collaboration with cardiology, anaesthesiology and radiology services to decide whether a patient is appropriate for transplantation and use this story to consider the team's strategies in the face of conflicting expectations and preferences among these services. Conclusions This story of collaboration in a distributed team calls into question two premises underpinning current models of IPC and IPE: the notion that stable professional roles exist, and the ideal of a unifying objective of 'caring for the patient'. We suggest important elaborations to these premises as they are used to conceptualise and teach IPC in order to better represent the intricacy of everyday collaborative work in health care. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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44. Closing the health equity gap: evidence-based strategies for primary health care organizations.
- Author
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Browne, Annette J., Varcoe, Colleen M., Wong, Sabrina T., Smye, Victoria L., Lavoie, Josée, Littlejohn, Doreen, Tu, David, Godwin, Olive, Krause, Murry, Khan, Koushambhi B., Fridkin, Alycia, Rodney, Patricia, O¿Neil, John, and Lennox, Scott
- Subjects
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DOCUMENTATION , *DECISION making methodology , *HEALTH services accessibility , *METROPOLITAN areas , *COMMITMENT (Psychology) , *CONCEPTUAL structures , *CONTINUUM of care , *HEALTH care rationing , *HEALTH status indicators , *INDIGENOUS peoples of the Americas , *INTERVIEWING , *RESEARCH methodology , *MEDICAL cooperation , *PATIENT-professional relations , *ORGANIZATIONAL change , *PARTICIPANT observation , *PRIMARY health care , *QUALITY assurance , *RESEARCH , *RESEARCH funding , *TIME , *VIOLENCE , *WOUNDS & injuries , *ETHNOLOGY research , *SOCIOECONOMIC factors , *THEMATIC analysis , *CULTURAL competence - Abstract
Introduction: International evidence shows that enhancement of primary health care (PHC) services for disadvantaged populations is essential to reducing health and health care inequities. However, little is known about how to enhance equity at the organizational level within the PHC sector. Drawing on research conducted at two PHC Centres in Canada whose explicit mandates are to provide services to marginalized populations, the purpose of this paper is to discuss (a) the key dimensions of equity-oriented services to guide PHC organizations, and (b) strategies for operationalizing equity-oriented PHC services, particularly for marginalized populations. Methods: The PHC Centres are located in two cities within urban neighborhoods recognized as among the poorest in Canada. Using a mixed methods ethnographic design, data were collected through intensive immersion in the Centres, and included: (a) in-depth interviews with a total of 114 participants (73 patients; 41 staff), (b) over 900 hours of participant observation, and (c) an analysis of key organizational documents, which shed light on the policy and funding environments. Results: Through our analysis, we identified four key dimensions of equity-oriented PHC services: inequity-responsive care; trauma- and violence-informed care; contextually-tailored care; and culturally-competent care. The operationalization of these key dimensions are identified as 10 strategies that intersect to optimize the effectiveness of PHC services, particularly through improvements in the quality of care, an improved 'fit' between people's needs and services, enhanced trust and engagement by patients, and a shift from crisis-oriented care to continuity of care. Using illustrative examples from the data, these strategies are discussed to illuminate their relevance at three inter-related levels: organizational, clinical programming, and patient-provider interactions. Conclusions: These evidence- and theoretically-informed key dimensions and strategies provide direction for PHC organizations aiming to redress the increasing levels of health and health care inequities across population groups. The findings provide a framework for conceptualizing and operationalizing the essential elements of equity-oriented PHC services when working with marginalized populations, and will have broad application to a wide range of settings, contexts and jurisdictions. Future research is needed to link these strategies to quantifiable process and outcome measures, and to test their impact in diverse PHC settings. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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45. Older Adults with Hoarding Behaviour Aging in Place: Looking to a Collaborative Community-Based Planning Approach for Solutions.
- Author
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Whitfield, Kyle Y., Daniels, Jason S., Flesaker, Keri, and Simmons, Doneka
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SAFETY , *DIOGENES syndrome , *FOCUS groups , *GROUNDED theory , *INTERPROFESSIONAL relations , *INTERVIEWING , *RESEARCH methodology , *HEALTH outcome assessment , *RESEARCH funding , *SOCIAL support , *THEMATIC analysis , *TREATMENT effectiveness , *INDEPENDENT living , *OLD age , *THERAPEUTICS - Abstract
This paper reports on and synthesizes new research that examines how a collaborative community response can promote successful aging in place for older adults with hoarding behaviour. Through interviews with older adults with hoarding behaviour, who used a particular community support and a focus group interview with members of the community collaborative that directed supports for this population, our findings suggest that there were valuable outcomes for both groups. These older adults with hoarding behaviour were able to remain in their own homes, their safety was enhanced, their sense of isolation was minimized, empowerment was fostered, and they gained valuable insight into their behaviour. The members of the community collaborative were able to access the expertise of other professionals, maximize their own expertise, and they generated an enhanced understanding of the experience of older adults living with hoarding behaviour in Edmonton. This study is a significant addition to the much too sparse literature about the community planning needs of older adults with hoarding behaviour. It offers knowledge that is integral to theories and principles of better aging in place but attempts to translate this into practice. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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46. Embedded spirituality: gardening in daily life and stressful life experiences.
- Author
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Unruh, Anita and Hutchinson, Susan
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CHRONIC diseases & psychology , *LEISURE & psychology , *PREVENTION of psychological stress , *PSYCHOLOGICAL adaptation , *EXPERIENCE , *HORTICULTURE , *INTERVIEWING , *PHENOMENOLOGY , *PSYCHOLOGY & religion , *RESEARCH funding , *SOUND recordings , *SPIRITUALITY , *TELEPHONES , *DATA analysis , *THEMATIC analysis ,TUMORS & psychology - Abstract
Scand J Caring Sci; 2011; 25; 567-574 Embedded spirituality: gardening in daily life and stressful life experiences Background: There is a limited body of research examining the relationship between spirituality and leisure, or the impact of leisure in the context of daily life, and life with stressful events. Aim: To examine the meaning of gardens and gardening across different life experiences using hermeneutic phenomenology to focus on the lived experience of leisure gardening. Methods: Most participants were interviewed once in each season over a 1 year period usually in their home. There were 42 participants (27 women and 15 men) in this study. Fifteen individuals had been diagnosed with cancer and were in varying stages of diagnosis and treatment. Three people had a chronic and progressive disease. Four women were grieving the death of their spouse. Participants ranged in age from 32 to 80 years. Results: In this paper, we focus on the spirituality-related themes in this study: spirituality as connectedness; spirituality as an expression of inner being; the garden as a spiritual place and gardening as spiritual activity; gardening as a spiritual journey; and, stewardship. Participants with religious views saw their garden as an extension of their spirituality and a confirmation of their beliefs. Participants with secular or sacred views of spirituality that was not related to any religious beliefs were more likely to embed their spirituality in their relationship with nature as manifested in their garden. Conclusion: This study extends current theory regarding leisure and its contribution to meaning focused coping, and spirituality as a significant component of leisure in living with stressful health and life events. [ABSTRACT FROM AUTHOR]
- Published
- 2011
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47. South Asian immigrants' experience of child protection services: are we recognizing strengths and resilience?
- Author
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Maiter, Sarah and Stalker, Carol
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CHILD abuse laws , *IMMIGRANTS , *ACCULTURATION , *ANALYSIS of variance , *CHILD rearing , *COMMUNITY health services , *CUSTODY of children , *DISCIPLINE of children , *EXPERIENCE , *HOLISTIC medicine , *INFORMATION services , *INTERGENERATIONAL relations , *INTERVIEWING , *MEDICAL personnel , *SCIENTIFIC observation , *CULTURAL pluralism , *RESEARCH funding , *PSYCHOLOGICAL resilience , *STATISTICAL sampling , *INFORMATION resources , *QUALITATIVE research , *CULTURAL awareness , *CULTURAL values , *FAMILY conflict , *SOCIOECONOMIC factors , *THEMATIC analysis , *PATIENTS' families - Abstract
Ethno-racial minority families who come in contact with child protection services face unique challenges that include different ideas about appropriate child rearing practices, possibly different definitions of child maltreatment, the possibility of racial biases and service provision that does not address their particular needs. Ethno-racial minority immigrants encounter additional barriers to services associated with the challenges of settlement in a new cultural environment. Although considerable research has explored these issues, knowledge of the experiences of ethno-racial families who have been in contact with child protection is limited. The current paper provides insights from a qualitative study that explored the experiences of one ethno-racial group (South Asians) in Canada. Findings suggest a variety of reasons that families come into contact with the child protection system, and the characteristics of the sample highlight their difficult financial and employment circumstances. Themes include participants' desire to be better informed about the reasons for child protection involvement and about what they can expect from the worker and the agency. They also identified a wish for services that not only recognize their cultural diversity but also respond to the needs of the whole family. In-home services were especially appreciated. The findings reveal the resilience and personal agency among participants that can be enhanced through strength-based approaches to practice. Helping others, establishing community networks and developing needed services were avenues of resilience identified. [ABSTRACT FROM AUTHOR]
- Published
- 2011
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48. Influenza vaccine preference and uptake among older people in nine countries.
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Kwong, Enid Wai-yung, Pang, Samantha Mei-che, Choi, Pin-pin, and Wong, Thomas Kok-shing
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INFLUENZA prevention , *ATTITUDE (Psychology) , *CONCEPTUAL structures , *FOCUS groups , *HEALTH attitudes , *HEALTH services accessibility , *INFLUENZA vaccines , *RESEARCH methodology , *MEDICAL care , *PATIENTS , *QUESTIONNAIRES , *RESEARCH funding , *HEALTH self-care , *SOUND recordings , *QUALITATIVE research , *THEORY , *JUDGMENT sampling , *CULTURAL values , *THEMATIC analysis , *DRUG administration , *DRUG dosage , *ECONOMICS , *EVALUATION , *OLD age - Abstract
kwong e.w.-y., pang s.m.-c., choi p.-p. & wong t.k.-s. (2010) Influenza vaccine preference and uptake among older people in nine countries. Journal of Advanced Nursing 66(10), 2297–2308. Aim. This paper is a report of a study delineating factors that influence older people’s preferences and uptake of the influenza vaccine in nine countries. Background. Vaccination uptake for the aging population in many countries still remains below the World Health Organization recommended rate. Older people who perceive higher susceptibility to and severity of influenza, and more benefits from vaccination and action cues prompting vaccination, tend to accept the vaccine, but those with more perceived barriers to vaccination are less likely to accept it. Method. A total of 208 older people from China, Indonesia, Turkey, Korea, Greece, Canada, the United Kingdom, Brazil and Nigeria were recruited to 14 vaccinated and 12 unvaccinated focus groups. They shared their experiences of influenza, and influenza vaccination, and promotion of influenza vaccination in focus groups. The data were collected in 2007. Findings. We identified five themes and generated a hypothetical framework for in-depth understanding of vaccination behaviour among older people. Participants’ vaccine preferences were determined by their behavioural beliefs in vaccination, which were based on their probability calculation of susceptibility to and severity of influenza and vaccine effectiveness, and their utility calculation of vaccine, healthcare and social costs. Action cues prompting vaccination and vaccine access further affected the vaccine uptake of participants with vaccine preferences. Vaccination coverage was likely to be higher in the countries where normative beliefs in favour of vaccination had formed. Conclusion. The hypothetical framework can be used to guide healthcare providers in developing strategies to foster normative beliefs of older people in vaccination, provide effective action cues and promote vaccine access. [ABSTRACT FROM AUTHOR]
- Published
- 2010
- Full Text
- View/download PDF
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