1. Managing everyday life: Self-management strategies people use to live well with neurological conditions.
- Author
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Audulv, Åsa, Hutchinson, Susan, Warner, Grace, Kephart, George, Versnel, Joan, and Packer, Tanya L
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NEUROLOGICAL disorders , *EVERYDAY life , *LIVING alone , *DISEASE progression , *TELEPHONE interviewing , *RESEARCH , *RESEARCH methodology , *MEDICAL cooperation , *EVALUATION research , *QUALITATIVE research , *COMPARATIVE studies , *INTERPERSONAL relations - Abstract
Objective: This paper uses the Taxonomy of Everyday Self-management Strategies (TEDSS) to provide insight and understanding into the complex and interdependent self-management strategies people with neurological conditions use to manage everyday life.Methods: As part of a national Canadian study, structured telephone interviews were conducted monthly for eleven months, with 117 people living with one or more neurological conditions. Answers to five open-ended questions were analyzed using qualitative content analysis. A total of 7236 statements were analyzed.Results: Findings are presented in two overarching patterns: 1) self-management pervades all aspects of life, and 2) self-management is a chain of decisions and behaviours. Participants emphasized management of daily activities and social relationships as important to maintaining meaning in their lives.Conclusion: Managing everyday life with a neurological condition includes a wide range of diverse strategies that often interact and complement each other. Some people need to intentionally manage every aspect of everyday life.Practice Implications: For people living with neurological conditions, there is a need for health providers and systems to go beyond standard advice for self-management. Self-management support is best tailored to each individual, their life context and the realities of their illness trajectory. [ABSTRACT FROM AUTHOR]- Published
- 2021
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