277 results
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2. Recommendations of good practice to prevent aspiration pneumonia in older adults at risk of oropharyngeal dysphagia living in nursing homes: A modified e‐Delphi study protocol.
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Santos, Joana M. L. G., Ribeiro, Oscar, Jesus, Luis M. T., Sa‐Couto, Pedro, and Matos, Maria Assunção C.
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RISK assessment , *MALNUTRITION , *MEDICAL quality control , *PROFESSIONAL practice , *RESEARCH funding , *QUALITATIVE research , *ASPIRATION pneumonia , *QUESTIONNAIRES , *PILOT projects , *STATISTICAL sampling , *CONTENT analysis , *ORAL hygiene , *QUANTITATIVE research , *DESCRIPTIVE statistics , *SURVEYS , *STATISTICS , *ONLINE education , *DATA analysis software , *DELPHI method , *DEGLUTITION disorders , *DISEASE risk factors , *OLD age - Abstract
Background: Aspiration pneumonia (AP) is a subset of pneumonia caused by the aspiration of food and fluids to the lungs and is highly prevalent in the older population. Oropharyngeal dysphagia (OD) is one of the risk factors for AP and it is also associated with malnutrition, dehydration and poor functional outcomes. As pneumonia is the second most common infection in nursing homes (NHs) and OD represents a major concern to NH staff, good practices for the prevention of AP in older adults at risk of OD are needed. Purpose: The aim of this modified e‐Delphi study is to build consensus among a panel of experts regarding a set of recommendations for NH staff on good practices to prevent AP in older adults at risk of OD living in NHs. The objective of this paper is to establish the methodology inherent to the Delphi study. Methods: An online modified Delphi study will be developed in three rounds. Criteria for the Delphi panel participants include holding a master's or doctoral degree in OD or speech and language therapy; or having 10 or more years of experience in OD; or having at least one scientific publication related to OD. A previously described modified Delphi methodology will be used to achieve consensus (75% agreement). An additional round will be performed to collect the experts' perspectives regarding the priority for application of each recommendation previously validated. Discussion: This protocol aimed to describe the methodology of a future Delphi study on the prevention of AP, seeking to fulfil the gap in the literature regarding this topic. The modified Delphi technique is a widely used method for collecting experts' opinion in health sciences, but the absence of standardised guidelines allows some heterogeneity between studies with the same aim. WHAT THIS PAPER ADDS: What is already known on the subject: Aspiration pneumonia (AP) is related to three main risk factors: impaired safety of swallow, impaired nutritional status and poor oral health. It is known that being dependent for feeding is one of the main risk factors for AP and around 50% of nursing home (NH) residents need feeding assistance. Thus, it is important to promote specialised intervention and care by the NH staff for preventing AP. What this paper adds to existing knowledge: It is hypothesised that increasing the knowledge of NH staff regarding the best practices for preventing AP in older adults at risk of oropharyngeal dysphagia (OD) will improve outcomes such as quality of life, incidence of AP and mortality. What are the potential or actual clinical implications of this work?: The recommendations resulting from this study will address a current gap in healthcare practice of NH staff regarding older adults at increased risk for OD and, consequently, for AP. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Modes of relating to the new ICTs among older internet users: a qualitative approach.
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Coelho, Ana Rita
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INTERNET access , *DIGITAL technology , *QUALITATIVE research , *RESEARCH funding , *DIGITAL divide , *CONSUMER attitudes , *INTERVIEWING , *STATISTICAL sampling , *INFORMATION technology , *PSYCHOLOGICAL adaptation , *DESCRIPTIVE statistics , *COMMUNICATION , *QUALITY of life , *DATA analysis software , *OLD age - Abstract
Older people have increasingly been using the new information and communication technologies (ICTs), namely the internet. Seeking to contribute with substantive information on their digital inclusion, this paper focuses on the adoption and use of ICTs by older adults, highlighting their experiences and considering their plurality. Taking a qualitative approach, the core goal of the empirical research underlying this paper was to understand what mechanisms and modalities configure the relationship of older internet users with the new ICTs. With that objective in mind, interviews were conducted with 20 internet users over the age of 60. Those interviews, which included a biographical element, were subjected to multi-categorical analysis. Results suggest a typology of modes of relating to the new ICTs among older internet users that reflects different trajectories, practices, skills, significances and impacts. The analysis shows how life trajectories and differentiated uses are reflected in equally differentiated impacts for older adults, contributing to their quality of life in different ways and to different degrees. Digital skills play a fundamental role in enhancing or limiting those effects. The results of this research help break down the stereotypes associated with the older generations and may have relevant implications for the design of digital inclusion policies and initiatives. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Creating a family centre by categorising clients in a steering group meeting interaction.
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Räsänen, Jenni-Mari, Raitakari, Suvi, and Juhila, Kirsi
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MEETINGS , *ATTITUDES of medical personnel , *WORK , *FAMILY health , *COMMUNITY health services , *FAMILY-centered care , *QUALITATIVE research , *HEALTH care reform , *DESCRIPTIVE statistics , *SOUND recordings , *INTERPROFESSIONAL relations , *EXPERIENTIAL learning , *RESEARCH funding , *DATA analysis software , *GROUP dynamics , *FAMILY services , *SOCIAL case work - Abstract
This paper studies the creation of organisations via people processing (Prottas 1979), taking as its case study a new and developing family centre that aims to offer various social and health services under the same roof. The study draws on ethnomethodology, meaning that organisations are herein understood as being created and continuously produced in and through interaction. The data consist of 11 audio-recorded meetings from the centre's steering group, which includes managers from different service fields and welfare agencies. In analysing the creation of the centre through people processing, this paper scrutinises how the meeting participants orient themselves toward and produce the centre's client categories, what characteristics they connect to these categories, and how they do boundary work regarding which categories belong or not to the centre's target groups. The meeting participants produce three different family based client categories. The first category is ordinary families, those without any special problems who just pop into the centre to see other people. These families are distinguished from the second category, best matching families, who are defined as having problems that would benefit from the integrated, multi-professional work conducted at the centre. The third category, families with too specific needs, refers to client groups whose service needs are at least partly beyond the centre's expertise and resources. The centre needs these people-processing activities to make sense of its mission, clients and co-partners; this ongoing reasoning process allows the emerging centre to exist and find its place in the local service system. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Exploring organisational readiness to implement a preventive intervention in Australian general practice for overweight and obese patients: key learnings from the HeLP-GP trial.
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Parker, Sharon, Tran, An, Saito, Shoko, McNamara, Carmel, Denney-Wilson, Elizabeth, Nutbeam, Don, and Harris, Mark Fort
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PREVENTION of obesity , *REGULATION of body weight , *MOTIVATION (Psychology) , *LEADERSHIP , *QUANTITATIVE research , *RETROSPECTIVE studies , *ORGANIZATIONAL change , *FAMILY nurses , *QUALITATIVE research , *SURVEYS , *CONCEPTUAL structures , *HUMAN services programs , *WEIGHT loss , *DESCRIPTIVE statistics , *RESEARCH funding , *COMMUNICATION , *DATA analysis software , *WORKING hours , *HEALTH promotion , *CORPORATE culture - Abstract
Background: The HeLP-GP trial aimed to increase the capacity of practice nurses to deliver weight management to overweight and obese patients through an intervention comprising a health check, a lifestyle app and/or telephone coaching. This paper describes implementation through the lens of organisational readiness with emphasis on the role of the practice nurse. Methods: Routinely collected mixed method research data including practice surveys, field notes, and diaries and process data were mapped against the domains: motivation to implement, general capacity and intervention-specific capacity. Results: Organisational readiness varied considerably, particularly the domain of intervention-specific capacity. Practice nurse turnover negatively impacted the implementation, affecting half of the practices. We observed a general lack of practice-based support for intervention delivery, and varying levels of interest, skill and confidence in delivering the intervention. Nurses struggled to complete the research and intervention tasks in a timely way. Conducting risk assessments and referring to coaching were generally not problematic; however, we noted lower confidence levels with the lifestyle app and instructing patients to use it. Conclusions: We found a lack of general 'readiness' inherent in the nursing role, particularly related to their capacity to complete intervention tasks and practice-level support to implement the intervention. For nurses in general practice to fulfil their potential in supporting patients to reduce risk and adopt healthier life choices, our study indicates that more could be done to improve their workforce positioning and remuneration, which may, in turn, improve continuity of care, retention and individual motivation. General practice nurses play a key role in delivering prevention. This paper describes the experience of implementing a nurse-led obesity intervention in Australian general practice through the lens of organisational readiness. Our results suggest that for nurses in general practice to fulfil their potential in supporting patients to reduce risk and adopt healthier life choices, more could be done to improve their workforce positioning and remuneration, which may, in turn, improve continuity of care, retention and individual motivation. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Challenges to an Individualized Approach Toward Batterers Intervention Programs in the Context of Coordinated Community Response to the Intimate Partner Violence in Lithuania.
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Michailovič, Ilona, Vaičiūnienė, Rūta, Justickaja, Svetlana, and Viršilas, Vaidas
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FOCUS groups , *RESEARCH methodology , *INDIVIDUALIZED medicine , *INTERVIEWING , *INTIMATE partner violence , *HUMAN services programs , *QUALITATIVE research , *COMMUNITY-based social services , *RESEARCH funding , *ABUSED women , *STATISTICAL sampling , *DATA analysis software - Abstract
Purpose: Although batterers' intervention programs (BIPs) constitute an important part of the coordinated response to intimate partner violence (IPV) and contribute to increasing the perpetrators' accountability and keeping victims safe, the effectiveness of these programs is still debated. Only recently has the focus of these debates shifted away from researching outcomes by measuring overall program effectiveness toward specific qualities of interventions across program models that may be effective for the distinct client (Babcock et al., Clinical Psychology Review,23(8), 1023–1053, 2004; Zarling et al., Psychology of Violence,9(3), 257–266, 2019). The discussion on the practical implementation of BIPs was supplemented by various significant concepts emerging from new empirical findings, such as differential treatment, motivational interviewing, and effective facilitator–client alliances (Hamel et al., Partner Abuse,11(4), 387–414, 2020; Holtrop et al., Journal of Interpersonal Violence,32(8), 1267–1290, 2017). This paper aimed to address some of the abovementioned concepts by identifying challenges that arise during the implementation of BIPs in Lithuania. Methods: Using qualitative data from semi-structured interviews and focus group discussions with BIPs facilitators, BIPs attendees, and various stakeholders, the paper discusses how to contribute to more effective BIPs outcomes. Results: According to this study, the process of implementing BIPs in Lithuania should be systematized by incorporating existing instruments, such as motivational interviewing, risk-based assessment, and differential treatment, evidence-based programs focused on different theoretical approaches, and forms of implementation. Conclusion: The study found that the consistency and integrity of the entire BIP implementation process should be prioritized, and institutional cooperation in Lithuania needs to be improved to achieve a successful coordinated response to intimate partner violence. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Decisional conflict in parents of children with congenital heart defect: Towards development of a model.
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So, Iris C.
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RESEARCH , *STRUCTURAL equation modeling , *CARDIAC surgery , *STATISTICAL power analysis , *NURSING models , *SOCIAL support , *PARENTS of children with disabilities , *AGE distribution , *MULTIPLE regression analysis , *CONGENITAL heart disease , *SATISFACTION , *INTERVIEWING , *MEDICAL personnel , *QUANTITATIVE research , *CONFLICT (Psychology) , *TREATMENT delay (Medicine) , *QUALITATIVE research , *INCOME , *PATIENTS' families , *URBAN hospitals , *SEVERITY of illness index , *SEX distribution , *CRONBACH'S alpha , *PSYCHOSOCIAL factors , *PATIENT-family relations , *DECISION making , *HOSPITAL nursing staff , *FACTOR analysis , *SOCIAL classes , *DESCRIPTIVE statistics , *QUESTIONNAIRES , *CHI-squared test , *RESEARCH funding , *PSYCHOLOGICAL adaptation , *STATISTICAL correlation , *SOCIAL services , *PHYSICIANS , *THEMATIC analysis , *MARITAL status , *DATA analysis software , *INSURANCE , *CONTROL (Psychology) - Abstract
Aim: This study aimed to develop a model to help parents cope with decisional conflict. Background: Parents of children with congenital heart defect experience decisional conflict when they are uncertain about treatment decisions for their child, which may lead to delay in seeking care or distress over the decision made. Design: Correlational design with model building and data triangulation was used. Methods: Data were collected through surveys and interviews with a consecutive sample of 221 parent respondents from June to December 2018. Structural equation modelling and qualitative data analysis were used. Results: Lower decisional conflict was seen in parents with higher income, more nurse support and physician risk communication. Time delay for surgery was correlated with the child's age, social service coverage, and social support. Decisional conflict mediated the influence of income, nurse support and physician risk communication on satisfaction with decision. Based on model fit parameters, the emerging model is a good and parsimonious model of decisional conflict. The overall theme, 'Deciding for Surgery: What Matters Most', described the processes parents went through in making treatment decisions. Conclusion: Nurses may help parents feel more certain, less conflicted, and more satisfied with their decision by addressing factors including knowledge gaps, personal values, available support, and resource access. Summary statement: What is already known about this topic? Decisional conflict occurs when parents are uncertain of the best action for their child because treatment options entail risks for undesirable outcomes, value compromise, unclear prognosis, or anticipated regret over the decision.Professional support, information, and communication are vital to parents' decision‐making process.Child, parent, and support factors may influence parent treatment decisions in varied paediatric conditions. What this paper adds? Child's age at the time of decision‐making had an effect on the delay in surgery. However, assisting parents to weigh their options and focus on personal values allowed them to make their treatment decision.Low income, costly health services, and bureaucratic processes impeded the timely availment of surgery. Healthcare reforms that provide a system of government funding, streamlined health structure, and social insurance may be looked into.Family support weighed in on the parents' decision to delay surgery for fear of blame or guilt. Providing relevant information enabled parents to make a choice and stand by their decision regardless of the outcome. The implications of this paper: Modelling provides a framework to identify which factors are more important and how they interact to affect decision‐making. It may be used as an approach to find solutions to clinical problems for groups with different diagnoses.Though nursing support, information, and communication are essential, a more holistic family nursing care approach may be considered to assist parents to make appropriate treatment decisions for their child.Familiarity with the healthcare system may equip nurses to aid parents in processing available healthcare funding and dealing with financial uncertainty affecting decisions for their child's treatment. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Living with multimorbidity: A qualitative exploration of shared experiences of patients, family caregivers, and healthcare professionals in managing symptoms in the United States.
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Peeler, Anna, Nelson, Katie, Agrawalla, Vidisha, Badawi, Sarah, Moore, Robyn, Li, David, Street, Lara, Hager, David N., Dennison Himmelfarb, Cheryl, Davidson, Patricia M., and Koirala, Binu
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HEALTH services accessibility , *MEDICAL care use , *QUALITATIVE research , *ACADEMIC medical centers , *STATISTICAL significance , *RESEARCH funding , *HOSPITAL care , *STATISTICAL sampling , *SYMPTOM burden , *DISCHARGE planning , *SERVICES for caregivers , *DESCRIPTIVE statistics , *SUBACUTE care , *THEMATIC analysis , *CAREGIVERS , *ATTITUDES of medical personnel , *QUALITY of life , *PHYSICIAN-patient relations , *COMMUNICATION , *MATHEMATICAL models , *CONCEPTUAL structures , *HONESTY , *THEORY , *DATA analysis software , *COMORBIDITY , *PATIENTS' attitudes , *CAREGIVER attitudes , *HEALTH care teams - Abstract
Aims: To elicit experiences of patients, family caregivers, and healthcare professionals in intermediate care units (IMCUs) in an academic medical centre in Baltimore, MD related to the challenges and intricacies of multimorbidity management to inform development of a multimorbidity symptom management toolkit. Design: Experience‐based co‐design. Methods: Between July and October 2021, patients aged 55 years and older with multimorbidity admitted to IMCUs at an academic medical centre in Baltimore, Maryland, USA were recruited and interviewed in person. Interdisciplinary healthcare professionals working in the IMCU were interviewed virtually. Participants were asked questions about their role in recognizing and treating symptoms, factors affecting the quality of life, symptom burden and trajectory over time, and strategies that have and have not worked for managing symptoms. An inductive thematic analysis approach was used for analysis. Results: Twenty‐three interviews were conducted: 9 patients, 2 family caregivers, and 12 healthcare professionals. Patients' mean age was 67.5 (±6.5) years, over half (n = 5) were Black or Hispanic, and the average number of comorbidities was 3.67. Five major themes that affect symptom management emerged: (1) the patient–provider relationship; (2) open and honest communication; (3) accessibility of resources during hospitalization and at discharge; (4) caregiver support, training, and education; and (5) care coordination and follow‐up care. Conclusion: Patients, caregivers, and healthcare professionals often have similar goals but different priorities for multimorbidity management. It is imperative to identify shared priorities and target holistic interventions that consider patient and caregiver experiences to improve outcomes. Implications for the Profession and/or Patient Care and Impact: This paper addresses the paucity of research related to the shared experience of disease trajectory and symptom management for people living with multimorbidity. We found that patients, caregivers, and healthcare professionals often have similar goals but different care and communication priorities. Understanding differing priorities will help better design interventions to support symptom management so people with multimorbidity can have the best possible quality of life. Reporting Method: We have adhered to the Consolidated Criteria for Reporting Qualitative Studies (COREQ) guidelines in our reporting. Patient or Public Contribution: This study has been designed and implemented with patient and public involvement throughout the process, including community advisory board engagement in the project proposal phase and interview guide development, and member checking in the data collection and analysis phases. The method we chose, experience‐based co‐design, emphasizes the importance of engaging members of a community to act as experts in their own life challenges. In the coming phases of the study, the public will be involved in developing and testing a new intervention, informed by these qualitative interviews and co‐design events, to support symptom management for people with multimorbidity. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Workforce training needs to address social and emotional wellbeing in home-based Aboriginal and Torres Strait Islander aged care.
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Parrella, Adriana, Zagler, Jonathon, D'Antoine, Matilda, Brodie, Tina, Smith, Kate, Watts, Aunty Martha, Ieremia, Tameeka, Aitken, Graham, Brown, Alex, and Pearson, Odette
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ELDER care , *HOME care services , *RESEARCH funding , *QUALITATIVE research , *DESCRIPTIVE statistics , *JUDGMENT sampling , *TORRES Strait Islanders , *THEMATIC analysis , *RESEARCH methodology , *NEEDS assessment , *SOCIAL support , *DATA analysis software , *LABOR supply , *WELL-being - Abstract
Objective: To explore the training needs of the home care workforce in supporting the social and emotional wellbeing (SEWB) of Aboriginal and Torres Strait Islander peoples receiving aged care services through the Home Care Package (HCP) Program. Methods: A mixed-methods design including (1) a focus group and interview with coordinators of HCP Program services for Aboriginal and Torres Strait Islander peoples across metropolitan and rural South Australia in April and June 2022, and (2) a desktop review of training, professional development opportunities and resources for existing and pre-entry workforce addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care across the Vocational Education Training and higher education sectors in South Australia, the Australian Indigenous HealthInfoNet, the Department of Health and Aged Care website and aged care email alerts between December 2021 and September 2022. Results: Five themes representing workforce training needs were identified: cultural safety, trauma-informed care, case management, compliance with funding rules and preferred formats for training. The desktop review identified a paucity of formal training, professional development and resources within the context of addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care. Conclusions: These findings suggest that ongoing practice-based professional development learning opportunities are needed within organisations to enhance peer-learning and support. These need to be available together with dedicated formal training programs and practical resources on meeting Aboriginal and Torres Strait Islander peoples' SEWB in aged care. What is known about the topic? Supporting social and emotional wellbeing is an important aspect of delivering quality aged care for Aboriginal and Torres Strait Islander peoples. What does this paper add? Insights into workforce training needs which support the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples in home-based aged care. What are the implications for practitioners? Ongoing practice-based learning opportunities, training and resources are needed to enhance peer-learning and support workforce in supporting Aboriginal and Torres Strait Islander peoples' social and emotional wellbeing in aged care. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Evolution of advanced practice nursing in acute care in Germany: A cross‐sectional study of nurses' scope of practice.
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von der Lühe, Verena, Roos, Marcelina, Adams, Anne, Scholten, Nadine, Köpke, Sascha, and Dichter, Martin Nikolaus
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NURSES , *CROSS-sectional method , *PATIENT selection , *SCALE analysis (Psychology) , *PEARSON correlation (Statistics) , *EVIDENCE-based nursing , *OCCUPATIONAL roles , *MEDICAL quality control , *RESEARCH funding , *ACADEMIC medical centers , *QUALITATIVE research , *QUESTIONNAIRES , *STATISTICAL sampling , *HUMAN research subjects , *KRUSKAL-Wallis Test , *LEADERSHIP , *NURSING , *QUANTITATIVE research , *DESCRIPTIVE statistics , *CHI-squared test , *NURSING education , *SURVEYS , *ADVANCED practice registered nurses , *NURSING practice , *DATA analysis software , *SOCIODEMOGRAPHIC factors , *CRITICAL care medicine - Abstract
Aim: To describe activities and professional characteristics of nurses in expanded roles in acute care in Germany and achieve a greater understanding of the current situation of advanced practice nursing. Background: Advanced practice nursing plays an important role in meeting increased demands in healthcare and promoting high‐quality care. Introduction: In Germany, advanced practice nursing is still at an early stage with a lack of studies describing the scope of practice of nurses in expanded roles. Methods: We conducted a cross‐sectional‐study using a paper‐and‐pencil questionnaire. In a nationwide convenience sample, we surveyed nurses with an academic degree, who work in an acute care hospital and take over expanded roles in direct patient care. Reporting followed the STROBE checklist. Results: Of 108 eligible nurses, 84 (77%) completed the survey. The majority had a Master's degree (63.1%) and the average work experience was 18.2 years. Participants carried out activities in all the domains that were queried (direct clinical practice, guidance and coaching, consultation, leadership and research) with differences within and between domains. Foci were on direct clinical practice and coaching and guidance. Discussion: In Germany, qualifications are nearing the international standard of advanced practice nursing. Results suggest that participants partly undertake activities within the scope of registered nurses' practice that do not correspond fully to their formal qualifications. Conclusion and implications for nursing and/or health policy: In order to foster the role development of expanded practice nurses in Germany, political efforts are needed in terms of training (e.g. specific Master's programmes), funding of corresponding positions in practice and control mechanisms (e.g. professional registration). [ABSTRACT FROM AUTHOR]
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- 2024
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11. Implementation of a crisis resolution team service improvement programme: a qualitative study of the critical ingredients for success.
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Lamb, Danielle, Milton, Alyssa, Forsyth, Rebecca, Lloyd-Evans, Brynmor, Akther, Syeda, Fullarton, Kate, O'Hanlon, Puffin, Johnson, Sonia, and Morant, Nicola
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HOME care services , *TEAMS in the workplace , *HUMAN services programs , *QUALITATIVE research , *FOCUS groups , *INTERPROFESSIONAL relations , *RESEARCH funding , *INTERVIEWING , *EVALUATION of human services programs , *CRISIS intervention (Mental health services) , *JUDGMENT sampling , *DESCRIPTIVE statistics , *THEMATIC analysis , *ATTITUDES of medical personnel , *RESEARCH methodology , *COMMUNICATION , *QUALITY assurance , *DATA analysis software , *STAKEHOLDER analysis - Abstract
Background: Crisis Resolution Teams (CRTs) offer home-based care for people in mental health crisis, as an alternative to hospital admission. The success of CRTs in England has been variable. In response to this, the CRT Optimization and RElapse prevention (CORE) study developed and trialled a 12-month Service Improvement Programme (SIP) based on a fidelity model. This paper describes a qualitative evaluation of the perspectives of CRT staff, managers, and programme facilitators. We identify barriers and facilitators to implementation, and mechanisms by which service improvements took place. Methods: Managers and staff from six purposively sampled CRTs were interviewed, as well as six facilitators who were employed to support the implementation of service improvement plans. Semi-structured focus groups and individual interviews were conducted and analysed using thematic analysis. Findings: A majority of participants viewed all components of the SIP as helpful in improving practice, although online resources were under-used. Perceived barriers to implementation centred principally around lack of staff time and ownership. Support from both senior staff and facilitators was essential in enabling teams to undertake the work associated with the SIP. All participating stakeholder groups reported that using the fidelity model to benchmark their CRT work to best practice and feel part of a 'bigger whole' was valuable. Conclusion: CRT staff, managers and programme facilitators thought that a structured service improvement programme helped to increase fidelity to a best practice model. Flexibility (from all stakeholders) was key to enable service improvement actions to be manageable within time- and resource-poor teams. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Towards understanding the mechanism through which reward and punishment motivate or demotivate behaviours.
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Orji, Rita, Alslaity, Alaa, and Chan, Gerry
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BEHAVIORAL assessment , *PESSIMISM , *SCALE analysis (Psychology) , *REINFORCEMENT (Psychology) , *HABIT , *OPTIMISM , *HEALTH attitudes , *QUALITATIVE research , *RISK-taking behavior , *T-test (Statistics) , *RESEARCH funding , *POSITIVE psychology , *QUESTIONNAIRES , *PARAMETERS (Statistics) , *DESCRIPTIVE statistics , *QUANTITATIVE research , *GOAL (Psychology) , *CHI-squared test , *REWARD (Psychology) , *GAMES , *MOTIVATION (Psychology) , *MATHEMATICAL statistics , *THEMATIC analysis , *PUNISHMENT , *RESEARCH , *HEALTH behavior , *COMMITMENT (Psychology) , *ALCOHOL drinking , *DATA analysis software , *GAMIFICATION , *WELL-being - Abstract
Persuasive gamified systems are effective tools for motivating behaviour change using various persuasive strategies. In line with the reinforcement theory, some persuasive gamified systems employ reward and punishment in their design to achieve the intended behavioural outcome. Research has argued both in favour and against using these strategies in behaviour change applications due to mixed results with respect to their effectiveness. However, there is a lack knowledge about how interventions using these strategies could motivate or demotivate behaviours. Therefore, this paper explores the mechanism through which Reward and Punishment motivate or demotivate behaviours with respect to their strengths and weaknesses. The results of large-scale exploratory studies (N = 1768) uncover important strengths and weaknesses that could facilitate or hinder the effectiveness of Reward and Punishment at motivating behaviour change. These include their ability to engage users and make behaviour fun, reinforce commitments to goals, and reveal some consequences of bad behaviour. We also compared the perceived effectiveness of reward and punishment quantitatively. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Implementation and Mixed-Methods Assessment of an Early Mobility Interprofessional Education Simulation.
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Smith, Leslie M., Campbell, Denise, Prush, Nicholas, Trojanowski, Suzanne, Sherman, Erica, and Yost, Elizabeth
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INTERDISCIPLINARY education , *SCALE analysis (Psychology) , *TEAMS in the workplace , *INTERPROFESSIONAL relations , *HUMAN services programs , *RESPIRATORY therapy , *QUALITATIVE research , *SATISFACTION , *RESEARCH funding , *HEALTH occupations students , *QUESTIONNAIRES , *MEDICAL care , *EARLY ambulation (Rehabilitation) , *QUANTITATIVE research , *DESCRIPTIVE statistics , *SIMULATION methods in education , *THEMATIC analysis , *STUDENTS , *ARTIFICIAL respiration , *OCCUPATIONAL therapy students , *RESEARCH methodology , *CLINICAL competence , *COMMUNICATION , *STUDENT attitudes , *COMPARATIVE studies , *DATA analysis software , *HEALTH care teams , *NURSING students , *PHYSICAL therapy students - Abstract
Introduction: Extended periods of bed rest and mechanical ventilation (MV) have devastating effects on the body. Background: Early mobility (EM) for patients in respiratory failure is safe and feasible, and an interprofessional team is recommended. Using simulation to train EM skills improves student confidence. The purpose of this study was to enable health care student collaboration as an interprofessional team in providing safe management and monitoring during an EM simulation for a patient requiring MV. Methods: Nursing (n = 33), respiratory (n = 7), occupational (n = 24), and physical therapist students (n = 55) participated in an EM interprofessional education (IPE) simulation experience. A mixed-methods analytic approach was used with pre/post quantitative analysis of the Student Perceptions of Interprofessional Clinical Education--Revised, Version 2 instrument and qualitative analysis of students' guided reflection papers. Results: Pre/post surveys completion rate was 39.5% (n = 47). The Student Perceptions of Interprofessional Clinical Education--Revised, Version 2 instrument indicated a significant improvement (P = .037) in students' perceptions of interprofessional collaborative practice. Qualitative data showed a positive response to the EM simulation IPE. Themes reflected all 4 Interprofessional Education Collaborative competencies. Discussion: This study demonstrated improved perception of interprofessional collaborative practice and better understanding of the Interprofessional Education Collaborative competencies. Conclusion: Students collaborated in the simulation-based IPE to provide EM for a patient requiring MV and reported perceived benefits of the experience. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Interactions that support older inpatients with cognitive impairments to engage with falls prevention in hospitals: An ethnographic study.
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Mcvey, Lynn, Alvarado, Natasha, Zaman, Hadar, Healey, Frances, Todd, Chris, Issa, Basma, Woodcock, David, Dowding, Dawn, Hardiker, Nicholas R., Lynch, Alison, Davison, Eva, Frost, Tina, Abdulkader, Jamil, and Randell, Rebecca
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EMPATHY , *RESEARCH funding , *QUALITATIVE research , *PATIENT safety , *ETHNOLOGY research , *INTERVIEWING , *HOSPITAL patients , *DESCRIPTIVE statistics , *COGNITION disorders , *PATIENT-professional relations , *RESEARCH methodology , *DELIRIUM , *DATA analysis software , *DEMENTIA , *ACCIDENTAL falls , *OLD age - Abstract
Aims: To explore the nature of interactions that enable older inpatients with cognitive impairments to engage with hospital staff on falls prevention. Design: Ethnographic study. Methods: Ethnographic observations on orthopaedic and older person wards in English hospitals (251.25 h) and semi‐structured qualitative interviews with 50 staff, 28 patients and three carers. Findings were analysed using a framework approach. Results: Interactions were often informal and personalised. Staff qualities that supported engagement in falls prevention included the ability to empathise and negotiate, taking patient perspectives into account. Although registered nurses had limited time for this, families/carers and other staff, including engagement workers, did so and passed information to nurses. Conclusions: Some older inpatients with cognitive impairments engaged with staff on falls prevention. Engagement enabled them to express their needs and collaborate, to an extent, on falls prevention activities. To support this, we recommend wider adoption in hospitals of engagement workers and developing the relational skills that underpin engagement in training programmes for patient‐facing staff. Implications for Profession and Patient Care: Interactions that support cognitively impaired inpatients to engage in falls prevention can involve not only nurses, but also families/carers and non‐nursing staff, with potential to reduce pressures on busy nurses and improve patient safety. Reporting Method: The paper adheres to EQUATOR guidelines, Standards for Reporting Qualitative Research. Patient or Public Contribution: Patient/public contributors were involved in study design, evaluation and data analysis. They co‐authored this manuscript. [ABSTRACT FROM AUTHOR]
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- 2024
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15. 'It's overwhelming at the start': transitioning to public transit use as an older adult.
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Ravensbergen, Léa, Newbold, K. Bruce, and Ganann, Rebecca
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ACTIVE aging , *CONFIDENCE , *TRAVEL , *RESEARCH methodology , *INTERVIEWING , *SELF-efficacy , *QUALITATIVE research , *ABILITY , *TRAINING , *ACCESSIBLE design of public spaces , *PHYSICAL mobility , *RESEARCH funding , *SOCIAL attitudes , *PSYCHOLOGICAL adaptation , *DATA analysis software , *SOCIAL skills , *TRANSPORTATION , *OLD age - Abstract
Independent mobility is an important component of healthy ageing. Public transit may be an affordable way to achieve independent mobility, and yet little is known about older adults' transition to public transit. This paper addresses this research gap by providing an exploration of older adults' experiences transitioning to public transit use, and by comparing these experiences to those of older people who have always travelled using transit. Twenty-four older adults (65+) living in Hamilton, Canada, who use public transit completed semi-structured interviews during which they discussed their experiences when they first began to use transit. These experiences are framed herein with the concept self-efficacy, i.e. how one's belief in their ability to complete a task shapes their ability to complete said task. Results indicate that most older adults acquire skills to transition to public transit, such as trip planning, boarding, knowing where to sit and exiting the bus. These skills are developed through practice. As one gains experience, one becomes more confident in their ability to meet their daily travel needs using transit. Therefore, the transition to public transit as an older adult can be more challenging for those with little experience using public transit. This paper highlights the danger of assuming all older adults will effortlessly take up transit and stresses the importance of older adults gaining experience using public transit. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Certified Registered Nurse Anaesthetists' and Critical Care Registered Nurses' perception of knowledge/power in teamwork with Anaesthesiologists in Sweden: a mixed-method study.
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Wising, Jenny, Ström, Madelene, Hallgren, Jenny, and Rambaree, Komalsingh
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TEAMS in the workplace , *MEDICAL quality control , *INTENSIVE care units , *OPERATING rooms , *NURSES' attitudes , *PROFESSIONS , *ANESTHESIOLOGISTS , *NURSING , *RESEARCH methodology , *NURSE-physician relationships , *QUANTITATIVE research , *NURSE anesthetists , *CRITICAL care nurses , *CONFLICT management , *QUALITATIVE research , *PSYCHOSOCIAL factors , *INTERPROFESSIONAL relations , *RESEARCH funding , *DESCRIPTIVE statistics , *HEALTH care teams , *DATA analysis software - Abstract
Efficient teamwork is crucial to provide optimal health care. This paper focuses on teamwork between Anaesthesiologists (ANES), Certified Registered Nurse Anaesthetists' (CRNA) and Critical Care Registered Nurses (CCRN) working in challenging environments such as the intensive care unit (ICU) and the operating room (OR). Conflicts are common between physicians and nurses, negatively impacting teamwork. Social hierarchies based on professional status and power inequalities between nurses and physicians plays a vital role in influencing teamwork. Foucault was a famous thinker especially known for his reasoning regarding power/knowledge. A Foucauldian perspective was therefore incorporated into this paper and the overall aim was to explore CCRN/CRNA perception of knowledge/power in teamwork with ANES. Methods A mixed-method approach was applied in this study. Data was collected using a web-based questionnaire containing both closed-end and open-ended questions. A total of 289 CCRNs and CRNAs completed the questionnaire. Data analysis was then conducted through five stages as outlined by Onwuebugzie and Teddlie; analysing quantitative data in SPSS 27.0 and qualitative data with a directed content analysis, finally merging data together in ATLAS.ti v.23. Results The result reveals a dissonance between quantitative and qualitative data; quantitative data indicates a well-functioning interdisciplinary teamwork between CCRN/CRNA and ANES - qualitative data highlights that there are several barriers and inequalities between the two groups. Medicine was perceived as superior to nursing, which was reinforced by both social and organisational structures at the ICU and OR. Conclusion Unconscious rules underlying current power structures in the ICU and OR works in favour of the ANES and biomedical paradigm, supporting medical knowledge. To achieve a more equal power distribution between CCRN/CRNAs and ANES, the structural hierarchies between nursing and medicine needs to be addressed. A more equal power balance between the two disciplines can improve teamwork and thereby reduce patient mortality and improve patient outcomes. [ABSTRACT FROM AUTHOR]
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- 2024
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17. More than one crisis: COVID-19 response actors navigating multi-dimensional crises in Flanders, Belgium.
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Kattumana, Tarun, Heyerdahl, Leonardo W., Nguyen, ToTran, Dielen, Stef, Peeters Grietens, Koen, Vandamme, Anne-Mieke, Giles-Vernick, Tamara, Larson, Heidi J., Vandaele, Nico, Vandermeulen, Corinne, Gryseels, Charlotte, and Van Riet, Carla
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HEALTH policy , *COVID-19 vaccines , *VACCINATION coverage , *PATIENT-centered care , *INTERVIEWING , *EXPERIENCE , *QUALITATIVE research , *VACCINE hesitancy , *COMMUNICATION , *RESEARCH funding , *THEMATIC analysis , *JUDGMENT sampling , *STATISTICAL sampling , *DATA analysis software , *COVID-19 pandemic , *CRISIS intervention (Mental health services) , *TRUST - Abstract
The COVID-19 pandemic has disrupted societies globally. Public health institutions were tasked with responding to the pandemic in a dynamic and uncertain context. This paper sheds light on the experiences of COVID-19 response actors as they navigated multi-dimensional crises associated with the pandemic in general and vaccine hesitancy in particular. This research was conducted during the initial phase of the COVID-19 vaccine rollout in Flanders, Belgium. Participants included informants across all levels of the COVID-19 vaccination strategy including but not limited to those producing scientific knowledge, providing policy input, or implementing public health directives locally. 'Crisis' was identified as a recurring theme in interviews with informants. The paper highlights multi-dimensional crises experienced by informants such as the: (i) crisis of prioritization, (ii) crisis of communication, (iii) crisis of the changing image of science, (iv) crisis of epistemic agency and autonomy, and (v) crisis of trust. [ABSTRACT FROM AUTHOR]
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- 2023
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18. Contextualizing the experiences of Black pregnant women during the COVID-19 pandemic: 'It's been a lonely ride'.
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Dahl, Alicia A., Yada, Farida N., Butts, Shanika Jerger, Tolley, Annalise, Hirsch, Sophie, Lalgondar, Priyanka, Wilson, Kala S., and Shade, Lindsay
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MATERNAL health services , *STATISTICS , *HEALTH services accessibility , *CROSS-sectional method , *RESEARCH methodology , *SELF-evaluation , *COMMUNITY health services , *PUBLIC health , *INTERVIEWING , *SOCIAL adjustment , *EXPERIENCE , *COMPARATIVE studies , *SURVEYS , *PSYCHOLOGY of women , *DESCRIPTIVE statistics , *QUESTIONNAIRES , *RESEARCH funding , *PSYCHOLOGICAL adaptation , *DATA analysis software , *THEMATIC analysis , *COVID-19 pandemic , *AFRICAN Americans , *PREGNANCY - Abstract
The emergence of the COVID-19 pandemic significantly changed the prenatal care experience, specifically regarding medical appointments and social opportunities. It is critical to capture this change through the narratives of pregnant people, particularly those of marginalized populations, whose voices may often be underrepresented in the literature. This mixed-methods paper summarizes the experiences of 40 pregnant Black/African American (AA) women during the COVID-19 pandemic. A cross-sectional, online survey was administered between 2020 and 2021 to assess prenatal health and the impacts of the COVID-19 pandemic on patients' pregnancy experience. Coping behaviors during the pandemic were self-reported using the COPE-IS. Univariate analyses were conducted. An additional analysis of participants (n = 4) was explored through a week-long qualitative exercise using a photo documentation procedure. Photo-Elicitation Interviews (PEI) were conducted to capture and center their pandemic pregnancy experiences. Sources of stress during the pandemic varied, with the most common being financial concerns (n = 19, 47.5%). Over half of the sample (n = 18, 54.5%) self-reported increases in their positive coping behaviors during the pandemic, such as communicating with friends and family, talking to healthcare providers, listening to music, and engaging in spiritual practices–such as prayer. The four PEI study participants reflected on the impacts of social distancing on their prenatal experience and mentioned hospital and provider-related weariness due to their race. The findings of this study suggest that during the COVID-19 pandemic, Black/AA pregnant women in Charlotte, NC used social support, mindfulness practices, self-advocacy, and health literacy to navigate challenges present during their prenatal health experience. This paper highlights the personal, social, and structural experiences of pregnant women during a public health crisis so that responsive and effective programs or policies can be planned in the future. [ABSTRACT FROM AUTHOR]
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- 2023
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19. Analyzing work-as-imagined and work-as-done of incident management teams using interaction episode analysis.
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Son, Changwon, Sasangohar, Farzan, Peres, S. Camille, and Moon, Jukrin
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RESEARCH methodology , *INTERVIEWING , *QUANTITATIVE research , *EMERGENCY management , *QUALITATIVE research , *NATURAL disasters , *EMERGENCY medical services , *INTERPROFESSIONAL relations , *INTERPERSONAL relations , *RESEARCH funding , *DESCRIPTIVE statistics , *DATA analysis software , *PSYCHOLOGICAL resilience - Abstract
Resilience is an important attribute of incident management teams (IMTs) for managing disasters. Previous research on resilience of IMTs has focused on comparing work-as-imagined (WAI) and work-as-done (WAD) but predominantly used narrative analyses which limited comparisons between IMTs. This paper presents a novel Interaction Episode Analysis (IEA) method to identify the IMT's WAI and WAD episodes by analyzing dynamic interactions that occur between different roles that carry out information management tasks. Observations and audio--visual recordings of two high-fidelity IMT exercises were conducted to capture WAD episodes, and semi-structured interviews with experts elicited corresponding WAI episodes. Quantitative analyses using five interaction-based measures were conducted to detect differences of the WAD episodes between two IMTs. Next, qualitative analyses were focused on identifying reasons why such differences have occurred by comparing the gaps between WAI and WAD episodes. Some of the reasons for WAI-WAD gaps included the non-occurrence of critical interactions that were expected and occurrence of unexpected interactions between IMT members. This paper also identifies cases of preparatory, proactive, and reactive performance adjustment that characterizes IMT resilience. The IEA method shows promise for investigating how and why the gaps between WAI and WAD in IMTs occur. With the identification of these gaps, future research can be conducted to reconcile the gaps between WAI and WAD episodes, and thus enhance resilience of IMTs in future disasters. [ABSTRACT FROM AUTHOR]
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- 2023
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20. 'Reforms Looked Really Good on Paper': Rural Food Service Responses to the Healthy, Hunger-Free Kids Act of 2010.
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Cornish, Disa, Askelson, Natoshia, and Golembiewski, Elizabeth
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PREVENTION of childhood obesity , *SCHOOLS , *ATTITUDE (Psychology) , *NUTRITION policy , *CHANGE , *EMPLOYEE attitudes , *FOOD service , *INTERVIEWING , *MANAGEMENT , *MEDICAL cooperation , *NATURAL foods , *RESEARCH , *RESEARCH funding , *RURAL conditions , *STUDENT health , *QUALITATIVE research , *THEMATIC analysis , *HUMAN services programs , *DATA analysis software , *MEDICAL coding , *DESCRIPTIVE statistics , *LAW - Abstract
ABSTRACT BACKGROUND The Healthy, Hunger-Free Kids Act of 2010 ( HHKA) required schools to make changes to meals provided to children. Rural school districts have limited resources, with increased obesity rates and local food insecurity. In this study we sought to understand the perceptions of rural food service directors and the barriers to implementing the changes. METHODS Food service directors from rural school districts were invited to complete a semistructured telephone interview and online survey. A total of 51 respondents completed both, 6 completed only the online survey, and 16 completed only the telephone interview. Qualitative interview data were analyzed through open thematic coding; descriptive statistics were calculated for the quantitative data. RESULTS Food service directors mostly perceived the changes as negative, challenging, and burdensome. They believed that the changes resulted from concern about childhood obesity, which they did not view as a problem for their students. Diverse challenges were reported related to cost, preparation, and student preference. CONCLUSIONS Food service directors in isolated, rural areas need support to enhance understanding of HHKA requirements, build professional networks to learn from one another, and communicate with students, families, and other stakeholders. Future efforts should focus on changing perceptions and supporting directors in order to make implementation a success. [ABSTRACT FROM AUTHOR]
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- 2016
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21. Shared decision-making in palliative cancer care: A systematic review and metasynthesis.
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Rabben, Jannicke, Vivat, Bella, Fossum, Mariann, and Rohde, Gudrun Elin
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MEDICAL information storage & retrieval systems , *PALLIATIVE treatment , *RESEARCH funding , *CANCER patient medical care , *CINAHL database , *DECISION making , *DESCRIPTIVE statistics , *SYSTEMATIC reviews , *MEDLINE , *THEMATIC analysis , *PATIENT-centered care , *ATTITUDES of medical personnel , *META-synthesis , *DATA analysis software , *PATIENTS' attitudes , *CAREGIVER attitudes , *PSYCHOLOGY information storage & retrieval systems - Abstract
Background: Shared decision-making is a key element of person-centred care and promoted as the favoured model in preference-sensitive decision-making. Limitations to implementation have been observed, and barriers and limitations, both generally and in the palliative setting, have been highlighted. More knowledge about the process of shared decision-making in palliative cancer care would assist in addressing these limitations. Aim: To identify and synthesise qualitative data on how people with cancer, informal carers and healthcare professionals experience and perceive shared decision-making in palliative cancer care. Design: A systematic review and metasynthesis of qualitative studies. We analysed data using inductive thematic analysis. Data sources: We searched five electronic databases (MEDLINE, EMBASE, PsycINFO, CINAHL and Scopus) from inception until June 2023, supplemented by backward searches. Results: We identified and included 23 studies, reported in 26 papers. Our analysis produced four analytical themes; (1) Overwhelming situation of 'no choice', (2) Processes vary depending on the timings and nature of the decisions involved, (3) Patient-physician dyad is central to decision-making, with surrounding support and (4) Level of involvement depends on interactions between individuals and systems. Conclusion: Shared decision-making in palliative cancer care is a complex process of many decisions in a challenging, multifaceted and evolving situation where equipoise and choice are limited. Implications for practice: Implementing shared decision-making in clinical practice requires (1) clarifying conceptual confusion, (2) including members of the interprofessional team in the shared decision-making process and (3) adapting the approach to the ambiguous, existential situations which arise in palliative cancer care. [ABSTRACT FROM AUTHOR]
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- 2024
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22. Self‐identified culturally related stressors that influence self‐care in older adults with multiple chronic conditions: A qualitative study.
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Jin, Yuanyuan, Bowers, Barbara J., Cotton, Quinton D., and Ersig, Anne L.
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CULTURE -- Psychological aspects , *HEALTH self-care , *LIFE change events , *RESEARCH funding , *QUALITATIVE research , *CONTENT analysis , *EMPIRICAL research , *QUANTITATIVE research , *JUDGMENT sampling , *DESCRIPTIVE statistics , *CHRONIC diseases , *SURVEYS , *THEMATIC analysis , *FINANCIAL stress , *PSYCHOLOGICAL stress , *RESEARCH methodology , *DATA analysis software , *COMORBIDITY , *SELF diagnosis , *SOCIAL isolation , *INTERGENERATIONAL relations , *COVID-19 pandemic - Abstract
Aim: To identify culturally related stressors that influence self‐care in Chinese older adults with multiple chronic conditions. Background: Effective self‐care can improve health outcomes for chronic conditions, but implementing self‐care is challenging. Individuals with multiple chronic conditions face even more self‐care complexity than those with single chronic conditions, generating additional stressors. Although stressors have been found to negatively influence self‐care in multiple chronic conditions, the role of culture in generating stressors has been neglected. Design: This paper reports on the qualitative component of a larger mixed‐methods study. Two free‐response items in a survey were used to identify culturally related stressors that influence self‐care. This report adhered to the SRQR guideline checklist. Methods: Data were collected between January and April 2022. One hundred and thirty‐eight free text responses asking participants to identify stressors that influenced their self‐care effectiveness were analysed sequentially using deductive content analysis and thematic analysis. Results: Findings from deductive content analysis largely confirmed published work in Western literature on stressors complicating self‐care, including symptom burdens, financial strains, social disconnection, caregiving responsibilities and major life events. Findings from reflexive thematic analysis extended current literature by identifying three culturally relevant stressors: intergenerational obligations and commitments, ambivalence about receiving care and worries about potential problems. Conclusion: Chinese older adults with multiple chronic conditions identified a wide range of stressors that impacted their day‐to‐day self‐care. This study provided valuable insights into culturally related stressors in older adults with multiple chronic conditions. Findings deepened our knowledge of cultural influences on the success of self‐care in older adults with multiple chronic conditions, suggesting the potential for reaching populations across different cultures and regions. Implications for the profession and/or patient care: Stressors that might influence self‐care ability are important for nurses to assess in people with multiple chronic conditions. The design of self‐care interventions should take a culturally tailored intergenerational family‐centred approach to help mitigate the impact of stressors and ultimately improve patient outcomes. Impact: What problem did the study address?Stressors documented in older adults with MCCs have all been generated from research with Western populations. China is now home to the largest population of older people in the world. Understanding the influence of culturally relevant stressors on self‐care in Chinese older adults with MCCs is lacking.What were the main findings?Findings from deductive content analysis largely confirmed published work in Western literature on stressors that complicated self‐care, including symptom burdens, financial strains, social disconnection, caregiving responsibilities and major life events. Findings from reflexive thematic analysis extended current literature by identifying three culturally relevant stressors in older adults with MCCs in China: intergenerational obligations and commitments, ambivalence about receiving care and worries about potential problems.Where and on whom will the research have an impact?The research will have an impact on guiding nurses' assessment of culturally relevant stressors' impact on self‐care for older adults with MCCs. In addition, findings could inform research and policy development to aim at mitigating the impact of culturally based stressors on self‐care. Reporting Method: This study adhered to the Standards for Reporting Qualitative Research (SRQR) guideline checklist. Patient or Public Contribution: During the member‐checking process, the validation of findings for accuracy was carried out by 10 participants, who also found resonance between these findings and their own experiences. [ABSTRACT FROM AUTHOR]
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- 2024
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23. Shared evolutionary processes shape landscapes of genomic variation in the great apes.
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Rodrigues, Murillo F, Kern, Andrew D, and Ralph, Peter L
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BIOLOGICAL evolution , *GENOMICS , *RESEARCH funding , *QUALITATIVE research , *DESCRIPTIVE statistics , *GENETIC variation , *SIMULATION methods in education , *CHROMOSOMES , *GENETIC mutation , *DATA analysis software , *PRIMATES , *SINGLE nucleotide polymorphisms - Abstract
For at least the past 5 decades, population genetics, as a field, has worked to describe the precise balance of forces that shape patterns of variation in genomes. The problem is challenging because modeling the interactions between evolutionary processes is difficult, and different processes can impact genetic variation in similar ways. In this paper, we describe how diversity and divergence between closely related species change with time, using correlations between landscapes of genetic variation as a tool to understand the interplay between evolutionary processes. We find strong correlations between landscapes of diversity and divergence in a well-sampled set of great ape genomes, and explore how various processes such as incomplete lineage sorting, mutation rate variation, GC-biased gene conversion and selection contribute to these correlations. Through highly realistic, chromosome-scale, forward-in-time simulations, we show that the landscapes of diversity and divergence in the great apes are too well correlated to be explained via strictly neutral processes alone. Our best fitting simulation includes both deleterious and beneficial mutations in functional portions of the genome, in which 9 % of fixations within those regions is driven by positive selection. This study provides a framework for modeling genetic variation in closely related species, an approach which can shed light on the complex balance of forces that have shaped genetic variation. [ABSTRACT FROM AUTHOR]
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- 2024
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24. A qualitative exploration of the barriers and facilitators to self‐managing multiple long‐term conditions amongst people experiencing socioeconomic deprivation.
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Woodward, Abi, Nimmons, Danielle, Davies, Nathan, Walters, Kate, Stevenson, Fiona A., Protheroe, Joanne, Chew‐Graham, Carolyn A., and Armstrong, Megan
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HEALTH services accessibility , *DIGITAL technology , *SELF-management (Psychology) , *QUALITATIVE research , *RESEARCH funding , *ENDOWMENTS , *SELF-efficacy , *SOCIOECONOMIC status , *SOCIOECONOMIC factors , *INTERVIEWING , *CULTURE , *JUDGMENT sampling , *THEMATIC analysis , *RESEARCH methodology , *DATA analysis software , *COMORBIDITY , *SOCIAL isolation , *SOCIAL classes , *SOCIAL stigma - Abstract
Background: Globally, it is estimated that one in three adults live with two or more long‐term conditions (multiple long‐term conditions, MLTCs), that require self‐management. People who experience socioeconomic deprivation face significant health inequalities due to a range of interrelated characteristics that lead to a lack of resources and opportunities. Previous research with underserved populations indicate low levels of trust towards primary care providers and potential barriers for developing patient‐healthcare professional relationships. The purpose of this paper is to explore the barriers and facilitators to self‐managing MLTCs, amongst people who experience socioeconomic deprivation. Methods: Semistructured one‐to‐one interviews with adults (n = 28) living in London and Sheffield, United Kingdom with MLTCs who are experiencing socioeconomic deprivation. Participants were recruited through general practices, community channels and social media. Data were analysed in NVivo using reflexive thematic analysis methods. Findings: Four analytical themes were developed: (1) challenges in accessing healthcare services, financial assistance, and cultural awareness; (2) empowerment and disempowerment through technology, including digital exclusion, and use of technology; (3) impact and causes of exclusion on self‐management, including social isolation, area‐based and economic exclusion, and health‐related stigma and (4) adapting self‐management strategies, including cost‐effective, and culturally/lifestyle appropriate strategies. Conclusions: Future health interventions and services need to be developed with consideration of the combined complexities of managing MLTCs while experiencing socioeconomic deprivation. Increased awareness in practitioners and commissioners of the complexities surrounding the lives of people experiencing socioeconomic deprivation, and the need for targeted strategies to promote self‐management of MLTCs are of great importance. Patient or Public Contribution: A patient advisory group contributed to all stages of the study, including providing important feedback on study documents (topic guides and recruitment materials), as well as providing critical insights surrounding the interpretation of interview data. [ABSTRACT FROM AUTHOR]
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- 2024
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25. Intercultural competence development through a tele‐collaborative project supported by speech‐enabled corrective feedback technology.
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Shadiev, Rustam, Feng, Yingying, Zhussupova, Roza, and Huang, Yueh‐Min
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AUTOMATIC speech recognition , *INTERPROFESSIONAL relations , *T-test (Statistics) , *SATISFACTION , *QUALITATIVE research , *RESEARCH funding , *CULTURAL competence , *STATISTICAL sampling , *QUESTIONNAIRES , *INTERVIEWING , *HEALTH occupations students , *ETHNOLOGY research , *DESCRIPTIVE statistics , *ASSISTIVE technology , *STUDENTS , *CURRICULUM planning , *EXCHANGE of persons programs , *RESEARCH methodology , *COMPUTER assisted instruction , *STUDENT attitudes , *COMPARATIVE studies , *DATA analysis software , *CULTURAL pluralism , *COMMUNICATION barriers - Abstract
Background: Tele‐collaborative projects serve as invaluable platforms for students from diverse countries to engage in cross‐cultural communication and exchange cultural knowledge. These projects offer immense benefits in terms of fostering intercultural competence among participants. However, one challenge arises when participants engage in spoken communication rather than written. Those who may not share a common first language often rely on a lingua franca such as English for intercultural communication. In such spoken exchanges, varying levels of language proficiency can lead to communication errors that hinder the intercultural learning process and impede the development of intercultural competence in their fellow participants. Objectives: In the present trial study, our primary objective was to tackle the language‐related challenge associated with spoken communication head‐on. Our focus centred on addressing the discrepancies arising in spoken communication, and we aimed to mitigate these discrepancies by utilizing speech‐enabled corrective feedback technology. Methods: In a tele‐collaborative project involving 28 graduate students from the People's Republic of China and Republic of Kazakhstan, the participants engaged in spoken communication and cultural exchange in English via the internet. Given the emphasis on spoken communication and the recognition that English was not their first language, we implemented a speech‐enabled corrective feedback (SECF) technology to ensure effective communication in terms of pronunciation, grammar, and word choice. The SECF technology detected and provided instant feedback on any speech mistakes, enabling participants to make corrections accordingly. The main aim of our study was to explore the potential benefits of integrating SECF technology into a tele‐collaborative project for the development of participants' intercultural competence. Additionally, we sought to gather insights into the students' perceptions of the SECF support. Results and Conclusions: The results of our study revealed significant improvements in the participants' intercultural competence across dimensions such as knowledge, skills, attitude, and awareness. Furthermore, the participants expressed positive perceptions of the SECF technology. Drawing from our findings, we offer valuable implications and recommendations for educators and researchers in the field, enhancing their understanding of the role of SECF technology in supporting intercultural competence development in tele‐collaborative settings. Lay Description: What is currently known about the subject matter: Tele‐collaborative projects are widely utilized to enhance intercultural competence.Low language proficiency of participants often poses a significant challenge in tele‐collaborative projects. What this paper adds: The present study addressed the language barrier by incorporating speech‐enabled corrective feedback (SECF) technology to support our tele‐collaborative project.The study explored how our tele‐collaborative project, supported by SECF, facilitated the development of intercultural competence. The implications of study findings for practitioners: Scholars and practitioners should consider implementing SECF technology to address language‐related barriers in tele‐collaborative projects.Guidelines based on our study can be utilized to design tele‐collaborative projects with SECF support.Training on technology and constant support needs to be provided to participants. [ABSTRACT FROM AUTHOR]
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- 2024
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26. Nurses' and clients' perspectives after engagement in the co-designing of solutions to improve provider-client relationships in maternal and child healthcare: a human-centered design study in rural Tanzania.
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Isangula, Kahabi, Pallangyo, Eunice S., and Ndirangu-Mugo, Eunice
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NURSE-patient relationships , *QUALITATIVE research , *RESEARCH funding , *MATERNAL-child health services , *INTERVIEWING , *DESCRIPTIVE statistics , *THEMATIC analysis , *NURSES' attitudes , *RESEARCH methodology , *QUALITY assurance , *STAKEHOLDER analysis , *DATA analysis software , *PATIENTS' attitudes - Abstract
Background: There has been a persistent increase in clients' dissatisfaction with providers' competencies in maternal and child healthcare (MCH). Existing interventions have failed to address the complexity of provider-client relationships. Therefore, targeted, contextualized innovative solutions that place providers and clients at the forefront as agents of change in optimizing intervention design and implementation are needed. The study team adopted a co-design strategy as part of Human- Centered Design (HCD) approach, where MCH nurses, clients, and stakeholders partnered to design an intervention package to improve provider-client relationships in rural Tanzania. Objective: This paper explored nurses', clients', and MCH stakeholders' perspectives following participation in a co-design stage of the HCD study to generate interventions to strengthen nurse-client relationships in Shinyanga Region. Methods: A qualitative descriptive design was used. Thirty semi-structured key informant interviews were conducted in the Swahili language with purposefully selected nurses, clients, and MCH stakeholders. The inclusion criterion was participation in consultative workshops to co-design an intervention package to strengthen nurse-client relationships. Data were transcribed and translated simultaneously, managed using NVivo, and analyzed thematically. Results: Three main themes were developed from the analysis, encompassing key learnings from engagement in the co-design process, the potential benefits of co-designing interventions, and co-designing as a tool for behavior change and personal commitment. The key learnings from participation in the co-design process included the acknowledgment that both nurses and clients contributed to tensions within their relationships. Additionally, it was recognized that the benefits of a good nurse-client relationship extend beyond nurses and clients to the health sector. Furthermore, it was learned that improving nurse-client relationships requires interventions targeting nurses, clients, and the health sector. Co-designing was considered beneficial as it offers a promising strategy for designing effective and impactful solutions for addressing many challenges facing the health sector beyond interpersonal relationships. This is because co-designing is regarded as innovative, simple, and friendly, bringing together parties and end-users impacted by the problem to generate feasible and acceptable interventions that contribute to enhanced satisfaction. Furthermore, co-designing was described as facilitating the co-learning of new skills and knowledge among participants. Additionally, co-designing was regarded as a tool for behavior change and personal commitment, influencing changes in participants' own behaviors and cementing a commitment to change their practices even before the implementation of the generated solutions. Conclusion: End-users' perspectives after engagement in the co-design process suggest it provides a novel entry point for strengthening provider-client relationships and addressing other health sector challenges. Researchers and interventionists should consider embracing co-design and the HCD approach in general to address health service delivery challenges. [ABSTRACT FROM AUTHOR]
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- 2024
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27. Factors Shaping the Implementation of Strategies to Prevent Acute Kidney Injury: A Qualitative Study.
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Carpenter-Song, Elizabeth, Stabler, Meagan E., Aschbrenner, Kelly, Zubkoff, Lisa, Cox, Kevin C., Matheny, Michael E., and Brown, Jeremiah R.
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ACUTE kidney failure prevention , *CARDIAC catheterization , *HEALTH services administrators , *TEAMS in the workplace , *PATIENT aftercare , *HEALTH services accessibility , *PROFESSIONS , *SOCIAL support , *LEADERSHIP , *RESEARCH methodology , *HEALTH facility administration , *CARDIOLOGISTS , *ATTITUDE (Psychology) , *CHANGE , *INTERVIEWING , *HUMAN services programs , *WORKFLOW , *QUALITATIVE research , *LABOR turnover , *RESEARCH funding , *HOSPITAL laboratories , *HOSPITAL nursing staff , *INTERPROFESSIONAL relations , *COMMUNICATION , *QUALITY assurance , *THEMATIC analysis , *DATA analysis software , *WORKING hours , *PATIENT safety , *CORPORATE culture , *LABORATORY personnel , *COVID-19 pandemic - Abstract
Reducing the prevalence of acute kidney injury (AKI) is an important patient safety objective set forth by the National Quality Forum. Despite international guidelines to prevent AKI, there continues to be an inconsistent uptake of these interventions by cardiac teams across practice settings. The IMPROVE-AKI study was designed to test the effectiveness and implementation of AKI preventive strategies delivered through team-based coaching activities. Qualitative methods were used to identify factors that shaped sites' implementation of AKI prevention strategies. Semi-structured interviews were conducted with staff in a range of roles within the cardiac catheterization laboratories, including nurses, laboratory managers, and interventional cardiologists (N = 50) at multiple time points over the course of the study. Interview transcripts were qualitatively coded, and aggregated code reports were reviewed to construct main themes through memoing. In this paper, we report insights from semi-structured interviews regarding workflow, organizational culture, and leadership factors that impacted implementation of AKI prevention strategies. [ABSTRACT FROM AUTHOR]
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- 2024
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28. Parents' Journeys of Mastery and Knowledge Construction After Their Infant's First Stage of Surgery for Complex Congenital Heart Disease.
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Gaskin, Kerry L., Barron, David, and Wray, Jo
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CARDIAC surgery , *MOTHERS , *CLINICAL deterioration , *PSYCHOLOGY of parents , *ANALYSIS of variance , *CONFIDENCE , *RESEARCH methodology , *CONGENITAL heart disease , *INTERVIEWING , *QUANTITATIVE research , *FATHERS , *HEALTH literacy , *CONCEPTUAL structures , *QUALITATIVE research , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *REPEATED measures design , *RESEARCH funding , *THEMATIC analysis , *DATA analysis software , *LONGITUDINAL method - Abstract
A growing body of conceptual evidence over the last decade has increased our understanding of parents' experiences of having an infant with complex congenital heart disease. These concepts include parents' feelings of uncertainty, fear, excitement, and mastery. However, little is known about parents' experiences, confidence, and knowledge acquisition during transition from hospital to home with their infant after the first stage of complex cardiac surgery. A theoretical framework to assess, plan and implement child and family centered care would assist children's cardiac nurses responsible for parental education, discharge planning and coordination. To explore parents' experiences of the transition from hospital to home with their infant, following the first stage of cardiac surgery. A prospective mixed methods longitudinal design. Semi-structured interviews were undertaken, including administration of the Maternal Confidence Questionnaire at four timepoints: before discharge following stage one cardiac surgery (T0), 2 weeks' post discharge (T1), 8 weeks' post discharge (T2) and after stage two surgery (T3). Qualitative data were thematically analyzed. Descriptive statistics were used to characterize the sample and non-parametric repeated measures analysis of variance was used to analyze changes over time in maternal confidence scores. Sixteen parents of 12 infants participated. Four "patterns of transition experience" emerged, the fourth "Mastery", is discussed in this paper. Mastery can be contextualized in terms of the parents' journeys of knowledge construction, gaining confidence and reflection. Learning was dynamic and transformational, but successful learning and acquisition of knowledge was also dependent upon the parents' ability to absorb, integrate and adjust at any given time. Confidence at T0 was significantly lower than at T1 (p =.011), T2 (p =.018) and T3 (p =.012). There were no significant differences between scores at T1, T2 and T3. Liminality, as a concept, described the between and betwixt time that parents experienced as they were preparing for discharge from hospital; excitement to be going home balanced with the fear of being alone and confidence in looking after their fragile infant. Parents of infants with complex congenital heart disease obtain knowledge, confidence, and mastery dependent upon their transition experience and their personal journey through pre-liminal, liminal, and post-liminal phases of discharge from hospital to home. A conceptual framework "Parenting through Transitions – hospital to home" emerged that could assist in structuring assessment of parents' knowledge and support needs within a coordinated discharge process. Identifying individualized support would promote adaptation and adjustment during transition from the pre to post liminal phase, following their infant's first stage of complex cardiac surgery. Parents learning was dynamic and transformational, learning opportunities overlapped transitional phases of their infant's journey, but successful learning and acquisition of knowledge was also dependent upon the parents' ability to absorb, integrate and adjust at any given time. The transition from hospital to home and traversing the physical boundary of leaving the hospital for the first time with their infant (liminal phase), was loaded with emotionally traumatic experiences that could not be separated from the transition that was being explored within this study. Adjusting to the new situation, developing confidence over time, and becoming comfortable as they mastered new skills, demonstrated that some of these parents could pass through that liminal space to mastery of a new normal (post-liminal phase), which encompassed competence, integration, and comfort. [ABSTRACT FROM AUTHOR]
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- 2024
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29. "I think they should give primary health care a little more priority". The primary health care in Caribbean SIDS: what can be said about adaptation to the changing climate? The case of Dominica— a qualitative study.
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Harris-Glenville, Fiona and Cloos, Patrick
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MENTAL illness risk factors , *HEALTH policy , *COMMUNITY health nurses , *FOCUS groups , *PUBLIC health administration , *HEALTH services accessibility , *SOCIAL determinants of health , *PROFESSIONS , *ATTITUDES of medical personnel , *RESEARCH methodology , *PSYCHOLOGICAL vulnerability , *INTERVIEWING , *MEDICAL screening , *HEALTH status indicators , *PRIMARY health care , *QUALITATIVE research , *SEASONS , *RISK assessment , *MEDICAL emergencies , *DESCRIPTIVE statistics , *NATURAL disasters , *RESEARCH funding , *POLICY sciences , *DATA analysis software , *GREENHOUSE effect , *HEALTH planning , *CLIMATE change , *HEALTH care rationing - Abstract
Background: Adaptation to climate change (CC) is a priority for Small Island Developing States (SIDS) in the Caribbean, as these countries and territories are particularly vulnerable to climate-related events. Primary health care (PHC) is an important contributor to CC adaptation. However, knowledge on how PHC is prepared for CC in Caribbean SIDS is very limited. The aim of this paper is to discuss health system adaptation to climate change, with a focus on PHC. Methods: We explored the perspectives of PHC professionals in Dominica on PHC adaptation to climate change. Focus group discussions (FGDs) were conducted in each of the seven health districts in Dominica, a Caribbean SIDS, between November 2021 and January 2022. The semi-structured interview guide was based on the Essential Public Health Functions: assessment, access to health care services, policy development and resource allocation. Data coding was organized accordingly. Results: Findings suggest that health care providers perceive climate change as contributing to an increase in NCDs and mental health problems. Climate-related events create barriers to care and exacerbate the chronic deficiencies within the health system, especially in the absence of high-level policy support. Healthcare providers need to take a holistic view of health and act accordingly in terms of disease prevention and health promotion, epidemiological surveillance, and ensuring the widest possible access to healthcare, with a particular focus on the environmental and social determinants of vulnerability. Conclusion: The primary health care system is a key stakeholder in the design and operationalization of adaptation and transformative resilience. The Essential Public Health Functions should integrate social and climate and other environmental determinants of health to guide primary care activities to protect the health of communities. This study highlights the need for improved research on the linkages between climate events and health outcomes, surveillance, and development of plans informed by contextual knowledge in the SIDS. [ABSTRACT FROM AUTHOR]
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- 2024
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30. College Student Perceptions of the Root Causes of Sexual Violence Before and After a Curricular Intervention.
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Liddell, Jessica L., Sheffield, Sydney Mei, Johnson, Katherine M., and Lederer, Alyssa M.
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COLLEGE students , *RESEARCH , *QUANTITATIVE research , *RISK assessment , *QUALITATIVE research , *SEX crimes , *RESEARCH funding , *DESCRIPTIVE statistics , *STUDENT attitudes , *CURRICULUM planning , *THEMATIC analysis , *DATA analysis software , *EDUCATIONAL outcomes , *INDUSTRIAL research - Abstract
Campus sexual violence is prevalent and consequential. After a climate survey at our university revealed high rates of sexual violence, a semester-long academic course was designed as a curricular intervention for first-year students. This study examines an assignment completed at the beginning and end of the course. Students were asked: "What are the root causes of sexual violence?" Thematic analysis of papers revealed that many students altered or expanded their thinking to more complex, structural factors compared to their initial perceptions. An academic course may broaden students' understanding of the determinants of sexual violence. [ABSTRACT FROM AUTHOR]
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- 2024
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31. Experiences of health service access: A qualitative interview study of people living with Parkinson's disease in Ireland.
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O' Shea, Emma, Rukundo, Aphie, Foley, Geraldine, Wilkinson, Tony, and Timmons, Suzanne
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PARKINSON'S disease treatment , *HEALTH services accessibility , *OUTPATIENT medical care , *RESEARCH methodology , *DISCRIMINATION (Sociology) , *INTERVIEWING , *POPULATION geography , *PRIVATE sector , *PATIENTS' attitudes , *QUALITATIVE research , *HEALTH attitudes , *SOUND recordings , *DESCRIPTIVE statistics , *HEALTH care teams , *PUBLIC sector , *RESEARCH funding , *SECONDARY care (Medicine) , *JUDGMENT sampling , *DATA analysis software , *THEMATIC analysis - Abstract
Background: People with Parkinson's disease (PD) do not always access specialist outpatient services in a timely manner in Ireland. The perspectives of people living with PD, relating to service access, are largely absent in the existing literature. Aim: To explore experiences of PD service access for people living with PD, using a qualitative approach. Methods: Purposive maximum variation sampling was used. Semi‐structured telephone interviews were conducted with 25 service users, including people with PD (n = 22) and supporting carers (n = 3). Informed consent was obtained from all participants. Interviews ranged in duration from 30 to 90 min. Data were managed in NVivo 12 and interpreted inductively using thematic analysis. The researchers were reflexive throughout the research process. The Consolidated Criteria for Reporting Qualitative Research checklist was employed to maximise transparency. Results: The findings highlight several key barriers to and facilitators of equitable and timely service access. Three key themes were identified comprising experiences of PD service access including 'geographical inequity', 'discriminatory practices', and 'public and private system deficits'. Together, these themes illustrate how a two‐tiered and under‐resourced health system lacks capacity, in terms of infrastructure and workforce, to meet PD needs for both public and private patients in Ireland. Conclusions: These findings point to problems for PD care, relating to (i) how the health system is structured, (ii) the under‐provision and under‐resourcing of specialist outpatient PD services, including medical, nursing, and multidisciplinary posts, and (iii) insufficient PD awareness education and training across health settings. The findings also show that telemedicine can provide opportunities for making access to certain aspects of PD care more flexible and equitable, but the feasibility and acceptability of technology‐enabled care must be assessed on an individual basis. Implications for policy, practice and research are discussed. Patient or Public Contribution: The design and conduct of this study were supported by an expert advisory group (EAG) of 10 co‐researchers living with PD. The EAG reviewed the interview schedule and the protocol for this study and provided detailed feedback from their perspective, to improve the methods, including the interview approach. The group also reviewed the findings of the study and contributed their insights on the meaning of the findings, which fed into this paper. [ABSTRACT FROM AUTHOR]
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- 2024
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32. A Qualitative Investigation of the Experiences of Women with Perinatal Depression and Anxiety during the COVID-19 Pandemic.
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Rokicki, Slawa, Mackie, Thomas I., D'Oria, Robyn, Flores, Mariella, Watson, Ashley, Byatt, Nancy, and Suplee, Patricia
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MEDICAL quality control , *ATTITUDES of mothers , *POSTPARTUM depression , *HEALTH services accessibility , *SOCIAL support , *PSYCHOLOGY of mothers , *RESEARCH methodology , *SELF-evaluation , *PREGNANT women , *MENTAL health , *INTERVIEWING , *EXPERIENCE , *PERINATAL mood & anxiety disorders , *QUALITATIVE research , *DESCRIPTIVE statistics , *RESEARCH funding , *JUDGMENT sampling , *THEMATIC analysis , *DATA analysis software , *COVID-19 pandemic - Abstract
Objectives: The COVID-19 pandemic has had significant impacts on maternal mental health. We explored the lived experiences of women with perinatal depression and anxiety to elucidate their perceptions of how the pandemic influenced their mental health and access to care. Methods: We conducted a qualitative descriptive study using semi-structured interviews. From March to October 2021, purposive sampling was used to recruit a socio-demographically diverse sample of women with self-reported perinatal depression or anxiety who were pregnant or within one year postpartum between March 2020 and October 2021. Interviews were conducted remotely and thematically analyzed. Results: Fourteen women were interviewed. Three major themes arose. Theme 1, Negative impacts of COVID-19 on symptoms of depression and anxiety, described how the pandemic magnified underlying symptoms of depression and anxiety, increased social isolation, generated anxiety due to fears of COVID-19 infection, and caused economic stress. In theme 2, Negative impacts of COVID-19 on access to and quality of health care, women described stressful and isolating delivery experiences, negative psychological impact of partners not being able to participate in their perinatal health care, interruptions and barriers to mental health treatment, and challenges in using telehealth services for mental health care. Theme 3, Positive impacts of COVID-19 on mental health, identified advantages of increased telehealth access and ability to work and study from home. Conclusions for Practice: The COVID-19 pandemic negatively affected women with perinatal depression and anxiety by magnifying underlying symptoms, increasing stress and social isolation, and disrupting access to mental health care. Findings provide support for policies and interventions to prevent and address social isolation, as well as optimization of telehealth services to prevent and address gaps in perinatal mental health treatment. Significance: What is Already Known on this Subject? Quantitative data suggest that the pandemic increased rates of perinatal mental illness. Yet the perspectives of women with perinatal depression and anxiety on how the pandemic affected their mental health and access to care remain underreported. What this Study adds? This paper offers new insight from the lived experience of women with perinatal depression and anxiety on ways the pandemic negatively and positively affected their mental health and access to mental health care. Implications for interventions, policies, and clinical practice are discussed. [ABSTRACT FROM AUTHOR]
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- 2024
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33. Facilitators and barriers to the implementation of pain neuroscience education in the current Lebanese physical therapist health care approach: a qualitative study.
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Najem, C., Wijma, A. J., Meeus, M., Cagnie, B., Ayoubi, F., Van Oosterwijck, J., De Meulemeester, K., and Van Wilgen, C. P.
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CHRONIC pain , *NEUROSCIENCES , *PHYSICAL therapy assessment , *LUMBAR pain , *BIOPSYCHOSOCIAL model , *HEALTH services accessibility , *NEUROPHYSIOLOGY , *PHYSICAL therapy , *RESEARCH methodology , *MOTIVATION (Psychology) , *MEDICAL care , *LEBANESE , *INTERVIEWING , *CURRICULUM , *HEALTH literacy , *QUALITATIVE research , *CONTINUING education , *PHENOMENOLOGY , *PSYCHOSOCIAL factors , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *SOUND recordings , *RESEARCH funding , *CURRICULUM planning , *JUDGMENT sampling , *THEMATIC analysis , *DATA analysis software , *PHYSICIAN practice patterns , *PHYSICAL therapists , *PHYSICAL therapists' attitudes , *THERAPEUTIC alliance , *PAIN management - Abstract
The purpose of this paper was first to gain an in-depth understanding of the barriers and facilitators to implementing the BPS model and pain neuroscience education in the current Lebanese physical therapy health care approach and explore its acceptability. A qualitative semi-structured interview using purposive sampling was conducted with eight Lebanese physical therapists practising in different governorates. The transcribed text from the interviews was analyzed using inductive thematic analysis. Two topics were generated and constructed by the researchers: (1) "barriers to the implementation of pain neuroscience education, with subthemes including (a) "current health care approach," (b) "basic curriculum and continuing education," (c) "patients' barriers"; (2) "facilitators to the implementation of pain neuroscience education," with subthemes containing (a) "interest in the BPS model, (b) "therapeutic alliance," and (c) "motivation for future training on BPS approach." The analysis of the results showed that Lebanese physical therapists currently hold a strong biomedical view of chronic pain, assessment, and treatment. However, despite the presence of barriers and challenges, they are aware and open to consider the implementation and future training about the BPS model and pain neuroscience education in their approach. The exploration of potential barriers and facilitators to the bio-psychosocial model and pain neuroscience education implementation may provide an opportunity for better development and design of a culturally sensitive pain neuroscience education material for Arab-speaking and Lebanese physical therapists. The exploration of barriers and facilitators to the implementation of pain neuroscience education will help to improve pain education and ensure better clinical pain management. The most important barriers were the dominant characteristic of the Lebanese physical therapist's health approach, which is focused on a biomechanically oriented model, and their lack of knowledge to approach chronic pain from a biopsychosocial perspective. [ABSTRACT FROM AUTHOR]
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- 2024
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34. Views and experiences of primary care among Black communities in the United Kingdom: a qualitative systematic review.
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Ojo-Aromokudu, Oyinkansola, Suffel, Anne, Bell, Sadie, and Mounier-Jack, Sandra
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PSYCHOLOGY of Black people , *CINAHL database , *PSYCHOLOGY information storage & retrieval systems , *CULTURE , *COMPUTER software , *MEDICAL information storage & retrieval systems , *HEALTH services accessibility , *SYSTEMATIC reviews , *MOTIVATION (Psychology) , *FAMILY medicine , *ATTITUDES of medical personnel , *HELP-seeking behavior , *MEDICAL care , *LANGUAGE & languages , *PRIMARY health care , *PATIENTS' attitudes , *QUALITATIVE research , *PSYCHOSOCIAL factors , *HEALTH attitudes , *HEALTH behavior , *RESEARCH funding , *MEDLINE , *FINANCIAL management , *ETHNIC groups , *DATA analysis software , *THEMATIC analysis , *PATIENT-professional relations , *TRUST , *GREY literature - Abstract
In the United Kingdom, people with non-white ethnicities are more likely to report being in worse health conditions and have poorer experiences of healthcare services than white counterparts. The voices of those of Black ethnicities are often merged in literature among other non-white ethnicities. This literature review aims to analyse studies that investigate Black participant experiences of primary care in the UK. We conducted a systematic literature review searching Medline, Web of Science, EMBASE, SCOPUS, Social Policy and Practice, CINAHL plus, Psych INFO and Global Health with specific search terms for appropriate studies. No publish date limit was applied. 40 papers (39 articles and 1 thesis) were deemed eligible for inclusion in the review. A number of major themes emerged. Patient expectations of healthcare and the health seeking behaviour impacted their interactions with health systems in the UK. Both language and finances emerged as barriers through which some Black participants interacted with primary care services. (Mis)trust of clinicians and the health system was a common theme that often negatively impacted views of UK primary care services. The social context of the primary care service and instances of a cultural disconnect also impacted views of primary care services. Some papers detail patients recognising differential treatment based on ethnicity. The review included the voices of primary care professionals where descriptions of Black patients were overwhelmingly negative. Views and experiences of Black groups may be radically different to other ethnic minorities and thus, should be teased out of broader umbrella terms like Black and Asian Minority Ethnic (BAME) and Black Minority Ethnic (BME). To address ethnicity-based health inequalities, culturally sensitive interventions that engage with the impacted community including co-designed interventions should be considered while acknowledging the implications of being racialised as Black in the UK. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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35. Towards an Implementation‐STakeholder Engagement Model (I‐STEM) for improving health and social care services.
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Potthoff, Sebastian, Finch, Tracy, Bührmann, Leah, Etzelmüller, Anne, van Genugten, Claire R., Girling, Melissa, May, Carl R., Perkins, Neil, Vis, Christiaan, and Rapley, Tim
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- *
STAKEHOLDER analysis , *MATHEMATICAL models , *RESEARCH methodology , *INTERNET , *GROUNDED theory , *MEDICAL care , *INTERVIEWING , *QUALITATIVE research , *THEORY , *QUALITY assurance , *RESEARCH funding , *DESCRIPTIVE statistics , *SOCIAL services , *DATA analysis software , *EMPIRICAL research , *COGNITIVE therapy , *MEDICAL coding - Abstract
Background: The implementation science literature acknowledges a need for engagement of key stakeholders when designing, delivering and evaluating implementation work. To date, the literature reports minimal or focused stakeholder engagement, where stakeholders are engaged in either barrier identification and/or barrier prioritisation. This paper begins to answer calls from the literature for the development of tools and guidance to support comprehensive stakeholder engagement in implementation research and practice. The paper describes the systematic development of the Implementation‐STakeholder Engagement Model (I‐STEM) in the context of an international, large‐scale empirical implementation study (ImpleMentAll) aimed at evaluating the effectiveness of a tailored implementation toolkit. The I‐STEM is a sensitising tool that defines key considerations and activities for undertaking stakeholder engagement activities across an implementation process. Methods: In‐depth, semistructured interviews and observations were conducted with implementers who were tailoring implementation strategies to integrate and embed internet‐based cognitive behavioural therapy (iCBT) services in 12 routine mental health care organisations in nine countries in Europe and Australia. The analytical process was informed by principles of first‐ and third‐generation Grounded Theory, including constant comparative method. Results: We conducted 55 interviews and observed 19 implementation‐related activities (e.g., team meetings and technical support calls). The final outcome of our analysis is expressed in an initial version of the I‐STEM, consisting of five interrelated concepts: engagement objectives, stakeholder mapping, engagement approaches, engagement qualities and engagement outcomes. Engagement objectives are goals that implementers plan to achieve by working with stakeholders in the implementation process. Stakeholder mapping involves identifying a range of organisations, groups or people who may be instrumental in achieving the engagement objectives. Engagement approaches define the type of work that is undertaken with stakeholders to achieve the engagement objectives. Engagement qualities define the logistics of the engagement approach. Lastly, every engagement activity may result in a range of engagement outcomes. Conclusion: The I‐STEM represents potential avenues for substantial stakeholder engagement activity across key phases of an implementation process. It provides a conceptual model for the planning, delivery, evaluation and reporting of stakeholder engagement activities. The I‐STEM is nonprescriptive and highlights the importance of a flexible, iterative approach to stakeholder engagement. It is developmental and will require application and validation across a range of implementation activities. Patient or Public Contribution: Patient contribution to ImpleMentAll trial was facilitated by GAMIAN‐Europe at all stages—from grant development to dissemination. GAMIAN‐Europe brings together a wide variety of patient representation organisations (local, regional and national) from almost all European countries. GAMIAN‐Europe was involved in pilot testing the ItFits‐toolkit and provided their views on the various aspects, including stakeholder engagement. Patients were also represented in the external advisory board providing support and advice on the design, conduct and interpretation of the wider project, including the development of the ItFits‐toolkit. Trial registration: ClinicalTrials.gov NCT03652883. Retrospectively registered on 29 August 2018. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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36. Relational security: conceptualization and operationalization in small-scale, strengths-based, community-embedded youth justice facilities.
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Souverein, Fleur, Mulder, Eva, van Domburgh, Lieke, and Popma, Arne
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PARENT attitudes , *THOUGHT & thinking , *ADOLESCENT development , *SOCIAL support , *RESEARCH methodology , *ATTITUDES of medical personnel , *MOTIVATION (Psychology) , *SELF-perception , *COMMUNITY health services , *MEDICAL personnel , *INTERVIEWING , *ECOLOGY , *SECURITY systems , *PATIENTS' families , *QUALITATIVE research , *PATIENTS' attitudes , *HUMANITY , *RESPONSIBILITY , *SELF-efficacy , *PRE-tests & post-tests , *RESIDENTIAL care , *ACTION research , *RESEARCH funding , *THEORY , *INTERPROFESSIONAL relations , *INTERPERSONAL relations , *PATIENT-professional relations , *JUDGMENT sampling , *STATISTICAL sampling , *DATA analysis software , *DATA analysis , *PATIENT safety , *THERAPEUTIC alliance , *CONCEPTS , *CRIMINAL justice system , *REFLECTION (Philosophy) - Abstract
Background: Given the developmental vulnerability of justice-involved youth, providing a safe environment in secure facilities is a paramount, yet challenging task. Within this complexity, a sound security framework is key. The security framework exists on three dimensions: physical, procedural and relational security. Existing knowledge points at the importance of a shift in focus on physical and procedural security towards relational security as the core of the security framework. At the same time there is a dearth of knowledge on relational security, particularly in the context of youth justice. This paper explores relational security and its working mechanisms in practice. Methods: This paper draws on findings of a comprehensive three-year evaluation of three small-scale, community-embedded facilities that are grounded in relational security. The approach of the evaluation was derived from action research, involving a cyclic process alternating between action, research and critical reflection, while engaging all stakeholders in the research process. The action research cycle involved qualitative research (a total of 63 semi-structured interviews) incorporating the perspective of staff, youth and parents. Results: Relational security is grounded in three distinct, but interrelated, elements – staff's basic attitude, a constructive alliance between staff and youth, staff presence – and promotes a safe and therapeutic environment through several mechanisms. Conclusions: Relational security can be defined in a practical conceptualization; outlining a way of working that guides staff in how to establish a safe and therapeutic environment in secure facilities. This conceptualization finds support in the well-established literature covering the therapeutic alliance and can be substantiated by two aligning theories concerning youth justice strategies: social-ecological theory and self-determination theory. Relational security is not only a way of working, but also a way of being. It encompasses a vision about security and mentality towards justice-involved youth that sees them not merely as 'risks to be managed', but primarly as 'resources to be developed'. [ABSTRACT FROM AUTHOR]
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- 2023
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37. Looked after children's right to contact with birth parents: An Australian study.
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Healy, Karen, Walsh, Tamara, Venables, Jemma, and Thompson, Kate
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HUMAN rights , *FAMILY reunification , *THEORY of knowledge , *INTERVIEWING , *QUALITATIVE research , *COMPARATIVE studies , *RESEARCH funding , *PSYCHOLOGY of foster children , *PARENT-child relationships , *THEMATIC analysis , *JUDGMENT sampling , *DATA analysis software - Abstract
In Australia, there are more than 46 000 children in out‐of‐home care (OOHC). Most of these children have been in OOHC for more than 2 years. Similarly, there are more than 407 000 children in the United States and over 80 800 in England who are 'looked after' with approximately one third of these children being in OOHC for more than 2 years. This paper concerns 'looked after' children's rights to contact with their birth parents. The United Nations Convention on the Rights of the Child (UNCRC) requires child protection systems to recognize the rights of children to maintain contact with their families except where this is not in the child's 'best interests'. In this paper, we report on a qualitative study conducted in Australia exploring legal and family support practitioners' perceptions of barriers to contact between children in OOHC and their birth parents. The thematic analysis identified four themes: These were as follows: a focus on systems driven responses; lack of cultural recognition and responsiveness; carers' disconnection from birth parents; and parents' exclusion. We discuss the implications of these findings for understanding and recognizing children's right to contact with birth parents. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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38. Perspectives of culturally and linguistically diverse (CALD) community members regarding mental health services: A qualitative analysis.
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Radhamony, Reshmy, Cross, Wendy M., Townsin, Louise, and Banik, Biswajit
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ATTITUDES toward mental illness , *SOCIAL participation , *HEALTH services accessibility , *MULTILINGUALISM , *ATTITUDE (Psychology) , *RESEARCH methodology , *CULTURAL pluralism , *COMMUNITIES , *INTERVIEWING , *HELP-seeking behavior , *QUALITATIVE research , *RESEARCH funding , *DESCRIPTIVE statistics , *THEMATIC analysis , *DATA analysis software , *MENTAL health services , *MEDICAL needs assessment - Abstract
What Is Known about the Subject?: Immigrant, refugee and asylum seeker populations worldwide are at high risk of mental health issuesNational mental health policies call for recognising Australian society's multicultural characteristics to ensure adequate mental health services to CALD communitiesSeveral barriers exist for people from CALD communities in Victoria to access and utilise mental health servicesImproving mental health professionals' knowledge of mental health service provision and cultural responsiveness can enhance CALD community access to services. What Does this Paper Add to Existing Knowledge?: We analysed the perspectives of people from CALD communities in Victoria regarding their needs and experiences with mental health services. Participants reported diverse perceptions and understanding of mental health issues and servicesVarious challenges were identified regarding health service utilisation for the CALD community in Victoria, including language barriers, stigma towards mental health issues, mental health illiteracy, distrust and lack of familiarity with mainstream mental health services. These challenges were acknowledged by community members even after a long residence in AustraliaThe data generated on the beliefs about mental health issues and consequent help‐seeking behaviours highlight the importance of culturally sensitive targeted prevention and early intervention strategies and ongoing commitment to building mental health literacy in the wider community What Are the Implications for Practice?: The information from the study can be adapted for quality improvement and culturally responsive practicesThe strategies for effective service delivery drawn by this paper can be a comprehensive resource tool for mental health professionals, organisations and policymakersThe findings imply that CALD mental health service users and their families will likely benefit from improved service assessment and quality of mental health care and equity when MHNs undertake cultural competence training and bring that into their practice. Introduction: Victoria is one of the most multicultural states in Australia. Many CALD communities in Victoria may have encountered complicated migration journeys and complex life stressors during their initial settlement, leading to adverse mental health concerns. This diversity necessitates public policy settings to ensure equity and access in health services planning and delivery. While the MH policies and services take cultural diversity into account, there needs to be more implementation of those components of MH policies that relate to the particular needs of various CALD communities in Victoria. Even though mental health services prevent and address mental health issues, many barriers can impair CALD community access and utilisation of mental health services. Furthermore, the recent Royal Commission inquiry into the Victorian Mental Health system drives a renewed policy imperative to ensure meaningful engagement and cultural safety of all people accessing and utilising mental health services (Department of Health, 2023). Aim: This study focused on the perspectives of people from CALD communities in Victoria regarding their mental health service needs, understandings of and experiences with mental health services to prepare an education package for mental health nurses as part of a larger multi‐method research project. Method: A qualitative descriptive design was used to collect and analyse the perspectives of 21 participants in Victoria, using telephone interviews, followed by thematic analysis. Results: The themes and sub‐themes identified were: Settling issues; Perceptions of understanding of mental health issues (help‐seeking attitudes toward mental health issues; the need for CALD community education); perceived barriers to accessing and utilising mental health services in Victoria (socio‐cultural and language barriers; stigma, labelling and discrimination; knowledge and experience of accessing health facilities); experience with mental health services and professionals. Discussion: Community participation, mental health professional education and robust research regarding the mental health needs of CALD people are some of the recommended strategies to improve access and utilisation of mental health services in Victoria. Implications for practice: The current study can contribute to the existing knowledge, understanding, practice and quality improvement as it vividly portrays the issues of various CALD communities in Victoria. The findings of this study imply that CALD MH service users and their families are likely to benefit in terms of improved service assessment and quality of MH care and equity when MHNs undertake CC training and bring that into their practice. [ABSTRACT FROM AUTHOR]
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- 2023
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39. Neoliberalism, Control of Trans and Gender Diverse Bodies and Social Work.
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Doll, Kaitrin, Brown, Catrina, Johnstone, Marjorie, and Ross, Nancy
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PROFESSIONAL ethics , *PROFESSIONAL practice , *DRUG addiction , *SOCIAL support , *GENDER affirming care , *HEALTH services accessibility , *WORK , *PRACTICAL politics , *RESEARCH methodology , *DISCRIMINATION (Sociology) , *RURAL conditions , *GENDER-nonconforming people , *INTERVIEWING , *SOCIAL justice , *QUALITATIVE research , *SOCIAL worker attitudes , *EXPERIENTIAL learning , *PSYCHOSOCIAL factors , *DESCRIPTIVE statistics , *CASE studies , *RESEARCH funding , *SOCIAL services , *THEMATIC analysis , *COMMITMENT (Psychology) , *METROPOLITAN areas , *STATISTICAL sampling , *DATA analysis software , *TRANSGENDER people , *MENTAL health services - Abstract
This paper explores how neoliberal ideologies inform both social and political agendas that influence how social workers can provide support to trans and gender diverse people attempting to access gender-affirming healthcare, using an analysis of social workers' experiences working in mental health in Nova Scotia, Canada. Qualitative semi-structured interviews provide a perspective of the experiences of social workers in Nova Scotia and how their ability to provide mental health services to trans and gender diverse people is impacted by neoliberalism. Most social workers attributed the structural context of working within a bio-medical system as contributing to social workers being disempowered, undermined, and not able to practice according to the values of their profession thus limiting their ability to provide affirming mental health supports to trans and gender diverse people in ways that align with their social work professional ethics and values. Through examining how neoliberal ideologies create notions of ideal social citizens by controlling the body, the paper explores how lived experience of neoliberal practices in mental health social work reinforce transnormativity. This paper highlights the necessity for social workers to resist dominant neoliberal and medicalized discourses which serve as mechanisms of power and control. The paper concludes with recommendations for social work practice with trans and gender diverse populations. [ABSTRACT FROM AUTHOR]
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- 2023
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40. What Was on the Parents' Minds? Changes Over Time in Topics of Person-Centred Information for Mothers and Fathers of Children with Cancer.
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Ringnér, Anders, Björk, Maria, and Olsson, Cecilia
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PARENT attitudes , *MEETINGS , *PSYCHOLOGY of parents , *PSYCHOLOGY of mothers , *PATIENT-centered care , *MEDICAL personnel , *PATIENTS' families , *TUMORS in children , *DOCUMENTATION , *RANDOMIZED controlled trials , *PRE-tests & post-tests , *COMPARATIVE studies , *QUALITATIVE research , *RESEARCH funding , *DESCRIPTIVE statistics , *PSYCHOLOGY of fathers , *STATISTICAL sampling , *CONTENT analysis , *EMOTIONS , *DATA analysis software - Abstract
Acquiring information about one's child's cancer diagnosis is a complex and ever-changing process, and parents' needs change over time. As yet, we know little about what information parents require at different stages of their child's illness. This paper is part of a larger randomized control trial studying the parent-centered information given to mothers and fathers. The aim of this paper was to describe the topics addressed in person-centered meetings between nurses and parents of children with cancer and how those changed over time. Using qualitative content analysis, we analyzed nurses' written summaries of 56 meetings with 16 parents and then computed for each topic the percentage of parents who brought it up at any time during the intervention. The main categories were Child's disease and treatment (addressed by 100% of parents), Consequences of treatment (88%), Emotional management for the child (75%), Emotional management for the parent (100%), Social life of the child (63%), and Social life of the parent (100%). Different topics were addressed at different points in time, and fathers raised more concerns about the child's emotional management and the consequences of treatment than mothers. This paper suggests that parental information demands change over time and differ between fathers and mothers, implying that information should be person-centered. Registered at Clinicaltrials.gov (NCT02332226). [ABSTRACT FROM AUTHOR]
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- 2023
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41. Diets of infants and young children in two counties of Kenya: Key drivers and barriers to improvement.
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Kimiywe, Judith, Craig, Hope, Agyapong, Abigail, Thorne‐Lyman, Andrew, Matsisa, Patrick, Kiige, Laura, Codjia, Patrick, Rudert, Christiane, Katua, Stacy, Wambu, Rose, Samburu, Betty, Kamudoni, Penjani, Chimanya, Kudakwashe, and Nordhagen, Stella
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CAREGIVERS , *PSYCHOLOGY of mothers , *RESEARCH methodology , *DIET , *INTERVIEWING , *INFANT nutrition , *ETHNOLOGY research , *QUALITATIVE research , *FOOD preferences , *DECISION making , *RESEARCH funding , *DATA analysis software - Abstract
Infant and young child feeding (IYCF) practices are influenced by many context‐ specific factors related to local food systems as well as social and cultural practices. Understanding these local contextual perspectives is essential for designing effective programs and policies. This paper uses focused ethnographic study methods to examine challenges experienced by mothers related to IYCF in two counties in Kenya, a country with considerable heterogeneity in agriculture, food systems, and cultures. A two‐phase qualitative study was undertaken in each of Kilifi County and West Pokot County, entailing interviews and rating activities with mothers, health workers, and vendors. Interviews were audio‐recorded, transcribed, translated into English, coded, and analysed by topic. Results show low levels of dietary diversity in both counties; in West Pokot, the level of adequate meal frequency is also low. Core foods in young child diets included maize porridge and family foods such as ugali (stiff maize porridge), vegetables, beans, fish, and plantains. Food safety, acceptability, and acquisition ease were the main drivers of food choice. Mothers generally felt that all core foods fed to young children are healthy and safe, but there was more variability regarding child acceptance, acquisition ease, cost, and convenience. Common barriers to feeding nutrient‐dense foods to children included child illness, economic constraints, and limited knowledge of modification strategies, skills, or tools to make the foods suitable for young children. Potential actions to address these barriers include sharing information on child‐appropriate recipes; raising awareness on local, affordable nutrient‐dense foods; and improving WASH practices to reduce illness frequency. [ABSTRACT FROM AUTHOR]
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- 2024
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42. Supporting self-management in women with pre-existing diabetes in pregnancy: a mixed-methods sequential comparative case study.
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Sushko, Katelyn, Strachan, Patricia, Butt, Michelle, Nerenberg, Kara, and Sherifali, Diana
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SOCIAL support , *CONFIDENCE intervals , *SELF-management (Psychology) , *GLYCEMIC control , *RESEARCH methodology , *PREGNANT women , *FISHER exact test , *INTERVIEWING , *MENTAL health , *PATIENTS' attitudes , *COMPARATIVE studies , *T-test (Statistics) , *SELF-efficacy , *RESEARCH funding , *PSYCHOSOCIAL factors , *DESCRIPTIVE statistics , *CHI-squared test , *GESTATIONAL diabetes , *NEEDS assessment , *DATA analysis software , *CONTENT analysis , *PEOPLE with diabetes - Abstract
Introduction: Maternal glycemia is associated with pregnancy outcomes. Thus, supporting the self-management experiences and preferences of pregnant women with type 1 and type 2 diabetes is crucial to optimize glucose control and perinatal outcomes. Research design and methods: This paper describes the mixed methods integration of a sequential comparative case study. The objectives are threefold, as we integrated the quantitative and qualitative data within the overall mixed methods design: (1) to determine the predictors of glycemic control during pregnancy; (2) to understand the experience and diabetes self-management support needs during pregnancy among women with pre-existing diabetes; (3) to assess how self-management and support experiences helpe to explain glycemic control among women with pre-existing diabetes in pregnancy. The purpose of the mixing was to integrate the quantitative and qualitative data to develop rich descriptive cases of how diabetes self-management and support experiences and preferences in women with type 1 and type 2 diabetes during pregnancy help explain glucose control. A narrative approach was used to weave together the statistics and themes and the quantitative results were integrated visually alongside the qualitative themes to display the data integration. Results: The quantitative results found that women achieved "at target" glucose control (mean A1C of the cohort by the third visit: 6.36% [95% Confidence Interval 6.11%, 6.60%]). The qualitative findings revealed that feelings of fear resulted in an isolating and mentally exhausting pregnancy. The quantitative data also indicated that women reported high levels of self-efficacy that increased throughout pregnancy. Qualitative data revealed that women who had worked hard to optimize glycemia during pregnancy were confident in their self-management. However, they lacked support from their healthcare team, particularly around self-management of diabetes during labour and delivery. Conclusions: The achievement of optimal glycemia during pregnancy was motivated by fear of pregnancy complications and came at a cost to women's mental health. Mental health support, allowing women autonomy, and the provision of peer support may improve the experience of diabetes self-management during pregnancy. Future work should focus on developing, evaluating and implementing interventions that support these preferences. [ABSTRACT FROM AUTHOR]
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- 2024
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43. Health and well‐being of sibling carers of adults with an intellectual disability in Ireland: Four waves of data.
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Brennan, Damien, D'Eath, Maureen, McCallion, Philip, and McCarron, Mary
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SIBLINGS , *WELL-being , *HEALTH status indicators , *BURDEN of care , *SURVEYS , *SELF medication , *QUALITATIVE research , *PSYCHOSOCIAL factors , *PSYCHOLOGY of caregivers , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *RESEARCH funding , *DATA analysis software - Abstract
Background: As the life expectancy of people with intellectual disability increases, they may now outlive their parents or their parents' ability to continue to care. Siblings of adults with intellectual disability often succeed their parents as primary carers. Little is known about the health and well‐being of this important cohort of carers who will be both caring for and ageing alongside their brother or sister with intellectual disability. The Carer's Study within The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS‐TILDA) provides a unique insight into the health and well‐being of family carers of older adults with intellectual disability including sibling carers in Ireland. This article reports on the findings from waves 1, 2, 3 and 4 of the IDS‐TILDA Carer's Study. Methods: The IDS‐TILDA Carer's Study surveys family carers of older people (aged 40 years and older) with intellectual disability on a 3‐yearly cycle. The family carers complete a self‐administered, mixed‐methods questionnaire. The qualitative data are analysed thematically, and a descriptive analysis of the quantitative data is conducted using SPSS. Findings: In each wave, sibling carers comprised a significant proportion of the Carer's Study participants: W1 58%; W2: 61.4%; W3: 76.7%; and W4: 45.8%. The siblings were predominantly female, not in paid employment and were caring without the support of a spouse or partner. Across the four waves, siblings reported good general health. However, a high prevalence of particular conditions including back pain, aching joints and stress was also reported, and in each wave, siblings reported feeling completely overwhelmed by their care responsibilities. Although sibling carers reported that they have considered the future, only a minority have progressed to action in this regard. Conclusions: There is evidence of the strong relational and emotional commitment by the siblings to their brother or sister with intellectual disability. However, through the four waves of data, there was also evidence of physical, mental and financial toll. An urgent need exists to identify and engage with siblings to protect their well‐being as they provide care for an increasingly ageing sibling. Accessible Summaries: When the parents of people with intellectual die or can no longer provide care and support, brothers and/or sisters may take over the role.Little is known about the lives of these brothers and sisters and whether they need support.Our study asks brothers and sisters about their lives, their health and the good and more difficult things about being a carer.This paper reports on the results of four surveys over 9 years.Most brothers and sisters felt that their health was good but because many reported health problems, more support should be available to brothers and sisters who are carers. [ABSTRACT FROM AUTHOR]
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- 2023
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44. Implications of time and space factors related with youth substance use prevention: a conceptual review and case study of the Icelandic Prevention Model being implemented in the context of the COVID-19 pandemic.
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Halsall, Tanya, Mahmoud, Kianna, Iyer, Srividya N., Orpana, Heather, Zeni, Megan, and Matheson, Kimberly
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SUBSTANCE abuse prevention , *RISK-taking behavior , *LEISURE , *COVID-19 , *HEALTH services accessibility , *TIME , *RESEARCH methodology , *MEDICAL care , *COMMUNITIES , *INTERVIEWING , *FAMILIES , *TRANSPORTATION of patients , *ACTIVITIES of daily living , *SOCIAL cohesion , *QUALITATIVE research , *RESEARCH funding , *HEALTH , *CASE studies , *THEMATIC analysis , *DATA analysis software , *SUPERVISION of employees , *SPACE perception , *COVID-19 pandemic - Abstract
Purpose: This research examines the implementation of the Icelandic Prevention Model (IPM) in Canada to identify opportunities revealed by the COVID-19 pandemic to re-design our social eco-system to promote wellbeing. This paper has two objectives: 1) to provide a conceptual review of research that applies the bioecological model to youth substance use prevention with a focus on the concepts of time and physical space use and 2) to describe a case study that examines the implementation of the IPM in Canada within the context of the COVID-19 pandemic. Method: Study data were collected through semistructured qualitative interviews with key stakeholders involved in implementing the IPM. Results: Findings are organized within three over-arching themes derived from a thematic analysis: 1) Issues that influence time and space use patterns and youth substance use, 2) Family and community cohesion and influences on developmental context and time use and 3) Opportunities presented by the pandemic that can promote youth wellbeing. Conclusion: We apply the findings to research on the IPM as well as the pandemic to examine opportunities that may support primary prevention and overall youth wellbeing. We use the concepts of time and space as a foundation to discuss implications for policy and practice going forward. [ABSTRACT FROM AUTHOR]
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- 2023
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45. Who cares for the carer? Codesigning a carer health and wellbeing clinic for older care partners of older people in Australia.
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Layton, Natasha, Lalor, Aislinn, Slatyer, Susan, Lee, Den‐Ching A, Bryant, Christina, Watson, Moira, Khushu, Anjali, Burton, Elissa, Oliveira, Déborah, Brusco, Natasha L., Jacinto, Alessandro, Tiller, Elizabeth, and Hill, Keith D.
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CAREGIVER attitudes , *EXPERIMENTAL design , *MEETINGS , *SOCIAL support , *FOCUS groups , *ATTITUDES of medical personnel , *ATTITUDE (Psychology) , *TELEPHONES , *MEDICAL care , *EXECUTIVES , *HEALTH status indicators , *VIDEOCONFERENCING , *CLINICS , *INTERVIEWING , *LANGUAGE & languages , *QUALITATIVE research , *EXPERIENCE , *SURVEYS , *TREATMENT effectiveness , *INTERPROFESSIONAL relations , *PSYCHOLOGY of caregivers , *HEALTH , *AGING , *RESEARCH funding , *NEEDS assessment , *JUDGMENT sampling , *POLICY sciences , *DATA analysis software , *ADULT education workshops , *EMAIL - Abstract
Introduction: Older carers or 'care partners' of older people experiencing care needs often provide essential support, at times while neglecting their own health and well‐being. This is an increasingly frequent scenario due to both demographic changes and policy shifts towards ageing in place. Multiple community stakeholders within the care and support ecosystem hold valuable expertise about the needs of older care partners, and the programme and policy responses that may better support their health and well‐being. The aim of this study was to identify the perspectives of stakeholders obtained through the codesign phase of a multicomponent research project investigating new models of care and support for older care partners suitable for the Australian context. Methods: Principles of codesign were used to engage a purposeful sample of older care partners, health professionals, researchers, policy makers and health service administrators. Participants took part in a series of three codesign workshops conducted remotely via video conferencing. The workshops were supported with briefing material and generated consensus‐based summaries, arriving at a preferred service model. Findings: This paper reports the research design and structure of the codesign panels, the range of findings identified as important to support the health and well‐being of older carers of older people, and the resulting service model principles. The codesigned and preferred model of care is currently being prepared for implementation and evaluation in Australia. Public Contribution: This study was conducted using codesign methodology, whereby stakeholders including older care partners and others involved in supporting older carers, were integrally involved with design, development, results and conclusions. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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46. Acceptability of a shared cancer follow‐up model of care between general practitioners and radiation oncologists: A qualitative evaluation.
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Sandell, Tiffany, Schütze, Heike, and Miller, Andrew
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PATIENT aftercare , *HOSPITAL shared services , *GENERAL practitioners , *MEDICAL radiology , *CANCER patient psychology , *ETHICS , *RESEARCH methodology , *PHYSICIANS' attitudes , *INTERVIEWING , *PATIENTS' attitudes , *QUALITATIVE research , *PRE-tests & post-tests , *HEALTH insurance reimbursement , *CONCEPTUAL structures , *SELF-efficacy , *PSYCHOSOCIAL factors , *RESEARCH funding , *EMPLOYEES' workload , *CLINICAL competence , *THEMATIC analysis , *DATA analysis software , *CANCER patient medical care , *ONCOLOGISTS , *MEDICAL coding - Abstract
Introduction: Facilitators to implement shared cancer follow‐up care into clinical practice include mechanisms to allow the oncologist to continue overseeing the care of their patient, two‐way information sharing and clear follow‐up protocols for general practitioners (GPs). This paper aimed to evaluate patients, GPs and radiation oncologists (ROs) acceptance of a shared care intervention. Methods: Semi‐structured interviews were conducted pre‐ and post intervention with patients that were 3 years post radiotherapy treatment for breast, colorectal or prostate cancer, their RO, and their GP. Inductive and deductive thematical analysis was employed. Results: Thirty‐two participants were interviewed (19 patients, 9 GPs, and 4 ROs). Pre intervention, there was support for GPs to play a greater role in cancer follow‐up care, however, patients were concerned about the GPs cancer‐specific skills. Patients, GPs and ROs were concerned about increasing the GPs workload. Post intervention, participants were satisfied that the GPs had specific skills and that the impact on GP workload was comparable to writing a referral. However, GPs expressed concern about remuneration. GPs and ROs felt the model provided patient choice and were suitable for low‐risk, stable patients around 2–3 years post treatment. Patients emphasised that they trusted their RO to advise them on the most appropriate follow‐up model suited to their individual situation. The overall acceptance of shared care depended on successful health technology to connect the GP and RO. There were no differences in patient acceptance between rural, regional, and cancer types. ROs presented differences in acceptance for the different cancer types, with breast cancer strongly supported. Conclusion: Patients, GPs and ROs felt this shared cancer follow‐up model of care was acceptable, but only if the RO remained directly involved and the health technology worked. There is a need to review funding and advocate for health technology advances to support integration. Patient or Public Contribution: Patients treated with curative radiotherapy for breast, colorectal and prostate cancer, their RO and their GPs were actively involved in this study by giving their consent to be interviewed. [ABSTRACT FROM AUTHOR]
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- 2023
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47. 'I don't think they really link together, do they?' An ethnography of multi-professional involvement in advance care planning in nursing homes.
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Andrews, Nicola and Myall, Michelle
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OCCUPATIONAL roles , *PROFESSIONAL practice , *MEDICAL quality control , *SOCIAL workers , *INTERVIEWING , *ADVANCE directives (Medical care) , *NURSING care facilities , *ETHNOLOGY research , *QUALITATIVE research , *DOCUMENTATION , *HEALTH care teams , *QUALITY assurance , *RESEARCH funding , *INTERPROFESSIONAL relations , *THEMATIC analysis , *DATA analysis software , *PALLIATIVE treatment , *ELDER care - Abstract
Background Given the globally ageing population, care homes have an important role in delivering palliative and end-of-life care. Advance care planning (ACP) is promoted to improve the quality of end-of-life care in this setting. While many professionals can be involved in ACP, little is known about what influences multi-professional involvement and how multi-professional working impacts the ACP process in the UK. This study investigated multi-professional practice in relation to ACP in nursing homes. Design and methods An ethnography was undertaken in two UK nursing homes using multiple methods of data collection: observations, interviews and document review. Participants included the following: nursing home residents (n = 6), relatives (n = 4), nursing home staff (n = 19), and visiting health and social care professionals (n = 7). Analysis integrated thematic analysis, mapping of resident ACP trajectories and documentary analysis. Findings This paper suggests that multi-professional and relatives' involvement in ACP was disjointed. Continuity and coordination were disrupted by misalignment of visiting professional and nursing home organisational structures. Findings show a 'knotworking' approach to teamwork and power imbalance between nursing home staff and visiting professionals, such as general practitioners. While residents wished their relatives to be involved in their ACP, this was not formally recognised, and limited support existed to facilitate their involvement. Conclusion The structure and organisation of multi-professional and relatives' involvement in ACP led to fragmentation of the process. This marginalised the voice of both the resident and nursing home staff, thereby limiting ACP as a tool to enhance quality of end-of-life care. [ABSTRACT FROM AUTHOR]
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- 2023
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48. A study on learning analytics of using mobile augmented reality application to enhance cultural competence for design cultural creation in higher education.
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Cheng, Ching‐I.
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COLLEGE students , *CULTURE , *STATISTICS , *GLOBAL Positioning System , *AUGMENTED reality , *FOCUS groups , *TEACHING methods , *MOBILE apps , *RESEARCH methodology , *MOTIVATION (Psychology) , *CROSS-sectional method , *QUANTITATIVE research , *CREATIVE ability , *INTERVIEWING , *MANN Whitney U Test , *LEARNING strategies , *QUALITATIVE research , *UNDERGRADUATES , *SURVEYS , *PRE-tests & post-tests , *CULTURAL competence , *MASTERS programs (Higher education) , *RESEARCH funding , *UNIVERSITIES & colleges , *QUESTIONNAIRES , *ANALYSIS of covariance , *CHI-squared test , *COMMUNICATION , *INFORMATION-seeking behavior , *DATA analysis , *DATA analysis software , *EDUCATIONAL outcomes - Abstract
Background: Taiwan's higher education institutions prioritize interdisciplinary knowledge and cultural competence in cultural design, emphasizing the value of immersion in the local environment to develop cultural competence. However, challenges arise from the disappearance of traditional local lifestyles and limitations of traditional outdoor lectures such as group size and learning environment. Mobile augmented reality technology serves as a personal learning tool to overcome these challenges, enabling learners to uncover hidden knowledge in scenic locations and improving learning efficiency. Objective: The study utilized learning analytics to investigate the impact of using mobile augmented reality on enhancing learners' cultural competence. Methods: The study used both qualitative and quasi‐experimental quantitative research to evaluate the effects of mobile augmented reality on cultural competence. A total of 78 third‐year university students participated in the study, with 37 of them using mobile augmented reality to learn about culture. The researchers utilized both the Mann–Whitney U test and interviews to compare the effectiveness of mobile augmented reality with that of a 'real' tour guide in field courses. Results: The experimental results indicate that learners were able to continuously seek and find information about local culture through field exploration with mobile augmented reality, resulting in similar effects to those of attending a live lecture. Conclusions: It showed that incorporating mobile AR into field visits can create gamified and active learning scenarios that enhance immersion and drive active learning in local culture. The results in greater cultural knowledge and understanding, leading to the development of cultural competence in students. Lay Description: What is already known about this topic: There is a heightened emphasis on cultivating and demonstrating cultural competence across various fields due to the significantly grow of cultural and creative industries.Relying solely on traditional classroom teaching for learning about local culture may result in a diminished impact, as a comprehensive understanding of culture necessitates a keen sense of life.To address the limitations of traditional classroom lectures, educators continuously strive to enhance teaching methodologies by developing innovative approaches, such as experiential learning and community‐based learning, which involve hands‐on activities and real‐world engagement to foster increased learning motivation and improved effectiveness.Augmented reality (AR), a technology that overlays virtual images onto real scenes in real time, has gained extensive usage in diverse fields such as medicine, national defence, education, and entertainment, offering interactive gaming experiences and providing an opportunity to experience the culture and past lives of locals in the field, enhancing learners' understanding of cultural history and creating immersive encounters during visits.Particularly in digital learning, the integration of AR enables learners to engage with additional content through mobile devices, fostering an immersive and gamified learning experience. What this paper adds: The use of the AR app for learning about the local culture yielded comparable outcomes to traditional guided tours.Participants actively engaged in self‐directed learning and demonstrated a sense of initiative while utilizing AR.The flexibility and autonomy provided by field learning, which extended beyond the course period, allowed participants to revisit the field and explore at their own pace using AR.Demonstrates that participants took control and responsibility for their own learning, leading to an enhancement in learner autonomy.Participants who utilized the Roaming Jingliao AR system to explore cultural scenarios exhibited enhanced knowledge and attitudes regarding cultural competence, specifically in areas such as cultural understanding, rice food cultural knowledge, Songjiang folk arts, and skills and practices, which can be attributed to the immersive and autonomous nature of AR‐based knowledge learning in outdoor guided courses, minimizing the influence of external environmental factors and facilitating a deeper understanding of the content compared to traditional guided tours. Implications for practice and/or policy: The findings of this study highlight the importance of considering the limitations associated with a relatively small sample size when conducting research within a university curriculum. To enhance the validity and reliability of future studies, practitioners and policymakers should prioritize the inclusion of larger and more diverse samples, enabling a more comprehensive understanding of the impact of AR technology on cultural learning and informing evidence‐based practices and policies.The study's focus on a specific group of participants and their contextual background highlights the need for future research to include participants from diverse educational settings and cultural backgrounds, ensuring that the findings are more applicable and relevant to a broader population. Practitioners and policymakers should consider the importance of inclusivity and diversity when designing and implementing cultural learning interventions using AR technology.The recognition of technological limitations highlights the importance of considering the specific AR system used in cultural learning interventions. Practitioners and policymakers should be cautious when adopting AR technologies and recognize that different AR systems or platforms may yield different outcomes. Future research should focus on evaluating the effectiveness of various AR systems and platforms to inform decision‐making regarding the selection and implementation of AR technologies for cultural learning initiatives. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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49. Eye donation in hospice and hospital palliative care settings: perceptions, practice, and service development needs – findings from a national survey.
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Long-Sutehall, Tracy, Zatorska, Anna, Myall, Michelle, Faull, Christina, Hurlow, Adam, Mollart, Sarah, Rayment, Clare, Short, Jill, Wale, Jane, Winstanley, Emma, and Bracher, Mike
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HOSPICE care , *HOSPITALS , *PROFESSIONAL practice , *PHYSICIANS' attitudes , *EYE , *ADVANCE directives (Medical care) , *QUALITATIVE research , *SURVEYS , *RESEARCH funding , *DESCRIPTIVE statistics , *CONTENT analysis , *DATA analysis software , *ORGAN donation , *PALLIATIVE treatment - Abstract
Objectives: New routes for supply of eye tissue are needed in the UK to support transplant surgery and medical research. Hospice care (HC) and Hospital-based Palliative care (HPC) services represent potential supply routes. This paper reports findings from the survey arm of the Eye Donation from Palliative and Hospice Care–Investigating potential, practice preference and perceptions study (EDiPPPP), objectives of which were to: i) Investigate existing practice in relation to eye donation across HC and HPC settings; ii) identify perceptions of HCPs toward embedding eye donation into routine end of life care planning; iii) investigate the informational, training, or support needs of clinicians regarding eye donation. Design: Online survey of UK-based HC and HPC clinicians, distributed through professional organisations (Association of Palliative Medicine (UK); Hospice UK). Participants: One hundred fifty-six participants completed (63% HC; 37% HPC—8% response rate, of n = 1894 approached). Results: Majority of participants (63%, n = 99) supported raising eye donation (ED) with patients and families and agreed that ED should be discussed routinely with eligible patients. However, 72%, (n = 95) indicated that staff within their clinical setting did not routinely discuss the option of ED in end-of-life care planning conversations with the majority of participants reporting that the option of ED was not 'routinely discussed in multi-disciplinary team or other meetings. Conclusions: Despite significant support, ED is not part of routine practice. Attention to barriers to embedding ED and reducing knowledge deficits are urgently needed to increase the supply of eye tissue for use in transplant operations. [ABSTRACT FROM AUTHOR]
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- 2023
- Full Text
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50. Staff experience of a new approach to family safeguarding in Oxfordshire Children's Social Care Services.
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Buivydaite, Ruta, Morgan, Mia, Irving, Dulcie, Carter, James, Farncombe, Hannah, and Vincent, Charles
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PREVENTION of child abuse , *SAFETY , *HEALTH facility employees , *FOCUS groups , *ATTITUDES of medical personnel , *WORK , *MATHEMATICAL models , *RESEARCH methodology , *FAMILY health , *INTERVIEWING , *VIDEOCONFERENCING , *MEDICAL personnel , *FAMILY-centered care , *QUALITATIVE research , *CHILDREN'S accident prevention , *PARENTING , *PATIENTS' families , *EXPERIENTIAL learning , *PSYCHOSOCIAL factors , *CHILD welfare , *RESEARCH funding , *THEORY , *INTERPROFESSIONAL relations , *SOCIAL services , *THEMATIC analysis , *REFLEXIVITY , *DATA analysis software , *FAMILY services , *SOCIAL case work , *EMAIL , *COVID-19 pandemic - Abstract
This paper presents the findings from a qualitative study that sought to understand the experiences of frontline staff working in Oxfordshire County Council (OCC) Children's Social Care Services and their views on a new family safeguarding model (Family Solutions Plus). Focus group interviews were conducted with 20 frontline staff and managers in different teams across OCC Children's Social Care Services using video conferencing software. Thematic analysis identified three overarching themes: Preparation for the implementation of Family Solutions Plus, staff views on the implemented model, and challenges to its implementation. Staff voiced strong support for the new model, which places a much greater emphasis than previous practice on supporting the whole family, developing parenting skills and keeping children safe with their families. The challenges associated with the transition to a new model were considerable in the short term, partly due to the COVID‐19 pandemic, but there was optimism that the new model could be sustained and stabilized over time. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
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