554 results
Search Results
2. Palliative Care in Rural Communities.
- Author
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Fasolino T, Mayfield ME, Valentine K, Rosa WE, and Koci A
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- Humans, United States, Rural Population, Palliative Care, Rural Health Services organization & administration, Health Services Accessibility
- Abstract
Abstract: Rural communities in the United States are frequently marginalized and misrepresented. These communities face unique challenges, such as limited access to health care, nutritious food, and clean water, that contribute to persistent health disparities. This article presents the CARE (Complex, Access, Resourceful, Extraordinary) framework, which illustrates the dichotomy of rurality-its negative and positive aspects-in order to inform the development of palliative care delivery in rural settings. Various palliative care models are described that address access gaps, bolster provider capacity, and increase the provision of specialty palliative care. However, workforce shortages and reimbursement structures restrict the expansion of these services. Nurses, the largest segment of the health care workforce and the most trusted professionals, must partner with interdisciplinary colleagues and rural communities to advocate for equitable and inclusive care., (Copyright © 2024 Wolters Kluwer Health, Inc. All rights reserved.)
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- 2024
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3. Joint effects of Medicaid eligibility and fees on recession-linked declines in healthcare access and health status.
- Author
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Benitez J, Callison K, and Adams EK
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- United States, Humans, Medicare economics, Medicaid economics, Health Services Accessibility economics, Economic Recession, Eligibility Determination, Health Status, Insurance Coverage economics, Unemployment
- Abstract
Whether Medicaid can function as a safety net to offset health risks created by health insurance coverage losses due to job loss is conditional on (1) the eligibility guidelines shaping the pathway for households to access the program for temporary relief, and (2) Medicaid reimbursement policies affecting the value of the program for both the newly and previously enrolled. We find states with more expansive eligibility guidelines lowered the healthcare access and health risk of coverage loss associated with rising unemployment during the 2007-2009 Great Recession. Rises in cost-related barriers to care associated with unemployment were smallest in states with expansive eligibility guidelines and higher Medicaid-to-Medicare fee ratios. Similarly, states whose Medicaid programs had expansive eligibility guidelines and higher fees saw the smallest recession-linked declines in self-reported good health. Medicaid can work to stabilize access to health care during periods of joblessness. Our findings yield important insights into the alignment of at least two Medicaid policies (i.e., eligibility and payment) shaping Medicaid's viability as a safety net., (© 2024 John Wiley & Sons Ltd.)
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- 2024
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4. Disparities in Overdose Deaths: Looking Back at Larochelle and Colleagues' 2021 Paper.
- Author
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Volkow, Nora D., Han, Beth, and Chandler, Redonna K.
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- *
SUBSTANCE abuse treatment , *DRUG overdose , *RISK assessment , *HEALTH services accessibility , *MEDICAL quality control , *OPIOID abuse , *OPIOID analgesics , *HEALTH equity , *NALOXONE - Abstract
The article discusses an article by M. R. Larochelle and colleagues about disparities in overdose deaths. Topics include reason that the opioid overdose crisis most heavily affected non-Hispanic White people, major events that could not have been predicted at the time the article by Larochelle and colleagues was written, and lessons learned about the need for timely data on drug use patterns and overdoses to guide interventions.
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- 2024
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5. The impact of the 2014 Medicaid expansion on the health, health care access, and financial well-being of low-income young adults.
- Author
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Hamilton C
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- Humans, United States, Female, Male, Adult, Young Adult, Health Status, Insurance, Health, Health Services Accessibility, Medicaid, Patient Protection and Affordable Care Act, Poverty, Insurance Coverage statistics & numerical data
- Abstract
Prior to the 2014 Affordable Care Act (ACA) expansion, 37% of young adults ages 19-25 in the United States were low-income and a third lacked health insurance coverage-both the highest rates for any age group in the population. The ACA's Medicaid eligibility expansion, therefore, would have been significantly beneficial to low-income young adults. This study evaluates the effect of the ACA Medicaid expansion on the health, health care access and utilization, and financial well-being of low-income young adults ages 19-25. Using 2010-2017 National Health Interview Survey data, I estimate policy effects by applying a difference-in-differences design leveraging the variation in state implementation of the expansion policy. I show that Medicaid expansion improved health insurance coverage, health care access, and financial well-being for low-income young adults in expansion states, but had no effect on their health status and health care utilization. I also find that the policy was associated with larger gains in health coverage for racial minorities relative to their Non-Hispanic White counterparts. With the continued health policy reform debates at the state and federal levels, the empirical evidence from this study can help inform policy decisions that aim to improve health care access and utilization among disadvantaged groups., (© 2024 John Wiley & Sons Ltd.)
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- 2024
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6. Over-the-counter access to hormonal contraception: a global perspective.
- Author
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Otto AK, Klein DA, Lau M, Dhar CP, and Hwang LY
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- Humans, Adolescent, Female, United States, Global Health, United Kingdom, Contraceptives, Oral, Hormonal supply & distribution, Hormonal Contraception, Nonprescription Drugs supply & distribution, Nonprescription Drugs economics, Health Services Accessibility
- Abstract
Purpose of Review: Oral contraceptive pills are among the most popular contraceptives worldwide, including among adolescents, and are available over the counter in over 100 countries. However, when a prescription is required, oral contraceptives may be difficult to obtain, particularly for adolescents. Recent approvals of over-the-counter progestin-only pills in the United Kingdom and United States have brought widespread attention to this topic., Recent Findings: Progestin-only pills, including the norgestrel pill recently approved for over-the-counter use in the United States, are highly effective and may be used safely without a prescription or medical monitoring, including by adolescents. These pills are associated with relatively high user satisfaction. Although over-the-counter availability may improve contraceptive access overall, issues related to insurance coverage and out-of-pocket cost may continue to pose practical barriers to access for many individuals., Summary: Over-the-counter oral contraceptives are an appropriate and important contraceptive option for many adolescents. Over-the-counter availability has the potential to increase access to safe and effective contraception in the United States, United Kingdom, and other countries where a prescription is currently required. Future research on use patterns among adolescents is needed, as are advocacy efforts and policies to ensure access and affordability., (Copyright © 2024 Wolters Kluwer Health, Inc. All rights reserved.)
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- 2024
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7. Did Medicaid Reimbursements Shape the Effects of Medicaid Expansion on Access to Health Care Among the Low-Income Population?
- Author
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Benitez J, Freed SS, Huang H, and Oladele T
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- Humans, United States, Adult, Middle Aged, Female, Male, Young Adult, Insurance Coverage economics, Insurance Coverage statistics & numerical data, Patient Protection and Affordable Care Act economics, Insurance, Health, Reimbursement economics, Behavioral Risk Factor Surveillance System, Medicaid economics, Medicaid statistics & numerical data, Health Services Accessibility economics, Health Services Accessibility statistics & numerical data, Poverty economics
- Abstract
Background: Whether variation in Medicaid reimbursement fees influenced the impacts of the Medicaid expansions is not well understood., Objective: We examine whether changes in health care access associated with Medicaid expansion are different in states with comparatively high Medicaid reimbursement rates compared against expanding in states with lower Medicaid reimbursement rates., Design: Using a difference-in-difference-in-difference (DDD or triple-difference) regression approach, we compare relative differences in Medicaid expansion effects between lower and higher reimbursement states., Participants: 512,744 low-income adults aged 20-64 in the 2011-2019 Behavioral Risk Factor Surveillance System., Main Measures: Health insurance coverage status, unmet medical needs due to cost, regular source for health care, and a regular/scheduled checkup within the past year., Key Results: Medicaid expansion has significant and positive impacts on health coverage and access in both high- and low-fee states. In states with fee levels above the median Medicare-to-Medicaid ratios, expanding Medicaid eligibility reduced uninsurance rate by 15.2 percentage point (ppt, p < 0.01), shrank the cost-associated unmet medical need by 10.3 ppt (p < 0.01), improved access to usual source of care by 1.9 ppt (p < 0.1), and increased regular checkup by 14.4 ppt (p < 0.01), while such effects in low-fee states were 11.7 ppt (p < 0.01), 8.3 ppt (p < 0.01), 3.1 ppt (p < 0.1), and 12.3 ppt (p < 0.01), respectively. Our results suggest that Medicaid expansion effect on unmet medical need due to cost in higher-reimbursing states was 2.98 ppt (p < 0.05) larger than in lower-reimbursing states. Evidence suggests modest increases in health care access were more strongly associated with expansions in higher-fee states., Conclusions: Medicaid's fee structure should be considered as a factor influencing large-scale coverage expansions., (© 2024. The Author(s), under exclusive licence to Society of General Internal Medicine.)
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- 2024
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8. Prenatal and postpartum care during the COVID-19 pandemic: An increase in barriers from early to mid-pandemic in the United States.
- Author
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Diamond-Smith N, Logan R, Adler A, Gutierrez S, Marshall C, and Kerns JL
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- Humans, Female, Pregnancy, United States epidemiology, Adult, Socioeconomic Factors, Cross-Sectional Studies, Young Adult, SARS-CoV-2, COVID-19 epidemiology, Prenatal Care, Postnatal Care, Health Services Accessibility
- Abstract
Background: The COVID-19 pandemic led to changes in the provision of pregnancy and postpartum care. The purpose of this study was to describe changes in access to prenatal and postpartum care over time, from early in the pandemic (July 2020) to mid-pandemic (January 2021) and to explore socioeconomic and COVID-19-related economic factors associated with experiencing barriers to care., Methods: We recruited two cross sections of women and birthing people in the US in July 2020 (N = 4645) and January 2021 (N = 3343) using Facebook and Instagram Ads., Results: Three out of four women in the prenatal period and four out of five women in the postpartum period reported barriers to scheduling a visit. The likelihood of not having a visit (OR = 4.44, 95% CI 2.67-7.40), being unable to schedule a visit (OR = 2.73, 95% CI 1.71-4.35), and not being offered visits (OR = 4.26, 95% CI 2.32-7.81) increased over time. Participants were more likely to report barriers attending scheduled prenatal or postpartum appointments over time (OR = 2.72, 95% CI 2.14-3.45). Women who experienced more economic impacts from COVID-19 were older, less educated, and were Black, Indigenous, or a person of color, and were more likely to have barriers to attending appointments., Conclusions: Certain subgroups are more at risk during COVID-19, and around 9 months into the pandemic, women were not only still facing barriers to care, but these had been amplified. Additional research using other data sources is needed to identify and ameliorate barriers and inequalities in access to prenatal and postpartum care that appear to have persisted throughout the pandemic., (© 2023 The Authors. Birth published by Wiley Periodicals LLC.)
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- 2024
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9. Principles for Ending Human Immunodeficiency Virus as an Epidemic in the United States: A Policy Paper of the Infectious Diseases Society of America and the HIV Medical Association.
- Author
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Person, Anna K, Armstrong, Wendy S, Evans, Tyler, Fangman, John J W, Goldstein, Robert H, Haddad, Marwan, Jain, Mamta K, Keeshin, Susana, Tookes, Hansel E, Weddle, Andrea L, and Feinberg, Judith
- Subjects
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HIV infection epidemiology , *HIV prevention , *HEALTH services accessibility , *MEDICAL care , *HEALTH care reform , *QUALITY of life , *MEDICAL societies - Abstract
While we have the tools to achieve this goal, the persistent barriers to healthcare services experienced by too many individuals will need to be addressed to make significant progress and improve the health and quality of life of all people with human immunodeficiency virus (HIV). The necessary structural changes require actions by federal, state, and local policymakers and range from ensuring universal access to healthcare services to optimizing care delivery to ensuring a robust and diverse infectious diseases and HIV workforce. In this article, we outlines 10 key principles for policy reforms that, if advanced, would make ending the HIV epidemic in the United States possible and could have much more far-reaching effects in improving the health of our nation. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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10. Rural-urban differences in access to care among children and adolescents in the United States.
- Author
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Crouch E, Hung P, Benavidez G, Giannouchos T, and Brown MJ
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- Child, United States, Humans, Adolescent, Cross-Sectional Studies, Poverty, Logistic Models, Insurance, Health, Health Services Accessibility, Child Health Services
- Abstract
Purpose: Rural children and adolescents face disproportionate challenges in access to health care services than their urban counterparts. Yet, recent evidence on disparities in access to health care between rural and urban children and adolescents has been limited. This study examines the associations of residence location with receipt of preventive care, foregone medical care, and continuity of insurance coverage among US children and adolescents., Methods: This study used cross-sectional data from the 2019 to 2020 National Survey of Children's Health, with a final sample size of 44,679 children. Descriptive statistics, bivariate analyses, and multivariable logistic regression models were used to examine the differences in preventive care, foregone care, and continuity of insurance coverage between rural and urban children and adolescents., Findings: Rural children had lower odds of receiving preventive care (aOR 0.64; 95% CI 0.56-0.74) and having continuous health insurance coverage (aOR 0.68; 95% CI 0.56-0.83) compared to urban children. The odds of foregone care were similar between rural and urban children. Children at every federal poverty level (FPL) less than 400% were less likely to receive preventive care, and more likely to forego care than children residing at 400% or above FPL., Conclusions: Rural disparities in child preventive care and insurance continuity warrant ongoing surveillance and local access to care initiatives, especially for children in low-income households. Without updated public health surveillance, policymakers and program developers may not be aware of current disparities. School-based health centers are 1 avenue for meeting the unmet health care needs of rural children., (© 2023 National Rural Health Association.)
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- 2024
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11. Twenty-five years of the Medicare Rural Hospital Flexibility Program: The past as prologue.
- Author
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Gale JA
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- Aged, Humans, United States, Adult, Medicare, Health Services Accessibility, Hospitals, Rural
- Abstract
Purpose: The Medicare Rural Hospital Flexibility (Flex) Program and the Critical Access Hospital (CAH) provider type are now 25 years old. Since the inception of the program, the needs of CAHs have evolved greatly. This article describes the history of the limited-service hospital model that led to the creation of CAHs, the evolution and impact of the Flex Program on CAHs, and the trends likely to impact CAHs and rural healthcare in the future. It concludes with recommendations to address these future needs., Methods: This review of the 25-year history of the Flex Program and CAHs is based on a detailed analysis of the literature on the limited-service hospital model and CAHs, the evaluation reports of the Flex Tracking and Flex Monitoring Teams, and the author's 25-year history with the program., Findings: The Flex Program has made important contributions to the viability of rural hospitals through the conversion of 1,360 CAHs. The program has encouraged attention on CAH quality of care and the role of CAHs in addressing the population health needs of their communities. It has further encouraged the development of a robust rural health policy and advocacy infrastructure that has heightened attention on the needs of rural providers and communities., Conclusions: The needs of CAHs and rural delivery systems have evolved greatly since the implementation of the Flex Program. The 25th anniversary of the program is an ideal time to re-evaluate and update the program to support CAHs in adapting to the fast-changing healthcare environment., (© 2023 National Rural Health Association.)
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- 2023
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12. Recommendations to improve maternal health equity among Black women in "The South": A position paper from the SNRS minority health research interest & implementation group.
- Author
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Eapen, Doncy, Mbango, Catherine, Daniels, Glenda, Mathew Joseph, Nitha, Mary, Annapoorna, Mathews, Nisha, Carr, Kathryn Kravetz, Wells, Cheryl, Suriaga, Armiel, and Saint Fleur, Angeline
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MATERNAL health services ,MEDICAL quality control ,HEALTH services accessibility ,MINORITIES ,BLACK people ,WOMEN ,QUALITY assurance ,NURSING research ,PREGNANCY complications ,HEALTH care teams ,PROFESSIONAL associations ,MATERNAL mortality - Abstract
Black women in the United States experience a higher maternal mortality rate compared to other racial groups. The maternal mortality rate among non‐Hispanic Black women is 3.5 times that of non‐Hispanic White women and is higher in the South compared to other regions. The majority of pregnancy‐related deaths in Black women are deemed to be preventable. Healthy People 2030 directs healthcare providers to advance health equity through societal efforts to address avoidable inequalities, historical and contemporary injustices, and the elimination of health and healthcare disparities. The Southern Nursing Research Society has put forward this position paper to provide recommendations to improve maternal health equity among Black women. Recommendations for nurses, multidisciplinary healthcare providers, policymakers, and researchers are discussed. [ABSTRACT FROM AUTHOR]
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- 2023
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13. Medical journal's refusal to retract paper used to restrict abortion in US sparks independence row.
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Davies, Madlen
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ABORTION laws ,ABORTION in the United States ,HEALTH services accessibility ,ETHICS ,SERIAL publications ,PROFESSIONAL autonomy ,MIFEPRISTONE ,MISINFORMATION ,MEDICAL literature - Published
- 2023
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14. Racial Bias Correlates with States Having Fewer Health Professional Shortage Areas and Fewer Federally Qualified Community Health Center Sites.
- Author
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Snowden LR and Michaels E
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- Humans, United States, Patient Protection and Affordable Care Act, Community Health Centers, Medically Underserved Area, Health Services Accessibility, Racism
- Abstract
Federally Qualified Community Health Centers (FQHCs), serving Health Professional Shortage Areas (HPSAs), are fixtures of the healthcare safety net and are central to healthcare delivery for African Americans and other marginalized Americans. Anti-African American bias, tied to anti- "welfare" sentiment and to a belief in African Americans' supposed safety net dependency, can suppress states' willingness to identify HPSAs and to apply for and operate FQHCs. Drawing on data from n = 1,084,553 non-Hispanic White Project Implicit respondents from 2013-2018, we investigated associations between state-level implicit and explicit racial bias and availability of FQHCs and with HPSA designations. After controlling for states' sociopolitical conservatism, wealth, health status, and acceptance of the Affordable Care Act's Medicaid expansion, greater racial bias was correlated with fewer FQHC delivery sites and fewer HPSA designations. White's bias against African Americans is associated with fewer FQHC opportunities for care and fewer identifications of treatment need for African Americans and other low-income people lacking healthcare options, reflecting bias-influenced neglect., (© 2022. The Author(s).)
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- 2023
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15. Antecedents of geographical expansion: The case of federally qualified health centers.
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Choi S, Weech-Maldonado R, Powers TL, and Hearld LR
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- Humans, Medicaid, United States, Health Services Accessibility, Safety-net Providers
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Background: Federally qualified health centers (FQHCs) are pivotal safety net primary care providers for the medically underserved. FQHCs have complex organizational designs, with many FQHCs providing care at multiple physical locations ("sites"). The number of sites, however, varies considerably between FQHCs, which can have important implications for differential access that may perpetuate disparities in quality of care., Purpose: The objective of this study is to explore the organizational and environmental antecedents of the number of sites operated by each FQHC. The findings of this study contribute to a better understanding of FQHCs' expansion that has vital implications for cost and access outcomes., Methodology/approach: The study is based on data between the years 2012 and 2018. Using multivariate growth curve modeling, we analyzed the final sample, consisting of 5,482 FQHC-years., Results: The level of competition, measured as the number of FQHC sites in the Primary Care Service Area (PCSA) and the number of primary care physicians per 1,000 PCSA residents, was positively associated with the number of FQHC sites. The number of patients, the level of federal grant, and the year were also positively associated with the number of FQHC sites, whereas percentage of Medicaid patients; workforce supply, measured as primary care physician assistants per 1,000 PCSA residents; Medicaid expansion; and state/local funding available for FQHCs were not., Conclusion: Findings of this study indicate that competition, especially between peer FQHCs, is significantly associated with FQHC expansion., Practice Implications: This result suggests that FQHC managers and policymakers may closely monitor cost, access, and quality implications of competition and FQHC expansion., (Copyright © 2022 Wolters Kluwer Health, Inc. All rights reserved.)
- Published
- 2022
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16. Musculoskeletal Urgent Care Centers Restrict Access for Patients with Medicaid Insurance Based on Policy and Location.
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Yousman LC, Hsiang WR, Jin G, Najem M, Mosier-Mills A, Khunte A, Jain S, Forman H, and Wiznia DH
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- Ambulatory Care organization & administration, Ambulatory Care Facilities organization & administration, Cross-Sectional Studies, Geography, Health Services Accessibility organization & administration, Humans, Musculoskeletal Diseases economics, Musculoskeletal Diseases therapy, Orthopedics methods, Policy, United States, Ambulatory Care economics, Ambulatory Care Facilities economics, Health Services Accessibility economics, Medicaid statistics & numerical data, Orthopedics economics
- Abstract
Background: As the urgent care landscape evolves, specialized musculoskeletal urgent care centers (MUCCs) are becoming more prevalent. MUCCs have been offered as a convenient, cost-effective option for timely acute orthopaedic care. However, a recent "secret-shopper" study on patient access to MUCCs in Connecticut demonstrated that patients with Medicaid had limited access to these orthopaedic-specific urgent care centers. To investigate how generalizable these regional findings are to the United States, we conducted a nationwide secret-shopper study of MUCCs to identify determinants of patient access., Questions/purposes: (1) What proportion of MUCCs in the United States provide access for patients with Medicaid insurance? (2) What factors are associated with MUCCs providing access for patients with Medicaid insurance? (3) What barriers exist for patients seeking care at MUCCs?, Methods: An online search of all MUCCs across the United States was conducted in this cross-sectional study. Three separate search modalities were used to gather a complete list. Of the 565 identified, 558 were contacted by phone with investigators posing over the telephone as simulated patients seeking treatment for a sprained ankle. Thirty-nine percent (216 of 558) of centers were located in the South, 13% (71 of 558) in the West, 25% (138 of 558) in the Midwest, and 24% (133 of 558) in New England. This study was given an exemption waiver by our institution's IRB. MUCCs were contacted using a standardized script to assess acceptance of Medicaid insurance and identify barriers to care. Question 1 was answered through determining the percentage of MUCCs that accepted Medicaid insurance. Question 2 considered whether there was an association between Medicaid acceptance and factors such as Medicaid physician reimbursements or MUCC center type. Question 3 sought to characterize the prevalence of any other means of limiting access for Medicaid patients, including requiring a referral for a visit and disallowing continuity of care at that MUCC., Results: Of the MUCCs contacted, 58% (323 of 558) accepted Medicaid insurance. In 16 states, the proportion of MUCCs that accepted Medicaid was equal to or less than 50%. In 22 states, all MUCCs surveyed accepted Medicaid insurance. Academic-affiliated MUCCs accepted Medicaid patients at a higher proportion than centers owned by private practices (odds ratio 14 [95% CI 4.2 to 44]; p < 0.001). States with higher Medicaid physician reimbursements saw proportional increases in the percentage of MUCCs that accepted Medicaid insurance under multivariable analysis (OR 36 [95% CI 14 to 99]; p < 0.001). Barriers to care for Medicaid patients characterized included location restriction and primary care physician referral requirements., Conclusion: It is clear that musculoskeletal urgent care at these centers is inaccessible to a large segment of the Medicaid-insured population. This inaccessibility seems to be related to state Medicaid physician fee schedules and a center's affiliation with a private orthopaedic practice, indicating how underlying financial pressures influence private practice policies. Ultimately, the refusal of Medicaid by MUCCs may lead to disparities in which patients with private insurance are cared for at MUCCs, while those with Medicaid may experience delays in care. Going forward, there are three main options to tackle this issue: increasing Medicaid physician reimbursement to provide a financial incentive, establishing stricter standards for MUCCs to operate at the state level, or streamlining administration to reduce costs overall. Further research will be necessary to evaluate which policy intervention will be most effective., Level of Evidence: Level II, prognostic study., Competing Interests: Each author certifies that there are no funding or commercial associations (consultancies, stock ownership, equity interest, patent/licensing arrangements, etc.) that might pose a conflict of interest in connection with the submitted article related to the author or any immediate family members. All ICMJE Conflict of Interest Forms for authors and Clinical Orthopaedics and Related Research® editors and board members are on file with the publication and can be viewed on request., (Copyright © 2021 by the Association of Bone and Joint Surgeons.)
- Published
- 2021
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17. Liver Transplantation in the Time of a Pandemic: A Widening of the Racial and Socioeconomic Health Care Gap During COVID-19.
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MacConmara M, Wang B, Patel MS, Hwang CS, DeGregorio L, Shah J, Hanish SI, Desai D, Lynch R, Tanriover B, Zeh H 3rd, and Vagefi PA
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- Adult, Aged, Female, Humans, Male, Middle Aged, Socioeconomic Factors, United States, COVID-19, Health Services Accessibility statistics & numerical data, Healthcare Disparities statistics & numerical data, Liver Transplantation statistics & numerical data, Racial Groups statistics & numerical data
- Abstract
Objective: During the initial wave of the COVID-19 pandemic, organ transplantation was classified a CMS Tier 3b procedure which should not be postponed. The differential impact of the pandemic on access to liver transplantation was assessed., Summary Background Data: Disparities in organ access and transplant outcomes among vulnerable populations have served as obstacles in liver transplantation., Methods: Using UNOS STARfile data, adult waitlisted candidates were identified from March 1, 2020 to November 30, 2020 (n = 21,702 pandemic) and March 1, 2019 to November 30, 2019 (n = 22,797 pre-pandemic), and further categorized and analyzed by time periods: March to May (Period 1), June to August (Period 2), and September to November (Period 3). Comparisons between pandemic and pre-pandemic groups included: Minority status, demographics, diagnosis, MELD, insurance type, and transplant center characteristics. Liver transplant centers (n = 113) were divided into tertiles by volume (small, medium, large) for further analyses. Multivariable logistic regression was fitted to assess odds of transplant. Competing risk regression was used to predict probability of removal from the waitlist due to transplantation or death and sickness. Additional temporal analyses were performed to assess changes in outcomes over the course of the pandemic., Results: During Period 1 of the pandemic, Minorities showed greater reduction in both listing (-14% vs -12% Whites), and transplant (-15% vs -7% Whites), despite a higher median MELD at transplant (23 vs 20 Whites, P < 0.001). Of candidates with public insurance, Minorities demonstrated an 18.5% decrease in transplants during Period 1 (vs -8% Whites). Although large programs increased transplants during Period 1, accounting for 61.5% of liver transplants versus 53.4% pre-pandemic (P < 0.001), Minorities constituted significantly fewer transplants at these programs during this time period (27.7% pandemic vs 31.7% pre-pandemic, P = 0.04). Although improvements in disparities in candidate listings, removals, and transplants were observed during Periods 2 and 3, the adjusted odds ratio of transplant for Minorities was 0.89 (95% CI 0.83-0.96, P = 0.001) over the entire pandemic period., Conclusions: COVID-19's effect on access to liver transplantation has been ubiquitous. However, Minorities, especially those with public insurance, have been disproportionately affected. Importantly, despite the uncertainty and challenges, our systems have remarkable resiliency, as demonstrated by the temporal improvements observed during Periods 2 and 3. As the pandemic persists, and the aftermath ensues, health care systems must consciously strive to identify and equitably serve vulnerable populations., Competing Interests: Conflict of interest: Raymond Lynch receives research support from the Mid-America Transplant Foundation. The authors report no conflicts of interest., (Copyright © 2021 Wolters Kluwer Health, Inc. All rights reserved.)
- Published
- 2021
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18. Firearm Violence, Access to Care, and Gentrification: A Moving Target for American Trauma Systems.
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Scantling D, Orji W, Hatchimonji J, Kaufman E, and Holena D
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- Censuses, Cross-Sectional Studies, Demography, Female, Humans, Male, Pennsylvania epidemiology, Philadelphia epidemiology, Population Dynamics, Social Change, Social Environment, United States epidemiology, Wounds, Gunshot mortality, Firearms, Health Services Accessibility, Residence Characteristics, Violence statistics & numerical data, Wounds, Gunshot epidemiology
- Abstract
Objective: We aimed to determine whether gentrification predicts the movement of shooting victims over time and if this process has decreased access to care., Background: Trauma centers remain fixed in space, but the populations they serve do not. Nationally, gentrification has displaced disadvantaged communities most at risk for violent injury, potentially decreasing access to care. This process has not been studied, but an increase of only 1 mile from a trauma center increases shooting mortality up to 22%., Methods: We performed a cross-sectional study utilizing Philadelphia Police Department (PPD) and Pennsylvania trauma systems outcome (PTOS) data 2006-2018. Shootings were mapped and grouped into census tracts. They were then cross-mapped with gentrification data and hospital location. PPD and PTOS shooting data were compared to ensure patients requiring trauma care were captured. Census tracts with ≥500 residents with income and median home values in the bottom 40th percentile of the metropolitan area were eligible to gentrify. Tracts were gentrified if residents ≥25 with a bachelor's degree increased and home price increased to the top third in the metropolitan area. Change in distribution of shootings and its relation to gentrification was our primary outcome while proximity of shootings to a trauma center was our secondary outcome., Results: Thirty-two percent (123/379) of eligible tracts gentrified and 31,165 shootings were captured in the PPD database. 9090 (29.2%) patients meeting trauma criteria were captured in PTOS with an increasing proportion over time. The proportion of shootings within gentrifying tracts significantly dropped 2006-2018 (40%-35%, P < 0.001) and increased in non-gentrifying tracts (52%-57%, P < 0.001). In evaluation of shooting densities, a predictable redistribution occurred 2006-2018 with incident density decreasing in gentrified areas and increasing in non-gentrified areas. Shootings within 1 mile of a trauma center increased overall, but proportional access decreased in gentrified areas., Conclusions: Shootings in Philadelphia predictably moved out of gentrified areas and concentrated in non-gentrified ones. In this case study of a national crisis, the pattern of change paradoxically resulted in an increased clustering of shootings around trauma centers in non-gentrified areas. Repetition of this work in other cities can guide future resource allocation and be used to improve access to trauma care., Competing Interests: The authors report no conflicts of interest., (Copyright © 2021 Wolters Kluwer Health, Inc. All rights reserved.)
- Published
- 2021
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19. Health Care for Our Nation's Veterans: A Policy Paper From the American College of Physicians.
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Crowley, Ryan, Atiq, Omar, Hilden, David, Cooney, Thomas G., Beachy, Micah, Brislen, Heather, Curry, William, Dhingra, Menaka, Engel, Lee, Henry, Tracey L., Hollon, Matthew, Mathew, Suja, Shoushtari, Christiana, Southworth, Molly, Tan, Michael, and Health and Public Policy Committee of the American College of Physicians*
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INTEGRATED health care delivery , *MEDICAL care , *HEALTH facilities , *MEDICAL personnel , *TRAINING of medical residents , *HEALTH policy , *HEALTH services accessibility , *PRIVATE sector , *MEDICAL care research , *HOLISTIC medicine , *PRIMARY health care , *MENTAL health services administration , *HEALTH care teams , *POLICY sciences , *MEDICAL education , *TELEMEDICINE , *MEDICAL societies - Abstract
The Veterans Health Administration (VHA) is the United States' largest integrated health care delivery system, serving over 9 million enrollees at nearly 1300 health care facilities. In addition to providing health care to the nation's military veterans, the VHA has a research and development program, trains thousands of medical residents and other health care professionals, and conducts emergency preparedness and response activities. The VHA has been celebrated for delivering high-quality care to veterans, early adoption of electronic medical records, and high patient satisfaction. However, the system faces challenges, including implementation of an expanded community care program, modernization of its electronic medical records system, and providing care to a population with complex needs. The position paper offers policy recommendations on VHA funding, the community care program, medical and health care professions training, and research and development. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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20. Breaking the period product insecurity cycle: An observational study of outcomes experienced by recipients of free period products in the United States.
- Author
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Massengale, Kelley EC, Bowman, Kelsey M, Comer, Lynn H, and Van Ness, Susan
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HEALTH services accessibility ,COMMUNITY health services ,HEALTH information services ,SELF-evaluation ,RESTROOMS ,COST effectiveness ,T-test (Statistics) ,SCIENTIFIC observation ,SOCIOECONOMIC factors ,FAMILIES ,EVALUATION of medical care ,HYGIENE ,EMOTIONS ,DESCRIPTIVE statistics ,CHI-squared test ,LONGITUDINAL method ,SURVEYS ,FEMININE hygiene products ,MENSTRUATION ,INTERPERSONAL relations ,COMPARATIVE studies ,DATA analysis software ,EMPLOYMENT ,MEDICINE information services ,WELL-being ,SOCIAL stigma - Abstract
Background: The United States is increasingly recognizing period product insecurity, insufficient access to menstrual products and limited private spaces for managing menstruation due to financial constraints, as an issue impacting the well-being and dignity of Americans. One strategy to address period product insecurity has been distributing free period products via period supply banks. The outcomes of period product distribution outside the school setting are absent from the literature. Objectives: This study, a formative evaluation of the free period product distribution efforts of the Alliance for Period Supplies, aims to identify (1) characteristics of individuals receiving products from period supply banks and their experiences of period product insecurity and (2) health and social outcomes experienced by recipients of free period products. Design: Survey data collection occurred at two points: baseline and one-year follow-up. All study participants provided verbal consent. Methods: Between Fall 2018 and Spring 2020, 1863 baseline and 80 follow-up surveys were administered. Participants received free period products for themselves and/or a household member from one of 20 participating Alliance for Period Supplies period supply banks directly or from one of their 64 partner agencies. Results: At baseline, 72.4% of participants had to choose between buying period products and another basic need. One year after accessing a period supply bank, 36.3% of participants reported this experience (p = 0.018). Participants reported at baseline, on average, 7.8 days in the past year of avoiding seeing others, canceling appointments, or skipping work or school because they did not have access to period products. At follow-up, this was reduced to 1.2 days, on average, t (68) = 2.214, p < 0.05. Conclusion: Period supply banks play an essential role in facilitating access to period products and the resulting benefits. Our study highlights the need for sustainable, well-funded policies and interventions to address period product insecurity effectively in society. Plain Language Summary: How people in the United States benefit when they get free period products from a period supply bank Why we did this study: In the United States, many individuals cannot afford to buy period supplies and the other stuff they need to live. Period supply banks want to help by giving them free period products. Researchers do not know if getting free period products is helpful for individuals. What we wanted to learn: The Alliance for Period Supplies is a membership program for period supply banks. We wanted to learn about the individuals who get free period products and whether getting them was helpful. What we did: For a year, starting in Fall 2018, we asked 1863 individuals to fill out paper surveys. A year later, we asked 80 of those same individuals to fill out a second survey. We asked participants to take the survey if they got free period products from a period supply bank for themselves or someone they live with. Individuals only participated in the study if they told us they wanted to. What we learned: Individuals who cannot afford period products must navigate difficult decisions between purchasing products or choosing other basic needs. Providing free products through a period supply bank has lessened the burden on these individuals, reducing the number who had to choose. Individuals unable to afford period products may sometimes opt out of going places they want to go for pleasure or miss important events, like work or school, because they do not have period products. Getting free period products has eased these challenges, letting individuals participate more fully in activities and engagements without worry about period products. Why is this important: Period supply banks are essential places where individuals receive free period products. The period supply banks need more individuals, including our government, to donate period supplies or money to buy them so they can help more individuals. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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- View/download PDF
21. HHS White Paper Highlights Steps Taken to Address Drug Shortages.
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HEALTH services accessibility , *INTERPROFESSIONAL relations , *INVENTORY shortages , *MEDICAL supplies , *SUPPLY chains , *PRIVATE sector , *DRUGS - Published
- 2024
22. Improving Students Access to Primary Health Care Through School-Based Health Centers.
- Author
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Davis CR, Eraca J, and Davis PA
- Subjects
- Humans, Child, Adolescent, United States, New York, Students psychology, School Health Services organization & administration, Primary Health Care, Health Services Accessibility
- Abstract
Background: More than 20 million children in the United States lack access to primary health care., Practice Learning: Research shows that students with regular access to physical and mental health services have fewer absences, are more social, less likely to participate in risky behaviors, have improved focus and higher test scores., Implication for School Health Policy, Practice, and Equity: School-based health centers (SBHCs) can be an important, valuable and viable health care delivery option to meet the full-range of primary health care needs of students where they spend the majority of their wake hours, ie, in school. Children in rural and other underserved communities, as well as those underinsured, non-insured, economically challenged, underserved, and the most vulnerable among us are especially at risk., Conclusions: This paper discusses the history, value, and importance of SBHCs from myriad perspectives, including physical and emotional wellbeing, academic and social success, and the promotion of a positive transition to adulthood. In addition, the authors' experiences that resulted in building the first SBHC in the Mid-Hudson Valley Region of New York State are shared. These experiences form the foundation for creating an important roadmap for individuals and school leaders that are interested in bringing a SBHC to their school and district., (© 2024 American School Health Association.)
- Published
- 2024
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23. Untwisting healthcare access disparities: A comprehensive analysis of demographic, socio-economic and racial disparities impacting patient outcomes in myocardial infarction patients.
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Sinha A, Lakhanpal M, Salomon MM, Albalushi S, Veeramachaneni SA, and Muthu P
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- Adult, Aged, Female, Humans, Male, Middle Aged, Incidence, Prevalence, Retrospective Studies, Risk Factors, United States epidemiology, Health Services Accessibility statistics & numerical data, Healthcare Disparities ethnology, Healthcare Disparities statistics & numerical data, Myocardial Infarction epidemiology, Myocardial Infarction ethnology, Socioeconomic Factors
- Abstract
Introduction: Myocardial infarction (MI) is one of the most life-threatening pathologies characterized by sudden cardiac death and is among the leading causes of mortality in the developed world., Aims: This study investigates the demographic, socio-economic, and healthcare access disparities in the US among patients with myocardial infarction (MI)., Methodology: This was a retrospective original research study conducted using the BRFSS (Behavioural risk factor surveillance system) database of CDC (Centers for disease control and prevention).Data was extracted from the BRFSS on 3rd January 2024 to identify patients with MI in the year 2021 and multivariate models were used to assess the relationship between factors such as age, gender, income levels, and education in patients with myocardial infarction., Results: Individuals in the age group of 65 years or older constituted the highest percentage of MI cases at 66.33 % (OR, 16.66; 95 % CI, 10.27-27.02; p-value <0.0001).Males showed a higher prevalence of MI, accounting for 61.19 % of cases, and females demonstrated lower susceptibility (OR, 0.46; 95 % CI, 0.43-0.50; p-value <0.0001).High school graduates (Grade 12 or GED) exhibited the highest incidence at 32.08 % (OR, 1.44; 95 % CI, 0.81-2.56; p-value 0.2084). Retirees accounted for the highest incidence at 56.06 %, with significantly increased odds compared to those employed for wages (OR, 1.93; 95 % CI, 1.71-2.19; p-value <0.0001).The analysis of income levels indicated the highest MI incidence in the $25,000 <= Income < $35,000 group (17.31 % of cases)., Conclusions: Additional research is necessary to further disentangle the interaction between MI and factors such as age, gender, education level, race, employment status, and income level, and as the findings of this study suggest, retired individuals and individuals from lower-income groups indicate a disparity in access to timely treatment regarding MI. Thus, the determination of such discrepancies needs to be addressed regarding how such factors affect access to timely healthcare, especially in matters of widely prevalent diseases such as MI., Competing Interests: Declaration of competing interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (Copyright © 2024. Published by Elsevier Inc.)
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- 2024
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24. Dementia care navigation: A systematic review on different service types and their prevalence.
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Giebel, Clarissa, Reilly, Siobhan, Gabbay, Mark, Dickinson, Julie, Tetlow, Hilary, Hogan, Hayley, Griffiths, Alys, and Cooper, Claudia
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TREATMENT of dementia ,ONLINE information services ,SOCIAL support ,HEALTH services accessibility ,SYSTEMATIC reviews ,PATIENT-centered care ,MEDICAL care ,COMPARATIVE studies ,DISEASE prevalence ,RESEARCH funding ,MEDLINE - Abstract
Background: Dementia Care Navigators (DCNs) are professionals without clinical training, who provide individualised emotional and practical support to people living with dementia, working alongside clinical services. Navigator services have been implemented but the service offered vary without a consistent overview provided. The aim of this narrative systematic review was to describe and compare existing service formats, and to synthesise evidence regarding their implementation and impacts. Methods: The review was registered on PROSPERO [CRD42021292518]. Three electronic databases were searched and included studies reported on a DCN service, defined as a service in which non‐clinically trained workers provide personalised advice and support to people with dementia and/or carers in the community. Two independent reviewers screened abstracts and titles and read through full papers for inclusion. Risk of bias was assessed using the Standard Quality Assessment QualSyst. Results: We included 14 papers reporting on six studies. All services were US‐based and only varied by integration and training provided. Studies reported different degrees of impact on service utilisation and on symptoms and mental well‐being of people with dementia and their carers, with too little evidence to draw substantial/meaningful conclusions and studies employing different outcome measures. One study evidenced greater impacts on people with more advanced dementia compared to earlier stages. Conclusions: DCN services have the potential to effectively provide non‐clinical support to people with dementia and carers from the point of diagnosis. Further research from countries other than the USA, focusing on the impact on social care and social support service access and utilisation, and utilising similar established outcome measures are required. Key points: Evidence on the impact of Dementia Care Navigators (DCNs) is limited but shows promising benefits for people living with dementia and their carers.More research needs to be conducted in countries other than the US, where all evidence was reported, and with similar outcome measures to allow comparison.DCNs are a highly useful professional group without medical training, who can navigate people living with dementia and their carers to support and provide support themselves. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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- View/download PDF
25. Spinal Muscular Atrophy: Expanded Access as an Instrument of Fairness.
- Author
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Beninger P
- Subjects
- Humans, United States, Muscular Atrophy, Spinal, Health Services Accessibility
- Abstract
Competing Interests: Declaration of competing interest The author declares that he has no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
- Published
- 2024
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- View/download PDF
26. Discussion of federal policies affecting broadband expansion and telehealth in Appalachia.
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Kirkland, Deborah A. and Lindley, Lisa C.
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- *
INTERNET access , *HEALTH services accessibility , *MEDICAL quality control , *HEALTH policy , *NURSING , *TELEMEDICINE , *RURAL health services , *ADVANCED practice registered nurses , *RURAL conditions , *PUBLIC health , *TELENURSING , *QUALITY assurance , *HEALTH equity , *COVID-19 pandemic ,FEDERAL government of the United States - Abstract
There have been 188 rural hospital closures in the United States since 2010 with approximately 20% of these in Appalachia. Telehealth has become a way that nurses can reach rural patients who might not otherwise receive health care. The purpose of this paper is to (1) outline the federal policies enacted during COVID-19 for broadband expansion; and (2) suggest how advanced practice nursing care might be affected by broadband expansion and telehealth in the region. A search of PubMed was conducted in January 2023, using the search words, "policy", "telehealth", "broadband", and "Appalachia". New laws appropriated funds to expand broadband infrastructure that made it possible for telehealth to be used by nurses to deliver health care to rural patients. This discussion paper found that broadband legislation was instrumental in expanding telecommunications and telehealth by NPs. There is a great need for broadband to continue to expand and for trained nurses to provide care via telehealth. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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27. Living with multimorbidity: A qualitative exploration of shared experiences of patients, family caregivers, and healthcare professionals in managing symptoms in the United States.
- Author
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Peeler, Anna, Nelson, Katie, Agrawalla, Vidisha, Badawi, Sarah, Moore, Robyn, Li, David, Street, Lara, Hager, David N., Dennison Himmelfarb, Cheryl, Davidson, Patricia M., and Koirala, Binu
- Subjects
HEALTH services accessibility ,MEDICAL care use ,QUALITATIVE research ,ACADEMIC medical centers ,STATISTICAL significance ,RESEARCH funding ,HOSPITAL care ,STATISTICAL sampling ,SYMPTOM burden ,DISCHARGE planning ,SERVICES for caregivers ,DESCRIPTIVE statistics ,SUBACUTE care ,THEMATIC analysis ,CAREGIVERS ,ATTITUDES of medical personnel ,QUALITY of life ,PHYSICIAN-patient relations ,COMMUNICATION ,MATHEMATICAL models ,CONCEPTUAL structures ,HONESTY ,THEORY ,DATA analysis software ,COMORBIDITY ,PATIENTS' attitudes ,CAREGIVER attitudes ,HEALTH care teams - Abstract
Aims: To elicit experiences of patients, family caregivers, and healthcare professionals in intermediate care units (IMCUs) in an academic medical centre in Baltimore, MD related to the challenges and intricacies of multimorbidity management to inform development of a multimorbidity symptom management toolkit. Design: Experience‐based co‐design. Methods: Between July and October 2021, patients aged 55 years and older with multimorbidity admitted to IMCUs at an academic medical centre in Baltimore, Maryland, USA were recruited and interviewed in person. Interdisciplinary healthcare professionals working in the IMCU were interviewed virtually. Participants were asked questions about their role in recognizing and treating symptoms, factors affecting the quality of life, symptom burden and trajectory over time, and strategies that have and have not worked for managing symptoms. An inductive thematic analysis approach was used for analysis. Results: Twenty‐three interviews were conducted: 9 patients, 2 family caregivers, and 12 healthcare professionals. Patients' mean age was 67.5 (±6.5) years, over half (n = 5) were Black or Hispanic, and the average number of comorbidities was 3.67. Five major themes that affect symptom management emerged: (1) the patient–provider relationship; (2) open and honest communication; (3) accessibility of resources during hospitalization and at discharge; (4) caregiver support, training, and education; and (5) care coordination and follow‐up care. Conclusion: Patients, caregivers, and healthcare professionals often have similar goals but different priorities for multimorbidity management. It is imperative to identify shared priorities and target holistic interventions that consider patient and caregiver experiences to improve outcomes. Implications for the Profession and/or Patient Care and Impact: This paper addresses the paucity of research related to the shared experience of disease trajectory and symptom management for people living with multimorbidity. We found that patients, caregivers, and healthcare professionals often have similar goals but different care and communication priorities. Understanding differing priorities will help better design interventions to support symptom management so people with multimorbidity can have the best possible quality of life. Reporting Method: We have adhered to the Consolidated Criteria for Reporting Qualitative Studies (COREQ) guidelines in our reporting. Patient or Public Contribution: This study has been designed and implemented with patient and public involvement throughout the process, including community advisory board engagement in the project proposal phase and interview guide development, and member checking in the data collection and analysis phases. The method we chose, experience‐based co‐design, emphasizes the importance of engaging members of a community to act as experts in their own life challenges. In the coming phases of the study, the public will be involved in developing and testing a new intervention, informed by these qualitative interviews and co‐design events, to support symptom management for people with multimorbidity. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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28. Influence of geographic access and socioeconomic characteristics on breast cancer outcomes: A systematic review.
- Author
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Conti, Benoit, Bochaton, Audrey, Charreire, Hélène, Kitzis-Bonsang, Hélène, Desprès, Caroline, Baffert, Sandrine, and Ngô, Charlotte
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BREAST cancer ,HEALTH facilities ,CANCER prognosis ,HEALTH equity ,HEALTH services accessibility - Abstract
Socio-economic and geographical inequalities in breast cancer mortality have been widely described in European countries and the United States. To investigate the combined effects of geographic access and socio-economic characteristics on breast cancer outcomes, a systematic review was conducted exploring the relationships between: (i) geographic access to healthcare facilities (oncology services, mammography screening), defined as travel time and/or travel distance; (ii) breast cancer-related outcomes (mammography screening, stage of cancer at diagnosis, type of treatment and rate of mortality); (iii) socioeconomic status (SES) at individuals and residential context levels. In total, n = 25 studies (29 relationships tested) were included in our systematic review. The four main results are: The statistical significance of the relationship between geographic access and breast cancer-related outcomes is heterogeneous: 15 were identified as significant and 14 as non-significant. Women with better geographic access to healthcare facilities had a statistically significant fewer mastectomy (n = 4/6) than women with poorer geographic access. The relationship with the stage of the cancer is more balanced (n = 8/17) and the relationship with cancer screening rate is not observed (n = 1/4). The type of measures of geographic access (distance, time or geographical capacity) does not seem to have any influence on the results. For example, studies which compared two different measures (travel distance and travel time) of geographic access obtained similar results. The relationship between SES characteristics and breast cancer-related outcomes is significant for several variables: at individual level, age and health insurance status; at contextual level, poverty rate and deprivation index. Of the 25 papers included in the review, the large majority (n = 24) tested the independent effect of geographic access. Only one study explored the combined effect of geographic access to breast cancer facilities and SES characteristics by developing stratified models. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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29. Self‐care behaviours and related cultural factors among Chinese immigrants with cardiovascular disease in western countries: an integrative review.
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Zeng, Ling, Perry, Lin, and Xu, Xiaoyue
- Subjects
IMMIGRANTS ,CULTURE ,PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,MEDICAL information storage & retrieval systems ,HEALTH services accessibility ,SYSTEMATIC reviews ,SELF-management (Psychology) ,PATIENT decision making ,COMMUNICATION barriers ,CARDIOVASCULAR diseases ,DIET ,PHYSICAL activity ,FAMILY roles ,HEALTH behavior ,DRUGS ,ACCESS to information ,PATIENT compliance ,HEALTH self-care ,AMED (Information retrieval system) - Abstract
Aims and objectives: This review aimed to demonstrate the self‐care behaviours of first‐generation Chinese immigrants with cardiovascular disease in western countries and identify related cultural factors. Background: Self‐care is the cornerstone to mitigate disease symptoms and maintain health status. Chinese immigrants to western countries, operating within a cross‐cultural context, may find self‐care to manage their cardiovascular disease challenging. Design: An integrative review was conducted. Methods: Seven databases were searched Scopus, ProQuest Health & Medicine, Medline (Ovid), Embase (Ovid), AMED (Ovid), PsycINFO and CINAHL, with output limited to peer‐reviewed studies published from 2000 to 2020 in English or Chinese. Initially, 2037 papers were screened. Six papers were retained and critiqued using the Joanna Briggs Institute critical appraisal tools. Deductive and inductive approaches were utilised to analyse the findings. The PRISMA 2020 checklist informed review reportage. Result: In general, Chinese immigrants with cardiovascular disease took an active role in management of their cardiovascular disease, including through diet and activity adaptation and adherence to western medication. Families also played a significant role in disease decision‐making and management. However, language and cultural barriers impeded their access to health information and resources in host countries. Relevance to clinical practice: Understanding self‐care behaviours and associated cultural factors among Chinese immigrants with cardiovascular disease is important to improve nurses' culturally sensitive practices and provide tailored health education interventions to promote self‐care behaviours among immigrant populations. The scarcity of literature on self‐care behaviours among Chinese first‐generation immigrants with cardiovascular disease indicates the need for further research in this area. Development of culturally and linguistically sensitive health resources and education programs is urgently needed. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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30. Contextualizing the experiences of Black pregnant women during the COVID-19 pandemic: 'It's been a lonely ride'.
- Author
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Dahl, Alicia A., Yada, Farida N., Butts, Shanika Jerger, Tolley, Annalise, Hirsch, Sophie, Lalgondar, Priyanka, Wilson, Kala S., and Shade, Lindsay
- Subjects
HEALTH services accessibility ,COMMUNITY health services ,CROSS-sectional method ,SELF-evaluation ,AFRICAN Americans ,MATERNAL health services ,RESEARCH funding ,INTERVIEWING ,QUESTIONNAIRES ,PREGNANT women ,PSYCHOLOGICAL adaptation ,DESCRIPTIVE statistics ,EXPERIENCE ,SURVEYS ,THEMATIC analysis ,RESEARCH methodology ,SOCIAL adjustment ,STATISTICS ,PUBLIC health ,COMPARATIVE studies ,DATA analysis software ,COVID-19 pandemic - Abstract
The emergence of the COVID-19 pandemic significantly changed the prenatal care experience, specifically regarding medical appointments and social opportunities. It is critical to capture this change through the narratives of pregnant people, particularly those of marginalized populations, whose voices may often be underrepresented in the literature. This mixed-methods paper summarizes the experiences of 40 pregnant Black/African American (AA) women during the COVID-19 pandemic. A cross-sectional, online survey was administered between 2020 and 2021 to assess prenatal health and the impacts of the COVID-19 pandemic on patients' pregnancy experience. Coping behaviors during the pandemic were self-reported using the COPE-IS. Univariate analyses were conducted. An additional analysis of participants (n = 4) was explored through a week-long qualitative exercise using a photo documentation procedure. Photo-Elicitation Interviews (PEI) were conducted to capture and center their pandemic pregnancy experiences. Sources of stress during the pandemic varied, with the most common being financial concerns (n = 19, 47.5%). Over half of the sample (n = 18, 54.5%) self-reported increases in their positive coping behaviors during the pandemic, such as communicating with friends and family, talking to healthcare providers, listening to music, and engaging in spiritual practices–such as prayer. The four PEI study participants reflected on the impacts of social distancing on their prenatal experience and mentioned hospital and provider-related weariness due to their race. The findings of this study suggest that during the COVID-19 pandemic, Black/AA pregnant women in Charlotte, NC used social support, mindfulness practices, self-advocacy, and health literacy to navigate challenges present during their prenatal health experience. This paper highlights the personal, social, and structural experiences of pregnant women during a public health crisis so that responsive and effective programs or policies can be planned in the future. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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31. An exploration of barriers to access to trial of labor and vaginal birth after cesarean in the United States: a scoping review.
- Author
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Eggen, Melissa B., Petrey, Jessica, Roberson, Paige, Curnutte, Mary, and Jennings, J'Aime C.
- Subjects
ONLINE information services ,MEDICAL databases ,CINAHL database ,HEALTH services accessibility ,MEDICAL information storage & retrieval systems ,VAGINAL birth after cesarean ,SYSTEMATIC reviews ,LITERATURE reviews ,MEDLINE - Abstract
Increasing the number of vaginal birth after cesarean (VBAC) deliveries is one strategy to reduce the cesarean rate in the United States. Despite evidence of its safety, access to trial of labor after cesarean (TOLAC) and VBAC are limited by many clinical and non-clinical factors. We used a scoping review methodology to identify barriers to access of TOLAC and VBAC in the United States and extract potential leverage points from the literature. We searched PubMed, Embase, Cochrane, and CINAHL for peer-reviewed, English-language studies published after 1990, focusing on access to TOLAC and/or VBAC in the United States. Themes and potential leverage points were mapped onto the Minority Health and Health Disparities Research Framework. The search yielded 21 peer-reviewed papers. Barriers varied across levels of influence and included factors related to restrictive clinical guidelines, provider reluctance, geographic disparities, and midwifery scopes of practice. While barriers varied in levels of influence, the majority were related to systemic and interpersonal factors. Barriers to TOLAC and VBAC exist at many levels and are both clinical and non-clinical in nature. The existing body of literature can benefit from more research examining the impact of recent revisions to clinical guidelines related to VBAC as well as additional qualitative studies to more deeply understand the complexity of provider reluctance. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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32. Adolescent Healthcare Access: A Qualitative Study of Provider Perspectives.
- Author
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Garney WR, Flores SA, Garcia KM, Panjwani S, and Wilson KL
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- Humans, Adolescent, United States, Qualitative Research, Focus Groups, Health Facilities, Health Services Accessibility, Social Environment
- Abstract
Introduction: Adolescent access to quality healthcare is key to prevention and early intervention for health risk behaviors. This paper provides a healthcare provider perspective on barriers and facilitators to youth accessing care., Methods: Five focus groups were conducted from November to December 2020 with providers from a variety of healthcare settings. Participants were asked to describe their respective adolescent patient populations, adolescent-specific health concerns, and organizational accommodations specific for youth services. Transcripts were analyzed using Inductive Thematic Analysis and themes were grouped using a social-ecological framework., Results: At an individual level, providers noted that an adolescent's knowledge and ability to navigate services varied greatly across settings. Providers identified provider trust and parent/guardian support as key interpersonal factors that support adolescents' access to services. Organizational factors included bureaucratic barriers and the clinic's reputation among youth. Community factors centered on mistrust within healthcare systems and stigmatization of seeking certain types of services. Participants also described how state-level policies influence parent/guardian consent requirements, which can limit adolescents' access to care., Conclusion: Adolescent access to and utilization of healthcare in the United States is a complex problem requiring systems-level change. Healthcare organizations and providers have the opportunity and capacity to positively influence adolescents' healthcare access and experiences, however a lack of standardized, clinic-level priorities and guidelines can limit adolescent-centered care., Competing Interests: Declaration of Conflicting InterestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
- Published
- 2024
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33. WePlay! Across the USA and abroad: Adaptation and expansion of a postpartum caregiver-child support program.
- Author
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Antenucci, Nikki, Adams, Olivia, Cerqueira, Mariana, Dugoni, Hannah, Clarke, U'nek, Elliott, Kelly L., and Vozar, Tracy M.
- Subjects
COMPETENCY assessment (Law) ,SUPPORT groups ,PLAY ,HEALTH services accessibility ,EVALUATION of human services programs ,PSYCHOLOGICAL adaptation ,POSTNATAL care ,COMMUNITIES ,CHILDREN'S hospitals ,PSYCHOEDUCATION ,CHILD development ,FAMILIES of military personnel ,PSYCHOLOGY of caregivers ,WELL-being ,SENSITIVITY & specificity (Statistics) ,CULTURAL pluralism - Abstract
In this paper, we share cultural adaptations of facilitated play and psychoeducation caregiverchild support groups, WePlay! and Nosotros Jugamos. Originating in Denver and expanding to Washington, DC, the programs prioritize caregiver-driven, flexible, inclusive, and culturally responsive approaches. Future group considerations include a year-round, open-group format and tailoring offerings for specific populations, such as military families and those receiving inpatient services. WePlay! and Nosotros Jugamos are also excited about the possibility of international expansion. This outreach reflects a commitment to dynamic, participant-centered programming that evolves based on feedback and regional population needs. [ABSTRACT FROM AUTHOR]
- Published
- 2024
34. Telehealth administration of narrative and procedural discourse: A UK and US comparison of traumatic brain injury and matched controls.
- Author
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Cruse, Nicole, Piotto, Victor, Coelho, Carl, and Behn, Nicholas
- Subjects
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HEALTH services accessibility , *COMPARATIVE grammar , *TASK performance , *PHONOLOGICAL awareness , *SAMPLE size (Statistics) , *APHASIA , *TELEREHABILITATION , *MANN Whitney U Test , *DESCRIPTIVE statistics , *TELEMEDICINE , *DISCOURSE analysis , *SOCIAL integration , *CASE-control method , *QUALITY of life , *COMMUNICATION , *BRAIN injuries , *SPEECH disorders , *DATA analysis software , *EMPLOYMENT reentry , *COVID-19 pandemic , *INTER-observer reliability , *NONPARAMETRIC statistics , *RELIABILITY (Personality trait) - Abstract
Background: Impaired discourse production is commonly reported for individuals with traumatic brain injury (TBI). Discourse deficits can negatively impact community integration, return to employment and quality of life. COVID‐19 restrictions have reduced in‐person assessment services for people with communication impairments. Advances in telehealth may help speech and language therapists (SLTs) to assess monologic discourse more systematically and improve access to services for patients who may find it difficult to attend in‐person. Aims: To examine the feasibility of telehealth administration of narrative and procedural discourse tasks with individuals with TBI and matched controls. Methods & Procedures: A total of 20 individuals with TBI and 20 healthy controls, aged 18–55 years, were directly recruited from the UK and indirectly recruited from the US. For participants with TBI, time post‐injury was at least 3 months with no diagnosis of aphasia. Control participants were matched for sex and as closely as possible for age. Feasibility of measures was based upon the time to administer both narrative tasks, the report of any technological problems, and participant feed. Discourse samples were transcribed verbatim and analysed using story grammar analysis (for narrative discourse) and identification of propositions (for procedural discourse). Interrater reliability was calculated using percentage agreement for 50% of the data. Non‐parametric analyses were used to analyse the performance of the two groups. Outcomes & Results: Narrative and procedural discourse samples were collected via telehealth in approximately 10 min with no reported technical difficulties or complaints from any participants. For narrative discourse performance, there were significant differences for the TBI and control groups for measures of complete episodes (p < 0.001) and missing episodes (p = 0.005). No significant group differences were noted for any of the procedural discourse measures. Conclusions & Implications: Results support the feasibility of collecting discourse samples via telehealth. Although the participants' discourse performance distinguished the TBI and control groups on the narrative task, no differences between the groups were noted for the procedural task. The narrative discourse task may have been more difficult than the procedural task, or video cue support reduced the cognitive load of the procedural task. This finding suggests the use of more complex procedural tasks without video cue support may be needed. WHAT THIS PAPER ADDS: What is already known on this subject: Although little research has explored the feasibility of administering discourse assessments for individuals with TBI via telehealth, some studies have found that discourse interventions can be feasibly administered via telehealth. It is also well established that individuals with TBI struggle with the supra‐structural and macro‐linguistic elements of discourse production. Both procedural and narrative discourse tasks have been found to differentiate individuals with TBI from healthy controls. What this paper adds to existing knowledge: Few studies have investigated the feasibility of, and procedures for, administering discourse tasks via telehealth. Additionally, the inclusion of multiple types of discourse tasks to parse cognitive–communication abilities is lacking in the current literature. Findings from this study support that narrative and procedural discourse can be feasibly sampled via telehealth and that international collaboration for research on this topic can facilitate such studies. Individuals with TBI performed more poorly on three measures of narrative discourse. No differences between groups were identified for the procedural task. What are the potential or actual clinical implications of this work?: Telehealth assessment for discourse provides flexibility for both the individual with TBI and the speech–language therapist and does not compromise the quality of data collected. The administration of discourse tasks and collection of data was not time‐consuming and was well accepted by the study participants. Additionally, international research collaboration not only expands potential participation in research but increases the opportunity to recruit and study more diverse groups. [ABSTRACT FROM AUTHOR]
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- 2024
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35. "Safety Is Elusive:" A Critical Discourses Analysis of Newspapers' Reporting of Domestic Violence During the Coronavirus Pandemic.
- Author
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Storer, Heather L., Mitchell, Brandon, and Willey-Sthapit, Claire
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SAFETY ,HOME environment ,HEALTH services accessibility ,GOVERNMENT regulation ,DOMESTIC violence ,INTIMATE partner violence ,NEWSPAPERS ,DISCOURSE analysis ,CONTENT analysis ,ABUSED women ,SOCIAL services ,DATA analysis software ,THEMATIC analysis ,COVID-19 pandemic - Abstract
The COVID-19 pandemic exacerbated incidences of domestic violence (DV). The framing of DV within media sources contributes to the public's understanding of DV. Using critical discourse analysis (CDA), this paper explores representations of safety within newspapers' reporting of DV during the pandemic. The sample included newspaper articles (n = 31) from U.S. newspapers. The analysis involved multiple rounds of coding and employing "structured questions." These articles depicted limited courses of action for DV survivors and represented safety as unattainable. Safety was constructed in four ways: homes are unsafe, social services are overburdened, government failures, and the elusiveness of safety. These discursive formations provide insight regarding "idealized" social responses to DV. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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36. Service Needs, Context of Reception, and Perceived Discrimination of Venezuelan Immigrants in the United States and Colombia.
- Author
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Scaramutti, Carolina, Schmidt, Renae Danielle, Ochoa, Lucas Gregorio, Brown, Eric Christopher, Vos, Saskia Renee, Mejia Trujillo, Juliana, Perez Gomez, Nicolas Augusto, Salas-Wright, Christopher, Duque, Maria, and Schwartz, Seth
- Subjects
MENTAL health services ,VENEZUELANS ,COMMUNITY organization ,HEALTH services accessibility ,PERCEIVED discrimination ,IMMIGRANTS - Abstract
Executive Summary: Millions of Venezuelans have fled their country in hopes for a better future outside the political and financial turmoil in their home country. This paper examines the self-reported needs of Venezuelans in the United States and Colombia. Specifically, it looks at perceived discrimination in each country and its effect on the service needs of Venezuelan immigrants. The authors used data from a larger project conducted in October to November 2017 to perform a qualitative content analysis on the specific services that participants and others like them would need following immigration. The sample consisted of 647 Venezuelan immigrant adults who had migrated to the United States (n = 342) or Colombia (n = 305). Its findings indicate statistically significant differences between the two countries. Venezuelan immigrants in the United States were more likely to identity mental health and educational service needs, while those in Colombia were more likely to list access to healthcare, help finding jobs, and food assistance. When looking at perceived discrimination, means scores for discrimination were significantly greater for participants who indicated needing housing services, who indicated needing assistance enrolling children in school and who indicated needing food assistance, compared to participants who did not list those needs. Venezuelans who had experienced greater negative context of reception were less likely to indicate needing mental health services, where 11.9 percent of those who did not perceive a negative context of reception responded that they needed mental health services. Evaluating existing service networks will be essential in working to bridge the gap between the services provided to and requested by Venezuelans. Collaboration between diverse government actors, community-based organizations (CBOs) and other stakeholders can help identify gaps in existing service networks. CBOs can also facilitate communication between Venezuelan immigrants and their new communities, on the need to invest in necessary services. [ABSTRACT FROM AUTHOR]
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- 2024
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37. The Influence of Family Multi-Institutional Involvement on Children's Health Management Practices.
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Paik, Leslie
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FIELD research ,OBESITY ,MEDICAL care for teenagers ,ASTHMA ,HEALTH services accessibility ,CHRONIC diseases ,FAMILIES ,DIABETES ,ADOLESCENT health ,QUALITATIVE research ,SOCIAL classes ,DESCRIPTIVE statistics ,SOCIODEMOGRAPHIC factors ,DISEASE management - Abstract
Given the increasing prevalence of youths with chronic medical conditions and the racial, gender, and class disparities in health in the U.S., it is important to understand how families manage their youths' health condition during the transitional time of adolescence when parents and youths are renegotiating their respective roles and responsibilities related to that condition. This paper explores a relatively understudied factor to this fraught and often confusing process: family involvement in multiple institutions for both health and non-health related issues. Based on qualitative fieldwork with 33 families in New York City whose youths have chronic health conditions (e.g., diabetes, asthma, obesity), the paper shows how family multi-institutional involvement can sap family resources in often unexpected ways. This type of institutional involvement has greater implications for poor and minority families who are more likely to be compelled to participate in these organizations with less influence to shape their cases as opposed to middle class and white families. In sum, this paper provides a more nuanced perspective of parental involvement in youths' health management practices as a fluid evolving process shaped in part by family involvement in other institutions. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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38. The impact of access to prenatal health insurance for noncitizen women on child health.
- Author
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Hwang G
- Subjects
- Infant, Newborn, Pregnancy, Child, Humans, Female, Child, Preschool, United States, Insurance Coverage, Insurance, Health, Patient Acceptance of Health Care, Child Health, Health Services Accessibility
- Abstract
Objective: To estimate the effects of prenatal public health insurance targeting noncitizens on the health of U.S.-born children of noncitizen mothers beyond birth outcomes., Data Sources and Study Setting: This paper uses the restricted version of the 1998-2014 National Health Interview Survey with state-level geographic identifiers., Study Design: The empirical strategy compares outcomes in states that adopted the Children's Health Insurance Plan (CHIP) Unborn Child Option with states that never adopted or adopted it at different times, controlling for differences in the pre-treatment period. I use a flexible event-study analysis to quantify the effects of the Unborn Child Option on noncitizen women's health insurance coverage, health care utilization, and their children's health., Data Collection/extraction Methods: All data are derived from pre-existing sources., Principal Findings: The study finds that the impact of the Unborn Child Option is a 4.7%-point increase in public health insurance coverage (p < 0.01) and 0.48 more doctor's office visits (p < 0.1) annually among noncitizens of childbearing ages. Subsequently, the reform leads to a 7%-point rise in the rate of parents reporting their 4-6-year-old children are in "excellent" or "very good" health (p < 0.01). While no improvements are evident at birth and at younger ages, observed health improvements begin to appear by preschool age., Conclusions: The study contributes to the literature by providing evidence that certain benefits of in-utero public health insurance targeting noncitizens may appear several years after birth, specifically around preschool age., (© 2023 Health Research and Educational Trust.)
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- 2023
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39. Igniting a Movement in a Dual Licensed Dental Workforce: The Minnesota Model.
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Brickle CM, Jacobi DA, and Larkin CE
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- United States, Humans, Minnesota, Clinical Competence, Workforce, Dental Hygienists, Health Services Accessibility, Dental Care
- Abstract
Increased awareness of oral health disparities in the United States has highlighted the need to expand the workforce and access to both primary and preventive dental care. Achieving oral health equity will require new dental team members with appropriate clinical skills dedicated to reaching historically marginalized populations through intra and interprofessional practice. Collective efforts by health care advocates in Minnesota led to legislation that created a dental hygiene-based workforce model inspired by the vision and foresight of the American Dental Hygienists' Association's "Advanced Dental Hygiene Practitioner." In July 2023, there were 141 licensed dental therapists and 99 certified advanced dental therapists, with the majority being dual-licensed dental hygienists/dental therapists, providing primary care services in a variety of settings throughout the state. Current data confirm their contributions to increasing access to primary oral health care services for Minnesotans across the lifespan. While surmountable challenges remain, new opportunities are emerging for dental therapists within Minnesota's transforming health care system. The purpose of this paper is to describe the implementation of this new workforce model in Minnesota, its challenges and successes to assist other states in developing new models for intraprofessional dental team members., (Copyright © 2023 The American Dental Hygienists’ Association.)
- Published
- 2023
40. A Scoping Review of Cancer Interventions with Arab Americans.
- Author
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Chebli, Perla, Strayhorn, Shaila M., Hanneke, Rosie, Muramatsu, Naoko, Watson, Karriem, Fitzgibbon, Marian, Abboud, Sarah, and Molina, Yamilé
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BREAST tumor treatment ,BREAST tumor diagnosis ,BREAST tumor prevention ,BREAST tumor risk factors ,ARAB Americans ,HEALTH education ,ONLINE information services ,PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,CULTURE ,EVALUATION of human services programs ,MEDICAL information storage & retrieval systems ,HEALTH services accessibility ,HUMAN research subjects ,PATIENT participation ,SYSTEMATIC reviews ,TIME ,LINGUISTICS ,PATIENT selection ,EARLY detection of cancer ,COMMUNITY health services ,POPULATION geography ,PATIENT-centered care ,HUMAN services programs ,HEALTH literacy ,ATTITUDES toward illness ,RESEARCH funding ,COST analysis ,DESCRIPTIVE statistics ,CERVIX uteri tumors ,LITERATURE reviews ,MEDLINE ,ENDOWMENTS ,DISEASE risk factors - Abstract
This scoping review provides an overview of cancer interventions implemented with Arab Americans across the cancer control continuum, including an examination of outcomes and implementation processes. The search strategy included database searching and reviewing reference lists and forward citations to identify articles describing interventions with Arab adults living in the US, with no restrictions on date of publication or research methodology. The review included 23 papers describing 12 unique cancer interventions. Most interventions focused on individual-level determinants of breast and cervical cancer screening; used non-quasi-experimental research designs to evaluate intervention effectiveness; and demonstrated improvements in short-term cancer screening knowledge. Implementation processes were less commonly described. Most interventions were culturally and linguistically tailored to communities of focus; were delivered in educational sessions in community settings; engaged with the community mostly for recruitment and implementation; and were funded by foundation grants. Suggestions for research and intervention development are discussed. [ABSTRACT FROM AUTHOR]
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- 2024
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41. Racial differences in maternal risk factors associated with adverse pregnancy outcomes: a population-based study exploring urban and rural geographies in the United States.
- Author
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Clay, Shondra Loggins, Woodson, Markisha J., Makelarski, Jennifer A., Cheng, W. Susan, Alston, Reginald J., Trask, Jeffrey, and Hodges, Terence
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STATISTICS ,HEALTH services accessibility ,SOCIAL support ,RURAL conditions ,AGE distribution ,RACE ,PREGNANT women ,MEDICAL care costs ,HEALTH status indicators ,FISHER exact test ,RISK assessment ,PREGNANCY outcomes ,INCOME ,LOW birth weight ,PREGNANCY complications ,DESCRIPTIVE statistics ,CHI-squared test ,HEALTH behavior ,SOCIAL classes ,METROPOLITAN areas ,INFANT mortality ,SOCIODEMOGRAPHIC factors ,LOGISTIC regression analysis ,WHITE people ,AFRICAN Americans ,INSURANCE ,DISEASE risk factors - Abstract
This paper explores racial differences in maternal risk factors associated with adverse pregnancy outcomes across urban and rural geographies using 2019 data from the Behavioral Risk Factor Surveillance System. Bivariate chi-square tests and logistic regression were performed which showed statistically significant geographical differences among Non-Hispanic (NH) Black pregnant women across income levels (p =.016) and perceived health status (p =.003). Regression analyses indicated an increased racial gap between NH White pregnant women and other racial/ethnic groups. The findings support that there are statistically significant racial differences in maternal risk factors across urban and rural geographies for NH Black and Hispanic pregnant women. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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42. Integration of Dementia Systems in Central America: A Social Network Approach.
- Author
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CURRERI, NEREIDE A., GRIFFITHS, DAVE, and MCCABE, LOUISE
- Subjects
DIAGNOSIS of dementia ,HEALTH services accessibility ,SELF-evaluation ,MEDICAL quality control ,COMPUTER software ,RESEARCH funding ,INTERVIEWING ,STATISTICAL sampling ,GOVERNMENT agencies ,DESCRIPTIVE statistics ,SOCIAL networks ,RESEARCH methodology ,DEVELOPING countries ,PUBLIC administration ,COMPARATIVE studies ,INTEGRATED health care delivery ,DEMENTIA patients ,ACTIVE aging - Abstract
Introduction: Action 3 of the UN Decade of Healthy Ageing plan is to deliver integrated care to improve older adults' lives. Integrated care is vital in meeting the complex needs of people with dementia but little is known about how this is or could be delivered in low and middle income countries (LMIC). This paper provides insights into previously unknown care system structures and on the potential and reality of delivering integrated care in Central America for people with dementia. Methods: A social network analysis (SNA) methodology was adopted to engage with providers of services for older adults and families with dementia in Guatemala, El Salvador, Honduras, Costa Rica and Panama. Sixty-eight (68) semi-structured interviews were completed, 57 with organisations and 11 with families. Results: Across the five countries there was evidence of fragmentation and low integration within the dementia care systems. A variety of services and types of providers are present in all five countries, and high levels of diversified connections exist among organisations of differing disciplines. However, unawareness among network members about other members that they could potentially form active links with is a barrier on the path to integration. Conclusion: This innovative and robust study demonstrates SNA can be applied to evaluate LMIC care systems. Findings provide baselines of system structures and insights into where resources are needed to fortify integration strategies. Results suggest that Central American countries have the building blocks in place to develop integrated care systems to meet the needs of people with dementia, but the links across service providers are opportunistic rather than context based coordinated integration policies. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
43. Barriers to Disclosure of Intimate Partner Violence Among Undocumented Spanish-Speaking Immigrants in the United States.
- Author
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Zero, Odette, Tobin-Tyler, Elizabeth, and Goldman, Roberta E.
- Subjects
DISCLOSURE ,HEALTH services accessibility ,HUMAN rights ,RESEARCH methodology ,LANGUAGE & languages ,INTERVIEWING ,FEAR ,MEDICAL care costs ,INTIMATE partner violence ,QUALITATIVE research ,SELF-consciousness (Awareness) ,UNDOCUMENTED immigrants ,PSYCHOSOCIAL factors ,PSYCHOLOGY of women ,SOUND recordings ,MISINFORMATION ,DATA analysis software ,MEDICAL coding ,POLICE - Abstract
Undocumented monolingual Spanish-speaking immigrants are one of the most vulnerable and marginalized groups to experience intimate partner violence (IPV) in the United States. This paper explores the barriers that prevent IPV disclosure in healthcare settings. Qualitative interviews (n = 14) were conducted with previously undocumented Spanish-speaking legal clients of a community domestic violence agency. The major barriers expressed by the interviewees regarding IPV screening and disclosure include limited opportunities for IPV screening, misinformation about legal rights from abusers, fear of deportation and separation from children, and lack of knowledge about resources. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
44. Grief, COVID-19, and the South: Considerations and Recommendations.
- Author
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McDuffie, Danielle L., Kouchi, Kathryn, Dorman, Hillary, Bownes, Elizabeth, Condon, Shelley E., and Crowther, Martha R.
- Subjects
DEATH & psychology ,GRIEF ,COVID-19 ,SOCIAL support ,HEALTH services accessibility ,SPIRITUALITY ,AGE distribution ,SOCIAL networks ,POPULATION geography ,TREATMENT effectiveness ,THANATOLOGY ,DISEASE complications ,PATIENT care ,RURAL population ,RELIGION - Abstract
Purpose: COVID-19 has devastated the United States (U.S.). One of the more notably impacted areas is the South. Compared to the rest of the U.S., the South is characterized by increased rurality, lowered access to healthcare, older populations, and higher religiosity, all of which might predispose its residents to more detrimental effects of COVID-19, including COVID-related fatalities. As such, this paper provides important considerations for individuals engaging in work with Southern, rural Americans dealing with COVID-related grief and loss. Methods: A review of the literature addressing the impact of Southern legislature, rurality, cross-country factors, and faith on COVID-related grief among Southerners was conducted, with applicable considerations expressed. Conclusions: Care should be taken by providers working with rural, Southern residents to attend to tangible and intangible losses experienced as a result of COVID-19. These considerations can help inform work with rural Southerners dealing with grief during the pandemic. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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45. Factors associated with lack of care engagement among older, rural‐dwelling adults living with HIV in the United States.
- Author
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Petroll, Andrew E., Quinn, Katherine G., John, Steven A., Nigogosyan, Zack, and Walsh, Jennifer L.
- Subjects
HIV infections ,REMOTE access networks ,HEALTH services accessibility ,SOCIAL support ,CROSS-sectional method ,MULTIPLE regression analysis ,INTERNET ,RACE ,SOCIAL isolation ,RESEARCH funding ,DESCRIPTIVE statistics ,LONELINESS ,QUALITY of life ,RURAL health ,PSYCHOLOGY of HIV-positive persons ,RURAL population ,MENTAL health services ,PSYCHOLOGICAL stress - Abstract
Purpose: Most people living with HIV (PLH) in the United States are over age 50 and this sector of PLH continues to grow. Aging with HIV can be challenging due to comorbid medical conditions, mental health disorders, substance use, and lack of social and practical support. Additional challenges are faced by older PLH living in the rural United States, such as longer distances to health care, concerns over privacy and stigma, and social isolation. PLH in rural areas have higher mortality rates than urban PLH. We aimed to understand factors associated with HIV care engagement and quality of life in rural US adults over age 50. Methods: We conducted a cross‐sectional study to evaluate the association between patient‐level factors and a combined outcome variable encompassing multiple aspects of care engagement. Findings: Either online or on paper, 446 participants completed our survey. One‐third of the participants (33%) were from the southern United States; one‐third were women; one‐third were non‐White; and 24% completed the survey on paper. In multiple regression analysis, lower income, residing in the southern United States, lacking internet access at home, not having an HIV specialist provider, higher levels of stress, living alone, and longer distance to an HIV provider were all associated with lower engagement in HIV care. Conclusions: Our findings demonstrated multiple potential options for interventions that could improve care engagement, such as providing and enhancing access to technology for health care engagement and remotely delivering social support and mental health services. Research on such potential interventions is needed for older, rural PLH. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
46. The Social and Economic Factors Underlying the Incidence of COVID-19 Cases and Deaths in US Counties During the Initial Outbreak Phase.
- Author
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Mukherji, Nivedita
- Subjects
INCOME inequality ,COVID-19 pandemic ,ECONOMIC impact ,HEALTH services accessibility ,GINI coefficient ,INFLUENZA vaccines ,FIREPROOFING agents - Abstract
This paper uncovers the socioeconomic and health/lifestyle factors that can explain the differential impact of the coronavirus pandemic on different parts of the United States during the initial outbreak phase of the pandemic. Using a dynamic panel representation of an epidemiological model of disease spread, the paper develops a Vulnerability Index for US counties from the daily reported number of cases over a 20-day period of rapid disease growth. County-level economic, demographic, and health factors are used to explain the differences in the values of this index and thereby the transmission and concentration of the disease across the country. These factors are also used to examine the number of reported deaths. The paper finds that counties with high median income have a high incidence of cases but reported lower deaths. Income inequality, as measured by the Gini coefficient, is found to be associated with more deaths and more cases. The remarkable similarity in the distribution of cases across the country and the distribution of distance-weighted international passengers served by the top international airports is evidence of the spread of the virus by way of international travel. The distributions of age, race and health risk factors such as obesity and diabetes are found to be particularly significant factors in explaining the differences in mortality across counties. Counties with better access to health care, as measured by the number of primary care physicians per capita, have lower deaths, and so do places with more health awareness as measured by flu vaccination prevalence. Environmental health conditions such as the amount of air pollution are found to be associated with counties with higher deaths from the virus. It is hoped that research such as these will help policymakers to develop risk factors for each region of the country to better contain the spread of infectious diseases in the future. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
47. A school‐based health centre partnership: Faculty practice, nursing student learning and wellness in youth, families and community.
- Author
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Beierwaltes, Patricia, Bell, Sue Ellen, Cornell, Rhonda, Ostrow, Laurel Gail, Schmitz, Nicole, Verchota, Gwen, Clisbee, David, Houston, Rebecca, and Eggenberger, Sandra K.
- Subjects
FAMILIES & psychology ,EVALUATION of medical care ,HEALTH education ,SCHOOL health services ,HEALTH services accessibility ,COMMUNITIES ,INTERVIEWING ,MEDICAL teaching personnel ,NURSING education ,LEARNING strategies ,HUMAN services programs ,QUALITATIVE research ,HEALTH ,PHILOSOPHY of education ,RESEARCH funding ,SOCIAL classes ,MEDICAL practice ,NURSING students ,HEALTH equity ,CONTENT analysis ,EDUCATIONAL outcomes ,HEALTH promotion ,SECONDARY analysis - Abstract
Aims and Objectives: This paper describes the development of a SBHC with an innovative model of care that grew out of a partnership between a public‐school district and a university nursing programme in the midwestern region of the United States. Background and Purpose: Persistent barriers to health and health care experienced by youth are well documented. School‐based health centres (SBHCs) can improve educational and health outcomes, positively impacting health equity. Academic systems are positioned to address health care needs of the school‐aged population, yet educators face challenges of accessing quality learning placements for students and faculty practice sites. Methods: A community‐based collaborative methodology guided the planning phases that were driven by priority needs identified by families and stakeholders. With the mission of "partnering with students, families, and communities in the promotion of health and wellness through engagement in practice, education, and research," an ongoing dialogue over a two‐year period led to articulating a vision, designing a plan and implementing a nurse‐managed SBHC. The Standards for Reporting Qualitative Research (SRQR) checklist was considered in the preparation of this paper. Results: In three years, this SBHC has addressed and identified priority needs and served individual youth and families. The SBHC provides opportunities for the faculty to fulfil a practice requirement for certification and accreditation. Nursing students engage with youth and families in health education and health promotion while strengthening their technical and relational skills. Family nurse practitioner students gain valuable clinical experience. Faculty with expertise in family nursing guide family assessments, support family resiliency and direct therapeutic conversations with family units. Conclusion: SBHCs serve youth, families, and community. This academic–practice partnership has the added benefit of providing faculty practice opportunities and nursing student experiential learning. Relevance to Clinical Practice: SHBCs provide practice opportunities that address needs in individuals, families, and communities. Partnerships should be considered at academic nursing programmes to support their needs and fulfil commitments to address health equity gaps. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
48. Rural-Urban disparities in self-reported physical/mental multimorbidity: A cross-sectional study of self-reported mental health and physical health among working age adults in the U.S.
- Author
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Rhubart, Danielle, Kowalkowski, Jennifer, and Yerger, Jordan
- Subjects
HEALTH services accessibility ,SELF-evaluation ,CROSS-sectional method ,MULTIPLE regression analysis ,MENTAL health ,POPULATION geography ,SOCIOECONOMIC factors ,SEX distribution ,DESCRIPTIVE statistics ,QUESTIONNAIRES ,RESEARCH funding ,HEALTH equity ,RURAL health ,URBAN health ,COMORBIDITY ,EVALUATION ,ADULTS - Abstract
Purpose: Self-rated physical health (SRPH) and self-rated mental health (SRMH) are both linked to excess morbidity and premature mortality and can vary across rural and urban contexts. This can be particularly problematic for rural residents who have less access to important health care infrastructure. In this paper, we assess the prevalence of and rural-urban disparities at the intersection of SRPH and SRMH, specifically self-rated physical/mental multimorbidity (SRPMM) overall and across rural-urban contexts. Methods: Using a cross-sectional demographically representative national dataset of over 4000 working age adults in the U.S., we expose rural-urban differences in the prevalence of SRPMM and explore individual-level factors that may explain this disparity. Results: Approximately 15 percent of working age adults reported SRPMM, but rural adults were at higher risk than their urban counterparts. However, this disadvantage disappeared for remote rural working-age adults and was attenuated for metro-adjacent rural working-age adults when we controlled for the fact that rural adults had lower household incomes. Conclusion: Findings reveal a higher risk of SRPMM among rural adults, in part because of lower incomes among this group. This work acts as the foundation for facilitating research on and addressing rural-urban disparities in SRPMM. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
49. Barriers and facilitators to healthcare for people without documentation status: A systematic integrative literature review.
- Author
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Clifford, Namuun, Blanco, Nancy, Bang, So Hyeon, Heitkemper, Elizabeth, and Garcia, Alexandra A.
- Subjects
ONLINE information services ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,HEALTH policy ,HEALTH services accessibility ,SYSTEMATIC reviews ,RESEARCH methodology ,COMMUNITY health services ,LANGUAGE & languages ,DOCUMENTATION ,HEALTH literacy ,QUALITY assurance ,HEALTH insurance ,SOCIAL classes ,EMPLOYMENT ,CULTURAL competence ,GOVERNMENT policy ,MEDLINE ,HEALTH equity ,THEMATIC analysis ,PSYCHOLOGICAL resilience - Abstract
Aims: To identify the barriers and facilitators to healthcare for people without documentation status. Design: We conducted a systematic integrative literature review following the Whittemore and Knafl methodology. Methods: Literature search was conducted to identify studies addressing barriers or facilitators to healthcare for people without documentation status in the United States between 2012 and 2022. Studies were critiqued for quality, with results analysed thematically using the social‐ecological model. Data Sources: Searches were conducted in PubMed, PAIS, Web of Science, CINAHL and Psych Info in October 2022. Results: The review incorporated 30 studies (19 qualitative and 11 quantitative). People without documentation status encountered numerous healthcare barriers such as intrapersonal (lack of financial resources and health insurance, fear), interpersonal (language and cultural discrepancies, discrimination), community (bureaucratic requirements, anti‐immigrant rhetoric) and policy‐related barriers. Conversely, linguistically and culturally competent care, empathetic and representative staff, health navigators, safety‐net clinics and supportive federal policies emerged as key facilitators. Conclusion: These findings illuminate the complex healthcare disparities experienced by people without documentation status and underscore facilitators enhancing care accessibility. Future research is needed to explore interventions to increase access to care for this population. Impact: This paper provides a comprehensive examination of the complex barriers and facilitators to healthcare for people without documentation status in the United States. The findings support the value of universal healthcare access, a priority of the World Health Organization, and can inform healthcare policies and practices worldwide. Reporting Method: The review was reported following the Preferred Reporting Items for Systematic Reviews and Meta‐Analyses framework. Patient or Public Contribution: No patient or public contribution was needed. Trial and Protocol Registration: The study protocol was registered with the PROSPERO database (registration number: CRD42022366289). [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
50. Pathways and processes to the embodiment of historical trauma secondary to settler colonialism.
- Author
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Thomas, Nicole A., Owen, Brenda, Ersig, Anne L., and Bratzke, Lisa C.
- Subjects
CULTURE ,NURSING ,SOCIAL determinants of health ,HEALTH services accessibility ,PRACTICAL politics ,HEALTH of indigenous peoples ,PHYSIOLOGY ,SOCIAL theory ,HISTORICAL trauma ,SOCIAL justice ,RISK assessment ,CONCEPTUAL structures ,PHYSIOLOGICAL adaptation ,PSYCHOSOCIAL factors ,THEORY ,INDIGENOUS peoples ,HOLISTIC nursing ,ROOT cause analysis ,HEALTH equity ,PSYCHOLOGICAL stress - Abstract
Aim(s): This discursive article aims to examine how systemic factors of settler colonialism influence health outcomes among Indigenous peoples in the United States through pathways and processes that may lead to the embodiment of historical trauma. Design: Discursive paper. Methods: We completed a comprehensive search of empirical and grey literature between September 2022 and January 2023 in PubMed, CINAHL and Google Scholar. Using these articles as a foundation, we explored factors related to the pathways and processes leading to the embodiment of historical trauma rooted in settler colonialism. Results: A conceptual framework of the pathways and processes of the embodiment of historical trauma secondary to settler colonialism was developed, and is presented. Conclusion: The societal and historical context for Indigenous peoples includes harmful settler colonial structures and ideologies, resulting in stressors and historical trauma that impact health outcomes and disparities through the phenomenon of the process of embodiment. Implications for Nursing: To provide holistic nursing care, nurses must be aware of settler colonialism as a determinant of health. They must be attuned to the pathways and processes through which settler colonial exposures may impact health among Indigenous peoples. Nurses must challenge existing structural inequities to advance health equity and social justice. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
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