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1. Effectiveness of a virtual intervention for primary healthcare professionals aimed at improving attitudes towards the empowerment of patients with chronic diseases: study protocol for a cluster randomized controlled trial (e-MPODERA project).

Author

González-González, Ana Isabel, Orrego, Carola, Perestelo-Perez, Lilisbeth, Bermejo-Caja, Carlos Jesús, Mora, Nuria, Koatz, Débora, Ballester, Marta, del Pino, Tasmania, Pérez-Ramos, Jeannet, Toledo-Chavarri, Ana, Robles, Noemí, Pérez-Rivas, Francisco Javier, Ramírez-Puerta, Ana Belén, Canellas-Criado, Yolanda, del Rey-Granado, Yolanda, Muñoz-Balsa, Marcos José, Becerril-Rojas, Beatriz, Rodríguez-Morales, David, Sánchez-Perruca, Luis, and Vázquez, José Ramón

Subjects
*RANDOMIZED controlled trials, *PRIMARY care, *OUTPATIENT medical care, *PRIMARY health care, *FAMILY medicine, *CHRONIC diseases & psychology, *CHRONIC disease treatment, *ATTITUDE (Psychology), *COMPARATIVE studies, *EXPERIMENTAL design, *HEALTH attitudes, *HEALTH care teams, *INTERNET, *LEARNING, *MATHEMATICS, *RESEARCH methodology, *MEDICAL cooperation, *MEDICAL personnel, *NURSE-patient relationships, *PSYCHOLOGY of nurses, *PHYSICIAN-patient relations, *GENERAL practitioners, *QUESTIONNAIRES, *RESEARCH, *STATISTICAL sampling, *HEALTH self-care, *TIME, *PATIENT participation, *GROUP process, *EVALUATION research, *PSYCHOLOGY
Abstract

Background: Communities of practice are based on the idea that learning involves a group of people exchanging experiences and knowledge. The e-MPODERA project aims to assess the effectiveness of a virtual community of practice aimed at improving primary healthcare professional attitudes to the empowerment of patients with chronic diseases.Methods: This paper describes the protocol for a cluster randomized controlled trial. We will randomly assign 18 primary-care practices per participating region of Spain (Catalonia, Madrid and Canary Islands) to a virtual community of practice or to usual training. The primary-care practice will be the randomization unit and the primary healthcare professional will be the unit of analysis. We will need a sample of 270 primary healthcare professionals (general practitioners and nurses) and 1382 patients. We will perform randomization after professionals and patients are selected. We will ask the intervention group to participate for 12 months in a virtual community of practice based on a web 2.0 platform. We will measure the primary outcome using the Patient-Provider Orientation Scale questionnaire administered at baseline and after 12 months. Secondary outcomes will be the sociodemographic characteristics of health professionals, sociodemographic and clinical characteristics of patients, the Patient Activation Measure questionnaire for patient activation and outcomes regarding use of the virtual community of practice. We will calculate a linear mixed-effects regression to estimate the effect of participating in the virtual community of practice.Discussion: This cluster randomized controlled trial will show whether a virtual intervention for primary healthcare professionals improves attitudes to the empowerment of patients with chronic diseases.Trial Registration: ClicalTrials.gov, NCT02757781 . Registered on 25 April 2016. Protocol Version. PI15.01 22 January 2016. [ABSTRACT FROM AUTHOR]

Published
2017
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2. VALIDATION AND COMPARISON OF EQ-5D-3L AND SF-6D INSTRUMENTS IN A SPANISH PARKINSON´S DISEASE POPULATION SAMPLE.

Author

García-Gordillo, Miguel Ángel, del Pozo-Cruz, B., Adsuar, J. C., Cordero-Ferrera, J. M., Abellán-Perpiñán, J. M., Sánchez-Martínez, F. I., Garcia-Gordillo, Miguel Ángel, Abellan-Perpiñan, J M, and Sanchez-Martinez, F I

Subjects
*PARKINSON'S disease, *PSYCHOMETRICS, *QUALITY of life, *MEDICAL care, *MEDICAL decision making, *QUESTIONNAIRES, *PARKINSON'S disease diagnosis, *COMPARATIVE studies, *HEALTH status indicators, *RESEARCH methodology, *MEDICAL cooperation, *REFERENCE values, *RESEARCH, *EVALUATION research, *PSYCHOLOGY, RESEARCH evaluation
Abstract

Introduction: generic, preference-based Health- Related Quality of Life instruments are receiving growing attention in health-care decision-making process. In spite of this, to our knowledge, EQ-5D and SF-6D have never been compared in a Parkinson´s disease population sample.Objective: the aim of this paper was to assess the psychometric properties of both instruments in a Spanish PD population sample.Methods: a total sample of 133 patients were interviewed using EQ-5D-3L and SF-6D. The validity, level of agreement and sensitivity of both instruments were computed and then compared. The Spanish tariff has been used in both instruments.Results: utilities of EQ-5D-3L and SF-6D have shown a strong correlation (r >0.50 and p<0.001) with the summary score of the PDQ-8 and the EQ-VAS score. Significant differences were observed in the stages III-IV of the Hoehn & Yahr stage. SF-6D had 51% higher efficiency than EQ-5D at detecting differences in symptoms severity.Discussion: both EQ-5D-3L and SF-6D seem to be adequate generic Health-Related Quality of Life measures in terms of validity and sensitivity.Conclusion: EQ-5D-3L presents greater ceiling and floor effects than the SF-6D instrument in this sample. Besides, the instrument SF-6D was better at detecting changes in symptoms severity compared with EQ-5D-3L. [ABSTRACT FROM AUTHOR]

Published
2015
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