6 results
Search Results
2. Decisional conflict in parents of children with congenital heart defect: Towards development of a model.
- Author
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So, Iris C.
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RESEARCH , *STRUCTURAL equation modeling , *CARDIAC surgery , *STATISTICAL power analysis , *NURSING models , *SOCIAL support , *PARENTS of children with disabilities , *AGE distribution , *MULTIPLE regression analysis , *CONGENITAL heart disease , *SATISFACTION , *INTERVIEWING , *MEDICAL personnel , *QUANTITATIVE research , *CONFLICT (Psychology) , *TREATMENT delay (Medicine) , *QUALITATIVE research , *INCOME , *PATIENTS' families , *URBAN hospitals , *SEVERITY of illness index , *SEX distribution , *CRONBACH'S alpha , *PSYCHOSOCIAL factors , *PATIENT-family relations , *DECISION making , *HOSPITAL nursing staff , *FACTOR analysis , *SOCIAL classes , *DESCRIPTIVE statistics , *QUESTIONNAIRES , *CHI-squared test , *RESEARCH funding , *PSYCHOLOGICAL adaptation , *STATISTICAL correlation , *SOCIAL services , *PHYSICIANS , *THEMATIC analysis , *MARITAL status , *DATA analysis software , *INSURANCE , *CONTROL (Psychology) - Abstract
Aim: This study aimed to develop a model to help parents cope with decisional conflict. Background: Parents of children with congenital heart defect experience decisional conflict when they are uncertain about treatment decisions for their child, which may lead to delay in seeking care or distress over the decision made. Design: Correlational design with model building and data triangulation was used. Methods: Data were collected through surveys and interviews with a consecutive sample of 221 parent respondents from June to December 2018. Structural equation modelling and qualitative data analysis were used. Results: Lower decisional conflict was seen in parents with higher income, more nurse support and physician risk communication. Time delay for surgery was correlated with the child's age, social service coverage, and social support. Decisional conflict mediated the influence of income, nurse support and physician risk communication on satisfaction with decision. Based on model fit parameters, the emerging model is a good and parsimonious model of decisional conflict. The overall theme, 'Deciding for Surgery: What Matters Most', described the processes parents went through in making treatment decisions. Conclusion: Nurses may help parents feel more certain, less conflicted, and more satisfied with their decision by addressing factors including knowledge gaps, personal values, available support, and resource access. Summary statement: What is already known about this topic? Decisional conflict occurs when parents are uncertain of the best action for their child because treatment options entail risks for undesirable outcomes, value compromise, unclear prognosis, or anticipated regret over the decision.Professional support, information, and communication are vital to parents' decision‐making process.Child, parent, and support factors may influence parent treatment decisions in varied paediatric conditions. What this paper adds? Child's age at the time of decision‐making had an effect on the delay in surgery. However, assisting parents to weigh their options and focus on personal values allowed them to make their treatment decision.Low income, costly health services, and bureaucratic processes impeded the timely availment of surgery. Healthcare reforms that provide a system of government funding, streamlined health structure, and social insurance may be looked into.Family support weighed in on the parents' decision to delay surgery for fear of blame or guilt. Providing relevant information enabled parents to make a choice and stand by their decision regardless of the outcome. The implications of this paper: Modelling provides a framework to identify which factors are more important and how they interact to affect decision‐making. It may be used as an approach to find solutions to clinical problems for groups with different diagnoses.Though nursing support, information, and communication are essential, a more holistic family nursing care approach may be considered to assist parents to make appropriate treatment decisions for their child.Familiarity with the healthcare system may equip nurses to aid parents in processing available healthcare funding and dealing with financial uncertainty affecting decisions for their child's treatment. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
3. Family Caregivers as Employers of Migrant Live-In Care Workers: Experiences and Policy Implications.
- Author
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Arieli, Daniella and Halevi Hochwald, Inbal
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FAMILIES & psychology , *ELDER care , *POLICY sciences , *QUALITATIVE research , *INTERVIEWING , *CONTENT analysis , *DESCRIPTIVE statistics , *FAMILY attitudes , *THEMATIC analysis , *MIGRANT labor , *RESEARCH methodology , *TRUST , *COGNITION disorders , *PSYCHOLOGY of caregivers , *PHENOMENOLOGY , *SOCIAL support , *DATA analysis software , *PSYCHOSOCIAL factors , *INDUSTRIAL relations , *CAREGIVER attitudes - Abstract
As policymakers globally recognize aging in place as the preferred option for most adults, there is a growing need to supplement family or informal caregiving for frail older adults with formal homecare services, particularly for those who require 24/7 care due to significant physical and/or cognitive impairment. The core objective of this qualitative study was to explore family members' experiences in employing live-in care workers, particularly the nature of their engagement and the quality of their relationships with these care workers. Our analysis of semi-structured interviews with 35 family caregivers revealed four themes: 1) challenges in acquiring support and developing dependency; 2) negotiation of roles, responsibilities, and moral dilemmas; 3) shifting emotions between trust and suspicion; and 4) role confusion, expectations, and disappointments. The study suggests that families might benefit from formal guidance regarding fostering and maintaining positive relationships in the homecare environment. This paper provides nuanced knowledge that may inform the development of such interventions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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4. Workforce training needs to address social and emotional wellbeing in home-based Aboriginal and Torres Strait Islander aged care.
- Author
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Parrella, Adriana, Zagler, Jonathon, D'Antoine, Matilda, Brodie, Tina, Smith, Kate, Watts, Aunty Martha, Ieremia, Tameeka, Aitken, Graham, Brown, Alex, and Pearson, Odette
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ELDER care , *HOME care services , *RESEARCH funding , *QUALITATIVE research , *DESCRIPTIVE statistics , *JUDGMENT sampling , *TORRES Strait Islanders , *THEMATIC analysis , *RESEARCH methodology , *NEEDS assessment , *SOCIAL support , *DATA analysis software , *LABOR supply , *WELL-being - Abstract
Objective: To explore the training needs of the home care workforce in supporting the social and emotional wellbeing (SEWB) of Aboriginal and Torres Strait Islander peoples receiving aged care services through the Home Care Package (HCP) Program. Methods: A mixed-methods design including (1) a focus group and interview with coordinators of HCP Program services for Aboriginal and Torres Strait Islander peoples across metropolitan and rural South Australia in April and June 2022, and (2) a desktop review of training, professional development opportunities and resources for existing and pre-entry workforce addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care across the Vocational Education Training and higher education sectors in South Australia, the Australian Indigenous HealthInfoNet, the Department of Health and Aged Care website and aged care email alerts between December 2021 and September 2022. Results: Five themes representing workforce training needs were identified: cultural safety, trauma-informed care, case management, compliance with funding rules and preferred formats for training. The desktop review identified a paucity of formal training, professional development and resources within the context of addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care. Conclusions: These findings suggest that ongoing practice-based professional development learning opportunities are needed within organisations to enhance peer-learning and support. These need to be available together with dedicated formal training programs and practical resources on meeting Aboriginal and Torres Strait Islander peoples' SEWB in aged care. What is known about the topic? Supporting social and emotional wellbeing is an important aspect of delivering quality aged care for Aboriginal and Torres Strait Islander peoples. What does this paper add? Insights into workforce training needs which support the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples in home-based aged care. What are the implications for practitioners? Ongoing practice-based learning opportunities, training and resources are needed to enhance peer-learning and support workforce in supporting Aboriginal and Torres Strait Islander peoples' social and emotional wellbeing in aged care. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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5. A Qualitative Investigation of the Experiences of Women with Perinatal Depression and Anxiety during the COVID-19 Pandemic.
- Author
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Rokicki, Slawa, Mackie, Thomas I., D'Oria, Robyn, Flores, Mariella, Watson, Ashley, Byatt, Nancy, and Suplee, Patricia
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MEDICAL quality control , *ATTITUDES of mothers , *POSTPARTUM depression , *HEALTH services accessibility , *SOCIAL support , *PSYCHOLOGY of mothers , *RESEARCH methodology , *SELF-evaluation , *PREGNANT women , *MENTAL health , *INTERVIEWING , *EXPERIENCE , *PERINATAL mood & anxiety disorders , *QUALITATIVE research , *DESCRIPTIVE statistics , *RESEARCH funding , *JUDGMENT sampling , *THEMATIC analysis , *DATA analysis software , *COVID-19 pandemic - Abstract
Objectives: The COVID-19 pandemic has had significant impacts on maternal mental health. We explored the lived experiences of women with perinatal depression and anxiety to elucidate their perceptions of how the pandemic influenced their mental health and access to care. Methods: We conducted a qualitative descriptive study using semi-structured interviews. From March to October 2021, purposive sampling was used to recruit a socio-demographically diverse sample of women with self-reported perinatal depression or anxiety who were pregnant or within one year postpartum between March 2020 and October 2021. Interviews were conducted remotely and thematically analyzed. Results: Fourteen women were interviewed. Three major themes arose. Theme 1, Negative impacts of COVID-19 on symptoms of depression and anxiety, described how the pandemic magnified underlying symptoms of depression and anxiety, increased social isolation, generated anxiety due to fears of COVID-19 infection, and caused economic stress. In theme 2, Negative impacts of COVID-19 on access to and quality of health care, women described stressful and isolating delivery experiences, negative psychological impact of partners not being able to participate in their perinatal health care, interruptions and barriers to mental health treatment, and challenges in using telehealth services for mental health care. Theme 3, Positive impacts of COVID-19 on mental health, identified advantages of increased telehealth access and ability to work and study from home. Conclusions for Practice: The COVID-19 pandemic negatively affected women with perinatal depression and anxiety by magnifying underlying symptoms, increasing stress and social isolation, and disrupting access to mental health care. Findings provide support for policies and interventions to prevent and address social isolation, as well as optimization of telehealth services to prevent and address gaps in perinatal mental health treatment. Significance: What is Already Known on this Subject? Quantitative data suggest that the pandemic increased rates of perinatal mental illness. Yet the perspectives of women with perinatal depression and anxiety on how the pandemic affected their mental health and access to care remain underreported. What this Study adds? This paper offers new insight from the lived experience of women with perinatal depression and anxiety on ways the pandemic negatively and positively affected their mental health and access to mental health care. Implications for interventions, policies, and clinical practice are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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6. Supporting self-management in women with pre-existing diabetes in pregnancy: a mixed-methods sequential comparative case study.
- Author
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Sushko, Katelyn, Strachan, Patricia, Butt, Michelle, Nerenberg, Kara, and Sherifali, Diana
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SOCIAL support , *CONFIDENCE intervals , *SELF-management (Psychology) , *GLYCEMIC control , *RESEARCH methodology , *PREGNANT women , *FISHER exact test , *INTERVIEWING , *MENTAL health , *PATIENTS' attitudes , *COMPARATIVE studies , *T-test (Statistics) , *SELF-efficacy , *RESEARCH funding , *PSYCHOSOCIAL factors , *DESCRIPTIVE statistics , *CHI-squared test , *GESTATIONAL diabetes , *NEEDS assessment , *DATA analysis software , *CONTENT analysis , *PEOPLE with diabetes - Abstract
Introduction: Maternal glycemia is associated with pregnancy outcomes. Thus, supporting the self-management experiences and preferences of pregnant women with type 1 and type 2 diabetes is crucial to optimize glucose control and perinatal outcomes. Research design and methods: This paper describes the mixed methods integration of a sequential comparative case study. The objectives are threefold, as we integrated the quantitative and qualitative data within the overall mixed methods design: (1) to determine the predictors of glycemic control during pregnancy; (2) to understand the experience and diabetes self-management support needs during pregnancy among women with pre-existing diabetes; (3) to assess how self-management and support experiences helpe to explain glycemic control among women with pre-existing diabetes in pregnancy. The purpose of the mixing was to integrate the quantitative and qualitative data to develop rich descriptive cases of how diabetes self-management and support experiences and preferences in women with type 1 and type 2 diabetes during pregnancy help explain glucose control. A narrative approach was used to weave together the statistics and themes and the quantitative results were integrated visually alongside the qualitative themes to display the data integration. Results: The quantitative results found that women achieved "at target" glucose control (mean A1C of the cohort by the third visit: 6.36% [95% Confidence Interval 6.11%, 6.60%]). The qualitative findings revealed that feelings of fear resulted in an isolating and mentally exhausting pregnancy. The quantitative data also indicated that women reported high levels of self-efficacy that increased throughout pregnancy. Qualitative data revealed that women who had worked hard to optimize glycemia during pregnancy were confident in their self-management. However, they lacked support from their healthcare team, particularly around self-management of diabetes during labour and delivery. Conclusions: The achievement of optimal glycemia during pregnancy was motivated by fear of pregnancy complications and came at a cost to women's mental health. Mental health support, allowing women autonomy, and the provision of peer support may improve the experience of diabetes self-management during pregnancy. Future work should focus on developing, evaluating and implementing interventions that support these preferences. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
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