16 results
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2. Considerations for paediatric student‐led telepractice in speech‐language therapy: A pilot observational study from South Africa.
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Watermeyer, Jennifer, Nattrass, Rhona, Beukes, Johanna, Madonsela, Sonto, and Scott, Megan
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SPEECH therapists , *QUALITATIVE research , *OCCUPATIONAL adaptation , *MEDICAL technology , *RESEARCH funding , *HEALTH occupations students , *PILOT projects , *SCIENTIFIC observation , *UNIVERSITIES & colleges , *DIGITAL divide , *SOCIAL role , *DESCRIPTIVE statistics , *PEDIATRICS , *STUDENTS , *TELEMEDICINE , *THEMATIC analysis , *CLIENT relations , *INFORMATION literacy , *RESEARCH , *RESOURCE-limited settings , *SOCIAL support , *INTERNET service providers , *SPEECH therapy , *VIDEO recording - Abstract
Background: COVID‐19 necessitated emergency telepractice for student‐led speech‐language therapy clinical practicals in training institutions, with limited preparation and evidence‐based guidelines. Beyond the pandemic, practitioners and university training sites are likely to continue to offer telepractice necessitating thorough preparation for telepractice services underpinned by a comprehensive understanding of the complexities involved in online therapy. Aims: Adopting realist evaluation principles, our aim in this paper was to explore broadly what works and does not work in a set of student‐led telepractice sessions in a diverse, resource‐limited context. The broader goal of this project was to provide evidence‐based support to enhance the efficiency and success of telepractice sessions in student clinical training contexts. Methods & Procedures: We used qualitative observational methods with reflexive thematic analysis to analyse 28 video recordings and 61 observation notes of student‐led paediatric telepractice sessions from a South African university clinic as part of a pilot study. Outcomes & Results: We identified four overarching considerations for student‐led telepractice: (1) additional, specific preparation is required, (2) with greater management of technology and adaptation of tasks, especially during times of poor connectivity; (3) telepractice relies heavily on caregiver input and collaboration; and (4) promoting engagement online, holding a client's attention, building rapport and offering reinforcement are critical skills that are complicated by the lack of face‐to‐face contact. Conclusions & Implications: Our findings indicate that telepractice pedagogy needs to be explicitly taught and students require practical assistance as they learn how to use this service delivery approach effectively. There are some aspects peculiar to telepractice that require unique consideration and planning, especially in contexts where service providers and users may be unfamiliar with this form of service provision. The findings of this pilot study can be used by clinical educators and student clinicians to enhance clinical training opportunities involving telepractice. WHAT THIS PAPER ADDS: What is already known on this subject: Many speech‐language therapy (SLT) student clinicians had to transition quickly to telepractice service provision during COVID‐19 with limited existing guidelines and support, especially in contexts where teletherapy is typically non‐existent or difficult to access. Although there is some literature available on experiences of telepractice, there is very little evidence‐based research which explores the mechanics of such sessions in real‐time and which offers practical support to student clinicians and clinical educators engaging in this mode of service delivery. What this study adds: This pilot study examined video‐recorded, student‐led, paediatric, speech‐language teletherapy sessions to understand challenges and considerations involved in using telepractice as a clinical training tool. Findings show that additional preparation for telepractice sessions is required, particularly in contexts of poor digital literacy; students must learn to manage technology, especially when connectivity poses a challenge, and adapt therapy tasks for online work with clients; telepractice relies heavily on caregiver input and collaboration, more so than in in‐person consultations, and this relationship requires careful management; and promoting engagement online, holding a client's attention, building rapport and offering reinforcement are critical yet challenging skills in telepractice. What are the potential or actual clinical implications of this work?: Our findings highlight a need to teach telepractice pedagogy explicitly and support students practically in learning how to provide therapy effectively via this mode of service delivery. Observational methods for studying practices in recorded telepractice sessions can be used as part of a reflective approach to clinical training. Using already available data allowed us to unpack the 'messy reality' of clinical training using telepractice. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Decisional conflict in parents of children with congenital heart defect: Towards development of a model.
- Author
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So, Iris C.
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RESEARCH , *STRUCTURAL equation modeling , *CARDIAC surgery , *STATISTICAL power analysis , *NURSING models , *SOCIAL support , *PARENTS of children with disabilities , *AGE distribution , *MULTIPLE regression analysis , *CONGENITAL heart disease , *SATISFACTION , *INTERVIEWING , *MEDICAL personnel , *QUANTITATIVE research , *CONFLICT (Psychology) , *TREATMENT delay (Medicine) , *QUALITATIVE research , *INCOME , *PATIENTS' families , *URBAN hospitals , *SEVERITY of illness index , *SEX distribution , *CRONBACH'S alpha , *PSYCHOSOCIAL factors , *PATIENT-family relations , *DECISION making , *HOSPITAL nursing staff , *FACTOR analysis , *SOCIAL classes , *DESCRIPTIVE statistics , *QUESTIONNAIRES , *CHI-squared test , *RESEARCH funding , *PSYCHOLOGICAL adaptation , *STATISTICAL correlation , *SOCIAL services , *PHYSICIANS , *THEMATIC analysis , *MARITAL status , *DATA analysis software , *INSURANCE , *CONTROL (Psychology) - Abstract
Aim: This study aimed to develop a model to help parents cope with decisional conflict. Background: Parents of children with congenital heart defect experience decisional conflict when they are uncertain about treatment decisions for their child, which may lead to delay in seeking care or distress over the decision made. Design: Correlational design with model building and data triangulation was used. Methods: Data were collected through surveys and interviews with a consecutive sample of 221 parent respondents from June to December 2018. Structural equation modelling and qualitative data analysis were used. Results: Lower decisional conflict was seen in parents with higher income, more nurse support and physician risk communication. Time delay for surgery was correlated with the child's age, social service coverage, and social support. Decisional conflict mediated the influence of income, nurse support and physician risk communication on satisfaction with decision. Based on model fit parameters, the emerging model is a good and parsimonious model of decisional conflict. The overall theme, 'Deciding for Surgery: What Matters Most', described the processes parents went through in making treatment decisions. Conclusion: Nurses may help parents feel more certain, less conflicted, and more satisfied with their decision by addressing factors including knowledge gaps, personal values, available support, and resource access. Summary statement: What is already known about this topic? Decisional conflict occurs when parents are uncertain of the best action for their child because treatment options entail risks for undesirable outcomes, value compromise, unclear prognosis, or anticipated regret over the decision.Professional support, information, and communication are vital to parents' decision‐making process.Child, parent, and support factors may influence parent treatment decisions in varied paediatric conditions. What this paper adds? Child's age at the time of decision‐making had an effect on the delay in surgery. However, assisting parents to weigh their options and focus on personal values allowed them to make their treatment decision.Low income, costly health services, and bureaucratic processes impeded the timely availment of surgery. Healthcare reforms that provide a system of government funding, streamlined health structure, and social insurance may be looked into.Family support weighed in on the parents' decision to delay surgery for fear of blame or guilt. Providing relevant information enabled parents to make a choice and stand by their decision regardless of the outcome. The implications of this paper: Modelling provides a framework to identify which factors are more important and how they interact to affect decision‐making. It may be used as an approach to find solutions to clinical problems for groups with different diagnoses.Though nursing support, information, and communication are essential, a more holistic family nursing care approach may be considered to assist parents to make appropriate treatment decisions for their child.Familiarity with the healthcare system may equip nurses to aid parents in processing available healthcare funding and dealing with financial uncertainty affecting decisions for their child's treatment. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Older people's views on loneliness during COVID-19 lockdowns.
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Morgan, Tessa, Wiles, Janine, Morgan, Kathryn, Williams, Lisa, Black, Stella, Koh, Anne, Fanueli, Elizabeth, Moeke-Maxwell, Tess, Xu, Jing, Goodwin, Hetty, and Gott, Merryn
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SOCIAL participation , *TOUCH , *FRUSTRATION , *SOCIAL support , *RESEARCH methodology , *MEDICAL care for older people , *NEW Zealanders , *INTERVIEWING , *QUALITATIVE research , *SOCIAL isolation , *LONELINESS , *DESCRIPTIVE statistics , *INTERPERSONAL relations , *RESEARCH funding , *STAY-at-home orders , *THEMATIC analysis , *EMOTIONS , *SOCIAL distancing , *PUBLIC opinion , *COVID-19 pandemic , *CONCEPTS , *NEIGHBORHOOD characteristics , *PSYCHOSOCIAL factors , *MIDDLE age , *OLD age - Abstract
There have been growing concerns that social distancing and stay-at-home mandates have exacerbated loneliness for older people. Empirical evidence about older people's experiences of loneliness and COVID-19 have quantified this phenomena without considering how older people themselves define and understand loneliness. This paper explores how older New Zealanders conceptualized and experienced loneliness under 'lockdown' stay-at-home measures. This multi-methods qualitative study combines data from letters (n = 870) and interviews (n = 44) collected from 914 people aged over 60 and living in Aotearoa, New Zealand during the COVID-19 pandemic. We conducted a reflexive thematic analysis to conceptualise this data. We identify three interconnected ways in which older people conceptualised and experienced loneliness: (1) feeling disconnected relating to lack of emotional closeness to another often resulting from being physically separated from others and not being able to touch; (2) feeling imprisoned relating to separation from preferred identities and activities and was frequently associated with boredom and frustration; and (3) feeling neglected which often related to feeling let down by generalised and idealised forms of support, such as one's neighbourhood and health care system. Older New Zealanders experienced lockdown loneliness in three interconnected ways rather than as a stable and homogenous experience. Māori, Pacific, Asian and New Zealand European older people often discussed loneliness in different ways; attesting to loneliness being a culturally-mediated concept shaped by expectations around desirable social interaction. We conclude the paper with implications for research and policy. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Workforce training needs to address social and emotional wellbeing in home-based Aboriginal and Torres Strait Islander aged care.
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Parrella, Adriana, Zagler, Jonathon, D'Antoine, Matilda, Brodie, Tina, Smith, Kate, Watts, Aunty Martha, Ieremia, Tameeka, Aitken, Graham, Brown, Alex, and Pearson, Odette
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ELDER care , *HOME care services , *RESEARCH funding , *QUALITATIVE research , *DESCRIPTIVE statistics , *JUDGMENT sampling , *TORRES Strait Islanders , *THEMATIC analysis , *RESEARCH methodology , *NEEDS assessment , *SOCIAL support , *DATA analysis software , *LABOR supply , *WELL-being - Abstract
Objective: To explore the training needs of the home care workforce in supporting the social and emotional wellbeing (SEWB) of Aboriginal and Torres Strait Islander peoples receiving aged care services through the Home Care Package (HCP) Program. Methods: A mixed-methods design including (1) a focus group and interview with coordinators of HCP Program services for Aboriginal and Torres Strait Islander peoples across metropolitan and rural South Australia in April and June 2022, and (2) a desktop review of training, professional development opportunities and resources for existing and pre-entry workforce addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care across the Vocational Education Training and higher education sectors in South Australia, the Australian Indigenous HealthInfoNet, the Department of Health and Aged Care website and aged care email alerts between December 2021 and September 2022. Results: Five themes representing workforce training needs were identified: cultural safety, trauma-informed care, case management, compliance with funding rules and preferred formats for training. The desktop review identified a paucity of formal training, professional development and resources within the context of addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care. Conclusions: These findings suggest that ongoing practice-based professional development learning opportunities are needed within organisations to enhance peer-learning and support. These need to be available together with dedicated formal training programs and practical resources on meeting Aboriginal and Torres Strait Islander peoples' SEWB in aged care. What is known about the topic? Supporting social and emotional wellbeing is an important aspect of delivering quality aged care for Aboriginal and Torres Strait Islander peoples. What does this paper add? Insights into workforce training needs which support the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples in home-based aged care. What are the implications for practitioners? Ongoing practice-based learning opportunities, training and resources are needed to enhance peer-learning and support workforce in supporting Aboriginal and Torres Strait Islander peoples' social and emotional wellbeing in aged care. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Interventions to support nurses as second victims of patient safety incidents: A qualitative study of nurse managers' perceptions.
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Järvisalo, Paula, Haatainen, Kaisa, Von Bonsdorff, Monika, Turunen, Hannele, and Härkänen, Marja
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MANAGEMENT styles , *NURSES , *NURSE administrators , *VICTIM psychology , *PATIENT safety , *QUALITATIVE research , *OCCUPATIONAL roles , *HOSPITAL nursing staff , *INTERVIEWING , *CONTENT analysis , *RISK management in business , *DESCRIPTIVE statistics , *JUDGMENT sampling , *THEMATIC analysis , *ATTITUDES of medical personnel , *ADVERSE health care events , *SOCIAL support , *PSYCHOSOCIAL factors , *MEDICAL incident reports - Abstract
Aims: To describe nurse managers' perceptions of interventions to support nurses as second victims of patient safety incidents and to describe the management of interventions and ways to improve them. Design: A qualitative study using interviews. Methods: A purposive sample of nurse managers (n = 16) recruited from three hospital districts in Finland was interviewed in 2021. The data were analysed using elements of inductive and deductive content analysis. Results: The study identified three main categories: (1) Management of second victim support, which contained three sub‐categories related to the nurse manager's role, support received by the nurse manager and challenges of support management; (2) interventions to support second victims included existing interventions and operating models; and (3) improving second victim support, based on the sub‐categories developing practices and developing an open and non‐blaming patient safety culture. Conclusion: Nurse managers play a crucial role in supporting nurses as second victims of patient safety incidents and coordinating additional support. Operating models for managing interventions could facilitate nurse managers' work and ensure adequate support for second victims. The support could be improved by increasing the awareness of the second victim phenomenon. Implications for the Profession and Patient Care: Mitigating the harmful effects of patient safety incidents can improve nurses' well‐being, reduce burden and attrition risks and positively impact patient safety. Impact: Increasing awareness of the second victim phenomenon and coherent operation models would provide equal support for the nurses and facilitate nurse managers' work. Reporting Method: COREQ checklist was used. What does this paper contribute to the wider global clinical community? Nurse managers' role is significant in supporting the second victims and coordinating additional support.Awareness of the second victim phenomenon and coherent operating models can secure adequate support for the nurses and facilitate nurse managers' work. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Experiences of clinical staff who work with patients who self‐harm by ligature: An exploratory survey of inpatient mental health service staff.
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Groves, Samantha, Lascelles, Karen, and Hawton, Keith
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WORK , *CROSS-sectional method , *NURSES , *SCALE analysis (Psychology) , *PERSONNEL management , *QUALITATIVE research , *SUICIDAL ideation , *PSYCHOLOGISTS , *RESEARCH funding , *WORK environment , *QUESTIONNAIRES , *HOSPITAL patients , *LIGATURE (Surgery) , *DESCRIPTIVE statistics , *QUANTITATIVE research , *SELF-mutilation , *ALLIED health personnel , *ATTITUDES of medical personnel , *RESEARCH , *CONCEPTUAL structures , *SUICIDE , *SOCIAL support , *EXPERIENTIAL learning , *SOCIAL stigma , *SENSITIVITY & specificity (Statistics) - Abstract
Accessible Summary: What is known on the subject: Self‐harm by ligature is common within inpatient mental healthcare settings and is a dangerous method of self‐harm. Most fatal and non‐fatal suicidal behaviours in inpatient settings are a result of ligature use.There is a lack of research which has explored the experiences of staff members who work within inpatient settings where patients may self‐harm by ligature. What the paper adds to existing knowledge: Key issues related to self‐harm by ligature reported by staff included (1) understaffing increasing risk of ligature incidents, (2) spreading of self‐harm by ligature within inpatient settings and (3) negative attitudes of staff related to patients who self‐harm by ligature.Working with self‐harm by ligature can have negative impacts on staff's personal (e.g. fear of blame) and professional lives (e.g. increased cautiousness). Many staff members currently feel underprepared by training related to working with self‐harm by ligature, and unsupported after responding to a ligature incident. What are the implications for practice: Training about self‐harm by ligature needs to be improved and be accessible for all inpatient mental healthcare staff. Training should be coproduced, and could include practical components, education on potential reasons for self‐harm, and acknowledgement of the emotional impact on staff.Support for staff members who respond to ligature incidents should be available for all staff members who respond to self‐harm by ligature incidents. Stigma associated with accessing support should be challenged, alongside blame cultures within the workplace. Introduction: Self‐harm by ligature is a common form of self‐harm within inpatient mental health services in England, where most suicides within inpatient settings involve hanging or suffocation. However, little research has examined the experiences of staff members working with this method of self‐harm. Aim: We explored the experiences of clinical staff who work with patients who self‐harm by ligature. Method: A staff survey was developed and disseminated to clinical staff working in inpatient settings in England. Quantitative data were analysed using descriptive statistics, and qualitative data using the framework approach. The study was STROBE checklist compliant. Results: 275 staff members participated. Challenges most frequently reported about working with self‐harm by ligature included understaffing (210, 76.6%), spreading of ligature incidents (198, 72.8%) and negative attitudes held by clinical staff towards such patients (185, 68.5%). Participants' responses indicated that this work could have significant impacts on their professional and personal lives. Staff often reported inadequate training and lack of preparedness, alongside insufficient support opportunities following ligature incidents. Discussion: Staff had a diverse range of professional and personal experiences and identified multiple challenges associated with working with patients who have self‐harmed by ligature. Implications for Practice: There is a need to improve accessibility, format and content of training and support for staff working within inpatient settings where patients may self‐harm by ligature. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Piloting the Mockingbird Family™ in Australia: Experiences of foster carers and agency workers.
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McLaren, Helen, Patmisari, Emi, Jones, Michelle, Skinner, Chris, and Mather, Simone
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JOB involvement , *WORK , *SOCIAL workers , *QUALITATIVE research , *SELF-efficacy , *CONCEPTUAL models , *INTERPROFESSIONAL relations , *RESEARCH funding , *PILOT projects , *INTERVIEWING , *FOSTER home care , *FOSTER parents , *SOCIAL worker attitudes , *DESCRIPTIVE statistics , *CONFIDENCE , *EMOTIONS , *SOCIAL change , *PSYCHOLOGY , *PHENOMENOLOGY , *COMPARATIVE studies , *INTERPERSONAL relations , *ORGANIZATIONAL goals , *SOCIAL support , *PSYCHOSOCIAL factors , *EXPERIENTIAL learning , *CAREGIVER attitudes ,RESEARCH evaluation - Abstract
Given that the number of children and young people needing care keeps rising and fewer people are becoming foster carers, efforts to support carers and workers in foster caring are essential. This paper considers the experiences of carers and foster care agency workers involved in Australia's piloting of the Mockingbird Family. With a view understanding experience, data were collected via focus groups with carers and agency workers (n = 20) involved in piloting, implementation and evaluation. Deductive analysis applied the theory of experience to generate understanding of experience, as both intrinsic and extrinsic dimensions to capture strengths in the Mockingbird Family's foster caring networks. These dimensions of experience included collective passions of carers and workers; experiential change over time; collective experiences as a moving force; and experiences as transformational. Understanding of experience associated with the perceived strengths of the Mockingbird Family, including strategies to promote strong professional relationships between carers and workers, is an important element in strengthening environments of children and young people in care. Safe and stable environments are crucial for wellbeing. [ABSTRACT FROM AUTHOR]
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- 2024
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9. 'We Need to Go Back to Our Schools, and We Need to Make that Change We Wish to See': Empowering Teachers for Disability Inclusion.
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Kelly, Jane, Mckenzie, Judith, Watermeyer, Brian, Vergunst, Richard, Karisa, Amani, and Samuels, Chantal
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TEACHER education , *EMPATHY , *SCHOOL environment , *PROFESSIONAL autonomy , *SELF-efficacy , *OCCUPATIONAL roles , *QUALITATIVE research , *INTERPROFESSIONAL relations , *RESEARCH funding , *WORK environment , *EQUALITY , *DESCRIPTIVE statistics , *PROBLEM solving , *SOCIAL integration , *MOTIVATION (Psychology) , *COLLEGE teacher attitudes , *CONCEPTUAL structures , *PROFESSIONAL employee training , *INDIVIDUAL development , *SOCIAL support , *PEOPLE with disabilities , *PROFESSIONAL competence - Abstract
Despite a sound policy framework, the right of learners with disabilities in South Africa to inclusive and equitable quality education is not being met. A key reason hindering the realisation of this right is that there are very few teacher education programs focused on supporting learners with disabilities. Acknowledging the urgency of teacher education, in this paper we draw on qualitative data from 109 teacher participants and 39 course facilitators of a series of disability inclusion-focused teacher education short courses in the Western Cape province of South Africa. Based on their experience of the courses, we consider how teachers can be empowered to meet the diverse needs of their learners within an inclusive framework. Findings highlight that professional and personal growth facilitated a more empathic understanding of learners and the opportunity to collaborate with others, enabling teachers to find creative ways of solving problems faced in their workplaces. To support teachers in meeting the needs of their learners, teacher training should facilitate active reflection on the role they play in shaping the lives of their learners, and prepare teachers to respond to challenges strategically, taking advantage of the resources available to them within and beyond their school environment. [ABSTRACT FROM AUTHOR]
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- 2024
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10. A kaleidoscope of well-being to authentically represent the voices of children and young people with complex cerebral palsy: a case study series.
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Pickering, Dawn M., Gill, Paul, and Reagon, Carly
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PLAY , *PARENTS , *QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *DRAWING , *CEREBRAL palsy , *DESCRIPTIVE statistics , *EMOTIONS , *JUDGMENT sampling , *NONVERBAL communication , *THEMATIC analysis , *PSYCHOLOGY , *QUALITY of life , *INTENTION , *RESEARCH , *CONCEPTUAL structures , *CASE studies , *THEORY , *COMPARATIVE studies , *SELF advocacy , *SOCIAL support , *WELL-being , *SOCIAL participation , *CHILDREN - Abstract
This paper authentically represents the voices of non-verbal children with cerebral palsy using a case study design. Policy suggests that children should have the right to play and leisure opportunities, however non-verbal children with cerebral palsy have fewer choices. Additionally, children with communication, learning and mobility limitations are usually excluded from research. The aim of this research was to capture the voices of non-verbal children by exploring their well-being impact in terms of their experiences and choices about their level of participation in recreational activities. A qualitative case series study included interviews, observations, photographs and diaries. Where possible, the diaries were completed by both caregivers and children. Data were analysed thematically, and the lens of positioning theory applied. Seven children aged nine to sixteen years participated. The findings showed how equipment, people and environments enabled or hindered the children's participation. The children also advocated as champions for their own well-being. Positioning theory was applied across the data and was adapted offering a way to better understand the children's well-being responses. The findings demonstrate how these children were able to self-advocate, demonstrating their well-being by their intentional behaviours from their level of participation in a recreational activity. The voices of non-ambulant and non-verbal children are underrepresented in the literature. This study offers an innovative approach to highlight their voices using visual data. The images project the narrative about their choices for participation in recreational activities. The proposed kaleidoscope of well-being offers a way to demonstrate the fluctuations in their emotional responses from their participation. Choices for participation in recreational activities remains limited for non-ambulant and non-verbal children with cerebral palsy. Designers and policy makers should consider how equipment and environments can be adapted or created to increase the choices for non-ambulant and non-verbal children with cerebral palsy. Practitioners in health and social care should consider how to listen to the voices of non-verbal and non-ambulant children with cerebral palsy and their parents/guardians and work towards jointly setting participation goals to affirm their strengths. [ABSTRACT FROM AUTHOR]
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- 2024
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11. A Qualitative Investigation of the Experiences of Women with Perinatal Depression and Anxiety during the COVID-19 Pandemic.
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Rokicki, Slawa, Mackie, Thomas I., D'Oria, Robyn, Flores, Mariella, Watson, Ashley, Byatt, Nancy, and Suplee, Patricia
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MEDICAL quality control , *ATTITUDES of mothers , *POSTPARTUM depression , *HEALTH services accessibility , *SOCIAL support , *PSYCHOLOGY of mothers , *RESEARCH methodology , *SELF-evaluation , *PREGNANT women , *MENTAL health , *INTERVIEWING , *EXPERIENCE , *PERINATAL mood & anxiety disorders , *QUALITATIVE research , *DESCRIPTIVE statistics , *RESEARCH funding , *JUDGMENT sampling , *THEMATIC analysis , *DATA analysis software , *COVID-19 pandemic - Abstract
Objectives: The COVID-19 pandemic has had significant impacts on maternal mental health. We explored the lived experiences of women with perinatal depression and anxiety to elucidate their perceptions of how the pandemic influenced their mental health and access to care. Methods: We conducted a qualitative descriptive study using semi-structured interviews. From March to October 2021, purposive sampling was used to recruit a socio-demographically diverse sample of women with self-reported perinatal depression or anxiety who were pregnant or within one year postpartum between March 2020 and October 2021. Interviews were conducted remotely and thematically analyzed. Results: Fourteen women were interviewed. Three major themes arose. Theme 1, Negative impacts of COVID-19 on symptoms of depression and anxiety, described how the pandemic magnified underlying symptoms of depression and anxiety, increased social isolation, generated anxiety due to fears of COVID-19 infection, and caused economic stress. In theme 2, Negative impacts of COVID-19 on access to and quality of health care, women described stressful and isolating delivery experiences, negative psychological impact of partners not being able to participate in their perinatal health care, interruptions and barriers to mental health treatment, and challenges in using telehealth services for mental health care. Theme 3, Positive impacts of COVID-19 on mental health, identified advantages of increased telehealth access and ability to work and study from home. Conclusions for Practice: The COVID-19 pandemic negatively affected women with perinatal depression and anxiety by magnifying underlying symptoms, increasing stress and social isolation, and disrupting access to mental health care. Findings provide support for policies and interventions to prevent and address social isolation, as well as optimization of telehealth services to prevent and address gaps in perinatal mental health treatment. Significance: What is Already Known on this Subject? Quantitative data suggest that the pandemic increased rates of perinatal mental illness. Yet the perspectives of women with perinatal depression and anxiety on how the pandemic affected their mental health and access to care remain underreported. What this Study adds? This paper offers new insight from the lived experience of women with perinatal depression and anxiety on ways the pandemic negatively and positively affected their mental health and access to mental health care. Implications for interventions, policies, and clinical practice are discussed. [ABSTRACT FROM AUTHOR]
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- 2024
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12. A cancer personalised activity and lifestyle tool (CAN‐PAL): A codesign study with patients and healthcare professionals.
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Gale, Nichola, Jones, Una, Rees, Tracy, Hicks, Alexandra, Davies, Janet, Holliday, Samantha, and Hopkinson, Jane
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LIFESTYLES , *CANCER patient psychology , *EXPERIMENTAL design , *SOCIAL support , *FOCUS groups , *RESEARCH methodology , *INDIVIDUALIZED medicine , *INTERVIEWING , *PHYSICAL activity , *HUMAN services programs , *QUALITATIVE research , *DESCRIPTIVE statistics , *RESEARCH funding , *JUDGMENT sampling , *WORLD Wide Web - Abstract
Aims: To codesign a cancer personalised activity and lifestyle tool (CAN‐PAL) based on an existing tool. To help cancer care workers support people affected by cancer to plan and integrate physical activity into lifestyles. Design: Mixed‐methods codesign study. Methods: Phase 1: Focus groups with people affected by cancer (n = 10) or interviews (n = 2) to discuss suitable physical activities and adaptation of the existing tool. Data were recorded, transcribed and analysed thematically. Themes informed the design of the prototype CAN‐PAL and user guide. Phase 2: Healthcare professionals considered the potential use of the CAN‐PAL prototype and completed an online survey including the system usability scale and free text responses. Results: Phase 1: Identified suitable physical activities and four themes were identified including: Capability, benefits, barriers and resources which informed the prototype CAN‐PAL and user guide. Phase 2: The user survey was completed by 12 healthcare professionals. Median (range) system usability scale was 80 (50–95) (best score 100), scores >68 indicate good or better usability. Themes from the free text comments included strengths, amendments, considerations and limitations. Results were used to finalise CAN‐PAL and the user guide. Conclusion: The codesigned CAN‐PAL tool had good usability. Further work is needed to evaluate the impact of CAN‐PAL on activity levels and behaviour in people affected by cancer. Relevance to Clinical Practice: People affected by cancer need support to undertake physical activity. The purpose of CAN‐PAL is to assist cancer care workers to support people affected by cancer to plan and integrate physical activity into lifestyles. Patient or Public Contribution: Public partners considered the findings from Phase 1 and 2 and informed the design of the prototype, final CAN‐PAL and user guide and coauthored the paper. Reporting Method: The study adhered to relevant EQUATOR guidelines; the study was reported according to the COREQ checklist. [ABSTRACT FROM AUTHOR]
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- 2024
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13. How Helpful Is Bystander Intervention? Perspectives of Dating and Sexual Violence Survivors.
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McMahon, Sarah
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COLLEGE students , *RESEARCH , *SOCIAL support , *RESEARCH methodology , *DATING violence , *INTERVIEWING , *GENDER-nonconforming people , *QUALITATIVE research , *SEX crimes , *SOUND recordings , *LGBTQ+ people , *DESCRIPTIVE statistics , *RESEARCH funding , *SOCIAL skills , *THEMATIC analysis , *EMOTIONS - Abstract
While bystander intervention education has demonstrated promise as a strategy to reduce dating and sexual violence (DSV) on campus, little is known about whether survivors on whose behalf the interventions take place find these helpful. This paper uses qualitative, in-depth interviews with 33 DSV survivors to explore their perspectives on bystander intervention. Results indicate that while some interventions were identified as helpful, especially those that provided support to the survivor, many were not helpful enough or even harmful. Further work is needed to understand the consequences of bystander action. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Supporting self-management in women with pre-existing diabetes in pregnancy: a mixed-methods sequential comparative case study.
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Sushko, Katelyn, Strachan, Patricia, Butt, Michelle, Nerenberg, Kara, and Sherifali, Diana
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SOCIAL support , *CONFIDENCE intervals , *SELF-management (Psychology) , *GLYCEMIC control , *RESEARCH methodology , *PREGNANT women , *FISHER exact test , *INTERVIEWING , *MENTAL health , *PATIENTS' attitudes , *COMPARATIVE studies , *T-test (Statistics) , *SELF-efficacy , *RESEARCH funding , *PSYCHOSOCIAL factors , *DESCRIPTIVE statistics , *CHI-squared test , *GESTATIONAL diabetes , *NEEDS assessment , *DATA analysis software , *CONTENT analysis , *PEOPLE with diabetes - Abstract
Introduction: Maternal glycemia is associated with pregnancy outcomes. Thus, supporting the self-management experiences and preferences of pregnant women with type 1 and type 2 diabetes is crucial to optimize glucose control and perinatal outcomes. Research design and methods: This paper describes the mixed methods integration of a sequential comparative case study. The objectives are threefold, as we integrated the quantitative and qualitative data within the overall mixed methods design: (1) to determine the predictors of glycemic control during pregnancy; (2) to understand the experience and diabetes self-management support needs during pregnancy among women with pre-existing diabetes; (3) to assess how self-management and support experiences helpe to explain glycemic control among women with pre-existing diabetes in pregnancy. The purpose of the mixing was to integrate the quantitative and qualitative data to develop rich descriptive cases of how diabetes self-management and support experiences and preferences in women with type 1 and type 2 diabetes during pregnancy help explain glucose control. A narrative approach was used to weave together the statistics and themes and the quantitative results were integrated visually alongside the qualitative themes to display the data integration. Results: The quantitative results found that women achieved "at target" glucose control (mean A1C of the cohort by the third visit: 6.36% [95% Confidence Interval 6.11%, 6.60%]). The qualitative findings revealed that feelings of fear resulted in an isolating and mentally exhausting pregnancy. The quantitative data also indicated that women reported high levels of self-efficacy that increased throughout pregnancy. Qualitative data revealed that women who had worked hard to optimize glycemia during pregnancy were confident in their self-management. However, they lacked support from their healthcare team, particularly around self-management of diabetes during labour and delivery. Conclusions: The achievement of optimal glycemia during pregnancy was motivated by fear of pregnancy complications and came at a cost to women's mental health. Mental health support, allowing women autonomy, and the provision of peer support may improve the experience of diabetes self-management during pregnancy. Future work should focus on developing, evaluating and implementing interventions that support these preferences. [ABSTRACT FROM AUTHOR]
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- 2024
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15. ‘It’s a delicate topic’: Stigma, capabilities and young people’s mental health in post-conflict Colombia.
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Donetto, Sara, Baddan Sochandamandou, Shari Ortiz, Garcia Duran, Maria Camila, Hessel, Philipp, Zimmerman, Annie, Baltra, Ricardo Araya, and Idrobo, Fabio
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SCHOOL environment , *MENTAL health , *RESEARCH funding , *QUALITATIVE research , *MENTAL health services , *CONFLICT (Psychology) , *INTERVIEWING , *HELP-seeking behavior , *DESCRIPTIVE statistics , *THEMATIC analysis , *RESEARCH methodology , *SOCIAL support , *SOCIAL stigma , *PSYCHOLOGICAL vulnerability , *WELL-being , *PSYCHOSOCIAL factors - Abstract
Young people in Colombia present high rates of mental health problems, to which the country’s history of armed internal conflict contributes in complex ways. Mental health services in Colombia are fragmented, inadequate, and difficult to access for many. Young people’s help)seeking is often hindered by mental health stigma and/or poor experiences with services. This paper presents a thematic analysis of qualitative data from a mixed-methods study aimed at developing and testing a mental health intervention for Colombian youths. We draw upon theoretical lenses from scholarly work on stigma and Sen’s ‘capabilities approach’ to inform our analysis of interviews and group discussions with staff and young people involved in the state-funded human capital building programme ‘Jovenes en Acción’ (JeA). By illustrating how study participants talked about stigma, vulnerability, mental health services organisation, and the challenges of discussing mental health topics in a learning environment, we illuminate aspects of mental health support and anti-stigma interventions that might need enhancing. In particular, we suggest that more emphasis on ‘community competencies’ as complementary to and interrelated with individual competencies would strengthen young people’s individual and collective resources for mental wellbeing while being in line with the sociocritical principles of existing human capital-enhancing programmes. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Making Techno-Economic Rationality Work: Tensions in Technology-Enabled Social Service Evaluations.
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Hasselblad, Annika, Zimic, Sheila, and Sundberg, Leif
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CORPORATE culture , *DECISION support systems , *SOCIAL workers , *QUALITATIVE research , *FOCUS groups , *MANAGEMENT information systems , *OCCUPATIONAL roles , *SOCIAL services , *INTERVIEWING , *REFLECTION (Philosophy) , *INFORMATION storage & retrieval systems , *DESCRIPTIVE statistics , *PROFESSIONS , *SOUND recordings , *TECHNOLOGY , *RESEARCH methodology , *RESEARCH , *TRUST , *QUALITY assurance , *SOCIAL support , *PUBLIC welfare , *PRACTICAL politics , *GROUNDED theory , *MANAGEMENT , *CONFLICT management ,SOCIAL service associations - Abstract
Contemporary welfare organizations engage in various evaluation practices to assess the quality of their services. In this paper we report a qualitative exploration of how technology-enabled evaluations are understood by organizational members who participate in quality assurance activities in Swedish social services. The study contributes to critical information systems literature, focusing on the tensions professionals experience in relation to the digital systems they use for evaluations. For example, "quantities" take precedence over the qualities of such work, as information systems constrain ambitions to realize knowledge-based social services. The results reveal three tensions in professionals' evaluation-related activities arising from conflicting uses or desires. One is between desires for flexible systems that enable reflection and standardized digital support systems. Another is between uses or desires for indicators that are meaningful at the operational level and for general, comparable measures at the management level. The third is between desires to use evaluation procedures for learning and control. The study contributes to both theory and practice related to technology-enabled evaluation of welfare services, and critical perspectives on information systems. [ABSTRACT FROM AUTHOR]
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- 2024
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